Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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Canines
The hand that feeds
Mickbell Tomas & Kuro
Dungeon Meshi
^ 1: Ink-the-artist, I will remove my teeth / 2: Margaret Atwood / 3: C.S. Lewis, The Horse and His Boy / 4: Mitski, I’m your man / 5: Ojibwa, I love you like a rotten dog / 6: KotOR II / 7: Stardrop, Everything that’s ever been mine is covered in teeth marks / 8: Sodikken, People Eater / 9: Mitski, I’m your man / 10: maxime., The life and death of a dog / 11: Mitski, I bet on losing dogs / 12: maxime., The life and death of a dog / 13: hun, I did not bite with Malice / 14: C. Michael Davis, Don't Pet the Dragon / 15: Mitski, I’m your man
v 1: Early versions of the myth as in aeschylus orestes / 2: Ink-the-artist, I will not remove my teeth
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I don't think it really sinks in just how devastating social development/social understanding deficits can be, especially growing up in formative years.
I was the type of autistic who genuinely didn't know the things I said were or may be insulting to others until it was too late and the worst part was I wasn't being malicious. But because my statements, observations, or jokes were taken as malicious, nobody thought to direct me about what is socially acceptable. Instead, I was socially isolated, making the issue worse because I never learned. I don't fault others for this, but social isolation because of differences in neurotypes absolutely affects your development, I think. It hasn't been until pretty recent that I started to actually be able to have the foresight to know that my intentions aren't clear to others the way that they are clear to me. In fact, my socializing has swung the other way where I am too restricted and paranoid.
I absolutely understand that I lived in a time where different neurotypes were not understood, and that because nobody understood, you were seen as maliciously non-compliant with social cues and roles. I don't blame the people around me who didn't know, but what I am trying to say is that I just wish we weren't so quick to socially isolate the "freaks" and "weirdos" and "non-compliant" people. Humans are social creatures, and honestly, it's a very drastic punishment that often makes the behaviours worse.
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need post magic reveal/ban repeal where magic is free and everyone grows in their knowledge of just what magic is and how it works etc, etc. merlin (isn't one for bragging about his powers) doesn't really mention much about his magic so people just assume he has enough to get by with like chores but not enough to catch the ire of uther EXCEPT for gauis, lancelot, and arthur bc gaius and lancelot have known about him for years and know what he's capable of and arthur sat merlin down and demanded all the stories so arthur knows he'd be a formidable opponent but he doesn't really get it yk? so he's like "yeah merlin has magic and he's capable of defending himself and camelot so he's probably on the more powerful end of the spectrum like every other sorcerer who is powerful"
and then i need merlin to be Different. like noticeably different. like idk a sorcerer is like trying out to be court sorcerer (bc merlin doesn't want another job dammit arthur give it morgana or someone-) and they perform this elaborate spell that captivates merlin and he starts asking all these questions and the sorcerer is like "yeah it's super difficult, it took me months to get it right and it takes years for some others-" and they cut themselves off bc merlin was just like "i wanna try" and does it perfectly first try. the sorcerer is seething.
camelot is hit with a heatwave and everyone is suffering and arthur is just like "morgana can you make it rain or something? it's too hot to breathe." and morgana is just like "no you idiot i can't just bend nature to my will. it doesn't like that." and merlin finally arrives with waterskins full of nice, cold, refreshing drink that the knights are frothing at the mouth to get. arthur complains again and morgana huffs and merlin is like "has he been like that this whole time?" and morgana nods with a groan and merlin laughs before going "i can try something" and leaves before anyone can say anything and arthur looks at morgana and is like "i thought you said nature doesn't like to be controlled?" and she's like "it doesn't" and then they all chase after merlin but he's chilling in the courtyard with his eyes closed, not even chanting, and then the sky starts to darken as black clouds roll in, the temperature plummets and then...snow begins to fall. in july. they all end up having a snowball fight.
a power hungry sorcerer comes along and is like "emrys....he's perfect....just what i need...teehee" and casts some spell over merlin and begins to siphon his magic and his power and merlin feels waves of his magic flood through the connection and into the sorcerer and like he's a mix of panic and concern bc yeah this mf is taking his magic but they're taking his magic. merlin tries to bargain or talk them down while the knights and arthur try to attack but the sorcerer keeps pushing them back and ignores merlin and is like "i want power, i want your power" blah blah blah monologue time and they swing another wave of magic out at the knights and knock many out while killing some and merlin is just like "ok no that's all folks thanks" and starts to push his own magic through the connection. the sorcerer has this wild gleam in their eyes and they feel more and more power fill them and it's like a high until it gets too much and they frantically try to sever the connection and their telling merlin to stop but merlin is just like "i thought you wanted my power? i'm giving it to you" and continues to flood the sorcerer with his magic until gold begins to trace their skin and they idk explode or smth and then all the magic flies back into merlin and he flexes his hands. unnamed knights 3, 6, 22, 53, and 55 still died so it's a tragedy.
