#xDrip

[pvtjoker22]

The alarms are much better though, it's like an air raid siren!

oooooh

I think if I do take a look at the app, it’ll be for this then (graphs are always great though)

I was exhausted and managed to still sleep through 2 low alarms on the default Dexcom alerts the other night

Thankfully my spouse is a light sleeper and shook me awake, and we had at worst a 3.7 mmol/l situation, but there’s times where I’m thinking if I’m alone and taking a nap, it might be handy to have something even louder

Anyone in the diabetes community able to help with a dexcom issue? I'm running my alerts through x-drip ATM because they don't seem to be pinging properly. Sometimes are but it's only a one-off noise, most often it's only a single vibrate, sometimes they aren't showing at all (I was high for 4 hours the other night, didn't get an alert until two hours out of range, then obvs sugars were messed up for the entire day because of it after it took another 2 to drop down - and TBF highs aren't really that much of a worry, I don't want to miss hypos). I'm definitely not going to wake up for a weak vibrate, and I will probably (and probably have) just turn a single noise off and do nothing about it. I basically need the equivalent of an air raid siren to respond.

I've taken my phone off do not disturb and (the horror) put it on loud. Dexcom is set to always override so that shouldn't have mattered anyway but obvs now running the risk of being woken up 20x a night by alerts. Tried turning all my other alerts off but it was painstaking and I still managed to miss a load (then fucked up my whatsapp in the process!)

I'm happy to continue running x-drip (though have some concerns about how well it's picking up the data/delays) but just wondering how everyone else manages? Is there a specific ring tone that keeps going? When you click okay on the alert does that make it go away forever? Should I be swiping to snooze? Like what the hell am I doing wrong?

Nothing I do seems to make the slightest bit of difference and it's very frustrating considering people have been raving about the system for years! Can't go back to libre because I need it for closed loop.

Also, on the subject, my x-drip gives me a numeric value in the top bar where dexcom is just a symbol and you have to expand to see the number. Any way dexcom does that? Should I just stop whinging and keep running x-drip because I know I like it? Lmao.

[enchantedtale]

I decided to try and draw in the style of a few other artists here on tumblr that I enjoy the content of (and hope I drew their styles correctly lol). Planning to redesign some Enchantedtale characters later as well but for now have this 

style 2 was inspired by @jakei95

style 3 was inspired by @itsxroxannex

style 5 was inspired by @hheisa  (4 is the sailor moon one lmao)

[clatterbane]

I am so done with all of this for tonight. Time to take out some frustration in games, and/or try to just chill and watch some videos. Preferably not tech-related.

But, I did find it darkly funny in a way that the best solution I have found so far to actually keep useful access to several years' worth of Diabox data, is to finally get a Nightscout instance up and running properly. Which I have kept meaning to do anyway. Should be able to import that data, and keep some continuity with the current xDrip+ install. (Which was kinda developed for use with Nigjtscout.)

That would of course also make it easier to, like, put a handy CGM display widget on my computer desktop or feed it to a variety of other displays. Which was my original draw.

Looking into it again, I am sorely tempted to just use a hosting service like NS10BE and have done with it. It's well worth €50 a year for me not to have to fuck around with that anymore, and they do seem to have a good reputation.

But! But! With my hobbled filthy foreign devil bank account and its debit card, I cannot pay the nice tech company! 🤣 I am blocked from any repeating subscriptions, and Maestro doesn't work with some payment processors anyway.

So yeah, either I am going to have to ask Mr. C to pony up for that--OR I am going to have to eat my pride and ask him to please help get the existing middling-DIY attempt up and running properly. I mean, it probably wouldn't be a major problem for him to set up something completely self-hosted in house, never mind sort out whatever the hell OTHER error I started getting trying to access that database once the one I mentioned there was out of the way.

But, my "just knowledgeable enough to break shit in interesting ways" tinkerer ass really avoids asking for any technical help from the Household IT Professional on his own time. I feel like a dumbass, and he spends MORE than enough time and energy on frustrating tech problems as it is.

