#bowel disease

[b-j-d]

Today is Stan Lee Stoma's 10th Birthday 🎂🥳🥂🍾

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[sp00kysk3lly]

i'm so sorry you're in pain :( is it safe for you to stop eating for so long though? are there any foods your stomach tends to tolerate better, which you could eat in smaller amounts?

My condition is Exocrine Pancreatic Insufficiency. My stomach reacts to all food. Some times I spend up to 20+ hours on the toilet which as you might know, is very painful especially when you have thin bones, and chronic pain anyway.

There is no foods that I can eat.

If I do not eat, then I do not use the toilet. Yes, it may make me unwell, it may make me dizzy and nauseated, but my mental health is losing control of everything right now and I am so scared that I am close to ending my life. No one wants to help me in the healthcare field, my doctors refuse to help me, mg Gastro told me there was nothing else to do for me.

I’ll know when I’ll be eventually getting surgery on the 5th. And hopefully it won’t be too long after that. After that, I won’t need to worry about eating. As it would just go into a bag that i’d have to change. I would have no more worries. I wouldn’t have to sit on the toilet for more than 20 hours and be in more pain than I should be.

Anything will help! Any advice to stop eating would help. It would help my mental health which is hanging by a very loose thread, my back and legs wouldn’t be in pain anymore.

I am just tired of eating and ending up on the toilet because I have diabetes. It’s not fair. I wouldn’t have these conditions if someone had left me alone when I was younger and my healthcare team done their jobs!

I promise you, it is safe enough for me!

[disabled-bug]

I’m so proud of people living with chronic health conditions. That shit is HARD. Idk who needs to hear this, but if no one else has said it: I’m proud of you. You’re sticking it out through so much pain and grief. That’s no small feat.

Every small thing you do for yourself health adds up. The grief is heavy and it comes from a place of love. The grief knows the pain is wronging you.

I’m proud of you. I hope on the good days you can be proud of yourself.

Keep going.

[medantahospital606]

Ways to Help Yourself During a Flare-Up of Inflammatory Bowel Disease

[carnivorousvagina]

[drkiranpeddi]

Inflammatory Bowel Disease and its Treatment in Hyderabad - Dr. Kiran Peddi

Inflammatory Bowel Disease (IBD) is a serious condition that affects the digestive system, causing inflammation and damage to the intestinal walls. It is a chronic condition that can cause severe discomfort, pain, and diarrhea. IBD includes two types of diseases, Crohn's disease, and Ulcerative Colitis. While there is no known cure for IBD, the condition can be managed through proper treatment and medication. In Hyderabad, there are several experienced gastroenterologists and IBD specialists who offer advanced treatment options for patients suffering from this condition.

Finding the Right IBD Specialist in Hyderabad - Dr. Kiran Peddi

If you are experiencing symptoms of IBD, it is important to seek medical attention as soon as possible. In Hyderabad, Dr. Kiran Peddi is an experienced Gastroenterologist and IBD specialist who offer advanced treatment options for patients with IBD. When choosing a specialist, it is important to consider factors such as their experience, reputation, and the services they offer

What is Inflammatory Bowel Disease (IBD)?

Inflammatory Bowel Disease (IBD) is a group of disorders that cause inflammation in the digestive tract. The inflammation can affect different parts of the digestive system, including the small intestine, large intestine, and rectum. The exact cause of IBD is unknown, but researchers believe that a combination of genetic and environmental factors play a role in the development of the condition. IBD is a chronic condition, meaning it persists for a long time and may require ongoing medical treatment to manage symptoms.

Symptoms of Inflammatory Bowel Disease (IBD)

The symptoms of IBD vary from person to person and can range from mild to severe. Common symptoms of IBD include:

Abdominal pain and cramping

Diarrhea

Blood in stool

Weight loss

Fatigue

Loss of appetite

It is important to seek medical attention if you are experiencing any of these symptoms, as early diagnosis and treatment can help prevent the progression of the condition and reduce the risk of complications.

