#i only had physical symptoms
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isekyaaa · 1 year ago
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I have an ask I didnt work on yet and I still need to finish part two of that post, but wow working so much without breaking is starting to have its toll hahahahaha :')))))))))))
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safety-pin-punk · 4 months ago
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yall Im so fucking tired. This month has been exhausting. I promise Im alive, just barely functional atm.
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stars-and-branches · 1 month ago
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Why is the answer to "why am I doing that" always ptsd. Villain origin story
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msburgundy · 5 months ago
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i think i'm like insanely stressed and have been for a while but i don't know why i would be
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iliveinprocrasti-nationn · 8 months ago
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one thing abt being disabled/chronically ill that some people don’t get is that sometimes body maintenance that ensures you have the absolute minimum amount of function can also be something that takes away a lot of control and autonomy. you can argue till the cows come home that making those decisions to try and help yourself (or realistically to try to make sure things aren’t worse than they already are) is something that exhibits control and autonomy and stuff, but they can be so limiting in practice because they’re things that take up so much time but have to be done to do anything else
#i have to sleep a lot. i’m at the point where functioning requires 8 hours of sleep if not more#I should probably be getting 10+ but i’m a student and i work so 8 is the minimum. but then also getting ready for bed is a whole process s#the whole thing can take 10-12 hours depending how much im sleeping. just to make sure i can do anything#that is time in my day i cannot use for anything else. it’s not ‘oh but i can push through it’ because i can’t without spending the next da#lightheaded and nauseous and vaguely dizzy and with such intense brain fog I can’t think with my fatigue so bad i genuinely don’t know how#get myself to work a lot of days. my abled peers don’t have to deal with this at all. they have unlimited study time if they want to#and yeah it is a choice i’m making that’s true i could just not do. except i would lose my job and fail out of college because i would not#be able to get to classes or do my homework or think. but being told ‘but you are making choices about your life’ when i have lost so much#of what i used to be able to do because i am spiralling down and continuing to get worse is so.#literally last year i would wake up at 6:30 and then go to school till 3 and then go to my internship until 10 and get home at 11 and be in#bed anywhere from midnight to two in the morning and then wake up the next day and do it all again. i graduated with a 3.9 gpa and made it#into my top college while dealing with my cancer symptoms and then the two surgeries about it#but now i lose half my day to just making sure i can get out of bed. i can’t go anywhere because my body is physically too exhausted#any extra time goes into doing homework or occasionally time to myself#not decimating my health by doing minimum body care responsibilities isn’t freeing. occasionally i have a good day which is freeing but tha#usually goes into just. other things outside class or work or eating. I don’t go do something for myself or go do something fun on good day#because I still can’t. good days just mean i don’t want to lie down on the pavement when i’m going somewhere#I just. I don’t magically have control over my life because i try to get enough sleep. i lose half my day to doing that and ultimately it’s#just a bodily function that would have to happen anyway#this is a vent post im just having a really hard time right now because it feels like im in exponential decline. it was nowhere near this#bad last semester. my grades are tanking and i have no free time because anything outside of sleep is either work or school#vent tw#yall can rb this just ignore my tags completely#disability#chronically ill#i keep trying to explain to people how pots works because that’s all logical but there’s no way to explain what it’s doing to my body or ho#i feel all the time. the last time i felt this bad was when i had a bad flu or immediately after surgeries because i don’t react well to#anesthesia and always come out of them feeling like shit. and now i just feel like this all the time and it’s only getting worse#I can’t even stay up late anymore because my body feels like it isn’t counting the sleep even if I get 8 hours#I can deal if I have a free day the day after but that just leaves Friday and Saturday nights and I usually still have to do homework
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u5an5 · 3 months ago
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Being prone to overthinking and not being able to stop fixating on a topic, connected to being able to nocebo yourself, is awfull
Like, what do you mean that because something happened/I had one symptom that could be connected with some health issue and I fixated on the cause of it hard enough I actually started to show other symptoms out of nowhere?
