#chrons disease
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Me desperately trying to project all of my disorders on my fictional blorbos: umā¦ Sebastian Debesteā¦um,,,he-he has uhhhhhhhh Crohnās disease
#strawb rambles#chronic illness#ibd#chrons disease#chronically ill girlies make some noise#I think Edgeworth would have it too he has the under eye bags ibd gives you#I love projecting!!!#ace attorney#ace attorney investigations#aai2#sebastian debeste#miles edgeworth#eustace winner#tmi I know but too bad
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I was just diagnosed with Crohnās disease which makes me bloat to the point of looking over 9 months pregnant more often than not. Iāve been told thereās no cure. I currently weigh 125 but it looks like I weight 180. I am so discouraged and canāt eat (which isnāt a bad thing) bc of the pressure. Iām a personal trainer and CANNOT be looking or feeling like this!! It literally feels like iām carrying a bowling ball.
Any advice on how to hide this atrocity would be great.ļæ¼
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oooh I just hate when my disability is disabling
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Autoimmune - 3
#cam.txt#anti endo#anti endo userboxes#anti endogenic#disabled system#system punk#system userbox#sys blog#system boxes#this system#system blog#disabled sysboxes#autoimmune#autoimmine disease#autoimmunity#lupus#hashimotos thyroiditis#scleroderma#psoriasis#sjogrens#sjogrens syndrome#inflammatory bowel disease#chrons disease#ulcerative colitis
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Slept through my whole infusion today thatās how tired and crappy I feel. Slapped on some makeup to feel better now off to work feeling exhausted and nauseous. Meds taken now to go work work work. Iāll rest tomorrow tho
#remicade#tumblr girls#chrons disease#ankylosing spondylitis#chonic pain#chronically ill#chronic illness#super babe
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#queer#i feel this in my bones#just ibs things#chronic ibs#sensitive tummy#digestivehealth#digestion#digestive disorders#digestive system#no amount of little treats can fix this#worst part of returning to the office#ibs problems#chrons disease#ulcerative colitis
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getting an MRI SUCKS man..not because of the machine, but because of the disgusting things they make you drink before hand
(totally not saying this while drinking stuff at a hospital)
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TW ED//
to anon who asked about GI issues and EDs, i feel like ive never seen anyone else talk about it, it makes me feel alone. ive had crohns almost my entire life and its messed with my relationship w/ food tremendously.
its gotten to the point where my brain genuinely thinks that i dont deserve to eat or that food wasnt meant for me because it causes me so much pain. ive also dealt with ana on top of just avoiding eating because it pains me.
i feel like no one around me can help. i feel unable to trust myself or the food around me.
Thank you for sharing!
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It was a good day. No pain. Blood sugars in check. Nice weather. A little howling. A little woo-wooing. A nice long walk. Good meals. I miss you Little man. No greater love.
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Adenocarcinoma
Not the word you want to hear at the doctor. Cancer. The doctors spent all week basically reassuring me that it wasn't cancer--this is normal presentation of a bad Crohn's flare. Instead I spent the time crying over the section of my bowel that needs to be redirected. My biggest fear finally come to life, and at 31. Much earlier than I was thinking. Then, Friday morning, the doctor's voice, and it's changed.
He had been so sure before. But he seemed very sure of my new prognosis. Chemo and radiation to shrink the tumor, possible operation. 6 to 9 months, no more cancer. Maybe no more bowel, but definitely no more cancer. This was two days ago; I've since gotten another CT scan and an MRI, which I've gotten very little information on. Weekends at hospitals are basically useless if you're looking for answers/treatment. Thankfully the past two days have been full of visitors to keep my mind occupied. Tomorrow's gonna be the difficult one. It's just dad and me, and the doctor teams are coming. Surgery, oncology, gastroenterology. God knows who else. Having to navigate with a skeptic in the room--I already need Ativan. Maybe a 2x4 to the dome.
