#spoonie guides
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spoonful116 · 1 year ago
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Almost forgot to post about this!
Learn how to maximize your appointment times with your healthcare and and make sure you have mentioned everything you needed to!
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cripple-cryptid · 3 months ago
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Okay I've had some water and took my meds so it's time for Hermit's Guide to Public Flare Care!™ I will just be going over small, affordable things that can be carried in a backpack or bag. And by affordable, I mean $25 or less items. This list also focuses on general care, but leans towards care for chronic pain.
1) Electrolyte Drink Mix - Whether it's Gatorade powder, Liquid IV, Nuun, or something else. Being properly hydrated and having balanced electrolytes can help with various issues. Pick your favorite flavor!
2) Peppermint oil roller/Migrastick - A little self explanatory, if you deal with migraines, it can help a lot.
3) Tiger balm - For pain! But if you have pets, don't let them lick the area covered in Tiger balm! Otherwise, the warming sensation can also be good as a type of grounding technique when you get overwhelmed.
4) Emergency ibuprofen/Tylenol/Benadryl - in case you need it. Doesn't have to be a whole bottle, just a little travel pill case of them.
5) Snacks - Sometimes you just need a little pick me up, sometimes it's to help blood sugar.
And if you can afford it/need it, here are some other suggestions for items to carry!
- Compression items (like gloves)
- Magnesium lotion (or a lotion of your choice)
- earplugs/earbuds/headphones
- Fidget toy/chew item/gum (sometimes that works in place of other stuff)
- Notepad and pen (for communication or note taking)
And that's my quick and dirty guide to a basic public flare kit! I'm sure there are other small, affordable items that others can think of, and each person has different needs. If you figure something out better for yourself, please share!
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chronicallykiki · 7 months ago
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FUNDRAISER EVENT Guide Dogs 250 Challenge
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From 24th April to 16th May, I'll be taking part in a fundraising campaign for Guide Dogs!
"Every day 250 people in the UK are told they’re losing their sight. It can be devastating. People with a vision impairment are more likely to encounter depression, loneliness, and unemployment. Guide Dogs helps people with sight loss live the life they choose, but we need vital funds to do this. That’s why we need you to be a game changer and take on the 250 Challenge." - Guide Dogs Website
During this time, my Challenge is for streams to be at least 250 minutes long. I also plan to donate an extra £1 for every sub to my channel. And! I've set up a few goals, with incentives to look forward to:
Level 1 Goal £250 : If we hit this, I will sponsor one of the puppies! Level 2 Goal £500 : If we double our 250 goal, I will sponsor two of the puppies!! Level 3 Goal £750 : If we manage to triple our 250 goal, I will sponsor all three puppies!!!
Links: My Twitch Channel My Fundraiser Page Guide Dogs Website 250 Challenge Sponsoring A Puppy
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Streaming for 250 minutes (just over 4 hours) doesn't sound like a challenge for most, but for a spoonie like me, who can't regulate their energy levels, it sure can be!
I'll do my best, but in the event I'm unable to meet the 250 minute minimum, we'll have to think of a fun forfeit or something (be gentle).
Regarding the sponsor puppies, the first will be chosen at random, and the second will be via a poll on my fundraiser page.
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rubypomegranates · 11 days ago
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“People may think you're giving up, when in fact you are simply giving in to the reality of your new life.”
Toni Bernhard “How to Be Sick: A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers”
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fernshawart · 2 years ago
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Prompts to develop a cane user character
Hey there ! You may know me for this post, how to write a cane user character :
Over the past year, this post has gathered quite a lot of traction and people seemed to really enjoy it, and I thought I could do more to help all of my writer friends out there ! This time, I decided to give you a bunch of situations a cane user may face to give you some directions to go with your story, and a few exemples to add-on to the idea !
These are overall very focused on young cane users because that's what I am, but I feel like they can mostly be used for characters of all ages.
The character just got their cane. How do they react to it ? The way someone first reacts to getting a cane can say a lot about them. Exemples :
- They don't see it as a big deal, mostly like yet another test to see if something may work. It's kinda like swallowing a pill when you're sick and thinking "here goes nothing". After that, you can also develop on them being very pleasantly surprised that it worked or to stay with the nonchalant style, make them think "oh. It actually worked. Guess I'll be using that from now on"
- They get uncomfortable. They don't want to be seen as weak and look at them using a cane as a kind of failure to be normal. They may even refuse to use it despite clearly needing it out of pride.
- They get extremely excited and immediately try to make it THEIR cane. If it's a metal cane, they play around with the sliding part and move it around a bunch to see how it works. They may try to play with it like a sword to get used to having it in hand (and may even accidentally break stuff with it). If they like colorful outfits, they may doodle on it or add a bunch of stickers/charms to it.
- They take it in front of a mirror and try to pose with it to fully comprehend that this is them now. They can struggle with their vision of themselves because seeing this weird stick always with them now is really weird. But on the other hand, you can also make them try a bunch of poses and have them think "wait ... This is actually really cool. I love how I look now"
See how they react to other people's looks. If a character has a cane, especially when they're young, they're bound to get weird looks. There's always someone looking at you obviously thinking "Why the hell are they using a cane, they probably don't need it" or "Oh no, poor them, they don't deserve to be in so much pain..." What's their reaction to it ? Exemples :
- They get angry. They confront the people staring at them with a "what are you lookin' at, fucker ?!" or just glare at them. They do NOT want to be pitied.
