msroundtable

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Hey IG, been a while… . . As of yesterday, it’s official https://www.instagram.com/p/Ca5tpCMAk9h/?utm_medium=tumblr

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Waiting for the Neurologist be like… . . #ms #msappointment #neurologist #neurology #neuro #neuroappointment #multiplesclerosis #mswarrior #mswarriors #msdude #mslife #doctorappointment #checkup #spoonie #spoonielife #waitinggamestrong #seeyouinfivemonths #waitinggame #hospitalselfie #autoimmunedisease #disease #findacure #community #roundtable #msroundtable (at Aurora Medical Center in Kenosha) https://www.instagram.com/p/CXevMFLrYH5/?utm_medium=tumblr

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Diet: Has anyone done the Mediterranean Diet? From what I’ve seen this seems to be the most popular among #spoonies I’d love to get feedback, advice, tips etc. from anyone that has tried this or does live by it! . . . #ms #multiplesclerosis #spooniesupport #diet #mediterraneandiet #mediterraneanfood #healthyfood #mswarriors #mswarrior💪 #healthydiet #guthealth #immunesupport #feedback #advice #nutrition #nervoussystem #msfood #tipsandtricks #community #roundtable #msroundtable https://www.instagram.com/p/CWbLbqOrpai/?utm_medium=tumblr

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Adderall: 💊 . I did not want to go on this…my therapist asked me why and I told him because it makes me thinks of a scummy 16 yo trying to pass highschool. He then Asked why I felt like that- and I replied “because I was a scummy 16 yo who took adderall to pass highschool” lbvs! . But I talked with him and I spoke with my wife and I Need the energy. I’m not that 16 yo anymore and I have a legitimate medical condition that makes me exhausted. . A “legitimate medical condition “…this is something I forget is true (maybe I just don’t want to?) but either way I started taking one of these in the AM and…wow… . 30 mg and my life seems changed. I can accomplish things, I have drive again it’s amazing. Honestly I still feel “dirty” for taking it but even if it’s temporary, it was the best decision to go back to work. I feel like I have 25% of the old me back! …then my mind goes to thinking “ya you have it back because of this drug”…so this internal struggle may continue but at least I have some of the old me back. And I’ll take that as a win today 🙌💪🧡. . #ms #multiplesclerosis #msbites #mswarriors #mswarrior #mswarrior💪 #mswarrior #msfighter #perscription #adderall #hope #drive #gotmydriveback #work #workfromhome #backtowork #worksfornow #takethew #takethewin #energy #pills #temporary #spoonie #spoonielife #spooniesupport #msmedication #energypill #getshitdone #multiplesclerosissupport #multiplesclerosissucks #fuckms https://www.instagram.com/p/CWGrVroPOIn/?utm_medium=tumblr

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Back To Work:👨‍💻📈📊👨‍💼 . 60 days…that’s the number of days I took short term disability. Today is my first day back. My anxiety is through the roof. At first I thought it was work in itself, but I honestly do better mentally when I’m working (or have projects etc.). . I think the real reason is when a “normal” person takes off work for being sick or injury- they go back to work once 💯. I do not feel 💯. But this ties into my struggle of accepting I may never feel 💯. . Happy Monday to all my Warriors and followers. Wish me luck! ☮️🧡💪 . #ms #mswarriors #mswarrior💪 #mswarrior #backtowork #caseofthemondays #shorttermdisability #shorttermdisabilityinsurance #anxiety #panicattack #emailsonemails #work #workfromhome #wfh #mser #myms #mymsjourney #mymsstory #mystory #community #roundtable #msroundtable https://www.instagram.com/p/CWBEp9wLQNZ/?utm_medium=tumblr

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Sunday Funday! 🤪 . Time to organize the meds for the week!💊🗓 . . #ms #multiplesclerosis #multiplesclerosistreatment #multiplesclerosisfighter #multiplesclerosiswarrior #mswarrior💪 #mstalk #mswarrior #meds #sundayfunday #sunday #sundayvibes #sundaynight #mstreatment #myjourneywithms #myms #myjourney #justanotherday #lifewithmultiplesclerosis #lifewithms #prescription #somethingsgottawork #community #roundtable #msroundtable https://www.instagram.com/p/CV_u1OfMUZW/?utm_medium=tumblr

