#disability information

[not-poignant]

As a semi-regular cane user this is VERY good.

I'll also second that quite a few of us have multiple canes for multiple occasions. I have three adjustible canes, and one wooden one, and I have a favourite out of all of those and get a little sad when I can't use it. (Switch Sticks are amazing).

Even adjustible canes don't always adjust to the exact right height you need, and if you've been using a cane for a long time and suddenly have to change into a different brand or make (or just want to make a different fashion statement), you can feel that centimetre of difference!

Because I don't need the cane 24/7, I often like adjustible so I can fold it in half while tackling stairs (for me stairs are easier to just take one at a time, currently). I get really angry with a handbag hanging off one shoulder, so I need a big strap so it can go around both shoulders and won't keep sliding off my arm while I'm using the cane. Sometimes it's very inconvenient to be shopping with a cane and a handbag and want to grab something at the same time.

Also if you're clumsy, you will still accidentally hit yourself (or others) with the cane while you're walking! And my favourite - when you step on the rubber stopper and it comes off and then you have to put it on again.

Finally I have hEDS, rheumatoid arthritis, and other joint issues, including RSI in both wrists, so even with good posture and gait and oversight by a physiotherapist, I still get wrist issues and elbow issues simply from long-term use. They're minor and treatable, but they can still happen if you have other joint issues.

Also, people are often terribly ableist towards younger people with canes, at least where I live (Western Australia). I started needing to intermittently use a walking stick when I was around 21, and noticed that on public transport other folks would stand for people in wheelchairs, pregnant folks, elderly folks and basically *anyone other than the younger person with a cane.* It is really quite incredible how dismissed folks are with walking sticks. It might be slightly better now.

It amuses me when people are like 'a person wouldn't use their cane as a weapon.' Yes, some of us would. Not all of us have the same kind of issues re: using a pain, and some of us have *very* good one-leg balance. I 100% believe in using my cane as a weapon in exchange for causing more pain through that leg. This wouldn't work for anyone who has a major instability issue, but as OP pointed out, anyone who needs more than 20% weight-bearing will likely be using something different (or causing themselves massive arm/joint/shoulder/spine problems until they realise they need to be using something different).

The only thing is I can't run and use a cane as a weapon, or walk quickly and do it. So I'll have to stand and swing that fucker into someone's face should I ever be threatened or have to stop someone else from being hurt. Also given how often I trip myself and other people with it by accident, I imagine it's very good for this too. e.e

As a writer I fully prepare to take advantage of this one day, lmao.

A general cane guide for writers and artists (from a cane user, writer, and artist!)

Disclaimer: Though I have been using a cane for 6 years, I am not a doctor, nor am I by any means an expert. This guide is true to my experience, but there are as many ways to use a cane as there are cane users!

This guide will not include: White canes for blindness, crutches, walkers, or wheelchairs as I have no personal experience with these.

This is meant to be a general guide to get you started and avoid some common mishaps/misconceptions, but you absolutely should continue to do your own research outside of this guide!

The biggest recurring problem I've seen is using the cane on the wrong side. The cane goes on the opposite side of the pain! If your character has even-sided pain or needs it for balance/weakness, then use the cane in the non-dominant hand to keep the dominant hand free. Some cane users also switch sides to give their arm a rest!

A cane takes about 20% of your weight off the opposite leg. It should fit within your natural gait and become something of an extension of your body. If you need more weight off than 20%, then crutches, a walker, or a wheelchair is needed.

Putting more pressure on the cane, using it on the wrong side, or having it at the wrong height will make it less effective, and can cause long term damage to your body from improper pressure and posture. (Hugh Laurie genuinely hurt his body from years of using a cane wrong on House!)

(an animated GIF of a cane matching the natural walking gait. It turns red when pressure is placed on it.)

When going up and down stairs, there is an ideal standard: You want to use the handrail and the cane at the same time, or prioritize the handrail if it's only on one side. When going up stairs you lead with your good leg and follow with the cane and hurt leg together. When going down stairs you lead with the cane, then the good leg, and THEN the leg that needs help.

Realistically though, many people don't move out of the way for cane users to access the railing, many stairs don't have railings, and many are wet, rusty, or generally not ideal to grip.

In these cases, if you have a friend nearby, holding on to them is a good idea. Or, take it one step at a time carefully if you're alone.

Now we come to a very common mistake I see... Using fashion canes for medical use!