Anyway, I did find it darkly hilarious in the context of some ongoing frustrations which are currently really flaring up here, that I cannot even reasonably bail myself out of this little cluster of aggravations for €50 on my own.

[case-palmarium]

hot singles in my area named "xDrip+" keep texting me on my phone

beautiful women named "dexcom g6 app" keep texting me on my phone

[ifwerefree]

any other tumblr diabetics use looping? I just started looping a couple months ago. I have a dexcom with xDrip+, an omnipod and AAPS

[box-of-nonexistent-meows]

When you have low glucose level and you go to the kitchen to rise it as to not wake up your dad with the XDrip+ alarm...

And your dog sees you and wakes him up instead

[miaomiaoreader]

@dm1atleta MiaoMiao1#insulinresistance #miaomiao_smart_libre_reader #FreeStyleLibre #type1diabetes #t1d #type1 #diabetes #CGM #t1dlookslikemet1 #type1diabetic #type1strong #diabeteslife #t2d #miaomiao2 #abbott #xdrip https://www.instagram.com/p/B98sea2B3wR/?igshid=1r0s5ryjdvlxk

[very-gay-alkyrion]

Well, I live in Germany, and after being diagnosed in March of 2020 and starting out with pens and a dexcom G6 (really can't complain, and it worked like a charm with xDrip+), I got a MiniMed 780G in June of 2022.

Insulin costs here are minimal, the copay for everything that insurance covers is legally at most 15€ per box (so I pay about 10€ for a 5-pack of 10ml NovoRapid bottles).

When I moved to Munich in September, that caused some... problems (Long story, so more under the cut).

I'm really happy with my pump. I especially like the SmartGuard function, which automatically adjusts your basal rate, and can automatically give small corrections. Basically, I haven't had any dangerous hypo since I got the pump. And not having to bring pens and sugar and your meter and the whole shebang with you if I'm only on a quick trip to the grocery store by bike is such a big deal.

I have my pump, which is permanently clipped to my belt, and that's it.

Pumps, especially the semi-autonomous like mine, are such a big deal. I have to change the sensor and infusion set (the tube that goes from pump to body, and the thing that actually goes in your body) once a week (I have settled on Sunday morning), and then, based on my insulin consumption, I have to fill a 3ml reservoir somewhere during the week. It's technically also only rated for 7 days but if the insulin is fine, I'll go 10 or 12 days too.

And the rest of the week, you just enter carbs when eating, and if you're doing sport, you just tell it to go into temporary target mode for x minutes/hours (the pump targets 100/110/120, based on how you set it, and temp target aims for 150 and also lays off the autocorrections).

I can't describe how much my 780G has simplified my life.

So, I used to live in Lower Saxony, and then, after finishing school and starting a dual study program (basically, I go to university and vocational school, and am employed the whole time and get paid for uni etc), I moved to Munich because that's where my employer is.

Munich is in Bavaria, which is a different state than Lower Saxony.

Now, when you get an expensive piece of technology on prescription, there's usually a trial phase because your insurance wants to make sure that the 6k they're spending on a pump are actually being put to good use.

So, there's like three months of trial phase, and then your doctor sends a report to an independent (semigovernmental) body so that a doctor can assess the efficacy of the treatment.

Now, every state has their own assessment service, and I moved to Bavaria. However, I still had a return envelope for Lower Saxony.

You may see where this is going.

The insurance told the service in Bavaria to assess my data, meanwhile my data was being sent to Lower Saxony.

And of course, because Bavaria is the worst state in Germany (affectionate), they were apparently too stupid to call Lower Saxony up and be like "Hey, ya got any of them documents?".

So it's December, and my stuff is running out, so I call up my insurance and explain the whole situation to them, so they give me a temporary approval for my prescription so I'm not without shit.

Cue January, when I run low on sensors, I call up Medtronic and they're like "Yeah we got the prescription. Yeah the insurance approved it. No it doesn't cover sensors".

