#mctd

[grendel-menz]

I’ve got MCTD and this one finger of mine has been so determined to be blue like -.-

[chronicillnesshumor]

Not to brag, but I know more about my illness than my doctor does.

[disabledsysboxes]

Autoimmune - 6

[partykillervibecrusher]

Ugh my lupus is so itchy, nothing is helping ease the rashes or hives

My body is so blistered and swollen but my insurance dropped and I can't afford to pay for any meds to treat it

I've tried every over the counter solution I can think of but I'm just writhing in agony here

[abirdepisode]

it’s 50*F and raining outside. my window is completely open and i’m not wearing a shirt. WHY AM I SWEATING

[crimeronan]

god i'm so relieved about my test results i'm so relieved i'm SO relieved. i was so disappointed to see everything come back very close to normal ranges yesterday because i was like "damn, i really thought i'd test positive for SOMETHING since i've felt like such dogshit lately. i guess maybe i was making up how bad i feel?? i guess i have to go get sunburnt and eat a bunch of food that disagrees with me and get Really sick to get answers"

and then today's results came in like "no girl. this one antibody is so high that we apparently stopped counting*. that is indeed why you've felt like such dogshit lately." i feel like i just won the lottery like the impact on my quality of life is SO ENORMOUSSS.

*this is tongue-in-cheek i'm not sure exactly how the numbers are counted. i just know that this abnormal result just says "more than X ridiculously high amount" when all my normal results just say "less than X very normal amount."

[birthdau]

living life with an autoimmune disease is so frustrating because an event one day can wipe you out the entire next day. people think im just lazy, but no :-) im chronically ill

[chronicillnesscollector]

absolutely love your url, just thought you should know.

thanks I like yours too, straight to the point 😂

[accipitae]

Found out last night that my mom was diagnosed with mixed connective tissue disease a while back. Reading through the symptoms is like "oh. This is familiar". So definitely gonna ask my rheumatologist about it when I see him in two weeks.

The weird thing is I can't find anything about hypermobility in MCTD, and I'm definitely hypermobile. Of course it's always possible I've got multiple joint ailments lol.

[heblankhard]

I totally second the thought I saw that Viktor was one of the factory children and ended up getting let go bc he broke his leg, but his immune system would not allow it to heal.

It is fairly obvious in the first episode that they show Viktor that he has a case of femoral anteversion. His leg is turning inward, and the other is not. The reason I doubt this is genetic and something he was born with is that most cases of femoral anteversion at birth do not require braces and can be trained with physical therapy, this is normally the route a doctor will choose. I have personally known people with severe anteversion that did not use braces and did not experience chronic pain from it.

I understand we're in a different world, but just going off clues here.

Meanwhile, he almost looked like he was wearing an altered version of what the kids in the factory were wearing.

Alternatively, we can see Jayce's injury. The same brace, the same symptoms (aside from Viktor having a weak immune system due to fissures).

This frame flashes where he breaks his fibula, gaining an infection afterwards which prevents it from healing properly. Likely, he did not make his brace in the same way that Viktor's was because he was not experiencing femoral anteversion from this being his fibula.

Conclusion: I believe Viktor was an orphaned child in the fissures that got hurt while being enslaved, and his immuno-compromised body could not heal his injury, causing femoral anteversion. Possibly some form of MCTD (mixed connective tissue disorder) that prevents him from fighting sicknesses and possibly leading to organ failure.

[grendel-menz]

I’ve missed a few days of work due to MCTD if you’ve enjoyed my work consider buying me a kofi or looking at my shop!

[chronicillnesshumor]

[does-truth-matter]

The CDC has quietly changed who should AVOID the MMR vaccine.

https://www.cdc.gov/vaccines/vpd/mmr/public/index.html

They now state that ANYONE that “Has a parent, brother or sister with a history of immune system problems” should AVOID THE MMR VACCINE!

What exactly is an 'immune system problem?" Every autoimmune disorder.