Diagnosis of Inflammatory Bowel Disease (IBD)

Diagnosing IBD involves a thorough evaluation of a patient's medical history, physical examination, and a series of tests, including:

Stool sample analysis

Blood tests

Imaging tests, such as X-rays, CT scans, and MRI

Endoscopic procedures, such as colonoscopy and upper endoscopy

Based on the results of these tests, a gastroenterologist can diagnose IBD and determine the appropriate treatment plan.

Treatment of Inflammatory Bowel Disease (IBD) in Hyderabad

There is no cure for IBD, but the condition can be managed through a combination of medication, lifestyle changes, and other treatments. In Hyderabad, experienced gastroenterologists and IBD specialists offer several advanced treatment options for patients with IBD, including:

Medications: There are several types of medications that can be used to manage IBD, including anti-inflammatory drugs, immunosuppressive drugs, and biologic agents.

Dietary Changes: Patients with IBD may need to make changes to their diet, including avoiding certain foods that can worsen symptoms and increasing their intake of fiber and other nutrients.

Surgery: In severe cases, surgery may be necessary to remove damaged sections of the intestine or to treat other complications of IBD.

It is important to work closely with a gastroenterologist and IBD specialist to determine the best treatment plan for your individual needs and to manage the symptoms of IBD effectively.

Contact info:

+91 9390150150 / 9581000505

Yashoda Hospitals - Somajiguda, Raj Bhavan Rd, Matha Nagar, Somajiguda, Hyderabad, Telangana 500082

Gastro Care Clinics, Unit 201, Surya Arcade, behind Labonel Fine Baking, Cyber Hills Colony, P Janardhan Reddy Nagar, Gachibowli, Hyderabad, Telangana 500032

[thatchronicfeeling]

July is Disability Pride Month

Let’s celebrate by keeping disabled people ALIVE and SAFE.

Want to know how you can help?

WEAR A MASK. 

(FFP2/3 or N95 give best protection, especially the ones that fasten behind your head)

[crippledpunks]

if you try to police disabled peoples' diets INCLUDING how they spend their money on food: i just want to ask why? what do you gain from this? like seriously, what do you actually gain from displaying holier-than-thou behavior toward another person's spending and dietary habits? who cares if you would spend your money "better"? you're not them. this is a form of abuse. you literally have no idea what the disabled person can safely digest and actually gains nutrients and energy from. you have no clue, even if you share the same disorder, you are not that person, nor are you their gastroenterologist or other specialist.

telling disabled people to "eat healthier," "eat more salads," "eat more fresh fruits," "eat more fresh vegetables," "eat more grains," and so on can not only be outwardly dangerous for people who have digestive issues like inflammatory bowel diseases, gastroparesis, irritable bowel disease, acid reflux, a history of ulcers, gastritis, and a long list of other digestive health issues, it can outright kill someone if they form a blockage. this can also injure, sicken or kill diabetics, people with non-diabetic low or high blood sugar, blood pressure issues, kidney and liver issues, and many other people.

not only that but you're potentially forcing a neurodivergent person to eat foods that nauseate, sicken, or disgust them, and for what? autistic people know what foods are safe for them to eat. adhd people need to find finds they can manage to keep in their homes without spoiling. dissociative people, people with ADHD, head trauma, develeopmental disorders, other people with memory issues, dementia, alzheimers, psychotic people, and other mental and cognitive health issues need foods they can prepare safely, because many mentally ill and neurodivergent people can't safe;y cook without risk of injury or damage to their home.

people who deal with allergies and intolerances are constantly struggling with being told how to eat when they are the ones who know their experience the most. NOBODY gives a fuck about people with allergies and literally nobody takes food intolerances seriously. i can't digest animal products OR byproducts anymore. i lost the ability. but sometimes i question "maybe i can try it again because this food is cheaper." well. i decided i was spending too much on groceries due to inflation and bought cow's milk instead of almond milk and got so sick it was something i had never seen before. i do NOT need to prioritize "saving money" over eating foods i can safely digest. i had an IBS attack early this morning because i ate some cheese- because it is a "cheap, easy source of protein."

