#i can survive on a autism self-diagnosis sure
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i really hate trying to google things related to my intrusive thoughts but i want to try and understand why i think the things i think, but a lot of the time the results i get are unrelated or i get helplines suggested or i end up being triggered by something
it fucking sucks man
i dont want these thoughts, i dont want to deal with this - im very good at stopping myself from following through and at talking myself down when they get bad, i can recognise when they're getting too much for me and have ways to calm down without help
i just want answers as to why its happening so i can better prepare myself for when it happens and adjust my methods for safely resolving my intrusive thoughts in a more productive manner
i just want to know if my occasional sudden urge to drink is just my intrusive thoughts or if its something more, you know???
i have a family history of alcoholism and almost fell deep into a steady pattern of alcohol abuse myself when i was in college before i realised what i was doing and immediately stopped myself before it became a proper problem
are these urges to drink a symptom of a more serious underlying problem or is it just my brain being a piece of shit to me for no fucking reason
i know intrusive thoughts and alcoholism can go hand in hand, my main concern is am I handling these thoughgs correctly or am i setting myself up for hell down the road?
i haven't drank in months, last i drank was cider at Christmas and i had maybe 2 small cans and that was after having nothing for a whole year
and when i did drink in college it wasn't like i was binge drinking, i had a small sip of whisky maybe twice a day whenever i had to go into college and only on those days
that was more than enough as it was, honestly - it can start with just one sip to manage a headache, then its 2 then its 5 then you lose count
the moment i realised i was starting to try and justify drinking when it really couldn't be justified, and that i was falling into a pattern of harmful behaviour that would only worsen if i continued to ignore it, i immediately got rid of the last of my whisky and have never touched a drop since
i know not everyone can do that, I was incredibly lucky that i realised what i was doing before i couldn't stop myself
but now im worried that i had already done irreparable damage by that point
had i? or is it just my intrusive thoughts making me feel like i need alcohol so everything will be okay?? this bothers me a lot
i wont drink, i can't really rn anyway with the current state of my diabetes, but the urges are getting more and more frequent it feels like
and i am so fucking tired
anything that helps me shut up the urges would help a lot, even if it's just knowledge of what is causing them to start with
if i know what the problem is i can work on a solution
problem is, i dont know what the fucking problem is
the stress this causes does not help suppress the intrusive thoughts, as you can probably imagine, and only makes drinking sound all the more appealing.... the fucking joys
for the record, i am safe and sound tonight im just angry
angry and tired and angry at being tired and tired of being angry and maybe im also feeling a little bit robbed
but I'll be okay, just needed to voice this Bullshit somewhere
the ravens know i cant say any of this to my family lmao
fr tho, any info or advice is appreciated guys 💕
#vent#cw intrusive thoughts#cw alcoholism#love being undiagnosed despite two mental health professionals agreeing i most likely have ocd#i can survive on a autism self-diagnosis sure#and im scared to learn i truly have ocd#but i need to know#vaxxy vents#vaxxy will be okay
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Change and Loss
Word count: 1362
Expected reading time: 10-11 minutes
"If your otherkinity still serves you, it will never really leave you," is what I used to say - more as a reassurance than a statement of fact. I mean, how could I know for a fact that it was true? I didn't have any experience with losing a kintype. I still don't think I do; not really. And I always saw the idea repeated in the community - one time otherkind, always otherkind.
But I don't believe that's true anymore. I'm still a bison for sure. I've never doubted that. I'm still Ɐwhrayɐ the gnoll and I'm still Ben the shapeshifter… but I'm beginning to accept that those sides of me have changed.
"One time otherkin, always otherkin. If your otherkinity still serves you, it will never really leave you"… but what if that's not true? What if you still benefit from your kintypes, and they disappear regardless? What do you do if you lose a part of yourself, or if a part of yourself becomes unrecognizable to you? How do you keep living when you've lost yourself?
Sometime in 2023 the distress of always having to hide my true self became too much to bear alone. But I'm not a brave person. I think the better solution would've been to just bite the bullet and start expressing myself, but hindsight is 20/20. I've survived 25 years by hiding everything that makes me 'weird', and the idea of leaving my one dependable survival strategy behind was (is) terrifying. I went to a free self-help seminar ("Take control of your life!") but all it taught me is that I need a dependable support network before I can take control of my life. I went to my doctor to try and get a referral for a therapist (it's cheaper than just finding your own therapist). Instead he sent me to a psychiatrist for my 'delusions'. The psychiatrist told me my experiences, worldview, and self-perception were unusual but not harmful - they could only help if my goal was to get rid of my schizotypal traits (traits that weren't even significant enough to warrant a diagnosis). If all I wanted was to learn how to conquer my fears and express my true self, they couldn't help. It took months of visits to get the diagnosis: Traumatized by peer abuse, too poor to afford my own therapy, and too anxious and ADHD to even find a therapist in the first place.
I can't even say I was left at square one. I had started out hopeful. Nearing the end of 2023, I just felt helpless.
At the same time, my studies were drawing to a close. I completed my bachelor's degree in animal science and all it took was a diagnosis of ADHD so I could legally buy amphetamines, a compound-diagnosis of autism so I wouldn't get kicked out when I inevitably misunderstood exam questions and failed final after final, and 5½ years - almost twice the expected time for a bachelor's degree in my country.
It should've been freeing but instead it left me directionless. Helpless and directionless - that's how I entered 2024!
In the past, in the strictly structured day-to-day of school, my kintypes have been a source of comfort. Especially my Ben fictotype, which probably fell into the category of coping mechanism. I awakened in a time of intense stress and retreated to that world whenever my present life got too much. When crowds got me overstimulated or I missed an important deadline or fought with my neighbors or drifted apart from old friends, I thought about all the times Ben!me had gone through similar or worse. I cut off a friend in my present life after finding out he'd abused his ex - but in my other life I'd cut off a friend who tried to murder me, and things still turned out fine. I lived through it. I could live through it again. Every situation had a parallel in my other life.
I still don't know why that method failed me, but eventually it did. It's not that it didn't work, it was more that I suddenly had to put an effort into making it work. As if I'd always been able to enter Narnia and now suddenly I had to personally petition Aslan to let me back in. It started in the fall of 2023 but it wasn't until spring 2024 that I fully realized. Coping had never been an effort before, and the worst part is, I don't even know why it suddenly was.
My fictotype was drifting away, even when it still served me! This wasn't supposed to happen! Had I been lied to?!
I think our community has a lot of survivorship bias. Whichever mailing lists and newsgroups get archived, and whatever snailmail gets published, that's what our history is based on. The people who made archivable geocities sites get to write our story - not the people on closed forums or in private chat groups. People who leave the community don't tend to leave behind pristine essays on their fully archived websites explaining why they left. It does happen, don't get me wrong, but it's rare. And when they do leave behind messages, it's usually some variant of "I still love the community that fostered my awakening, I'm just an adult with responsibilities now and I don't have time for this."
But what about the people who don't love the community? Who 'unawakened'? Who aren't passionate enough to leave behind a final message? Do we ever hear from the otherkind who 'fizzled out' and became human - or at least lost a kintype?
You can understand my panic, right? I considered turning my fictotype into a copinglink, but my ADHD is so debilitating I barely remember to brush my teeth - no way I was gonna remember to do daily reinforcement exercises. Especially frazzled 2024 me (still frazzled as of June but I'm hanging in there!).
I was forced to accept whatever my come.
I'm still Ben, on some level, but I won't say "I'm thankfully still Ben," 'cause is it really that bad to not be Ben? Even if that facet had served me well and could still serve me? $1,000,000 could serve me well, but uselessly pining after it doesn't serve me.
I didn't prepare myself for loss because I really wasn't sure I was gonna lose a part of me - and, in any case, grieving preemptively is a waste of energy if you ask me. Instead a turned to the Bison - not my own bison theriotype, but the archetype of the Bison. When one woowoo solution fails, why not try another?
The Bison has always been a good teacher to me - better than any self-help seminar or psychiatrist. The Bison takes everything in stride. The Bison survives until it can thrive. The Bison ruminates on the present, it doesn't ponder the future. The Bison doesn't grieve or fret unnecessarily. It exists in the now. I exist in the now.
Of course, the chance that anyone reading this works with the Bison spirit is slim, but I think its teachings can help everyone - regardless of spirituality.
When turning to other worlds doesn't aid you, accept it, and turn to the present world. Let your worries pass through you, you can't see clearly when you're pent up with worry. You can't prevent the seasons from turning, all you can do is turn with them. Accept your lack of control, instead of trying to grasp at the uncontrollable. Sometimes change is unexpected, and you may not like it, and it might not even open up new doors for you. Not all change is good. But you cannot prevent every unwanted change, and you have to keep living regardless.
My fictionkinity doesn't have the intensity of my first few years post-awakening, but it also doesn't have the casual reassuredness of decade-old kintypes. It comes and goes, and when it comes it's like a whisper. And one day it might become too quiet for me to notice. One day it might not return.
But I think I can live with that.
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Hey we've been thinking about that "OSDD was a temporary diagnosis" post for a while and. it makes complete sense what you guys said but like. we can't get ANYONE to diagnose us as anything CDD, let alone anything that isn't going to give us the treatment equivalent of slapping a bandaid on a stab wound. Is there like, anywhere we could look further into P-DID/DID research on the subject? We're not comfortable moving off of the self diagnosis of OSDD-1b yet so we wanna be triple sure to get as much information as possible.
