#adhd and fibromyalgia

[brightlotusmoon]

I asked for rain. It has mostly threatened rain. My joints and my skull have been under so much pressure that it's extended to those raised neonatal scars on my ankles and underarm that look like tree roots and burns, and I am reminded that they're probably irritating nerves and connective tissue anyway.

I asked for rain, but the Anemoi and the Hyades seem to be on hold.

[brightlotusmoon]

Happy Disability Pride 2023.

Happy Cannabis Is Now Legal Day for Maryland. I suspect a lot of people will sign up for medical cards soon...

[crippledpunks]

i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary

[jenacat8-blog]

Being neurodivergent and chronically ill is crazy because you already have issues with executive functions and then your body hinders you even more. AND your sensory issues are heightened by the pain you feel.

[eggings]

happy disability pride month to anyone who has a disability from a condition that “usually isn’t a disability”. happy disability pride month to people with disabilities that aren’t often understood by able-bodied people. happy disability pride month to people who don’t have any official diagnosis yet. happy disability to people whose “labs look completely fine”. wishing you peace this july.

[tea-from-heaven]

When people give you little lectures and warning telling you not to have a victim mentality it pisses me off.

I am disabled and chronically ill. There are some (many) things I cannot do or struggle to do. There are many things that cause me pain and yet I do them daily because that is what society expects from me. Yes I spent the last two days taking it easy (while still attending my online classes) but unless I am running at the same capacity as able bodied people it's never enough.

I am sick to death of people telling me my best isn't good enough. As if I'm not fighting tooth and nail to move forward. As if I am not already terrified for my future and trying my best to be independent.

Warning me not to have "victim mentality" is not useful, it is hurtful and reeks of ableism.

Stop.

PSA: your best is good enough. Even if your best today was just being conscious for a few hours. You are giving everything you have in a world not built for you. That is brave af. You're doing wonderful!

[madamefortressmommyy]

If you are ever thinking of an autistic person and say to yourself "I never really have to make any/many accomodations for them."

Yeah.

That is because WE are the ones making the accomodations for YOU.

You always hear about how we need all this support and patience but no one ever talks about the sacrafices ASD people make for he NTs in our lives that they never even see or know about.

Oh, you think I am "well spoken?" Thats cuz i spent a ridiculous amount of time rehearsing my lines and facial expressions to make sure they meet your liking.

I don't seem to have any sensory issues? My guy, i have nerve damage from raw dogging the pain. You ever watch a lactose intolerant person eat dairy? They aint gonna shit their pants in front of you. You dont have to follow them into he bathroom to believe them.

Oh you mean you dont remember me ever having a meltdown? I locked myself on the bathroom to have my "temper tantrums" in private since i was 5 years old.

You think I dont stim? Let me roll up my sleeves and show you the gashes and scars from clawing myself under my shirt. The inside of my mouth looks like a crime scene. I can taste the blood. You cant. I would much rather be "squirming" or wearing very strong perfume but i know that bothers people so i find another way.

You think i am "smart?" Yeah i might be, but that is because i am constantly using my problem solving skills to quietly and covertly solve problems i am not "supposed" to have. Problems that would never even occur to you. Problems you would never even know about because i am fucking terrified of what people would say if they knew it takes me 3 hours to get dressed and shower sometimes.

I have given myself perminant nerve damage just because i was afraid to make other people even a little uncomfy.

You understand body language because it comes naturally to you.

I understand body language because it comes naturally to you.

We are not the same.

[incognito-liger]

I’ve just about had it with people who don’t think outside of themselves and the social norms they inhabit. Not everyone can physically train themselves out of stiff joints and muscle pain. Not everybody can work. Not everybody can just try harder. I’m already giving my 100% every day what more do you want? If you ever wake up feeling rested be thankful. If you can exist without noise-cancelling headphones be thankful. Everything I do needs to be functional and efficient or my life goes to shit. I can’t waste energy on things that are not absolutely necessary. My brain hates doing those things. There’s too many things. I want to try harder. I want to be thankful of things. I want to try harder.

[glowing-pesticides]

Guys can disabled people reblog this with stuff your partner(s) and friends do for you that you really appreciate?

I'm doing some writing stuff so pretty much any disability goes, it can be invisible or visible, it can be a neurodivergencey i don't care as long as you are disabled in some way

You don't have to disclose your disability if you don't want to, I just want to see some things that the people around you do that you appreciate!

