#generalized hypermobility
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for @bsd-disability-week-2024
prompts: hypermobility
dazai with hEDS is something so important to me actually because before i got actual braces for my hands i literally looked like him
#hypermobility is so much more than just having bendy joints nobody ever talks about the chronic pain that comes along with it#its already past midnight here and i wanted to make it for the deadline#so ignore the fact that i colored one of his thumbs blue and the general messiness#bsd#bsd fanart#my art#ill redraw it one day
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🌀 Intro post 🌀
🪲Hello! You can call me antlers, Mischa, jonah, Toshek, or Moth.🪲
My pronouns are He/They 🌀 I’m a transmasc demiboy 🌀
I have adhd, gad, dysthymia, and have recently been diagnosed with hsd !
👁️Interests👁️
The Magnus archives, Creepypastas, NBC Hannibal, activism, Zelda, Supernatural, alternative stuff, poetry, The penumbra podcast, not quite dead, Marble Hornets, Detroit become human, the mechanisms, Hozier, The Amazing Devil (also alt folk in general),The Witcher, Sherlock and co, Stardew Valley, and much more :3 I’m a big research nerd 0-0
🪲interact if you:
Are a therian,would be considered a “weird queer”,love crafts,love internet horror and spooky stuff,use “creepy” xenogenders,love talking about NBC Hannibal,love yaelokre,like analog horror and ARGs,love storytelling/folklore,are a cryptid,are pagan,are dealing with trauma or mental illness,and in general if you are a neurodivergent queer <3
🪰DNI:
Maps/pedos,pro Israel,TERFs,sex blogs,racists,ableist,queerphobic,or generally ppl who are assholes for the wrong reasons :3
#intro post#introduction#tma memes#nbc hannibal#ao3#fanfic#the magnus archives#ao3 writer#analog#analog horror#supernatural#cryptid#queer as in i love you#paganism#queer joy#queer artist#transmasc#trans gerry keay#protect trans youth#marble hornets#transgender#free palestine#queer#internet horror#hypermobility#generalized anxiety disorder#nuerodivergent#art#slenderverse#creepypasta proxy
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So I have an exam on Saturday, and my mother usually goes to the supermarket to buy stuff for the week on Fridays, I have to study and I genuinely can't focus if I interrupt my routine aka I go out and then come back home, and my siblings bday (yes, all 3 of them share a bday, even though only 2 of them are twins, my brother is 15 years older than them) is close so I wanted to go look up some stuff for my brother (I'm making some keychains for my sisters already), so I was thinking of picking up my sisters at 5pm which is when they finish school, dropping them at home and leaving for the shopping centre and while I was there I might as well get SxS generations, however my mother has decided I might as well accompany her to which I pointed out since my elbow is fucked I can't really help her with the bags, apparently she just wants me to come as company for the car ride since it makes her a bit anxious and I can stay in the car until the game store opens studying.
You might be wondering where the issue here is, well my mother has some sort of issue with me spending my own money, which sucks because when my brother was my age the still payed for all his stuff hobbies included, meanwhile I'm over here having to buy even my own bday presents, and I don't need her on my ass over me buying a 49€ videogame that I'm buying with my grandparents Xmas money, hopefully she'll still be buying at the supermarket while I'm at the store and I can hide the game in my big jacket pocket, and I just want to get my brother a cool Pokémon figurine or maybe a cool case for his switch since he's always borrowing mine when he has to travel, I'm also making him a keychain but since he's got me really cool Xmas presents and a giant Kirby plush for my bday (granted he gave it to me almost a whole month later but a gift is a gift) I wanted to reciprocate.
I just wanted to complain.
On the other hand there's some cool news, I found some tutorials on how to tape my elbow to avoid strain from hyperextension which is helping with the pain I had, and thanks to that I also found a tutorial on how to wrap hypermobile wrists and thumbs so that you reduce the strain when you draw/write/do anything that requires fine motor skills, and it's been a huge relief for me since my hand usually starts cramping half an hour into drawing or when I've been holding a book or a handheld console/VG controller for a while.
#joint hypermobility#elbow pain#hypermobility#sonic x shadow generations#small artist#artist rant#rant
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Developments in hereditary factors for our medical shit:
Our bio mother, adoptive mother (bio grandmother), and older sister (bio aunt). All have hypermobility. And appearently dislocate the ball joints of their hips regularly
Like. They dislocate shit enough to bond over the pain of the experience and how often it happens. And the struggles of putting the joint back into place.
Yall
#brb screaming crying throwing up#2-3 generations of hypermobility with herditary shit and i'm JUST NOW FINDING OUT#YALL I'M GONNA SCREAM#chronic illness#disability#hypermobility#physical disability#chronic pain
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i officially have a diagnosis!!!! :DDDD
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Pretty sure I subluxed my hip in my sleep last night so we’re having a “fun” (not really) time out here
#disability#disabled#actually disabled#chronic illness#chronic pain#physical disability#hypermobility#generalized hypermobility#hip subluxation#subluxation#hypermobile#joint hypermobility#fuck this shit
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sent email about helf updates to work HR, hopefully shit goes alright
#it was kind of a heads up on general shit like they KNOW i have anxiety & hypermobility#but now this sinus thingy is being investigated properly and im waiting on a specialist appointment#and its caused me to take a few days off for the brainbonk and migraine like nonsense already ...#its making the two other things feel worse so everything is bothering me rn#im not exactly like ... the worlds speediest person ever but ive got the brainfuzz really bad atm#so yknow hey im not just skiving off my sinuses want me dead and its making me dumb lol#rory's ramblings
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Hypermobile arms mood rn: one of my shoulders is dropping out of its socket more than the other and I do not like how unequal my body feels rn !!!!