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tenspontaneite · 1 year ago
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Bruh people aren't fucking lying about COVID fatigue goddamn
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tamagotchikgs · 2 months ago
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Are you sure you haven't contracted sepsis dude?? Your posts really sound like it's worth getting checked out /gen
im gonna give it a couple days & see,,, going to the doctor has to be my absolute last choice o(-< i have no way of getting there except through my mom and she isnt aware of my sh and it. wouldnt go well if she were
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phagodyke · 6 months ago
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I slept rly deeply last night even tho it took me a while to get to sleep but I think that was bc I had acid reflux and I'd been playing videogames too late not anything else.... still only got 6 hrs but doing pretty okay all things considered 😚
#and not feeling sick this morning so im sticking w the higher dose for one more day. my heart rate does feel a little uncomfortably fast#but its tolerable. just gonna make notes of how it goes through the day and ill submit my review form to my dr this evening#and hopefully she'll give me the green light to drop back down instead of continuing to titrate up#this is making me think of those heartrate fetishists... do u think i could make money selling tachycardic heart recordings online#i do wanna try to exercise this morning while i have energy. might take the bike out it looks like a gorgeously sunny day#maybe ill try to map my cycle route to work so i can consider cycling there instead of taking the bus in a couple weeks..#i cant atm thp cuz they have scaffolding up and its blocked off the bike racks sadly 😔#i think making myself eat + drink as much as i can has helped control the nausea too. just need a lot of fuel to process meds properly ig#and a lot of sleep.. its a bit stressful to think abt how rigid im going to have to be abt my daily routines if i want to stay medicated#but to be honest i have a pretty rock solid sleep/meal routine already bc its the only way i can function with the hours i work#so like. i dont rly need to worry too much. i think i reacted badly the first couple days bc my base anxiety was high#and then bc that feeling was heightened by meds -> made me not eat/sleep properly -> knock on sickness the next day#but yeah still the side effects arent very nice and i dont wanna take the risk of it exacerbating every difficult emotion i deal with#but fingers crossed bc 30 worked rly nice for me and i had barely any side effects so hopefully i can settle w that long term 🤞#we will see....#ANYWAY. sorry for making the same post over and over the last couple days. talking abt it on here has helped me feel a lot calmer#i dont wanna bother ppl irl w every thought and physical symptom i experience hourly. but this is my blog i can do what i want#hope everyone else has a nice sunday <3#.diaries
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innko · 4 months ago
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japanese medical negligence will drive you to american without health insurance behaviors
#hi hi hello tumblr#my migraines came back with a vengence#i didn't realize it for the 10 years i've had them#but i am pretty sure they were hemiplegic this whole time#got weakness and numbness down one side of my body from my first migraine ar 12 or 13#and just thought that was normal migraine with aura#others on my dad's side of the family (the white people) had sever migraines too so i grew up thinking it was normal#come to think of it in 10 years even an introvert like me has met 20-30 people with migraine and none of them had symptoms like mine#well this time i had leg numbness and weakness to the point of foot drop start on sunday#puking intensely wednsday - thursday#the headache finally came friday#blurred vision throughout...but i had a prolonged aura w out headache last month that didn't quite resolve#headache and nausea and vision has calmed but won't totally go away now#this whole time they worked me up for stroke and autoimmune diseases#and when that comes back normal and i say i'm pretty sure that was all a turbo migraine#the doctor starts googling migraine in front of me and is like well...you have symptoms of it but i don't know#this is a NEURO mind you not a general internist#i begged for him to nuke the way past 3 days status migraine with steroids like in the US#told they don't do that in japan#i asked to try reyvow#no to that because “my other symtoms are worse and that's only for the headache part”#i asked for a headache specialist#told none was available#eventually was kicked to the curb with 10 nausea pills and my records to take somewhere else#my foot perked up a bit after the headache started but is still droopy and weak#when i asked about PT i got “well you can still walk”#and when i said it catches on the ground and i trip sometimes and i can't walk quickly without dragging my leg i was told “well walk slowly#not even recommended home exercises#so now i'm on physical therapy YouTube trying to rehab my own fucking foot drop#i will try to find a neuro who knows about hemiplegic migraine and will treat status migraines agressively
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muckmagister · 5 months ago
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do you ever have moments where tou start feeling real paranoid and anxious
i don't get afraid of anything ever cause i am an idiot. except for all the things that scare me
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the-acid-pear · 6 months ago
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Mental illness is insane I'm just having dinner w my father eating this a little too spicy pasta enjoying the Yeowch on my throat and the silence and suddenly I'm like yeah I'd kill myself.