The assuredness I've exhibited the past few days is wearing off. I've received such an outpouring of love from friends and family--my windowsill is covered in gifts and snacks and flowers. It's a tad overwhelming. The whole thing is. Being the one with the big scary sickness, assuring people that it'll be okay. I'm gonna kick its ass. Having people give you money and discuss fundraisers. Strange, strange, strange. But there was motion and conversation and it was easier to be distracted. Now I'm alone in a hospital room with my thoughts. Well, not fully alone. I do have entertainment (currently streaming You're the Worst on the borrowed tablet, while I type on the borrowed laptop), and there's the bedtime Ativan beginning to swim in my brain. So thankfully the spiral can be held off for now.
What if, though? What if the MRI is worse? What if the tumor doesn't shrink? What if what if what if.
I've spent the last 8 months basically wishing I would die. I had no idea my body was listening to me. Now I have to save it. I don't have a choice. Part of me is optimistic; maybe this is exactly what I needed to change my life, my perspective. But part of me is the normal, pessimistic me; this is yet another shitty (pun intended) hurdle I have to deal with in this miserable life.
I wanted to start a blog while I was feeling positive (currently I am neither positive nor negative, just floating); documenting this seems important to me. I do want to stick with it, I do. I had planned on just a new blog, but stumbled upon this one that I started well over 5 years ago, and for some reason it felt right to continue it. Ominous? Possibly. But here we are. I really do hope I maintain the willlpower.
February 18, 2024
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a different type of transformation tuesday
On December 7, 2015, I said aloha to my colon. It was a long time coming. 11 years of misery where I told Doctors I felt like I was slowly dying inside even though I did not look like I was on the outside. A lot of mental lessons learned along myĀ #ulcerativecolitisĀ journeyā¦ I was diagnosed when I was a twenty-something woman, self-conscious and insecure, chasing self-worth and love in all theā¦
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#autoimmunedisease#autoimmunity#chrons disease#chronsdisease#Fitover40#fitover40mom#fitover40women#fitover45#fitover45mom#fitover45women#fitover50#fitover50mom#fitover50women#fitover55#fitover55mom#fitover55women#fitover60#fitover60mom#fitover60women#fitover65#fixedmindset#growthmindset#honolulupersonaltrainer#ileostomy#invisibleillness#macrosmadeeasy#Ostomy#Transformationtuesday#twwbabes#ulcerative colitis
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Uuuuugh.
FUCK CHRON'S DISEASE!!!!!!!!!
That is all.
#fuck chronic illness#chronic illness#chron's disease#i just really needed to scream into the void for a moment.
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I would like to read it.
All I'm saying is Ridley Scott went out and hired the giant mutant genitals artist to design the Alien, and H.R. Giger delivered a monster with a giant penis head, a vulva-outline space ship, a birthing egg with an opening made of two crossed vaginas, a facefucking vagina monster fertilizer and a lil baby dick form that kills the host - the man 100% delivered on his artistic principles.
And because of this, it is just a little bit funny how the penis and vagina designs are enshrined in pop culture, forever being passed between creators who seem to less and less think for a minute that they're working with genital monsters and it turns most of the movie franchise and comics into an exercise in unintentional absurdity where a character can be fleeing from a rolling vulva like the boulder from Indiana Jones without a single shred of awareness or subtext.
