#diabetes advocacy

[crippledpunks]

i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary

[gofitnesspro]

Diabetes in Young Adults: Causes and Solutions

Addressing the rise of diabetes in young adults requires comprehensive strategies that promote healthy lifestyle choices, including regular physical activity, balanced nutrition, stress management, and increased awareness of diabetes risk factors. Additionally, early detection through regular screenings and improved access to healthcare can help identify and manage diabetes at an earlier stage,…

[hopegrasping]

It's important to think before you speak and Prioritize what Your Actual Problem Is!

If you spend all your time pointing at the "dope addict" (I'm rolling my eyes btw I love addicts with everything in me. I have family in recovery remember your "dope addict" is family, friends, neighbors everywhere. You are not better for not having their specific struggle. Don't dehumanize my loved ones.) screaming about what They get, you will not fix Your problem. People in power care about Money and Not You if you tell Those People you don't understand why narcan is free for addicts while your insulin costs A Lot, they aren't going to make your insulin free- they're going to take away the narcan to shut you the fuck up. Narcan is used for saving people from Overdosing. Do you want that to be taken away?

Think about the weight of that. Think about the process of dying of an overdose on whatever drug of choice you are concerned about. You're high and scared and suffering the whole way through and a lot of people who die this way die completely Alone. Do not complain about the life saving medicine they get for emergency, life threatening situations. Drug addiction isn't a pick yourself up by the bootstraps situation and picking yourself up by the bootstraps is a satirical statement coined by labor unions (edit: not coined by! It was actually coined in a physics textbook, but is now used by unions and general people alike to describe an impossible task-- all this to say, anyone who uses the term literally doesn't understand what they are saying. They are just saying a thing because they've heard it before and accepted its contextual meaning as reality.) because You Can't Pick Yourself Up By Your Bootstraps. Because the straps are on your boots. Back to my original point -- People suffering from addiction need this support and community this board is complaining about and painting as unfair. What we really want is equity. We want free narcan for the addicts so they don't Die Forever AND free Insulin so the folks who need insulin don't Die Forever. Not to exchange one for the other. Neither party should be left in the dust. Advocating for your rights by pointing out the rights of others and being mad about them Only hurts normal everyday people. Your actions and your words have power and they Can and Will be used against us in ways we never intended them to unless we are very thoughtful about the words we use, which is why it's important to be as clear and concise as possible with your demands. Know what Your problem is and talk about Your Problem.

Pay attention to what you're saying and make sure you are advocating for more, not for less.

[windysjourney]

Unraveling The Mysteries of Autoimmune Diseases

In the intricate tapestry of the human body, the immune system stands as a vigilant guardian, defending against invading pathogens and maintaining overall health. However, in some cases, this defender turns against its own host, giving rise to a category

In the intricate tapestry of the human body, the immune system stands as a vigilant guardian, defending against invading pathogens and maintaining overall health. However, in some cases, this defender turns against its own host, giving rise to a category of diseases known as autoimmune diseases. This blog post aims to unravel the complexities of autoimmune diseases, exploring their causes,…

[auschizm]

I see the "mental illnesses are caused by chemical differences in the brain which psychiatric medications can fix - just like how insulin treats diabetes" in a lot of mental health advocacy posts on this website, and I just want to state that this theory is not scientifically proven let alone factual. It has, for many decades, been a very useful narrative for selling and normalizing the use of psychiatric meds, and to add credibility to psychiatry as an institution of science. But despite many attempts, there isn't scientific documentation to back up that this is actually how mental illness works let alone how psychiatric meds treat mental illness. This is not to say that psychiatric meds can't and doesn't help anyone, but the "chemical imbalance" theory is a pop science myth - not actual scientific fact.