Thankies 💕💕💕
- 🐑 & 🌸 of the Constellation Collective
There's places all over to find that info, but I want to encourage you not to overthink it. You can dig deeper, you absolutely should, but the label... it doesn't matter. It's really, truly okay to get this one wrong and switch around between the labels or use them interchangeably. I promise. You don't need to be right, because you're right regardless (unless it's a misdiagnosis, but I'm going to talk about that at the end of this, because it's important).
I am diagnosed OSDD, but I call myself DID. It's easy, I understand that there's not that big of a difference, no one is going to yell at us (me or you) if it turns out that we have the other one. We're not misrepresenting ourselves. If it turns out I would only ever be diagnosed with OSDD, that doesn't mean I was wrong using the DID label, or that I was even mislabelling myself.
Whether you're diagnosed with DID or OSDD largely depends on where you live. I made a post about this a while back but I can't find it. The US is more likely to diagnose OSDD with minor amnesia than the UK. They're more likely to call minor amnesia DID (as they should). It's literally a dice throw, and not that important.
To quote my BFF, Colin Ross,
The dividing line between DID and most cases of dissociative disorder not otherwise specified is arbitrary [or OSDD]. Most cases of DDNOS are partial forms of DID which lack either clear switching of executive control, full amnesia barriers between identity states, or clear differentiation and structure of identity states. They are partial forms of DID with the same patterns of childhood trauma and co-morbidity.
Also this quote.
So on the one hand we have a vast swathe of people who are, or would be, diagnosed with OSDD as opposed to dissociative identity disorder but who show almost all of the symptoms of DID. Many people therefore see DID and OSDD as appearing on a spectrum, and prefer to conflate the two conditions so that DID/OSDD represents a range of dissociative experiences with more or less amnesia and greater or less elaboration and distinctive identity states or parts of the personality.
It is also what happens in practice: very few people would realistically distinguish between DID and OSDD.
And,
Both OSDD and DID are the result of the spontaneous action of the brain in response to trauma. Both contain different self-states, holding shards of memory and ‘unformulated experience’ (Stern, 1997). Both can be helped by similar approaches to therapy which encourage neuronal repair and result in brain growth such as increased hippocampal volume. Above all, all forms of dissociation need to be validated for their unique contribution to survival.
P-DID is a bit of a new one. Here's the ICD link to it, if you want to read more, but it's going to be the same as above. It's really not that important. Its main difference is that the system doesn't really switch, it's mostly intrusion (like feelings bleeding between alters and host).
These are really only useful for describing how your system generally functions.
Finally, misdiagnosis.
It's okay to be wrong completely. Maybe it's just BPD or OCD, autism, any of the number of disorders that come with identity confusion.
When someone self DX something like BPD and they finally get to therapy and find out it's literally ANYTHING else, we celebrate with them. Good job, you found answers! You're on the right path! You can get the right kind of help now. You did what you had to do in order to get by, and you did your best to try to understand yourself with the tools you had. The use of the first label wasn't malicious, you didn't hurt anyone by using it, and you probably got yourself pretty knowledgeable on the topic.
You are now a resource for those who are also trying to figure themselves out.
Who knows better what the difference between BPD and OSDD is than someone who tried out both and found the answer?
Being wrong doesn't mean you're bad, I don't know why we don't celebrate a misdiagnosis of DID like we do some others. We're all just trying to understand ourselves, and sometimes we're wrong. The point is that eventually we figure it out, and the journey there... recognizing a misdiagnosis is a GOOD part of your story, and it's an important story to share. You were still struggling, regardless of what label you used and what you're being diagnosed with.
Use the label that feels right to you. If you want to keep using OSDD, that's fine. You're describing how your system works right now, and that's perfect. Using DID or OSDD, you'll end up in the same place regardless-- hopefully this means with a good therapist who's going to take your symptoms seriously, but you're going to end up in that same chair no matter what label you're using.
I really hope this helped.
Also, I didn't really touch on it, but I'm sorry you're struggling to get a diagnosis. That must be incredibly frustrating. Don't give up. Unfortunately, the average is about 5 years for most. Keep advocating for yourself.
#not syscourse#did#osdd#osddid#actually dissociative#actually traumagenic#actually did#actually osdd#pro system#system safe#CDDs first#pro endo#plurality#actually plural
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Hiii
(This's mostly venting sorry, you don't have to answer this)
I have been reading a lot about autism/adhd and I noticed that I have a lot of characteristics (? that are similar with autism.... if I'm correct, a lot of things will have sense (this is a relief but also makes me afraid)
Some days I'm so sure that I'm autistic, like yeah, but others I tell myself "this doesn't make sense" (maybe I'm gaslighting myself?)
(Your blog have helped me a lot, thank you 🩷)
Hi there,
You could be dealing with something called Imposter syndrome. This makes you think that your characteristics aren’t legitimate. I found an article explaining it in more detail (this excerpt is going to be a bit long, so I apologize in advance:
Many of us who are autistic have had that sinking feeling that we may have been faking autism in some way, misappropriating a diagnosis that we do not deserve or fearing we have been misdiagnosed. Many of us feel we do not deserve the successes we have had. Could this be a case of imposter syndrome?
Impostor syndrome is the belief that one’s success is illegitimate and not deserved. Imposter syndrome was first identified by Dr. Pauline Rose Clance who observed that impostor syndrome is universal across all genders, cultures, and people, and is shared amongst the neurotypical and neurodivergent as well.
Interestingly, impostor syndrome appears to be more prevalent with disadvantaged persons (Brevata et al., 2020). Imposter syndrome tends to affect academically minded people most. Because autism is considered a disability, this puts autistic individuals at higher risk of disadvantage and therefore, they may be at greater risk of experiencing imposter syndrome. Conversely, it does not appear to be tied to self-esteem, depression, or anxiety.
Imposter syndrome can also be applied to autism itself. I believe many of us who continue to mask (conform to expectations) do so because it has served us throughout our lives in different situations and has been a tool we have used to get things done and survive.
For many, masking works well in certain situations, and even though it can be exhausting and result in long recovery times, it can still become our way of life. For some, it is the only way others know us. This is one reason it is so difficult for people to grasp the idea of someone being autistic whom they have known their entire lives. “But you never acted autistic when you were younger!”
When you begin to drop the mask and behave more like yourself, others may find it difficult because your masked behaviors may have played a vital role in their life. Your growth and changes may mean they are left with voids in their lives that they do not know how to deal with.
I hope you found this helpful. I left the full article so you can read more if you’d like. Thank you for the inbox. I hope you have a wonderful day/night. ♥️
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I have read your article about the pros and cons of Seeking an Autism Diagnosis. I think it makes some very good points. I would like to add my own point of view. At the beginning, it will sound like a far stretch to autism but hear me out :)
I am a transgender woman and my egg cracked right in the middle of the pandemic, a few months after my first, but quite traumatic, ulcerative colitis flare. After many years of overworking myself and drinking way too much on the week-ends, I just reached a point where my body told me “this has to stop”, I felt completely powerless and desperate. I had to implement self-care in my life, it was a matter of survival. The tricky part is that I have been hating myself and pretending to know who I was for so long. My whole life was about alienation. Worse, now I could not use the crutches I was used to. To move on with the transition I had to dig deep down within myself and it was scary and confusing and complicated. I did not feel I was trans enough to transition and I did not feel like talking with “regular” therapists was helping, I felt misunderstood. At the same time, my gf and I spoke a lot, we knew I had some autistic traits but were never sure. I thought I was not autistic enough to search for a diagnosis. I got even more confused the day I learnt a lot of people on the autism spectrum are also trans or non-binary.
I was paralyzed by wanting to transition but hating change but at the same time really wanting to have the benefits from HRT and surgeries. I was just going deeper into depression and not taking care of myself. I then thought looking for a formal autism diagnosis would maybe help me with the transition. If I was autistic, it would mean it was valid enough to transition. At this point, you will probably tell me “and you got yet another crutch”. But I can reply: maybe not, if you hear the rest of the story ?
A week after having the diagnosis, I felt relieved and decided to call my parents to talk about it. I figured talking about my autism would be a good rehearsal for my coming out. The discussion went very bad. My mother especially was very defensive. I ended up crying. I cut all communication with them, I needed time to think. I ended up realizing I had seen how my parents really are as persons. And it was the most freeing moment I had in my life. I started to understand all the BS and the power they had over me, even by appearing as nice and caring. This experience enabled me to move on with my transition and un-shackle myself. It was a rough time but I finally can start to heal. I started HRT 4 months ago, bought feminine clothes last week and I am going at my own pace. I now know I can do it, it just started to click after that discussion. I know I will never use my diagnosis for anything else and at the time I decided I needed it was for completely different reasons, but now I really know why it was useful.
Thank you for reading me, feel free to give me your perspective on that. I just wanted to say people search for a diagnosis for many different reasons.