So, after some more phoning around, it turns out that sensors have to be prescribed on a SEPERATE prescription or for some reason something shits its pants and it doesn't work.

I already had submitted a prescription for sensors in late November, but by the time the temporary approval came, that prescription was invalid because they're only valid for 30 days.

But after calling up my doctor, they sent that out and by the end of January, I had valid prescriptions for all my consumables (infusion sets, reservoirs, sensors).

Or so you would've thought! Because the consumables (excluding sensors) were subject to temporary approval, they needed another prescription.

Now, I had a genius idea. Medtronic delivers via UPS, which is imo the worst of the worst when it comes to delivering shit.

There are other resellers that also carry consumables. HOWEVER, they do NOT carry the "Extended" consumables that have to be swapped every 7 days instead of every 3. So I had to wait for that prescription to come back, and send it to Medtronic directly.

But, by the end of February, shit was finally sorted out, for real this time.

If you take away one thing from this saga, let it be this: When you're dealing with administration bullshit, call them. One (friendly!!!) call is faster and more effective than ten emails.

What is being a diabetic wherever you live (I'd assume USA?) like? Any cool things, or annoyances?

Hey! Thanks for askin'

I actually live in the UK, so I really can't complain too much. I get all my prescriptions for free, so the worst part of the diabetes is dealing with myself 😭😆

I spent 8 months in Canada and that really made me appreciate completely free healthcare. I had to wait for my university health plan to kick in and it was pretty stressful to have to buy all my stuff at full price and then get a refund for it. It didn't cover the cost 100%, so I still ended up having a pay a few hundred dollars for insulin and supplies. Definitely made me think about how much I was eating. 😅🥲 Also I was really confused that your doctor prescribes you certain number of 'refills'. Which was interesting because I was definitely going to be diabetic the whole time I was there 😂

Buuut when I got back to the UK I got prescriptions for the Libre sensor which is amazingggggggg

How's the diabetes care where you are? 🤔

[mostlysignssomeportents]

Abbott Labs kills free tool that lets you own the blood-sugar data from your glucose monitor, saying it violates copyright law

Abbott Labs makes a continuous glucose monitor -- used by people with diabetes to monitor their blood-sugar levels -- called (ironically, as you'll see below) the Freestyle Libre.

Diabettech is a hub for helping people with diabetes manage their health, including by building "artificial pancreases," through which a glucose monitor is connected to an insulin pump, with software in between that measures out small insulin doses that respond in real time (or even predictively) to changes in blood sugar. These can be significantly better than manual interventions for managing blood-sugar for people with diabetes, and can avert life-endangering, life-shortening, and/or quality-of-life reducing blood-sugar spikes and troughs.

The admin of Diabettech posted technical instructions and code for extracting your blood-sugar data from the Librelink so that you could use a different "listener" app with your data, or even connect it to an insulin pump to create an artificial pancreas loop. In particular, it allowed the free/open Xdrip diabetes-management tool to access Freestyle Libre data.

In response, Abbott Labs used US copyright law to have the project deleted from Github, censoring Diabettech's code and instructions. In its takedown notice, Abbot's lawfirm Kirkland & Ellis LLP (a huge corporate firm) advances several alarming arguments about projects like this.

First, they say that creating a tool that interoperates with the Freestyle Libre's data is a copyright infringement, because the new code is a derivative work of Abbott's existing product. But code that can operate on another program's data is not a derivative work of the first program -- just because Apple's Pages can read Word docs, it doesn't mean that Pages is a derivative of MS Office. In addition, as Diabettech points out, EU copyright law explicitly contains an exemption for reverse engineering in order to create interoperability between medical devices (EU Software Directive, Article 6).

More disturbing is Kirkland/Abbott's claim that the project violates Section 1201 of the Digital Millennium Copyright Act, which prohibits bypassing "access controls" for copyrighted works. Factual data (like your blood sugar levels) are not copyrightable -- and if they were, you would hold that copyright. It's your blood. What's more, DMCA 1201 also contains an interoperability exemption.

