#ostomy

[crippl-hacker]

As someone with an ostomy people get so grossed out by it, even people who are pro disability. I’m told I need to sensor my stoma, even if I put a warning on my video. My very existence is something labeled as gore by social media and 18+ as if I wasn’t a child with an ostomy. I’ve been told by people that they would rather die than get a bag.

Ostomy’s are amazing and a wonder. Modern ostomy technology is incredible and bags are so awesome now. Sure it might be weird seeing your intestine move on your abdomen as you do a bag change but it’s saved my life.

I love my ostomy bag <3

abled ppl love the aesthetics of disability but they're so scared of actual disability

the angst of a panic attack or meltdown or seizure, the visual of scars and braces and crutches and nasal cannulas and hospital monitors beeping away, the idea of overcoming struggle and the limits of the human body. it's all beautiful whump for their gifs and fics and comics.

but the second they see someone needing an EMG or bronchoscopy, someone using a power chair and needing help getting into a building and advocating for their accessibility, someone using their inhaler, someone with stumps or disproportionate limbs, the mere idea of an ostomy bag or incontinence? you need to tag that, that's disgusting, that's triggering, nobody wants to see all of that.

fucking get with it. accept every aspect of it or don't even think about writing it.

[gayaest]

[Description in Alt-Text] 🐛🍎⭐️

Re-done OC: TWIG 🧃

[crippl-hacker]

My number one priority for needed medical equipment: decoration.

[theblueboxscholar]

You know what I miss the most about not being an Ostomate? Tummy time.

I miss laying on the floor on my tummy. :[

I was always such a floor baby. One of the things Kathrine and I had in common. We both LOVED to sit or lay on the floor.

I also miss sleeping on my stomach, but it's been years so I'm used to sleeping on my back now. But... ugh. Sleeping on your tummy with your face gently cradled by a soft pillow? 🤌🏻

[piqu3d]

will this make sense without context? maybe not, but that just means you should read the proof is in the pudding by @star-byrd. In it Obi-Wan has an ostomy, Fox has an ng tube, shenanigans occur as well. a good time.

[dreveel]

Ostomy Covers; {Credit}

[oldfangirl81]

It just dawned on me to look up where my ostomy pouches are manufactured because it hit me tariffs will apply to medical supplies too. Fun. 🫠🙃

[disabledcharacters]

BOOKS: Freya (Sh!t Bag by Xena Knox) - Ostomy Bag

SH!T BAG is a dark humour, disability-positive YA about a feisty, sporty, sixteen-year-old girl called Freya who wakes up in hospital with a poo bag (aka an ileostomy) and has to learn to live with it and her new nickname Sh!t Bag.

When her dreams of the perfect summer partying in the Algarve go down the toilet, she's packed off to 'Poo Camp' - a place for kids with bowel disease to 'bond'.

[author's site]

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Join me as I celebrate and post about different Disabled Characters throughout the month. Tracking #dcotm

[cecile-dormeau]

[itslunchboxworld]

Tummy Tuesday!

[goaskalexonline]

𝒯𝒽𝑒 𝒥𝓊𝓃𝑔𝓁𝑒 🍃 GoAskAlex x CorwinPrescott

[docktowns]

growing up, i had an illness. i was born with it, no one thought i'd survive, or that i'd be frail and sickly my whole life if i did. i am pretty sickly, i'll give them that, but i grew up to be about a foot taller and 200lbs heavier than they thought i’d ever be. i am my parents' miracle, and i have grappled with that my entire life.

read now on substack.

[alaydabug2]

I'm in the car and I'm bored en

SO HERES A LIST OF MY MEDICAL ISSUES IVE HAD THROUGHOUT LIFE 😃

Vaugly related to my fanfic

Tetrology of Fallot (tof): congenital (born with it) heart defect that is basically 4 defects in 1 (I do not have the energy to look up or type all those scientific words rn so sorry)

I've had 3 open heart surgeries to fix it o e at 8 days 10 months and 5 years

Died 6 times on the second one 😃

Ngl life isn't too different with it

If you don't count the yearly doctor visits and can't play contact sports

I mean there's more to it that that obviously but it's mainly small things like getting out of breath quicker and I bruise easy because of having to take baby asprin