Thanks for sharing your experience with me. I guess my question would be, if you were in a country where it was necessary to get a gender identity disorder diagnosis in order to transition, would going out and getting that diagnosis have also given you the same kind of relief?
it kinda sounds to me like you took kind of a circuitous route to finding some credentialed authority who would sign off on your self identity in one fashion, so that you could feel okay about having the right to define yourself at all in any fashion. and i think you can be freer than that and deserve to be.
but like im glad it worked out! im glad you got the external permission that made you feel okay giving yourself the permission to do what you had already wanted. i hope you (and all of us) can get to the point where just wanting to do something is enough reason to do it.
i had to take a very complicated and indirect route to giving myself permission to be trans as well, of a different sort. so i do remember what those doubts were like and how impossible they are to intellectually argue away. shoutout to A Safe Girl to Love by Casey Plett and shit ton of high intensity erotic hypnosis for getting me past the point of intellect and into the realm of intuitively feeling what i had known all along
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Hi Rachel,
In some of my writing I’m beginning to notice more and more that certain characters (not all) remind me of myself lol. And I hate it, I go back and rewrite them. But I’m interested if you relate to any of your characters as well so—Out of the characters you’ve written (Lonan, Reeve, Harrison, etc..) who do you think is the most like you? And what’s your take on writers seeing themselves in some of their characters?
feel about seeing reflections
Hahaha I used to HATE writing characters that were like me, and it took a while to realize that actually, they ALL are me in some iteration. To answer your question about writers seeing themselves in their characters—if writing characters that are “self-inserts” makes you joyful, DO IT!!! If writing characters who aren’t self-inserts but have attributes to you makes you joyful, DO IT! Or if you’re not into it—that’s fine too! Life is too short! Have fun with what works for you!
My experience below, this gets kind of intense as a warning! CW: suicidal ideation, disocciation
Aligning myself with my characters has been an intensely life-saving experience. I’m not sure I’d be here if it were not for Lonan… 16-year-old Rachel WAS him, and also needed him because literally nobody else “understood” where I was at except for him (undiagnosed autism for BOTH OF US??).
There was a time of my life where I couldn’t emotionally regulate at all, and in moments of stress, would often dissociate and quite literally converse with this man (looking back now, this was just a coping mechanism—confirmed by my doctor btw!—but for a couple years he was a genuine part of my psyche, like moved out of just character territory). I think I talked about this years ago, but I have a really distinct memory of disconnecting so much I quite literally thought he was THERE next to me, which I needed—he really became an externalization of the things I couldn’t deal with (or didn’t understand how to deal with). I needed to see myself reflected in the eye of someone else and for a really long time that was Lonan for me. Actually screaming crying that’s so cute.
And Lonan is similar to me in a lot of ways! This is a side tangent but when I was first diagnosed as autistic it made me wonder if I’d inadvertently written any autistic characters & it struck me way back then that the person most similar to me (Lonan lol) is probably also autistic. I was like—sensory issues?? No emotional regulation?? Speaks a bit oddly?? We are THE SAME. Haven’t really confirmed this in canon lol but I’ve been thinking about it since 2021.
Funnily, now that I have that diagnosis, my life is a lot more stable so like… I’m not currently the most like Lonan lol. But me at 16-19??? Absolutely him.
Unfortunately, I am currently HARRISON, which isn’t ideal but just like he’s a 21-year-old experiencing horrors I’m a 21-year-old experiencing horrors (which is why BB is sometimes painful to write cuz I’m like oooooh I’m feeling this… too much). To be fair, I’ve always said I’m the introverted version of Harrison (because I am lol our personality types are the same, not that I believe in those but since I was like 13 I’ve said this). But just like Lonan, Harrison has helped me now process some tough things this year that I’m not sure how else I would’ve survived. It’s important to me that I have fictional vessels to explore my own life with because it can help me identify problems & then learn to empathize with myself by empathizing with a character first.
Of course they’re also separate from me—they absolutely didn’t start as ME but as time goes on I start seeing myself in them particularly (Reeve sometimes too—our kindred spirits with processing toxic relationships <3). Maybe it’s because I am autistic, but I find it useful to understand my experiences via someone else. I love seeing the ways we can inform each other.
My TL;DR is I’m Harrison if he was Lonan so I guess I’m BB Harrison. Love this for me so much. But also add autism. Which is probably already there because: Lonan. LMAO and a dash of Reeve’s compartmentalization skills. And we have me!
#also to add in the tags because I’m feeling vulnerable lol#Lonan also helped me process my own queerness a lot#like he still does lol but#I was extremely alone in a lot of my experiences#and also extremely afraid (I still am)#& he is also feeling that way too in MW#I needed that because I had no one else to turn to#especially in my last year of high school (when I wrote MW) I was extremely#angry at god and extremely sad and afraid and confused#so we went through that together… sometimes now I forget how much he actually means to me#as a person and I know I’m on the fictional people website and don’t have to disclaim this but I know he’s not real#but I’m proud of how far we’ve both come & are going lol#so happy he’s getting a chance to understand he is loveable because#both of us in 2018 weren’t sure about that#think I’m reentering my Lonan hyperfixation era LOL after a 3 year hiatus <3
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Autism ask meme: 5, 34, 38
5. what do you wish more people knew about autism? that it’s not just a little white boy sitting in the corner with headphones and can count all the toothpicks on the floor without looking. sure those people exist but autism is A SPECTRUM for a reason! not everyone is “a little autistic” - you are or you aren’t! but autistic people don’t all look the same because our traits present differently, those of us on the autistic spectrum make up the spectrum itself. - also self-diagnosis/identifying is just as valid as formal diagnosis. getting a formal diagnosis is expensive and difficult and wholly inaccessible for a LOT of people. it’s just not feasible for every autistic person to actually manage to Get a formal diagnosis. so until that’s an actual reality, where things are fair and ALL doctors are fully up to date in research and understanding (which, they aren’t), no one has the right to gatekeep autism. we know ourselves better than anyone. autism isn’t a cute trend, it’s a disability that SUCKS a lot of the time. i wouldn’t trade my brain for anything and i wouldn’t change how intensely i love things and feel in general, some days i really love being autistic, but other days i absolutely wish i wasn’t, because the world wasn’t built for me and it would be easier if i could survive it like neurotypical people do. anyway, TL;DR it’s a lot more complicated than rain man and sheldon big bang theory.
34. do you enjoy hugs? or are they sensory hell? i love hugs actually!! physical touch is my love language and it’s very much a sensory seeking for me. i don’t love hugs from Strangers, though. but that’s not a sensory issue that’s a social anxiety, “i have a very small inner circle and you are not a part of it” issue. but my friends and family? my inner circle people? HUGGIES!!!! just the other day i was with two of my besties and we were all snuggled in bed watching a video together. 10/10 evening
38. how good are you at detecting sarcasm? i’m honestly still sort of trying to determine this myself, as i socially unmask a bit more. the thing is, in my social masking, i’ve really learned and studied phrases that people say, the general dialogue of a chit-chat nonsense conversation. “small talk.” i’ve mastered that in a way where i could have the most shallow conversation with someone and i’m pretty sure they wouldn’t think anything of it. i mean, i didn’t even think anything of it until about a year ago. but anyway, i think i can pick up sarcasm fairly well. it’s tones i struggle with more. like i can get a sarcastic joke most of the time, but i think if you’re just straight up telling me to do something without actually saying it “the kitchen is a mess!” (apparently means i’m supposed to do the dishes?) that’s harder for me. i don’t know if that’s sarcasm too though ?? idk. still studying that myself!
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I just finished posting something on a youtube video of Aurora called 'Aurora being hilariously out of context for 6 minutes straight ' who I am sure is autistic but the world views as 'quirky' as with many other autistics, especially women.
I found out about 2 years ago and it changed my life. Everything. My self perception, my engagement with others, unmasking, reframing my old experiences, deeper understanding and use of accommodations and better supporting myself.
I've gotten every kind of response from people, from 'we're all a bit autistic' and 'why does everyone need a diagnosis or label these days' to speaking to me like a 5 year old mid conversation after finding out. I use responses to study the perception of autism in the world.
Ultimately most people do not understand what it is, so many things they say are from that limited understanding. And the cognitive dissonance is glaring because autism is otherwise presented as the alternative person in every piece of media and people are more likely to praise and accept that but not real autistic people and their difficulties.
Finding out felt like coming home, and curiously, a hive mind that I belong to, or an alien planet we all come from. It was like a tribe I was always looking for but didn't know existed. All along it was me/how I am and it has a label and identity and group of descriptions and experiences that I can relate to and learn from.
I've processed a lot of my autistic journey in writing which you can use the search function to locate on my profile, and more private access in a community is available in a group membership I have posted the link to at the bottom of the comment I posted on YouTube found below.
