#disability issues
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any other people out there with something that is technically a disability but because you feel it doesn't cause you enough suffering or inability you feel weird about using "disabled" to describe yourself because you feel like you don't really count and are intruding in on disabled people who suffer more then you and/or are noticably disabled?
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US DISABILITY RIGHTS LAW EXPANSION
The US federal government has drafted a proposal to require health care providers to make real accommodations for disabled patients, "to ensure that MDE used by public entities to offer services, programs, and activities at places such as hospitals and other health care facilities is accessible to individuals with disabilities. MDE includes things like medical examination tables, weight scales, dental chairs, and radiological diagnostic equipment. Without accessible MDE, individuals with disabilities may not be afforded an equal opportunity to receive medical care, including routine examinations, which could have serious implications for their health. A lack of accessible MDE may also undermine the quality of care received by individuals with disabilities, “leading to delayed and incomplete care, missed diagnoses, exacerbation of the original disability, and increases in the likelihood of the development of secondary conditions.”
Comments are open through February 12, 2024. https://www.federalregister.gov/documents/2024/01/12/2024-00553/nondiscrimination-on-the-basis-of-disability-accessibility-of-medical-diagnostic-equipment-of-state
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GROWING UP A FAT GIRL IN THE Y2K ERA
I know peoples attention spans suck so don't worry im adding sections. So you can scroll through and just read whatever intrigues you if you can't commit to the whole thing!!
this post will talk about my experiences growing up as a fat girl and just a little bit about how it effected my relationship to my body as I grew up as well as the struggles of fatness intersecting with racism and ableism as well as very briefly touching on the wojack giving fat girl backshots meme going around!
SECTION 1 THE BEGINNING OF MY RELATIONSHIP WITH MY BODY AND HOW FAT PHOBIA EFFECTED IT.
My first experience with fat phobia I remember consciously is around the ages of 6 or 7. My mother and father had recently divorced and I was growing into myself more and more everyday getting stronger, smarter, limbs getting longer, body getting bigger. I was going through growth spurts. I would chub up a little then id grow a few inches, chub, grow, chub grow. Seems like a pretty normal concept or idea to manage right? Well not for the average y2k adult. Everyone would always make comments to my mother or out of fear of being judged for being a bad parent she would bring it up herself. I remember my mothers response to the comments about my body. "she is stress eating because of the divorce!" was always her reply... and giiiiirl no the fuck I wasn't. I was not really that effected by my mom and dads divorce till later on. At that age as long as I was surrounded by most of my family and I had YouTube much else didn't matter to me and kind of went over my head if i'm being real with you. Hey I'm a kid though who knows maybe I was stress eating and just had no idea what to call it at the time and then don't remember but honestly, if my memory is serving me correctly I used to be so confused when she said that! If I was eating a little more it was probably because I was GROWING INTO MY BODY MAYBE?? That was my first run in which followed up with many more, like when my dad made me step on a scale in the living room of his new home strangers -that later became family- walking around, free to stare at whatever the number said. "If you don't lose weight you are coming to live with me." Still echoes through my head, I was about 7. It doesn't stop there I was being called a cow at school, or by my older brothers at home during petty fights we'd have. Some how none of the insults really stuck like that (besides the situation with my dad). They definitely hit me, but if I denied that they did then that counts as dodging them right? Growing up I always thought I wasn't that heavily effected by the raging and rampant fat phobia permeating through the y2k, but in reality it caused me to start neglecting my body all together. Up until the summer between 7th and 8th grade I never looked at myself in the mirror. Maybe a quick glance but I would never fixate on my appearance. Now hyper fixating on your appearance can be unhealthy but so is pretending you don't have one at all which was the type of timing I was on. Fat phobia among other factors was the leading cause of what became a history of neglecting myself.
SECTION 2 DEVELOPING AN EATING DISORDER AS A FAT PERSON
scroll to the next section if you want to avoid triggers!