BUT the doctors ORIGINALLY said I was never gonna be able to walk or talk or do anything for myself

God vetoed that decision 😌

NOW I NEVER SHUT UP 😁

Got a nifty battle scar down my chest as a souvenir ☺️

And I used to be called smurf baby cause I turned blue alot

I make jokes about it now (hush I'm allowed to )

Ngl pretty sure I'm short cause failure to thrive as a baby cause of that 😭

Don't think there's any scientific backing on that tho for tof patients

Imperferated anus + colostomy bag: basically means I was born without a butthole

Not even joking on that i wasnt

But had to have three gastrointestinal surgeries from that

Don't know the ages or many details but I'm pretty sure I was two for the last one

And I had to have a colostomy bag

Thankfully don't remember it

Buy my waste went into a bag that had to be changed out

Ik it got infected so the scar is bugger than it should be

Seizures: if you've read my fanfic that's explained in detail for how it feels

But that was from aged 5-10

We never found the specific reasons for it

But we do hypothesize it has something tk do with possible scar tissue on my brain

Either from a heart attack/stroke/lack of oxygen from my second heart surgery is what we think it could be from

During a seizure my heart would start beating weird (not good description ik but idk how to describe it really) and my vision would start to tunnel out my tongue would tingle and then I'd black out

During a seizure I couldn't hear anything or see anything but my head would completely start to tingle

From my parents I was told during them I would stiffen up and lock my joints and almost seem to hyperventilate

It was control moderately well by medicine but I thankfully do not have them anymore

Hard hearing: im not like deaf or anything nor do I use hearing aids but my hearing isn't what it should be for a normal teenager lol

This is because during one of my heart surgeries they gave me a drug used on horses and a little too much if it at that (ketamine?)

Legally blind: yeah come to find out last year found out my eye sight is actual crap

Without my glasses I am legally blind

I've got 20/200 vision 😭

So I've got these crazy thick glasses now

Tourretts: neurological disorder where I make these random noises and movents

Got diagnosed back in sixth grade

My tics ate ill make various sounding noises (all kinda of variations of a hiccup for visualization) and my head will jerk back

It was awful before we found out what it was

Got picked on for it quite a bit and a certain teacher of mine essentially told me "just stop bro lol" and I'd get sent out of class for it even after we had doctor notes for it

Just get up out of that wheel chair then then buddy ☺️

They'd get set off my certain things

Music being one of them so I would carry around these earbuds when there was music around so it didn't get set off

I'm on medicine now for it and it's a LOT better

And a recent development (in the past 6 months) I've been able to listen to music again!

The tourretts aren't going away tho

If over been without medicine for more than 2 days it's BAD

Ovarian cyst (possible pcos?) : this has happened over this summer so you already got some rants on that lol

Buy I've got an 8cm cyst on my left ovary

Hurts like a beach 😃

In fact this Friday I was holed up in my room hyped up on narcotics cause of it

Fun stuff 🙂

Surgery is supposed to be on October 5th so we'll see how that goes

Yeah so medical history of mine 😃

That's fine

We'll see what comes next to the collection I can add

Also here's some pics of a couple of my scars (that I can show several are in places I'm not keen of people seeing 😅)

That's my colostomy scar

And near the top you can see a scar from a chest tube from my third heart surgery

And here's a really good picture of my heart surgery scar that I have (goes down to under the ribcage)

On my neck you can see a breathing tube scar

At least I think that's what it is

Also the corner of my lip I have a scar from some sort of tube from surgery (can't see it well on camera

Tbh idk what half these tiny scars are from

I just know they're remnants of surgery

Any way I do know kw I have a couple of other chest tube scars

But they are not in places to be shown

Same with a few dimples near my tail bone from gastrointestinal surgery

But those are there too

[crippl-hacker]

I am now the proud owner of an ostomy! My surgery went well and I have now reached 24 hours of having a bag. The surgery was actually easier than anticipated according to my surgeon!

[gailyinthedark]

I think

I think I may desperately need to design myself an ostomy cover in the style of a Jacobean-era under-skirt pocket