My YouTube comment:
Let me tell you, there are many of us and we are out there. Been hiding for so long, or just coming out of hibernation, in darkness, dejected or struggling, sharing our gifts freely with the world. We have a sense of justice, a beautiful spirit, we remind people of fairies and yet we have a dark side, a primal side, we walk with the goddess, we make art, music, nourishing foods, knots and spells, and we suffer in silence the bullies and the discrimination, invalidation and misunderstanding. It is multilayered, cultural, genetic, as old as history, history itself in the body, across generations and timelines, worlds upon worlds intertwined and get at once expanded and expanding and contracting on equal measure, some of us dying for air. We are dying for the things our bodies and indeed the entire body of the collective organism consciousness on this planet need, We are the earth and all her creatures. We are the spectrum of the rainbow and beyond. A spectrum is infinite and complete and a question mark all at once. We just do what we want and need and simply, to other humans, we appear strange. People may project onto us labels, assumptions, titles and roles. They may welcome us and adore us, they may shun and abuse us. We are the gentlest creature, misunderstood so often by the world that it traumatised us, caused us to withdraw or rage out, or nourished, supported and encouraged. It is very simply this, autism presents differently females. I realised that I was autistic at the age of 27. The autism spectrum is viewed very stereotypically but the presentation in females is only now being seen in a different light, by the medical community that is whose benchmark was the male and the associated little boy behaviour and body. We are the manic pixie dream girl in movies, the Luna Lovegoods of the world, intense or withdrawn co-worker, the very strange and fringe people in society, the outright stars of the show or centre of attention. We are nobody to most, invisible as autistic to the world, using masking to survive and relate to others, or very visible and local publicly and breaking down privately. Meltdowns. Cacophony of emotions and chaos calmed only by familiarity of routine. Special interests and worlds to escape into and explore, creativity running through our blood. Our senses blunted by necessity in an onslaught of stimuli and demands from the world, or razor sharp and being wielded to present the most beautiful genius expressions of our minds. Look out for the autistic girlfriends of the world, the Luna Lovegoods in real life. Just like Wednesday Adams who captured the heart of the millennials, look out for the girls who are different, misunderstood or mistreated. Would you befriend someone like her in real life? Be honest and educate yourself about the subject so you can begin to recognise it and be there for your friends especially the women who, with access to information on the internet, increased awareness of the subject and many autistic individuals successfully speaking and advocating and writing and publishing their stories are all realising this about themselves. Luna was made fun of regularly, humiliated and shunned. And yet she shone brighter than the sun, the light of the moon was upon her.
This resource changed my life:
https://www.google.com/amp/s/taniaannmarshall.wpcomstaging.com/2013/03/22/moving-towards-a-female-profile-the-unique-characteristics-abilities-and-talents-of-young-girls-with-asperger-syndrome
Check out my memberships for tips and resources, art and experiences, the first tier being access to this blog which obviously you my followers can freely peruse! You may join my private group membership on the second tier though:
https://www.patreon.com/yasmeensnaturalorder/membership
#autism#actually autistic#bpd#personality disorders#aspd#cluster b#mental illness#my writing#autism things#asd#membership#art#poetry#group program#Aurora#aurora is autistic#wednesdsy adams in real life#goth#alternative#witchy#dark#different#quirky#autism advocacy#manic pixie dream girl#autism in the media#autism stereotypes#autism in females#living with autism#tania marshall
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i think it’s worth analyzing somerton’s lolcow in comparison to someone like elphaba from tiktok.
[cw: attempted suicide]
it’s important to think about social class, economic status, race, mental health, and more when engaging in public shaming behavior. it needs to be weighed against the “crime” committed. and furthermore, people should consider how long someone should be shamed for.
infamous trans tiktokker elphaba has done some shitty things. shes spread scabies in public locations, auditioned for Autism’s Got Talent despite not having a formal diagnosis (i’m not an expert on her particular situation but it’s very common to not be professionally diagnosed bc cost, availability, etc), faked Tourette’s, and more.
however, most of her online fame revolves around how “gross” she is. and at this point, tiktok is her career. she makes money from playing this caricature online. and sometimes there are heartbreaking moments where she opens up about being stood up for dates and that nobody sees her as a person.
this culminated in her picking up a knife and threatening to slit her own throat on tiktok live. and of course there were commenters urging her to do it.
some are claiming it’s just an act, she was faking for attention, etc, but i don’t believe that for a second.
at the end of the day, elphaba is a trans woman who isn’t conventionally attractive, doesn’t pass too well, likely makes around minimum wage, and whose livelihood relies on being an object of ridicule.
sure, you can call her out when she does something bad. but that doesn’t mean she deserves to be put on blast every time she shows her face. i can’t imagine what her mental health is like. and the fact her “brand” is being a big gross trans woman online can’t be good for her self esteem. i’m not an expert on elphaba lore, but from what i’ve gathered, i genuinely feel horrible for her.
but let’s compare her to james somerton for a second.
james is a cis white male who basically scammed hundreds of thousands of dollars out of his predominantly queer fan base. he stole the words of under appreciated queer writers. he baited his own suicide and posted on his alt while his loved ones didn’t even know if he was alive.
yes, obviously we should still consider his mental health, duration of public shaming, etc, but given he’s still actively doing shitty things AND has enough money to survive without an online following, i think it’s perfectly fine to call him out right now.
we just need to be more aware of who it is we’re dogpiling on.
Following someone you supposedly hate to their alts is so bizarre. This James Somerton stuff feels like Chris-chan but for leftists. Doing lolcow but wokely
#i’m worried abt how ppl will react to my elphaba defending#tbh i’m not the most educated on her#but from what i could find she doesn’t seem like the Worst Person Ever#she just seems fucked up from this culture built around her#as a trans person i truly cannot imagine seeing myself the way she’s portrayed online#it’s just. this shits dangerous.#macaroni chats#james somerton#elphaba orion doherty#tiktok#youtube#public shaming
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I think I'm getting better now
I don't feel like shit this much right after waking up and when I do sometimes it goes away on it's own a bit quicker
my 'seemingly out of nowhere or from stress and physical activity pains' are less painful that what they used to be in the past few years and even tho I still can't do that much it's way better than I thought I could get
since I both dropped out of high school (and apprenticeship too) and it was literally too late to do anything bc it was almost end of school year I'm not 'obliged' to see people or go to place where stress anxiety and fatigue eat me alive
with 3 above comes better sleep too I can go to sleep and wake up whenever I want without a worry so it helped a lot too I also can sleep less and feel better (I realize how ridicilous it sounds but I always felt like shit when sleeping '8h like a normal person' but when I slept for only few hours I felt really good energetic and refreshed)
I'm more energetic and feel actual motivation to do stuff get better and rather than 'I wanna have bare minimum of living conditions to survive and not go insane' it's 'I wanna make my life better to actually live and enjoy it'
I've managed to take better care of my emotions and even open up more to 'right people' and not bottle them up or turn them into just self depricating jokes like I always did I even vented 2 times (first time 5h and second around 3/3,5h I swear I would have never thought I'll ever do it and for such a long time too I know I def wouldn't manage to when I was younger) also treating tumblr as my personal diary and venting helped too I don't really care if haters or someone I know irl sees my posts if they see this and are gonna have a problem with that it means we just never meant to be friends honestly it's better this way since from that I'm gonna have an easy way of getting to know this
for the one above thank you friends I've made in the past few years also to dca fandom and furry community ya'll have one of the most welcoming people there it's hard to feel uncomfortable and bottle up the emotions around you don't change ever 🫶 (ig it's easy to see someone's struggling when you have first hand experience sobs /hj)
after years of struggling to understand 'what is wrong with me' in everyday life and school I realized I have autism and adhd (thank you reddit tons of articles online and friends with autism 🤝) unfortunately the healthcare sucks where I live especially the mental so I can get a proper diagnosis but I'm 100% sure it's that and knowing what is 'wrong' with me takes away a lot of weight off my shoulders and I finally don't feel bad abt having stuff like sensory issues and problems with understanding certain social norms etc
I learned to go out to buy groceries without being on the brink of a panic attack again so now it's the same as it was when I was younger while I don't like doing it at least I can actually go and buy something
I can now bake again without being reminded of the time I was stuck as an apprentice in horrible work environment were even faint smell of dough or vanilla sugar outside of the workplace were enough to be triggering
I'm finally getting back my 'bad mouth and attitude' as others liked to say when I disagreed with something when they thought they were the smartest person in the room while being wrong so I can now say what I really think and not cry while literally just defending myself and my personal opinions so again going back to how I was when I was younger
I'm a bit less worried abt my cats since the vet clinic was opened in my village (the one where there are actual ppl working here and not just pretending I still don't get it how they were making any money since they weren't open most of the time) and even though I still don't have money for the vet at the very least once I get enough I'll have it close to get them to one
I have way less suicidal thoughts now I hope one day I can get it to 0 or at the very least to 'random thought of remembering the bad past'
I'm trying to speak english outloud to try and learn the right pronunciation (I know what the word is supposed to sound like but I have problems with speaking even in my native language) also I'll try to make phone calls and leave voice messages once I feel more brave to do so I also have in plans trying to read some fics or books to get both my spoken english and reading skills better at the same time since I'm terrible at reading outloud too
I managed to switch from traditional art to digital decently quickly imo and now that I even draw a lot faster than I used to the thought of actually making a living from art seems way less insane now
I've made few good friends both irl and online that I have common interests with and that I'm vibing with hopefully once the weather gets less intense and my health get better and I'll have some money to go out we'll meet
I have one of them keep asking me to go out she's so sweet 😭💕
#staring into the void#man im glad something good is happening#i hope nothing bad happens to take it all away as always#im tired
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30 DAYS OF AUTISM ACCEPTANCE 2023
I was busy and tired as hell for the last week, so I'm postin answers for questions 1-6 all in one post
1 April: The typical introduction question! Tell us something about yourself. If you can't think of anything, try these: What do you enjoy to do in your free time? What music or series/show do you like? Are you happy with your current living situation/the people you live with? What's one of your favourite foods?