Finally the whole thing is obviously fair use: it's a highly transformative work for an obviously socially beneficial purpose.

Glucose monitors and insulin pumps are, effectively, prostheses: artificial organs that are basically parts of your body. Abbott's position is that they own part of your body and you can only use it in ways that don't upset their shareholders. This is an outrageous position. I mean, forget all the bullshit about whether your blood is copyrighted and if so, by whom -- they're saying that your organs are copyrighted works whose usage is subject to the whims of a white-shoe law firm that is prepared to delete your code and send you a bowel-looseningly terrifying legal threat any time you dare to assert your bodily autonomy.

Speaking in my capacity as a professional dystopian cyberpunk writer, I'm here to tell you that that shit is a warning, not a suggestion.

https://boingboing.net/2019/12/12/they-literally-own-you.html

[jennifersnape]

my blood sugar is falling a bit 'too so I decided to stop and take a coffee with 2 sachets of sugar, just to keep the blood sugar stable. #tipe1diabetes #t1d #diabeticstyle #diabeticproblems #diabeticwarrior #diabetestype1 #diabeticbadass #diabeticgirl #cgm #freestylelibre #miaomiao #xdrip (presso Trieste, Italy)

[killicillin]

 Let’s see how Nightscout works out :)

[emilyzhang9007]

Colorful wood/resin style Squonk MOD - Aleader X-Drip Squonk Mod

Aleader X-Drip Squonk Box Mod is a colorful wood/resin style Squonk MOD with a 7ml Squonk bottle. It is powered by a single 18650 cell with a flip-type magnetic battery cover. Together with a big fire button, the spring-loaded 510 connector with bottom feeding pin and resin material body, this mechanical Squonk MOD will bring you a full day of happy vaping! Follow the link to see more info REV GTS 230W https://www.vaporl.com/rev-gts-230w-box-mod.html To check out more cheap mods https://www.vaporl.com/battery-mod.html

[clatterbane]

Medical PTSD be like...

Yeah, I'm still trying pretty hard not to beat myself up too much over a "bad' day yesterday.

With the 24-hour graph at the bottom. Those single red dots over to the far right were recalibration readings, because this sensor was actually running a little low before that. (Partial explanation for the red supposed hypoglycemia line while I was asleep. Found out that xDrip+'s alarms are very effective at waking me up! 😒)

What happened there? An awful lot of pasta, plus some misestimation of how much insulin it needed to cover it. Then some borderline "rage bolusing" as the numbers kept climbing.

That really is not a bad day at all by a lot of other T1 standards. The usual professional goal to aim for is 70% time in range or more. That 24-hour prriod still exceeded that. But, being wound too tight? Mine has been averaging around 99%, with mostly the occasional mild brief high.

With some backup, my pancreas is apparently still squeezing out a tiny amount of its own insulin in response to food--which probably helps too even if it's not so predictable. Those final few beta cells may well have been on strike last night. ¯\_(ツ)_/¯

The past week visualized. Where the white line is median levels, the more solid blue is the range it's stayed in 75% of the time. The lower dips during my night owl "overnight" are mostly from lying on the sensor funny, which is a very common way of getting false lows that bounce right back up after you move. (The other part of the equation with that red line earlier. I lay in a bad position for hours straight.)

Anyway, the more transparent blue is an outlier and should not be counted--or so I keep telling myself. That was HEAVILY affected by last night's pasta oopsie.

Guess I'm not actually doing too bad when that's the highest I've gone under my own power over the past several years since I got a CGM.

(They have done at least that bad with the IV glucose a couple of times during procedures, but I had fuck all control over that. What with being knocked out unconscious, and also a couple of hospital floors away from my insulin at the time.)

I do try to keep this in mind, and also take glucose readings as data points to learn from rather than hanging personal value judgments on them. [Strictly rhetorical] Lord, do I try. It ain't always easy, and it really doesn't help when you're feeling physically hungover from a rollercoaster. That can make it easier for some unhelpful mental scripts to start up.

