#reflexsympateticdystrophy

[rsdhope]

This was written on 8/xx/2021 along with the text in the post image. I'm not being negative I'm simply taking about the experience in my life that happens to be negative. I'm NOT sorry if it's not what you want to hear. I can't, because this is my life. Living on a month to month basics....wondering if I'll get dropped by my doctor or pharmacy. It's barely living as it is.. Why question a legitimate prescription that's been given to me by the SAME doctor for the last 8 years? What's the sense in that? Don't get me wrong, I appreciate my doctor and the people working at the pharmacy I've been going to. I really do ... but if the regular pharmacist goes on vacation and is not there really stupid things happen. I.e: last month the meds they were supposed to give me was in the freaking safe and not the shelf! They kept telling me bullshit for 5 days until I ran into an old pharmacist that's familiar with my case and she helped them simply look in the fucking safe.  I don't want to name anyone but come on man. I'm sure there justification, if they even thought about it, was "he has all his other meds, he should be fine". This is not okay. It needs to stop but it seems to be going in the opposite direction. ***Positive vibes out to all and wising everyone a managed pain day*** #hope #suvivor #strength #fighter #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #chronicfrustration https://www.instagram.com/p/CThoN_qsURc/?utm_medium=tumblr

[rsdhope]

Everything I said above is completely true. It is not an exaggeration or any manipulation of words. Those were their words, verbatim. I learned I can't let anyone not even doctors dictate what I can and can't do. This was a very hard time and I left out a few things from the words above...... I'm sure you can piece together what depression for that long will do to your mental psyche. Today, and for the last 7 years I have had a doctor who cared not just about what's on paper or what treatments didn't work...  He Cares about the quality of life I'm living. How I'm managing both my mental and physical health and is encouraging not discouraging. All I can say is thank God for people like him because if they didn't exist I wouldn't be here today. Thank God for people like all of you as well because when things turn really dark there's no one there. Doesn't matter how much money you have at that point, what cars you own, or any of the material bullshit that you have in your life.... Everyone will slowly fade away because they're tired of hearing you saying the same thing over and over again. This is a very personal post to me because it's a very personal experience that I only told several people and I'm sharing it with all of you today, not to make you sad or feel bad for me but to uplift you. To show you that even if everything fails you can still hold on and push through. **Wishing everyone a managed pain Day ❤️❤️** #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #hope #suvivor #strength #fighter #fuckpity #fuckrsd https://www.instagram.com/p/CTcb5hIs2x2/?utm_medium=tumblr

[rsdhope]

I wrote this almost a, year ago but choose to keep it in "my diary", today I'm sharing it with all of you. I don't know about you but I never thought I would end up disabled... I was just living life like everyone else. At the time things were going great, I had a good job and on the day of the accident I was supposed to go into the office to complete the promotion documents - in a snap/flash of light everything changed completely.  So.... Please be kind. #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #hope #suvivor #fighter #livingwithonehand https://www.instagram.com/p/CTZxtGWMUxV/?utm_medium=tumblr

[rsdhope]

Being disable + being in chronic pain does not make you weak. It can feel that way sometimes but just remember you're still here and that makes you a fighter!! #hope #suvivor #strength #fighter #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand https://www.instagram.com/p/CPSMXVFDjHp/?utm_medium=tumblr

[rsdhope]

This is going to sound redundant if you read the words in the Pic but it's okay to rest, it's OK that we can't do everything. By the way by resting don't have to mean sleep. It'd be great if it was but if not do something that relaxes you such as meditation, working out, video games. Anything you can to get some 'resting' time in so to speak. #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand https://www.instagram.com/p/CPMdlPMDBvt/?utm_medium=tumblr

[rsdhope]

I think I've said everything in the image... If you take anything out of this take this ; 13 years of pain and suffering will at times break you. It's OK. You just gotta get back up. Thankfully we have a wonderful community here who understands what we each feel and go through. #rsdwillnotwin #crpswillnotwin #crpswillnotdefineme #hope #suvivor #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand (at Jacksonville, Florida) https://www.instagram.com/p/CNnibQHj9Tw/?igshid=12px2biijpd5j

[rsdhope]

You can print this out and show it to loved ones doctors etc. This is very informative. #rsdfacts #rsdfact #crpsfacts #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand https://www.instagram.com/p/CNV49qtDpIG/?igshid=1gfbxyu3jcyc0

[rsdhope]

This is an older Pic... Taken when Covid first came out... We didn't have any masks so I had to improvise! Reason I'm thinking about it now is because my mother and step father has both been hospitalized... So yeah, it brings up some memories. #covid #rsd #rsd #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #highriskcovid https://www.instagram.com/p/CNVXJ_Esowh/?igshid=bwiw3srpsok5

[rsdhope]

This "invisible illness" is all too real. I was traumatized by several things, the original accident and trauma, the fact that no one would believe me after I came out of comma and off life support (13 years ago)... BUT I'm still here. I'm still fighting. Still moving forward. #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #anxiety #ptsd #ptss #onehand https://www.instagram.com/p/CNLPP_XDi7p/?igshid=zz7vp7gqo2j8