My name is Jarvis, I'm 24 y.o. self-diagnosed autistic person. Also, I'm a trans guy. I'm Belarusian, but currently studying in Poland. I have degree in pharmacy, but my working experience was borderline traumatising, so I hope to switch into biology since animals are my major special interest. In terms of hobbies, I'm mostly into drawing, handmade, and fantasy/sci-fi media, especially Star Wars and Genshin Impact. I also play Ark Survival Evolved time to time, since it's a perfect combo of sci-fi, open world and dinosaurs, and it's all about building your own home and taming creatures. My music taste is mostly not very "hard" subgenres of metal, something like Sabaton or Metallite. Favourite food - probably something from Chinese cuisine, or something with mutton.
2 April: When were you diagnosed and when did you know that you're autistic? If you're self-diagnosed, when did you first suspect that you're autistic and when were you sure?
It's actually a funny story because… It all started with my mother calling my dog autistic as a joke. My doggo is rather shy and reserved, and kind of slow in his reactions, and also don't always understand how to play with other dogs or humans. And he's not even a big calm dog like a newfoundland, he's a pomeranian.
So I noticed that traits that my dog is called "autistic" for are kinda matching some traits I have myself. I've got curious and decided to google it, and ended up in a rabbit hole of self-diagnosis lasting for the las 7 years.
3 April: How good or bad is your memory for things people say? For example verbal instructions. If you're deaf: Can you lip read? Do you think your autism influences your ability to lip read?
Bad… Especially when they give a whole list of instructions right away. I usually get the first instruction, and my mind starts to focus on it too much, thinking about how I would actually do the task. But as the result, I completely miss the rest of instructions because they turn into background noise, and if I try to focus on them too, I completely forget the first one.
4 April: Were/are you in special education? Regular school? Home schooled? A private school? Did it change over time? Did/do you like it?
My mother has always been against me going to a psychologist, even though people around were noticing something and sugested it to her a couple of times. And even if I was sent to a doctor, I doubt that those old brats who stick to USSR medical books would have ever notice something in a girl who's just a little bit weird and was bullied in school for no particular reason. But I was a smart one, so starting with second grade I was studying in a gymnazium (in Belarus we call so more "elite" schools with extended programm, but it's still a state school)
5 April: Did/do you have accommodations at school/IEP? If not, do you think it would help/have helped you?
Sadly I didn't have accomodations, some teachers were even ignoring the fact that I was one of the most bullied students. Vice versa, they were often calling me out on my behavior, that turned out to be my atism. The only thing that was kinda saving me is that I had good grades and was a very sucsessful participant of biology competitions, so they let slide some things like drawing during classes (my form of stimming at that time). Of course it got worse at university, were I was contantly stressed and didn't have "the one who brings medals to the school" shield anymore. I really wish that my surrounding weren't at least so mean to me, not even speaking about specific accomodations.
6 April: Can you understand what people say when they talk fast, or do you lose track after a while? Was it different when you were younger? Additional question if your hearing is aided: If your hearing is aided, does that trigger sensory overloads sometimes?
Honestly, no. It turns into unidentifiable gibberish almost right away and I need to ask people to stop and repeat the whole thing. And I have always been like that, which honestly was often a source of annoyance to people around me.
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im a little late but i want to do some of these anyway so im going to do some past ones here if you don't mind :) (days 1-5)
1 April:
The typical introduction question! Tell us something about yourself. If you can't think of anything, try these: What do you enjoy to do in your free time? What music or series/show do you like? Are you happy with your current living situation/the people you live with? What's one of your favourite foods?
my name is equinox! i like to play pokemon, write stories and draw :D
i LOVE alice in borderland at the moment, i also like those crappy dating shows like too hot to handle lmao
éclairs are one of the best things ive ever eaten and i think i could eat rice all day i love it so much
i do tend to exaggerate things a lot lol, maybe it's something i picked up from people around me or maybe ive just always enjoyed it i don't really know, i'll try and mark it when i do with '[exaggeration]' :)
2 April:
When were you diagnosed and when did you know that you're autistic? If you're self-diagnosed, when did you first suspect that you're autistic and when were you sure?
currently i am in the process of being diagnosed, with an assessment having been done in school (age 16) where i scored very highly, idk what that is but the staff there said it was almost as good as a diagnosis. we started all the referrals and everything when i was about 14. i have a distinct memory of talking with my mum once when i was like 11 and she said "oh yeah we've always thought you were autistic" but she doesn't seem to remember this lol
3 April:
How good or bad is your memory for things people say? For example verbal instructions. If you're deaf: Can you lip read? Do you think your autism influences your ability to lip read?
ajshakdhsk pretty bad- i have really bad auditory memory, i usually need to see something written down to remember it unless i focus really hard and repeat it in my head. this is one reason i use subtitles when watching things lol
4 April:
Were/are you in special education? Regular school? Home schooled? A private school? Did it change over time? Did/do you like it?
i was homeschooled for most of primary school (roughly ages 2-11), mostly because of my poor physical health (i have arthritis and uveitis with glaucoma, arthritis is in remission now though yay :D ). but i was in regular public school for the entirety of high school, which was quite simply awful. i really wish i could have been in some sort of special ed school or even part of the special ed group there but people didn't notice because of my grades. i had shutdowns every day and couldn't focus half the time in lessons bc of people talking, i couldn't talk most of the time, and that made the existing bullying much worse. but i mean, i survived!
5 April:
Did/do you have accommodations at school/IEP? If not, do you think it would help/have helped you?
short answer: im not sure, but not really
i was allowed earplugs but honestly, i think anyone couldve put some in in teachers wouldn't care, i was also able to use a whiteboard to communicate, but again, really anyone could if they needed or wanted to (and half the teachers weren't aware so they'd move on without seeing what i wrote). so those made my time easier but im not sure if they count as accommodations or not, i was ultimately treated the same as every other student and any leeway i did have was because of my good grades, not because i was struggling (which is like really messed up??)
i don't think im aware enough of the support my school could have offered to say whether or not it would've helped but i definitely needed something. actually, i do think it would've helped; they had a support staff (im not sure what their title is sorry) and i feel that definitely would have helped some of my problems there
#heh rambling sorry#i like to talk about myself a lot lol#equinox rambles#30daysofautismacceptance#2023#actually autistic#i genuinely dont understand tags#im scared to post this lol i never talk about this sort of thing
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Family Relationships... Post-Diagnosis
TRIGGER WARNING: Family conflict, self-harm, psych ward
Suffice it to say, my life has changed in the 8-9 months since receiving an unofficial diagnosis.
One of the hardest things has been relating to my family. I'll paint the picture: mother's a PhD, ER Nurse, tough-as-nails, pull-yourself-up-by-your-bootstraps kinda woman. My dad, not so much, but still a child of the 80's who thinks "kids today" are limp noodles, uncreative, and unprepared and "too soft" for the world they face today. Sound familiar?
My sister is my mother in mini. We just had a conversation today. The same one we always do. Part of me wonders if she parrots what our Ma says or if these are genuinely her thoughts: "You're too obsessive about this autism stuff." "You can admit when you're wrong, y'know." "You're too extreme." "Stop being so angry when people don't know about x, y, z..." "Stop using your autism as a crutch." "Stop making excuses."
God, I hate this.
She's both too emotional and too insensitive. Why can't she just be logical? Why is she so uncaring?
And I'm so angry my veins are burning and I want to cry/scream, punch through a wall. Don't they know I was in a psych ward 8-9 months ago? Are they surprised I'm trying out new things, new ways to support myself, new methods to survive, so I don't go back there again, so I can stay alive?
Why does no one care about this like I do?
Do they actually hate who I really am? They seem to think my being autistic is nothing more than a quirk, at the most an inconvenience and a hurdle to overcome. Not a real, neurological reality that results in disability. "Get over it." "Push through." "Stop making excuses."
Okay. Sure. But where did I end up last time I did that?
In a cell.
My arms covered in vertical scratches, because I learned in anatomy that if you wanted to die, you had to cut along the vein, the artery.
Tracking bracelet on my other wrist.
Terror behind my eyes. Shaking in my entire body, down to my core.
Alone.
Afraid.
Stripped naked for pre-admission inspection.
Given pills. Drugged.
Sure, guys. I'll push through. After all, we know how well that worked for me last time.
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Hi! Adult diagnosed with autism just recently and I’m trying to understand more terms used by the community! I have masking, stimming, and samefoods learn but are there other common ones I should know about?
Oh wow! This is a good idea, a glossary of sorts!
At first I was like “HOW WILL I EVER THINK OF THEM ALL?? MY MIND HAS GONE TOTALLY BLANK, WHAT’S AN AUTISM???”