some disabled people need to use certain services like pre-prepared foods being delivered to their homes, be it meals on wheels, or hello fresh. guilting these people for using the services because they could "just cook at home" is insulting to say the least. many of these services have tailored meals with consistent ingredients with limitations on contaminants with allergens.

here's the big one that everyone fucking hates but needs to accept immediately: some disabled people are too exhausted, in pain, dissociated, psychotic, unable to focus, unable to follow instructions, or in other ways unable to cook for themselves and need to use food delivery services like doordash and uber eats.

some disabled people can't or don't want to drive due to their disabilities! blind disabled people exist! para- and quadriplegics exist! people with hand tremors exist! working disabled people exist! amputees exist! disabled parents exist! disabled people who care for partners and family exist!

this one is sooooooo taboo and i'm sick of it. first of all, dashers and uber drivers are every day people who need to earn income. these are people's jobs and their lives are in fact on the line because this is a lot of drivers' primary income. enough with guilting people on this one. i'm fucking sick of it. y'all hate independently employed people and it shows. this isn't a luxury just relegated to rich white moms: disabled people need to have prepared, easy to eat foods delivered to our homes too. y'all need to leave people the fuck alone when it comes to takeout.

the second someone poorer and more disabled than you does something you do regularly, suddenly you're sending articles and giving paragraphs and paragraphs of advice on how to spend money better and how the disabled person "just needs to eat rice, beans, ramen, and frozen vegetables" because disabled people are not allowed comfort NOR convenience in your eyes. this is absolutely asinine. stop it. EATING is not relegated to the privileged

disabled people are people and need to eat. why you are prioritizing money over a literal human need is beyond me this is sick behavior. why do you care so much more about the money than the person ?why is money more important than someone's safety to you? why would anyone rather see someone "spend money the right way" over a human being EATING FOOD and especially foods they KNOW won't make them sick. policing how any disabled person spends their money on food is also unnecessary and abusive. it serves nothing to gain and everything to lose. so what if you think a disabled person spends too much money on food? you do too- we all do: food should be fucking free. get over yourself and let disabled people eat. leave your greed at the door, stop feeling entitled over other peoples' finances and spending habits.

telling a disabled person how to "eat healthier" will not make you healthier, and it will not do them any good, either. all it does is serve to stroke your ego because you believed you ""helped"" someone but all you did was give unsolicited advice that will be forever moot because you do not live in that person's body. don't care if you know them personally: you ain't them. so back off, let disabled people eat. food ain't just for the rich. food ain't just for the abled. let people access food in ways that are safe for us or get the fuck out of our way because all you're doing is causing problems and making disabled people's health problems WORSE.

[hussyknee]

Me @me, dead in coffin, buried: "Come on, you arent that dead. You could totally get up if you tried a little harder! See, that femur isn't even all the way rotted through! Are you even trying? Maybe you're just pretending to be dead for attention. Weak."

[mothfinite]

a message for my fellow chronically ill/physically disabled selfshippers:

your f/os love you even if you have to go through a lot of procedures/doctors appointments/labs

your f/os love you even if your symptoms are considered 'gross' or 'weird'

your f/os love you even if you have a 'gross' condition or one thats made fun of

your f/os love you even if you use mobility/disability aids

your f/os love you even if your spoons are low and makes things like personal hygeine hard to manage

your f/os love you even if youre struggling with pain and dont have energy for anything more than existing

your f/os love you and will always be there to support you and take care of you if needed, they love you for all of you ♡

pr0ship/c0mship dni

[chronic-gastro-illness-culture]

hows the tummy hurty fandom doing

[nightmarekilljoy]

Never thought this would happen but thought that this was my normal up until last year. I thought it was my normal that mild infections sent me to the hospital. I thought it was my normal to have me struggle with digestion, going to the bathroom, eating (not in an ed sort of way), cramps, back pain, joint pain, bone pain, nose bleeds, dizziness, nausea, bladder pain, tinnitus, hand tremors, near fainting experiences, fainting, bleeding, shooting pain, stabbing pain, weak legs, malabsorption, abnormal blood test.

