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dissociacrip · 1 year ago
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some ways that congenital hypotonia affects me personally in my everyday life
disclaimer: this is a "i want to see hypotonia talked about more"/vent-post adjacent thing rather than something that should be used as some kind of diagnostic reference. hypotonia is more of a symptom than a condition on its own & is associated with a wide variety of diagnoses, i personally don't have a label or explanation for what i experience other than "congenital hypotonia" (and my case is not "self-diagnosed," this was identified when i was still a child.)
generalized hypermobility and painful joint instability either caused by hypotonia or at least contributed to by it if not; no frequent dislocations but joints still tracking badly (especially my knees) and causing pain, ankle instability once gave me an injury
related to above, knees have occasionally buckled/threatened to give out, usually when i'm tired or when i've stood from a sitting position in a chair
unfixable bad posture putting unnecessary strain on a lot of things (reason why my hamstring muscles are so tight)
sitting or standing up easily causing fatigue and pain unless something else is adquately supporting my body (normal chairs usually don't suffice because that still requires adequate posture)
related to above, persistent need to lean on things for support; this is the primary reason why i own a cane
staying in bed a lot due to the above because it's the only time my body doesn't have to support itself
tendency to drool, usually when laying down
dysphagia (things feel "stuck" in my throat a lot, swallowing capsules is becoming more and more uncomfortable), aspirating food/water, acid reflux making these issues worse
may or may not be part of the reason i'm a bit of a loud breather
sometimes chewing hurts or is tiring (or talking)
related to above, mild speech issues mainly affecting articulation (e.g. mouth making a "v" sound rather than "th" sometimes), makes speech physically feel weird or forced, or something even painful; sometimes "talking out of the side of my mouth"
poor grip = poor handwriting, also often makes writing or gripping things painful, including holding/typing on my phone
related to above, makes drawing hard because i don't have proper grip/as much control over my hands as i should
doesn't happen too often but almost randomly losing my balance; i'll just be standing minding my own business and then i'll start tipping over
related to above, can't just stand still and be still, i start tipping in different directions and i think i've subconsciously learned to counteract this when i'n required to stand in place
walking/moving slowly because it feels like my muscles don't have the capacity to move any faster, even if i'm not really "tired" per-se (decreased state of readiness for movement)
have a very hard time holding my head up spine even remotely straight when i am actually tired/worn out
legs/arms start shaking if i hold them out against gravity
also, legs shake if i sit on the floor/a flat surface with my knees bent upward, or arms quickly start to give out if i lay on my stomach and prop myself up on my elbows
walking feels awkward/uncomfortable and wrong most of the time; anything wrong with my gait is probably only recognizable to a PT or someone else who knows what they're looking for, but things just feel too loose/floppy when i walk; probably the reason why i'm prone to tripping and accidentally kicking stuff (POTS-induced ataxia - or w/e it is - makes this much worse)
also probably contributes to constipation and maybe other digestive problems
there's probably more but that's all i can think of for now. this is not universal hypotonia experience as hypotonia is a symptom that varies in its severity and my case seems fairly mild, but i thought i'd talk a little bit about what it's like since it's an under-discussed thing (especially pertaining to disabled adulthood.)
this is okay to reblog.
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heystephen · 3 months ago
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another person has self-immolated in protest of the ongoing genocide happening in Palestine. his name is Matt Nelson, he self-immolated in front of the Israeli consulate in Boston, he is the 5th known person to have done this. Before he did this, he stated his intentions and reasoning in a Youtube video which has been reposted across several platforms and the condensed transcription is as following:
“My name is Matt Nelson and I'm about to engage in an extreme act of protest. We are all culpable in the ongoing genocide in Gaza […] We are slaves to capitalism and the military industrial complex. Most of us are too apathetic to care. The protest I'm about to engage in is a call to our government to stop suppling Israel with the money and weapons it uses to imprison and murder innocent Palestinians, to pressure Israel to end the genocide in Gaza, and to support the ICC indictment of Benjamin Netanyahu and other members of the Israeli government […] A democracy is supposed to serve the will of the people, not the interests of the wealthy. Take the power back. Free Palestine.”