But then I realized I already HAVE a pretty extensive list- it’s my tag list for this blog! So, here ya go, starting with the 3 you listed:
masking
stimming
samefoods / samesong / samemovie
sensory input - the 5 senses, and how they interact with your brain. When you see/hear/feel/smell/taste something, that is “input” into your brain
Bad Sensory Input / sensory hell - Autistics experience horrific sensory input in a way that allistics just do not, and there are no words to describe it, so we invented our own. Bad Sensory Input is something that is far, far more horrible than just “unpleasant”. For example, smelling a dumpster is a bad smell, but smelling mint for me is a Bad Smell, it makes me react very violently and almost puke, and I would much RATHER smell a dumpster than have to smell mint, so for me, mint is a Bad Smell.
sensory sensitivity - Describes the condition of being affected by Bad Sensory Input
sensory overload - When your 5 senses are receiving too much information for your brain to handle. Can lead to a meltdown/shutdown
autistic burnout - When you’ve been dealing with overload situations over an extended period of time, and run out of spoons (the energy it takes to do day-to-day things)
spoons - Not strictly an autistic term, but used by the entire disabled community at large. Wikipedia explains it really well
self diagnosis / self dx - Because of a huge number of difficulties in getting professionally diagnosed, the autistic community accepts and advocates for self-diagnosis, that is, a person saying they are autistic based on their own personal experiences and research, without the diagnosis of a doctor
special interest / spIn (abbreviation, that’s a capital i) - More than “just a hobby”, an intense interest in a particular subject that takes away from learning about other subjects (causing “narrow interests” in the person), because so much time is spent on the special interest.
hyperfixation / hyperfocus - When you are so engaged in the task you are doing that your brain has no room left to process other stimuli, such as hearing the world around you, realizing you need the bathroom, realizing you’re thirsty, etc
emotional overload - When your emotions become so intense it can send you into meltdown / shutdown
emotional dysregulation / emotional regulation - The inability to “reign in” emotions; having emotions that are much too big for a situation, having emotions that are a huge overreaction to a situation, or also a huge underreaction
auditory processing disorder - A hearing disorder that occurs when there is nothing wrong with the ears, but the brain struggles to interpret sounds. Greatly affects the ability to understand speech.
echolalia / echologia - Repeating of words or phrases that you’ve heard, for various reasons. Echolalia is repeating the words out loud, echologia is repeating them only in your mind
face blindness - A deficiency in the ability to recognize/remember faces
executive dysfunction / executive function - Poor executive function causes a person to struggle with planning, organization, remembering to do tasks, etc
propioception - the ability to feel the position of one’s body in relation to itself and the world around it. Struggling with proprioception causes a person to be “clumsy” or “accident-prone”
meltdown / shutdown - A reaction to sensory or emotional overload. The brain taking drastic measures to protect itself from more input, as it cannot handle any more. Meltdowns are outward survival actions such as fight, flight, or hide, including kicking, screaming, or running away. Shutdowns are internal reactions, where the person no longer responds to outside stimuli.
nonverbal - Nonverbal autistics are people who have very limited speech or are not able to speak
going nonverbal / becoming nonverbal - Many autistics are “partially” verbal, meaning they can speak when not stressed, but if they become overloaded lose their ability to effectively communicate with speech (called ‘going nonverbal’). Can be a symptom of a meltdown/shutdown. While I’ve seen this term used in the autistic community, @garbageonionpeople pointed out “I’ve seen a lot of nonverbal autistic ppl say they’d rather if people who are not nonverbal use something like “lose speech” instead of “go nonverbal”, since it gives the word an implication of impermanency”.
nonverbal communication / nonverbal cues - The parts of human communication that are not speaking, such as body language, facial expression, and gestures. Autistics struggle to both interpret and display these forms of communication.
accommodation / self accommodation - The changing of an environment or behavior to alleviate autistic symptoms so that the autistic person can function in a less stressful way
abelism - Bigotry that stems from the attitude that disabled people are somehow worth less than non-disabled people. The idea that disabled people are the ones who need to change to fit into an abled world is abelism.
allistic - a non-autistic person.
empathy / hyperempathy /hypoempathy - Empathy is the ability to feel the emotions of others. Autistics tend to have either high empathy or low empathy, meaning we are either very affected by the emotions of others, or are not affected much at all. This is not the same as compassion, autistic people with low empathy can still be very compassionate and care very much about others.
So even though this is a pretty good list, I’m sure I still forgot stuff! If other people want to add stuff I forgot, please do so! I also realize that these definitions are VERY short. If you have more questions, search my blog for the tags, as all of these I got from posts I made with much more detailed explanations. Or of course, search the tumblr tags, or google.
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The things you're talking about with OSDD and feeling like your trauma was happening from a 3rd person perspective. Not wanting to declare that you have another mental illness because you're not sure. I relate. A lot. Deeply. What snapped me out of the speculations was taking a deep breath and keeping myself grounded in the present. I was far more dissociated than I realized. I asked myself, "How do you feel right now?" and "What do you want right now?" For me, I realized I didn't actually know. I was just doing the things I thought I wanted. I was defining myself according to perceptions perpetuated by others that I had internalized. I thought I was a messy, unstable person because I was diagnosed with BPD and have acted that way because I thought that was what I had to do. I thought it was natural for me. In reality, I was playing a role. (It's actually incredibly likely that I am Schizoid, but have made great efforts to avoid being detected; in my case, putting on an elaborate, emotional charade to hide in plain sight. However, the diagnosis is less important to me now than it once was. I used to care a lot about diagnosis, now I'm spending more time listening to myself.) It's almost like I was watching myself from the outside and putting together possible explanations. In my vicious scramble to find answers and "be myself", I had lost sight of who I was and how I really felt. Focusing on staying present and minimizing dissociation has not been easy, but it has been incredibly helpful. It has helped me rediscover who I am. I can finally breathe and I am finally able to examine myself accurately in retrospect. I don't know if that helps, but it has been my experience.
oh yeah definitely, the constant role playing, trying to piece together who i am so i can act accordingly all the time is a struggle i’ve had for a long time that i attributed to bpd for years.
and for the dissociation, i am more aware now that i’m pretty much constantly in a dissociated state, that i’m never fully “there”. i often overlook it and attribute it to whatever disorder i already know i have feels the closest and then don’t question myself more about it, just to avoid complications or spiraling.
my sense of self has always been based on how people describe me and how i remember certain ways of acting that i have, i’ve always played the role that i thought was me, but it became such a habit that it was automatic.
diagnoses used to be sooo important to me when i was younger, but now if a diagnosis doesn’t benefit me, then i don’t want it. i don’t want people who have power over me to easily know what disorders i have. the only diagnosis that is vital to me was my autism diagnosis. but now that i have it, i have no interest in pursuing any other, as a form of self preservation. i do not want authority figures to know my disorders, i do not want it to be even easier for them to abuse their power over me.
the present is definitely something that i practically never live in, especially since i am really under stimulated on a daily basis. i do not go to school, i don’t have a job and i have a very limited amount of money. so most of my days consist on waiting, waiting that the day ends. i know that living in the present would help, but the apathetic boredom that comes with under stimulation is something that truly scares me and i avoid it as much as possible. i have made peace with my fluctuating identity and personality as much as i can because confronting the reality of having no social life and no stimulation and having to find a way to cope with all that’s happening is something i do not think i can survive. of course this only worsens the dissociation, but i truly think it’s for the better. i cannot live with boredom.
your message does motivate me to at least try, but i don’t have any expectations as to find clarity. boredom definitely scares me more than anxiety and paranoia and it’s a risk that i think is very rarely worth it. maybe when i’ll feel more stable i’ll try to just,.. live in the present, it’s definitely something that i hope i can learn to do, but in my immediate circumstances it doesn’t feel safe nor realistic. dissociating is definitely the thing that is keeping me the most stable and i’m not ready to distance myself from it yet.
i do want to understand if i do have OSDD, but i really do have to take as much time as i can. i’m in a too fragile state to try to change my habits. when i move out i’ll probably be able to try, right now a lot of things depend on when i’ll move out as living with my mother is definitely slowly killing me.
i really appreciate you sending this and it is helpful, i can’t wait until i’m able to live in the present and understand myself better. people sending their experiences with this kind of thing truly helps and comforts me, so thank you /gen
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an update and primer:
so the last winter was weird. I had a complete breakdown, went into psychiatric hospital for 40 days in total. two seperate times.
learnt a heap of new things, met a tonne of cool people and had amazing conversations and few fights but overcome my own demons by that.
brain speaking-I have a scarred brain stem and neurological disorder is not a mental diagnosis, but a neurological disorder, proven by MRI scan, ADHD.
also damage to my basal ganglia, and prefrontal cortex.
neurological diagnosis means ADHD is not a "mental" health issue, as some believe, rather a neurodevelopment disorder caused by structural differences in the ADHD brain.
other neurodevelopment disorders include: Tourettes, Autism, Cerebal Palsy, Dyslexia and other Motor and Intellectual Disabilities. (Which recieve, in my view, a lot of insight, media information and stigma reduction by the advocacy networks surrounding these types of disability).
Over the last few years Autism has been over everything, I've seen mainstream media cover Tourettes and yet ADHD is still HUGELY misunderstood, misconceived and misrepresented in media, be in from the angle of documentaries, personal insight of a "typical" case, films, tv, and other media.
one of the first things my dr told me was "in females it rarely presents as hyperactive red-cordial OD child"
which is what my mother BELIEVES, that is because I have an adopted cousin with the ADHD dx who was that growing up, but the representation I'm told is also divergent for women with a higher IQ score than the average IQ. I come in around 142 and tested 123 at age 3 when I was unable to focus, pay attention and had severe trauma. I tested 142 in grade 8.
I'll share my experience as a female who is intellectually gifted, with higher IQ than average, and an adhd brain:
I've been told gifted and talented "genius" children are harder to diagnose because the symptoms present differently, we hide it better (camouflage) and our focusing can be "faked" by mediocre efforts of academic success.. this is true, I would do the assignment the Sunday night hours deadline, last minute, or have my parents half do it for me, plagiarise it (fuck I've killed my whole academic career now) copied but changed my words
from old 1970s encyclopaedias I KNEW they couldn't cross reference (I went through 15 years of school never studying doing homework or assignments and still had top grades).