(These are 4 broad shapes, but there is INCREDIBLE variation in cane handles. Research heavily what will be best for your character's specific needs!)

The handle is the contact point for all the weight you're putting on your cane, and that pressure is being put onto your hand, wrist, and shoulder. So the shape is very important for long term use!

Knob handles (and very decorative handles) are not used for medical use for this reason. It adds extra stress to the body and can damage your hand to put constant pressure onto these painful shapes.

The weight of a cane is also incredibly important, as a heavier cane will cause wear on your body much faster. When you're using it all day, it gets heavy fast! If your character struggles with weakness, then they won't want a heavy cane if they can help it!

This is also part of why sword canes aren't usually very viable for medical use (along with them usually being knob handles) is that swords are extra weight!

However, a small knife or perhaps a retractable blade hidden within the base might be viable even for weak characters.

Bases have a lot of variability as well, and the modern standard is generally adjustable bases. Adjustable canes are very handy if your character regularly changes shoe height, for instance (gotta keep the height at your hip!)

Canes help on most terrain with their standard base and structure. But for some terrain, you might want a different base, or to forego the cane entirely! This article covers it pretty well.

Many cane users decorate their canes! Stickers are incredibly common, and painting canes is relatively common as well! You'll also see people replacing the standard wrist strap with a personalized one, or even adding a small charm to the ring the strap connects to. (nothing too large, or it gets annoying as the cane is swinging around everywhere)

(my canes, for reference)

If your character uses a cane full time, then they might also have multiple canes that look different aesthetically to match their outfits!

When it comes to practical things outside of the cane, you reasonably only have one hand available while it's being used. Many people will hook their cane onto their arm or let it dangle on the strap (if they have one) while using their cane arm, but it's often significantly less convenient than 2 hands. But, if you need 2 hands, then it's either setting the cane down or letting it hang!

For this reason, optimizing one handed use is ideal! Keeping bags/items on the side of your free hand helps keep your items accessible.

When sitting, the cane either leans against a wall or table, goes under the chair, or hooks onto the back of the chair. (It often falls when hanging off of a chair, in my experience)

When getting up, the user will either use their cane to help them balance/support as they stand, or get up and then grab their cane. This depends on what it's being used for (balance vs pain when walking, for instance!)

That's everything I can think of for now. Thank you for reading my long-but-absolutely-not-comprehensive list of things to keep in mind when writing or drawing a cane user!

Happy disability pride month! Go forth and make more characters use canes!!!

[johnlennonirl]

Here I am, posting something similar like the fibro post... this one goes out to my psychotic folks🫶

[thebibliosphere]

Still not over the head of cardiology, who said she wouldn't formally diagnose me with dysautonomia because she didn't want me to think of myself as disabled.

As if good vibes and a can-do attitude can stabalize autonomic dysfunction.

[disabled-dragoon]

The Disability Library

I love books, I love literature, and I love this blog, but it's only been recently that I've really been given the option to explore disabled literature, and I hate that. When I was a kid, all I wanted was to be able to read about characters like me, and now as an adult, all I want is to be able to read a book that takes us seriously.

And so, friends, Romans, countrymen, I present, a special disability and chronic illness booklist, compiled by myself and through the contributions of wonderful members from this site!

As always, if there are any at all that you want me to add, please just say. I'm always looking for more!

Edit 20/10/2023: You can now suggest books using the google form at the bottom!

Updated: 31/08/2023

Articles and Chapters

The Drifting Language of Architectural Accessibility in Victor Hugo's Notre-Dame de Paris, Essaka Joshua, 2012

Early Modern Literature and Disability Studies, Allison P. Hobgood, David Houston Wood, 2017

How Do You Develop Whole Object Relations as an Adult?, Elinor Greenburg, 2019

Making Do with What You Don't Have: Disabled Black Motherhood in Octavia E. Butler's Parable of the Sower and Parable of the Talents, Anna Hinton, 2018

Necropolitics, Achille Mbeme, 2003 OR Necropolitics, Achille Mbeme, 2019

Wasted Lives: Modernity and Its Outcasts, Zygmunt Bauman, 2004

Witchcraft and deformity in early modern English Literature, Scott Eaton, 2020

Books

Fiction:

Misc:

10 Things I Can See From Here, Carrie Mac

A-F:

