#funeral is next weekend

[foxgloveinspace]

…

[deepwoundsandfadedscars]

Me last night: hmm maybe I want another tattoo, I'm going to start talking to this artist *sends message*

My cousins wife: *sends an incredibly hostile message about how I've been ignoring her and she's gone above and beyond for me trying to be supportive of me, when in reality she hasn't texted me first since November and when I text her, she's very short with me and makes no effort to continue a conversation with me*

"Yeah hi, artist? Make that three tattoos"

[chronicillnesscaneffoffplease]

I’ve had a few “whoops this thing I stopped doing is actually helping me” moments recently.

I’ve felt wretched and like I was coming down with the flu recently. It felt more than my normal PEM symptoms, and I was really concerned. And then I realise it’s spring, a bunch of stuff is blooming, and it’s been sooooo windy. And I stopped taking antihistamines and my nasonex sometime last year (antihistamines bc we thought it might have been causing some side effects, nasonex bc I hate the sensation of nasal sprays and need motivation to use it). Pesky hayfever. Needless to say I’m feeling much better having restarted my regimen. I felt a bit silly that I could have avoided feeing miserable though.

I went out for an appointment yesterday in my “knock about the house” shoes that are podiatrist loathed (nil ankle support, nil arch support, worn down), rather than my lace up shoes with my orthotics. After that appointment, I thought I’d check out a new store that’s opened at the shops nearby. I ended up doing a LOT of walking at the shops and today my ankles are sooooo painful and my hips been acting up. I guess it’s good to know that my shoes and orthotics are doing good things in terms of symptom prevention (as well as better longer-term outcomes) but damn do I feel ouchie.

I’m framing it as “yay negative data also tells us important things” because I gotta remember it’s not my fault when these things happen but it is good to try learn from them. And frankly, when there’s so many things going on with your health and condition management as a disabled person, it’s okay when things fall through the cracks. It’s gonna happen. Especially when there’s lots of non-disability stuff going on too. It’s okay.

[the-grey-hunt]

(---> has been struck down for the second time) literally just emailed my doctor with the subject line "covid :("

[wilds-ponytail]

fuck me sideways i am so screwed??

[youcanthandelthetruth]

Texas 💖

[naomiknight-17]

Mom's coworker's funeral is this Saturday

There's no funeral for my uncle, but we're invited to his internment. Which is the day after my birthday. Fml

[chamerionwrites]

Note To All Managers

"We need you to come in and work on the weekend" - fine, understandable if it's an unusual occurrence

"We need you to come in this weekend but you can have an extra day off next week to make up for it [two days later in the most put-upon voice as if *I* am the one being difficult]...oh...I guess we did say that...but we would really appreciate it if you kept your usual schedule" - NOT FINE OR COOL

[jacqcrisis]

Lmao looks like my deadbeat sperm donor finally got a job that doesn't pay him under the table. Took 31 years for him to start paying child support, but better late than never I guess.

[whippetcrimes]

Misty is driving me absolutely crazy trying (and too often succeeding) in eating chicken poop. It was beautiful yesterday. I needed to not think about current life events. I spent basically all day outside doing garden prep. When Misty was done, let the chickens free range

Now, today, very pretty again. A certain puppy is going to be banished to the indoors if she keeps hunting for poops. No amount of leave its will save me. They've never worked on chicken poops. On the brightside, she does recall every time I tell her to come... but goes right back to the scene of the crime

Literally going back to the chickens even though I just said no and recalled her

[austerulous]

I thought I was starting to shake off the rust, but work has absolutely pummelled me and I only realised today that the nursery is closed for Easter, so no childcare tomorrow.

[lostinfic]

All I want to do is write about Cesare and Lucrezia, but I have grownup chores to do 😫

[shekeepsmeworms]

I wish baymax from that Disney movie was real like this big cuddly robot could just scan you and tell you what’s wrong and why you feel bad instead of you just laying in bed feeling crappy and wondering if it’s a cold, stress, or just too long without eating vegetables. This is to say that I’m tired and taking a nap and want a baymax

[farsailing]

our walks have also been great for getting to know the local wetland(s) 🥰

[hagstones-and-howling-hills]

Really appreciatibg the aircon on this train rn

[enchantedephiphany]

Gramma might not make it thru the night

I had hope she would recover. Other people are at the hospital. I was going to go with mom. 2 hours away. I could drive but I barely have money for gasoline..... I get stressed out driving. Mom was talking about goin tomorrow now she's like if she doesn't know we're there what's the point. She doesn't want to remember her like that.

But I feel I should be there. Others are there. She's grandma. She was always there for me.

Makes me mad mom just being like it's no big deal.