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Massage: For fathers day this year my wife and daughter got me a massage. I’ve never had one and finally booked it for yesterday. While getting it, I loved it. I couldn’t believe I waited so long to book this! . Moving to today, I feel like I paid to get my shoulders beat up! From the little research I did to see if this was normal, it indicated it was. Google said to look at it like a workout meaning the longer between the more your muscles will be sore. . This may have been another thing to add to my #shittyday today, which lead to me flipping out/breaking down, and then just feeling defeated and exhausted. . I constantly feel like I am trying to do what I’m “supposed to do”, and with every step forward I take 3 backwards… . #multiplesclerosis #ms #multiplesclerosistreatment #massagetherapy #massage #firstmassage #justanotherthing #myjourney #stepsforward #stepsbackwards #defeated #depression #mslife #relax #roundtable https://www.instagram.com/p/CVyqUYGMIKY/?utm_medium=tumblr

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Insomnia: This was me at 7:00 am today (📸: My 6 yo)…as tired as I get and even with muscle relaxers (4mg total), my insomnia kept me up until 3:30 AM…awake at 6:30 am to help get my daughter ready and take her to school. This is how I was while waiting to take her to school. . Of all the things I don’t understand about this disease, insomnia is…I just don’t get. How am I so exhausted, fatigued, In pain etc.- but my body won’t sleep?!? . Any suggestions for the Roundtable on falling asleep easier? If so please comment💬⬇️👇 (or dm). I know im not the only one suffering from this so any advice is welcome and greatly appreciated!!! 🥱😴😳😤😣 . #ms #multiplesclerosis #insomia #multiplesclerosisfighter #mswarrior💪 #multiplesclerosislife #multiplesclerosiswarrior #fatigue #exhausted #insomniac #spoonie #spoonielife #spooniewarrior #spooniecommunity #mscommunity #multiplesclerosiscommunity #icantsleep #tommorowwillbehard #tonightwillbebetter #insomniaadvice #tired #chronicillness #chronicpain #chronicfatigue #chronicillnesswarrior #gettingonmynerves #community #roundtable https://www.instagram.com/p/CVgfEPUvZGM/?utm_medium=tumblr

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Shout out to my dad and brother for installing a second handrail (left) and replacing the right to match! These stairs are steep, and the top is the master bedroom, so this is a game changer! Happy Sunday!🍂🧡 . . #ms #stairs #pleasedontfall #multiplesclerosis #mslife #disabilitymodifications #autoimmunedisease #familyhelp #gamechanger #roundtable https://www.instagram.com/p/CVbICqKv_3L/?utm_medium=tumblr

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Woke up this morning and the first thing I did after dropping my daughter off at school was watch the @selmablair new documentary. I’ve always loved movies, film and especially documentaries- for the rawness I think. However I have such a connection with MS films now and this one is no exception. As always I come away with viewing materials such as this with mixed feelings. I watch, I relate, I cry, I laugh and I look inward. What those thoughts bring, I’m not sure. But I highly recommend watching this- dropped today on Discovery+ . #ms #multiplesclerosis #msdocumentaries #discoveryplus #documentary https://www.instagram.com/p/CVS-DsOr1FC/?utm_medium=tumblr

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Home and feeling less 🤬 from the steroids and more 🥱. Going to relax and get some rest, hoping I get some good sleep tonight. . Also- I should have a short term disability update tomorrow to share as well 🤞 . Thank you to everyone for the kind words, the inspiration and I’m SO HAPPY to see my videos may help others getting, thinking about starting or are planned to start Ocrevus. Have a great night roundtable 🟠🧡😴. . . . #ms #ocrevus #ocrevusupdate #ocrevusinfusion #ocrevusjourney #mstreatment #multiplesclerosis #steroids #hypedup #tired #needsleep #restandrelax #restandrecovery #restandrecharge #myjourney #mymsjourney #infusionday #update #timeforbed😴 #chronicillness #chronicfatigue #chronicillnesswarrior #mswarrior💪 #msfighter👊 #community #roundtable https://www.instagram.com/p/CUYlKfVj3nS/?utm_medium=tumblr

