#Sjogrens

[spookysalem13]

I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

[spoonie-support]

[cinnabadgr]

[chronicillnesshumor]

[doomedfromthewombfr]

My body’s favorite hobby? Gaslighting me into thinking I’m fine until I move. Then it’s like, ‘Haha, just kidding- suffer’

[obsidianwhipsers]

🎄 Newsflash: Not everyone is jingling all the way. For those of us living with mental illness, chronic illness, or both, the holidays can feel like an endurance test wrapped in tinsel and topped with guilt.

✨ If you’re struggling this season:

It’s okay if “merry and bright” isn’t in your vocabulary right now.

Canceling plans doesn’t make you a bad person- it makes you a human protecting your peace.

You’re allowed to prioritize survival over celebration.

💡 To everyone else:

Stop assuming the holidays are magical for everyone. They’re not.

Offer support, not judgment, when someone says they’re overwhelmed.

Don’t guilt people into participating- sometimes the best gift we can give is space to breathe.

🎁 The real holiday spirit? Empathy. Share it freely, especially with those quietly carrying more than their fair share.

Take care of yourselves, and remember: surviving is enough. ❤️

[mysandwichgiver]

Hey y'all, today is World Sjogren's Day.

We are many, and we are lobbying for awareness, better treatments, and more research!

[notjustanyannie]

My therapist keeps telling me I need to get out and do things. I say I’m too exhausted and everything hurts.

“Why are you so tired?

Idk, maybe because I have exhausted disease (cfs/me), pain with exhaustion disease (fibromyalgia), autoimmune with exhaustion disease (Sjogren’s), disordered sleeping and a bunch of other diseases with pain and exhaustion?

“But doing things will make you feel better”.

No, it usually makes me more exhausted and with added pain. It takes days to recover from a simple drs visit.

It’s like they think I want to stay in bed all the time, watching my life go by.

[shortaspoon]

Turns out that I not only have fibromyalgia but also POTS, and lupus and Sjogren’s and non radiographic axial spondyloarthritis. Plus the bulging C5/6 and 6/7 discs and lordosis in my lower back. My year is off to a bang.

[disabledsysboxes]

Autoimmune - 3

[spookysalem13]

Just a fellow spoonie 🥄 here to share a relatable hilarious 😄 video.

Being chronically ill, you have to learn to find the humor in your diseases. For me, it's a major way I get by day to day.

This made me smile, I hope it can make you smile as well.

[spoonie-support]

To everyone who is homebound or bed bound this holiday season...

you are not forgotten. we all are invthis together.

[zenspa-hypamama-me]

[chronicillnesshumor]

Get as a t-shirt, hoodie, or mug on Etsy here - https://tinyurl.com/2xhbmvfh

[doomedfromthewombfr]

Lately, it feels like my body is waging a war I never enlisted in, every nerve and muscle fighting to out-scream the other. The fatigue is a weight I can’t put down, dragging me through days that feel like endless uphill climbs. Pain has settled into my bones like an unwelcome tenant, refusing to leave no matter how much I beg. Even the smallest tasks- brushing my hair, standing too long, existing- feel like monumental battles. I’m exhausted in ways I can’t explain, and some days, the fight to keep going feels like it might be too much.

[intentkitten]

The fridge M (she/them/their/theirs) stores bulk frozen foods and prepped meals for their kids went out, ruining $750 worth of food. So their monthly medical budget went to replacing food for their children.

Please donate.

Intentkitten.gay is a quick link to the gofundme account. Or send funds directly to

Venmo SojournerT91

Cashapp $Mo2391

Paypal.me/niconiche and I will send the funds directly to M from my account. She doesn't have PayPal

$40 today would help them get food ordered so she can eat