A Curse So Dark and Lonely, (Series), Brigid Kemmerer

Akata Witch, (Series), Nnedi Okorafor

A Mango-Shaped Space, Wendy Mass

Ancillary Justice, (Series), Ann Leckie

An Unkindness of Ghosts, Rivers Solomon

An Unseen Attraction, (Series), K. J. Charles

A Shot in the Dark, Victoria Lee

A Snicker of Magic, Natalie Lloyd

A Song of Ice and Fire, (series), George R. R. Martin

A Spindle Splintered, (Series), Alix E. Harrow

A Time to Dance, Padma Venkatraman

Bath Haus, P. J. Vernon

Beasts of Prey, (Series), Ayana Gray

The Bedlam Stacks, (Series), Natasha Pulley

Black Bird, Blue Road, Sofiya Pasternack

Black Sun, (Series), Rebecca Roanhorse

Blood Price, (Series), Tanya Huff

Borderline, (Series), Mishell Baker

Breath, Donna Jo Napoli

The Broken Kingdoms, (Series), N.K. Jemisin

Brute, Kim Fielding

Cafe con Lychee, Emery Lee

Carry the Ocean, (Series), Heidi Cullinan

Challenger Deep, Neal Shusterman

Cinder, (Series), Marissa Meyer

Clean, Amy Reed

Connection Error, (Series), Annabeth Albert

Cosima Unfortunate Steals A Star, Laura Noakes

Crazy, Benjamin Lebert

Crooked Kingdom, (Series), Leigh Bardugo

Daniel Cabot Puts Down Roots, (Series), Cat Sebastian

Daniel, Deconstructed, James Ramos

Dead in the Garden, (Series), Dahlia Donovan

Dear Fang, With Love, Rufi Thorpe

Deathless Divide, (Series), Justina Ireland

The Degenerates, J. Albert Mann

The Doctor's Discretion, E.E. Ottoman

Earth Girl, (Series), Janet Edwards

Everyone in This Room Will Someday Be Dead, Emily R. Austin

The Extraordinaries, (Series), T. J. Klune

The Extraordinary Education of Nicholas Benedict, (Series), Trenton Lee Stewart

Fight + Flight, Jules Machias

The Final Girl Support Group, Grady Hendrix

Finding My Voice, (Series), Aoife Dooley

The First Thing About You, Chaz Hayden

Follow My Leader, James B. Garfield

Forever Is Now, Mariama J. Lockington

Fortune Favours the Dead, (Series), Stephen Spotswood

Fresh, Margot Wood

H-0:

Harmony, London Price

Harrow the Ninth, (series), Tamsyn Muir

Hench, (Series), Natalia Zina Walschots

Highly Illogical Behaviour, John Corey Whaley

Honey Girl, Morgan Rogers

How to Become a Planet, Nicole Melleby

How to Bite Your Neighbor and Win a Wager, (Series), D. N. Bryn

How to Sell Your Blood & Fall in Love, (Series), D. N. Bryn

Hunger Pangs: True Love Bites, Joy Demorra

I Am Not Alone, Francisco X. Stork

The Immeasurable Depth of You, Maria Ingrande Mora

In the Ring, Sierra Isley

Into The Drowning Deep, (Series), Mira Grant

Iron Widow, (Series), Xiran Jay Zhao

Izzy at the End of the World, K. A. Reynolds

Jodie's Journey, Colin Thiele

Just by Looking at Him, Ryan O'Connell

Kissing Doorknobs, Terry Spencer Hesser

Lakelore, Anna-Marie McLemore

Learning Curves, (Series), Ceillie Simkiss

Let's Call It a Doomsday, Katie Henry

The Library of the Dead, (Series), TL Huchu

The Lion Hunter, (Series), Elizabeth Wein

Lirael, (Series), Garth Nix

Long Macchiatos and Monsters, Alison Evans

Love from A to Z, (Series), S.K. Ali

Lycanthropy and Other Chronic Illnesses, Kristen O'Neal

Never Let Me Go, Kazuo Ishiguro

The Never Tilting World, (Series), Rin Chupeco

The No-Girlfriend Rule, Christen Randall

Nona the Ninth, (series), Tamsyn Muir

Noor, Nnedi Okorafor

Odder Still, (Series), D. N. Bryn

Once Stolen, (Series), D. N. Bryn

One For All, Lillie Lainoff

On the Edge of Gone, Corinne Duyvis

Origami Striptease, Peggy Munson

Our Bloody Pearl, (Series), D. N. Bryn

Out of My Mind, Sharon M. Draper

P-T:

Parable of the Sower, (Series), Octavia E. Butler

Parable of the Talents, (Series), Octavia E. Butler

Percy Jackson & the Olympians, (series), Rick Riordan

Pomegranate, Helen Elaine Lee

The Prey of Gods, Nicky Drayden

The Pursuit Of..., (Series), Courtney Milan

The Queen's Thief, (Series), Megan Whalen Turner

The Quiet and the Loud, Helena Fox

The Raging Quiet, Sheryl Jordan

The Reanimator's Heart, (Series), Kara Jorgensen

The Remaking of Corbin Wale, Joan Parrish

Roll with It, (Series), Jamie Sumner

Russian Doll, (Series), Cristelle Comby

The Second Mango, (Series), Shira Glassman

Scar of the Bamboo Leaf, Sieni A.M

Shaman, (Series), Noah Gordon

Sick Kids in Love, Hannah Moskowitz

The Silent Boy, Lois Lowry

Six of Crows, (Series) Leigh Bardugo

Sizzle Reel, Carlyn Greenwald

The Spare Man, Mary Robinette Kowal

The Stagsblood Prince, (Series), Gideon E. Wood

Stake Sauce, Arc 1: The Secret Ingredient is Love. No, Really, (Series), RoAnna Sylver

Stars in Your Eyes, Kacen Callender [Expected release: Oct 2023]

The Storm Runner, (Series), J. C. Cervantes

Stronger Still, (Series), D. N. Bryn

Sweetblood, Pete Hautman

Tarnished Are the Stars, Rosiee Thor

The Theft of Sunlight, (Series), Intisar Khanani

Throwaway Girls, Andrea Contos

Top Ten, Katie Cotugno

Torch, Lyn Miller-Lachmann

Treasure, Rebekah Weatherspoon

Turtles All the Way Down, John Green

U-Z:

Unlicensed Delivery, Will Soulsby-McCreath Expected release October 2023

Verona Comics, Jennifer Dugan

Vorkosigan Saga, (Series), Lois McMaster Bujold

We Are the Ants, (Series), Shaun David Hutchinson

The Weight of Our Sky, Hanna Alkaf

Whip, Stir and Serve, Caitlyn Frost and Henry Drake

The Whispering Dark, Kelly Andrew

Wicked Sweet, Chelsea M. Cameron

Wonder, (Series), R. J. Palacio

Wrong to Need You, (Series), Alisha Rai

Ziggy, Stardust and Me, James Brandon

Graphic Novels:

A Quick & Easy Guide to Sex & Disability, (Non-Fiction), A. Andrews

Constellations, Kate Glasheen

Dancing After TEN: a graphic memoir, (memoir) (Non-Fiction), Vivian Chong, Georgia Webber

Everything Is an Emergency: An OCD Story in Words Pictures, (memoir) (Non-Fiction), Jason Adam Katzenstein

Frankie's World: A Graphic Novel, (Series), Aoife Dooley

The Golden Hour, Niki Smith

Nimona, N. D. Stevenson

The Third Person, (memoir) (Non-Fiction), Emma Grove

Magazines and Anthologies:

Artificial Divide, (Anthology), Robert Kingett, Randy Lacey

Beneath Ceaseless Skies #175: Grandmother-nai-Leylit's Cloth of Winds, (Article), R. B. Lemburg

Defying Doomsday, (Anthology), edited by Tsana Dolichva and Holly Kench

Josee, the Tiger and the Fish, (short story) (anthology), Seiko Tanabe

Nothing Without Us, edited by Cait Gordon and Talia C. Johnson

Nothing Without Us Too, edited by Cait Gordon and Talia C. Johnson

Unbroken: 13 Stories Starring Disabled Teens, (Anthology), edited by Marieke Nijkamp

Uncanny #24: Disabled People Destroy Science Fiction, (Anthology), edited by: Elsa Sjunneson-Henry, Dominik Parisien et al.