[crippledpunks]

chronic fatigue weaves its way into everything. people love to tell disabled people they'd love to rest as much as we do, but they fail to understand how tired we are while we rest. we are not relaxed, we are generally pretty miserable, either from pain, irritability, or fatigue- which bleeds into every aspect of your life. being too fatigued to get up off of the couch means that you're too fatigued to get to the cupboard to pull out pans to attempt to start cooking.

the steps hidden within steps that are required to do a lot of tasks related to being a "functioning adult" are daunting, there are often way too many steps necessary to make "Simple" foods or do "simple" chores for disabled people to accomplish these tasks. chronic fatigue often means that even waking up from a nap or night's rest requires time to adjust to and power through

waking up is a process for me. im often no more alert and awake hours after i've woken than I am right after doing so. caffeine does not help fatigue- at least not at safe doses, for me, anyways. many days the act of moving from my bedroom to my living room is too much. taking dishes to the sink can be too exhausting. i have began falling asleep in front of the kitchen counter while standing because i realize the amount of steps required to clean the counters, or do the dishes, or prepare a meal that all of my energy instantly bleeds away

it's okay if you feel this way too. i have been dealing with chronic fatigue my entire life and it cost me my best paying job. i lost my ability to work because of it. it's not just you being "sleepy", you are genuinely too exhausted to function. you do NOT have the energy levels other people do, and that's okay. it's okay to let yourself be tired sometimes and address that instead of trying to pretend you're not tired.

i wish you good luck. you are loved

[covid-safer-hotties]

Not sure how many Scots follow me, but here's some instructions for how to contact your government about long covid.

[blackpearlblast]

Night 2: Nisreen Shaheen's Family

Nisreen Shaheen is trying to get her family to safety. They have lost their homes and been displaced multiple times, according to the last update on their GoFundMe page they had been sheltering at the St. Porphyrius church with 400 other people. Her grandmother has diabetes and osteoporosis, and is struggling to keep up with her medications due to the scarcity. They had hoped to be able to safely reach the Rafah border crossing to try to evacuate to Egypt, but with the border having been closed in the months since this original plan was made, this fundraiser is likely the only thing allowing them to pay for food and medicine to stay alive. Nisreen Shaheen and her family deserve to be reunited and we can, in some small way, help work towards making that possible.

This campaign was shared by the Australia Palestine Advocacy Network. This post is part of a series of posts where I highlight one campaign for each night of Hanukkah and you can view the rest here. I will be donating 20 USD to Nisreen Shaheen's campaign. I encourage you to give what you can, even if that's only the minimum donation value or just a reblog! Small acts of kindness and hope have the potential to do far more than we know, so long as we have the courage to give them a try.

[acti-veg]

hi, do you know of any charities which help people with diabetes which don't conduct animal testing please? thank you

Hey anon. This is a bit tricky without knowing where you are, as most of these organisations are national. I can give you some general advice, though!

With health charities, you’re better off looking for groups that are engaged in support functions rather than research. Look for those who are focused on patient advocacy and education, in particular. If they’re engaged in research then they’re probably testing on animals, unfortunately, though there are some exceptions, like Animal Free Research here in the UK.

[liminalweirdo]

Wearing a mask IS harm reduction because when you wear a mask in public spaces, you reduce the risk of spreading an illness that:

Affects most systems of the body, that increases the burden of cardiovascular disease, diabetes, neurologic impairment, and autoimmune conditions, and that with repeated infections, WILL lead to Long Covid (1).

That is more likely to infect low income workers, worsening their financial burden and increasing their risk of deeper poverty (2, 3). That is more likely to result in worse health outcomes and death in BIPOC communities (4, 5).

Is more likely to cause Long Covid in trans individuals than cisgender folks (6).

Makes it more unsafe for those with various disabilities to participate fully in their communities and meet their needs (you can find so many people saying this based on their personal experience. if you don’t know this yet, maybe it’s because you don’t have disabled folks in your community networks. And there’s a good chance that is because you’ve made it nearly impossible for them to be a part of it. Sit on that for a minute).

Masking as a Liberatory Practice of Harm Reduction

If we know that liberatory harm reduction calls for the respect and recognition of those with lived experience to help guide advocacy, and to learn from their knowledge, why are those of us with long covid and who are covid conscious being so forgotten about in social justice spaces? Why are spaces that claim to be rooted in anti colonial and anti racist practices seemingly ignoring the advocacy and education being brought forth by the communities with lived experience?