- They get playful and try to act as if these people are only interested in them by their physique. "Oh, I know I'm good looking, but you can stop staring at me darling~" if your character is kind of a classy cane user, it gets really fun to play around it and after a while, their confidence may get a real characteristic of theirs.
- They feel miserable. They don't want to be pitied just because they exist. They're walking outside for five minutes to get groceries and people are pitying them, and that hurts.
- They really don't care. They've seen it all, and don't let the stares affect them anymore. If they did, it would probably drive them mad.
One thing that happens ALL THE TIME with canes is that they fall. And overall, it's really funny to watch. Watching a cane fall down five times in a row is an embarrassing situation and can make some fun interactions ! Exemples :
- The cane user is trying to have very serious talk with someone else. They walk towards them, sits down in a chair, glares at them, puts their cane down against the wall and ... It falls. They put it back. And it falls. They can stay as serious as they want, the other person in front of them is no longer afraid of them.
- The cane user is taking someone on a date at a fun restaurant. They try to sit down on their chair and put their cane away and it falls repeatedly and they start panicking to make it stay up. Their date is very amused by the situation and finds it cute and/or charming.
- The cane user puts their cane against the wall and it falls. Their friend immediately goes to pick it up, but they stop them from doing so by saying something along the lines of "Don't bother. It won't stay up." Or "Heh, it can't fall any lower now."
Oh no, someone is trying to steal your character's cane for some reason ! Maybe it's because they think it was left behind by someone else ? Maybe it has a high market value because it's made of gold ? Any way, they will have to do something about it. Exemples :
- they grab the cane back and just beats the crap out of the thief. You know, it's not rare to see stories where grandpas use their cane to hit people as a joke. But it works ! It's a heavy stick, and often made of metal. You're bound to get some good hits with that.
- They immediately panic and/or cry. Canes can be extremely precious to someone, often because of emotional value. It's something you wear every day, you can easily get attached to it. A lot of people even decorate it, so loosing something you crafted yourself hurts.
- They heavily play the victim to either make the thief regret their action, or people get on their side. It can stem from a genuine emotion, but also from acting if they want to just use the situation to their advantage. Either way, if someone has the audacity to steal from a poor "defenseless" disabled person, the crowd will most likely help them.
- They can just ... Not care much. I mean yeah it was stolen and it sucks but you know, most canes cost what. 12$ ? They're annoyed but they won't make too much of a fuss about it, and running to catch the thief may not be worth it if their legs aren't really healthy.
You know, if your cane user is a little young, some people are bound to think that they are "too young to be disabled". How do they react to that ? Exemples :
- They heavily mock the person who said that. What, just because you think someone is too young to be disabled, they're no longer disabled ? Ha, I wish it could work like that !
- They reply with a good old "If I break your legs, I guess you'll still be able to walk ? Cuz you look too young to be disabled too."
- They get doubts and question if they're really disabled enough to wield a cane. Usually, people only use it when they have big problems or when they're old ... Maybe that person's right ... (No they're not, of course)
- They get extremely serious and explain their situation is nothing to be discussed by people won't don't know them personally.
And that's it for today ! I hope you enjoyed this little guide <3 if this gets a bit of traction as well, I may write more in the future ! Good luck to all of the writers ~
Oh and one more thing ! Feel free to link your stories down below for everyone to look, will it be a Tumblr post, an AO3 link, a google doc ... I love to see your creations, and I think sharing ideas with people is a GREAT way to develop more varied representation.
And if you want to thank me in a way or another, you can always take a look at my art on Twitter (@FernShawArt) !
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thedisablednaturalist · 11 months ago
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Guys I get that *some* mental illnesses get worse if you push through symptoms. My post was about the overall mental health movement and because most mental illnesses benefit from exercise/pushing through anxieties and taking care of yourself most people assume that physical disabilities/chronic illnesses all benefit too and that rest is bad for us. That if we can't take care of ourselves we aren't trying hard enough. I am not saying people should push through fucking epilepsy. Every reply on that post is some sort of "um but you're wrong about *specific illness*, not derailing! Just making people aware about mental illness!" And now that post, and my words, are getting turned into positivity and awareness not for physical disabilities, but for mental illness. Even taking my words: Respect our Rest, for autism and adhd. Not that positivity for this is bad, but that the post is becoming co-opted. I didn't want to say anything at first because I did mention mental illness in that post and I always encourage discussion, but this is getting ridiculous. Everyone is now talking about mental illness and not physical disabilities.
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thecouncilofidiots · 4 months ago
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Fuck... needed this today, thank you <3
hi, you there who are or are thinking about spending all day in bed, it’s okay, I’m not telling you to get up. I’d just like to do a quick check in to make sure you’ve got everything you need to be comfortable and safe.
Have you gotten up to take any meds you need?
Do you need to open or close your windows or curtains/blinds to make your environment nicer? (Fresh air, keep the cold out, sunlight/darkness)
Do you have a water bottle or a glass of water easily accessible? (Can also be juice, cordial, a meal replacement drink or anything else)
Do you have any over the counter or prescription as required meds you might need, like painkillers or anti nausea meds?
Is your phone or laptop charged?
Are you wearing comfortable clothing?
Do you have enough blankets/pillows to be warm and comfortable?
Do you have any snacks like fruit or chips or muesli bars in case you can’t get up to make a meal?
Are you able to change positions in bed (or sit up if you’re able)?
Do you have any regulation tools like fidgets, ear plugs, or journaling/art books or low energy hobbies you might want?
Are you being gentle and patient with yourself and your body today?
