#i am talking about disabled and chronically ill people

[akindplace]

One of the most interesting things about being open and vulnerable about my disability is how it actually brought me closer to people instead of pushing them away. I met people who are also dealing with chronic illness. Yes, there were friendships I “lost” because people just drifted apart, they didn’t seem to get that chronic illness means that I am always ill. And it made me scared of rejection but isolation is never the solution. But when I finally decided to just say “fuck it” and show up as I am and talk about how being disabled affects my life helped me get closer to people I already knew and it helped me make new friendships that are so so so good to me. Anyway… being vulnerable is always scary and rejection fucking sucks, but it doesn’t mean there is something “wrong” with you. Sometimes people just don’t get you, sometimes people don’t click, sometimes that person had an awful reaction and this on them. But being open is worth it. It really is.

[oneshortdamnfuse]

I don't disagree with you. I made this post with the awareness that public bathrooms will be used by all kinds of people, but I am talking specifically about disabled and chronically ill people here because I am one and I frequently struggle with bathroom access.

Yes, even the way public bathrooms are designed should serve homeless people. I also believe everyone has a right to public transport, and any criticism I have for it as it exists now is not intended to see it disappear. It is to enhance it.

With that said, I am dependent on my car because the public transportation available to me where I live is not accessible to me as a chronically ill person who needs immediate access to a bathroom. It can take me a really long time to get to a bathroom if I am stuck on a bus, and then a long time to get back on a bus going to my destination.

I am not saying get rid of buses, but I'm in trouble if cities become much less accessible to cars if they don't address the bathroom issue.

I am saying there should be more public bathroom locations along bus routes, and other modes of transportation. There could be a day when I can no longer drive, and if the public transportation available to me isn't in close proximity to public bathrooms then I will simply be stuck at home like many other disabled and chronically ill people.

I am once again explaining that in order for walkable cities and public transit to work for disabled people, there also need to be more public bathrooms available in and around those areas. Not just places to sit down or rest. Bathrooms. We need accessible, clean bathrooms. With sharps bins. With multiple wheelchair accessible stalls. With an area to set down supplies needed to maintain one’s body. Even if it’s not being used to get rid of bodily waste, bathrooms are one of the few spaces disabled people have to maintain some sort of privacy when they’re in the middle of a flare up or they need to take medication or what have you. Designing a public space? Include bathrooms.

[salt-baby]

I just don't understand people who don't do a COVID test when they get sick

[deservedgrace]

I don't think that framing "Marginalized™️ Atheism/Deconstruction" and "Cishet White Male Atheism/Deconstruction" as inherently ~separate and distinct~ is super effective (and disclaimer I'm specifically speaking about my experience with christianity, atheism, and ex christian atheists/deconstructors), but also... okay so I was raised in a cult, and cults are oppressive for all its members. Nobody gets out unscathed, everyone experiences the abuse tactics, everybody is a victim. But within the cult there is a hierarchy, and cishet white men are at the top. So while the cult is oppressive to everyone, and everyone is harmed in some way, it is also uniquely oppressive to queer folks, to BIPOC, to disabled folks, to women, etc etc. And the thing that happens to some of those cishet white men is they leave an oppressive cult, where they are considered the "default", and they go into the ~real world~, where they are also considered the "default", and even in atheist/deconstruction spaces, their bodies and experiences are often the leading voices.

The men that leave go from an oppressive patriarchal culture to a far less oppressive (to them) patriarchal society. The white people that leave go from an oppressive racist culture to a far less oppressive (to them) racist society. The people that leave go from an oppressive culture that does not value marginalized voices to a different, less oppressive culture that also does not value marginalized voices. And if you personally do not experience [xyz] oppression, it can be difficult to even realize there are things surrounding that you have to deconstruct unless you listen to the voices of the oppressed. But some cishet white men go from being considered the "default" in an oppressive culture, to being considered the "default" in a less oppressive culture (to them). Their experience of "overcoming systemic oppression" comes from leaving the church, and it can be really easy to fall into the trap that the church, specifically, is the sole oppressor and enemy of everyone.

Of course this doesn't happen in every single case and it's also not exclusive to cishet white men. But those blind spots are why I think it's important for everyone to listen to a variety of voices when they're deconstructing, especially if those voices are talking about oppression you wouldn't have experienced firsthand.

No, our deconstructions are not inherently different, but the experiences and circumstances prior to it often are. It's okay to acknowledge that and beneficial for everybody to listen to each other's experiences.

[denkilightning]

haha if viktor stayed with singed or just in zaun hed probably have his leg replaced or actually would have a surgery before it got to the point we see in s1 act 2 and 3. because if that one post speculating viktors diagnosis and that it was almost fully operable till a certain point. one thing piltover could never beat zaun is accessibility to prosthetics and while access to doctors is almost impossible viktor had singed - probably the best one in all of zaun. viktor didnt even have a brace until he was like 30. if he stayed, corrupted his morality for singed, he wouldnt be healthy per se but im convinced hed get better help than just polite lack of acknowledgement from everyone around him at best. of course vik didnt stay. that would go against every part that made him him. but if he did, against all odds, hed get better help than he had all his life. his desperation to survive would not grow to the extent it had in s1 act 3. just... viktor in zaun, ykno? i think about him a lot.