To our fellow community organizers and members: can you confidently say and stand by the fact that your unmasked practices, experiences, and events are worth it at the expense of the health and lives of those of us most deeply affected by the Covid-19 pandemic?

Your community members are telling you that masking is critical for reducing harm. We are speaking from our lived experience. Now, you get to decide if you want to listen and learn, or ignore our knowledge and continue harming us.

source

[windysjourney]

Unraveling The Mysteries of Autoimmune Diseases

In the intricate tapestry of the human body, the immune system stands as a vigilant guardian, defending against invading pathogens and maintaining overall health. However, in some cases, this defender turns against its own host, giving rise to a category

In the intricate tapestry of the human body, the immune system stands as a vigilant guardian, defending against invading pathogens and maintaining overall health. However, in some cases, this defender turns against its own host, giving rise to a category of diseases known as autoimmune diseases. This blog post aims to unravel the complexities of autoimmune diseases, exploring their causes,…

[globalnewscollective]

Your Health, Your Life: What Happens When the Government Hides Critical Medical Data?

Imagine going to a doctor, only to find out they can’t properly diagnose or treat you because the government has erased vital health data. This isn’t a plot from a dystopian novel—it’s happening right now under the Trump administration.

The Centers for Disease Control and Prevention (CDC) has quietly removed crucial health statistics from its public database, making it harder to track issues like obesity, suicide rates, and other critical public health crises. These removals aren’t just bureaucratic decisions; they are calculated moves to suppress inconvenient truths that don’t align with the administration’s narrative.

What Data Is Being Erased?

Obesity Statistics: The U.S. has an obesity crisis, with millions at risk of diabetes, heart disease, and other severe conditions. Removing obesity data makes it harder to allocate resources to fight this epidemic.

Suicide Rates: Suicide is one of the leading causes of death in the U.S., especially among young people and veterans. Eliminating this data hinders suicide prevention efforts and mental health advocacy.

Gun Violence and Public Safety Data: Many CDC studies on gun deaths and injuries have vanished, making it harder to understand and combat firearm-related deaths.

Reproductive Health and Maternal Mortality Rates: Women’s health data, particularly concerning pregnancy-related deaths, is disappearing, erasing evidence of the crisis facing mothers in America.

Medical Treatment Guidelines: The CDC has also deleted treatment guidelines for doctors, including protocols for treating sexually transmitted infections (STIs) like syphilis and chlamydia. This means that doctors may lack up-to-date recommendations, leading to misdiagnoses and inadequate care.

Why This Matters to You

Health data is not just numbers on a spreadsheet; it determines funding, policy decisions, and life-saving medical research. Without accurate statistics:

Doctors and researchers can’t properly study health trends, leading to misdiagnoses and inadequate treatments.

Lawmakers won’t have the information needed to craft policies that protect public health.

You and your loved ones may not receive critical services because the crisis isn’t being documented.

Journalists and advocates lose a key tool to hold the government accountable for public health failures.

The Bigger Picture

This is not an isolated incident. The Trump administration has systematically erased or altered data across multiple federal agencies, from climate change research to economic inequality reports. The goal? To control the narrative and eliminate evidence of policy failures. If there’s no data proving a problem exists, the administration can pretend it doesn’t.

By removing statistics on obesity, suicide, and other health crises, the government is not solving these problems—it’s hiding them. And when problems are hidden, they grow worse.

What Can You Do?

Demand transparency: Call your representatives and insist that public health data be reinstated.

Support independent research: Organizations like the Kaiser Family Foundation and the Guttmacher Institute work to provide accurate health data despite government censorship.

Speak out: Share this information on social media and educate others about how data erasure affects everyone.

Vote for leaders who prioritize science, public health, and government transparency.

We can’t afford to let critical health data disappear. The consequences could be deadly.

[my-specials-interests]

30 Facts about Autism

Autism spectrum disorder affects 1 in 36 children.

Boys are nearly 5 times more likely than girls to be diagnosed with ASD.  Girls are often underdiagnosed with autism and misdiagnosed with other conditions.

Autism spectrum disorder is one of the fastest-growing developmental disorders in the United States. ASD is more common than childhood cancer, diabetes, and AIDS combined.