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FIRST FULL OCREVUS INFUSION DAY!!! 🎗🏥😷 I can’t believe it’s already been 6 months since my last (second half dose) of Ocrevus! 😮 . I will post a video later on how I felt after! 🟠🧡 . . #ms #multiplesclerosis #ocrevus #ocrevusinfusion #ocrevusjourney #firstfulldose #pleasework #chronicillness #incurabledisease #curems #spoonie #spoonielife #msfighter👊 #mswontstopus #mswarrior💪 #infusion #infusionday #takebackcontrol #letthiswork #medicine #mobility #mystory #community #roundtable (at Gamma Therapitic Infusions) https://www.instagram.com/p/CUYOWZzLz8j/?utm_medium=tumblr

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Thank you to everyone who has followed, supported and become a member of this roundtable! I truly appreciate all of the comments, messages, advice and support I have received from you all and hope that my journey helps others as well!! As you know I am going through a lot as so@many of us are, but I will stay dedicated to this page and updates/interviews/ advice and asking my Many questions 😊 . . #ms #roundtable #community #mswarriors #multiplesclerosis #1000followers #1000friends #share #shareyourstory #mystory #ourstory https://www.instagram.com/p/CUPvX-ZATmE/?utm_medium=tumblr

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Summer Vlogs to come! #ms #mswarrior🧡 #vlog #updates #moretocome https://www.instagram.com/p/CTNCru5DC4G/?utm_medium=tumblr

[msroundtable]

Many people on here have commented or messaged me asking what medications I am on. See the weekly fun above! 😝 . Am: 10 mg Delfampradine (Ampyra), 37.5 mg Venlaflaxine, 300 mg Gabapentin . Noon: 5000 iu vitamin D, 0.4 mg Tamsulosin, 300 mg Gabapentin . PM: m: 10 mg Delfampradine (Ampyra), 300 mg Gabapentin, 2-4 mg Tizanidine . This does not include any multivitamin, allergy pills, Tylenol/ Ibuprofen that I take as well. I have stopped drinking alcohol since my stomach already has a lot going on with these. . I got this pill organizer from Amazon, I also use the app @medisafeapp app along with #siri to help me stay on track with my meds , although I will admit there are days I forget to take one section of meds until a few hours after its “scheduled” time, but the app really helps! 💊 . #ms #multiplesclerosis #mswarrior🧡 #medication #medicationmanagement #meds #venlafaxin #gabapentin #ampyra #vitamind #seeingwhatworks #gettingbalanced #spoonie #mssucks #msroundtable #roundtable #nervepain #gettingonmynerves #medisafe #multiplesclerosisawareness https://www.instagram.com/p/CSUCnQELYJW/?utm_medium=tumblr

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Having a hard fucking time.. I don’t feel like myself these days. I’m either exhausted, crying, or lashing out at everyone- or some combination…I feel horrible as my wife takes the brunt of it. I don’t want to be like that, like this. But I honestly feel like a shell of who I am just making it to the next day. . . For the first time in my life I knew I needed therapy. Well tbh I don’t like the idea, but I’ll try anything at this point. The first place I called wasn’t taking new patients- I called another place in network and they will get back to me to schedule an appointment in 2-8 weeks.. . I know I’ve mentioned on here Before I am a bit of a control freak and not having control over how my body, life and mind are changing is getting to me. I’ve always dealt with issues one way or another but I feel lost this time. I need to post on here more- 1 to give updates for those going thru the same feels,2 it helps document how this is going so I can look back and hopefully be happy with progress. . . . #ms #mswarrior🧡 #depressionhelp #havingahardtime #multiplesclerosis #spoonie #therapy #lowpoint #struggle #notmyself #spoonielife #msdisease #control #outofcontrol #lost #postmore https://www.instagram.com/p/CReo1Chsu_q/?utm_medium=tumblr

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My serene little side of the patio. 😌 . I can’t sit in the patio chairs for long period of time. My back ends up on fire, legs sore,neck stiff and creating a headache. So I ordered this chair online and it is great! I can sit and look at my flowers in my little back yard and relax. A nice change of pace from laying inside! 🧘‍♂️🥱 . . . #multiplesclerosis #ms #serenity #chair #patiocomfort #spoonie #spoonielife #outofspoons #summer #summer21 #summernights #summervibes #healingvibes #chronicillnessproblems #disease #mswarrior🧡 #roundtable https://www.instagram.com/p/CQSR-Isj60b/?utm_medium=tumblr