#Menieres

[disneytrampstamp]

HEY GUYS

im raising money for my medical bills so I can get the forms together that I need to apply for Disability

I have

-Autism + ADHD + OCD

-Menieres disease (vertigo/nausea/vomiting)

-lumbar disease (2 vertebrae in my spine are touching)

-C-PTSD & a bunch of childhood trauma involving abuse/drugs

I feel absolutely insane listing what makes me disabled like that, but I am desperately in need of funding. I cannot work & therefore I cannot raise the money I need to apply for Disability or the appointments needed from specialists to write it all down.

Below is a link to my fundraiser - please share

& if you’re suffering from any or all of these things as well, just know I see you and my asks are always open xx

Fundraiser: https://gogetfunding.com/help-me-pay-for-my-autism-assessment/

[brennacedria]

I'm really sick of (and from) this menieres flare. Like, I'll have days here and there with flares, and then I'll have FLARES like the last few days and like, I'm lucky I'm even FUNCTIONING. It hit Saturday in the shower, I couldn't even get the knots out of my hair after, I was so sick. Yesterday was easier, and today's easier than yesterday, but fuck is it still miserable.

[tokissnaangelgoodbye]

Go ahead, underestimate me. My kindness is not to be confused with weakness.

SHE IS FRAGILE, NOT LIKE A FLOWER,  BUT LIKE A BOMB I AM TITANIUM Sometimes we are tested, not to show our weaknesses. But to discover our strengths.  I am who I am Sometimes, who we are is not known by what we look like.  The pictures that you are looking at, they are pictures of me.  ME: Mom. Former Nurse. Independent. Give more than I take. LOVE. Motherless. Fatherless.…

[gabbagepatch]

Listen guys, you don't need to look nice to go outside. Your health is more important than appearances.

I just went on a walk in my pajamas, greasy hair in a shitty bun, acne, and a pair of new balance sneakers. Cars passed by and I said hi to everyone who passed. Did I feel self-conscious? Of course, but it was worth it.

Now I feel a lot better, because I didn't A. Overextend by forcing myself to shower/get dressed/put on concealer beforehand or B. Avoid doing anything because I felt like a mess.

Go outside and be however you are. It's not your job to look good to random strangers, you deserve to go outside.

[bluenoo42]

Shoutout to people with balance disorders

I'm currently at home and not able to work today because of a flare-up of my balance disorder (bilateral vestibular hypofunction/loss). Apparently, the flare-up is happening because I had COVID-19 a few weeks ago, and it has caused my brain to de-compensate for my lack of vestibular function. This is (according to my doctors) super common for people with this after they have any sort of illness.

Because it's not a painful condition, I think people forget how debilitating balance problems can be. The vertigo, the nausea, the blurred vision whenever you move your head, the falls, the people thinking you're drunk, the difficulty explaining your symptoms because they are super weird, not knowing whether or not you need a mobility aid because your legs are fine but you still can't walk in a straight line.

To anyone who has never experienced this, trust me when I say it's really bad. To everyone with a balance disorder, you're all legends and super cool, and you're not alone with this. To all the disabled people out there, don't forget balance disorders this disability pride month!

[scary-lasagna]

How would the creeps react to their s/o who has meniere's disease? I have it and it makes life extremely difficult at times

Jeff

The diuretics are an inside joke in your relationship, the medicine makes you constantly run to the bathroom throughout the day to balance the water build up in your ear.

"Go piss, girl!" He will yell, no matter your identity.

And he keeps extra meds in his nightstand incase you run out before your next subscription, nicking them from whatever houses he's assigned to.

He might sneak a Zofran sometimes because he likes the taste and feel of them when they dissolve.

But he's not very keen on giving up salty foods, and whenever he cooks he'll cook separately so he can salt his own food and giving you none/less depending on the dish and what you've eaten that day.

He doesn't pay attention very well, so you'll be bombarded with questions about what you've ate, if you're stressed, and how you're physically feeling.