#also i am going to be snarky in the tags about a different comment#someone else complaining I'm talking shit about Prometheus without seeing it or dont know Ridley Scott directed#I have seen it twice and I know fully well its the same director#trying to pretend there's some cohesive metaphor in Prometheus is absurd on so many levels#from the movie itself being internally inconsistent to not a single biomechanical element cohesive with Gigers artistic vision#Alien is a cohesive story where Gigers aesthetic is a contributor but includes other influences such as writer OBannons Chrons disease#the elements are woven into the text of a complete and thoughtful story with well rounded complex characters#Prometheus is an incoherent mess trying to yoke characters and story to some vague metaphor of birth and christianity#it puts its woefully banal Big Questions out front as if that alone lends gravitas to the rest#lost writer Lindelhof once again coyly pretending the vagueness is hiding depth which isnt there#Ridley Scott somehow completely forgetting that other people contributed to the original#acting as if the film is so singularly his vision that rewriting a different film idea into an Alien prequel is not a bald faced cash grab#Prometheus is a movie made by self important children playing with human emotions and body horror like cheap dolls#smashing them together and yelling that they're kissing#my off the cuff remark is only scratching the surface of the amount of shit i can talk about Prometheus#and i am the girl who loves horror metaphors and horror as a genre that says things about society#I'm the target audience for scifi horror to speak in the language of metaphor#Prometheus fuckin ain't it#what little metaphorical value it has got is so trite#the protag having this heavily cgi defanged abortion metaphor then getting chased by the vagina boulder is not particularly interesting#Alien has layers of meaning woven together about disease and birth and capitalism and feminism#it works as a movie because it is so grounded in multiple real human experiences#Prometheus has none of this and comes first from a place of profit margins second from abstraction detached from real experience#humanity and the relationship of the movie to recognizable aspects of life are a distant third or fourth
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Against All Odds
āCatch me, Dad!ā I squealed as I leapt from the banister of the stairs. He caught me in his arms and twirled me around till the room got fuzzy and my stomach hurt from laughter.Ā
My mother glowered at him from the glass door of her home office.
āThrow her around like that and sheāll be at the hospital in seconds!ā
Dadās sweet chortling always brought me to my senses. If I were ever comatosed, the sound would jolt me awake like a lightning bolt.Ā
āThatās if she fell. Sheāll never fall, because Iāll never let her go.ā
~~~
The immediate jerk of the plane woke me up from my reminiscence straight away. I cracked my neck to one side and groaned at the splitting sound.Ā
When the pilot announced take-off, I didnāt think my heart could pound any louder than it already was. I picked at the skin around my thumb, and when that got too marred, I toyed with the hem of my athletic shirt.Ā
Did I want to spend my Saturday morning on an aircraft with a parachute strapped to my back? Not really. In hindsight, did I have a choice?
Well, yes. I did.Ā
You chose to be here, and you arenāt getting off of this plane until you jump off from it at twelve thousand feet.Ā
That didnāt necessarily mean I wasnāt allowed to let my anxiety take over as we bounced against the rough gravel while the jet accelerated.Ā
Maybe I can do this. Maybe I am cut out for this.Ā
All diverting thoughts flew away from my brain as soon as I felt the plane lift from the ground and into the air.Ā
IcanātdothisIcanātdothisIcanātdothis-
āMiss? Areā¦are you okay?āĀ
I didnāt even bother checking where the voice came from, or even confirming if the comment was directed towards me.Ā
āJust peachy,ā I breathed.Ā
The voice laughed. āItās not that bad, trust me. Iāve-āĀ
I lurched forward when the aircraft suddenly plummeted towards the ground. I felt sharp nails digging into my forearm to keep me from shooting straight across the six feet of space we had between the benches.Ā
All I heard over the speaker was āminorā and āturbulenceā. Only one of them made sense to me, and it definitely wasnāt minor.Ā
When the plane came to a stop on the runway, I turned to my right. The āvoiceā came from a tall(er) woman. Her swirly brown hair was pulled back into a braid and her eyes were warm and friendly. They reminded me of freshly baked cookies near a fireplace with cozy blankets.Ā
āIām Kahani. Aani for short. You?ā She asked with her outstretched and perfectly manicured hand.Ā
āKiele. Nice to meet you.ā She smiled and her nose ring glinted in the sunlight shining through the windows.
