#crpsstrong

[initforthelonghaul]

Imagine having a body that actually worked. Literally could not be me

[crps-chronicpain-ptsd]

Cause I live in constant pain and I often say “I’m fine” when im dying . Most the time I’m literally lost for words to describe how I’m feeling , no one wants to share how they are in pain 24/7. Because of this I’m OFTEN MISUNDERSTOOD! NO ONE UNDERSTANDS. I believe I don’t belong anywhere even when I’m at home. If my own family misunderstand or misinterprets me, what hope do I have with that outside world 🤷‍♀️

Chronic pain problems •

[rose-tinted-wings]

Chronic pain problems

Needing to do your physio to aid in pain relief and mobility

Hurting too much after being too mobile yesterday

Pain making the fatigue awful so that's another reason you can't drag yourself out of bed to stretch and strengthen

Knowing you're meant to do it on both good and bad days but remembering you were so busy yesterday you didn't do it then either

Feeling like a failure due to not being able to Human properly

[akatsuke42]

Hey everyone my wife is attending a clinic in Arkansas to help get rid of her chronic pain from CRPS and we are only a couple weeks away from being able to finish treatment. Unfortunately the clinic is very expensive and we are running low on funds. If you can help please do if not please share this around. She’s working so hard and she’s so close to being able to be pain free. Here is a link to the go fund me. I really appreciate everything

https://www.gofundme.com/f/help-andi-get-out-of-pain?utm_source=customer&utm_medium=copy_link&utm_campaign=p_cf+share-flow-1&fbclid=IwAR103bXn-9Gv7d_GrZl0VDqSiCtZhaxHdepQSsVJfSI9mdl_GOQpUT1rygA

[purringslumber]

#complexregionalpainsyndromeawareness #crpsawarenessmonth #crpsorangeday #crpslife #rsdcrps #crpswarrior #crps #crpsstrong #crpssucks #crpsfighter #crpsfamily #crpshope #crpssupport #crpscommunity #crpsreallygetsonmynerves #chronicillnesses #chronicpain #nervepain #nervepainsucks #disabledcommunity https://www.instagram.com/p/CWAOd3YAaS2/?utm_medium=tumblr

[spark-of-jenius]

Could use a little help :)

I haven’t wanted to share this before now but given the state of healthcare in our country, we’ve run low on options, so here we go. Please help if you can - sharing helps too!

Help Callie fight CRPS

My daughter Callie suffers from a type of progressive nerve dystrophy called CRPS or Complex Regional Pain Syndrome. On the McGill pain scale it clocks in at a whopping 42 - 47 out of 50, making it the most painful chronic pain condition known. This is higher than non-terminal cancer, higher than the amputation of a finger without anesthesia... and it's progressive, which means it only gets worse as time wears on. There is no cure, currently.

Callie's team of doctors have been working diligently for the last 16 years to try and at least stave off some of the more dreadful effects, with mixed success. She has a spinal implant, a very specific medical protocol, a schedule of constant nerve blocks and internal applications of Botox, and access to medical marijuana. She has a customized wheelchair that is tailored to her specific pain points. She has some good days, or parts of days; but when things get bad they get BAD. And they get bad all the time.

However: she's recently been medically approved for a set of infusions which can help to push back this overwhelming tide. This is an off-script use of these infusions, which are generally for folks who suffer from severe depression/suicidal thoughts. Pain specialists have discovered that another effect of these infusions is the cessation or management of extreme chronic pain, and we have hope that there is some relief for her on the way.

The problem is that it is not covered by insurance for this use (of course not). Every doctor on Callie's care team agrees that this will help her, but it will be - at least initially - out of pocket. And it's expensive - of course it is. We plan to appeal and try to get insurance to cover at least some portion of the treatment, but that can take time. Lots of it, sometimes, and with no guarantee that they'll decide in her favor. In the meantime, we are hoping to go ahead with the treatments ASAP. The earliest we seem to be able to schedule her for right now is mid- to late-May, and if we wait for insurance to figure things out it could be June or July or even later.

I know I'm asking a lot. But she's suffering, and this could help.

If you can't or would rather not donate to this fund but would still like to help, you can make a purchase of her handmade soaps at www.wanderingmooncrafters.com and some of those funds will go toward her treatment as well. Sharing the link helps too! Thanks for reading this far. Fingers crossed, right?