Thanks for doing this check in with me. I like to have some of these things prepared on my nightstand, or all together in the same space in my room so I don’t have to do as much work on low energy days. It can also help to have someone else prepare or get these things for you if you’re unable. Hope you have an uncomplicated day.
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bookishdiplodocus · 3 months ago
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The Neurodivergent Writer’s Guide to Fun and Productivity
(Even when life beats you down)
Look, I’m a mom, I have ADHD, I’m a spoonie. To say that I don’t have heaps of energy to spare and I struggle with consistency is an understatement. For years, I tried to write consistently, but I couldn’t manage to keep up with habits I built and deadlines I set.
So fuck neurodivergent guides on building habits, fuck “eat the frog first”, fuck “it’s all in the grind”, and fuck “you just need time management”—here is how I manage to write often and a lot.
Focus on having fun, not on the outcome
This was the groundwork I had to lay before I could even start my streak. At an online writing conference, someone said: “If you push yourself and meet your goals, and you publish your book, but you haven’t enjoyed the process… What’s the point?” and hoo boy, that question hit me like a truck.
I was so caught up in the narrative of “You’ve got to show up for what’s important” and “Push through if you really want to get it done”. For a few years, I used to read all these productivity books about grinding your way to success, and along the way I started using the same language as they did. And I notice a lot of you do so, too.
But your brain doesn’t like to grind. No-one’s brain does, and especially no neurodivergent brain. If having to write gives you stress or if you put pressure on yourself for not writing (enough), your brain’s going to say: “Huh. Writing gives us stress, we’re going to try to avoid it in the future.”
So before I could even try to write regularly, I needed to teach my brain once again that writing is fun. I switched from countable goals like words or time to non-countable goals like “fun” and “flow”.
Rewire my brain: writing is fun and I’m good at it
I used everything I knew about neuroscience, psychology, and social sciences. These are some of the things I did before and during a writing session. Usually not all at once, and after a while I didn’t need these strategies anymore, although I sometimes go back to them when necessary.
I journalled all the negative thoughts I had around writing and try to reason them away, using arguments I knew in my heart were true. (The last part is the crux.) Imagine being supportive to a writer friend with crippling insecurities, only the friend is you.
Not setting any goals didn’t work for me—I still nurtured unwanted expectations. So I did set goals, but made them non-countable, like “have fun”, “get in the flow”, or “write”. Did I write? Yes. Success! Your brain doesn’t actually care about how high the goal is, it cares about meeting whatever goal you set.
I didn’t even track how many words I wrote. Not relevant.
I set an alarm for a short time (like 10 minutes) and forbade myself to exceed that time. The idea was that if I write until I run out of mojo, my brain learns that writing drains the mojo. If I write for 10 minutes and have fun, my brain learns that writing is fun and wants to do it again.
Reinforce the fact that writing makes you happy by rewarding your brain immediately afterwards. You know what works best for you: a walk, a golden sticker, chocolate, cuddle your dog, whatever makes you happy.
I conditioned myself to associate writing with specific stimuli: that album, that smell, that tea, that place. Any stimulus can work, so pick one you like. I consciously chose several stimuli so I could switch them up, and the conditioning stays active as long as I don’t muddle it with other associations.
Use a ritual to signal to your brain that Writing Time is about to begin to get into the zone easier and faster. I guess this is a kind of conditioning as well? Meditation, music, lighting a candle… Pick your stimulus and stick with it.
Specifically for rewiring my brain, I started a new WIP that had no emotional connotations attached to it, nor any pressure to get finished or, heaven forbid, meet quality norms. I don’t think these techniques above would have worked as well if I had applied them on writing my novel.
It wasn’t until I could confidently say I enjoyed writing again, that I could start building up a consistent habit. No more pushing myself.
I lowered my definition for success
When I say that nowadays I write every day, that’s literally it. I don’t set out to write 1,000 or 500 or 10 words every day (tried it, failed to keep up with it every time)—the only marker for success when it comes to my streak is to write at least one word, even on the days when my brain goes “naaahhh”. On those days, it suffices to send myself a text with a few keywords or a snippet. It’s not “success on a technicality (derogatory)”, because most of those snippets and ideas get used in actual stories later. And if they don’t, they don’t. It’s still writing. No writing is ever wasted.
A side note on high expectations, imposter syndrome, and perfectionism
Obviously, “Setting a ridiculously low goal” isn’t something I invented. I actually got it from those productivity books, only I never got it to work. I used to tell myself: “It’s okay if I don’t write for an hour, because my goal is to write for 20 minutes and if I happen to keep going for, say, an hour, that’s a bonus.” Right? So I set the goal for 20 minutes, wrote for 35 minutes, and instead of feeling like I exceeded my goal, I felt disappointed because apparently I was still hoping for the bonus scenario to happen. I didn’t know how to set a goal so low and believe it.
I think the trick to making it work this time lies more in the groundwork of training my brain to enjoy writing again than in the fact that my daily goal is ridiculously low. I believe I’m a writer, because I prove it to myself every day. Every success I hit reinforces the idea that I’m a writer. It’s an extra ward against imposter syndrome.
Knowing that I can still come up with a few lines of dialogue on the Really Bad Days—days when I struggle to brush my teeth, the day when I had a panic attack in the supermarket, or the day my kid got hit by a car—teaches me that I can write on the mere Bad-ish Days.
The more I do it, the more I do it
The irony is that setting a ridiculously low goal almost immediately led to writing more and more often. The most difficult step is to start a new habit. After just a few weeks, I noticed that I needed less time and energy to get into the zone. I no longer needed all the strategies I listed above.
