#ocrevus
Explore tagged Tumblr posts
Text
This is what "Doaa" suffers from in Gaza!
Multiple Sclerosis patients in Gaza are forgotten amidst the flaming war. No medical care is available for them, and no hope is left for them to get their must-take infusions.
Doaa is a case of an MS patient in Gaza that needs your support urgently. Help Doaa by donating or sharing her story with your network on all social media. If you support, you are not supporting one person, but you will support a family of 7 members who are waiting for the safety, peace, and healing of their mother.
#free gaza#gazaunderattack#palestine#stand with gaza#gaza#gaza genocide#gaza strip#free palestine#israel#palestine genocide#ms#multiple sclerosis#ocrevus#history#horror#hazbin hotel
111 notes
·
View notes
Text
free palestine
#gaza#free gaza#gaza strip#gaza genocide#gazaunderattack#free palestine#israel#palestine genocide#ceasfire now#ceasefire#palestine#stand with gaza#ms#multiple sclerosis#ocrevus#history#horror#hazbin hotel
60 notes
·
View notes
Text
Last night I happy cried, for the first time since being diagnosed with Multiple Sclerosis last year.
There’s no lag to my thoughts at all right now; it’s no longer feeling as if I have to PUSH my thoughts out.
It’s so fucking freeing… I can think.
I can be…❤️😮💨
#multiple sclerosis#multiple sclerosis problems#multiple sclerosis fighter#multiple sclerosis healing#ocrevus#Ocrevus is amazing
5 notes
·
View notes
Text
Had my first ocrevus infusion today! More under the fold.
Had a mild infusion reaction when they went from the third-slowest drip to the second-slowest that felt like (1) my throat hurting, (2) my tummy getting upset, and (3) pressure in my ears like when you have to pop them. The latter was the weirdest; I had not realized this was a thing that could happen.
This was fixed by So Much Benadryl and Pepsid, and the nurses told me this wasn't uncommon because of how taxing ocrevus is on the body; Doctor Google tells me that infusion reactions are a lot more common on the first dose, which I presume is why the first dose is split into two half-doses a couple of weeks apart.
Anyway I was extremely zonked out on the antihistamines and am only now starting to get some of my energy back; it was apartment cleaning day today and I had to ask my DSP to do all of it when we usually do side-by-sides with me doing most of the actual work. I'll be monitoring myself for any serious reactions over the next 24 hours or so.
2 notes
·
View notes
Text
2.20.23
Today's the day I've been dreading! I'm getting my broken tooth removed/ bone graft. I haven't looked up what a bone graft specifically entails because I don't want to build it up in my head but it doesn't sound fun.
And my appointment isn't until 3pm, so I'll already have all day to let the anxiety build up. I'm trying very hard to stay calm about it and keep myself distracted 🙃
I know I can get through the procedure, but not knowing exactly what the after care/healing is going to entail makes me so nervous. I'm especially nervous that they mentioned it will take ~6 weeks to heal, and I'm trying to start a new medication for Multiple Sclerosis that will essentially knock down my immune system.
In my head, that means I'll either risk complications in healing by starting the medicine, or I will have to wait to start it and risk spiraling into a flare up from the stress response. AH!
On a positive note though, in ~6 weeks I'll have a complete smile again. I've been trying not to be self conscious about it since it's off to the side, but when I smile really big, it's noticeable.
#spoonie#me#saddie to baddie#i need extra spoons#multiple sclerosis#autoimmine disease#self improvement#self care#tooth extraction#dear diary#bone graft#DMD#ocrevus
2 notes
·
View notes
Text
My age 51 my body is much older
My age 51 my body is much older
It’s my birthday tomorrow. 51!!! I’m middle age. I think my body has been middle age since I was 43. That was when multiple sclerosis hit me with the last relapse that started my path of true disability. It’s been 8 years since that last relapse. It was when I was switching from Tysabri to Rituxan. I made the mistake of stopping Tysabri because I actually had the thought of switching to an…
View On WordPress
#birthdate#birthday#body#body age#daily life with ms#disease modifying therapies#living with MS#living with multiple sclerosis#MS#ms life#ms over 20 years#ms symptoms#ms treatments#Multiple sclerosis#Ocrelizumab#ocrevus#relapse#relapse remitting multiple sclerosis#Rituxan#Rituximab#secondary progressive multiple sclerosis#Topiramate#topiramate side effects#Tysabri
2 notes
·
View notes
Text
Infusion Time 6/3/2024
I'm getting my latest Ocrevus infusion.
They didn't fast track me so I'm going to be here for about 6 and half hours.
0 notes
Text
My doctor is thinking about taking me off of Ocrevus because I've been getting a suspicious amount of infections, but the Ocrevus is working for my lesions...
0 notes
Text
Happy February,
Might get into a fight with my insurance company.
I had an appointment scheduled since last August, and they call us now asking for proof that I need my medicine, essentially canceling my infusion.
Words cannot describe how angry I am.