* Achalasia

* Addison’s disease

* Adult Still's disease

* Agammaglobulinemia

* Alopecia areata

* Amyloidosis

* Amyotrophic lateral sclerosis (Lou Gehrigs)

* Ankylosing spondylitis

* Anti-GBM/Anti-TBM nephritis

* Antiphospholipid syndrome

* Autoimmune angioedema

* Autoimmune dysautonomia

* Autoimmune encephalomyelitis

* Autoimmune hepatitis

* Autoimmune inner ear disease (AIED)

* Autoimmune myocarditis

* Autoimmune oophoritis

* Autoimmune orchitis

* Autoimmune pancreatitis

* Autoimmune retinopathy

* Autoimmune urticaria

* Axonal & neuronal neuropathy (AMAN)

* Baló disease

* Behcet’s disease

* Benign mucosal pemphigoid

* Bullous pemphigoid

* Castleman disease (CD)

* Celiac disease

* Chagas disease

* Chronic inflammatory demyelinating polyneuropathy (CIDP)

* Chronic recurrent multifocal osteomyelitis (CRMO)

* Churg-Strauss Syndrome (CSS) or Eosinophilic Granulomatosis (EGPA)

* Cicatricial pemphigoid

* Cogan’s syndrome

* Cold agglutinin disease

* Congenital heart block

* Coxsackie myocarditis

* CREST syndrome

* Crohn’s disease

* Dermatitis herpetiformis

* Dermatomyositis

* Devic’s disease (neuromyelitis optica)

* Discoid lupus

* Dressler’s syndrome

* Endometriosis

* Eosinophilic esophagitis (EoE)

* Eosinophilic fasciitis

* Erythema nodosum

* Essential mixed cryoglobulinemia

* Evans syndrome

* Fibromyalgia

* Fibrosing alveolitis

* Giant cell arteritis (temporal arteritis)

* Giant cell myocarditis

* Glomerulonephritis

* Goodpasture’s syndrome

* Granulomatosis with Polyangiitis

* Graves’ disease

* Guillain-Barre syndrome

* Hashimoto’s thyroiditis

* Hemolytic anemia

* Henoch-Schonlein purpura (HSP)

* Herpes gestationis or pemphigoid gestationis (PG)

* Hidradenitis Suppurativa (HS) (Acne Inversa)

* Hypogammalglobulinemia

* IgA Nephropathy

* IgG4-related sclerosing disease

* Immune thrombocytopenic purpura (ITP)

* Inclusion body myositis (IBM)

* Interstitial cystitis (IC)

* Juvenile arthritis

* Juvenile diabetes (Type 1 diabetes)

* Juvenile myositis (JM)

* Kawasaki disease

* Lambert-Eaton syndrome

* Leukocytoclastic vasculitis

* Lichen planus

* Lichen sclerosus

* Ligneous conjunctivitis

* Linear IgA disease (LAD)

* Lupus

* Lyme disease chronic

* Meniere’s disease

* Microscopic polyangiitis (MPA)

* Mixed connective tissue disease (MCTD)

* Mooren’s ulcer

* Mucha-Habermann disease

* Multifocal Motor Neuropathy (MMN) or MMNCB

* Multiple sclerosis

* Myasthenia gravis

* Myositis

* Narcolepsy

* Neonatal Lupus

* Neuromyelitis optica

* Neutropenia

* Ocular cicatricial pemphigoid

* Optic neuritis

* Palindromic rheumatism (PR)

* PANDAS

* Parkinson's disease

* Paraneoplastic cerebellar degeneration (PCD)

* Paroxysmal nocturnal hemoglobinuria (PNH)

* Parry Romberg syndrome

* Pars planitis (peripheral uveitis)

* Parsonage-Turner syndrome

* Pemphigus

* Peripheral neuropathy

* Perivenous encephalomyelitis

* Pernicious anemia (PA)

* POEMS syndrome

* Polyarteritis nodosa

* Polyglandular syndromes type I, II, III

* Polymyalgia rheumatica

* Polymyositis

* Postmyocardial infarction syndrome

* Postpericardiotomy syndrome

* Primary biliary cirrhosis

* Primary sclerosing cholangitis

* Progesterone dermatitis

* Psoriasis

* Psoriatic arthritis

* Pure red cell aplasia (PRCA)

* Pyoderma gangrenosum

* Raynaud’s phenomenon

* Reactive Arthritis

* Reflex sympathetic dystrophy

* Relapsing polychondritis

* Restless legs syndrome (RLS)