Remember his face, remember his name. Free Palestine. 🇵🇸
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circusclownproductions · 9 months ago
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seeing a lot of videos that are like “I didn’t know babies couldn’t have water” so here’s an incomplete list of things you need to know before having a baby
- the obvious, they can’t have water bc milk is incredibly high in water already so excess water leads to over hydration
- babies cannot have honey until 1
- if ur breastfeeding your kid and saving excess milk, make sure you label what you pumped in the morning vs at night bc your body produces different melatonin levels throughout the day and giving your baby daytime milk at night can make them more alert and fuck up their sleep schedule
- idk why ppl keep saying this but swaddling your babies or getting them those baby straight jacket things is not abuse. It chills them out cuz it reminds them of the womb
- babies have a dandruff like buildup on their head called cradle cap, and it’s very easy to deal with and remove with just some baby shampoo, a gentle scrub brush (MADE FOR BABIES!!) and a comb. It does need to be removed tho cuz it can be very painful after a while. This can also continue to happen late into toddlerhood it’s normal
- you have to clean out the creases of your baby’s skin and hands and feet they WILL collect dust😭😭
- you cannot bathe your baby until their umbilical cord naturally falls off. Use a warm damp rag until then
- tummy time is actually very important
- your baby might have a misshapen head at first (not all the time but sometimes) this will either sort itself out or they’ll need a corrective helmet ask your doctor
- I wouldn’t recommend having your baby leave the house very much until they’re at least 6 months old, especially if they’re born near cold and flu season cuz the common cold can kill a newborn
- you’re not an awful horrible person for having postpartum depression and it’s always a million times better to let your baby cry a few minutes longer than normal while you regain your composure than to freak out and give ur kid shaken baby syndrome
- you’re not an awful horrible person for giving your baby formula milk either
- don’t put shoes on your baby it’ll compromise their toe box and balance
- babies put every single thing in their mouths
- the easiest way to burp a baby is to hold them straight up (spine straight) and hold their head a bit higher
- always support their head they barely have necks
- if your baby fights away food, fights tummy time, vomits every single time you burp them, is gaining or losing an unreasonable amount of weight at a time, wheezes after eating, or goes red after eating, chances are they’re probably allergic to the type of milk they’re eating (again ask a doctor but these are just some signs it’s not just colic)
- they will wobble a lot when learning to do things but you gotta fight the urge to help them every single time cuz they gotta learn
- they’re not always spitting out baby food cuz they don’t like it they just don’t know how to eat. Like they don’t know how to push food down they only know how to stick their tongue out so be patient
- babies craniums are broken up into three parts at first that later fuse together, this is to help make birthing easier but it results in a small EXTREMELY sensitive spot in the top of their head that has no protection. This puts their brain at a high risk. Always protect their soft spot
- read to your baby!! Get cute bright colorful sensory books with sight words and read them to your baby it makes such a huge difference in their educational growth and will help them acquire a love for reading early on. And talk to them never shut up just say whatever comes to mind all the time this will strengthen their vocabulary growth also.
- babies poop like a lot. A lot. an unreasonable amount. Bring back up clothes and more diapers than you think
- no pillows or stuffies in the crib and only use a muslin blanket unless it’s especially cold to prevent suffocation
- babies kick reflexively until they’re out of their newborn scrunch (they stay womb shaped for a while) and if your baby is crying and pushing at the swaddle try letting them flail around for a minute
- consoling your baby is not spoiling them ! They need comfort and they will learn to self soothe on their own
- singing lullabies actually works, they can recognize your voice a consistent place of comfort from the womb and the cadence of lullabies is literally engineered to create a calm headspace
- for the love of god do not get boring ass beige toys. Colors are important for their neurological development
- babies are very responsive to praise from a young age so be as supportive of them as you can
- babies get constipated a lot and you have to do like tummy massages to help ease their pain the easiest way is to lay them on their backs and hold one foot in each hand, kick their feet like bicycles, scrunch up, and then stretch their legs out
- holding them on your hip too much will not cause bow legged-ness if your baby is bow legged that was always gonna happen
- they drool so so much and you have to get bibs for them so they don’t get chest eczema
- don’t use scented products on their skin cuz their skin is sooo much thinner than ours
- when your baby first starts sitting on their own never walk away from them without setting up a nest of pillows and blankets around them. Even minor head trauma can mess them up sometimes
- this one is kinda morbid and scary but sometimes babies just die out of nowhere and it’s no one’s fault or anything it’s called sudden infantile death syndrome(SIDS) and it’s about 1.3k deaths on average per year in America so not super common but still very real. 90% of these deaths happen during the first four months however edit: apparently it’s bc of an enzyme deficiency which at the very least you can take steps to try and prevent
- smoking and drinking during pregnancy WILL affect your baby and your breast milk and also might contribute to SIDS cases
- babies sometimes have a big red mark on them somewhere called a stork bite immediately after birth but typically it goes away
- babies can’t see very well for a while after birth and they’re VERY wobbly so they’ll typically bonk their head into your chest and face a lot while trying to support themselves
- female babies might have smth similar to a period the first few days after birth, this is because of the hormone transfer that happens during the birthing process and the days leading up to it
- male babies get random erections for the first few days after birth(hormone transfer again) literally do not be weird about this it’s a baby
- things like weaning your baby onto solid foods, potty training, weaning off pacifiers etc, can actually be directed by the baby and will happen naturally will minimal guidance from the parent(some guidance is still necessary) although I would do individual research into baby led weaning for food to prevent choking