It's probably from the sublocation that happened last summer now that I think abt it
Here's to me sublocating my left arm this pride to that way my body is equally droopy /silly
#hypermobile spectrum disorder#hypermobile joints#double jointed#hypermobility#mewo rambles :3#or at least I think it's HSD#idk my doctor just said smth abt generalized hypermobility or smth I forgor if she diagnosed me w/ anything tbh#but it's the closest label I have since I'm more bendy than average but not bendy enough for it to be disabling
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Question mainly for autistics but open to all:
#autistic#actually autistic#autism#I've also got some hypermobility and circulation stuff going on but i think this one is primarily the autism#I've recently discovered that seven blankets year round may not just be abnormal but actually unhinged to most ppl#i do live in a desert that gets over 100 in the summer but i just put on a fan because i need the weight to sleep#i do also add a hot water bottle in the winter because i don't really generate my own heat#for those curious it goes:#soft blanket#low heat retention medium weight blanket#flannel blanket#heavy quilt#first comforter#second comforter#weighted blanket#polls
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only a few hours into that pencil holding poll and I have learned some fascinating things such as
Apparently everyone was taught something different as to what the correct method is, which is crazy
Index grip seems show up with us “double-jointed”/hypermobile folk a bit and I’m wondering why that is
Holding a pencil totally wrong was not nearly as much of a shared experience as I thought it’d be fnrNFKDNFJG. At least so far. Wym the majority can hold a pencil just fine. Unbelievably unfair
#This is interesting though I wonder how these trends happen#especially in ‘right’ ways to hold a pencil#I’d assume a lot of it is just through generations but also I distinctly remember my teachers in school also trying to fix my grip#and all of them did it the same way (the dynamic tripod one). And that’s how my mom tried to teach me too#who established that as the Proper way. And then how did we end up with 4 proper ways.#And why does hypermobility choose the index finger above the rest. Many questions#clamtalk
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"I swear, only people with fibro or hEDS understand how hard it is to get into bed and get your 600 pillows just right" - my mom
Honestly, yeah
#she was kinda just meaning disability generalized#but shes fibro and possibly heds#disability#disabled#chronic pain#chronic illness#fibromyalgia#hypermobility#hypermobile eds#fibro
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I am so happy about my ghs diagnosis, but now it's fully solidified and I'm nervous. I have a recommendation for a sports medicine physical therapist who can hopefully do more than my regular PT, and my doctor can get me to people who can get me painkillers if that doesn't work, but I'm still processing the fact that I am hypermobile, despite knowing I am for like 4 months. having to grieve your body and ability is hard. I can't run as fast or long as my friends can, I have to ask for accommodations when I apply for jobs now. I have to use a cane if I don't want to be in more pain for the next few days, I can't snowboard for hours on end with my family anymore, I can't write more than a page without finger aches, washing dishes and cleaning my room is hard, I have to wear a knee brace constantly, and should be wearing ankle braces. I should be at the prime of my ability and I've realized I missed it. it's hard to not feel like your life is over when you realize that your disability ACTUALLY disables you.
#hypermobile joint syndrome#generalized joint hypermobility#hypermobile problems#hypermobile spectrum disorder#hypermobility#joint hypermobility#chronic pain
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haha so i was on school camp wednesday-friday afternoon (it is currently friday evening but ik some people here are still tursday so ye) and last night i was talking to one of my teachers and a couple of my friends and my joints are funky and i showed the teacher and she meantioned that i probably had joint hyperflexability and then i came to the realisation that im pretty sure joint hypermobility runs in my family cos i think my mum and nanna are the same lmao
so idk of anyone knows stuff about that message/reblog and we could talk?
#pair that with the generally fucked up joints and that makes sense lmao#shut it salem#joint hypermobility
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I just want to not be in pain.
I just want have parts of my body not be numb.
I just want to be able to go up a flight of stairs without feeling like I’m dying.
I just want to be able to go on a walk and actually enjoy it rather than have to think about how close the next bench is.
I just want to not have so many gi issues.
I just want to not be sick all the time.
I just want to be able to go through a day and not be absolutely exhausted by the end of it.
I just want to be able to live and not have to worry about whether I’ll be able to do what I can do today tomorrow.
I just want to have a body that works right.
#disabled#disability#actually disabled#chronic illness#physical disability#chronic pain#hypermobility#pots#pots syndrome#knee braces#postural orthostatic tachycardia syndrome#joint hypermobility#generalized hypermobility#undiagnosed something
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on the note of heliora - it has been an absolute dream to write a character with hypermobility! finally, all my weird joints have their place in fic i'm writing lmao
#her hypermobility and mine are a little different#but the broad strokes - the hand pain and fatigue and all-over pain in general - are the same#oc: heliora von valancius#every day i try and do her justice!!
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circus skills are legit rewiring my brain
in january I started classes twice a week at the local circus school and now I can:
get to standing position on a trapeze higher than my head completely unaided
invert on straps, balance upside down, and move through different positions
do a handstand!!
like if you went back in time and showed teenage me adult me in one of these classes they'd be like "doing that with your body is a possibility?" and it'd be both about the transition and the acrobatics lmao
#the circus school is so good!!#I had Such Bad experiences with exercise in school#and the hypermobility arthritis combo joined with general disability stuff makes exercise ughghgh#but they're so good at making it fun and building on skills and setting up alternatives for people at different levels#like yes some people are doing incredibly fancy things at a way more advanced level#but there's only ever encouragement and adaptations for people who are struggling#my proprioception is still not great but I can feel it improving every session#like working on coordination helps you be more coordinated#what a concept#personal#own post
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