#crps/rsd
Explore tagged Tumblr posts
Text
Iâve been disabled for 20 years now. A new âfriendâ asked me recently if itâs gotten any easier with time. I said no, absolutely not. I think she was surprised by that, because she pressed a little, saying it must be easier to accept at leastâŚlike there must be somethings I had gotten used to by now?
I really think itâs hard for people to imagine being in chronic pain for that long. She was clearly uncomfortable with this idea that every day I wake up and have to cope with my illnesses and that will always be hard to accept.
I told her that my health was always changing, and the thing I have learned is to try and adapt every day as best I can in a world where healthcare is expensive and hard to access, my employer sees me and others like me as a liability, and very few useful, practical, affordable accommodations actually exist.
She asked me if I had considered trying a âclean dietâ.
I changed the subject.
(BtwâŚher husband is a doctorâŚsigh)
#disability pride month#disabled#chronic illness#chronic pain#crps/rsd#psoriatic arthritis#autoimmine disease#chronic fatigue#fibromyalgia#abelism
406 notes
¡
View notes
Text
Honoring Lord Hephaestus this disability pride month by being gentle with myself and using my mobility aids when I need them during this horrific pain flare instead of putting it all off and acting like Iâm okay like I usually do. Does it feel like a setback? Yes. It always does. Never mind the fact my condition is incurable and that Iâm always in an awful amount of pain. But I know He wouldnât want me to make it worse for no reason.
#hellenic polytheism#helpol#hellenic pagan#hellenic pantheon#hellenic paganism#hephaestus deity#hephaestus worship#disability pride month#crps/rsd#crps warrior
182 notes
¡
View notes
Note
AMPS culture is not being able to stand for more than 15 minuets without being in crazy pain
.
#no for real!! does anyone get crazy shin splints too??#amps#amplified musculoskeletal pain syndrome#amplified pain culture is#amps culture is#crps#crps/rsd#amplified pain#complex regional pain syndrome#rsd#anonymous
16 notes
¡
View notes
Text
On one hand I hate that Iâm back on opioids for pain management, on the other hand I love that itâs a rainy day and I can still work with only some mild dizziness and nausea.
26 notes
¡
View notes
Text
Guess who fucked up at the gym and flared their body.
This silly goose!
#196#196 campfire#rule#196archive#196 migration#iâm so tired#pots#posturaltachycardiasyndrome#fuck pots#disabled#invisible disability#chronically ill#chronic pain#chronic migraines#crps/rsd#fibro things#fibro problems
38 notes
¡
View notes
Text
If you reblog things and say something like âyou have to unmuteâ and the video doesnât already have an audio description and you donât write oneâŚ.. not the best vibes. Iâm not saying itâs straight up ableism, but it is shitty
I am not hoh or Deaf but this is something Iâve notice that just seems annoying as hell to have to deal with
#actually disabled#disabled#crps#crps/rsd#crpsfighter#disabled people#disability rights#disability advocacy#audio description#hard of hearing#Iâm not but this is something Iâve notice#hoh tag#not deaf#deafawareness#deaf#deaf community
6 notes
¡
View notes
Text
i hate being so disabled! i hate that disability payments are so below a poverty wage! i hate that my friends are growing and changing around me and im stuck unmoving because im too disabled and too poor to do anything significant or follow any dreams or hopes! i hate the distance that disability puts between me and my loved ones! im so fucking sick and tired of it!
AND on top of all that shit im in bodily pain 24/7, with crps, the SUICIDE DISEASE, and for what. fucking nothing
sorry to clog up the dash but im so tired and i just wanna collapse. or at least hear from other disabled people
5 notes
¡
View notes
Text
Celebrating disability pride month by practicing unsafe mobility aid practices. Like sitting on my walker without putting the brakes on. Not because I think Iâm cool or anything it just never occurs to me to do that until I fall đ¤ˇ
#mars speaks#donât recommend doing this#again Iâm just forgetful#disability pride month#crps/rsd#crps warrior
9 notes
¡
View notes
Text
If you have AMPS please know that no matter where you are in your "pain journey" you are absolutely worthy of treatment and people who believe your pain is real because it is. You deserve the accomodations you need, and you're allowed to have ups and downs and flare-ups just like everyone else. You deserve to be remembered even when you enter remission and as an adult with AMPS, too.
There is such a severe lack of support for us and I'm so sorry if you ever felt lost or alone because of that.
