#motor disorders

[goodgriefnd]

Neurodivergent Passport

A wee update with some exciting news about My Neurodivergent Passport: a tool to communicate your needs, strengths, and sensory/communication profiles.

Following some feedback the passport has been updated.

You can now get a printed version of My Neurodivergent Passport! You can buy it here!

You can also get it as a free PDF on my blog.

[wheresernie]

Big family meals and food holidays are hard for me because of my tremors and dyspraxia.

So shout out to people with tremors, motor disorders and coordination disorders, muscle weakness and nerve damage in hands and face, people with dysphagia.

We deserve a good holiday too, even if we're not talked about often

[its-ticsticstics]

remind that no matter how 'severe' or 'mild' your tics are, its normal for them to sometimes be worse and other times barely noticeable!

its apart of the tics/tourettes phenomenon called "waxing and waning" and if anything, should make you feel more validated in your diagnosis <3

[writing-tics]

different kinds of tics

Tics can divided into few categories: simple/complex and motor/vocal.

Motor tics are movements. Examples: blinking, shoulder shrugging, making faces or gestures, etc.

Vocal tics are sounds. Examples: meowing, barking, saying words or sentences, whistling, etc.

sometimes it can be hard to differentiate between them. I have a tic in which i click my tongue. It is a movement, but there is also a sound to it. I'm not sure whether it's the movement or the sound that makes the pre-tic tension go away.

Complex tics involve a lot of different muscles. They can appear as something done intentionally, but they are never intentional. Examples: saying words or frazes, making gestures, jumping, grimacing, etc

Simple tics are quick, and, well, simple. Examples: winking of an eye, tensing of a specific muscle, sniffing, simple "woo", or a similar sound, etc

Different types of tics can feel very different. They may alleviate the pre-tic tension in different ways. For example i need to hear the whistle in order for the tension to disappear, but I don't need to hear my meowing for the tension to go away.

I may not even notice some of my simple motor tics. but sometimes there is a big cumulation of them and it's awful. Some of the more complex ones feel like i'm being controlled by some alien life force or sth. And some of my complex tics are chill, and idc. It really depends on the day, on what I'm doing and what my tics are at the moment.

bibliography

NHS

A handy table

MedicalNewsToday

the last two paragraphs are based purely on my own experiences. Other people with tics will probably experience things differently.

[feelingthemode]

disability pride month userboxes part 3/5

posted these on insta throughout the month :3

[autisticdreamdrop]

autism regression needs to be talked about more.

you can lose so many skills. lose the ability to mask. lose the ability to control stimming. lose the ability to use motor functions. lose the ability to take care our yourself.

it's so hard.. it's so scary.. we just got able to write again and it's so bad. you can come out of regression, you can gain skills back in some areas or all areas affected but it's so hard and you can always be forced back. it's not fair.

[xxpaintedtalonsxx]

Reminder that you don’t need to apologize to anyone about your tics and you don’t owe it to anyone to hold them in!

Have a lovely day <3

[hydeingpurples]

Someone came up to me yesterday and asked if I have Tourette's, and then proceeded to explain how they have no filter and that it'd be great to have Tourette's as an excuse for all of the random things they say.

This is a reminder that Tourette's is INVOLUNTARY and is NOT just speaking tics. It is PAINFUL self-injury tics, muscle and joint pain, repetitive strain injury, not being able to cook, not being able to drive, feeling excluded from spaces, being told off something you can't stop, being glared at, and more.

[mxmorbidmidnight]

Much of the time I find the way that we’re told to manage tics very much prioritises others rather than the person with tics.

Oftentimes it’s about how to make us more palatable to those who don’t have tics, whether that is being in good humour and allowing them to laugh at us regardless of whether we are comfortable with that, locking ourselves up at home so people don’t have to see something “icky”, putting ourselves in the constant discomfort of suppressing tics for no reason but the fact that other people are ignorant.

Justifying ableism as “well what do you expect going out and yelling swear words?”. When my tics first developed my parents threatened to never let me leave the house, go to school or see friends saying that I have to “think of others”. It is always seen as my responsibility to educate and jump through hoops to be treated with basic decency. People make it very clear that their few seconds of discomfort are priority over my entire life.