Uncanny #30: Disabled People Destroy Fantasy, (Anthology), edited by: Nicolette Barischoff, Lisa M. Bradley, Katharine Duckett

We Shall Be Monsters, edited by Derek Newman-Stille

Manga:

Perfect World, (Series), Rie Aruga

The Sky is Blue with a Single Cloud, (Short Stories), Kuniko Tsurita

Non-Fiction:

Academic Ableism: Disability and Higher Education, Jay Timothy Dolmage

A Disability History of the United States, Kim E, Nielsen

The Architecture of Disability: Buildings, Cities, and Landscapes beyond Access, David Gissen

Being Seen: One Deafblind Woman's Fight to End Ableism, Elsa Sjunneson

Black Disability Politics, Sami Schalk

Borderline, Narcissistic, and Schizoid Adaptations: The Pursuit of Love, Admiration, and Safety, Dr. Elinor Greenburg

Brilliant Imperfection: Grappling with Cure, Eli Clare

The Cambridge Companion to Literature and Disability, Barker, Clare and Stuart Murray, editors.

The Capacity Contract: Intellectual Disability and the Question of Citizenship, Stacy Clifford Simplican

Capitalism and Disability, Martha Russel

Care work: Dreaming Disability Justice, Leah Lakshmi Piepzna-Samarasinha

Catatonia, Shutdown and Breakdown in Autism: A Psycho-Ecological Approach, Dr Amitta Shah

The Collected Schizophrenias: Essays, Esme Weijun Wang

Crip Kinship, Shayda Kafai

Crip Up the Kitchen: Tools, Tips and Recipes for the Disabled Cook, Jules Sherred

Culture – Theory – Disability: Encounters between Disability Studies and Cultural Studies, Anne Waldschmidt, Hanjo Berressem, Moritz Ingwersen

Decarcerating Disability: Deinstitutionalization and Prison Abolition, Liat Ben-Moshe

Demystifying Disability: What to Know, What to Say, and How to Be an Ally, Emily Ladau

Dirty River: A Queer Femme of Color Dreaming Her Way Home, Leah Lakshmi Piepzna-Samarasinha

Disability Pride: Dispatches from a Post-ADA World, Ben Mattlin

Disability Visibility: First-Person Stories From the Twenty-First Century, Alice Wong

Disfigured: On Fairy Tales, Disability and Making Space, Amanda Leduc

Every Cripple a Superhero, Christoph Keller

Exile and Pride: Disability, Queerness and Liberation, Eli Clare

Feminist Queer Crip, Alison Kafer

The Future Is Disabled: Prophecies, Love Notes, and Mourning Songs, Leah Lakshmi Piepzna-Samarasinha

Growing Up Disabled in Australia, Carly Findlay

It's Just Nerves: Notes on a Disability, Kelly Davio

The Immortal Life of Henrietta Lacks, Rebecca Skloot

Language Deprivation & Deaf Mental Health, Neil S. Glickman, Wyatte C. Hall

The Minority Body: A Theory of Disability, Elizabeth Barnes

My Body and Other Crumbling Empires: Lessons for Healing in a World That Is Sick, Lyndsey Medford

No Right to Be Idle: The Invention of Disability, 1840s-1930s, Sarah F. Rose

Nothing About Us Without Us: Disability Oppression and Empowerment, James I. Charlton

The Pedagogy of Pathologization Dis/abled Girls of Color in the School-prison Nexus, Subini Ancy Annamma

Physical Disability in British Romantic Literature, Essaka Joshua

QDA: A Queer Disability Anthology, Raymond Luczak, Editor.

The Right to Maim: Debility, Capacity, Disability, Jasbir K. Puar

Sitting Pretty, (memoir), Rebecca Taussig

Sounds Like Home: Growing Up Black & Deaf in the South, Mary Herring Wright

Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane and Live One Step Ahead of Your Symptoms, Ilana Jacqueline

The Things We Don't Say: An Anthology of Chronic Illness Truths, Julie Morgenlender

Uncanny Bodies: Superhero Comics and Disability, Scott T. Smith, José Alaniz 

Uncomfortable Labels: My Life as a Gay Autistic Trans Woman, (memoir), Laura Kate Dale

Unmasking Autism, Devon Price

The War on Disabled People: Capitalism, Welfare and the Making of a Human Catastrophe, Ellen Clifford

We've Got This: Essays by Disabled Parents, Eliza Hull

Year of the Tiger: An Activist's Life, (memoir) (essays) Alice Wong

Picture Books:

A Day With No Words, Tiffany Hammond, Kate Cosgrove-

A Friend for Henry, Jenn Bailey, Mika Song

Ali and the Sea Stars, Ali Stroker, Gillian Reid

All Are Welcome, Alexandra Penfold, Suzanne Kaufman

All the Way to the Top, Annette Bay Pimentel, Jennifer Keelan-Chaffins, Nabi Ali

Can Bears Ski?, Raymond Antrobus, Polly Dunbar

Different -- A Great Thing to Be!, Heather Alvis, Sarah Mensinga

Everyone Belongs, Heather Alvis, Sarah Mensinga

I Talk Like a River, Jordan Scott, Sydney Smith

Jubilee: The First Therapy Horse and an Olympic Dream, K. T. Johnson, Anabella Ortiz

Just Ask!, Sonia Sotomayor, Rafael López

Kami and the Yaks, Andrea Stenn Stryer, Bert Dodson

My Three Best Friends and Me, Zulay, Cari Best, Vanessa Brantley-Newton

Rescue & Jessica: A Life-Changing Friendship, Jessica Kensky, Patrick Downes, Scott Magoon

Sam's Super Seats, Keah Brown, Sharee Miller

Small Knight and the Anxiety Monster, Manka Kasha

We Move Together, Kelly Fritsch, Anne McGuire, Eduardo Trejos

We're Different, We're the Same, and We're All Wonderful!, Bobbi Jane Kates, Joe Mathieu

What Happened to You?, James Catchpole, Karen George

The World Needs More Purple People, Kristen Bell, Benjamin Hart, Daniel Wiseman

You Are Enough: A Book About Inclusion, Margaret O'Hair, Sofia Sanchez, Sofia Cardoso

You Are Loved: A Book About Families, Margaret O'Hair, Sofia Sanchez, Sofia Cardoso

The You Kind of Kind, Nina West, Hayden Evans

Zoom!, Robert Munsch, Michael Martchenko

Plays:

Peeling, Kate O'Reilly

---

With an extra special thank you to @parafoxicalk @craftybookworms @lunod @galaxyaroace @shub-s @trans-axolotl @suspicious-whumping-egg @ya-world-challenge @fictionalgirlsworld @rubyjewelqueen @some-weird-queer-writer @jacensolodjo @cherry-sys @dralthon @thebibliosphere @brynwrites @aj-grimoire @shade-and-sun @ceanothusspinosus @edhelwen1 @waltzofthewifi @spiderleggedhorse @sleepneverheardofher @highladyluck @oftheides @thecouragetobekind @nopoodles @lupadracolis @elusivemellifluence @creativiteaa @moonflowero1 @the-bi-library @chronically-chaotic-cryptid for your absolutely fantastic contributions!

---

Submit a Book:

[fromchaostocosmos]

I know this is not the point of the post, but I feel it is in the spirit of the post. I think this information is very helpful if to know if you have sort disability that may cause a problem in you safely evacuating a building.

Like for example I have asthma and I have PTSD.

I can imagine for diffrent reasons how depending on the situation those things may cause me problems in terms of safely evacuating a building.

Like if I'm trying to evacuate from a very high level floor at some point I may start to have issues because of asthma.

Or depending on the day and how I'm doing the alarms, the people rushing, the feeling of being trapped, the loud sounds, etc may cause me to start experiencing an anxiety or panic attack because of PTSD.

Knowing the information about I'm supposed to do, which this post explains but in the context of a diffrent situation is very reassuring and helpful.

I can imagine that for people who might have concerns like me in regards of what to do because their own disabilities and/or neurodivergence having this information is reassuring.

Wait what's a buildings fire evacuation plan if you aren't supposed to use the elevator to get down

[yeoldenews]

I was so moved by what a good sister Beth had - then I found said sister's Dear Santa letter as well... and I'm thinking Beth may want to reconsider letting her sister have custody of her doll, even temporarily.

(sources: The Knoxville Sentinel, December 7, 1901, and December 19, 1903.)

[spooksicl-e]

new year, old john watson doodles^^

[awifemadeofbutterandchives]

this was genuinely so sweet of Chanse Amber

[doyouknowthisdisabledcharacter]

Do You Know This Disabled Character?

Cytherea Loveday has terminal blood cancer and uses mobility aids.

Art is by @kerosene-art, the post can be found here.

[benevolenterrancy]

@fluffypurpleglitterdemon hey. hey. i just want to talk.