Another perk I noticed, was an increased writing speed. After just a few months of writing every day, my average speed went from 600 words per hour to 1,500 wph, regularly exceeding 2,000 wph without any loss of quality.
Talking about quality: I could see myself becoming a better writer with every passing month. Writing better dialogue, interiority, chemistry, humour, descriptions, whatever: they all improved noticeably, and I wasn’t a bad writer to begin with.
The increased speed means I get more done with the same amount of energy spent. I used to write around 2,000-5,000 words per month, some months none at all. Nowadays I effortlessly write 30,000 words per month. I didn’t set out to write more, it’s just a nice perk.
Look, I’m not saying you should write every day if it doesn’t work for you. My point is: the more often you write, the easier it will be.
No pressure
Yes, I’m still working on my novel, but I’m not racing through it. I produce two or three chapters per month, and the rest of my time goes to short stories my brain keeps projecting on the inside of my eyelids when I’m trying to sleep. I might as well write them down, right?
These short stories started out as self-indulgence, and even now that I take them more seriously, they are still just for me. I don’t intend to ever publish them, no-one will ever read them, they can suck if they suck. The unintended consequence was that my short stories are some of my best writing, because there’s no pressure, it’s pure fun.
Does it make sense to spend, say, 90% of my output on stories no-one else will ever read? Wouldn’t it be better to spend all that creative energy and time on my novel? Well, yes. If you find the magic trick, let me know, because I haven’t found it yet. The short stories don’t cannibalize on the novel, because they require different mindsets. If I stopped writing the short stories, I wouldn’t produce more chapters. (I tried. Maybe in the future? Fingers crossed.)
Don’t wait for inspiration to hit
There’s a quote by Picasso: “Inspiration hits, but it has to find you working.” I strongly agree. Writing is not some mystical, muse-y gift, it’s a skill and inspiration does exist, but usually it’s brought on by doing the work. So just get started and inspiration will come to you.
Accountability and community
Having social factors in your toolbox is invaluable. I have an offline writing friend I take long walks with, I host a monthly writing club on Discord, and I have another group on Discord that holds me accountable every day. They all motivate me in different ways and it’s such a nice thing to share my successes with people who truly understand how hard it can be.
The productivity books taught me that if you want to make a big change in your life or attitude, surrounding yourself with people who already embody your ideal or your goal huuuugely helps. The fact that I have these productive people around me who also prioritize writing, makes it easier for me to stick to my own priorities.
Your toolbox
The idea is to have several techniques at your disposal to help you stay consistent. Don’t put all your eggs in one basket by focussing on just one technique. Keep all of them close, and if one stops working or doesn’t inspire you today, pivot and pick another one.
After a while, most “tools” run in the background once they are established. Things like surrounding myself with my writing friends, keeping up with my daily streak, and listening to the album I conditioned myself with don’t require any energy, and they still remain hugely beneficial.
Do you have any other techniques? I’d love to hear about them!
I hope this was useful. Happy writing!
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grandmatapati · 1 year ago
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As soon as I read this article I ordered a copy for myself. I prefer physical books for cookbooks so I am waiting for it to arrive next Monday. (I enjoy flipping through, discovering interesting recipes and seeing the pictures without being online.)
This is the book I've been dying to read, as I told Jules when I found him on twitter. He's very kind and says he looks forward to hearing what I think after I've had a chance to read and use it.
Before this the only thing I found was a guide to baking with brain fog on the King Arthur's flour site. Useful but I needed so much more.
I look forward to more volumes, such as Cripping Your Outdoor Kitchen. I'm guessing this first book will start many conversations and that will lead to a mass sharing of tips and tricks throughout the Disability Universe. We Spoonies already discuss getting calories in on days when it seems impossible. But this makes me think that cooking more often may be doable with a bit of guidance.
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chaotic-archaeologist · 9 months ago
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Tips for finding/writing a research paper? From a spoonie who's gone through 2 pages of suggestions their professor has rejected willing to pick anything at this point even if i'm stuck with it another 8 weeks
The first and best advice I can give you is go to this professor's office hours. What determines a good topic for a research paper is highly dependent on whatever the class is and the professor teaching it. This prof should be willing to work with you to guide you in the right direction.
If they've given you feedback on why your suggestions have been rejected, you need to keep those in mind when proposing something else. The process might not be about coming up with an entirely new idea, but tweaking a preexisting one so that it meets the parameters. Look at the syllabus and any assignment briefs the professor has given you to make sure you're hitting all of the requirements.
Additionally, if your disability is part of what's making this difficult, you might consider bringing that up. You don't have to disclose the exact nature of your disability, but if you can articulate the effect it's having on you (makes it difficult for me to do xyz) it might help this professor support you. A plan for completing this paper can include steps that would help you like accountability check ins or extended deadlines.
All of that being said, a good undergraduate level research paper needs two things: 1) an existing body of literature/source material, and 2) a hypothesis that can be applied to multiple pieces of media from that genre. From there, you need to show you can apply broad theoretical concepts to multiple sources, using analysis to construct an argument based on your hypothesis.
I would advise against just picking a topic to get it over with. Writing about something you're not at least a little bit interested in makes the process much harder. Interest also provides a sense of focus that can be vital for the analysis part of research—you need that focus to hone in on something and come up with ideas.
-Reid
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cripple-cryptid · 3 months ago
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If I continue doing tips, guides, and long posts about my journey with being chronically ill, would anyone be interested in my making a master post? I'm asking this now to see if I should continue these things.