[krispiecake]

you know when you get those adverts for like protein shake meal replacement bullshit products and people say shit like ‘im just so busy with work i never have the time for breakfast or lunch or dinner or snacks, so this horrible brown powder milkshake is a huge life TIMEsaver!’ and ‘its so convenient! i just swallow a glass of tasteless powder to meet my basic vitamin needs and then i have all the time my employer wants from me!’ and then you have to keep watching the unskippable ad only for the person not to become immediately radicalised by what they were just forced to say. I genuinely cannot fathom how people write these scripts, say them out loud, film these videos, edit them and publish them and nobody involved in that process is going insane. are you even listening? are you reading those words? cant you see the exploitation of workers is forcing you to stop performing even the most necessary of tasks like eating real food? and cant you see we have been so convinced that is normal that there are entire businesses and ad campaigns based on it?

food, actual real good normal food, is a human right, but also part of your culture, your family, your community. Its a source of joy, health, fun, love and creativity. please dont let these fucked up companies convince you its just time that could be better spent slaving away for the rich monsters that hold your contract.

[ur-stepdad]

would love to see in the tags/replies how people assert themselves when dealing with an inappropriately long wait and if you've ever gotten satisfactory results

[235uranium]

"you wouldn't be disabled if the world was built to accommodate mobility differences!" and here I thought it was being in pain + having a chronic illness that can cause just about every symptom!

[ink-asunder]

We NEED to reevaluate how we view people with "red flags" that don't actually indicate harm to anyone. Things like "doesn't like animals," "doesn't have pets," "my pets immediately distrust them, so that means they're Secretly Evil."

I have a psychotic disorder. I suffer from flat affect. I have zero control over how I am emoting, and very often my emotional readout is completely blank. A LOT of animals (dogs especially) have exhibited aggression and fear around me ever since this started. (There are only TWO dogs I've met in the last five years that didn't BITE ME.) Dogs are unsettled by me because of a symptom of my psychosis--a condition that is out of my control that IS NOT DANGEROUS and doesn't harm anyone.

I also have a severe autoimmune disease and severe allergies to basically all animals. Whenever I tell people I can't come over because they have pets, or I don't have/want pets of my own, the IMMEDIATE response I always get is "why don't you like animals?" So I'm always pretty pissed off when I have to say, "I'm severely allergic. Don't fucking assume I have an undesireable quality just because I'm not a pet owner."

Another ableist red flag we need to talk about is "has no other friends/all their friends break up with them." Hi. I'm physically disabled with a digestive disease and a degenerative disease in my spine. That means my dietary restrictions are stupid and I can't sit/stand/walk for more than 15 minutes without being in pain. Most of the friends I break up with, I do so BECAUSE THEY ARE INCREDIBLY ABLEIST TO ME with no visible potential of changing. From people relentlessly harrassing me about lifestyle changes to not accepting correction or feedback when I tell them "hey, you CAN'T do x because it triggers y condition." If they argue or blow me off, I'm not their fucking friend!

Tl;dr: Disabled, chronically ill, and people with "scary" mental illnesses are often lumped in with "bad people" for characteristics that hurt no one and aren't in their control. Stop using "my dog is uncomfortable around them" as a litmus test for everyone you hang out with.

[jasperxkuromi]

Play ideas for chronically ill, disabled, or otherwise bed bound/low energy littles

Hi all! I am chronically ill. I am not comfortable sharing my specific diagnosis, but I am more than okay with talking about disability in general. Everything below is based on my own personal experiences and activities I like to do while stuck in bed. Everyone's body and experiences are different. I may list some things that just aren't an option for you, and that's okay. You are more than welcome to add on to this post with activities you do too!

🐛 Open the curtains and cloud watch! I like to look for clouds that remind me of animals or characters and day dream a story about them. If the weather is nice, consider opening your window a little bit and letting some fresh air into your room.

🐦 Bird watch! I have a bird feeder outside my window that I painted myself from a kid's kit. There are also bird feeders that have suction cups that can be stuck right on your window. You can also make your own seed ornaments. You could pick yourself up a kids book or two on learning to identify birds.

🌷 Get a window planter. You may need someone's help to set one up, but once they are in place they are fairly easy to care for. I like pansies and marigolds because they remind me of childhood, and they are low maintenance and do well in containers.

📖 Audiobooks are great for middles who want to read chapter books. If you have a library card you can borrow tons of audiobook, ebooks, and comics through hoopla and Libby for free. There are some audiobooks for younger kiddo books, but honestly I think YouTube is better for that.

🖼️ Scrapbooks and journals! Being penpals with another little is also an option, but I do recommend using basic internet safety and common sense. (I don't think you should do this if you are under 18). You could always scan/take pictures of your letter and send it digitally to your penpal instead.

🛏️ If you spend a lot of time in bed, and have the money to do so, I really recommend getting items to make your time in bed more comfortable. Extra pillows, or even a reading pillow can be helpful. Lap desks or bed tables can give you space to color or set up play scenes with small toys.

🌟 You can also decorate the area around your bed to make it more child like! Fairy lights, glow in the dark stars, bed canopies, posters, and the like.

🪑 I have a floor chair I use for times I am playing outside of my bed. Being close to the floor helps me feel small, but not having back support hurts after a short while. I have an adjustable one that I can lay flat on the floor as a sleeping mat. Very helpful for the times when I need a quick nap after playtime.

🎨 Check the seasonal and kids sections at dollar stores and Five Below. I usually find fun craft kits that can keep me occupied for a bit for really cheap.

🧶 Do your own crafts! I like the knit and crochet. Some people can do them in bed, but I find it difficult to find a comfortable way to do that. However making friendship bracelets in bed works out pretty well. They make great gifts, even for non little friends. Or you could make matching ones for you and your CG or favorite plushie!