He even has a little writing tablet for when your hearing isn't the best, but often just uses it for when he's across the room and wants to show you a stick figure drawing of two of you holding hands.

Lost Silver

Lost Silver is such a sweet s/o, he's very affectionate and considerate, and he's always looking out for you and your health.

He has a setup for his consoles, filled with beanbags and plushies, as well as cup holders and blankets.

And you have a designated spot sitting next to him, either playing together or watching him play on particularly bad days. This way, you can spend time together without straining yourself, and you don't have to get dizzy by standing and walking around, or laying down on the bed and getting nauseous.

Sometime ago, Silver actually bought a little gumball machine full of Zofran, and has timers set to ask if you've taken any daily medications you might be on.

And he'll play a game with one hand and give you head-scratches, tummy rubs, or back scratches with the other. Or if that's making you feel worse, he'll stay by your side nonetheless.

He'll keep you calm and stress free to prevent episodes before they start, but he's working on learning a little bit of ASL to help when your hearing fades in and out.

He's not a huge fan of salty foods, outside of ramen and soup, but he'll try to find ways to adjust to your taste.

[postcard-from-the-past]

Menier factory in Noisiel, eastern suburbs of Paris

French vintage postcard, mailed in 1912

[gacougnol]

Chocolaterie Menier (Moulin Saulnier à Noisiel)

[cosmic-ships]

Made the mistake of being outside today. :/ I have a terrible heat headache x.x f/o please run me a cool bath and put a cool washcloth over my head to stave away the vertigo ;;

[edenwolfie]

sometimes, when the chronic health flare has made you feel like complete shit for 3 weeks and you have limited available activities to distract yourself, you've just gotta open up the horribly indulgent 0 thoughts svsss wip fics and just have fun with it

[watercolourferns]

Reframing the "I'm exhausted, why am I so lazy??" thought I've always had to "I'm exhausted because I have fibro and all I can do is manage it for today" has lifted a huge weight off my shoulders.

I wanted to go get tuna to make some spaghetti thingy Fiancée bought, but I can't. I'm literally falling asleep standing up. So I was like "I'm so fucking lazy, just grab your cane and go!", but then our inner protector stopped me and made me realize... it's not laziness. That's just how we cope, masking it as laziness. It's tiredness, pain, and a mild agoraphobia we get when we have brain fog, be it from mental issues or from the Fibro or the Meniere's (yes, the pain from Meniere's can give you brain fog as well).

It's making things so much easier to handle now that I know what it is, it's scary. It's like there's impending doom, and I hate that feeling... but it's also very liberating. Because I understand myself better and I can be less harsh on myself... I'm just scared others won't be.

[curiouscatalog]

You saw it here, chocolate is for every meal of the day.

Kenney-Herbert, A. R. (Arthur Robert). Fifty Breakfasts. Second edition. London ; Edward Arnold, 1895. Print.

TX733 .K4 1895

[solarsleepless]

my tinnitus loud as fuck!!! girl shut up!!!

[gabbagepatch]

Having subjective symptoms is very isolating because there is no way for others to witness what you're going through. They just have to trust you and you have to trust them to believe you. I know everyone in my life believes it, but they don't get it. I expressed to my therapist that I feel that all of these symptoms begin rattling around in my head and it creates a barrier between me and others.

My world: hurting, trying not to show it, coping with pain, fearful, etc

Their world: normal, uneventful, happy evening

It's very difficult to have something happening to you that nobody else can see.

[deliciouskeys]

Me: read a wholesome g/t fic about HL being 8 feet tall

Me a minute later: yes and! Now make him 25 -no!- 100 feet tall, and reader was brought in for very dangerous sexwork, and and make it NC-17, and tongue action, and insane body warmth, and sitting astride an erection like giddyup and and and and and

where the fuck is my mind going when I have a fever, let’s not specify anything further lest someone on tumblr sees this and I out myself as a sick fuck.