#all of this remains true whether my final diagnosis is lupus or MCTD or both.

[crimeronan]

now that the elation of being on-paper sick has worn off i'm back to getting my feelings hurt by innocent posts. anyway someday within the next few months i'm gonna be on a bunch of prednisone or other steroids and then i'm gonna do all my dishes and clean my whole house and go swimming and do my job and fix my life and it's okay that i fucking suck at doing any of those things now because i have a debilitating physical disability.

snide posts about how depressed people need to put on their big-boy pants and take care of themselves are not actually about me because what i am contending with is not depression. what i am contending with is a progressive disease that destroys my muscles, skin, joints, and potentially lungs kidneys and brain. that is not the same as being too sad to get up and wash a dish.

generalized spoonie advice and outlooks feel too optimistic or out-of-touch or non-applicable to me because they aren't applicable to me because what i am contending with is not an average spoonie experience. it is a specific progressive disease that destroys my muscles, skin, joints, and potentially lungs kidneys and brain.

if i feel bad and need to rest and don't pull my weight in my relationships it's because i need to wait to be treated with steroids and in the meantime i just need to hold on. i am not required to do anything else to take care of myself. my body is eating itself with a condition that has a high rate of fatal complications and literally my only job is not to die.

my only job is not to die. that is the only thing i need to do right now. any posts saying that people need to do anything else for self-care or for being a good person or for having healthy relationships are not applicable to me, because my circumstances are highly specific. healthy people need to take steps to better their lives. people like me need to rest until our doctors can help us because overtaxing ourselves might kill us.

a depressed person being too sad and hopeless and miserable to get up is being lied to by their brain. my brain is not lying to me when it tells me that i need to rest because my body is on fire.

my only job right now is not to die.