🪀 Make your own sensory bin! You can find tons of tutorials and ideas online. Bonus is you can get most of the items you would use at the dollar store. There are tons of other DIY sensory toys you can make as well if you look around. Glitter/shaker bottles are pretty popular too.

🐇 Cuddle with your stuffed animals. Tell them stories. Play pretend. Read to them. They will appreciate all of it.

🎮 If you have an old 3DS stuffed away in a drawer somewhere, pull it back out. 3DS are fairly easy to install homebrew and there are toooons of kiddo friendly games you could get (check 3ds.hacks.guide for this, do not follow tutorials on YouTube or random websites as they very well could be outdated)

💊 Decorate your medicine organizers with stickers. If you use mobility aids you can decorate them as well! Fake flowers are great for decorating mobility aids and there are tons of ideas you can find online.

🍼 I have stomach problems that makes it hard for me to eat enough. I often drink Ensure to make sure I am getting enough calories/nutrients. I get the strawberry flavor and sometimes put it in my sippy cup and pretend it is strawberry milk 😋

😴 If you need rest, rest! You deserve to get as much sleep as your body needs. Babies and toddlers take naps all the time! Trying to just exist with chronic health issues is difficult enough. You don't need to push yourself.

[calnommer]

i am always afraid of getting a terminal disease or disability too young. for my own sake, because i am mortal and fear death.

but also for my parents' sake because i cannot imagine something more tragic for us, than them having to take care of me again.

the guilt of it all..

[camellia-thea]

i know we talk a lot about the isolation of chronic illness and disability, but i really don't think ablebodied folk get it.

i have made one new friend in person since graduating highschool in 2020. she is my housemate's girlfriend. she stays over frequently, and the only reason we are friends is because she stays over and we have shared university papers. i would not have had the opportunity to befriend her otherwise. that is in the space of three years.

i don't go out much. i cannot guarantee that i will leave my house within any given week. technically i have class i need to go to twice a week for an hour, but those moments aren't time for friends, they're time for classwork and i don't interact with people in a social capacity there.

i simply do not get the opportunity to meet people.

i cannot go out with friends and meet new people that way, because my social circle is already so small, and i don't have the energy to go out half the time anyway. when i do, i suffer for it later.

i don't meet people on campus because i'm immuno-compromised, and ableds seem to have forgotten that we are still in a pandemic.

i don't go to clubs or go out for the sake of going out because i can't. i've grown agoraphobic, because i am so worried that something health related will happen and i'll get stuck somewhere alone. i hate leaving the house because of the guarantee of an anxiety attack which leaves my body more likely to flare. it's a vicious cycle of isolation.

i am not the only one who has experienced this -- i can still leave the house, i can still go and visit friends with assistance. i struggle, but at the end of the day, it's still an option. there are others who are completely isolated.

the worst of it is that people leave. people get tired of the 'i can't come, i'm sorry', of the 'hey, i'm sick, can we postpone?'. even people who you love and hold dearly will stop trying. and it's awful. you have to sit and watch these people who you love walk away because they can't deal with your disability. i don't have words to describe how much that hurts.

it really is impossible for ablebodied people to understand, because for the majority of us, this isn't temporary. this is just how we have to live. and your social circle can only really get smaller.

[arliedraws]

All this anti-Remus talk is making me like him even more 😂

I love that he’s a character who is so fixated on image and how he comes off. He’s such a cold person! Detached! Won’t form close bonds! Like…his loving parents fucked him up by keeping him away from all other children until Hogwarts. I love how this plays into his character again and again and again.

I put the rest under the cut because it gets a bit tangential, but whatever, I was feeling a bit heated.

I feel like Remus doesn’t actually know how to make friends—he has let everyone come to him. James and Sirius formed their little group, and Remus has always been in awe of what friends will do FOR him. What did Remus do for his friends? Maybe Remus learns how to accept love, but he is not very good at giving it back.

It’s so interesting to me that Remus doesn’t become Harry’s go-to even after they spent hours together. Harry allows Remus to see his most vulnerable side, and Remus doesn’t reciprocate even after the truth comes out. At the very least, he could write Harry. He could visit Harry in the summer.

But I actually LOVE this about Remus. I love that he’s written as a warm, inviting sort of person when he’s actually someone who is terrified of forming close bonds. No one is allowed to see the real Lupin, and once someone has seen a part of himself he doesn’t like, he immediately detaches himself and disappears. Remus wants to appear in control of himself because he is concerned more about his image than doing the right thing. At the end of PoA, I’m sure he’s upset that he nearly killed Harry and co, obviously, but more importantly, he’s embarrassed that he lost control. If he really cared about the safety of students, he would have revealed Sirius’s disguise to Dumbledore as soon as Sirius escaped Azkaban.

The point of his character is “what you see on the surface is not necessarily what lies below.” It’s one of the most salient themes of PoA.

Anyway, it’s uncomfortable! So many people want to make Remus a “model of marginalization” - who, depending on the fanon, falls on one end of the spectrum which is “ohhhh poor disabled guy :((( he can’t do anything because he’s a pathetic baby” or “look how hot and tall and rational and intelligent he is despite his poverty/disability!!!!”

