#adhd and fibromyalgia

[brightlotusmoon]

I asked for rain. It has mostly threatened rain. My joints and my skull have been under so much pressure that it's extended to those raised neonatal scars on my ankles and underarm that look like tree roots and burns, and I am reminded that they're probably irritating nerves and connective tissue anyway.

I asked for rain, but the Anemoi and the Hyades seem to be on hold.

[brightlotusmoon]

Happy Disability Pride 2023.

Happy Cannabis Is Now Legal Day for Maryland. I suspect a lot of people will sign up for medical cards soon...

[crippledpunks]

i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary

[jenacat8-blog]

Being neurodivergent and chronically ill is crazy because you already have issues with executive functions and then your body hinders you even more. AND your sensory issues are heightened by the pain you feel.

[thedisablednaturalist]

I know there's a literacy crisis or whatever but that doesn't give you the right to go after people with intellectual disabilities and people with brain fog and learning disabilities. Sometimes we need help understanding something, we might ask "dumb/obvious" questions. It doesn't mean we aren't trying to pay attention or use critical thinking. Responding to someone's question on the internet with snobby wisecracks about how the person should learn to read or go back to 1st grade is rude at best and ableist at worst. Just ignore the question if you don't want to answer. Don't flatter yourself saying how progressive you are if you turn around and make fun of your friend for asking a question after a movie.

My partner let's me pause and ask questions during shows and movies bc he loves me and wants me to enjoy what we're watching too instead of sitting there confused cause my brain couldn't catch up. Or I lost attention for a few seconds and missed something important.

[eggings]

happy disability pride month to anyone who has a disability from a condition that “usually isn’t a disability”. happy disability pride month to people with disabilities that aren’t often understood by able-bodied people. happy disability pride month to people who don’t have any official diagnosis yet. happy disability to people whose “labs look completely fine”. wishing you peace this july.

[tea-from-heaven]

When people give you little lectures and warning telling you not to have a victim mentality it pisses me off.

I am disabled and chronically ill. There are some (many) things I cannot do or struggle to do. There are many things that cause me pain and yet I do them daily because that is what society expects from me. Yes I spent the last two days taking it easy (while still attending my online classes) but unless I am running at the same capacity as able bodied people it's never enough.

I am sick to death of people telling me my best isn't good enough. As if I'm not fighting tooth and nail to move forward. As if I am not already terrified for my future and trying my best to be independent.

Warning me not to have "victim mentality" is not useful, it is hurtful and reeks of ableism.

Stop.

PSA: your best is good enough. Even if your best today was just being conscious for a few hours. You are giving everything you have in a world not built for you. That is brave af. You're doing wonderful!

[madamefortressmommyy]

If you are ever thinking of an autistic person and say to yourself "I never really have to make any/many accomodations for them."

Yeah.

That is because WE are the ones making the accomodations for YOU.

You always hear about how we need all this support and patience but no one ever talks about the sacrafices ASD people make for he NTs in our lives that they never even see or know about.

Oh, you think I am "well spoken?" Thats cuz i spent a ridiculous amount of time rehearsing my lines and facial expressions to make sure they meet your liking.

I don't seem to have any sensory issues? My guy, i have nerve damage from raw dogging the pain. You ever watch a lactose intolerant person eat dairy? They aint gonna shit their pants in front of you. You dont have to follow them into he bathroom to believe them.

Oh you mean you dont remember me ever having a meltdown? I locked myself on the bathroom to have my "temper tantrums" in private since i was 5 years old.

You think I dont stim? Let me roll up my sleeves and show you the gashes and scars from clawing myself under my shirt. The inside of my mouth looks like a crime scene. I can taste the blood. You cant. I would much rather be "squirming" or wearing very strong perfume but i know that bothers people so i find another way.

You think i am "smart?" Yeah i might be, but that is because i am constantly using my problem solving skills to quietly and covertly solve problems i am not "supposed" to have. Problems that would never even occur to you. Problems you would never even know about because i am fucking terrified of what people would say if they knew it takes me 3 hours to get dressed and shower sometimes.

I have given myself perminant nerve damage just because i was afraid to make other people even a little uncomfy.

You understand body language because it comes naturally to you.

I understand body language because it comes naturally to you.

We are not the same.

[incognito-liger]

I’ve just about had it with people who don’t think outside of themselves and the social norms they inhabit. Not everyone can physically train themselves out of stiff joints and muscle pain. Not everybody can work. Not everybody can just try harder. I’m already giving my 100% every day what more do you want? If you ever wake up feeling rested be thankful. If you can exist without noise-cancelling headphones be thankful. Everything I do needs to be functional and efficient or my life goes to shit. I can’t waste energy on things that are not absolutely necessary. My brain hates doing those things. There’s too many things. I want to try harder. I want to be thankful of things. I want to try harder.

[brightlotusmoon]

One of my very favorite things about mutuals on Tumblr is when a new friend starts reblogging a bunch of my older posts. I've been having memory problems for so long that it's an absolute delight to see that something I wrote five years ago resonates with people and it makes me look back fondly.

[glowing-pesticides]

Guys can disabled people reblog this with stuff your partner(s) and friends do for you that you really appreciate?