[tugstoffoles]

Stan Pines living in a house with three people with tics (tourettes and chronic tic disorder) as the only person without tics. Then McGucket starts coming around more as Ford and him rebuild their friendship and Stan thinks "finally someone else without tics"... then he finds out Fiddleford developed tics as a result from the memory gun

[growntourettesmemes]

[goodgriefnd]

How Common is Neurodivergence?

[image id: poster of "How Common is Neurodivergence?.” There are 12 circles and five small images: an image of a brain, speech bubbles, an infinity sign, a person reading, and a person surrounded by arrows and balls. Each of the 12 circles has a percentage representing how common a particular form of neurodivergence is written in Open Dyslexic font. Full transcript, more information, and references under the cut.]

More Information

Forms of neurodivergence represented here are focused on neurodevelopmental disorders.

These percentages are representative of percentage in general population and do not reflect percentages within neurotypes which are often higher due to co-occurrence being the norm, rather than the exception, within neurodevelopmental disorders; for example, 33-45% of people with ADHD will also have dyslexia (Butterworth & Kovas, 2013), whereas only 10% of the general population are dyslexic (British Dyslexia Association [BDA], 2023).

Certain neurodivergencies are often underrepresented and under-reported, so the percentages are likely to be higher; for example, one study suggests that rates for FASD in the UK may be as high as 17% (McQuire et al., 2019).

Some of the neurodivergencies represented here are umbrella terms and percentages given are representative of all forms of neurodiversity belonging to that term; for example, SpLds include dyslexia which is at a rate of 10% (BDA, 2023) and dyscalculia which is at 3-7% (Haberstroh & Schulte-Körne., 2019). Tic Disorders at 1% are another example here, as this is inclusive of Tourette Syndrome which is at 0.6%, and around 1 in 5 individuals exhibit tics at some point during childhood (Cavanna et al., 2017).

______________

Transcript in Full

1% Intellectual Disability

10% Language Disorder

4% Speech Sound Disorder

5% Stuttering

7.5% Social (Pragmatic) Communication Disorder

1.7% Autism

5% ADHD

10% Specific Learning Disorder (SpLD)

5% Developmental Co-Ordination Disorder (DCD)

3-4% Stereotypic Movement Disorder

1% Tic Disorders

3.6% Fetal Alcohol Spectrum Disorders (FASD)

______________

Sources

American Psychiatric Association. (2022). Diagnostic and Statistical Manual of Mental Disorders (5th Ed., Text Rev.).

Arvidsson, O., Gillberg, C., Lichtenstein, P., & Lundström, S. (2018). Secular changes in the symptom level of clinically diagnosed autism. Journal of Child Psychology and Psychiatry, 59(7), 744–751.

Attention-deficit/hyperactivity disorder (ADHD). PsychDB. (2022, November 29).

Autism spectrum disorder (ASD). PsychDB. (2022, May 19).

Butterworth, B., & Kovas, Y. (2013). Understanding neurocognitive developmental disorders can improve education for all. Science, 340(6130), 300–305.

Cavanna, A. E., Coffman, K.A., Cowley, H., Fahn, S., Franklin, M. E., Gilbert, D.L., Hershey, T.G., Jankovic, J., Jones, M., Leckman, J.F., Lehman, R., Mathews, C.A., Malaty, I., McNaught, K., Mink, J.W., Okun, M.S., Rowe, J.A., Scahill, L.D., Scharf, J.M., Schlaggar, B.L., Stewart, E., Walkup, J.T., Woods, D.W.. (2017). The spectrum of Tourette Syndrome and TIC disorders: A consensus by Scientific Advisors of the Tourette Association of America. Tourette Association of America.

British Dyslexia Association. (2023). Dyslexia. British Dyslexia Association.

Dyspraxia at a glance. Dyspraxia Foundation. (2023).

Haberstroh, S., & Schulte-Körne, G. (2019). The Diagnosis and Treatment of Dyscalculia. Deutsches Arzteblatt International, 116(7), 107–114.

Ketelaars, M. P., Cuperus, J. M., van Daal, J., Jansonius, K., & Verhoeven, L. (2009). Screening for pragmatic language impairment: The potential of the Children’s Communication Checklist. Research in Developmental Disabilities, 30(5), 952–960.