[anastasia-ash]

'Welcome to my life'

Yes im sick verry sick, but im still positive and im still doing what i love to do.

[rsdhope]

This was written on 8/xx/2021 along with the text in the post image. I'm not being negative I'm simply taking about the experience in my life that happens to be negative. I'm NOT sorry if it's not what you want to hear. I can't, because this is my life. Living on a month to month basics....wondering if I'll get dropped by my doctor or pharmacy. It's barely living as it is.. Why question a legitimate prescription that's been given to me by the SAME doctor for the last 8 years? What's the sense in that? Don't get me wrong, I appreciate my doctor and the people working at the pharmacy I've been going to. I really do ... but if the regular pharmacist goes on vacation and is not there really stupid things happen. I.e: last month the meds they were supposed to give me was in the freaking safe and not the shelf! They kept telling me bullshit for 5 days until I ran into an old pharmacist that's familiar with my case and she helped them simply look in the fucking safe.  I don't want to name anyone but come on man. I'm sure there justification, if they even thought about it, was "he has all his other meds, he should be fine". This is not okay. It needs to stop but it seems to be going in the opposite direction. ***Positive vibes out to all and wising everyone a managed pain day*** #hope #suvivor #strength #fighter #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #chronicfrustration https://www.instagram.com/p/CThoN_qsURc/?utm_medium=tumblr

[pleiades-blanket]

hey i made this playlist to try and articulate how chronic pain and fatigue feels to me because my words don’t do it justice. I want to share it with the tumblrverse in hopes that it reaches someone else that might be going through the same thing :)

[initforthelonghaul]

I’ve reached the point where I just need to throw the whole stomach away and start over

[crps-chronicpain-ptsd]

• Exactly !!!

Chronic pain problems •

[scholarjack]

It’s hard to stay positive when you’re suffering from the worlds most painful chronic illness 🤷🏻‍♂️

[liz-beth1001]

Today is a bitter sweet moment in my life, my #MiniMe @marixxramos is #UTSA bound. Even though it's just a couple hours of a drive, I can't help but feel a pang in my heart. My #Niece / #Daughter / #BestFriend sets off on her #NewJourney and won't be just a few minutes away to hang out with her Aunt Noni😢. However, I could not be more proud of this #AmazingGirl who has overcome so many obstacles to get where she is today. Being diagnosed with #CRPS, at such a young age, did not stop her from making her dreams come true. She lives with unimaginable pain on a daily basis, has been through countless surgeries and numerous procedures to help ease the pain of this incurable disease. Even through all of that she never stopped pushing herself to make it here today. She is the strongest person I have ever known and I admire and treasure this girl with every part of me. I look up to her in ways I can't even explain. I know she will accomplish more great things and I wish her and the girls(my adoptive nieces)@ariana.benavides @maaddyperez every bit of luck, hope, faith and love that I possess. I love you girls and am very very proud of you 😚😚😚😍👏👏 #2018Graduate #CRPSAwareness #CRPSWarrior #SanAntonioBound #CollegeBound #2018Graduates #UTSABound #UTSAFreshman #CRPSAngel #CRPSStrong #CRPSFighter #CRPSDoesntOwnMe #CRPSTeen #TeensWithCRPS @crpsforum @crpstreatment @crps_awareness00 https://www.instagram.com/p/Bmfam8ygsOa/?utm_source=ig_tumblr_share&igshid=7ix6052anofd

[paupainstudy]

Have you experienced chronic pain for three months or more? Are you between the  ages of 18-25, and a resident of the United States?  

If so, please consider participating in this research study testing whether a brief, online  intervention for chronic pain is helpful. You will be asked to think about your pain  experience to answer questions and watch 1 video for this study: The Uninvited Party  Guest. For more information, or to participate, follow this link:  

https://tinyurl.com/paupainstudy

[purringslumber]

#crps #crpslife #crpsawareness #crpswarrior #crpsstrong #crpssucks #crpsfighter #chronicpainlife #chronicpain #chronicpainwarrior #chronicpainmemes #chronicillness #chronicillnessmemes #disabledmemes #theprincessbride https://www.instagram.com/p/CRimSO4saxw/?utm_medium=tumblr

[new-hands]

This last week my body has felt like it was on fire, partnered with lack of sleep and unbearable pain due a fibromyalgia and CRPS flare-up. Here's the first thing I've drew once my pain calmed down some.