The effect fat phobia had on me didn't really start to show on the surface until 7th-8th grade. My girlfriend had an eating disorder and she was living with me at the time because her family was homeless (we were closeted as best friends). She didn't encourage my eating disorder but it was kind of a monkey see monkey do kind of thing, she made me start to consider it. At that age range I was looking for different ways to destroy myself as well as connect with my peers and some how those too things strongly intersected as the glamorization of self harm and mental illness was at an all time high. I'm not sure why twelve to thirteen yearly anon wanted to destroy themselves so bad but I think if anything it stemmed from a need for control over my surroundings. At this age my home life wasn't the best. I forgot how, but I think maybe through just looking up depressing quotes in general I found the infamous Ana and Mia. Oh and trust me Cassie Ainsworth from skins did not help AT ALL. CUE THE INFAMOUS GIF:
TW CASSIE AINSWSORTH GIF:
even LOOKING FOR THIS GIF BEGAN TO STIR SOMETHING INSIDE ME OH MY GOD??
The worst part about being a fat girl with an eating disorder is how proud of me everyone was. "Anon you're getting so slim!" "Anon look at you slimming out see I knew it was just baby fat!". My friends knew of my ed so they would never compliment me for it or really talk about my body in general, probably half because of my ed but also half because I was still fat and not considered desirable or something to be jealous of regardless of if I lost a few pounds. But my family complimented my figure a lot as I slimmed and I got less fat jokes and the doctor was happy and people did treat me a little different. JUST a little cuz I was still fat but a noticeable enough change in the way people treated me for me to want to keep going and indulge myself deeper in my unhealthy habits.
But yeah long story short I developed an ed and I thought I was so fat and gross and disgusting and dude I look back at myself and why was my body LICHRALLAY SO T??? I honestly wasn't even morbidly obese or anything (which I am now BECAUSE of my eating disorder but fuck it we ball and also I ENJOY BEING FAT I knowww plot twist right?) also you minors in the ed community YES YOU take NOTE at this next part: I was literally just growing into my body... but then I fucked up my metabolism really bad and completely skewed my relationship with health, dieting, and workout culture so i'm either doing too much or not enough. So not only did my metabolism get utterly destroyed but having to learn how to take care of myself from scratch ended up destroying all the progress made and here I am literally 60 pounds heavier than I was back then and i've dropped weight since i've developed a healthier relationship with my body so if we are keeping it a buck until about a year ago I had accumulated about 100 pounds of weight since my pre ed days because of the effects the eating disorder had on me ! (oh and I have heart problems now not from being fat but from attempting to become skinny the wrong way! if you fast and binge or fast and do cardio and feel your heart beating like that... if you know you know...yeah you're fucking up your heart and need to stop like right now girly!) SO yeah I am a recovering anorexic with some bulimic symptoms. Though even after developing my eating disorder my issues with body image didn't really really affect me until later on.
SECTION 3 THE SOCIALIZATION OF FATNESS/THE INTERSECTIONAL STRUGGLE BETWEEN MY BLACKNESS AND FATNESS/ BECOMING THE DUFF/ WOJACK MEME.
Along side subconsciously neglecting myself I would also publicly portray myself as very tough skinned and overly confident all throughout middle and high school as a defense mechanism when in reality I was pretty indifferent toward myself and extremely sensitive. I think that my tough exterior wasn't only due to me being fat but also being a black woman although I am biracial/light skinned in complexion I feel like I was still hyper masculinized due to my blackness especially growing up in an area where I was closer in proximity to blackness then a large majority of my counterparts. I feel like a lot of my aggression and flamboyancy came from constantly being in a state of self defense and also subconsciously feeling like I had to play the role that was written for me or else I wouldn't be loved or appreciated or wanted. By the role that was written for me i'm talking about Precious, Rasputia, Mercedes Jones, Ivy Wentz, the stereotype of being the fat black women, and for my non black fat baddies for you this would be The DUFF role. This is when you're known as the flamboyant friend with the attitude that everyones scared to make the butt of the joke because she is NOT afraid to snap you in two. The stereotype isn't entirely wrong i'm sure a lot of people fall into it for the same reason as me but then it becomes our main character trait, and that mixed into a juicy cocktail of dehumanization of fat bodies turns you into the friends the skinny girls bring to the club to scare off ugly dudes as if you're a bodyguard and are immune to sexual or physical assault because you're fat!
