crps-chronicpain-ptsd
Life With Pain 🎗
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I've been living with #PTSD for a long time and then was diagnosed with #CRPS and #fibromyalgia . Living with chronic pain and #allodynia sucks the life from within you around you and in you. Pain has become part of my life my world but I will not let this beat me or take my dreams or goals I will make new ones ! ©
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crps-chronicpain-ptsd · 3 days ago
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Living with chronic pain reshapes life, but it doesn’t define it. Here's to finding those moments of peace amidst the storm, and to all of us learning to dance in the rain.
#ChronicPain #PainManagement #MentalHealthAwareness
#CRPS
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crps-chronicpain-ptsd · 3 days ago
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Living with #chronicpain is like carrying an invisible backpack filled with rocks.Somedays feels like I'm hiking uphill;others,I manage to find a plateau where the weight seems a little lighter.Truth is,chronic pain isn't just physical;it's a mental& emotional journey too #CRPS
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crps-chronicpain-ptsd · 3 days ago
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living with chronic pain:
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Living with chronic pain is like carrying an invisible backpack filled with rocks. Some days, it feels like I'm hiking uphill; others, I manage to find a plateau where the weight seems a little lighter.
The truth is, chronic pain isn't just physical; it's a mental and emotional journey too. Here's what I've learned:
1. **Acknowledge Your Feelings**: It's okay to feel frustrated, sad, or even angry. These emotions are valid. Talking about them, whether with friends, family, or a therapist, can be incredibly relieving.
2. **Find What Works for You**: Pain management is not one-size-fits-all. Medications, physical therapy, acupuncture, meditation, or even a new hobby might help. The key is trial and error - what works for one person might not work for another.
3. **Community Matters**: You're not alone. Connecting with others who understand chronic pain can provide comfort and practical advice. Online forums, support groups, or local meetups can be a lifeline.
4. **Rest is Productive**: On bad pain days, resting isn't laziness; it's necessary. Your body is telling you it needs time to heal or recover.
5. **Celebrate Small Victories**: Did you manage to go for a walk? Did you prepare a meal despite the pain? These are victories. Celebrate them, no matter how small they seem to others.
6. **Adapt and Adjust**: Life with chronic pain means sometimes redefining what you can do. It might mean changing career paths, hobbies, or how you spend your time. Flexibility in expectations is crucial.
7. **Seek Help When Needed**: Whether it's adjusting your treatment plan or just needing someone to talk to, reaching out for help isn't a sign of weakness. It's part of managing your condition.
Living with chronic pain reshapes life, but it doesn’t define it. Here's to finding those moments of peace amidst the storm, and to all of us learning to dance in the rain.
#ChronicPain #PainManagement #MentalHealthAwareness
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crps-chronicpain-ptsd · 3 days ago
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living with Complex Regional Pain Syndrome (CRPS):
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**Living with Complex Regional Pain Syndrome (CRPS)**
Complex Regional Pain Syndrome (CRPS) can be an overwhelming condition, but with the right approach, it's possible to manage life and maintain quality. Here are some strategies to help you or someone you know navigate life with CRPS:
**1. Early Diagnosis and Treatment:**
- Seek medical advice early. CRPS often requires a multidisciplinary approach. Specialists like neurologists, pain management doctors, and physical therapists can offer targeted treatments.
**2. Pain Management:**
- Engage in a tailored pain management plan which might include medications, nerve blocks, physical therapy, or even alternative therapies like acupuncture. Remember, what works can vary from person to person.
**3. Physical Rehabilitation:**
- Movement is key. Physical therapy can help maintain function and mobility. Techniques like desensitization, mirror therapy, or graded motor imagery might be beneficial. Always work with professionals to ensure exercises are safe and effective.
**4. Psychological Support:**
- Chronic pain can affect mental health. Cognitive Behavioral Therapy (CBT) or support groups can provide coping mechanisms, reduce anxiety, and combat depression related to CRPS.
**5. Daily Life Adaptation:**
- Adapt your environment to your needs. This might mean ergonomic tools, changing how you carry out daily tasks, or even home modifications to ease movement and reduce pain triggers.
**6. Education:**
- Learn as much as you can about CRPS. Understanding your condition empowers you to advocate for yourself and make informed decisions about your treatment.
**7. Community and Support:**
- Connect with others who have CRPS through online forums or local support groups. Sharing experiences can offer emotional support and practical advice.
**8. Lifestyle Adjustments:**
- Consider your diet, sleep, and stress levels. Good nutrition and sleep can aid in pain management, while stress can exacerbate symptoms. Techniques like meditation or yoga might help.