* Retroperitoneal fibrosis

* Rheumatic fever

* Rheumatoid arthritis

* Sarcoidosis

* Schmidt syndrome

* Scleritis

* Scleroderma

* Sjögren’s syndrome

* Sperm & testicular autoimmunity

* Stiff person syndrome (SPS)

* Subacute bacterial endocarditis (SBE)

* Susac’s syndrome

* Sympathetic ophthalmia (SO)

* Takayasu’s arteritis

* Temporal arteritis/Giant cell arteritis

* Thrombocytopenic purpura (TTP)

* Tolosa-Hunt syndrome (THS)

* Transverse myelitis

* Type 1 diabetes

* Ulcerative colitis (UC)

* Undifferentiated connective tissue disease (UCTD)

* Uveitis

* Vasculitis

* Vitiligo

* Vogt-Koyanagi-Harada Disease

Wonder how many doctors are paying attention?

~shared from Jodi Wilson

[shiraishi--kanade]

Pjsk disability headcanons? Especially Saki (an some others you like :3)

Hmm well that depends! I actually have multiple for her? Mix and match whatever fits the current scenario better lol

For Saki I think mctd/uctd → eventual SLE diagnosis/progression is one I'm the most in agreement with. Or separate mctd/uctd or separate SLE. Maybe throw in rhupus if I'm having fun with it. I don't think it's particularly necessary though. Childhood onset, no kidney involvement because I'm not that sadistic (and also don't really know how to write that authentically because that is, god bless, the One Health Problem I just straight up don't have). Currently in medicated remission ❤️‍🩹 I think her getting sick often could be more attributed to immunosuppression than the illness itself. Also I don't know how implied it is but the dev's statement that Saki is glad she can show more skin without getting sick now screams badly phrased lupus implication to me.

For An I like to throw ADHD and dyspraxia+dyslexia comorbidies on her. Mostly because I have em and like. Look at her. Recently also began rotating hEDS An in my head as well but no coherent thoughts yet... I just think it's an interesting possibility to explore.

Kanade is a hEDS girlie to me... Also scoliosis Kanade believers won me over. I'm one of you guys now. Also dysautonomia + POTS maybe.

Also I like the idea of Mafuyu getting hit with a fibromyalgia/neuropathic pain after third anni as a result of her c-PTSD. Did I mention she has c-PTSD? That's not even a headcanon, it's straight up in the subtext.

Rui is autistic and has ARFID, Touya is autistic and anemic. Peace and love on planet earth

That's about all of my consistent ones I think! Some come and go.

[xxtowardsthesunxx]

I haven't posted much here in a while; wanted to post an update.

recently, my dr told me he now suspects I do have eds, rather than mctd. so now we're trying to get me into a rheum and have genetic testing done. the gp suspects ceds, while the np has some suspicion it could be veds. it feels really weird to have this curveball suddenly thrown at me, five years into my journey.

I'm trying to engage more in the online community, so this is my official introduction post for edsblr. so. hi 👋

[lost-amongst-the-stars]

Over the past week, one of S's sisters (O) has been diagnosed and begun treatment for MS, which he also has. So he's been getting a lot of phone calls from her and their mom as they try to process all of this. But it's bringing up a lot bc his family didn't respond well to his diagnosis

So over a decade ago, S became paralyzed on one side of his body and we spent the next year or two doing all sorts of tests until they eventually arrived at a diagnosis of MS and MCTD. It was a really difficult time. He had to stop working and I supported us both for the next four years.

Meanwhile, his family, but especially his mom and O, treated him like a hypochondriac or that he was exaggerating. Up until this week, they didn't take him seriously (except for, surprisingly, his dad who has actually been pretty supportive)

But now that O has been diagnosed, suddenly they believe him. His mom actually apologized to him the other day and apparently has been talking to the other siblings about how guilty she feels about it. Meanwhile, O is trying to rewrite history and claim that *she* always believed him (a blatant lie).

So yeah. It's been an interesting week. I'm glad his family finally believes him but I'm definitely bitter that it took this long and for one of the other siblings to be diagnosed for it to happen. But I'm focusing on supporting S rn as he deals with his family.

And now it seems like he may be going into a flare. Luckily he has some time off scheduled for next week already so he'll have some time to rest but I'm really really hoping he's not going into a flare.