#diagnosis confusion
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why are functional disorders not seen as real? why is the functional part what makes people think it's not real? i'm autistic and struggling to grasp why the word functional means not real to a lot of people. like. it's a functional disorder. it affects functioning. why is that not a big deal? why does that make it not real like other disorders that aren't labeled functional disorders?
also why does it not count as a real disability if it's functional?
#functional neurological disorder#chronic illness#fnd#i'm genuinely confused people are so negative about the functional label#why. why is that bad in the medical field#i'm genuinely autistically so confused about this i don't get why that makes it a less serious diagnosis#or why people hate the word functional. what makes it such a heated topic / word?#struggling to articulate exactly what my problem is#i was so happy to be diagnosed with it bc it explains my symptoms#why is it not a good diagnosis? why is functional something that makes people think it's not that bad?
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hello i made a niche meme
#tried to start the process of getting my trans diagnosis today#a woman on the reception was confused from who to who i am transitioning#accisental ally 👌#trans#trans man#queer#transgender#lgbtq#trans memes
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reminder that the vast majority of systems stay covert until adulthood and anyone who goes around claiming you're "too old" to be discovering yourself as a system is fucking lying to you
#🥩.crimson#verified by literally every medical professional we know#YES the disorder DEVELOPS because of extreme trauma in early childhood#it is is NEVER diagnosed under 10#rarely under 18#and even then as an adult it is an extremely difficult diagnosis to get because the medical world is very harsh about it#IF YOU'RE 22 OR 36 OR 78 AND DISCOVERING YOUR SYSTEM THAT IS VALID#the disorder is SUPPOSED to stay covert for as long as possible because it's not SAFE for you to know about it#ask any system dude#life was confusing but WAY less complicated before we discovered all of this#anyway
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Transcripts are not for the transcriber's jokes or text speech (if a character says "see you later", the transcripts better not fucking say "C U") or background info that isn't part of the audio. Transcripts are accessibility aids and should provide full and accurate text that matches the audio.
I'm sorry if this makes me a killjoy, but those little additions are really only fun for the transcribers; the people who actually need those transcripts just want to understand the show without getting distracted or confused by inaccurate transcripts.
#look i am hoh (probably i haven't gotten a diagnosis but) and mostly use transcripts to fill things in#audio is very confusing for me and i miss a lot of it but it's a lot easier to understand with the transcripts#but that also means that i can recoginze when the transcripts don't match or say bullshit that isn't in the audio#which is frustrating and confusing for me#but Deaf people and many other hoh people DON'T know when the transcripts are wrong#and it's fucking cruel and ableist to fuck with accessibility aids for your own amusement or convenience
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well today I learned that "the normal amount of pain is zero" also means "the normal amount of discomfort is zero", and that it is not healthy or normal to constantly be in varying levels of discomfort, and oh my god it feels like someone just flipped my entire world upside down and shook everything around like a snowglobe and I think I need to actually go cry in the bathroom before my brain explodes
#personal#vent#anya shush#delete later potentially#my brain just keeps going around and around in confused circles#like i'm okay i'll be okay i'm not dying. it's just. wow#anya's house of whining#differential diagnosis
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is this a manic episode or am i just in a Good Mood
#my bipolar diagnosis has been both devastating and Enlightening. that being said. also confusing.#productivity is high tho so im leaning manic but i slept good last night so... also maybe notm#much to consider#actually bipolar
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oh i love that in response to me sort of coming out as face blind on a FB post (because it's gotten so much worse that i feel like i do actually need to tell people now), all of my most autistic/ADHD (but mostly autistic) friends are showing up in the comments in support :') <3
we're all talking about not getting diagnosed or even suspecting certain kinds of neurodivergence until adulthood & it's fucking hilarious because i could have told you years ago about these friends being autistic & i bet they also pinged me as ND but not themselves
i still don't think i'm autistic but i really am out here queering the autistic/allistic binary sometimes lmao (obligatory disclaimer it's not a fucking binary. diesemfive categories do not dictate reality)
i'm about to write something for a zine someone's making about sensory issues with food & i'm like. the only non-autistic ARFID person i know. i wish more people were aware of The Cluster, which is my fun term for the autism, ADHD & anxiety Venn diagram that's mostly circle
#please do not mistake me about late diagnosis. i don't have my head up my ass i know it's harder to have been pathologized & controlled#when you were a vulnerable kid!#but it does help me to talk to other people who also went a considerable portion of our lives feeling guilty & confused#without any understanding of what might be causing some of our issues#it all sucks. being disabled in an ableist culture sucks#ailments
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Am I in love or is it my ADHD?