**9. Pace Yourself:**
- Listen to your body. Activity pacing ensures you don't overdo it, which can lead to flare-ups. Balance activity with rest.
**10. Stay Positive:**
- While easier said than done, maintaining some level of optimism can influence your mental wellbeing. Celebrate small victories and set achievable goals.
Living with CRPS isn't easy, but with the right strategies and support, it's possible to lead a fulfilling life. Remember, you're not alone in this journey. If you've found something that works for you, share it in the comments to help others in the community.
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crps-chronicpain-ptsd · 7 days ago
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I AM CONSTANTLY IN PAIN. YES, CONSTANTLY.
EVERY SINGLE SECOND.
THE PAIN IS STILL THERE WHEN I'M SMILING
HE PAIN IS STILL THERE WHEN I DON'T TALK ABOUT IT.
WHEN I SAY "I'M FINE" | HAVE A VERY DIFFERENT
DEFINITION THAN YOU DO.
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crps-chronicpain-ptsd · 7 days ago
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#CRPS #chronicpain If you have your health & a roof over your head, you have everything! Appreciate what you have in life. If you have the freedom to leave the house whenever you want, your life is limitless! I wish I could give people my knowledge so they could appreciate life to the max
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crps-chronicpain-ptsd · 7 days ago
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“My entire summer was spent attempting tasks—I knew deep down in my heart that my body could no longer accomplish… It is just really hard to accept and let go of those beliefs and the image of who we still want to be.”
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crps-chronicpain-ptsd · 7 days ago
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“I overdo things. With #CRPS—a fine line exists between pushing past breaking point…between the freedom of #mobility and the reality that I could send myself into a downward spiral that could last days, weeks or months—every flare.”
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crps-chronicpain-ptsd · 7 days ago
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“When I’m in public I’m often afraid of people touching me or bumping into me because I get so sensitive that a touch causes horrible pain… I fear not being able to make it back… At least when I’m at home the bed is there.”
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crps-chronicpain-ptsd · 7 days ago
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“When you’re sick, people don’t always like to hear that it is not better yet and they especially don’t like to hear that it won’t get better…#CRPS is an incurable #RareDisease. Seeing the disappointment…makes me want to pretend everything is alright.”
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crps-chronicpain-ptsd · 7 days ago
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I did my first blog last night or in the early hours of the morning pressed post like now thought i posted it well so I thought and it’s not here? Kinda upset about it anyways in too much pain To do it again argh .
I’ve said it thousands of times why doesn’t tumblr save it automatically like other social media? For us not that are suffering or so tech savvy or dealing with chronic pain, invisible illness ,and for all of us that are dealing with brain fog can’t remember shit even minutes after and last but not least us that suffer with mental health issues .anyway rant over wishing everyone a blessed day 🌻🌻🌻🌻🌻🌻🌻
Ps I’ll eventually do an update. 🧡🏵️🧡
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crps-chronicpain-ptsd · 7 days ago
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Sorry guys it’s been a while .Life has been a shit show to say the least . So many new medical issues to add to my list , some I’m still waiting to face and get thru . Then there’s life that’s thrown so many curve balls at me , I’m actually surprised I’m still standing On the outside I’m the usual “I’m fine” . When in reality I could break inn100000 pieces at any second and that scares me . It’s been so hard to even write here as I’ve been wearing that mask even in moments alone in safe spaces and rightly so I’m in tears just getting this paragraph out . Literally NO-ONE around me understands how hard it is to live in pain 24/7 . Saying I’m fine , trying to live a life as normal as you can has actually worked against me - they forget until the promised flare arises. 2 of my daughters are killing me slowly but deeply how can Someone you love more than yourself that you gave birth too ,carried for 9months that you willingly sacrifice your own life for theirs be so cruel ?. I’m the first to put my hand up and saying haven’t been the mother I dreamt about that i planned to be THat FUKKN hurts -all that aside over a decade with this suicide disease crps has made sure to take more than just me, I do TRY to remind my Myself that I did the best I could with the cards I was dealt with . Most to my own detriment ,flares pain meds a willing sacrifice.ive never claimed to be perfect but it tears me up inside more than they know . Ps I have. Grandson who is also 7 months that I’ve NEVER MET. My heart breaks and so many times I want the earth to just swallow me up and DIE .
Sorry my first post back should have been uplifting filled with hope to help being the fighters warriors that we are
If I’d waited till that day it may have never come
Sending healing vibes and love to all.
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crps-chronicpain-ptsd · 10 months ago
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crps-chronicpain-ptsd · 1 year ago
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crps-chronicpain-ptsd · 1 year ago
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