- get those chewy feeding pouches to help with weaning
- the most random things will scare the hell out of your baby don’t take it personal 😭
- baby carriers are life savers (tulas are one of my favorites)
- once babies hit toddlerhood they’re tougher than you think, and a lot of their reaction is based on YOURS. they’re always going to be looking to you for how to react to a situation. Remain calm and if they’re ok they’ll calm down but if they’re genuinely hurt they’ll keep crying
- babies will most likely get ridiculously attached to an inanimate object and you have to keep this thing intact at all costs until they’re old enough to abandon it or they will throw a FIT. I got a lemur plushie from a zoo once and every single one of the kids has bonded their soul with it until about 6 years old and once a month I have to stitch him back up
- don’t compare yourself to other parents. Maybe your kid isnt getting grass fed wild caught north Atlantic cheerios but at least they’re fed. If your kid is alive and healthy and happy you’re doing a good job
- you will need 3 car seats, an infant seat, a grow with me toddler seat, and a booster seat
- getting a good diaper bag is a MUST
- the hair a baby is born with will most likely all fall out or they’ll get a bald spot on the back of their head where they sleep cuz their hair is so fragile and thin but once it grows back it grows back thick
- get like 20 muslin blankets so you always have a backup when the main ones are covered in spit up
- the babies grip IS stronger than yours (keep your hair up and keep pets away best you can)
- your best bet for your teething baby is a pacifier you can put your finger in so you can massage their gums and some chewing toys numbing cream can be dangerous and should be used sparingly
- go ahead and come to terms with the fact you’re gonna have to use a Frida Baby to manually remove snot
- babies can get hair and thread wrapped around their toes and fingers that can cut off their circulation try to make a habit of checking
- don’t hit your kid please it’s nothing but trauma and fucked up coping mechanisms from there pls empathize with your child they’re a person too
- be careful not to pull too hard on their arms and legs(like during play or holding their hand while they walk) and NEVER pick them up by their hands this will very easily cause dislocation
- they might have a little tooth like callous on their lip from their pacifier. This does not hurt them and it will go away but it may hurt during breastfeeding
- breastfeeding will make your boobs different sizes
Yeag that’s all I can think of rn but yk i Will add as I remember stuff ppl are also adding things I forgot in the tags in case you’d like to look thru that as well <3
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valeriapryanikova · 11 months ago
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This season, on Hermitcraft...
(speedpaint)
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mearchy · 9 months ago
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sillysiluriforme · 6 months ago
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he got the munchies <3
context under show more
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emerynn-art · 1 month ago
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was feeling kinda down this morning so i drew max six times and that seemed to do the trick
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wilsonmybeloved · 1 month ago
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ive literally never interacted with the rats smp ever besides like once
but ren and martyn exist. and a lot of my other favorite creators. so we're going headfirst into rat yaoi. raoi, if you will. ratataoi?? ratatouille yaoi? ...ill work on it
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poorly-drawn-mdzs · 16 days ago
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In the world of heavy metals, love is denser than hate!
#Poorly drawn SVSSS#SVSSS#luo bingge#luo binghe#ask#Is that right? Two different character tags? I think that is right.#I'm calling myself out with screenshotting the asks with the dates because my full ask box has become a problem I'm determined to solve.#I promise you that if I did not respond to your ask it was because I 1) *really* wanted to hold on to it to make a doodle reply#or 2) really was so touched by the message and got overwhelmed#So expect many year + old asks suddenly gaining a reappearance! I'm going to get to them ALL.#Back to Luo Binghe (both versions). You see...the substance he is made with has a chemical reaction to affection.#Like how a pokemon has multiple paths to evolution depending on it's friendship points or exposure to random stones#so to does he evolve into various forms. I feel like Bingge (Ht) would be a noble gas. Unable to form bonds#I could also see him as a Halogen-type of element! Highly reactive and only truly found in manufactured environments.#And Binghe (Lv) would be an alkaline earth metal (+2). Sturdy. Forms bond better but not freely giving them away.#this is the second time I've related characters to elements - and I am far less familar with Scum Villian so please feel free to chime in.#I could be way off base here and I am very down for someone to talk chemistry and character themes.#Thank you all for the love you have given my silly little LBH. It means a lot to me B*)#Don't...don't look too hard at the lack of mark on his forehead here. I gave up. It's just...hidden behind his bangs.
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hermesmoly · 3 months ago
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came to me in a dream
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shriika · 1 year ago
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yet how wonderful the lie!
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copia · 6 months ago
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PAPA EMERITUS IV WILL BE HAUNTING CINEMAS IN TWO WEEKS
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blueinkjpeg · 6 months ago
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Oh boy oh boy oh boy
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casualavocados · 7 months ago
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Was this your first nosebleed? Have your gums been bleeding? Do you have a rash anywhere I can't see? What are you doing? Are you diagnosing me?
9-1-1 3.10 • Christmas Spirit
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ciearcab · 1 year ago
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saw the bookclub’s reached vol 10 so i’m joining in on the sorrows :,)
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wombywoo · 7 months ago
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v+q 🖤
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