[creekfiend]

I'm soooooo tired of living like this I need competent medical care I NEED CARE. HELLO????? I'M SO FUCKING TIRED!!!!!!!!! SCREAM

[dumbasswithapen]

can we just listen to Disabled people when they say what accommodations they need??? Like it really isn’t that hard to just take someone’s word on what is best for their own body! Whether it’s more or less or different than what you deem they need it really isn’t your place to say!!!

Sometimes, people need more than they show! Especially if they’re used to being in pain all the time, then they won’t always display that discomfort.

Sometimes the accommodations someone needs are different than what you assume. A friend who struggles with noise sensitivity may ask for you to turn on a different type of music, instead of turning it down, and if that is what they express they need you don’t have to say “oh no I can just turn it down!” and ignore them saying that that isn’t necessary because your idea of noise sensitivity is different than their own experiences and needs.

And sometimes people need less than you try to provide! Or simply don’t want that accommodation at the time! And here’s the crazy part: this applies even if what they say to do could hurt them. Obviously this isn’t a rule for every situation*, but for some it absolutely is. If your friend wants to tag along for, say, a hike, and they have joint pain it isn’t your place to add in “oh no but they can’t do [the hike]! They’ll be in pain! We have to do something else to accommodate them!” If that person expressed a desire to go, especially if offered other options prior that wouldn’t hurt them, let them live. Let them do the thing that puts them in pain, because Disabled people don’t always want to be shoved into a little box of safety. Absolutely sometimes they do, and some might always want to, but if they don’t, then let them make their own choices for their body. Just as anyone else does. You go out and get drunk, even if it gives you a hangover. You go skating even if you’re shit at it and scratch up your knees a bunch. Just because someone is Disabled doesn’t mean that they can’t do the same thing and do that fun thing that hurts them.

I don’t know if I’m displaying my point how I want, so here’s my own example: I am allergic to the cold. Anything below 60 degrees (f) I get hives. Any water cooler than a fucking warm shower I get hives. My joints don’t do great when it’s cold out. This does not mean that when I say I want to go swimming, you can say “oh but you can’t you’ll get hives!” Or “no you can’t do that you’ll be in pain!” Because. I know that. I know that. I know my Disability better than anyone else can, and I can ask for accommodations I need. I am not a child to be wrapped in bubble wrap so I don’t get hurt. My body is my body and I can do with it what I want, and face the consequences. Likewise, just because I said I wanted to go swimming doesn’t mean that when I don’t want to go out and muck around in the snow it is anyone’s right to say “oh but you wanted to swim earlier, so obviously it isn’t that bad for you!” Or “oh it’s fine it’s not that cold! Just wear a sweater!” Because at that time I need and want different accommodations and that should be listened to and considered accordingly, as far as it can be in that situation.

Seriously. Just listen to us. We are in our own bodies. We know ourselves. It really isn’t that hard

*a situation where this point would be null is, for example, a situation where the person has been peer pressured into doing something, or one where you know the person well and know that the endurance of pain is a self-harming behavior

[rabbitindisguise]

migraine cheat sheet for folks not sure if they have migraines

A couple cardinal signs for migraines:

pulsating/throbbing

nerve pain-like (tingly, electric, shooting)

aching, especially radiating into the jaw

can be on one side or both sides, in one area or more than one area, or even at the base of the skull, front of forehead, etc

at least one of sound sensitivity, light sensitivity, nausea +/ vomiting, and veritgo (typically- there are subtypes and other headache disorders)

and of course migraine aura (flashing lights, dark spots in vision, etc)

can come in short bursts of 1-30 seconds repeatedly, can last for hours or even weeks, and have different phases with different associated symptoms

Headaches:

don't interfere with work, school, or socializing

mildly annoying

take a lot of effort (weeks of staying up too late, being hungover, etc)

happen infrequently (closer to 1-2 a year)

are not "bad ones" (if you had "regular headaches" and "bad headaches" then it's very likely you have migraines - though personally both headache types turned out to be migraines for me)

happen when you have the flu or another illness as a result and it's clears up by the time you recover from it

do not last 30 min - 72 hours with a clear start, middle, and end phase

don't make you feel wrung out dry afterwards

don't affect you neurologically (fuzzy feeling, slow movements, slurring, feeling exhausted/sleep deprived, feel like you can't rest properly even after taking ibuprofen)

don't respond to sumatriptan or another migraine reliver

you don't dread having a headache

you don't avoid chemicals/harsh scents, chocolate, concerts, or any other migraine triggers

[queerpdsys]

seeing disability awareness posts end with “TLDR; no, read it” is fucking WILD

[blue-mood-blue]

Danmei Faves Meet Chopped: The Thought Experiment

(with the caveat that I have not read All The Danmei so actually this is “a limited selection of danmei faves” meet chopped) (also as of their official translations, no spoilers pls)

The Contestants:

1) Xie Lian

Pros: There is not one single thing that you could put into a basket that this man would be intimidated by. Not a single thing. He will cook anything that you hand to him, and be delighted to do so. You cannot phase him with unlikely ingredients or conflicting flavor profiles, he has risen above these concerns. He is smiling at everything he pulls out of the basket and probably scaring the other contestants in the process.