So I grew up neglecting my body because of fat phobia developed a life altering eating disorder because of how romanticized they were due to fat phobia, and spent my whole life being guys secret crush, or the "annoying dramatic fat girl" because of fat phobia but still even then it didn't seem it had the real detrimental effect on my body image everyone said it would until I was 20. When I was 20 I moved back to my hometown for a little bit where the beauty standard is very much "ambiguous white skinny girl" and I thought that maybe I would get play because hey we are like adults who are deprogramming all that bullshit anyway right? WELLL I did get play, crazy play of course! Just in secret, and I've had guys have secret crushes on me etc but never to the extent I began to face it in my 20's where they would so obviously be horny over me all the time while simultaneously being mad at me for making them horny because I'm fat and it confuses and embarrasses them ( men are genuinely socialized to be suchhhh fucking psychopaths. -if you're a guy and you're reading this don't say that not all men bullshit yes we know not you i'm not gonna specify every time to preserve your ego goddamn). I have some sad and weird stories about that, that involves men thinking they could be more aggressive with me or literally impose violence on me or be extremely weird and creepy because they're embarrassed they're attracted to a fat girl and on top of that a fat black girl that they hyper-masculinized and degraded in their head due to societal pressure/influence... but imma save that for another day or maybe never because I see nothing coming out of me posting that on here but relived trauma. Also the type of man I just described are the same ones reposting this new viral wojack meme by the way:
thats all im saying about that meme, the guys reposting it like fat bitches and are scared that they like us and can't think for themselves thats literally all I wanted to input into the conversation regarding THAT....
also I use the word bitch in an endearing aave way not in a deragotry way so please don't hit me with that "don't call women bitches" thing I don't be doing it a lot but im also not gonna stop using aave and also i'm LICHRALLY AFAB sooooo shut up...
ANYWAYS...The violence I faced at this point in my life really triggered something in me it made me realize that because of the stereotypes held up against me I will never be treated or respected or perceived authentically by the average Joe. The only person that would see me is those who have taken extensive time to deprogram parts of their brain that created these deep routed bias etc. ( also if you're wondering why these biases were created it all leads back to capitalism but THATS for another post..) After facing literal violence cause of my body it definitely caused a blow at my self esteem, but even then I shined on and persevered continuing to be my sexy self.
SECTION 4 FAT PHOBIA AND ABLEISM INTERTWINED.
It wasn't until I randomly got into an accident and became temporarily handicapped while also in the most toxic relationship of my life did I really start to fucking hate myself. For multiple months I couldn't walk, and not only was I physically handicapped but the trauma I was experiencing at that time of my life had left me mentally handicapped as well I simply didn't want to be alive and exist in this body or any body I just didn't want to exist. I had a foot I could hop on but I couldn't carry all my weight on that foot because of my previous issues with my health, (I had already been struggling with a chronic illness that effected my muscles) and i didn't have the strength in my arms for the crutches so I succumbed to my injuries, resulting in weight gain, eventually hip and back issues etc. Then, when my leg healed, the access weight made me feel like I couldn't walk without pain. I was having issues with my health unrelated to my weight since 2020 but I was homeless up until last year and it was also covid so I had no way to really see a doctor and also I was like 18-19 and had no fucking idea how any of that worked and am still figuring out how it works to this DAY. I actually just got my insurance card for the first time this year. YIPPE YIPPE EVERYBODY CLAP. These issues with my health effected my muscles and my bodies ability to absorb the nutrients from the food I ate so this injury was kind of like the icing on top of the cake because my chronic illness made the recovery almost in possible. I would cry a lot, stopped taking pictures of myself, and everything. But even then I knew I didn't really have any interest in being thin I actually really fuck with my warm fluffy voluptuous form, I just didn't want to be unhealthy.