Does anyone maybe have things they want me to talk about? Or questions?
Maybe then I'll have some more stuff to put into a master post then, haha.
There will probably be 2 tags I'll use for most of it. Chronic Wisdom will return, but also Hermit's Guide to Being Sick is the other.
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chronicallykiki · 6 months ago
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✅ QUEST COMPLETE ✅ 🦮 Guide Dogs 250 Challenge 🦮
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You guys are AMAZING!! We hit our £750 goal, and as I pledged to sponsor all three puppies-in-training, that means that, together, we've raised...
£1080
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I just can't thank you all enough for all your love, support, and encouragement, during this event. It's been a blast, and I'm still completely blownover by the fact we reach even £250, let alone the £750!!
When I say "you guys are amazing", I mean it with every fiber of my being!! 💖 I hope you all understand how very loved and important you are.
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Sponsorship money has already been sent, and I'm awaiting the welcome packs. In the meantime, please enjoy all their cutness in the video above.
You'll notice the sponsor puppies themselves have changed, and I did ask Guide Dogs about this (see Discord screenshot below). The jist of it is that new sponsors are introducted in January, May, and September. I had no idea, and I'm so sorry to anyone disappointed that I've been unable to sponsor Hazel, Frank, and Walter specifically.
However, please don't be too disheartened, as all the money raised through the sponsorships benefits the cause, regardless of selected pup. And lets face it, every single pup is adorable and well worth a sponsor. 😉
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y-rhywbeth2 · 11 months ago
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Gods & Clergy: Selûne
Link: Disclaimer regarding D&D "canon" & Index [tldr: D&D lore is a giant conflicting mess. Larian's lore is also a conflicting mess. You learn to take what you want and leave the rest]
Religion | Gods | Shar | Selûne | Bhaal | Mystra | Jergal | Bane #1 | Bane #2 | Bane #3 | Myrkul | Lathander | Kelemvor | Tyr | Helm | Ilmater | Mielikki | Oghma | Gond | Tempus | Silvanus | Talos | Umberlee | Corellon | Moradin | Yondalla | Garl Glittergold | Eilistraee | Lolth | Laduguer | Gruumsh | Bahamut | Tiamat | Amodeus | The rest of the Faerûnian Pantheon --WIP
I should probably compile some lore on gods who aren't evil messes for a change... Then right back into the evil nonsense with Shar.
Worshippers & Clergy: All are equal and personal freedom and tolerance of other ways of life is very important. Also something-something motherhood. Now if you'll excuse me: "o, White Night Lady, guideth mine eye to wherever the hells mine keys that I had literally five seconds ago art?"
Silverstars: You can make an amazing amount of things out of moonlight, really.
Selûne: The Anti-Shar. She's kind of a spoonie.
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"Let all on whom Selûne's light falls be welcome if they desire. As the silver moon waxes and wanes, so too does life. Trust in Selûne's radiance, and know that all love alive under her light shall know her blessing. Turn to the moon, and she will be your true guide. Promote acceptance and tolerance. See all other beings as equals. Aid fellow Selûnites as if they were your dearest friends." - Selûne's Dogma.
Selûne's worshippers come from all sorts: people who work the night shift, and other people seeking protection from Shar; travellers and navigators who will be navigating using the night sky; sailors; female mages; diviners and people hoping for a glimpse of the future; and lycanthropes who want to resist the influence of their curse. Selûne is also considered associated with femineity and is something of a mother goddess, and is worshipped by women, particularly mothers and couples trying to conceive.
In every day life one might call on her if they're lost, or to find misplaced objects and such - for example, where the hells have the house keys gone?
Female mages born under a full moon are considered to carry her blessing.
The moon waxes and wanes and may show itself in a vast array of colours and shapes; so is the moon goddess as inherently mercurial. Her faces are many and never the same, and so her follows are many and no two are the same.
There are only a few concrete rules of the faith. All people are equal and should be made welcome and treated with dignity. Shar's predations must be combated wherever you uncover them. One should always give healing freely to those who need it. The lonely and ostracised should be offered friendship and care.
The faith is extremely, proudly diverse, and Selûne places very few demands upon her followers in exchange for her blessings. There is no "right" way to worship the Moonmaiden, individuality and customisation in religious practices in encouraged.
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Her clergy promotes acceptance of different ways of life and follows a lose hierarchy with emphasis on personal freedom.
The clergy have no uniform, save their holy symbol (a pair of eyes surrounded by seven stars, in silver), and they dress how they see fit. Moonstones are popular. When dressed for battle they can often be recognised by the iconic weapon known as the moon's hand - a footman's mace with a smooth head.
Even her temples follow no set structure, one may find a temple of the Night White Lady is a massive cathedral, a small roadside shrine, or a circle of standing stones on top of the village hill where her followers go to dance under the moonlight. "Anywhere the full moon shines is a place for [worshipping] Selûne."
Clergy are known collectively as Mooncloaks (informally) and Ladyservants (formally). A variety of titles exist within the church. The loose ranks of experience are as follows: those who are interested in joining but have not yet entered training are Postulants, Novices are referred to as the Called. Runrae (singular: Runra) are fully trained priests.
One of the Called becomes a Runra when they are assigned a simple task in the form of a low-level quest where they're expected to show that they have learnt the lessons of their faith. When successful, Selûne contacts them in their dreams via a vision, and they are a priest.