May, P. A., Baete, A., Russo, J., Elliott, A. J., Blankenship, J., Kalberg, W. O., Buckley, D., Brooks, M., Hasken, J., Abdul-Rahman, O., Adam, M. P., Robinson, L. K., Manning, M., & Hoyme, H. E. (2014). Prevalence and characteristics of fetal alcohol spectrum disorders. Pediatrics, 134(5), 855–866.

McQuire, C., Mukherjee, R., Hurt, L., Higgins, A., Greene, G., Farewell, D., Kemp, A., & Paranjothy, S. (2019). Screening prevalence of fetal alcohol spectrum disorders in a region of the United Kingdom: A population-based birth-cohort study. Preventive Medicine, 118, 344–351.

Norbury, C. F., Gooch, D., Wray, C., Baird, G., Charman, T., Simonoff, E., Vamvakas, G., & Pickles, A. (2016). The impact of nonverbal ability on prevalence and clinical presentation of language disorder: Evidence from a population study. Journal of Child Psychology and Psychiatry, 57(11), 1247–1257.

Polanczyk, G. V., Willcutt, E. G., Salum, G. A., Kieling, C., & Rohde, L. A. (2014). ADHD prevalence estimates across three decades: an updated systematic review and meta-regression analysis. International Journal of Epidemiology, 43(2), 434–442.

Polanczyk, G., de Lima, M. S., Horta, B. L., Biederman, J., & Rohde, L. A. (2007). The worldwide prevalence of ADHD: A systematic review and metaregression analysis. American Journal of Psychiatry, 164(6), 942–948.

Prevalence and Therapy Rates for Stuttering, Cluttering, and Developmental Disorders of Speech and Language: Evaluation of German Health Insurance Data. (2021). Frontiers in Human Neuroscience, 15(645292), 1–13.

Social (pragmatic) communication disorder. PsychDB. (2021, March 29).

Stereotypic movement disorder. United Brain Association. (2022, August 8).

Wren, Y., Miller, L. L., Peters, T. J., Emond, A., & Roulstone, S. (2016). Prevalence and predictors of persistent speech sound disorder at eight years old: Findings from a population cohort study. Journal of Speech, Language, and Hearing Research, 59(4), 647–673.

UCL. (2013, April 19). Learning disabilities affect up to 10 per cent of children. UCL News.

[angelwowings]

I’m making a post about Tourette’s for people that write for toby first things first. A common mistake that I have already pointed out but still see people making twitches are not tics twitches a caused from stress and poor diet etc while tics are not. Also as a person who had struggled with both they feel completely different I can feel tics coming up and twitches go almost unnoticed. And about the swearing part only about 10% of people with Tourette’s having swearing tics. So depending on how hard you write for Toby’s Tourette’s please keep that in mind. I am aware that his creator has confirmed he had ‘severe’ Tourette’s but that was clearly not shown in his story or any kind of other imagine we got from him so…..and please when you write about him and he has a tic attack don’t make y/n or whatever character hold him during it. yes it can calm one down but same goes for the seizure rules tics cannot be prevented by holding the body.

oh and some other facts: tics can trigger tics it’s pretty common me and my best friend both have tics and both get triggered of each other and also things like small noises can trigger tics. Most people can also feeling tics as a sort of tingling feeling creeping up the back of your neck (that’s the best description I have heard someone describe it) most tics also get triggered from sudden temperature changes

those last few sentences are from mine and my friend’s experiences :) I thought it’d put it in there too since it’s common but everyone is different with their tics

btw before anything no I do not have Tourette’s although I do have a tic disorder (also different things but won’t get into that)

Thanks for reading! Please spread this so people won’t make mistakes

(also this is not proof read and I’m dyslexic so if any typos don’t be surprised)

[its-ticsticstics]

not sorry but like when i tell you i have tourettes and your immediate reply is

"so that means you can just swear and say mean things to people whenever you want and get away with it?!"

i assume you're a shitty weird person. bc who the fuck thinks like that???

[theluckygroundhog]

i think Sonic the Hedgehog should have Tourettes for two reasons:

People with it may have quicker than average reaction times and he's the Fastest Thing Alive

I have it and he should suffer with me

[monowritestoomuch]

Daily Reminder That It Is Never Okay To Make Fun Of Someone’s Disability