I still haven't fully unpacked the shame I felt around being unhealthy, I was so ashamed despite me trying my best with what I had, and what I knew, and I also still haven't fully unpacked why I feel like I have to specify as I literally just did a few lines earlier that I was 'trying my best', why do visibly disabled folks only deserve care or sympathy when they're actively trying to fit into a world that isn't set up to support or aid them when it very well could be? The intersectional oppression of ableism and fat phobia is still something i'm actively developing my thoughts about.
A thought ive been thinking about a lot is how obesity is a health condition and it can be detrimental to some folks and that saying that it isn't is a reactionary trauma response to fat phobia BUT also a lot of things can be detrimental and the level of detriment different things give you differentiates based on the person. Some people are bigger than me and healthier. Some people are smaller than me and UNhealthier. The detriment fatness has on your health as all things doesn't exist on the linear scale we have created for it. SO although obesity is a disease and proposing that fat doesn't correlate with health in an important way is harmful it is also harmful and plain weird to hyper fixate on obesity. Im also thinking about how obesity is treated this way because it's one of the most visible health issues and how that bleeds into ableism. I'm still working on these thoughts i'm having and how to explain and dissect them in a proper digestible and understandable way. So I think this where I leave you to think on your own about this, what do you think? Please feel free to comment below!
#sociology#fatphobia#intersectionality#intersectional social justice#spilled thoughts#pop culture#philosophy#fat positive#fat positivity#body diversity#body neutrality#body positive#ed recovery#ed relatable#twitter#life lessons#disability rights#disability issues#nonbinary#queer community#black liberation#anti capitalism#100 days of productivity#life quotes#literature#human rights#anthropology#healing journey#self care#self help
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I Was Raised...
...to feel bad about being disabled. I don't think it was ever intentional, but when your pain is questioned and used as a weapon in fights, the you come to hate yourself for being in pain. When you're made to question why you bought yourself a mobility aid, and got it spat on when you didn't see it coming, then you come to develop imposter syndrome.
While the above example are specific from my own life, and the complexities of being disabled in an already-abusive household, I'm sure I'm not the only one who was raised in an ableist-but-maybe-not-knowingly house, in a house where it was questioned and where people refuse to accept that a disability is not a fighting tool.
So, to all the people raised like me, I see you, and I love you.
#ableist families#positivity#emotional abuse#ableism#disability rights#disability#disability issues#disabilities#cpunk#cripple punk#crip punk#chronic pain#chronically ill#spoonie#cpunkdaisy
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I don't feel like responding to your entire reblog and also I'm blocking you but CVI is NOT visual processing disorder
Context (link)
Sources will be at the bottom after disturbing arguments are addressed.
I'm going to respond to this assuming there is a missing "a", as I never said CVI is VPD, I said it's a type. That's probably clear but I'll make it crystal
Could you clarify any particular reason as to why you believe you are the arbiter whose opinion should be regarded above all else? I welcome the opportunity to be educated and proven wrong, but you have yet to support your original claim and still fail to provide any evidence regarding this one.
Saying a disabled individual knows nothing about the condition they literally have? Wow. Just wow.
You previously called someone obsessed and implied they were stupid for reblogging with a response and leaving a comment on your post. If that's considered obsession, what would you call yourself, who has subblogged someone after you left an ask saying you've blocked them?
And then I find this?
Are you actually fucking kidding me? I can't believe I fell for someone's obviously bad faith bullshit as you clearly believe that those who have disabilities understanding senses have sensory disabilities. How is sensory processing disorder NOT a sensory disability when you blatantly include one of the manifestations???
I find it notable you did not respond to stitchieau-the-actual-one or trashiesttrashboy’s points like this, instead, you opted to fabricate a quote as a personal attack to mock Stitch as if they had said “I'm as dumb as rocks”, when one could've easily pointed out how dyspraxia is a form of SPD, not the other way around.
Very interesting, it seems your motivation for blocking could very well stem from the desire for the inherent concealment of concerns about misinformation and bigoted biases, particularly after having sanism and hindrance to disability activism pointed out. Funny how the sanist comments suddenly disappeared after I mentioned them, shame I didn't screenshot it.