#not-so-friendly reminder that AMPS/CRPS is rated as THE most painful chronic pain condition known#and it often partners with diseases like gastroparesis/EDS/POTS/etc/etc#so please be patient with anyone you know with AMPS/CRPS#Amplified Musculoskeletal Pain Syndrome#Chronic Regional Pain Syndrome#AMPS#CRPS#CRPS/RSD#happy first monday of november#otter talks
50 notes
¡
View notes
Text
Do you ever feel like shouting F*ck and Help at the same time? Lately I feel like Iâm loosing my grip . The amount of lost time crushes me for the inside .
Chronic pain problems â˘
#crps#fibromyalgia#chronicpain#spoonie#ptsd#living with pain#crpsproblems#chronic illness#crps warrior#crps fighter#complex regional pain syndrome#neuropathic pain#nerve pain#bipolar#panic disorder#manic depressive#Crps strong#crps/rsd#living with anxiety#anxiety#struggling#mentally drained#mental health#mental health support#fuck#help#pain#burning pain#body on fire
7 notes
¡
View notes
Text
Hi yâall!
Weâre jumping ship from Twitter and coming aboard to Tumblr apparently?
My name itâs Chelsea. I go by Chels.
I have chronic pain (CRPS) đĽ
I work in the medical field (certified medical assistant)!
Iâve seen Taylor four times (Fearless, twice at Reputation, and Eras tour)
Reputation stan FOR SURE!
5 notes
¡
View notes
Text
I am proud of my body with all itâs flaws and limitations.
I would give anything to escape this flesh prison of pain right now.
Both can be true.
#chronic illness#chronic pain#crps/rsd#psoriatic arthritis#autoimmine disease#chronic fatigue#disabled#disability#disability pride month
44 notes
¡
View notes
Text
* PLEASE READ AND SHARE! THANKS! đ
My older sister, @ashleyhlovestay, has POTS, a disorder of the autonomic nervous system that causes her blood pressure to drop, making her faint. Because of this, she canât stand for a long time or walk very far without having to sit. She also has RSD and RA, both chronic pain diseases.
@taylorswift has been Ashleyâs inspiration and idol since Taylorâs first album came out. Taylorâs music has gotten Ashley through her darkest times when the pain is too much and she feels like she canât go on. She has been to every Taylor Swift concert in St. Louis, despite being in excruciating pain and having to go in a wheelchair.
Ashley was lucky enough to get VIP floor seats for my mom and her to go to the Eras Tour in Kansas City on July 8th. Weâre traveling four hours to get to Kansas City, which will make Ashleyâs pain even worse. Because of her health, she will need to go in a wheelchair so she doesnât pass out.
My mom contacted Arrowhead Stadium, the concert venue, to ask whether they could store Ashleyâs wheelchair during the concert. The person she spoke to said that they couldnât because: âthere isnât enough spaceâ, âit would be a safety hazardâ, and âthey canât be liable for personal items.â All the stadiums and arenas in St. Louis have been able to accommodate Ashleyâs needs when she has gone in the past.
All I have ever wanted is for my sister to be happy, and Taylor's music makes her happy. This whole issue with the stadium has put a huge strain on all of us, but especially Ashley. We all want this to be a once-in-a-lifetime experience for her that she will look back on and remember fondly. Ashleyâs been through so much pain in her life; she deserves at least one night of fun.
Fellow Swifties: please share this message! We are at a loss as to what we can do that would allow her to enjoy the view from her floor seat.Â
#taylor swift#taylornation#tstheerastour#kctstheerastour#pots syndrome#crps/rsd#rheumatoid arthritis#reflexsympatheticdystrophy#invisible illness#disability#americans with disabilities act#Spotify
8 notes
¡
View notes
Note
Amplified pain culture is getting complementary IBS symptoms
.
#oh same! i developed gastroparesis from my amps đ#its so much fun /s#amps#amplified musculoskeletal pain syndrome#amplified pain culture is#amps culture is#crps#crps/rsd#rsd#amplified pain#complex regional pain syndrome
13 notes
¡
View notes
Text
The worst side effect of my opioid painkillers, for me, is the full body itches. I can handle the dizziness, the nausea and vomiting, even the headaches (which cause their own nausea and vomiting). But I hate the itchiness. I just scratched my self so hard I drew I little blood. And on my bad leg, the itchiness hurts.
12 notes
¡
View notes
Text
Back to exercising daily. Fucking body needs to know whoâs boss around here.
#196#196 campfire#196archive#rule#196 migration#cripple punk#angry cripple#iâm so tired#POTS#crps/rsd#posturaltachycardiasyndrome#I will be stupidly exhausted later
19 notes
¡
View notes