#i should probably explain what i meant by this#for me personally i was referring to the symptom “emotional dysregulation”#meaning#my emotions are all over the place#so i can love a person platonically and intensely#causing the confusion#adhd symptoms#adhd brain#actually adhd#adhd problems#adhd things#adhd diagnosis#adhd awareness#mental health#adhd#attention deficit hyperactivity disorder
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i wish i could tell you im 100% certain that im 100% neurotypical. but that would be a lie. and lying is wrong.
#considering not posting this#I DUNNO BRO#i just look at the list of ADHD symptoms and then i look at myself and i dunno MAYBE ive got something goin on#of course i could just be lazy#but i dont think thats it??#i dont knooooowwwwww#getting a diagnosis sounds hard and self-diagnosing sounds scary#so im just gonna say im neurotypical but i MIGHT not be#shout out to my friends who ARE diagnosed for making this more confusing#(they have agreed i definitely have ADHD apparently without my consent)#so yeah ignore this#three pigeons in a trench coat
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GENUINELY GOOD ADVICE and could help some!
delirium:
How to deal with agitated or violent individuals.
#confusion#uncertainty#struggle#existence#emotions#neurodivergent#actually neurodiverse#neurodiverse stuff#neurodiversity#neurospicy#psychology#neuroscience#symptoms#diagnosis#mental#self awareness#self love#self improvement#support#help#share this post#did community#plurality#narcissistic personality disorder#Bipolar#mental disorders#mental disability#mental illness#mental heath support#mental heath matters
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so the funny thing about radiology as a specialty especially in the training is because you're doing outright diagnosis and constantly generating reports, you can much more quickly get very like blatant and obvious feedback if your attendings think you're an idiot cuz you can get a flat out WRONG on your report so the day after every shift i check all of my previous reports from the night before to see if the attending and i are in agreement and like it's kind of incredible cuz my heart races like i'm taking a fucking exam every time and i'm like a grown adult lmfaooooooooooo
i will say unlike getting a d on an exam, the outcome can be like... death so it makes sense for me to be stressed but man oh man
#the nice thing tho#is that now that i'm at the end of my training#the attendings just mostly agree#and rarely modify my reports#and it's honestly really nice to see#like i'm ready for independent practice basically which is so so nice#and i can actually disagree on a diagnosis with good standing#or sometimes my attendings will be confused on a case and ask ME for help and that's such a good feeling#mimi medicine
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Having complicated emotions about my possible neurodivergency again
I just wish I could at least get tested to see if I have ADHD because I just want to know if my years of research and analyzing my brain means anything. Because I don’t want to self diagnose. But I just know something is up with my brain and I don’t know what it is
If I don’t get a diagnosis, then I’ll never know and I’ll never get the resources I need or the community of other neurodivergent individuals (in the case that I do have ADHD or something else) but if I do get a diagnosis and end up being neurodivergent, I’ll be shamed by my family and end up alone in that way. So I don’t win in either situations
And I know I can use resources if they help make my life easier, but I feel like such a fraud like, “Oh look at this loser, she’s using resources for people with ADHD and Autism even though she’s undiagnosed, I bet she’s just faking it.”