It’s SO INFANTILIZING. I don’t think Remus is a bad guy or a good guy—I think that his particularly negative character traits are a result of prejudice towards his condition, his upbringing, and his internalized prejudice towards werewolves. So I am not saying he’s a complete asshole. Obviously. My point, though, is that he has friends who support him in school, particularly James, who break the law and risk torture prison (and bodily harm from a werewolf) to support him.* And Remus…he does not do much to reciprocate that sort of love. The very least he can do for James is to check in on Harry (he doesn’t even need to say hi—just literally see that he’s ok!). James risked his life for Remus, and Remus won’t risk Dumbledore’s disapproval to reciprocate.

He continually does the LEAST for Harry. Harry has to beg him to teach him the Patronus Charm. And when Harry is clearly craving his parents’ voices as they’re dying, Remus doesn’t even offer a nugget of “ohhhh, gosh, Harry, let’s give you some good stories about your dad, ok?”

This is a cold, broken man who has convinced himself that being alone is safe because you can never be rejected. This is Remus’s greatest fear. He’s the teacher that needs to be liked but he hides behind professionalism when it suits him. His “nice guy” traits are a fucking ACT. I want people to explore more about his negative traits! He blames his condition when people get too close, and when people manage to climb his walls to try to get close to him, he pushes them away.

Chronic illness does not make you a good person—it just makes life harder. Remus accepts love and support from his friends—and yes, they SHOULD give him love and support because this is what we owe each other, but Remus also owes his friends love and support. It’ll look different from how James, Sirius, and Peter can support him, but you don’t get to just take from your friends without giving back. Your friends are not there to be your mommy. Sometimes, you’ll go through periods where your friends are holding you up and you just need to accept that they don’t resent you for it, but if you’re willing to accept help, you’d better be willing to return it later. As someone who has a few people in their life who take and take and give little in return, I can tell you, it starts to feel like your only purpose is to carry them on your shoulders. And man, it’s fucking exhausting. Sometimes I need to be carried too.

I have no idea how Remus behaved at Hogwarts regarding his friends on a day to day basis because Harry never sees evidence of this, but we see him as an adult who is unwilling to support his friend’s orphaned kid in ANY meaningful way…unless Harry begs him. In the end, Remus is still an autonomous adult and Harry is a child in need. In this situation, at the bare minimum, Remus has the power to pick up a pen and write.

So why don’t we see this more in fic? You all know I’m a Sirius stan, but I am CONSTANTLY critiquing Sirius’s relationship with masculinity. Sirius is my favorite character, and I LOVE exploring the uncomfortable parts of him—he’s cold when he perceives that he has been emasculated, even belittling Harry when he’s insulted. He’ll put himself in danger to protect Harry when all Harry really wants is for Sirius to be there for him (which Sirius can’t do in OotP). These are the bits that make me queasy—and I love exploring them!

Why not explore the ugly parts of Remus? You say you want interesting, well-rounded characters with chronic illness/disabilities/neurodivergence? Then let them be interesting. Make them complicated and embrace the icky parts of them. If you want, explore how society has created a cold, sad, wet noodle Remus and then GIVE HIM A PATH TO GROWTH. Like… if you don’t like these parts, give him scenarios so he can grow and become a better person.

Anyway, stop fucking throwing around words like “ableism” when you hear something you don’t like about a character. You don’t know the real person behind their username. Most of us here have some sort of disability/neurodivergence/chronic illness, etc, so stop fucking assuming we’re Chad Abled-Bodied or Karen Neurotypical, ffs.

It’s fucking insulting and infantilizing that we can’t discuss complexity in characters who are marginalized in their society. By excusing all of their less than cute actions, you’re essentially saying, “This is not a full human being with a full range of emotion and flaws—they are a perfect little baby who doesn’t deserve reproach, who can do whatever he wants!”

But that’s just me, I guess.

—

* (Also, side note, Moony the werewolf could have very well killed any one of them. Additionally, the theory that Moony couldn’t hurt them in Animagus form was ONLY A THEORY. It might not have worked at ALL and they risked their lives to test it.)

[orfisheus]

The Problem With the Eddsworld Fandom's Depictions of Red Leader/Future Tord, A Disabled Perspective

Disability is a contentious concept for most of society, with most either treating us with disgust, confusion, refusing to treat us as human, or to see our struggles as what they are. Ableism affects all people in many different ways, but as someone who focuses a lot of my energy in fandom spaces, the pervasiveness of ableism with how media and their fans interpet and react to disabled characters is a very personal situation for me. While many may argue that an ignorance to these topics in fiction has little bearing on real life, the prevalance of these tropes have echoed and led to feelings of othering for many disabled people, and oftentimes support the same notions that lead to the day-to-day ableism in our own personal lives.

In recent years, I have experienced this most often with the prevalance of negative disability tropes perpetrated by fanfiction surrounding the character of Tord, also known under the alias of Red Leader in some fanworks. It is a problem not just common in the Eddsworld fandom. A more recent, and much larger fandom in Mouthwashing also shares a common trend of repeated ableism in fan depictions and interpretarions of disabled characters. Most fan creators are unaware of these tropes and the harm that they cause, but as a disabled person, I am unable to ignore it.

For context on myself, you can call me Fish. Get it? Or"fish"eus? I like to think I'm funny. I am a mentally ill, disabled, and neurodivergent creative who has niche interests in representation in media and the intersection of intersectionality and fandom spaces. I experience chronic pain due to a multitude of conditions, all of which are invisible disabilities. I am NOT an amputee or have a facial difference, like the character I am analyzing. I can only speak based on my own research in my attempts to portray him positively, but I want to mainly focus on the ableist tropes I see and the real life effects they have. That is something I CAN focus on, because I've been dealing with it for years from conditions that came onset later in my life. I will be speaking from that perspective, but will be doing my best to try to educate on what I do know from my research to help authors, artists, and creatives create a better portrayal of him in fanworks.