I literally did not listen, and spent my classes planning the end of the world survival strategies with my GT friend who, basically helped me with my calculus and hard fucking maths, which was the ONLY 50 minutes of the day I put attention into my work.
now I'm going to be heading back to full-time study in the coming months, I get anxious as the pressure of a Bachelor level degree, and the pressure it takes me to perform, is enough to break me down. I've been advised it might be wise to start light (like a basic vet style diploma) and then build up, which is logical, but I keep thinking I'm meant to be doing my thesis by now. which is the kind of pressure one gets as a kid who is told repeatedly, "your intelligence is exceedingly the average and you can do ANYTHING you want"
I wanted to be an astronaut, a storm chaser, and an architect, a town planner and then a journalist. I always held to being a "FBI agent" or spy (I wonder why). so when I found psychology is really a blend of all these things, I kinda found a niche in a psych and social science double degree. but I'm thinking my academic career is LIFELONG, and due to the fact I also want to work in my field alongside my many written thesis coming, I'll be in academics for a long time. I may fail a few things, which I have to come to terms with. I do not fail easily, or readily, but I'm a perfectionist type-a academic who will put my whole life on the line to achieve "merit". I get exams, I get assessments, I read journals super-easy, I talk the talk and walk the walk so well psychologists who are at masters level compliment me on my "knowledge".
when it comes to mental health and trauma, I will always have the personal attachment, called lived experience, which will make failure and burnout, 100 percent realistic. I have to boundary up, bootstraps on, and prepare that yes, my personal "bias" will probably be entwined in this.
which is why I'm looking at the social science for the statistics and thesis writing side of things, and the counselling for the trained therapist side. either way, the degree of counselling requires so much self-insight, and then the social-science will back me away from personifying it. the other choice is criminology, which leads to forensic psychology, which is eternally fascinating. my main concern is the pro-pedophile content Ill be up against, which will look at the anatomy of a shoplifter akin to the devil, and leave the pedophile in the DSM-5 dx "paraphilia" box.
I'm not joining or jumping to anything.
either way I've got 2 year of credit, a heap of pathways and a lot of "academic momentum" from all my life being aimed to be "academic powerhouse". I went through my files and found a lot of awards I'd won in my high school, and top place in the competitions we would be entering in. I remember feeling so sad if I had a "credit" vs a distinction or high distinction, only to see now, a credit in university maths in year 9 is a skillset I don't have anymore so, good on me. or a credit in English, or Science at that age was pretty impressive, considering these tests were random and not studied for.
just a general skills assessment only the top 30 kids in the year were to take on a year by year basis and put out to vet from the top universities and taken by other kids in the same grade around the state.
it puts so much focus on my intelligence, because it's primed to be that way, I know that is true. I know I feel good being academically successful and it gives me a feeling of "achievement" but is it really for me?
I also found 2 letters from my local politicians offering me job placement, work experience and I was 1/4 kids in my 10th grade graduation tom get the letter, and due to my behaviour I pissed ALL the idiots who bullied me off. I was "too pretty to be a nerd" "too smart to be pOpUlAr".
so I made a group of misfits, who are all highly intelligent, creative and my group had the ONLY gay male in the school AND THIS IS BEFORE YOU FUCKING RETARDS MADE IT "COOL". he was bullied badly, so fuck you, you fucks claim "liberalism" but I bet you were the type of idiot who bullied guys like him in high school while you pretended to like my chemical romance and fake cut yourselves. I hate you all, forever.
my grade was full of idiots who were fake emo, who left the scene the moment the scene changed to dub-step and club music. I was there, watching you all, like sonny Moore, went from FFTL to that dubstep skrillex shit he started in 2009.
I dated you, hooked up with you and I went to your gigs. I know who was real and who was fake. I met some of you years later and realised the more emotive ones were the less "alternative appearing".
I can say 1/10000 emo guys from the 00s were genuinely Into the music and scene for the right reasons based on my dating history and this can and will be analysed statistically using SPSS one day to prove a lot. I've had too many relationships from each sub-culture and I have had 4-11 males at a time per public "output" of my energy pursue me over life.
I'm not being cocky when I say I have a long line of "suitors" and its banked back about 50 men. it's been a thing I've avoided as it seems to grow based on my body shape, attitude, appearance, so I am currently out of touch with dating scenes, no interest to try that ANYWAY, given the fact that I have had so many LONG TERM relationships ANYWAY. I can't see another one going well, and at this case, I'm living with an ex but we never went on conventional and now our families label this 3 things: "asexual", "polyamorous" and "open relationship". I'm also "bisexual" but this all to humans outside, looks ridiculous on paper. (wild orgies and lots of swinging or some stupid sex magick probably is what J brother literally thinks we do).
bc humans are intrinsically designed to need to label things they don't understand. we share a lease, not a relationship, and fucking polyamorous, I WISH. there are no girl-girl-guy 3 some, or orgies, or sex magic parties.
this has changed the attitude and perception of this "relation' which Is non-romantic, non-sexual. he can date and likely, will, as can I , and I likely won't date.
I would say 14/15 have had ADHD, or other mental illness and or trauma. which means to me, nothing at all.
I think this "open book" non romantic relationship style of "friends and roommates" not sexual.
attachment is misunderstood by others but works well fro my adhd, meaning I'm not expected to marry, or be a wife in any capacity. he is free to do what he wants, as I am, and open communication is a novel frontier I brought into this in the start, and stayed with for the duration. we fight, but I fight with a lot of people in my life over many petty things. also down to my adhd, I believe, I have rejection sensitive dysphoria, which makes me hypersensitive to rejection, perceived or real.
im not sure if this is trauma or adhd or both. but
I have used sexuality as a weapon in many relationships but it cannot or will not be used here, so I have had to resort to uncovering parts of myself which I never knew, which will stay with me even if he decided to marry and wife up in 5 years, which I'm okay and expecting him to do, and I would much rather that then be trapped in a situation where I cannot be that "wife/mother archetype" as I'm too "femme fatal/other-woman/sex-laced seductress and siren" a "FWB, unicorn, drug buddy, hook-up where im a therapist" or "intellectual and cognitive mind-bender work-study obsessed woman".
both at once and many types of human, including one who is a full-time ceremonial magician of 7 years. I will drink, drug, fuck, fight like males and still be more feminine and high maintenance than 89% of women. I grew up a tomboy and don't mind getting into fun, adventure based situations, like hiking, or anything adrenaline, I would only be reluctant to eat weird shit.
I also have many "neurological" issues including ADHD, and trauma which causes a rupture in the average human and I dating.
I'll tell you how many men have said "you are the unicorn" and then realised what that means, I went as far as canvasing the PUA world back in 2014 after reading the game, a book on PUA, which is essentially, pick up artistry, based on NLP and hypnosis. I did this after reading the copy my ex in 2008 handed me before we dated saying "I gave this up for you". it took me years to open the book, buy when I did I truly believed the only way I would fall in love again, was through PUA. that failed in so many ways but gave me a training foundation for men who were candidates for that, I have trained up J, and the way that sounds is BAD. I know, but I got a lot of value myself, I just don't see it how I wanted to see it.
but that was my original intent, and I achieved this he knows that, knew it was happening and evolved for the best self.
I am thinking we can modulate this into a business model for how I was operating in the BDSM world was mainly psychological, not physical.
I get told all of is incredibly intimidating (I am told) to women and men.
I don't really care anymore, because people have always seen this part of me in the wrong way ANYWAY, but I own who I am NOW. which is what I needed ANYWAY. so it cannot be stolen again, and sexual healing has come from abstinence ironically.
I also don't care what or who is trying to tear up my relations, toxic or not toxic, all people around me will be on a healing journey by default, or cut out of my life, for I am radiating that energy so brightly its impossible NOT to feel that pull.
I will drag your shadows into the light, and make your secrets spin from your lips into my consciousness. its not what I do but its what is design.
I make your weaknesses mountains to climb over. you cannot hide from these in my presence, I won't be this controlling or obsessive female who wants 24-7 attention as I have a life full of meaning without love or sex. I don't want to be wined, dined or expensively gifted, unless specially requested.
I don't want love letters or romantic declarations, this isn't some femnazi bullshit, but it triggers me. I appreciate the efforts and won't make you feel bad about your insecurities, for mine are probably 30 x more pronounced.
I appreciate small things, that most males won't or don't know how to do. like remembering things I've said and being thoughtful. or knowing my silence isn't personal, or a game, but a protective wall. I've had songs sung too me, guitars played, songs written, or things made in ways that are heartfelt. but I've always had them used against me too. so it is the context. I value time, energy, conversations of depth and reciprocal exchange. I also value trauma understanding, my alters and fragments being accepted and valued as me as a whole and a person who is not afraid, or scared of stupid stuff like sensitivity, emotions, feelings as raw as my own. men feel intensely too, lol.
but will only give oral sex 100 times before I don't recieve it, I can communicate now so that wouldn't happen.
but I won't be a bitch about this stuff. I am extremely feminine and care in ways other people, do not, I forget nothing people tell me, so it can be a reward or reverse uno card pull in a fight, but I am not evil or deviant in my relations. I react, depending on how you treat me. I don't need your money, or providing source of income to be okay as I am my own queen, however sharing resources is okay to build something. I don't need to be seduced, but will need to be shown a person is trustworthy.
few cross that.
that will always be time-endurance and testing. there are ground rules I don't play with, or play games. or like being forced or forged into something I'm not. I know abusive and I know safe, and I am a psychology expert, trained psychotherapist and study humans for fun, so I'll always be analysing things.
and I know red flags and I know ego, I know how to placate and please and pleasure, but will only do so, for a bigger and better reason than the mere act of seduction. which is without value and transactional to someone like me, I won't lie.
and I know every tactic in the book, for the book was written by someone like me, many lives ago, and my karma is being burnt for that book.
in terms of walls, I have many, may it be called a maze. or labrnyth.