[rsdhope]

Here's another detailed look into my life.... Pain - Ice covered rhie immensely already + needs it's own post. Hypersensitivity: this is on my entire right side. Omg I remember when I first woke up from the comma in the hospital after the accident now going ok 14 years, I felt s deep burning pain and everyone kept touching my right side. I couldn't talk because of the tube down my throat. So they kept just sticking needles in me and oh this is the best part-- I couldn't move any of my finger's. At all!!!! Do Loosing my hand : here's where the problem began, but honestly if you don't have useless people in your life, asking for very small task would be a non issue. This leads right into loosig your independence and feeling like a burden: there so many fucking ways I can explain this but it'll just be entertaining to most. So I'll try to keep it simple : Sure,  I can still drive, still move about (really depends on the day), but try this... Try to just put a glove on your hand, the medical type. Try it with one hand only. Or tie up behind you so you can't use It(disabled your dominant hand). Now ... Try to open a can milk like e carnation milk with one hand.  My point is that without having your dominant hand EVERYTHING becomes a TASK to you. God, you can't even shower properly. As far as feeling like a burden... If I list the extremely small things that I ask for help with it'll turn into a joke...  I'M sorry ya'll. This isn't my usual tone yet it's how I feel all the time. I know I only have a few friends on here who's actually lost there limbs but if logically/rationally read by anyone one everything I said, then you should get it. If not, I understand. Stay strong y'all 💪💪 through all these hardships we still endure... That's really where makes a warrior.  Wishing everyone a managed pain day 💖💖 #hope #suvivor #strength #fighter #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crps https://www.instagram.com/p/CTkB8CRsCDv/?utm_medium=tumblr

[rsdhope]

A few weeks ago I was pretty much in complete isolation and had stopped using social media, I talked to people but I wasn't really three... Anyways, what you're looking at is a design done by my aunt. It was created completely by hand and I think it's beautiful. The only part that was not created was the r that I added in there but everything else is handmade and was very thoughtful. Of course things like this takes time so she finally finished it today and showed me a picture. I'm eternally grateful for her. Thank you ❤️❤️❤️❤️ #hope #strength #fighter #warriors #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #embroidery #handmadeembroidery https://www.instagram.com/p/CTfaY02rwc2/?utm_medium=tumblr

[rsdhope]

After about 2 bad weeks of intermittent flares I'm finally trying to catch up with everything. Ya'll know how that goes... It's the never ending cycle. I am pacing myself and trying to do less rather than burn myself out completely then end up in the same cycle again. *Wishing everyone a managed pain day 🙏* #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #hope https://www.instagram.com/p/CTXfh0hrauW/?utm_medium=tumblr

[rsdhope]

That burning pain I was referring to is unlike anything you've felt before. It feels as though your flesh is literally on fire with no fucking actual physical symptoms other than increased HR and reparations, if that. You could be there rolling around in agongy while the person next to you looks as if you are just nuts, maybe it's drugs... Whatever bullshit fills up the average mind of a human being who can't understand what is going on. It gets even better... Your could loose your doctor at any given moment and thanks to the CDC, they've made it impossible to get the actual medical care you need. ... Everything I said are just words lumped to together unless you've experienced this.  I don't mean some of it, I mean all of it.. Think about it : your life completely stopped. Whoever you were is gone. Whoever you're trying to be : no one fucking believes you half the time or thinks you're exaggerating... Then day in and day out, wake up. - - > SUFFER - - >REPEAT! I'M SICK OF THIS! #rsdsucks #crpssucks #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #anxiety #ptsd #ptss https://www.instagram.com/p/CSaeuESswiw/?utm_medium=tumblr

[rsdhope]

If I could only count how many times this happened to me it's just ridiculous. Sometimes you can be at a managed level all day, as soon as you step out it all goes to hell 🥵🥵 #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks https://www.instagram.com/p/CRm2gPnsHl4/?utm_medium=tumblr

[rsdhope]

They say that positive thinking forms new neutral pathways in your brain, and repeating your 'Mantra' will eventually stick, even on those very very hard days. Stay strong everyone and I hope your pain is managed. #positivevibes #positivequotes #positivity #rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks #livingwithonehand #anxiety #ptsd #ptss https://www.instagram.com/p/CQ9LKafM_is/?utm_medium=tumblr

[rsdhope]

If you only knew how manipulated this cat can be... And the thing is that we all fall for it. I mean it's like she's so fucking cute and innocent looking it's damn near impossible not to. And she knows how to get everyone in the house to do exactly what she wants. **positive vibes out to all + wishing a managed pain day ** #love #hope #cats #catsofinstagramv#rsd #crps #rsdkills #crpshope.net #crpsstrong #reflexsympateticdystrophy #crpssuffering #crpswarrior #chronicpain #chronicexhaustion #fatigue #hypersensitivity #anxiety #ptsd #ptss #onehand #livingwithonehand #rsdhope #frustrated #burningpain #sharppain #rsdsawareness #crpsawareness #crpssucks https://www.instagram.com/p/CQ0ueJDMkNo/?utm_medium=tumblr