The most common tropes I see with him are what I will call "The Disabled Villain", "The Innacurate Disability", and "The Ignored Disability". There are a few tropes in each, but for ease of organization (and the sake of your (and my) time), I will be talking about them together in these sections. There are also overlaps in many, but I will define the main issues with them.

The Disabled Villain

James Bond, Wonder Woman, The Witches. You name it. You have most likely seen this trope at work in cinema. A malicious evil-doer is revealed to have a "horrid" face symbolic of the true evil within their soul, while the beautiful, able-bodied hero is meant to stop them. It's a trope as old as time, one that goes back to even Plato. Tropes are tropes, people subvert them, so a few cases down the line may be excusable. But that has not been the case For many years, the most prevalent form of representation for disabled people was in these villains. Imagine if the only representation you had for yourself was narratives surrounding how the way you look or what your disability is and have it only be equated to evil people. It leads to a villainization of disabled people. People react to facial differences with disgust, because they are "shown" that it is "evil", or "ugly", or equal to being a horrible person. As stated by The Nora Project, "According to the book Disabilities: Insights from Across Fields and Around the World, disabled students are two to three times more likely to be bullied in comparison to their nondisabled classmates. The disabled villain trope contributes to this phenomenon in overt and subtle ways. For example, the trope implicitly encourages fear of disability and difference, while validating, and even elevating, those who fight against the evil, Disabled Villain. Bullying based on fear and disdain is almost a natural consequence of the trope when viewed in this light". Another big issue is that disabled characters have not been given space to exist outside of villainy. There are not many complex narratives surrounding them. This leads to our disabilities being downplayed, us being dehumanised, and we are seen more like props in real life, or simply tools to achieve a message in a narrative.

Tord's disability is never explicitly shown in the show. It is something more prevalent in Fanon, specifically in fanworks that focus on the "Future" era of the show's timeline, where the narrative and outside discussions on the show implies a high tech society, potentially dystopian, potentially a consequence of his actions. These ideas have taken a life of their own in the fandom, with many creators fully expressing these ideas. The problem arises when Red Leader falls in line with this trope. In many works, he is the sole disabled character, a figure of pure evil, or given little nuance in the narrative. Artists illustrate his scars as bright red, crimson, or, in TBATF, green. For some reason. In this way, they attempt to highlight the villainy by equating him with common symbols of evil: facial differences and disabilities. Unfortunately, these are not just symbols. These are conditions and scars that real people have, which the fandom tends to ignore in favor of dramatization.

This was a trope I most commonly saw explored in fanfiction when I first joined in 2016/17. The show, unfortunately, subtly and accidentally perpetrated it by having the only character visibly and irreparably "damaged" by the giant robot fight be Tord, despite the fact that Tom, who had a whole missile directed at him and got buried under a house, was fine with at most a leg injury and a cut on his arm. Luckily, we have grown past the need for ableist tropes, and the faults of the show can be left in the past!

... Not.

Disability tropes have simply evolved in how the fandom treats Tord. Even if it is now done with more consciousness and sympathy towards his character, ignorance still prevails. Let's talk about common pitfalls people fall into when writing him.

The Inaccurate Disability

In fanon perception, Red Leader is an amputee with a high tech prosthesis and a facial difference resulting from burn scars. Like many disabled characters, he suffers from a collective fandom lack of research. But never fret! That is what I have subjected myself to for the past four years, so your friendly neighborhood disabled Fish can tell you how to right your fandom wrongs! Just kidding! Take this as a pointer, and do your own research.

As is common with fictional prosthetics, his arm prosthetic is treated as a perfect fix for his amputation. It acts just like, if not better than an actual arm. The issue with this is that is isn't realistic. Yes, I know, I'm criticising Eddsworld fanfiction for not being realistic. STAY WITH ME HERE. Once again, if it was one instance, or a few, that explored prosthetics being incredibly functional in science-fiction, then it could be a cool concept. But when every sci-fi work has it, then that is no longer a concept. That is a misconception. And I have interacted with people who believed that prosthetics were 100% functional! The thing is, like all disability aids, it does not suddenly make us able-bodied. For example, I have ear defenders that I wear when I experience pain within my ears. But that does not mean my hearing will now become normal, and I will no longer experience pain from the sound I'm hearing. What WILL happen is that I will straight up not hear you. Like, literally. Can you repeat that? I had my ear defenders on. Oh, you're saying that my ear defenders aren't prosthetics and are not a fair comparison? Well, that's fair, but take this as an illustration of a disability aid and how they differ from able-bodied experiences. Also, many prosthetic users do many things without their prostheses, and some even prefer NOT to wear them. Blogs that explicitly cover disabled representation, such as @/cripplecharacters, have posts that cover WHY many amputees are not fans of this trope. The problem comes with that it erases disability, and yet also treats us like we are given a space at the table of representation. It's just another way that authors avoid actually doing research.

