#I am really fucked up now
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zoueriemandzijnopmars · 4 months ago
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How can I have started a book, read the blurb on the back, the title and 30 pages, but only when I’m tracking my progress on the StoryGraph and only finding an English version of the book when searching by isbn I realise that the book is in fact in English and not in Dutch as I’d been convinced?!?!
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ftm-radio · 1 year ago
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[SCENE: driving back from my appointment]
dad: ...am I going to have to teach you how to shave?
me: uh yeah! at some point, lol
dad: hm. well I can show you the way I prefer, with mug soap and a brush, because the aerosol cans are just no. I showed your brother my way and he likes it a lot better too...
dad: [rambles for a bit]
dad: ...it's really just another chore, you look in the mirror and go 'ugh I have to shave soon' so it's just one of those things you do every once in a while
me, externally: haha yeah, I can't wait :]
me, internally: he's talking about this like it's no big deal, it's not weird at all,,, he doesn't mind the idea of teaching me despite the fact that he never expected to be doing this with me,,,, he's my dad and he supports me even if he doesn't completely get it,,,
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giantkillerjack · 1 year ago
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
[plain-text version of this post can be found under the cut]
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
Plain-text version:
Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
P.S. Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
#hlep#original#mental health#my sympathies and empathies to anyone who has to rely on this kind of hlep to get what they need.#the people in my life who most need to see this post are my family but even if they did I sincerely doubt they would internalize it#i've tried to break thru to them so many times it makes my head hurt. so i am focusing on boundaries and on finding other forms of support#and this thing i learned today helps me validate those boundaries. the example with the milk was from my therapist.#the example with the towing company was a real thing that happened with my parents a few months ago while I was age 28. 28!#a full adult age! it is so infantilizing as a disabled adult to seek assistance and support from ableist parents.#they were real mad i was mad tho. and the spoons i spent trying to explain it were only the latest in a long line of#huge family-related spoon expenditures. distance and the ability to enforce boundaries helps. haven't talked to sisters for literally the#longest period of my whole life. people really believe that if they love you and try to help you they can do no wrong.#and those people are NOT great allies to the chronically sick folks in their lives.#you can adore someone and still fuck up and hurt them so bad. will your pride refuse to accept what you've done and lash out instead?#or will you have courage and be kind? will you learn and grow? all of us have prejudices and practices we are not yet aware of.#no one is pure. but will you be kind? will you be a good friend? will you grow? i hope i grow. i hope i always make the choice to grow.#i hope with every year i age i get better and better at making people feel the opposite of how my family's ableism has made me feel#i will see them seen and hear them heard and smile at their smiles. make them feel smart and held and strong.#just like i do now but even better! i am always learning better ways to be kind so i don't see why i would stop
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lazylittledragon · 3 months ago
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taking all my american followers by the shoulders. listen to me. just because you have a more promising candidate now doesn't mean you just assume it's going to be fine and don't bother voting. assuming trump wasn't going to win is how you got here in the first place so you go out and fucking vote for harris and give everyone a fighting chance.
also if you're still in the 'they're both as bad as eachother' delirium, please take your head out from between your cheeks and consider that your options are an imperfect president and the literal worst person alive who is going to get masses of people killed. i've said it like this before, but it's like deciding between maybe getting food poisoning or definitely having a brain aneurysm. take your pick i guess but don't be surprised when you drop dead.
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davrinassan · 3 months ago
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i need help with vet bills (again).
hi. for those of you who remember, earlier this year i asked for donations to help me afford toos' vet bills, who we found out through your help had kidney failure, and again with your help we got her on medication for it. unfortunately it wasn't enough, and we lost her. and then shortly after, dexter began deteriorating, which we put down to his grief of losing toos - she kept him young, he followed her everywhere, he only played because of her, he only ate when she ate, etc. without her he just stopped. and then he started to have seizures and fits daily. we got him blood tests, but he was suffering so badly. we made the decision to put him down. i didn't ask for donations this time, because i was so deeply embarrassed to ask for help again. but we are still recovering financially from that, as well as the parts of toos bills that didn't get covered from donations. my mother hasn't worked for a very long time, she's disabled and very sick, and she receives PIP from the government that only covers her monthly medications that are not covered by the NHS. my father retired early to become her full time carer, and we are living off his pension. i am too disabled to work, but because my mother already receives PIP and i live with them, the government are resistent to giving me any help - so i have zero income, and rely entirely on my parents.
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this is jenny. she's a 14 year old cairn terrier, who loves when we garden because she wants to help dig holes. she helped us bury dexter and toos, digging their graves for them with my dads help. she's an angel, and loves people so much she likes to escape under the fence and join other families for awhile. one time she got into someones back garden and asked to come in as they were eating lunch. she really hates flies, and will try to bite them out of the air (she has never succeeded but i believe she will one day). she will rub her face against you until you start stroking her, and will growl and even bark if you stop! we don't have the money to take jenny to the vets, for a checkup or for anything they may want to do. this has been an ongoing issue, but toos and dexter took priority, and it hasn't been a bother to her. she existed as normal for a long time, but that's since changed.