Cons: He might kill someone. Not on purpose. He will be out after round one, guaranteed, once the medics standing by in case of cuts intervene for a severe case of “all the judges are now poisoned.” Filming will probably have to stop so ambulances can be called. The crew generously allows him to take his leftovers with him.

2) Wei Wuxian

Pros: He is going to pack so much flavor in every bite! Every single bite! This man knows and embraces spice, and no one will be able to tell him that his meal is bland or underseasoned! Chili oil all over the damn plate!

Cons: The flavor is pain, he’s used every pepper the pantry has, and if he makes it to round two it’s only because of Xie Lian accidentally unleashing the horrors in round one.

3) Mo Ran

Pros: He’s a good cook! He makes a variety of dishes, and he’s gotten used to adjusting recipes for specific preferences. He’s well-traveled so it’s likely he’s encountered many ingredients and had practice in a variety of conditions, which is good experience to have in this competition. He’s been doing his best to be on his best behavior, but heaven help anyone who monopolizes the fryer.

Cons: Again - he’s been on his best behavior, but that’s really for one person who is not currently in the kitchen. He also only really cooks for one person, who has particular tastes.

4) Luo Binghe

Pros: Also a good cook! He, too, has a range of dishes he knows how to prepare, with years of practice going back (probably) as far as his adoption in his early childhood. He is well-traveled as well, with such exciting and… unique locales such as Hell Dimension (aka Endless Abyss) where he probably had to make… questionable culinary choices, so he probably won’t be thrown by whatever’s in the basket.

Cons: There’s a non-zero chance that there’s blood in the food.

(Of this particular line-up, I think it would come down to Mo Ran vs. Binghe for the dessert round, which will be a close call - they both have experience with desserts, I imagine, but I think Mo Ran might have a slight advantage considering Chu Wanning’s sweet tooth. He’s made a lot of sweets and more often. Also, can Binghe lean on a “protagonist halo” when Mo Ran is the protagonist of his own story?)

(Assuming the final round doesn’t devolve into chaos and sabotage, which… is very, very possible.)

The Non-Contestants:

Hua Cheng: Could he do well on chopped? Almost certainly. But why would he? He is here to cheer on gege.

Lan Wangji: Would probably actually do better than Wei Wuxian, if he cooks the meal to Wei Wuxian’s taste - I feel like he would be a little more sparing with the spice. Otherwise, his food is probably too bland for the judges.

Chu Wanning: He has one good dish, and it’s [redacted]. He could last a round but after that he’s probably out. He will do his best. He will not look like he is panicking (he is panicking).

Shen Qingqiu: A millennial who choked to death on bad food and rage. He probably has limited kitchen skills, but beyond the powers of having a microwave? Who knows.

Bonus Round:

Li Yu: He would try so hard. He would put every bit of skill he had on the table. He does not have any skill to put on the table. Do not put a fish in his basket, do not do this to him.

Mu Tianchi: Probably wouldn’t even compete. He’s going to steal Li Yu’s food from the judges. How dare they.

Chang Geng: He could probably do well in the competition, if he could be convinced to compete, but he probably couldn’t. He is smiling very politely at the producer, who is feeling a chill down their spine and backing away slowly.

Gu Yun: Do not let this man in the kitchen, he will cause problems on purpose.

[applepixls]

in episode 5 etho tells grian and cleo hes "A bit physically disabled today" because of his weeping angel task and later when he's trying to succeed he says "i might need some assistance-" and grian asks "do you want me to help?"

i dont know much but i know chronic disabilities exist and can be more debilitating on some days than others and that help from friends is pretty cool

basically these two interactions put the idea of an ethoslab with some kind of chronic disability into my head and hope the world will do with that what it will :]

Happy Disability Pride Month everyone!