0 notes
Text
to the surprise of absolutely nobody, i have made another sheep
#art#cute#artists on tumblr#crafts#needle felting#sheep#it's infusion day on Monday!!#Ocrevus is doin its funky thing#as i've not had any new lesions#so my worsening tremors are just new pathways from previous damage getting a bit mixed up#so it's not all bad ig#anyways i think i'll make another lil birdy next#sleepybirbies
16 notes
·
View notes
Text
looking up how much my current meds (ocrevus) cost outside of any medical refund systems and bruh, we need to abolish capitalism asap, this shit costs over 20k dollars per infusion................................
#4.txt#thankfully this is not out of my own pocket lol#ministry of health pays for my treatment#which. to be fucking fair. might explain why there are no money for hospital worker pay rises...........................#me and all the other polish ocrevus patients should start a club#called “we cost the government so much money it's unreal”#multiple sclerosis
6 notes
·
View notes
Text
When Getting Medicine Became a Dream in Gaza!
This is my wife at the moment of receiving her MS medicine box named Ocrevus. This image was taken on 26 Feb 2023 after 1 year of struggling to get that tiny box. The cost of Ocrevus reaches 70$k yearly, and normal people like us can't afford this cost. The only way to get this medicine is by the government support. Unfortunately, after 6 months of war in Gaza, my wife is unable to get her second infusion that she was supposed to take in Oct 2023.
This is not the only case in my family, we have another fighter, which is my daughter, Farah, who suffers from epilepsy. For the same reason, she can also not get her medical care and medicine named Luminal because this medicine is now run out from the stores.
Amid this adversity, I find the true strength of community.
Our circumstances are compounded by the ongoing conflict in the region, making access to essential medical treatments not just a challenge, but a daily struggle for survival.
This moment calls for more than empathy; it demands action. I have started a fundraising campaign to secure the medical care urgently needed and to find a safer environment for my family. I hope that our network can make a monumental difference in my family's life. I urge you to read my story, share it within your networks, and contribute if you're able.
Find my story in the following link:
https://gofund.me/9eef4e26
#free gaza#free palestine#gaza genocide#palestine#gazaunderattack#stand with gaza#israel#gaza#gaza strip#palestine genocide#ms#ocrevus#medicine#disability#palestine news#help needed#help palestine
47 notes
·
View notes
Text
my blood work and MRIs were normal/improving let’s fucking goooooo 🥳
#for the first time in years my body is not fucking me over completely and i’m so glad like !!!#yes some of my symptoms (even the embarrassing ones) are still present and happen but hey! i can feel things and walk normally!!#shoutout to ocrevus i know it doesn’t work for a lot of people with MS but ayooo it’s working for me rn#gonna celebrate with some boba tea and a nice long nap after work lmao teehee :-)#becca speaks
12 notes
·
View notes
Text
The brain fog caused by my Multiple Sclerosis is gone and my mind feels so free now… ☺️
#multiple sclerosis healing#multiple sclerosis problems#multiple sclerosis fighter#multiple sclerosis#multiple sclerosis treatments#ocrevus#disease modifying therapy#brain fog#ms brain fog#multiple sclerosis brain fog
3 notes
·
View notes
Text
not a fan of the clearly targeted ads im getting for MS medications. idk about this whole "advertisers knowing medical stuff about me" deal
#making this post certainly wont help#and its not just here its fucking everywhere#i cant even look at a damn tv without seeing an ad for ocrevus or something
3 notes
·
View notes
Text
1.17.23 Review.
So, yesterday did NOT go as planned food wise.
There really is something about restricting anything that makes me go off the rails. BUT I thought this might happen. Today I'm bringing some more salad and more chicken for lunch. And some fruit for snacking. I'll pre-slice some apples and maybe take a banana or two.
My sweet tooth got the best of me yesterday, and when I got home I went overboard with some French bread that was out. I'm not getting too strict about following AIP for dinner yet, but I went completely off the rails.
My hips and back hurt a lot this morning, my legs are feeling weak and I did notice a lot more jabbing pains around my torso and chest last night. Strictly diet related? Probably not, but I don't think it helped. Leg wise I think I may have gone a little hard with my work walks, I walked a lot farther during my lunch break than I usually do. I don't want to throw myself into a flare right now so I might dial it back just a bit until I get back on medication.
That symptom alone really scares me because that's pretty much when I got so bad that I was hospitalized and ultimately diagnosed with MS 3ish years ago. My legs felt wierd, then slowly I was losing my balance, couldn't stand, couldn't feel my feet, until I was falling over and couldn't drive or trust myself to hold my baby daughter anymore. Everytime I experience a flare, I am terrified that I might not fully recover. So I really need to take this more seriously.
#spoonie#multiple sclerosis#self care#saddie to baddie#aip diet#autoimmine disease#self improvement#autoimmune protocol#day 1 recap#week 1#pain pain go away#pain management#inflammation#tysabri#ocrevus#dmd#dear diary
2 notes
·
View notes