Other things that people tend to ignore are how burn scars, or any scars, would not only appear on a character, but also affect them. I have seen, aside from skin tones that looked like they were picked out of a crayon box instead of what would appear on a person, teeth exposed, wounds that look as if they are fresh from the explosion YEARS after they occurred, and what I like to call "paper shredder" scars. Because instead of them looking like burn or shrapnel scars, it appears as if his skin was put through a shredder. Once again, another consequence of the show's at most-30 second scene with questionable decisions that made massive ripples in the fandom. With the injuries Tord received, it is most likely that he would have two kinds of injuries: a burn on 18% of his body (minimum, based on rule of 9s), and/or shrapnel scars from debris. While shrapnel scars would manifest as darker scars, the burn scar would likely be a hypertrophic scar, as "70% of patients develop hypertrophic scars following burns" (Finnerty et. al). The scars, when healed, are warm toned on the boundaries of their areas and cool in between. When on a pale skintone, they are not too dissimilar, and would therefore not have such a drastic color difference as seen on skin. They would also not go down to the bone or skin, as that would be a completely different kind of injury, and are also commonly done to make him look "scarier", which then aids the Disabled Villain trope. It also treats these scars and injuries more like a work of fiction, rather than something that many real people have experienced, adding to continuous misinterpretations of real life disabilities and facial differences.

For writers wanting to include consequences of burns, what would be more likely to be affected are his hearing, vision, and nerves on the right side of his face, as burn scars can go as deep as nerve endings. Also, burn scars, especially third degree burns, require treatments, such as burn-specific skincare. Scars, especially burn scars, can affect you and become disabling. For artists, the main thing I don't see artists do is draw him with damaged hair follicles. Burn scars damage the scalp and eyebrows, preventing hair growth. I am sorry, but he would not still have fluffy, luscious hair. Do not kill me. He just wouldn't. And if you are saying that he had it in the show, I can't hear you because my ear defenders are on, but I hope you heard me, as we've gone over that the show is inaccurate and we should do our own research.

Even well intentioned authors and artists ignore many aspects of the disabilities he would likely have!

Which brings us to the last trope...

The Ignored Disability

Many well meaning people intend to give him nuance by trying to avoid the Disabled Villain trope. Accidentally, however, they end up completely ignoring his disabilities instead.

Just like the high-tech prosthetic, the real disabling aspects of having a disability are at best rarely mentioned. I have seen, in some fanworks, that he goes straight from amputation to having a prosthetic. And that is where his disability ends. Because the prosthetic ends up being a fix-all situation. Authors refuse, or forget, to include aspects of amputation, such as the healing process, stump or phantom pain. Artists will cover up his scars with a helmet or a mask, another trope that undermines his disabilities and attempts to brush it under the rug. I understand that there is a discomfort for able-bodied authors in thoroughly exploring how a character feels about their disability. That is something I think we should. Avoid. If you're not familiar with the experience of being that minority, you do not need to add commentary on it. And if you do, and it just falls into more negative tropes, I will send a salmon cannon at you (/j). However, I do not agree with brushing every disabling aspect of his life under the rug.

People can assume it's not a problem, like it isn't something blatantly apparent. But, if you assume that disability and being disabled is not a "big thing", you end up where your medication is denied because your insurance refuses to see your common procedure as not a necessary medical intervention because you're "too young". And that is not fiction. That is what inspired me to write this essay, because the day that I got that news was the same day I sat down and told myself that I needed to share my perspective on the perception of disabled characters by honing in on one of my favorite characters and how the fandom treated him.

Disabled characters deserve to be included in media, disability and all, with care given to how their life would operate as a result and what they would experience with their specific disability. That's why many people recommend sensitivity readers who can give proper insight upon that disability and can advise people to properly portray it.

But if you cannot afford or access that resource, what can you do?

Fish's Non-Cohesive List of Ways I Tried to Write Tord as a Non-Amputee Without a Facial Difference

Do research!! The more you are to try to understand what you are writing about, the less you are to misinterpret or misrepresent it.

Look into resources that focus on portraying disabled characters, especially with those you wish to write about. Read blogs, research tropes that are common in disabled characters, and hell, read medical journals. They can provide great insight (<< nerd who likes reading medical journals)

Include more disabled characters. Make the other boys be disabled! Want to be canon compliant? Create OCs who have disabilities! I have a bunch! It's 2024! Be cringe and be free! The character's disability would go against the traditional narrative form of "usefulness"? I'm an animator who can't wear headphones and a theatre performer who can't physically handle the volume of a band. And yet, we find ways to persist, to exist. We will always find our way to live in the way we want to, in whatever way we can.

Look into disability activism. Learn the difference between the Medical Model and Social Model of disability. Know what an invisible disability is. Listen to us when we say that we don't want to be treated as special or an inspiration for simply living (inspiration porn). The more you are aware of what we struggle in real life, the more aware you will be to not repeat those mistakes in your fiction.

Write what you can. Highlight little talked about aspects of having a burn scar or being an amputee, such as the recovery, or treatment for the chronic pain, or how different he would be in battle due to decreased depth perception. As a disabled author, I have personally touched on the experience of gaining a disability later in life, and how he copes with it. Now, not all of y'all can do that. But that is a personal experience I do have, and it is something I have highlighted in my own work. So, while I couldn't tell you the ins and outs of having a burn scar or a prosthetic arm, I could describe the shock and frustration that comes with suddenly experiencing difficulties, or even being unable to do what you had done before.

I ask that, if you are willing to do better, or to start on the right foot, you take what I have written, reflect on it, and treat disabled characters, and in turn, disabled people, better from here on out.

Fiction is not reality, but the way we deal with it is reflective of who we are and what we believe. The boundary for our own personal being does not suddenly stop within fiction. When we interact and interpret it and create for it, it is integral that we remain conscious that bigotry runs rampant, albeit often as an unseen force, within fandom spaces, and do our best to counteract that.