Autism spectrum disorder affects all nationalities, all creeds, all religions, all races and both sexes. It doesn’t differentiate or affect only one group.

Self-Advocacy is an important skill that is especially important for autistic individuals. In order to be a great self-advocate, people first must know what their strengths are as well as what accommodations serve them the best. With that knowledge, they can be their own best advocate with family, school, or community.

Autism spectrum disorder is a developmental disability that often presents with challenges before the age of 3 and lasts throughout a person’s lifetime. 

Early identification, treatment, and support matters! Many important outcomes for children's lives are significantly improved with early diagnosis and treatment.

Early behavior-based interventions have positive effects on some children with autism spectrum disorder and less note-worthy effects on other children. Early services need to be based on individual children's needs and learning styles. Services for adults with ASD must be carefully individualized.

There is currently no medical detection blood test or cure for autism spectrum disorder.

Parents do not and cannot cause autism spectrum disorder. Although the multiple causes of ASD are not known, it is known that parental behavior before, during, and after pregnancy does not cause ASD.

Many individuals with autism spectrum disorder have difficulties with communication. For some people this can look like significant challenges with spoken language and for others it can look like challenges with social communication.

Autism spectrum disorder is not a disorder that gets worse with age. Individuals with ASD can learn and build new skills with the right support, and are most likely to improve with specialized, individualized services and opportunities for supported inclusion.

Being nonverbal at age 4 does not mean that a child with autism will never speak. Research shows that most will learn to use words and nearly half will learn to speak fluently.

Children and adults with autism spectrum disorder often care deeply but struggle to spontaneously develop empathic and socially connected typical behavior. Individuals with ASD often want to interact socially but lack the ability to spontaneously develop effective social interaction skills.

Supporting an individual with autism spectrum disorder costs a family $60,000 a year on average. The cost of lifelong care can be reduced by 2/3 with early diagnosis and intervention. According to a recent study, the lifetime costs of autism average $1.4 million to $2.4 million.

Co-occurring medical conditions in autism spectrum disorder are common and may include allergies, asthma, epilepsy, digestive disorders, feeding disorders, sleep disorders, sensory integration dysfunction, cognitive impairments, and other medical disorders.

Children and teens with autism often have lower bone density than their peers.

Up to a third of people with autism spectrum disorder also develop seizure disorders—the rate of seizures in people with ASD is 10 times higher than in the general population.

About 10% of people with autism spectrum disorder also have another genetic, neurological, or metabolic disorder.

Each person with autism spectrum disorder is a unique individual; people with ASD differ as much from one another as do all people. Children and adults with ASD may speak or interact with others. They may have good eye contact. They may be verbal or non-verbal. They may be very bright, of average intelligence or have cognitive deficits.

Hyperlexia, the ability to read above one’s age or grade level in school, commonly accompanies autism spectrum disorder.

Individuals with autism spectrum disorder may be very creative and find a passion and talent for music, theater, art, dance, and singing quite easily.

Children with autism are 160 times more likely to drown than typical children. Therefore, it is very important to teach them to swim and to keep an eye on children around water.

Researchers and clinicians hypothesize that symptoms of autism spectrum disorder in males and females may differ, leading many females to be diagnosed later than males. Females with autism spectrum disorder are often an understudied group in research.

Gender differences in symptoms have been found within the areas of social understanding, social communication, and social imagination.

About 50,000 individuals with autism spectrum disorder will exit high school each year in the United States. Many services required by law end abruptly after high school, leaving young adults under-supported.

35% of adults with autism spectrum disorder have not had a job or received postgraduate education after leaving high school.

Employers are recognizing that creating a neurodiverse workforce is fundamental for success. Companies that recruit, retain, and nurture neurodivergent employees gain a competitive advantage in the areas of productivity, innovation, culture, and talent retention, to name a few.

There is no federal requirement for providing supportive services to people with autism in adulthood. This leaves many families navigating these types of services on their own.