āWe should likely be back in the air byā¦ an hour tops?ā She looked out the window and nodded her head. āNo more aircrafts available for today.ā
āHow are you so sure?ā
She tapped at the embroidery on her shirt. āIām your instructor. The pilotās my dad. I come over here to volunteer once a month or so. Even have my own license! Well, obviously, or else I couldnāt qualify to be your instructor,ā she laughed. She leaned forward on her hand. āSo, what are you doing here? I mean, youāre probably here to skydive, but by the looks of it, it doesnāt seem like you enjoy heights very much. No offense.ā
I shrugged. āNone taken. Iām fine with heights, but I think the thought of jumping to my doom from twelve thousand feet in the air is enough to nauseate a lot of people.ā
She grinned. āInteresting, but you didnāt answer the question. Why are you here, then?ā
āIf I really had to elaborate, it would be a long story. Iāll run it down--ā
āAh--stop right there,ā she said, her finger moving side to side. āWeāve got an hour.ā She crossed her legs. āHit me with it.ā
I thought about it. Did I really want to share my entire life story with someone I just met two minutes ago? Aani seemed like a nice person, and my priority voice in my head kept nagging at me.Ā
Kiele, you run an awareness program. So, spread awareness!
I smiled and drummed my fingers against my phone case.Ā
āWhere should I start?ā
~~~
The day I was diagnosed with stage three leukemia was, needless to say, the most god awful day of my life.
Iād been sitting there at my kitchen countertop. I was seventeen and was doing what most normal teenagers would be doing in March: scouring college websites, tours, and program offers. I didnāt think my life could even get more infuriating after Iād learned my dad wouldnāt be coming home for another week. It didnāt really warrant me to sulk like a three-year-old and refuse to eat dinner, but I was too upset to care.
After a few hours of trying to get me to eat, even my own mother had given up and crashed on her desk in her office. No matter how hungry I was, I spurned away the plate sheād set in front of me.
Thinking back, maybe I shouldāve eaten. Maybe I wouldāve allowed myself a few more weeks of what I thought to be peace and what I called calmness.
I remember slamming open the door to her office and violently shaking my mom so sheād wake up. Even at four in the morning, she was still pretty vigilant and on her guard.
Blood was dripping in splotches all over the floor and various documents from my nose, and no matter how much pressure she put on it, she couldnāt get it to stop.Ā
Half an hour later, she was running the speed limit with the GPS blaring directions out to the nearest hospital. My hands were trembling and I was cowering in trepidation as tears started pooling in my eyes.
āKiele Iokua, get yourself together. Itās one nosebleed that I drove you all the way over here for, nothing is going to happen. Itās nothing serious. Itās just like the rest,ā she sighed.
The rest were never this bad. The rest never sanctioned a trip to the hospital.Ā
I donāt remember when weād entered the hospital, checking in, or even the doctor telling my mom to leave the room. I donāt even remember when they took my blood to the lab or the moments I sat there with waves of unease crashing over my body.Ā
I just remember those words that turned my life a full one-eighty degrees.Ā
āIāmā¦extremely sorry to deliver this news, butā¦ weā¦weāve diagnosed you with stage three leukemia. Now, we know this may beā¦ā
I wasnāt listening to whatever the doctor was saying, likely about how things would be okay. And maybe, if Iād truly listened, they wouldāve been.Ā
But all I could think about was how things would never be okay. How was it possible to tell a seventeen year old that their life was being threatened by a fatal disease?
Nothing could have ever prepared me for that day, even if I had more time to be a normal person before I found out.Ā
My dad was called in from his week-long business trip, and I thought about how a few hours ago, it wouldāve made me the happiest person in the entire world. I didnāt think anything could ever achieve that again.Ā
I hadnāt moved for over six hours, and the doctors had started to get worried. Even Mom went out and had gotten cupcakes from Crumble Bliss to ācheerā me up. How were you supposed to cheer someone up after that?
