#crps/rsd

[bionicbabe0101]

I’ve been disabled for 20 years now. A new ‘friend’ asked me recently if it’s gotten any easier with time. I said no, absolutely not. I think she was surprised by that, because she pressed a little, saying it must be easier to accept at least…like there must be somethings I had gotten used to by now?

I really think it’s hard for people to imagine being in chronic pain for that long. She was clearly uncomfortable with this idea that every day I wake up and have to cope with my illnesses and that will always be hard to accept.

I told her that my health was always changing, and the thing I have learned is to try and adapt every day as best I can in a world where healthcare is expensive and hard to access, my employer sees me and others like me as a liability, and very few useful, practical, affordable accommodations actually exist.

She asked me if I had considered trying a ‘clean diet’.

I changed the subject.

(Btw…her husband is a doctor…sigh)

[stratus-and-the-theoi]

Honoring Lord Hephaestus this disability pride month by being gentle with myself and using my mobility aids when I need them during this horrific pain flare instead of putting it all off and acting like I’m okay like I usually do. Does it feel like a setback? Yes. It always does. Never mind the fact my condition is incurable and that I’m always in an awful amount of pain. But I know He wouldn’t want me to make it worse for no reason.

[amplified-pain-culture-is]

AMPS culture is not being able to stand for more than 15 minuets without being in crazy pain

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[my-disability]

If you reblog things and say something like ‘you have to unmute’ and the video doesn’t already have an audio description and you don’t write one….. not the best vibes. I’m not saying it’s straight up ableism, but it is shitty

I am not hoh or Deaf but this is something I’ve notice that just seems annoying as hell to have to deal with

[trashbirdthoughts]

Guess who fucked up at the gym and flared their body.

This silly goose!

[auroramosaic]

i hate being so disabled! i hate that disability payments are so below a poverty wage! i hate that my friends are growing and changing around me and im stuck unmoving because im too disabled and too poor to do anything significant or follow any dreams or hopes! i hate the distance that disability puts between me and my loved ones! im so fucking sick and tired of it!

AND on top of all that shit im in bodily pain 24/7, with crps, the SUICIDE DISEASE, and for what. fucking nothing

sorry to clog up the dash but im so tired and i just wanna collapse. or at least hear from other disabled people

[marsdeathdefiances]

Celebrating disability pride month by practicing unsafe mobility aid practices. Like sitting on my walker without putting the brakes on. Not because I think I’m cool or anything it just never occurs to me to do that until I fall 🤷

[crps-chronicpain-ptsd]

“Don’t allow someone else to minimise your journey… EVERY warrior is a warrior.”

Chronic pain problems •

[lovinghimwasbrew]

Hi y’all!

We’re jumping ship from Twitter and coming aboard to Tumblr apparently?

My name it’s Chelsea. I go by Chels.

I have chronic pain (CRPS) 🔥

I work in the medical field (certified medical assistant)!

I’ve seen Taylor four times (Fearless, twice at Reputation, and Eras tour)

Reputation stan FOR SURE!

[bionicbabe0101]

This is excellent advice. Practice advocating for yourself as much as possible.

Useful information

[bionicbabe0101]

I am proud of my body with all it’s flaws and limitations.

I would give anything to escape this flesh prison of pain right now.

Both can be true.

[amplified-pain-culture-is]

Amplified pain culture is getting complementary IBS symptoms

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[stagkingswife]

The worst side effect of my opioid painkillers, for me, is the full body itches. I can handle the dizziness, the nausea and vomiting, even the headaches (which cause their own nausea and vomiting). But I hate the itchiness. I just scratched my self so hard I drew I little blood. And on my bad leg, the itchiness hurts.

[bionicbabe0101]

Oh so much this…thank you online stranger for understanding

being chronically ill is just. the world hates me. i have found such great community through people with similar experiences to me. i am never going to get better. i want to get better. the world wants me dead. someone showed me one iota of compassion and the world is beautiful again. my symptoms are flaring up and i wish i was never born. ha ha funny chronic illness meme. no one will ever know my body like i do. i love my body. i hate my body. i forgive my body. i wish my body belonged to someone else. no one understands. a stranger online thousands of miles away understands deeply.

[trashbirdthoughts]

Back to exercising daily. Fucking body needs to know who’s boss around here.

[bionicbabe0101]

Reblog if you’re a modified human

Reblog if you're not human