#luly talks#i mean it came from out of nowhere grieving but it's so bizarre#like i just got hit by this very heavy rock in my skull this overwhelming and genuine urge for a second that yeah that'd be ok#that's the correct path to take and there's no physical changes i just kept on chewing on my all too spicy bc he used the wrong condiments#pasta. like sure i was a little zoned out maybe if you paid close attention you'd have seen my eye getting lazy or something but like. thats#it. and i always in zoning out#like this wasn't even an intrusive thought those come out of nowhere and just are echoing chambers of fear and shame#this was a calm resolution like yeah. that's the way to go alright.#y'know kind of unrelated but i always wish i had someone to talk about some mental health things i cant w my therapist#more on the speculative diagnosis thing. if you dont know what i mean shame on you for not keeping up with the Luly lore /silly#it's really hard being neurodivergent and im not talking about autism rn that i can manage but gestures vaguely its hard when it's#a group project. it's hard when everything is so fuzzy#because sometimes i tell myself i only think of this bc im all day alone and thinking but like#what. am i supposed to be getting non stop stimuli 24/7 least i realize i hsve something in my skull going on?#i blame my mother for that one she always made me ashamed of being sick or whatever acting like it was my fault#like me noticing symptoms was equivalent to me making them real#as if that wasn't just absurd like. the symptoms are here you twat. I'm not placebo effecting myself w shit#even the ppl who do like. the symptoms are real.#aaahhh siiiiigh yet another common L#brain stuff
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datastate · 1 year ago
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always hurts when people casually drop how little they care abt disabled people idk why i'm still letting myself be surprised 😭
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dandyshucks · 7 months ago
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need Guz to hug me tightly for like an hour solid oh my god dhdjdkl I went driving for the first time in over a year and I chewed my lip raw 😭😭
I'm starting to look like a caricature of Anxiety with all these physical symptoms and signs LMAO
#this is so ridiculous fhfjdkdl#i do not like driving fjdkdl i know i should not be on the roads#but unfortunately i have to bc i live rural and also my parents insist i ''just need more practice''#practice is not going to fix the dissociation 😭😭 practice will not fix the Other Drivers being shitty and scary and reckless fjfkdl#it might make it slightly easier bc i wont have to think as hard about shoulder and mirror checks and roadsigns and speed limits#and where i am located on the road and intersection rules and whatnot#but like... it does not fix that i live in a town (and world lol) where ppl are fucking bonkers on the road#i had someone riding my ass for like a full five minutes. we had only two feet btwn us. MAYBE. IF THAT MUCH.#he was BIG mad that i was going the speed limit#and THERES A POLICE STATION LIKE RIGHT NEAR THAT AREA MY GUY IM NOT GONNA GO OVER THE SPEED LIMIT RIGHT THERE LMAO ????#also im a rule follower usually so i do tend to go Exactly the speed limit fjfkdl#and maaannn that makes people SO fucking angry dhfjdl its impossible to drive Anywhere without having someone right on ur bumper#its so ridiculous like... that's not helping anyone ??? ur not getting to ur destination faster by riding up on somebodys ass ???? hewwo ???#ANYWAYS. i drove around the neighborhood and then went up the highway and thru some intersections and then into the main core of town#and then i got my dad to take over from there bc it was lunch hour and the core of town is a lawless land at the best of times#MY NERVES ARE FRIED. i need Guz to act as a weighted blanket or one of those pressure therapy vests for me LOL#im like... shaking fhdjsl that was far more than i thought we were going to do for driving today good lord#IM OKAY THOUGH I SURVIVED I DIDNT EVEN HIT A CURB OR ANYTHING#i think I've only hit a curb once so far in all my times driving and that was on my second time driving on a road i think#so pretty good track record... im a very careful driver fjdkdl i work so hard to be safe and drive smoothly#during my driving test the only thing the test guy had to critique was that i