I didnāt even budge when Dadās arms were wrapped around me so tight that I couldnāt breathe.Ā
It was only when my parents had discussed chemo treatment with the doctors and everyone had left the room, the tears started rolling. I mustāve sobbed and sobbed and sobbed for hours that night based on how swollen my eyes were the next morning.Ā
My parents sent an email to my high school about the situation. My entire future that I had planned was practically gone. Forget about deciding on a college-- I wouldnāt even be able to go to college.Ā
I thought that maybe after the chemo, Iād feel better. It only got worse.Ā
After every appointment, I didnāt feel any different. The doctors reassured me that my body was fighting and it would take time to see those results pay off, but I grew more bitter and angrier every second I spent in that hospital.Ā
I was rude to the nurses and all the physicians who tried to help me. I screamed at them, cried at them, and even kicked at them when they tried to help me. The only person that could manage two words with me on good days was Dad.Ā
My Dad visited the hospital whenever he could. He cut all his meetings short just to see me and always brought a cupcake or a snack that he knew I loved.Ā
He held my hand and said that it would be okay, but even he knew it wouldnāt.Ā
If that wasnāt bad enough, the hair fall started.Ā
Everytime I ran my hands through the dark locks of my scalp, clumps of hair threaded between my fingers and easily slipped out. By the end of the month, my once thick and long hair was as thin as a twig.
My dad came on the first weekend in April and held my hands.
āKiele, itās okay, itāll grow back before you know it, alright? Youāll be-ā
I snapped. I didnāt know what it was that made me lose my temper that day, but I couldnāt take it anymore.Ā
āNo! No, it wonāt be okay! Stop pretending like it is, alright? You donāt know what itās like-- youāll never know what itās like. Do you know how hard it is to deal with the fact that I have cancer? Just leave me alone!ā My voice cracked near the end of my words and I shoved Dad away until he left.Ā
He still visited whenever he could after my meltdown, and my mom came by with him to try to get me out of my gloom.Ā
My embittered attitude only made the cancer worse as months went by. I was rude to anyone who even tried to speak to me, not realizing how much pain Iād been causing them-- and more importantly, how much pain I was causing myself.Ā
The doctors didnāt know if Iād ever recover, but theyād said it was unlikely after a few months, and I soon mightāve entered stage four.Ā
They hadnāt told me, but Iād overheard them telling my parents in the waiting room. Anger flooded through me like it did every other day, and I pitied myself day after day, wondering why I was the one stuck with cancer-- what I did so painfully wrong that landed me in this mess.Ā
A week after that day, I was wandering around the hospital with my IV bag stand rolling next to me. Even after six months, that aftershock still didnāt wear off. I was spiraling into a whirlpool of depression and agony, and it seemed like there was no return.Ā
Iād stopped short in my tracks right before I was about to turn the corner.
Soft sniffles came from one of the seats, and it was one of the nurses-- one the nurses who was assigned to my ward.Ā
I looked at the room across from her and saw a young boy-- who couldnāt be more than seven-- swatting away the pills in a nurseās hand.Ā
āNo! I donāt want it! It wonāt help me, okay? Nothing will help! Itās only going to get worse!ā He cried aloud. He kicked and screamed and shrieked at anyone who tried to touch him, and even kicked one nurse in the face. He threw so many hurtful insults at them that even my mind started to react to them, even when they werenāt directed at me.
How couldā¦someone say things soā¦hurtful?
How could that someoneā¦be me?
At that moment, it was like a freight train hit my body.Ā
I was a horrible person. I was so vile and churlish and soā¦ insolent. Iād taken out all my bottled up resentment at something so out of anyoneās control and unleashed it out on everyone whoād just wanted to help me.
It was then that I decided to suck it up and start to be happy, or at least pretend to, even if I wasnāt. Going through cancer was the hardest point of my life, but that gave me no reason to be such a jerk to people who loved me.Ā
Optimism didnāt completely get rid of that loneliness Iād always felt in the beginning, but it was the first step.
