#ocrevus

[ibr860]

This is what "Doaa" suffers from in Gaza!

Multiple Sclerosis patients in Gaza are forgotten amidst the flaming war. No medical care is available for them, and no hope is left for them to get their must-take infusions.

Doaa is a case of an MS patient in Gaza that needs your support urgently. Help Doaa by donating or sharing her story with your network on all social media. If you support, you are not supporting one person, but you will support a family of 7 members who are waiting for the safety, peace, and healing of their mother.

[badriex]

free palestine

[neshamama]

at the infusion center rn im going to eat a gummy and blow Up my immune system

[lordbeebrain]

Last night I happy cried, for the first time since being diagnosed with Multiple Sclerosis last year.

There’s no lag to my thoughts at all right now; it’s no longer feeling as if I have to PUSH my thoughts out.

It’s so fucking freeing… I can think.

I can be…❤️😮‍💨

[sparkylurkdragon]

Had my first ocrevus infusion today! More under the fold.

Had a mild infusion reaction when they went from the third-slowest drip to the second-slowest that felt like (1) my throat hurting, (2) my tummy getting upset, and (3) pressure in my ears like when you have to pop them. The latter was the weirdest; I had not realized this was a thing that could happen.

This was fixed by So Much Benadryl and Pepsid, and the nurses told me this wasn't uncommon because of how taxing ocrevus is on the body; Doctor Google tells me that infusion reactions are a lot more common on the first dose, which I presume is why the first dose is split into two half-doses a couple of weeks apart.

Anyway I was extremely zonked out on the antihistamines and am only now starting to get some of my energy back; it was apartment cleaning day today and I had to ask my DSP to do all of it when we usually do side-by-sides with me doing most of the actual work. I'll be monitoring myself for any serious reactions over the next 24 hours or so.

[saddie-to-baddie]

2.20.23

Today's the day I've been dreading! I'm getting my broken tooth removed/ bone graft. I haven't looked up what a bone graft specifically entails because I don't want to build it up in my head but it doesn't sound fun.

And my appointment isn't until 3pm, so I'll already have all day to let the anxiety build up. I'm trying very hard to stay calm about it and keep myself distracted 🙃

I know I can get through the procedure, but not knowing exactly what the after care/healing is going to entail makes me so nervous. I'm especially nervous that they mentioned it will take ~6 weeks to heal, and I'm trying to start a new medication for Multiple Sclerosis that will essentially knock down my immune system.

In my head, that means I'll either risk complications in healing by starting the medicine, or I will have to wait to start it and risk spiraling into a flare up from the stress response. AH!

On a positive note though, in ~6 weeks I'll have a complete smile again. I've been trying not to be self conscious about it since it's off to the side, but when I smile really big, it's noticeable.

[alan-tel]

Infusion Time 6/3/2024

I'm getting my latest Ocrevus infusion.

They didn't fast track me so I'm going to be here for about 6 and half hours.

[hoshikostar]

My doctor is thinking about taking me off of Ocrevus because I've been getting a suspicious amount of infections, but the Ocrevus is working for my lesions...

[smudge-goblin]

Happy February,

Might get into a fight with my insurance company.

I had an appointment scheduled since last August, and they call us now asking for proof that I need my medicine, essentially canceling my infusion.

Words cannot describe how angry I am.

[u2hearts]

Do We Continue MS Disease Therapy Drugs?

I’m faced with a major decision coming up soon. Do I continue taking Rituxan? Not only Rituxan but any disease modifying therapies. I’ve been plagued with infections. I do believe that all of these infections have not only been difficult for me mentally but have played a significant part in the worsening of my symptoms. It’s the age old question, is the MS medication doing anything for me? Are…

[ibr860]

When Getting Medicine Became a Dream in Gaza!

This is my wife at the moment of receiving her MS medicine box named Ocrevus. This image was taken on 26 Feb 2023 after 1 year of struggling to get that tiny box. The cost of Ocrevus reaches 70$k yearly, and normal people like us can't afford this cost. The only way to get this medicine is by the government support. Unfortunately, after 6 months of war in Gaza, my wife is unable to get her second infusion that she was supposed to take in Oct 2023.

This is not the only case in my family, we have another fighter, which is my daughter, Farah, who suffers from epilepsy. For the same reason, she can also not get her medical care and medicine named Luminal because this medicine is now run out from the stores.

Amid this adversity, I find the true strength of community. 

Our circumstances are compounded by the ongoing conflict in the region, making access to essential medical treatments not just a challenge, but a daily struggle for survival.

This moment calls for more than empathy; it demands action. I have started a fundraising campaign to secure the medical care urgently needed and to find a safer environment for my family. I hope that our network can make a monumental difference in my family's life. I urge you to read my story, share it within your networks, and contribute if you're able.

Find my story in the following link:

https://gofund.me/9eef4e26

[sleepybirbies]

to the surprise of absolutely nobody, i have made another sheep

[telltalebatman]

for the past few days i've been reading up on health insurance situation in 'murica and uhm

[lordbeebrain]

The brain fog caused by my Multiple Sclerosis is gone and my mind feels so free now… ☺️

[woodsy-hoe]

my blood work and MRIs were normal/improving let’s fucking goooooo 🥳

[saddie-to-baddie]

1.17.23 Review.

So, yesterday did NOT go as planned food wise.

There really is something about restricting anything that makes me go off the rails. BUT I thought this might happen. Today I'm bringing some more salad and more chicken for lunch. And some fruit for snacking. I'll pre-slice some apples and maybe take a banana or two.

My sweet tooth got the best of me yesterday, and when I got home I went overboard with some French bread that was out. I'm not getting too strict about following AIP for dinner yet, but I went completely off the rails.

My hips and back hurt a lot this morning, my legs are feeling weak and I did notice a lot more jabbing pains around my torso and chest last night. Strictly diet related? Probably not, but I don't think it helped. Leg wise I think I may have gone a little hard with my work walks, I walked a lot farther during my lunch break than I usually do. I don't want to throw myself into a flare right now so I might dial it back just a bit until I get back on medication.

That symptom alone really scares me because that's pretty much when I got so bad that I was hospitalized and ultimately diagnosed with MS 3ish years ago. My legs felt wierd, then slowly I was losing my balance, couldn't stand, couldn't feel my feet, until I was falling over and couldn't drive or trust myself to hold my baby daughter anymore. Everytime I experience a flare, I am terrified that I might not fully recover. So I really need to take this more seriously.