[ifwerefree]

the clinic that set me up with nightscout told me my api secret twice and I still haven't written it down and I somehow got disconnected from nightscout again? Idk why maybe because the app updated? Or because I turned it off when I went on vacation but now I can't turn it back on. Anyway I'm using xDrip+ and I didn't realize I couldn't connect to nightscout until today and I have an appointment at 2 and I'll have to ask for my api secret for a third time so they can see my blood sugar. Oops.

[miaomiaoreader]

@type1d_gayle Setting Her MM2 up with a new Libre sensor (using Xdrip). . ⭐️ . Step1- put Libre sensor on and activate as normal. Step2-apply double sided tape and attach MM2 to Libre sensor. Step 3-start new sensor on Xdrip app. Data will be collected from the sensor. Step4- once data is collected, calibrate using a finger prick. Tips- calibrate morning and night for the first couple days to get an accurate reading. Make sure your MM2 is fully charged before using (green light). . ⭐️ . #diabetes #t1dlookslikemet1 #type1diabetic #type1strong #diabeteslife #t2d #miaomiao2 #diabetescommunity #type2 #diabetesawareness #diabeticproblems #fuckdiabetes #beyondtype1 #bloodglucose #diabetestechnology #freestylelibre https://www.instagram.com/p/CBUXY9bBh8v/?igshid=uh212cw3afgn

[hazimiai]

سأم مهندس البرمجيات الذي يسمى ليام زبيدي من التعايش مع المتاعب التي يسببها مرض السكري، ولذا قرر أن يخترق مضخته للأنسولين ويحولها إلى بنكرياس اصطناعي عالي التقنية. I’m a cyborg now! (On Building My Own Artificial Pancreas Given the choice between a) changing my lifestyle to be boring and b) hacking my metabolism, I chose the easier option. I built an artificial pancreas using OpenAPS! And it’s changing my life. What’s an artificial pancreas? • When your pancreas is not munted like mine, it produces insulin • But more importantly, it knows when and how much insulin to produce – in response to the amount of glucose in your blood • Everything affects this: • – Food. Diabetics have to give themselves insulin for carbohydrates, using personal ratios we guess and refine. Different foods have different amounts of carbohydrates, which release at different speeds (glycaemic index). Companies are legally allowed to include an error margin of up to 10% on their nutritional information. • – When you wake up (dawn phenoemenon / residual insulin effects – you need more insulin) • – Illness and stress (you need more insulin) • – Your current levels. Your body is more insulin resistant when your levels are higher than they should be. • – Alcohol (occupies the liver, but only after more than one beer – you need less insulin) • – Exercise (adrenaline makes it temporarily go up, and stabilises in the long run) • – Sleep quality (makes metabolism more or less volatile) • For diabetics, we are running mathematical optimizations of complex control systems, 24-7-365. Pulling levers, making guesses, trying to reduce our margins of error. • An artificial pancreas is just this – but 80% is automated. This post is a little blog of my experience building such a system. I’ve outlined the tech and costs of buying it, the research involved and assembly. And most of all – the actual human impact it is making on my life. Let��s begin! The Tech Stack • FreeStyle Libre CGM – continuous glucose monitoring • Miaomiao transmitter – transmits the Libre (which is NFC-based) readings via Bluetooth to my phone • Nightscout deployment on Heroku – an open-source frontend/backend for T1 Diabetes data hosting and visualisation • self-signed xDrip app – an open-source app which receives readings via Bluetooth, and sends them to Nightscout • Medtronic Insulin Pump – to inject insulin • Intel Edison + Explorer HAT – a Linux electronic board with WiFi and support for 900MhZ radio comms • 4400mA Lithium Ion battery – to power the “rig” on-the-go • OpenAPS – the ‘operating system’ of the artificial pancreas rig. Downloads readings from Nightscout, dynamically predicts and adjusts background insulin delivery on the insulin pump via radio, uploads all of this data to Nightscout for continuous monitoring. More >>>>>>>