a bunch of sorcerers are entertaining at a feast (kind of like the trickler) and they cast illusions all around the room that look real enough (unless you look too closely or touch it bc they are somewhat see through and your hand would pass right through them) and it's a fun and joyous night. later that week, the knights bring it up during their break while training and merlin is like "sure, what illusion should i cast?" and after some back and forth, he settles on the illusion of a dragon. it's around the size and age of aithusa bc that's all he has to go off of and it's gold since he took inspiration from the pendragon crest all around the area. it jumps around and flaps it's wings to get some air and it's all fine and dandy until elyan goes to poke his hand through it's ribs but meets physical scales and he jumps up into percival's arms. merlin looks closer and is like "oh. its real. whoops." and leon is like "whoops?? you make a real life dragon and all you have to say is whoops?" and merlin shrugs and is like "it was an accident" and leon about keels over from a heart attack "an accident? how do you accidentally-" the dragon is considered a gift from magic to camelot and helps further heal the wounds of uther's purge.
idk just like merlin being casually the most powerful sorcerer to walk the earth and unnerving people just by how little he seems to care about his shows of power but they're all like "well he's just doing all these small things that don't harm anyone and he doesn't even seem to realize just how powerful he is so what can ya do?" and they leave it be and make peace with merlin being Like That. and then camelot/arthur is attacked or smth idk and then everyone gets to see exactly how powerful and dangerous merlin is
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hey guys btw there is actually never a good reason to loudly and publicly talk about how much u dislike a fanfic!! Like. let's break this down for a sec:
i don't like it
ok, understandable. i've dnf'd lots of fics because i didn't like them. but the people writing fanfiction are doing it for free and for fun, and you don't know anything about their lives. they could be a young writer just starting out! they could be an older writer getting back into writing after years of being unable to! they could be someone going through a rough patch whose only source of joy right now is writing their silly little stories! talking about how much you dislike a fanfic literally does nothing except hurt the person writing it. that's it. it is not productive, it is not necessary. even strangers on the internet deserve basic human empathy.
ok but i really don't like it
babe, i feel u! i'm a hater too. rant about it privately. shit on it in private messages or group chats with friends. u can dislike something without dragging its creator into the town square to throw tomatoes at them, yknow?
ok but i really don't like it AND it's popular
ok? shouting about that on the internet doesn't make you cool or special or unique. it just makes you kind of mean and, honestly, bitter. like i said before, this is fanfiction. nobody is paying for it. nobody is profiting. there is no standard that these writers are obligated to meet. clearly, other people like the work. why not let them enjoy it in peace?
no u don't understand it doesn't deserve to be popular there are better fics that deserve it more!!!
talk about those fics then!! post about how much u love them!! uplift those writers!! ur tweet or tiktok or tumblr post is not going to suddenly make a popular fic lose all popularity, no matter how undeserving u perceive it to be. if this is actually coming from a place of frustration because you feel like there are other fics that deserve more attention, then just give those fics attention.
no but it's problematic
mmm ok. let's sit with this one for a second. i want you to ask yourself--is it really, really problematic? is it perpetuating harm against a marginalized group? remember, this is fanfic; it is outside the consumer economy, and the stories it tells will almost never make it to a mainstream audience. so is the story actually hurting people, or is the author just exploring something that you're uncomfortable with? because if you're just uncomfortable, then assuming the work is tagged properly, the best course of action is to just click away. as uncomfortable as it may be, people are allowed to write stories that you might find upsetting or gross or weird, and those stories existing is not inherently harmful in and of itself.
it is actively reinforcing harmful stereotypes/rhetoric/etc
okay! ok. if you are deeply concerned because you feel that this fic is genuinely harmful, then go to the writer. leave a comment. send them a message on tumblr or twitter or tiktok or wherever. explain your situation and see what they say! nine times out of ten, i'd bet that an ao3 writer means no harm and would be willing to listen and address your concerns. in fact, they might even be grateful to you for being kind enough to make them aware of a problem and educate them on it. every ao3 writer i've ever spoken to is an incredibly kind and thoughtful person; you don't need to immediately go on the attack
the writer is unreachable/nonresponsive/not willing to address or change the problematic thing
alright. if you truly feel that this fanfiction is actively harmful and can't reach any kind of conclusion with the writer, and you want to warn others who might read the fic, then do that. do that. make a post that says hey guys btw, x thing in this fic is not a good representation/perpetuates a harmful stereotype/whatever the problem is. and leave it at that! you don't need to go further and insult the writing or the person who wrote it. that is helpful to exactly no one, and if your goal is actually to make the world a better place, then you should learn how to draw attention to an issue in a way that encourages actual dialogue instead of dog-piling and personal attacks.
anyway the next time you feel the desire to post about how bad you think a fic is, feel free to use this as a guide before u do! xoxo
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