Ranks ascend into Alrunrae, Tenembrae, Sartembrae, Trintelrae, Aumrae, and finally the Calunalae.
A Calunala is an independent agent who maintains close personal ties with the goddess, essentially serving as her secret agents in the war against Shar.
Priests tend to wander Faerûn, making a living by offering their services as navigators (especially if you're traveling by night) and fortune tellers (there are no diviners more accurate than a Selûnite). There are no restrictions about whatever work they want to do to support themselves, and travelling mooncloaks can be found in part time jobs blacksmithing, weaving, farming, serving tables... They're also prepared to fight against Sharrans and lycanthropes, whenever and wherever they cause harm.
Not infrequently, a mooncloak will receive missions and holy duties - sometimes from higher ranking priests, and often from Selûne herself. Whenever she sets them a task, the Moonmaiden usually grants them temporary spells and abilities to aid them. With their siblings in the faith alway ready to aid them, and their goddess personally lending her aid, Selûne's clergy often give the optimistic opinion that "The Moon waxes and wanes, and fortunes of the holy folk of the Moon rise and fall - but the Moon is ever with us, sailing on no matter how dark the sky."
Selûnites traditionally charge very little for their services, save for a place to sleep for the night and a warm meal, and maybe any few coins you can afford to spare. They have a reputation for kindness, open-mindedness and generosity that makes their faith very popular.
Selûne personally encourages her clergy to be self-reliant, kind and humble, but also wants to see them live lives they're happy in.
As stated, Selûnite rituals are highly customised and tend to be unique to the priest in question. Generally they are performed in the open under the moonlight and involve dancing and meditating. Offerings of milk or wine are poured on Selûnite altars during the full and new moons. If the priest is in the godess' good graces then she will cause the libation to transform into moonfire - an "opalescent, glowing fluid with the consistency of custard." It's described as feeling silk-soft to the touch. The touch of the moonfire as it flows down the altar may enchant objects or bestow powers upon the things and beings it touches, as per the will of Selûne (it can also destroy undead). On ritual nights, her priests cast commune in order to socialise with their goddess and reaffirm their personal connection with her.
There are two holy days: the Mystery of the Night and the Conjuring of the Second Moon.
The Mystery of the Night is performed once a year by every priest (it has no set day, it occurs whenever the priest in question holds it). The priest lies before an altar of the Moonmaiden and slips into a trance. They fly upwards and spiral the moon, communing with Selûne via an exchange of visions. This ritual is extremely taxing, but the priest will quickly recover with rest.
The Conjuring of the Second Moon occurs once every four years during Shieldmeet, and is generally a day when the church goes to war with the church of Shar. To aid them, priests summon Shards to do their beings - celestials who take the form of blue-haired, winged warrior women who serve Selûne (equivalent to planetars in power). At the end of the day, one mortal priestess will leave with them to join their ranks.
Religious orders in service of the Moonmaiden include the Swords of the Lady (also known as "Lunatics" behind their back). They're a fanatical order of warriors dedicated to combating Shar and her worshippers.
The Oracles of the Moon are an organisation of female mages, specialising in divination, who dedicate themselves to Selûne's service.
The Order of the Sun Soul is a monastic order that worships Selûne and Lathander.
Specialty priests are known as Silverstars.
They can see in the dark perfectly for up to 30ft.
They can create blades made of moonlight, wieldable only by the silverstar that made it. The blade causes no visible damage to living beings, but it does sap their life force and disrupt magic, preventing mages from casting. The flesh of undead visibly melts away under its touch.
They can raise or lower the levels of bodies of water, akin to the effects of the tide.
They can fire small meteors (shooting stars) from their hands, in an effect much like fireballs. They explode on impact.
A Silverstar infected with lycanthropy has control over their transformations, and Selûne protects them from being damaged by silver.
They can also shape moonlight into a wall - the wall is intangible, but it illuminates its surroundings, dispelling magical darkness. It will cause harm to any with evil intent, and followers of Shar (or Umberlee), as well as any undead being that passes through it. Magical items on the person of an individual who passes through will glow red, drawing attention to them, and magical potions will explode.
Stairs and bridges can also be crafted from moonlight, which can reach up to 15ft in length. While standing on the bridge, individuals are protected from enchantments, life-draining effects and missiles. It's impossible to knock them off of the bridge.
Finally they can shape the light into a net that protects a specific area. The strands are visible only to the priests, the goddess and those under the spell's protection. Everything else - intruders, weapons and magic - that enters the area is forced back to its point of origin. Attacks will be rebounded.
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Selûne is a Chaotic Good deity. Her realm is in the Gates of the Moon, on the plane of Ysgard.
She doesn't care about ritual and dogma or how observant of these practices her followers are, as long as they are able to support themselves, fulfilled in life and will offer kindness to others. The spirit of faith is more important to Our Lady of Silver than the scriptures of religion.
Sometimes she is taken by a joyful, energetic mood. Sometimes she is a quiet, caring and maternal figure, prone to poetic moods. Whichever mood she's in, she carries herself with an underlying sense of grief that seems millennia old. Selûne is slow to anger and prefers to avoid fights, but that changes rapidly when she comes into conflict with her sister, and there she displays a side to herself that is much more warlike. She also opposes Umberlee on behalf of sailors and others who live by the sea. When in conflict with her enemies Selûne is merciless.
Selûne was (apparently) born of the primordial essence of the universe, one half of the Two-Faced Goddess with her twin, Shar. Together they created the planetary bodies of the solar system, including the Earthmother, Chauntea.