Even pretending to be happy tricked me into thinking everything was fine, sometimes. I decorated my room with pictures of my family and things I loved, and the nurses even helped me with my new change.Ā
āWeāre proud of you Kiele. Keep fighting,ā one of them smiled at me.Ā
I talked to the doctors and my nurses every chemo session to keep me distracted. Theyād told me about their lives, their family, their friends, and news outside of the hospital. Iād slowly gone from pretending to be hopeful, to truly believing it.Ā
Iād even told my Dad that I was sorry for being so difficult. That day, I shaved off all the remaining hair on my head, and looked at my Dad in the mirror with tears as he soon followed.Ā
Ā The positive mindset I followed did wonders to my mental health-- and maybe even my physical.Ā
I went from waking up every morning and asking myself āwhy I have to be sickā or āwhy canāt I be like everyone elseā, to appreciating everyone around me and being confident that I could fight back.
There was still one problem.Ā
Iād forgotten where the room was, but it wasnāt hard to find it again after I followed the
shouts echoing down the hallway at night.Ā Ā
A nurse came out with a dejected look from the room, but quickly replaced it with a nod and a smile when she saw me. I gently grabbed her wrist.Ā
āCould you tell meā¦ what you were trying to get him to do? That boy in there,ā I asked.Ā
āHe wonāt take his medication for today. Iāve tried so much, but I justā¦ he wonāt. I-ā
I smiled. āIāll take care of it.ā
With that, I rapped my knuckles softly against the door. When no one answered, I clicked open the door and walked in.Ā
āGo away! I said I didnāt--ā the boy stopped yelling when he saw me. āYouāre not a nurse,ā he said.Ā
āYouāre right, Iām not. I just came here to talk to you. Can I sit here?ā I asked him, patting the spot at the foot of his bed. He gingerly nodded.
āCan I ask youā¦why are you so sad?ā
āHuh?ā
āYouāre feeling a lot of emotions, I know. I know what it-ā
Immediately, he lashed out at me. āNo you donāt! Stop it! Stop saying you know what it feels like!ā Tears were cascading down his cheeks and my heart cracked a little, knowing those were the words that came out of my mouth not too long ago.Ā
I flinched a little, hurt at his sudden outburst. āYou have Crohn's disease, right? That doctor told me. I canāt really say that I completely know what it feels likeā¦ but I think I have an idea,ā I tentatively said, hoping he wouldnāt burst into a fit of tears again.Ā
āHow?ā He glared at me.
āA few months ago, I was diagnosed with stage three leukemia. Blood cancer. It was the worst day of my life. I felt like there was nothing in the world that could make me feel like a normal person again.
Just like you, I was filled with hatred and acerbity towards everyone. I yelled at the nurses, the doctors, and even my own parents. I think I even made them cry sometimes,ā I said. I didnāt like thinking about those memories-- it reminded me of the person I used to be, and I didnāt want to be that person anymore.
He blinked at me. āI donāt know who my parents are. A volunteering camp raised money for some of us to receive treatment here,ā he said, his voice wavering.Ā
āDoā¦do I make the nurses cry? Did I hurt their feelings?ā
I decided not to sugarcoat it. āYes, you did, but itās okay. Itās hard to live in this world and think about why we had to be the unfortunate ones, isnāt it? I hated it, and I still dislike having cancer. I lost energy, my friends, and even my hair. It took me a while to get over that. But I like to think about something-- do you wanna know what it is?ā
He hesitated, but then nodded. āWe were chosen to carry these burdens because weāre stronger than anyone else. Fighting back isnāt something just anyone could do, you know that? Overcoming these challenges will only make us even more powerful. The only thing stopping that is yourself,ā I said, pointing at him with my finger. āYou have the ability to change that-- you just have to believe. Be hopeful. Be idealistic. Be optimistic.ā
We shared a few minutes of silence before I spoke again.