You "don't feel like" responding to my (or any respondent, really) reblog because you HAVE nothing to respond with.
SOURCES N SHIT
I wasn't just saying it for the hell of it.
The Child Neurology Foundation (link) describes CVI as visual processing disorder. The American Association for Pediatric Ophthalmology & Strabismus (link) explains that in CVI, "the message is not properly processed or integrated".
The Pediatric Cortical Visual Impairment Society (link) notes that "CVI is a problem with the visual processing centers and visual pathways of the brain, not the eye." They continue on another page (link), "the eyes can see, but the brain can't interpret the visual world.” Perkins (link) says it is "caused by damage to the brain’s visual pathways or visual processing areas," and that "the brain has trouble processing what the eyes can see".
The Eye & Ear Foundation of Pittsburgh (link) states "it can involve any visual processing part of the brain," and that it "affects the visual processing centers in the brain". The National Eye Institute (link) drafted a definition in a workshop sponsored by NIH, defining CVl as "a spectrum of visual impairments caused by an underlying structural and/or functional brain abnormality that affects the development of visual function and processing'":
This PubMed article (link) states that “[the] broad consensus definition embraces the wide range of damage or dysfunction of the neural pathways, centers and networks involved in visual information processing," highlighting how this particularly impacts the visual brain areas “involved in integration, identification, analysis and interpretation of […] visual information […]." Given this complexity, it follows that “disturbance of any element of these complex mental visual processes can occur in a range of patterns of CVI", including "impaired processing of visual details", showcasing how "cortical or cerebral visual impairment can interfere with any or all aspects of visual processing."
Another study (link) mentions that "an important aspect of CVI are visual processing dysfunctions (VPD)" processing dysfunction is synonymous with processing disorder.
A different study (link) notes "CVI can be characterized as a condition of 'dorsal stream dysfunction' and represents the most common type of visual processing impairment observed in children with this condition.”
Boston children's hospital (link) lists autism as a confusing diagnostic entity, probably because dorsal stream function were significantly associated (link) with autistic traits.
This study (link) calls CVI a "visual processing disorder"
The only argument I can possibly interpret to be made in good faith would be pointing out how cerebral is different from cortical, which is not what you've done. It isn't a strong argument anyways, as cerebral is often substituted for or used interchangeably with cortical "to more globally encompass these higher order visual processing deficits and their presumed association with damaged areas of the visual processing pathway".
That study (link) continues by explaining how “a practical and useful conceptual framework in characterizing observed deficits in CVI is to incorporate the two-stream hypothesis of visual processing". Within this framework, “impairment of dorsal visual stream processing would impact upon an individual’s ability to process and interact with complex visual scenes […]". This concept is supported by recent studies investigating “individual pathways implicated in the processing of visual information between cortical areas of the brain with the aim of establishing a possible association between the structural integrity of these pathways and visual dysfunction in CVI.” Those studies reveal that “the observed reductions in the structural integrity associated with the key extra geniculostriate visual pathways implicated in visual processing help provide for a neuroanatomical basis for the visual dysfunctions observed in individuals with CVI”
CVI Scotland (link) has discussed a paper titled "Central Auditory Processing Disorder: The Hearing Equivalent of CVI".
Again, I welcome being wrong! I love being educated (: but you have given absolutely 0 indicator that this is anything more than your personal opinion sneered out of frustrations taken out on fellow disabled individuals (oh that's right, you just think they have issues)
#asks#answered asks#chronic disability#disability issues#disability#disabled things#disabled#disability activism#disability awareness#disability advocacy#disabled ableism#ableism#fighting ableism#sensory disability#sensory disabilities
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Medically assisted suicide is NEVER going to be a viable option for anyone while the lives of disabled people are considered limited and disposable.
MAID and systems like it are being used as a substitute for actually supporting and caring for disabled people.
No government can be trusted with legislating for assisted dying when it's cheaper for them to kill us than support us.