When Chauntea begged for warmth to nurture life upon her, the Two-Faced goddess experienced conflicting desire for the first time. Selûne was willing to grant the Earthmother her wish, but for Shar, the very concept was a horrifying antithesis to her very being.
The argument between the two spawned the concepts (and gods) of destruction; such as war, disease and death/murder. Eventually, Selûne reached into the Elemental Plane of Fire and drew a portion of it into Realmspace, and fashioned it into the sun - a process that burned her.
Shar's rage doubled, and she began to snuff out every light she could find in the universe, causing Selûne to tear out a part of her own essence and fashion it into a weapon that she threw at Shar in defence of the newborn life of Realmspace. This portion of Selûne passed through Shar and formed itself into the Weave - the goddess Mystryl (who would one day be called Mystra). Mystryl sided with Selûne, and Shar was forced to concede defeat now that she was utterly outnumbered.
This battle has left Selûne permanently weakened, and her strength waxes and wanes much like the phases of the moon. The two sisters continue their argument - and Shar is boldest when her sister is at her weakest.
The Moonmaiden's avatar takes the form of a human woman, with various appearances, her age generally conforming to one of the maiden, mother, crone concepts. In one of her more matronly, middle-aged forms she enjoys walking the realms, and curiously has decided to open an inn in Waterdeep using this form, unbeknownst to many. Her apparent health depends on the state of the moon, while it wanes she appears sicker and closer to death. Regardless of its phase, she glows faintly with moonlight in the darkness.
Her lesser manifestations include dancing trails of little lights known as "moondust" or "moon motes." She manifests these to people who are lost at night, or traveling over dangerous ground that they can't perceive. She will also provide them for her faithful, when they require a light source to perform an important task but have no way to see.
Her messengers and servants include owls, weredragons and other lycanthropes and shapeshifters, and her Shards.
For a while, prior to the Time of Troubles, she worked under the goddess of love, Sune. She later went her own way and resumed operating as an independent deity, but maintains a close relationship with Sune and Lliira.
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writelykeekee · 1 year ago
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I'm an occasional cane user, and I love, love, love, this! Especially about the canes falling 😅 It really is all the time!
How to write a cane user character
(Written by a cane user)
A few months ago, I wrote a small guide on good disabled characters and why they were good that gathered quite the attention, and I thought that doing another more specific guide this time would be interesting for writers or just people that are curious ! This guide will include general informations, some things to do, some things to avoid and some ideas that might revolve cane users's lives.
Things to know about cane users
Cane users are pretty diverse, and putting us in little boxes usually isn't the best idea if you want to make a character that has substance and isn't just "the disabled one". Here some infos about cane users that might be helpful knowledge !
Canes don't have ages. Most cane users in media are portrayed to be old, but truly, anyone can have the need to wield a cane ! I've been using mine ever since I was 17.
Can users can have a large variety of problems for their canes. Some canes are used to avoid pain from effort. Some canes are used for balance purposes. Some canes are to make walking less exhausting (works the same as walking sticks !) And sometimes, it's multiple problems at once.
Not everyone needs their cane 24/7. Some always need it, some can make small efforts without it but overall often need it, and some people, like me, can spend quite a lot of time without it. I almost never use my cane in my house, and mostly take it outside !
People with canes can run. We're not necessarily slow, I'm even faster than a lot of my friends.
Not using a cane can come with consequences, but not always. Some people might be able to walk without a cane but then suffer horrible consequences, but for others, canes are just a commodity for specific occasions.
Canes don't have to be looked down upon. Look at some characters with canes that look cool as hell ! Arsène Lupin, Roguefort Cookie, Brook ... Their canes serve their style !
We can be pretty healthy. Some people can have canes just because they were born with a bent leg and that's it. Our cane doesn't define our health status.
Canes aren't a curse. Think of them as something positive. It's a tool to make our lives better. You don't see someone sitting on a chair and think "awh, it's sad that they need a chair". It's more something like "hey it's cool that this chair is here so they can sit down"
Things to do
Make them use their cane. And when I mean use, I mean that canes are just funky long sticks usually made out of metal. Have fun with it ! Let them use it as a weapon ! Trust me, one hit in the knees with a cane and you're DOWN. Use it to reach stuff that's too high for everyone ! Have fun. Be creative.
Let them decorate their cane. It's an extension of their body ! You usually put on clothes that you like, don't you ? It's the same for a cane. If they like cutesy stuff, let them paint in it pastel colors ! If they like a more flashy style, add some stickers on it ! If they're a fancy person, give them a beautiful crafted cane with jewels on it !
You can make them a little shy or uneasy about their cane. Some people don't feel worthy of confident enough to wield one. It's not rare to see people think they're "not disabled enough to do so"
But on the other hand, you can do the complete opposite !! Make them proud of that cane ! Make them act like they're feeling pretty and more confident with it ! One thing i like to think about with my own cane is that I look like a cool gentleman. That boosted my confidence immensely.
Things to avoid
Don't make it their whole world. And by that, I do not mean that their cane shouldn't be a defining trait of their personality. Think of Toph from ATLA. She is blind, and you usually can't think of her character without describing her as blind. However, that isn't her entire personality trait. Make cane users have a goal in life, friends who enjoy them for who they are and not just pity them, have fun ... Don't just make them the disabled one.
Don't try to make the character's life just a plain disaster unless it's the focus of your story and you really know what you're talking about. Having a character who's always in pain, who feels bad about relying on their cane and/or who's angry at the entire world for being disabled is a REALLY tricky subject to use if you don't want them to be either a mass of unhappiness and angst for no good reason or some inspirational porn of the character who inside is deeply tortured but outside keeps up a facade because they shouldn't cry to avoid making others uneasy.