Many people with autism spectrum disorder are successfully living and working and contributing to the well-being of others in their local communities. This is most likely to happen when appropriate services are delivered during the child's educational years.

source : https://www.massgeneral.org/children/autism/lurie-center/30-facts-to-know-about-autism-spectrum-disorder

[darkmaga-returns]

A 2025 Israeli study in Pediatric Rheumatology found a 23% higher risk of autoimmune diseases (e.g., Type 1 diabetes, rheumatoid arthritis) in children/adolescents who received COVID-19 vaccines compared to unvaccinated peers. The risk peaked 8.74 months post-vaccination.

Notably, children who contracted SARS-CoV-2 naturally did not exhibit increased autoimmune risks, highlighting a potential vaccine-specific concern.

The study aligns with other research linking mRNA vaccines to autoimmune triggers (e.g., spike protein persistence, genetic changes) and immune dysfunction, though debates over causality persist.

The U.S. HHS, under Robert F. Kennedy Jr., plans to halt routine COVID-19 vaccine recommendations for children and pregnant women in 2025, citing safety concerns and advocacy pressure.

The findings and policy changes intensify debates over vaccine mandates, with calls for long-term safety studies and transparency, while critics warn of unintended public health consequences.

[crippledpunks]

i love you so much if you are diabetic, or pre-diabetic. our society treats diabetes so poorly. it's such a readily mocked condition, people often times resort to blaming the individual for having it, even going so far as to pass judgment on the diabetic's character, regardless of what type of diabetes they have.

diabetics are wonderful and deserve to love themselves regardless of whether or not they 'gave' themselves their diabetes. whether or not the person is "unhealthy" whether or not the person eats "right" or knows how to eat in ways that are safer for their body doesn't matter, they still deserve love, respect, and compassion.

diabetes is not a fucking judge of character. diabetics deserve better. diabetics deserve respect. diabetics deserve to be recognized as disabled. diabetics deserve kindness, love, care, compassion, and support. no matter what.

[sclfmastery]

im sorry if this is a bother but because i know you're also disabled and are/were involved in academia i wanted to ask something.

im a student in senior year (18) and im chronically ill. in the first quarter my school basically allowed me to do "weighted work" because i got super sick and was incredibly behind and it was the only way for me to catch up.

in the second quarter i did good and got straight As. but now the third quarter is closing and im thinking of asking for a medical exemption.

obviously no pressure to answer but if you had a student who basically got off easy in the first quarter and then is now looking for a medical exemption for the third would you think they were lazy?

i swear im actually smart. like i have a 4.0 GPA. its just that this year my health got really bad.

sorry to ask and have a nice day!! may it be *lightning strike sound effect* masterful

First things first: You are NOT lazy, and I would never think so. Any faculty, school counselor, or student resources coordinator who is good at their job would recognize this. Unfortunately, your fear of being perceived as something you are not (something that may, in fact, not exist in the first place) is based in being surrounded by abled (and ableist) systems, and societies. You can still navigate them, even though it is and will be frustrating.

I want to tell you something about myself: I have one major regret in life, and that is that I cared more about being perceived as a hard worker and "good kid" than I cared about RESTING. I got a 4.0 every semester of undergrad and graduate school, too. I took only ONE medical leave of absence in 12 years of higher ed schooling. I put my Type 1 diabetes on the back burner and let my A1c run way too high, so I could make all those meetings and writing deadlines, conferences and committees. And today my kidneys are three percentile points away from totally failing. I'm only 41 years old and soon I will be going on dialysis (temporarily, while I find a kidney donor, but that whole process won't be fun).

I don't blame myself, or think I'm "bad" for my choices, but I wish I'd had different priorities. I am proud of what I achieved academically and of the relationship I have with my students--but I didn't need to forsake self-care, physical and mental, to the extent that I did, in order to get where I now am.

Take the medical exemption. You are worth it. <3. High school senior year will be there when you're feeling better. College will be there when you're feeling better. And if it's a matter of turning down a scholarship to a specific university, you can speak to the campus disability resources coordinator about your situation. Big hugs from me. I am proud of you for seeking answers. It's the first step to self-advocacy.

If you need any more specific advice about the process, I can provide the perspective of an American educator, and I can try and ask friends from other parts of the world about the process if you're not also in the States.

Hang in there. You are ALSO.... * * * MASTERFUL * * * lol <3