I don’t want to be unfair to those who do actually need help but I also feel like I need help with nobody to help me and I’m lost and scared and frustrated and confused and hghhghhjgfhhnn
#it’s so complicated and I don’t know what to do#I’d really be getting the diagnosis for me#because as I’ve mentioned before#medication scares me#but even that makes me feel bad#idk I’m just thinking out loud#I’m just tired of being confused#and I’m tired of being stuck in the middle of something#did anyone else feel like this before they got diagnosed?#I need some insight#because I don’t want to be that person who takes away from people who know for sure that they are neurodivergent#because I would feel terrible if I did that#sfw interaction only#sfw agere#sfw age regression#age regressor#age regression#agere blog#agere positivity#quizzyrambles#Quizzyrants#quizzyvents
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Being a system whose prone to splitting off introjects is so confusing sometimes (And just kind of feels surreal at times, tbh. Like are we sure this isn't some prolonged fever dream? /j)
Like what the fuck do you mean my brain has split off like 10 different variations of fucking Sans the Skeleton? Brain why did you decide that was needed???? Is that really what's gonna help you cope with this shit????? Really??????? The bone man????????
#I'm not even upset just very confused#why so many#you're gonna make the imposter syndrome kick in if you don't stop istg#and my dumbass brain will not accept my own LITERAL DIAGNOSIS as reason to stop feeling that once the imposter syndrome starts#introject#fictive#actually dissociative#actually plural#introject heavy#actually osdd#actually traumagenic#osdd#did#dissociative identity disorder#otherwise specified dissociative disorder
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I know I talk a lot about health anxieties on here and I feel very grateful that it’s a space I can do that. It’s hard to voice them in my personal life without other people forming their own opinions on I’m going through, which is such a can of worms.
#I need to see a neurologist but even if I do and they figure out some of my issues or give me proper diagnosis for what I have#I will still have the majority of my symtoms#which is to say#I’m worried that my symptoms are too confusing for my providers and they’ll like. not drop me as a patient#but not be able to treat me because I have holistic issues#like chronic pain causes anxiety and stuff like that#every day I become more aware of how living with chronic health issues is a constant act of self actualization#through discovery and rediscovery#and the closer I can get to treating my conditions is the closer I can get to becoming the kind of person I want to be#mental health and health issues in general would have much better outcomes if we were able to frame it in that light for society generally#I digress#but it helps me to think of it that way#if you see this wish me luck on finding a good neurologist! I’ve needed one for a while but better now than never ykno#personal#health tag
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..
#saw a psychiatrist for the very first time earlier this week#it was like.. fine? idk.. is just weird#i feel like i can never say what i want to say how i want to say it and i feel like i forget so much and get so fawn-response at the doctor#idkkkk#he told me i have BPD which like okay i mean no surprise to me i have known i for the criteria for 10 years now lol#but for some reason that being the first thing he landed on annoyed me lol#especially after he told me i don’t meet criteria for PTSD which fine i guess.. it’s wayy more CPTSD which isn’t a diagnosis here sooooo#anyways anyways#i hope in the future maybe i have the courage to bring up autism but like.. eh.#in this first appt he already seemed confused by why i was struggling so much to take care of myself but can maintain#my high-demand technical ‘smart person’ job#to which i said that is the *only* thing i can maintain at the detriment to everything else in my life#anywaysssss#i just cant tell if i were to bring up autism if he would be the type to “’i have a masters degree and maintain a job and AFAB so no’#‘it’s just the BPD’#as if bpd and complex trauma and autism don’t all intensely overlap and hold hands lol#ANYWAYS#first ate i guess is at least i have a psychiatrist now#and m proud of myself for that and for going
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MAJOR LIFE UPDATE!
I have some good news and some questionable (?) news.
First off, MY LAST BIOPSY RESULTS CAME BACK CANCER FREE!
Now my doctor is very optimistic! He says I have hyperplasia inside me (which is non-cancerous masses basically) and that will/should thin out as my body clears itself out (aka lots of random bouts of bleeding)
Now for the questionable news.
I’m still under treatment, which means another surgery will be in 3 months (ironically the same month I had my first surgery ever and when I was first diagnosed). I’m still taking medicine like before and I’ll be having more biopsies to make sure it’s not growing back.
So…there’s that 🤷♀️…
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