I'm doing some writing stuff so pretty much any disability goes, it can be invisible or visible, it can be a neurodivergencey i don't care as long as you are disabled in some way

You don't have to disclose your disability if you don't want to, I just want to see some things that the people around you do that you appreciate!

[weaponizedhorse]

If you have autism, ADHD AuDHD, depression, anxiety, OCD anything that causes you executive dysfunction where you feel overwhelmed by tasks and don't know where to start I need you to stop and read this because this website is about to change your life.

It is called goblin.tools and it is completely free and I believe it is life changing.

So this magic todo taskmaker is amazing. You can give it any kind of task you need to do and it will break it up into easy to understand, manageable, and accomplishable steps, (that you can then check off the list which probably my favorite part) like cleaning your room, making coffee, etc

In this example below I put the Magic ToDo Task as "take a shower" (but it can be any task)

Here is the lowest spicy take (aka not broken down into many steps)

And here is the highest spicy level (where the tasks are broken into many easily managable step that will tell you exactly what to do)

Any parts of this you feel like didn't give you enough steps? Need more clarity? No problem! Any step you can edit or break it into even smaller steps!

Let's say you are have a foggy brain day and need more instructions for washing your hair, here you go!

Legitimately it can break down any task, making them so much more approachable and manageable.

And if this incredibly cool task helper thing wasn't enough for you, the website has five other functions

A feature that adjusts the tone of your text, allowing for a more professional or sarcastic expression, ideal for business emails.

An emotion detection tool, which helps interpret the emotional content of a text, identifying anger, frustration, or other sentiments to clarify communication misunderstandings. (I think this feature could help a lot of autistic people SO much)

A function that estimates the time required for various activities, such as making the bed, providing practical scheduling help

There is an entire *insanely* cool cooking function (I am gonna have to make a post about that)

Something called the "Compiler"? I honestly don't get it. It says "Compile my braindump into a list of tasks" (so if someone figures that out please let me know)

And since it is tax season under the cut are the steps it gives you for filing your taxes on the lowest and highest task breakdown levels! :)

[crippledpunks]

chronic fatigue weaves its way into everything. people love to tell disabled people they'd love to rest as much as we do, but they fail to understand how tired we are while we rest. we are not relaxed, we are generally pretty miserable, either from pain, irritability, or fatigue- which bleeds into every aspect of your life. being too fatigued to get up off of the couch means that you're too fatigued to get to the cupboard to pull out pans to attempt to start cooking.

the steps hidden within steps that are required to do a lot of tasks related to being a "functioning adult" are daunting, there are often way too many steps necessary to make "Simple" foods or do "simple" chores for disabled people to accomplish these tasks. chronic fatigue often means that even waking up from a nap or night's rest requires time to adjust to and power through

waking up is a process for me. im often no more alert and awake hours after i've woken than I am right after doing so. caffeine does not help fatigue- at least not at safe doses, for me, anyways. many days the act of moving from my bedroom to my living room is too much. taking dishes to the sink can be too exhausting. i have began falling asleep in front of the kitchen counter while standing because i realize the amount of steps required to clean the counters, or do the dishes, or prepare a meal that all of my energy instantly bleeds away

it's okay if you feel this way too. i have been dealing with chronic fatigue my entire life and it cost me my best paying job. i lost my ability to work because of it. it's not just you being "sleepy", you are genuinely too exhausted to function. you do NOT have the energy levels other people do, and that's okay. it's okay to let yourself be tired sometimes and address that instead of trying to pretend you're not tired.

i wish you good luck. you are loved

[carmens-tummy-hurts]

hey please interact if you're disabled, queer, plural, reality shifter, furry, or spiritual, I need friends

[feelingthemode]

disability pride month userboxes part 1/5

posted these on insta throughout the month :3

[dailydivergent]

If you're neurodivergent, taking a break literally requires planning.

This is because we often don't give notice to how much work we actually do in a day, because what constitutes as "work" for us is not "work" for others.

It requires me work to:

walk the dog

make a meal

shower

write a tumblr post

So of course taking breaks is going to require some work, too.

Here's how I've learned to plan for my breaks:

I give worry a time & place; this allows me to say, "now's not the time to worry" once I'm on break.

I accept all work as work (mentioned above)

I focus on doing the top 3 tasks in a day, not all of it; this combats the feeling that I need to do something to "deserve a break" (total bs, btw)

I listen to my body; it's not up to me to decide when it's "time" for a break

I have fun projects within my hobbies; this gives me a focus for my breaks, so I'm not spending time deciding what to do during my breaks

I know it seems convoluted now, but I promise you, this kind of forward planning for my breaks has allowed me to actually rest when it's time to rest.

I can finally rest on a daily and weekly basis without constantly solving problems in my head, ruminating on past conversations, or worrying about the future, because I gave worry a time & place.

I can accept that I do deserve a break every single day no matter what I actually accomplished, because I accepted everything as work, focused on my top 3, and listened to my body when it said it's time.

I can look forward to what I spend my breaks on, because I took the time to plan fun projects with other people, which holds me accountable to doing those things with my friends.

It took me a long time to get here, but I hope this post speeds up your process—even if just a little bit.