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Do you have any advice on staying vegan when disabled relying on parents as caregivers in a way or at home nurses who help with meals who often imply or often outright say vegan food isn’t healthy worsening my state of health. When I’m in a hospital how to stay vegan too ? Often have to ask for a patient advocate for help when hospitalized or talks with the dietitian. I find myself struggling so I’m just sos 
Hey anon, I did some research myself but felt this was really out of my experience so I got in touch with a friend of mine who is disabled and vegan, she has navigated a lot of these issues herself and she gave some tips I hope you’ll find helpful.
Hospitals/carers have to cater to veganism as much as they do for religious dietary requirements in most places, though she’s not sure if that stands where you are. Regarding parents and carers, she advises to seize more autonomy if you can and stand firm. Even if it was the case that veganism was somehow exacerbating your condition, that would still be your choice to make, you have that right. They gone get to decide that for you.
For general tips she recommends batch cooking, using canned/frozen veggies, so that there isn’t a daily worry about what you’ll eat and she always has at least one back up meal in the freezer but ideally a few. She also advises keeping go bag filled with snacks and electrolyte drinks for when you do have to go to hospital.
Finally, she has said that if for some reason you’re not able to eat fully plant-based in hospital or while being cared for, there would be nothing wrong with eating animal products when you don’t really have any other options. Likewise if you can’t meet your nutritional requirements while eating plant-based then there would be nothing wrong with introducing some animal products.
Remember to stand firm about your own interests and beliefs, but it’s about doing whatever is possible and practicable, so be gentle with yourself if you can’t always eat plant-based all the time. Take care of yourself anon, and feel free to reach out if you want to talk about any of it.
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Day 753
Randomly, one day, because the thought came to me (as it sometimes does with my brain matter), I checked my supply cupboard to see how much of my in-use medical supplies I have left. I have a system where there are backup medical supplies kept in a closet. When I order supplies, I then take those down and put them into the cupboard and drawers to be used, and then when the new supplies come in, put them up in the closet.
This ensures that if there is ever a backorder I have at least a month grace for the new supplies to come in. When this happens it often means I just have to order new supplies again sooner than I would expect to ensure a proper backup supply.
I do this for all of my supplies, except for lubrication because it’s a very common item. Most places will have at least one box floating around somewhere, and since pharmacy policy is to call me when they’re on backorder to let me know, I generally have some time to come up with a plan.
Unless the order got messed up, which was why I now was facing the reality that I’m probably two weeks away from ordering new supplies, despite the fact I have a full order of lubrication. Why? Because that is the only supply I do not order backups of, due to the fact they’re easy to get a hold of.
If you knew they were on backorder.
Which I did not, and no one told me, because they also ordered the wrong size of lubrication.
It has been an experience for the past two weeks,, as mentioned in my post about not attending my game meetup, my portable, individually, sanitary lubrication packets were on backorder, and I didn’t know until I opened up the box that contained my new order of supplies.
In which I will fully admit to being a dumbass and not opening it right away. I trusted that what I ordered was in, and didn’t double check when it arrived. So imagine my surprise. Instead of six boxes of 100 individual packets, I had one box of six large tubes. Using a tube isn't horrible (in fact it lasts longer than the box of packets) but you do have to be careful of contamination.
Something that is difficult to do out in public. I’ve complained about this before, most accessible washrooms are designed for mobility needs only, not for medical needs. This means you’re balancing supplies off of toilet paper dispensers, those metal trash things installed to the walls, on top of toilets or (if you’re in an individual bathroom) doing the stretch to the sink to grab the medical supply wrapper. There would be a non-zero chance I would drop a tube on the floor and lose that whole tube.
So going out was a problem.
Complicating matters was that for reasons no one understood, I was charged for the right supplies, but the wrong ones were ordered and given to me. This made refunding difficult because they couldn’t refund me for the tubes, because they didn’t charge me for the tubes. In fact, I got a free tube because that was the only thing I could use while they re-ordered those supplies, with the understanding that I had already paid for them…
Because they couldn’t refund me so easily.
Apparently, no one got the memo… twice.
Not accounting for the fact that for a bit, no one knew where the fuck they went to.