[feelingthemode]

disability pride month userboxes part 1/5

posted these on insta throughout the month :3

[weaponizedhorse]

If you have autism, ADHD AuDHD, depression, anxiety, OCD anything that causes you executive dysfunction where you feel overwhelmed by tasks and don't know where to start I need you to stop and read this because this website is about to change your life.

It is called goblin.tools and it is completely free and I believe it is life changing.

So this magic todo taskmaker is amazing. You can give it any kind of task you need to do and it will break it up into easy to understand, manageable, and accomplishable steps, (that you can then check off the list which probably my favorite part) like cleaning your room, making coffee, etc

In this example below I put the Magic ToDo Task as "take a shower" (but it can be any task)

Here is the lowest spicy take (aka not broken down into many steps)

And here is the highest spicy level (where the tasks are broken into many easily managable step that will tell you exactly what to do)

Any parts of this you feel like didn't give you enough steps? Need more clarity? No problem! Any step you can edit or break it into even smaller steps!

Let's say you are have a foggy brain day and need more instructions for washing your hair, here you go!

Legitimately it can break down any task, making them so much more approachable and manageable.

And if this incredibly cool task helper thing wasn't enough for you, the website has five other functions

A feature that adjusts the tone of your text, allowing for a more professional or sarcastic expression, ideal for business emails.

An emotion detection tool, which helps interpret the emotional content of a text, identifying anger, frustration, or other sentiments to clarify communication misunderstandings. (I think this feature could help a lot of autistic people SO much)

A function that estimates the time required for various activities, such as making the bed, providing practical scheduling help

There is an entire *insanely* cool cooking function (I am gonna have to make a post about that)

Something called the "Compiler"? I honestly don't get it. It says "Compile my braindump into a list of tasks" (so if someone figures that out please let me know)

And since it is tax season under the cut are the steps it gives you for filing your taxes on the lowest and highest task breakdown levels! :)

[neurotichunter]

I don't want this anymore. I want to be a normal person. Not this meat sack riddled with the bullshit my body and my mind come up with every second.

[crippledpunks]

my heart goes out to you if you're a disabled person who has a complicated or negative relationship with sleep. if you need to sleep a lot but can't due to life circumstances, or sleeping extra causing other symptoms to flare up. if you can't sleep enough due to pain, or nightmares, or psychosis, or bipolar, or depression. if you sleep way too much and find it hard to stay awake. if you can't fall or stay asleep. if you need medication in order to be able to sleep. if you don't feel rested from sleep. if you wake up a lot in the night. if you have bladder or bowel accidents while asleep. if you twitch or convulse or move too or get injured in your sleep. if you can't control your sleep schedule no matter what. if you can't sleep during "normal" sleeping hours. if you can't sleep for 8+ hours straight but can sleep for shorter amounts of time. if sleep is what you need but for one reason or another you just can't or refuse to do it.

i care about you. your disabilities deserve to be seen and acknowledged

[dailydivergent]

If you're neurodivergent, taking a break literally requires planning.

This is because we often don't give notice to how much work we actually do in a day, because what constitutes as "work" for us is not "work" for others.

It requires me work to:

walk the dog

make a meal

shower

write a tumblr post

So of course taking breaks is going to require some work, too.

Here's how I've learned to plan for my breaks:

I give worry a time & place; this allows me to say, "now's not the time to worry" once I'm on break.

I accept all work as work (mentioned above)

I focus on doing the top 3 tasks in a day, not all of it; this combats the feeling that I need to do something to "deserve a break" (total bs, btw)

I listen to my body; it's not up to me to decide when it's "time" for a break

I have fun projects within my hobbies; this gives me a focus for my breaks, so I'm not spending time deciding what to do during my breaks

I know it seems convoluted now, but I promise you, this kind of forward planning for my breaks has allowed me to actually rest when it's time to rest.

I can finally rest on a daily and weekly basis without constantly solving problems in my head, ruminating on past conversations, or worrying about the future, because I gave worry a time & place.

I can accept that I do deserve a break every single day no matter what I actually accomplished, because I accepted everything as work, focused on my top 3, and listened to my body when it said it's time.

I can look forward to what I spend my breaks on, because I took the time to plan fun projects with other people, which holds me accountable to doing those things with my friends.

It took me a long time to get here, but I hope this post speeds up your process—even if just a little bit.

[melodymorningdew]

If I hear someone tell an autistic person to read the room one more time... 🙃

Not everyone has an iOS brain some of us gotta deal with a Motorola for a prefrontal cortex.

CANT DOWNLOAD YOUR STUPID BODY LANGUAGE SOFTWARE. PLAYSTORE DONT HAVE ITalright I've taken the metaphor too far.

[spoonie-isms]