I have doubts that the new eddisode will treat this topic with the same respect. I hope you can all go forward with what you have read in this WAY LONGER than I expected essay, and do what those grown British men cannot. Even if they erase it, retconn it, or do not treat it with respect, let's all go forward and do better!

As for always, you can discuss more in the tags or my inbox!

I hope you have a wonderful life,

Fish

[crippledpunks]

actually- my chronic & mental illness does define me- it's a very huge part of my life. it can't be ignored. it can't be placed on the back burner. it cannot be "powered through". it is there 24/7 whether or not i want it to be. i have to constantly explain to people why i do things is because of my schizophrenic and autistic neurotypes, or that im in severe pain from one of my various problems that cause pain

trying to mock certain disabled people who have to talk about and seek care for their disabilities on a daily basis is unnecessary and violent. it's oppressive. my disorders literally define me, my schizophrenia and autism dictate most of my behaviors. my body is constantly in pain, my guts are constantly affected by my IBS. i am constantly anxious from my PTSD and constantly dissociating from my DID.

if you personally feel as though your illnesses don't define you, that is great for you. i'm not saying chronically ill folks can't feel that way, but what i am saying is stop punching down on those of us who have a lot of their lived experience rooted in their disorders, diseases and neurotypes.

things go into remission or make progress with healing, but most chronic illnesses never fully go away and it's just bullshit to make chronically ill people feel like they can never complain about their issues. it's not an inconvenience to you, it's us expressing what we're going through. stop acting like us talking about our lived experience is an attack on your person. i'm sorry hearing that someone else is in pain sucks to hear but it sucks FAR more to BE IN PAIN

[socsurveystuff]

Big Radqueer Survey Results

This is going to be pretty long. I may in the future take sections from this (+ maybe elaborate) and make them their own posts. Disclaimer that any viewpoints discussed below are not necessarily my own and that I am trying to approach this from a place of pure curiosity and am not including my own moral stances. Thank you everyone for taking the survey. We’ll get started under the read more!

Alright, so immediately we’re working with a large radqueer majority audience, so keep that in mind! There is some diversity overall, but this did end up being a very pro-radqueer heavy population. Fairly normal age distribution compared to the rest of tumblr, I’d say, though I would take note of the majority 13-18 population and significant under 16 population.

Big piece of data here!! Interestingly enough, about 76% of responders identified as plural or part of a system. Based on written responses, it appears like a lot of people cite their plurality as a reason for having certain transIDs. I got a few responders who stated they were answering as multiple alters and therefore there answers may be contradictory. There seem to be a minority of endogenic systems, with most people either answering ‘traumagenic’ or that they’re unsure/nuanced about system origin.

—TransIDs: Racial, Age, Abled—

I believe the visual charts for these look a bit busy, so I will summarize the main points I got here:

Out of being transabled, transage, and transracial—being transage is the most common according to responders. Most transage folks identify as being younger, but age sliding/experiencing several ages depending seems to also be common. Compared to the other types of transIDs listed, more people seemed to identify as transage due to trauma (others seemed more related to atypical dysphoria + wanting the label for fun).

For transabled people, identifying with both physical and mental disabilities is most common. Besides that, mental is more common than physical. More people reported being transabled ‘for fun’ compared to the others (though again, atypical dysphoria was majority reported). From what I’ve seen, identifying with life-long disorders (developmental, intellectual, chronic, etc) is more common than identifying with temporary conditions.

The majority of transracial people reported being bodily white, though not by a wide margin. Based on general tumblr demographics, I’d say there’s not really compelling data there to say whether bodily white people are more likely to identify as transrace within radqueer spaces than others; though, as one might expect, it seems that bodily race/ethnicity can have an influence in the different nuances as to *why* someone might identify as a different race/ethnicity.

I don’t have anything in particular to add to this graph, I just wanted to include it here. It’s surprisingly pretty evenly split.

—TransIDs: Harmed/Harmful—

Responses to these were actually really fascinating and helpful. I could write a whole other post on it, honestly.

I’ll do my best to summarize here.

The majority of people who identify as transharmed/harmful fit both labels. You can see this in the chart. Besides that, transharmed seems more common than harmful.

Based on written responses, it is very clear to me that identification with these labels tends to stem from trauma. Though some also claimed they take them on for fun or for sexual reasons, many *many* people specifically talked about wishing their trauma was worse. Over and over again I saw sentences like, “I feel like my trauma wasn’t valid”, “I feel like it should’ve been more severe”, “people would believe me if I was more traumatized”, “I wish people would take my issues more seriously”.

This is a very common mindset among people struggling with trauma and/or mental illness. Many responders reported having these feelings about past experiences with grooming and childhood abuse. Feeling like something bad should’ve happened to you when you were younger is also often a sign of CSA or other traumatic memories that one might’ve blocked out; in other situations, it may also come from a lack of support for already existing issues.

In some cases, seemingly more commonly in those who identified with the transharmful label, people might seek out this transID to cope with or mitigate guilt from intrusive thoughts. It can be an outlet for anger, some reporting that they find a type of relief in fantasizing about hurting the people who hurt them, or hurting people in the same way they were once hurt. For many, transharmed/harmful was also related to plurality—specifically the existence of fictives/introjects and their own memories of their source material.

