#ocrevus

[ibr860]

This is what "Doaa" suffers from in Gaza!

Multiple Sclerosis patients in Gaza are forgotten amidst the flaming war. No medical care is available for them, and no hope is left for them to get their must-take infusions.

Doaa is a case of an MS patient in Gaza that needs your support urgently. Help Doaa by donating or sharing her story with your network on all social media. If you support, you are not supporting one person, but you will support a family of 7 members who are waiting for the safety, peace, and healing of their mother.

[badriex]

free palestine

[lordbeebrain]

Last night I happy cried, for the first time since being diagnosed with Multiple Sclerosis last year.

There’s no lag to my thoughts at all right now; it’s no longer feeling as if I have to PUSH my thoughts out.

It’s so fucking freeing… I can think.

I can be…❤️😮‍💨

[sparkylurkdragon]

Had my first ocrevus infusion today! More under the fold.

Had a mild infusion reaction when they went from the third-slowest drip to the second-slowest that felt like (1) my throat hurting, (2) my tummy getting upset, and (3) pressure in my ears like when you have to pop them. The latter was the weirdest; I had not realized this was a thing that could happen.

This was fixed by So Much Benadryl and Pepsid, and the nurses told me this wasn't uncommon because of how taxing ocrevus is on the body; Doctor Google tells me that infusion reactions are a lot more common on the first dose, which I presume is why the first dose is split into two half-doses a couple of weeks apart.

Anyway I was extremely zonked out on the antihistamines and am only now starting to get some of my energy back; it was apartment cleaning day today and I had to ask my DSP to do all of it when we usually do side-by-sides with me doing most of the actual work. I'll be monitoring myself for any serious reactions over the next 24 hours or so.

[alan-tel]

Infusion Time 6/3/2024

I'm getting my latest Ocrevus infusion.

They didn't fast track me so I'm going to be here for about 6 and half hours.

[smudge-goblin]

Happy February,

Might get into a fight with my insurance company.

I had an appointment scheduled since last August, and they call us now asking for proof that I need my medicine, essentially canceling my infusion.

Words cannot describe how angry I am.

[u2hearts]

Do We Continue MS Disease Therapy Drugs?

I’m faced with a major decision coming up soon. Do I continue taking Rituxan? Not only Rituxan but any disease modifying therapies. I’ve been plagued with infections. I do believe that all of these infections have not only been difficult for me mentally but have played a significant part in the worsening of my symptoms. It’s the age old question, is the MS medication doing anything for me? Are…

[hiyaluronic]

Fuck every single person that voted for Trump, fuck every Democrate that cow-towed to the Republican party (looking at you Schumer) to get this CR Bill passed. I hope every single one of them gets primaried.

[ibr860]

When Getting Medicine Became a Dream in Gaza!

This is my wife at the moment of receiving her MS medicine box named Ocrevus. This image was taken on 26 Feb 2023 after 1 year of struggling to get that tiny box. The cost of Ocrevus reaches 70$k yearly, and normal people like us can't afford this cost. The only way to get this medicine is by the government support. Unfortunately, after 6 months of war in Gaza, my wife is unable to get her second infusion that she was supposed to take in Oct 2023.

This is not the only case in my family, we have another fighter, which is my daughter, Farah, who suffers from epilepsy. For the same reason, she can also not get her medical care and medicine named Luminal because this medicine is now run out from the stores.

Amid this adversity, I find the true strength of community. 

Our circumstances are compounded by the ongoing conflict in the region, making access to essential medical treatments not just a challenge, but a daily struggle for survival.

This moment calls for more than empathy; it demands action. I have started a fundraising campaign to secure the medical care urgently needed and to find a safer environment for my family. I hope that our network can make a monumental difference in my family's life. I urge you to read my story, share it within your networks, and contribute if you're able.

Find my story in the following link:

https://gofund.me/9eef4e26

[sleepybirbies]

to the surprise of absolutely nobody, i have made another sheep

[telltalebatman]

for the past few days i've been reading up on health insurance situation in 'murica and uhm

[lordbeebrain]

The brain fog caused by my Multiple Sclerosis is gone and my mind feels so free now… ☺️

[woodsy-hoe]

my blood work and MRIs were normal/improving let’s fucking goooooo 🥳

[blenselche]

[bea-l-zebul]

Wanna know what really grinds my gears?

When I, a physically disabled woman, talk about the intersections of being both disabled and a woman, and other, able bodied women decide that it’s perfectly fucking fine to shut me down.

I have MS if you didn’t know. Recently studies have come out about scientists wanting to explore certain hormones in pregnancy and why they cause (some) women with MS to go into remission.

All of these people were talking about a potential “breakthrough”, and while that is a possibility, I live in a country that just took away reproductive rights from women.

So forgive me if I’m not ecstatic about scientists yet-a-fucking-gain talking about using pregnancy to treat a condition that’s more common in woman.

Forgive me for pointing out the downsides.

Like seriously, someone in Australia had the fucking gall to tell me to “stop freaking out about it because you don’t live in Nazi Germany, yet”

Really Becky, cause from what I can tell the USA is one fascist dictator getting into office away from turning into the reincarnation of it. And since you used “yet” you seem to recognize that, but don’t want to acknowledge that a positive for you is a negative for other fucking women in the same situation.

I don’t want my insurance company to turn around and refuse to cover my Ocrevus because they decided that me getting knocked up is the cheaper option than covering the meds that cost approx. 69k dollars out of pocket.

I don’t want to be forced to become a handmaiden to replenish ACB’s “domestic supply of infants”

I want to be child free, and I want it to become unacceptable for any scientist or doctor to recommend fucking pregnancy as a treatment,

…but, ya know, I’m just crazy for pointing out the potential negatives should the recommendations from further studies be “get knocked up, it’s the only way” when a lot of women don’t even have a right to bodily autonomy anymore.

[heartshapedcloud]

I rly do feel like I've been hit by a bus every single day. it's just an inexplicable amount of fatigue it's like the worst flu I've ever had but for more than three months straight. at the same time I feel so cradled in the hands of scientists and other patients who worked so hard to advocate for+develop treatments like the ocrevus infusion I'm getting on Monday. it's a weird mix of emotions but more than anything I'm so bone aching exhausted. i spend more time in bed staring into nothing or sleeping than anything else.