I got a call two weeks later, on a Friday, asking if I had received my medical lube, the answer was no. So the poor guy promised to call me back once he figured out where it was, as it had arrived. Late afternoon rolled around, he called, said it had arrived and since I had to go out anyways, I said I would pick them up. Normally I get them, and the 10 other boxes of medical supplies delivered but it was just lube. Also, there was a stop right outside the pharmacy on my usual route and I have a rolly cart.
Not a problem.
I showed up, with my rolly cart, ready to drag the shipping box full of boxes of lube back home, and at first everything was fine. Until, I noticed, because the box was open, there was a receipt in the box. If I had been two decades younger, I would have not mentioned it out of fear of being wrong, but as it was, medical supplies are expensive and so I asked him.
Did you charge me for that?
The answer was yes, in which I had to explain that I never got that refund, these supplies were already paid for. So he had to give me the refund that I didn’t get before.
Fine, it was fine. I went home, put the supplies away right away and refilled my travel bags so I can go to my game meetup on Sunday. Everything was fine, the weekend was great, I had fun at my outing.
No problem.
Monday rolls around, and I get a call, it is from the pharmacy. From someone completely different saying that my supplies have arrived.
What?
I told her that I already picked up my supplies on Saturday, did they order double? She pauses, and goes to check, tells me there were no notes saying I had received my supplies. She will also give me a refund.
Because the pharmacy has my credit card number they charged me for supplies I already picked up.
Supplies, I should not be paying for anyways because I didn’t get a refund the first time.
I probably at some point need to check my credit card to make sure I don’t owe more money than I actually do, but it was a reminder that my pharmacy since Covid has been a hot mess. I’m not angry about it, and was at the time more amused.
Though I do realize as I’m writing this, that that whole thing was very unacceptable, the amount of errors was actually pretty bad for a single order.
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Having schizophrenia on top of brain damage: my very very stationary bed is "rocking back and forth" and by god can I feel the sensations. I literally feel like I'm in a hammock right now, my body feels like it's being swung back and forth. If I didn't know any better, I would say my house is doing a little dance like an animation character.
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tiktok true crimers: This kid is clearly haunted and has spirits living in it and it will grow up to be a serial killer, it is very dangerous to be around people and it's parents should be extremely concerned.
the kid: autistic and trying to relax
#wills mumbles#true crime#tiktok#disability#autism#actually autistic#actually disabled#disability issues#disability rights#ableism#disability justice#disabled#disabilities
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Hello am Taheerah Mohammed Abdallah, are you willing to help me get my insulin? I'm down to my last pen and its pretty much close to being empty.Nt asking for a much, only need $67 rn to save my blood sugar. please help me with a small donation or share,reblog any help can save my life. Thank you so much and be blessed.🙏 Donation link is available on my pinned post
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Early Diagnosed Autistic peeps and Loss of Autonomy
I honestly get depressed reading my reports when I got diagnosed with autism when I was 5. Development delay, underachiever in language skills, reasoning skills, fine motor impairment, lack of speech fluency and lack of self esteem (no really I was terribly anxious).
I had interventions to improve my skills I can't deny that. but at the cost of pathologizing me and making my mom dreadful of my prognosis. My childhood was me being aware of my pathological nature and that is traumatizing enough.
Bc I have this constant need to prove I'm able enough and I'm not too disabled that is costing too much of my mental health. I'm concerned about many today early diagnosed autistic kids. They come from a age where there is a lot of misinformation that their parents follow either to "treat their symptoms" or just to reinforce their ableist bias.
Besides that early diagnosed kids tend to have way less autonomy than their NT peers. We lose our position to speak so that our parents and institutions can speak over us in their own limited lenses. That is traumatizing. That is why you don't hear a lot of early diagnosed kids’ perspectives. Not because they tend to be the ones with more limitations to speak as people want us to believe and there is AAC for a reason. Not just because it's more difficult to have a ealy diagnosis. it's ableism.
A chronic loss of autonomy and infantilization. Always being spoke over because they just keep assume that you can't. You can't speak for yourself. Well here is a thing. WE CAN SPEAK FOR OURSELVES.