āWill you take your meds now?ā
He reached over for the glass of water next to him and firmly nodded.Ā
āIā¦Iām sorry. For yelling at you,ā he said, not making eye contact with me.Ā
āApology accepted, but I donāt think it's me that you should be apologizing to, right?ā
āRight.ā
~~~
After Jun expressed his regret to all the nurses, I found out that he was pretty sweet. Once Iād made a friend, the hospital didnāt feel so lonely anymore--even if my friend was a seven year old kid.
Jun and I took walks around the hospital facilities and sometimes even the central rotunda parks, when both of us were feeling up for it. I spent time in his room, and he spent time in mine. He even came to some of my chemo sessions to talk to me. His company was fresh and we found solace in each other.Ā
Heād never learned, so sometimes, I took him to the library and taught him how to read and write. It was tough, considering he had occasional severe stomach aches and I was still battling the rapid cell growth in my body, but we made it work. Jun was a fast learner, and it made me happy to see him grow so much over a few months.Ā
Seemingly, I started feeling better after the continuous chemotherapy, and before I knew it, almost two years had passed since I first inhabited the facilities.Ā
Even Jun showed some change-- not a lot, but it was a start that made us happy. I introduced him to my Dad, and he was more than happy to keep Jun entertained.
He bought card games, books, and loads of activities every month to the hospital. Heād spend hours in my room with Jun curled up next to him, telling us both stories and playing games. It felt silly that I was nineteen years old and I was playing Hungry Hippos with a kid instead of being in college studying for midterms, but I didnāt care.Ā
After a while, I was permitted to stay at my home to transition to outpatient care and continue my treatment in scheduled sessions during the week. I was elated. After so long, it was a dream come true, but I thought about Jun. As much as I didnāt want to leave him, both my parents wanted me to come home for so long, I just couldnāt deny them.
I walked into Junās room one day, half expecting him to throw a tantrum when I told him the news. Instead, to my surprise, he hugged me. āYou taught me that positivity is the best medicine, and I want to share it with others. You deserve this after being stuck here so long. Youāll visit, right?ā He looked up at me with his gray eyes and tousled brown hair. I smiled.
āAll the time.ā
~~~
I didnāt feel that I was ready to start going to school in person, so I finished high school online. I got my diploma, and even had a private graduation party that Jun was invited to.Ā
My life seemed to get better from then on. I wrote my college essay about my experience, and Iād gotten into a university not too far away from the hospital. Along with visiting my parents, I visited Jun every weekend.Ā
I didnāt have to go for a chemo session every month then, just a few routine check-ups. My hair had even started to grow back, and I felt suffocated through pure joy. Before, I thought it would never grow back, but seeing my scalp littered with dark brown hair made my heart burst.Ā
Before cancer, Iād never known what I would truly want to do in life, but the first thing I did out of university was apply to research programs. I wanted to help people, but not just by being a scientist, or researcher.