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jenny has this lump in her mouth, it is larger than the picture shows, but she is a nightmare to force open her mouth since this got so big, i think it's uncomfortable or painful for her. she can't properly close her lips now, and it has pushed all her front teeth away, misshaping her mouth, and sometimes it bleeds profusely. eating has become difficult for her, she can't eat anything hard, and currently will only eat soft human foods like rice, scrambled egg chopped up so small she doesn't have to chew, and things like soups and gravy. she's lost a lot of weight, and i'm getting frightened. to add onto it, i've found lumps like this across her body. i've done as much research as i can, and i believe it to be an oral tumor, it fits, and it looks right, and it spreading across her body is called 'full staging'. and going by all i've read - they will want to remove them in surgery. according to my research, this will cost anywhere from £585 - £4,740 for just the lump in her mouth. that's not including any checkup/test costs, or the other lumps on her body.
she hasn't been to the vet yet, i don't have any secure goal or bills to share, just my assumptions and beliefs from researching myself online. my parents refuse to take her because we can't afford it. i want to save up money, have it in my bank, and show them that we can help her now, before it gets worse, or it's too late. as i said before, i don't have any income, so the only way i can do this is with help.
here's a link to my paypal.me
the icon is a little mouse, and the @ is rivellon
i struggled so badly posting the first post like this for toos. i felt so guilty and embarrassed and ashamed. but i have no choice again, i want to help jenny. i don't want her to suffer. and selfishly, i can't handle losing another dog so soon. this year has been waking nightmare, and i need your help to stop it getting even worse.
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please reblog and share, even if you can't donate.
thank you for reading.
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verflares · 4 months ago
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collection of some loz origin au stuff i've been chipping away at for awhile now ^_^ with a healthy amount of dunmeshi insp for good measure LOL (the ooccoo isnt relevant she's just here for size comparison purposes)
feat my beloved good friend @linkvcr's hylia design also. because i am obsessed with her and you should be too 🫵
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vaguely-concerned · 4 months ago
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you ever think about how the horrific thing dorian almost had done to him... is exactly the thing iron bull went to the reeducators to beg them to do to him. yeah. me either. for ten years straight now. what the fuck. wanna be my narrative foil dude. we could fuck about it if you're game and single
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sorrelpaws · 4 months ago
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weird blue girls
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beanghostprincess · 6 months ago
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Throwing up banging my head against the concrete floor eating my own fucking arm right now
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starkspi · 14 days ago
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From "Unadulterated Loathing" in which Charlie chains these two idiots accidentally together by @otsmosis (who made this comment at the end of the last chapter and inspired me to do whatever this is above)
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chiropteracupola · 2 months ago
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'The Polar bear at Blair Atholl,' 2024.
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themathomhouse · 1 year ago
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this disability pride month, stop making jokes about people in wheelchairs standing up or walking.
can I stand and walk? sure, for a short while and with pain. the consequences for trying to be out all day without a wheelchair are that I'll be in bed for the rest of the week, too tired and in too much pain to move.
but the government won't give me my own wheelchair because they have the same attitude as these jokes - I can stand up, so I don't need one. exercise is good for you, you should walk!
it keeps me trapped in the house, unable to do anything more than short stints anywhere without borrowing or hiring a wheelchair - one that causes me pain to sit in and relies on someone to push me (usually with difficulty), because they're not going to have a high-end chair for that sort of thing.
it's not a miracle that a wheelchair user can stand or walk. it's something we should aspire to see more often.
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graedari · 1 month ago
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It's funny because Arthur doesn't know what a Disney Princess is
(@pestobepis thank you for comparing Arthur to that one picture of a girl with a racoon. you are so fucking big brained)
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giantkillerjack · 1 year ago
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Me: hm, I want something to put on the TV as background noise... Huh. Looks like YouTube is recommending something called The Last Unicorn. That's perfect, it's probably some old shitty animation that has aged poorly! I can watch it ironically!
Me, 2 hours later as the credits roll: *crying, cheering, buying the book, composing the songs*
Me, 2 weeks later: So I have compiled all of the quotes from the book that I think could make good tattoos, and also, HOW HAVE I NEVER LEARNED ABOUT HOW THE LAST UNICORN FUCKING SLAPS??? This gay-ass little fairytale fed my soul! Watered my crops! Transed my gender! Can't believe I heard of this story from youtube recommendations, of all places!!
#original#the last unicorn#tlu#peter s beagle#molly gru#schmendrick#schmendrick the magician#two of my favorite characters in anything right there in the center of the story! and I'm glad I saw the film first!#my reading ability has diminished due to trauma disability etc. but it seems like having a visual reference actually really helped!#no wonder i only ever want to read fan fic! turns out reading is not actually Superior to other types of Storytelling. it's just different.#to say otherwise is snobbishness I have been eminently guilty of in my life!#but like it is easier for me to consume tv and movies and that is fine actually. also that's why I'm doing a graphic novel lol#because i wanted to make something i would actually be able to read if i found it at a library. altho the audio book IS gonna be bomb#the audiobook is for visually impaired readers and anyone who wants or needs it! accessible stories for everyone! yeah!!#my gender was already transed but now I've gained an ADDITIONAL gender! which one? I'll never tell 😘#i am so powerful i have so much fuckin gender. my wife has no gender. and she is equally as powerful.#and also she has STUDIED THE BLADE#mostly zoro's blades from One Piece#normally YouTube recommends me shit movies like idiocracy or smth this is like if every day ur cat brought you a piece of rotten food and#then one day it brings you a BEAUTIFULLY ANIMATED TALE FEATURING MY BELOVED TWINK FUCK-UP WIZARD FRIEND AND MY ALL-TIME HOMEGIRL MOLLY GRU#and also it's soft and beautiful and funny and fucking weird!! i wrote melodies to the songs in the books on my ukulele
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lazylittledragon · 10 months ago
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do any other artists feel like. yeah you're a 'good artist' because you draw things that look nice, but like. TECHNICALLY? you're really not great
i really hate that i can recognise that yes, my art is good, but is it VARIED? is it dynamic?? is my anatomy good? is it full of texture and colour theory? do i know how to do This? can i do That? no, not really. and that's quite painful actually
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shima-draws · 1 month ago
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Me? Drawing Tododeku for the first time since *checks calendar* APRIL of LAST YEAR???
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