I can. I always could given the proper accommodations. I knew what I needed to say. But after spending too much time unable to speak for myself took me a toll and now I become angry when I feel like people know better about my needs than me. Therefore, I'm perpetually mad.
#actually autistic#invisible disability#disability issues#actually disabled#neurodivergent#neurodevelopmental conditions#neurodiversity#dysgraphia#aac#autistic kid#ableism#infantilization#loss of autonomy
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I fully support the right to die with dignity for those with terminal illness or unbearable suffering, but there are risks.
This article raises some interesting questions.
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I saw this post on facebook from an organisation that helps people with their PIP applications last night
I have my PIP reassessment tomorrow, they know I have anxiety and today I have received 3 phone calls, every 2 hours from a withheld number… I haven’t answered. I fully suspect its the DWP trying this tactic and even despite my thinking that, its still succeeding in triggering my anxiety
Update: Turns out it was PIP phoning, it was one of the first things they said to me on my phone assessment. Supposedly the 4 phone calls (another happened after I made this post) from a withheld number were to remind me for my appointment today but they sent me a text during the day inbetween 2 of the calls and you’d think they’d leave a voicemail so yeah its crafty and the worst part is it worked, today its not only triggered my anxiety but its also made my fibro & ME flare up today with increased pain and fatigue (not helped by me not getting any sleep last night), its flared my ibs and gave me a migraine after the call ended
#anxiety#dwp#pip#personal independence payment#department of work and pensions#uk disability benefits#disability benefits#uk government#uk govt#uk politics#disability issues#ableism#uk benefits#uk benefits system#disability benefits uk#anxiety problems#anxiety issues#mental health#disability#ibs#migraine#fibromyalgia#me/cfs#myalgic encephalomyelitis
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Not just related to Michigan, as every state must do reviews.
“In just two months, a bureaucratic review will begin that experts say could cost hundreds of thousands of low-income Michiganders their health insurance — and threaten nonprofit clinics that treat more than 400,000 Medicaid patients across the state.
Beginning April 1, more than 3 million Michigan Medicaid clients will have to prove they are eligible for benefits extended since 2020 under a federal health emergency that barred states from removing anyone from Medicaid during the COVID-19 pandemic. Michigan’s Medicaid ranks grew by more than 700,000 since the pandemic hit.
Federal estimates calculate up to 15 million U.S. Medicaid enrollees could lose coverage during the benefits review, including 6.8 million people who could be booted from the rolls despite being eligible.”
#my post#medicaid#government insurance#spoonies#michigan news#articles#disability benefits#life of a spoonie#disability rights#disability issues#social issues
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“I can’t kick out that dog”
Yes you can.
Let’s go over what a fake service dog is first. A fake service dog is any dog in a non-pet friendly area that is not following ADA guidelines for service dog behavior. This includes being disruptive (barking uncontrollably, unreasonably seeking attention from strangers, etc) not being task trained. (This one is impossible to tell just from a glance and you have to be an employee that is asking the two questions to find this out) is not potty trained or not being in control of their handler and handler not taking effective initiative to take control of the animal.  So, even if a dog is task trained if it is say pooping in the middle of the grocery store it’s not a service dog because it’s not covered under the ADA after that regardless of how they answer the two questions. It is also important to note in the situation that no animal regardless if it’s a Service dog or not are legally allowed to be in grocery carts, so it’s a pretty big red flag if it is in one.
Recently, there’s been an uptick of fake service dogs but nothing is being done about it. Businesses (especially big box grocery stores) are not taking initiative and kicking out dogs that do not follow the ADA guidelines for a service dog, and are therefore not covered. If you are a higher management at a grocery store and do not kick out a fake service dog you are violating the federal FDA food code. I have, will, and encourage other teams to report any store that refuses to kick out a fake service dog to their local health authorities to face hefty fines. Stores need to crack down on this because it is a safety and equity issue for literally everybody involved. 

#disability advocacy#dogs#pets#service dog#disability#disability issues#nerodiversity#nerodivergent#fake service dog
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