With Jun and the hospital staffās help, I started my volunteer center with great pride and joy, knowing that Iād discovered my calling.Ā
Junās presence in my life was a constant reminder of my resilience and finding strength in each other when Iād been told that I was finally cancer-free.Ā
~~~
āEveryone said that the survival rate at my stage was extremely low, but nothing makes me prouder to say that I beat it. Iām a cancer survivor,ā I said, smiling at Aani and pointing to my wrist with the tattoo of a ribbon. I ran my hand over my curly mid-length braid. āEven have my hair to prove it.ā
āThat--thatās amazing! Turning your life around like that takes real courage, and if you can beat cancer, then I definitely think you can skydive. Even if that story was beautiful-- you still never answered the question. Why are you here?ā
āIām one of the supervisors at that very hospital wing as a research intern. One of the kids there didnāt think she was going to survive this autoimmune disease she had, but sheās brave. She told me skydiving was her dream, and I wanted to make it come true.ā
Aani stared at me in awe. āYou areā¦ truly an amazing person. Can I ask-- what happened to Jun?ā
My heart raced. āI loved my Dad so much that I didnāt think it was possible to love him more, you know? Not until he showed me the adoption papers. Junās my younger brother now, and heās been attending high school like a regular kid after getting discharged. Heās the one who got me to do this today, actually,ā I laughed.Ā
Ā Ā So much time had passed while talking, that I hadnāt even realized the plane mustāve taken off a while ago. I stared out the window and I could barely even see anything over green that stretched out for miles.Ā
My back straightened. I went stiff, knowing that soon that time would come. Aani put her hand on my shoulder to unstrain my posture.Ā
āMy first few months at the hospital, I absolutely hated the feeling of missing out on so many things that I knew would go on during senior year,ā I said, distracting myself. āBut you know who stuck with me through thick and thin, even when I was such a jerk? My Dad.ā
Everyone started getting up and strapping themselves up to their instructors. Aani tapped my forehead. āBreathe. Relax. I canāt tighten the straps if you're so tense! Keep going-- tell me something he said.ā
I inhaled and eased my body. āThe power of optimism completely altered my life and without that, I wouldnāt be where I am now,ā I spoke, shutting my eyes. āWhen I apologized to him after Iād started my positive mindset phase, heād told me something that I later told Jun, and now I tell all the kids in the ICU wing. If you wait to be happy until life isnāt hard anymore, then youāll waste your whole life waiting,ā I said, not even registering that we were up next to jump out.Ā
āYou must love your Dad a lot, right?ā
āYeah, I do,ā my voice quivered looking down at the ground and my heart hammered against my chest.Ā
āIf you fought cancer while you were in stage three,ā Aani yelled over the loud wind. āThen you can survive jumping out of a plane. Donāt waste your whole life wishing you didnāt back out! Ready?ā she asked.Ā
I looked down and smiled. āMore than ever.ā
And in that moment, I knew I wasnāt even lying-- against all odds, I would always triumph over anything. I welcomed the rush of the air currents against my face when Aani leapt from the platform.Ā
Catch me, Dad.Ā
ā¢ā¢ā¢
This story was written to show the journey of a cancer survivor who finds strength and resilience through the hardships she faced throughout her life. It is a constant reminder even if you arenāt struggling in life, the power of optimism brings out true resilience.Ā
#leukemia#cancer survival#yes i did write this#cancer survival story#time to be optimistic#yay#chron's disease#i have two separate accounts hence i posted them on both haha#hope you like it#did this for a newspapwer application#thought i'd post it here
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Facts About Crohn's Disease
Crohn's disease is a type of inflammatory bowel disease that can cause a wide range of symptoms and complications. Here are some important facts everyone should know:
Crohn's can affect any part of the digestive tract from mouth to anus, but most commonly impacts the end of the small intestine and beginning of the colon.
Common symptoms include abdominal pain, diarrhea, fatigue, weight loss, malnutrition, and bleeding.
Crohn's is an autoimmune condition where the body's immune system mistakenly attacks healthy gut cells.
There's no single cause, but risk factors include genetics, environment, diet, and gut bacteria imbalances.
Complications of untreated Crohn's can be severe like intestinal strictures, fistulas, abscesses, and colon cancer.
While there's no cure yet, many medications can help induce and maintain remission by reducing inflammation.
Equally important is "Crohn's disease self-care" - practices like avoiding trigger foods, stress management, exercise, and sticking to a nutrient-rich diet.
Crohn's impacts everyone differently, so tracking symptoms and working closely with your gastroenterologist is crucial.
The more we understand this chronic condition, the better we can raise awareness and provide support for those living with Crohn's every day.
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God I really am going back to my monastic diet aren't I
#to all the bastards in hell responsible for food industrialization#may you be enjoying your fucking stay#this entire country is poisoned#it is insane that people my age and even younger have things like Chrons#everyone has an autoimmune disease and no one can digest bread#its INSANE#we are all fucking sick and we have been poisoned#WELP time for me to go back to lentils and rice for a few months#before this gets any goddamn worse
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