No. Its not normal. It should not be normal.

I am angry.

I am angry at everyone who told me to just exercise, to just eat healthy, to just drink tea, to just try yoga, to just try anything that has never helped me.

I am angry at every misdiagnosis. At every hospital visit spent in pain while doctors did nothing to prevent that pain. At every doctor that said I was too young. At every doctor that dismissed even the concerns of my mother who knew my problems since birth. At every hospital stay spent in pain and without conclusive diagnosis.

I am angry at every family member who called me an attention seeker, who told me my pain was all in my head, who told me my pain was only minor and that everyone else's pain is more important because they're older and I'm young and don't know anything.

I am angry. Terribly angry. It takes too long to be taken seriously and to get a diagnosis. My pain shouldn't last this long. I should have got treatment as a child. I should have been treated.

Its not normal to be in pain every day. Please take care of yourselves.

-Amber (she/they/it/star/shine/rot)

[lifewithchronicpain]

FYI not all IBS is controllable through lifestyle and diet. I have a lot of comorbid disabilities that prevent doing certain things to reduce symptoms. I also have to take medication that worsens my constipation. I have no choice but to take a strong medication for my IBS-C - Linzess, plus Miralax to be able to go the bathroom. I suffer from flares too. Most of this is accurate to me, just not the part about IBS treatment.

[chronically-izzzzle]

Same.

[yayoineko]

Here is kitty Kochi, from last year to currently.

When Kochi first began to gradually lose weight, I thought it was just due to age (she's about 14-15 years old). But, she began vomiting, lost nearly half her body weight, and was extremely hungry all the time. At the vet, her white blood cell count was high (along with high NEU, MONO, ETIC-HMG). She has developed either IBD (Inflammatory bowel disease), or cancer. We're hoping it's the former.

Due to the IBD, intestine inflammation wasn't letting Kochi's body take in needed nutrients from her food. Which is why she was so hungry all the time and lost a lot of weight.

Although, Kochi is now on medication, a special diet, and stabilized, flare ups still sometimes occur and she's barely gained 1.5 to 2 lbs since April 2024 (when she was diagnosed).

As a "starving artist," it seems I now must rely on the kindness of strangers.

If anyone would like to help provide aid for Kochi's care: Special food, fiber supplements, and calming diffuser (it mitigates anxiety to reduce flare-ups).... Then please look at this Giftster link: https://www.giftster.com/gift/public/wv7Zq/?q=show_back (Her medication I can only pick up at the vet's office).

Or, donate via Paypal to my email: jmoffett77@hotmail.com

Kochi and I greatly appreciate your generosity. Thank you so very much, everyone! ⸜( ´ ꒳ ` )⸝ *bows* m(_ _)m

[bpod-bpod]

Gut Move

Introducing helpful drugs into the body is often challenged by our own defences. Probiotics, beneficial microbes that can help to adjust the balance of our gut microbiome, may not stay around long enough to do their job as they’re quickly corroded by stomach acids and bile. Here, scientists develop structures capable of delivering probiotics orally – but with a new trick. These tiny scaffolds, about the half the size of a polo mint, are 3D-printed from a ‘bio-ink’ of cellulose, a form of dietary fibre. Fibre has many health benefits on its own, but it’s also resistant to damage from stomach acid. Instead, these tiny containers stick to the walls of the gut while they’re slowly digested. As they can be printed in a variety of shapes suited to different applications, they may be just the thing to tackle conditions like obesity or inflammatory bowel disease.

Written by John Ankers

Image from work by Yue Zhang and colleagues

Laboratory for Biomaterial and Immunoengineering, Institute of Functional Nano and Soft Materials (FUNSOM), Soochow University, Suzhou, Jiangsu, China

Image originally published with a Creative Commons Attribution 4.0 International (CC BY-NC 4.0)

Published in Science Advances, August 2024

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