Though some expressed distaste for the way the general radqueer community seems to have conflated transharmful/harmed labels for kink and the want to seek out conabusive relationships, there were several people who said that they identified with these terms for specifically erotic reasons.

There was also a common theme of gratefulness for a space to express commonly taboo desire in a way that minimizes potential for harm. Especially for people who were once abused, being able to experience these things in a controlled environment was important; the desire to return to abusers themselves is considered common, so the want to recreate some aspects staying away from actual abusive situations was noted as incredibly helpful.

As some did point out in the survey, the similarities between conabuse and (sexual or nonsexual) BDSM are very apparent. Consent was consistently reiterated as necessary to many of these people, though a few also expressed concern with the way conabusive relationships have played out specifically in online spaces.

The majority of responders were positive or nuanced towards the concept of conabusive relationships. The question of minors engaging in such relationships seemed like it really depended on the individual situation for many. Maturity especially was a big factor.

—Contact Stances for ‘Big Three’ + Incest—

(TW for… all the stuff that’s involved in discussing that)

Just to preface, the reason I including the ‘regardless of consent’ answer was mostly for the section on beastiality, necrophilia and pedophilia—online, I have rarely seen the opinion that engaging sexually with beings that do not understand or relate to our societal concepts of sex (or are… corpses) cannot be harmed by it. I am also aware that some people simply don’t care about committing harm. I included it here for consistency.

Consensual incest was definitely one of the more accepted ‘taboo’ acts in this survey, with a majority of ~59%. Although, it’s important to note that for many people the pre-existing relationship of those involved would make a difference in their opinion.

Necrophilia was overall the most supported (adding up both the red and blue sections of the pie chart there). In written responses, I also saw people claiming that conditions such as relationship to the deceased and likelihood of contracting illnesses would also be relevant to their opinions. Interestingly, there seemed to be a higher percentage of anti-contact here than for incest; some who chose such an option mostly highlighted the issue of dead bodies not being able to revoke consent during the act, and therefore not having the ability to be fully consenting at all.

Zoophilia was not supported by the majority (71%). ~25% of responders believed consensual contact with animals was possible; out of those who did, the belief that animals can consent if they initiate contact was most popular (followed by perceived enjoyment and intelligence level). Interestingly, I got several responses from people who labelled themselves as either pro or anti contact zoophilia who claimed that they believed sexual contact with animals *could* hypothetically be done ethically, but that the vast majority of people do not have the knowledge of animal behavior and biology to do so.

Pedophilia/Hebephilia was considerably more divisive. Comparing the pie chart here with the data below, I believe it would be accurate to say that we have a majority (~59%) of people who believe youth cannot consent to adult advances, and others whose opinions seem to be more situationally-defined. Keep in mind that not everyone who answered the first part answered the second.

According to written responses, those that were pro or nuanced on the issue tended to prioritize maturity level and sexual education for minors. Some people claimed that kids of almost any age should be able to express consent to (a few specified: non-penetrative) sex in a society that better educated children on their bodies and relationships. There seemed to be a group of people who agreed that, philosophically, children have the capacity to say yes or no to sex in the same way they would for anything else—most of these people, though, agreed that this would not work in our society due to the prevalence of CSA and lack of protections for children.

I found it interesting that more people identified as anti-contact for zoophilia than pedo/hebephilia. I saw two or three responses that claimed it was mostly an empathy issue (more for animals, less for children); but a more common outlook seemed to be that—while some minors have the ability to communicate what they want and understand the culture we have around sex—animals cannot meaningfully consent within the framework of our society.

As we can see here, the majority (62%) of people would feel comfortable interacting with people who had one or more of the ‘big three’ paraphilias, but have not engaged in them. For many people (~35%) there is the additional caveat of being anti-contact.

For those who *have* engaged in any of those paraphilias, comfortability interacting falls significantly. There’s still a majority of people willing to interact (adding the yellow and red sections together), but most of the people in that category (~41%) would only be comfortable if they considered the other persons’ contact consensual. ~43% of people would not feel comfortable interacting at all.

I don’t have a ton to say on this chart, but I thought I’d include it here.

—CENSORSHIP—

I have less to say in this section, but I find it notable that (admittedly, by a small margin) people found the ethics of AI child pornography featuring real children’s faces (but not bodies) more disagreeable than fully real images of children. Also notably, ~27% of responders believe children can consent to keeping sexually explicit images/videos of themselves available. Based on written responses, I believe some or most of this percentage comes from people wanting it to be acceptable for youth to keep/potentially distribute nudes of themselves without fear of legal repercussion.

Here we have a majorities for not banning sexually explicit writing or animation portraying children. As I expected, writing has a little more support than visual depiction.

—CONCLUSION, NOTES—

Again, I want to thank everyone who participated. The survey will continue to stay open if you haven’t taken it and want to add your own perspective.

I still have some questions, particularly regarding the diversity in definitions of consent I saw, as well as some of the more… ‘cosmetic’ (?) based TransIDs that I’d be interested in understanding the thought behind.

I feel like I have a much better understanding of some of the psychology behind a lot of this, at least. I won’t go into any ultimatums here, because I believe they might be influenced by my own ethics, but I’ll just say that much of this community is very understandable if you take an empathetic approach. It’s interesting that an online culture so focused on being able to identify as ‘other’ in a very individualistic way seems to have also brought many people into community that they were seeking. There’s quite an emphasis on the shared solidarity between different “deviancies” (as societally-defined), and for better or for worse this has led to the public broadcast of the many diversities of opinion these people have on some of the most taboo subjects one can think of.