waited at an intersection when i could've gone#but the reason i waited was bc i wasnt sure i could make it across the traffic lane before the oncoming vehicle got to us#so it was like. a safe decision overall but a little too hesitant which can actually be unsafe fjdkdl#AUGH ANYWAYS SORRY FOR RAMBLING SM#driving stresses me out so bad and my lip is all raw now and i have so many physical stress symptoms the past few days fhfjdl#after tonight i should be able to calm down a bit hopefully fhfkdl theres a thing we're going to tonight thats been stressing me out so bad#but after tonight it'll be over and hopefully I can get myself settled down again fjfjdkl#dandy.cmd#vent //
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autisticlee · 7 months ago
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having some sort of chronic pain and tiredness issue and joint problems and whatnot but not knowing exactly what the problem is is really good at leading you feeling like you're faking it or making a big deal out of nothing or making it up. especially if there's a good day where it's not as bad and you can walk straight without limping for the first time in a year. but then you can wake up the next day and can barely walk and wonder why you can't just walk normal. it's hard to not guilt trip yourself into dealing with pain by trying to ignore it and force yourself to walk "normal" all the time
#chronic pain#chronic exhaustion#idk what else to tag#another day of why was lee walking normal and barely pain at work yesterday but then today so much pain and exhausted#wish i knew what was exactly the problem. was diagnosed with “generalized hypermobility” but doesnt do much#not a real diagnosis. basically just a thing to tell me “theres nothing wrong. exercise more” but how???? i keep trying but hurt myself#my job is physical labor and therefore exercise. it hurts. is exhausting. no energy to do more. walking is exhausting#have to focus so much energy on not popping hips out of place and twisting knees and ankles and falling. never hurts less#still think about how failed the heds test by 1 point but had several people with heds or who have close friends/family with it who told me#they think i have it and should go het diagnosed or just ask me if i have it because they recognize the symptoms#and every time i tell them the doctor i saw about my joint issues and stuff denied it they get super confused and tell me to try#another doctor. unfortunately i have to go through my designated health system and they dont have multiple doctors of each specialty#and i in general have no clue how to navigate health stuff or how to advocate for myself and have no help or support system at all so 🤷#anyway. it makes me wonder if i *do* have that or if my floppy bendy joints are just similarly bad and exercise will cure me#and im just bad at it because i have no clue what is right and wrong movement unless someone watches me and corrects me the whole time#and no i wont learn or get better. im so disconnected from this body that i will never learn what feels right and wrong.#still cant even tell when im hungry until i almost pass out!!!!!!! of thirsty!! or even have to pee until its emergency level piss!!!!!!#so no way to tell when hypermobiling joints when exercising or when form is slipping and not correct anymore.#been trying things to get better at that but still hasnt improved at all#what was i talking about......right. dont think ill ever get heds diagnosis since cant pass the test for that. so cant get much support/help#am on my own with youtube tutorials and hoping i dont keep hurting myself wishing exercise will cure me and “good days” become permanent#also why are video tutorials SO HARD TO FOLLOW AND LEARN FROM. im sk bad at it yet everyone tells me its the best and only way to learn but#its SO HARD FOR ME 😭😭😭😭😭 MAKES ME SO FRUSTRATED AND UPSET
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advisorsage · 1 year ago
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My nerve pain is really bad, and I keep collapsing. I'm being selfish and wishing for a comfort fic but at the same time being a coward and not asking anyone for one. And yes, I know this sounds like complaining. It kinda is. But it's aimed at myself. I just want my body to stop hurting, and since I can't have that, I wish I could get the courage to ask someone for a comfort fic. Ya know?
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