I will teach you things you never thought you'd know, and change your life in ways you won't ever be able to go back to before. I will blow your mind, sexually, emotionally, intellectually, on all levels, and I'll make your friends and family love me.
I'll bring your walls down and you won't be able to understand this, because you don't understand me, and thats ok.
but I'll always understanding you and make your life better because thats what I do anyway, and people talk to me about things I will never share, as I keep secrets. I am jealous, of everything but, only because I am attached in a disorganised way, and working on that.(I won't even mention how man women or men don't know basic psychology of themselves). I also am a therapist , for my friends and family too.i should not be , but I am. I care, I listen, If you think I'm not listening, I'm still listening. sometimes I interrupt, because I have ADHD and I am horrible at resolute planning, or being "normal". but I don't want to be normal anyway. I need you to recognise and understand my shit, for that is what I do for everyone in my life, and I have helped more than I receive.
I'll probably accidentally give you therapy, but thats fine, because you will uncover your depths and find meaning in this. it's not something that goes bad unless you are fundamentally, evil, even the most abusive relationship I was in, was benefited from this process. yes he's still narcissistic, but he is self-aware. and did I benefit, never, just know the anatomy of self-proclaimed narc and I still can't hate him. will get my civil claim one day.
I will fuck your mind without meaning too. but thats because I fuck my own mind. but the meaning is made in the man- some find this highly offensive or personal (its not). I fuck minds by my own overthinking, or over perception on many levels of reality. so join the ride, or don't come along at all. because once the rollercoaster is in motion, I have no control of what may or may not happen. it's purely experimental.
I am experimental.
and the women who are judging me, are not any better.
look within, and shut the fuck up. self-improve and quit this jealous divide and conquer bitchiness. I HATE gossip, bitches, snitches and fakers.
I look to other women who are intellectually, physically and spiritually "individual". and find value in superior status to my own, which is something my narcissistic ex taught me.
I look for mentors, and teachers and people who will teach me how to improve myself, which I am fearful to reconnect after something is amazing and I can't give anything back of positive value. I am sorry I am working on that.
I won't devalue those below me, but I also need to be mutually benefiting from a relationship.
I dont drag people down, I may disappear if I feel I am doing this by mistake. I am flakey as fuck, and sorry for that. its anxiety and lack of perfectionism, so I am wrong and bad for this. I can change. will change.
if you can find value with my relation, personal professional or romantic, we can move into a symbiotic beneficial agreement based on mutual "terms". but many won't or cannot see this, nor do I impose my bullshit into the lives of randoms at this age.
I don't care if this is cruel, it's real.
I value loyalty, compassion, self-insight/awareness, someone who understands all parts-spirituality, metaphysics while still having intellectual & logical & analytical brain-sight.
I enjoy music, magick and learning new things.
I do not care about appearances I dont think ive dated based on one time. I do value connections and chemistry which is far-few between, I hate fakers. I smell insincerity miles away. but I do respect women who are well-presented, or beautiful, with hair beauty and makeup, I can't do this shit well, so I look up to those who are in professions who do it like art. I find them to be genius level queens who scare me.
I call out bad behaviour and make people uncomfortable if they are repressed. I will change you without even meaning too, I don't even need to date you. its just my presence, over time, amplified by the intensity of the dynamics.
I don't want simplicity, but I also don't need over complexity.
I value passion, independence, creativity, curiosity, problem-solving, deep-disscussions, shared adventures and some occasional risk-taking (lol), sensuality and sexuality for a common cause beyond physical pleasure. I like being taught but not micromanaged. I need my own independence, and need to be trusted with that. I hate being scolded for that like a child, or being pushed to change my ways to conform to societal values. which I will push back and refuse to do. which is not healthy. I don't adult like many others do, but I try to proceed in other ways. and learn to adult like normal people, accept me.
I also value myself, and how I can be celebrated, enhanced and improved vs. the opposite.
I give space, and have boundaries, and understand human psychology, sexuality and relationships in ways few others unless they are trained, can do.
I value MY time. so you can have space to value YOURS. I dont need to be in anyones pocket for a long time. I love being alone, and being around people who are stimulating, but draining people will be drained out of my life quicker than I intend. I am sorry for the people who felt I disappeared, when I was only trying to be 'fair', if I feel I'm a bad influence, I will work on myself until I'm not. I'm still working on it.
I also use this psychology awareness, to enhance communication, connection. you may or may not become an accidental guinea pig. I will be upfront that I am experimental, but that is part of the buy ticket and take the ride. lets work together. not apart.
I am coming from a place of love, and love is what I feel for my animals, which you will be adopting as children.which I want to stop experiments being done on. I love love, in all ways, but hate cruelty of animals and children, violence and suffering. I dont advocate justice, because I find life is fucking cruel, unfair and unjust. by default, so I focus on myself. what can be changed, and what I am able to do in my own locus on control. I will always find myself drawn to the outsiders, the misfits, the vagabonds, the misunderstood. I want to help people who are society, or socially, disadvantaged by trauma and mental illness, but only when I have ability to help myself.
it's a journey.
I will not date anyone who is cruel to animals, outside of specify magical sacrifice, there is not any place for that. nor will I date or fraternise with anything or anyone linked or associated with pedophilia. I won't judge anyone on anything that are outside animal cruelty and pedophilia. I don't and haven't. I keep on good terms with every ex, bar 1 whom I only apologised too this year. it felt good to do that. I change my behaviour.
I am open, but also highly attuned to both logical, factual, empirical , scientific worlds, and spiritual, intuitive, psychic and the "collective unconscious". I walk in both these realms, and I am "conventionally attractive". which puts a lot of pressure on me, to be "stupid". I am always dumbing myself down to fit into normality, but I look ridiculous if I do that so I peacock my intellect.
only to be misconceived.
I give up because I no longer care how anyone but MYSELF can see ME. I won't dumb myself down , but I can enhance you UP. prepare yourself for graded education, evolution and self-growth on mass scales.sorry not sorry.
that sucks for the people who want to be living vicariously through me, for making up to lost trauma years, for family who sold me out for the success I'd bring home, or fake trauma enmeshed friends, or whatever they want or need from me. I value my time and energy, and have given that in abundance, and if you want to be with nut only "one part of me that is alters". I can't provide that now. not sorry.
I have to work on something or not be in a dynamic at all.
I no longer can switch on demand to adapt for you, it will not be effective and that upsets a lot of people. especially now I'm sober. harder to handle this, as I see the world for its ways and why it is, more vividly. I haven't had alcohol for almost 2 months, although, I could drink, I haven't.
I can't do it, anymore. it, being, faking, my selves fronting to impress. I can't. I have no more left to give, and I'm expected by everyone to be a way I can't do it in the way they want.
I will go to another year long outpatient DBT, followed by 10 weeks of A-C-T therapy, and however many ECT OR TMS may or may not help. I'm told it won't (ect) work. but TMS, is something I am open too. but I am telling you, none of this psychotherapy, that will be based on dbt skills, day therapy, intensive skills training, recommencing my studying, and resuming "life worth living" will or can wipe the traumas I've "recovered" memories for.
I will also shut the fuck up, and tell nobody about this if you leave me alone, I told that to my family, and this is open letter to the watchers, stalkers and perps who read this openly as I track the hits on here and have 200+ visits a day every day for the last month. globally. no idea how or who you are but I think its the same people who called the police for the "ayreon song lyrics" seen to be a suicide not last October.
thanks for that wake up call, I have shut the fuck up, since December, more so now. I will burn the journals, or lock them up.
my recovery is not linear, not yet fully integrated and I trust nobody so I don't think my psychotherapy will be deep, I focus on things like ADHD AND my EDNOS. and dbt skills. I won't be talking about sexual traumas.
enjoy the update, and thanks for the "attention".
I have my goals, my work, my meaning and what my life should and could and will look like, but I will not share that with anyone. that means everyone right now.
I've been tested, traumatised and terrorised to the point of not-tolerant of anyone who may bring that back, and banish the fuck out of my sphere every moment I need.
take me as I am, or watch me as I go, which I will go, where I am not wanted I will remove myself, but I will find where I am celebrated because I create that.
I will rise up against all adversity every time but that is survival and that created a resilient and brave woman, in me. who will not be destroyed or decomposed by humans who are fundamentally fucking evil.
I gift you my truth, in progression, and give up the pain of the past.
#I've seen the MRI#magnetic resonance imaging#brainstem#scarred#brain damage#adhd#attention deficit disorder; mental health research; children#ADHD brain#living with adhd#adhd woman#women with adhd#mental illness#neurodevelopment disorder#neurological disorder#brain disorder#about me#trauma#cptsd#complex ptsd#adjustment disorder#love language#complex trauma#dissociative identity disorder#trauma and adhd#trauma warrior#writing#tldr#mental health awareness#dbt therapy#therapy
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