Do not, and I repeat, do NOT try to heal them, especially in a magical way. Bad idea. A lot of disabled people's goal isn't to be healed. It's to live a normal life. Making it so the ultimate goal for them is to be healed makes it as if they were worthless as long as they were disabled. Making their situation better physically or mentally is one thing. Curing them completely is really bad. "But some disabled folks want to be cured !" True, true. But if you are able bodied, I'm not sure if you can have the right mind to understand all of the complex details about this situation that leads to someone's life choices and the end result may look like you think the only thing that can make disabled people happy is being freed from their condition. I think it's best to just avoid it altogether. If you need a more nuanced idea, try to give them a solution that still has a few downs ! For exemple, a prosthetic that feels like a real arm, acts like a real arm and basically replaces it perfectly is a full cure. But a prosthetic that takes time to adjust to, needs repairs sometimes and doesn't look 100% like an arm can be a better narrative choice
Smaller thing, but don't make the handle uneasy to wield if you draw the character design. You can decorate most of the cane, but if you have chunky spiky decorations on the place you're supposed to clench your hand over, you're gonna hurt yourself. I've seen quite a lot of jewel handles or sculpted metal handles and usually their not good. If it's detailed metal, your hand will end up cramped in little parts and it can hurt. If it's a jewel, it's so easy for it to slip out of your hand it's unpractical.
List of tropes/ideas of scenes/details about canes to help you write new situations !
If you walk with a cane during winter, you can't put your hand in your jacket to get warm and there's a high chance your hand will get freezing. So after a long walk, you get an excuse for another character to hold their hand and warm them up.
If the handle is metallic, you get the opposite problem during summer. You can burn yourself so easy ! Easy accident if you want someone to help and get closer to the disabled person without it necessarily involving their disability.
Canes are SUPER useful when you're walking upon heights. They make things really easy, just like hiking poles on mountains ! I live on volcanoes and whenever we clim on a harsh slope, I'm always the first to get up there. Good moment for your character to get a boost of confidence if they get all the way up somewhere before their friends !
The first time using your cane feels magical. If you have chronic pains, it makes you feel like your pain disapear. If you can't walk right, it feels like everything is suddenly alright. The moment where a character chooses to wield a cane can be huge for character development. It's a moment of fear because of the impact a cane has on their appearance, but also a moment of confidence and relief.
Canes fall. All the time. And after a while, it becomes fucking comical. Trust me, putting a cane against the wall, seeing it fall and doing it three times again in a row while it doesn't want to stay up makes you embarrassed but also makes you want to laugh because of how stupid it looks.
When you get a cane, you stop being invisible. When you walk outside, generally speaking, people don't look at you. They don't care about you. But when you get a cane, people start to stare at you for no other reasons that you have a cane. Half of them are just curious, especially if you're young. The other half has a very specific look. The "oh, you poor thing" look. Which is, trust me, particularly awful to get, especially when you're just existing and doing nothing special. How does your character react to this ? How do they feel about it ?
I believe that is all I had in mind. I may add some more details in the future if I get other ideas, but this should already be a good start. I would be thrilled to answer questions if you have some, either in my askbox or through DMs.
I will tag this post with characters holding canes that aren't necessarily considered cane users but that some people may be interested in writing as such. Feel free to tell me if you'd like to see tags being added !
Edit : I'm highly encouraging everyone to look at the tag section under this post where a lot of other can users are sharing their experiences !!
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esoteric-chaos · 4 months ago
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Aphrodite Devotional and Masterpost
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About Aphrodite
"APHRODITE was the Olympian goddess of love, beauty, pleasure and procreation. She was depicted as a beautiful woman often accompanied by the winged godling Eros (Love). Her attributes included a dove, apple, scallop shell and mirror. In classical sculpture and fresco she was usually depicted nude." - Theoi.com
Aphrodite is such a well-rounded and loving goddess to work with. She is also much deeper than you think she is. Did you know she has an epithet called Aphrodite Areia? She was depicted in full armor alike Ares. Some say she is the female form of Ares himself.
Kind, nurturing, strong, powerful, and confident are all things she is and more. If you need self-love in your life, maybe even a bit of courage and strength if you want to follow her Aphrodite Areia epithet? Absolutely go for it. Terfs are NOT allowed on this blog. Aphrodite loves all, trans men, trans women, all people. I mean ALL. She has a literal child named Hermaphroditus who is intersex for instance. Aphrodite has also been dipicted with a penis named Aphroditus. Stay off my post and my blog < 3
Resources
All blogs listed have a (.) at the beginning of their name just so I do not ping and bother them. Remove when searching up on Tumblr.
The Theoi Website is chock-full of her myths, correspondences, and many other facts. Loaded with sources and amongst other things.
@.screeching-0w is a fantastic blog who put a ton of love and care into making devotional cheat sheets full of prayers, correspondences, and myths.
@.heatherwitch created a few posts on devotional acts. A small devotional acts page and a general bedridden spoonie post for devotionals if you struggle with such
Personal Content
Aphrodite Devotional Oil
Aphrodite's Hand Ritual - Aphrodite's leading hand to guide you towards better self care and self love. A fresh start to a kinder attitude towards self. (Working on post)
More content coming soon
Sources:
Links
Aphrodite Areia. (2024, July 24). In Wikipedia. https://en.wikipedia.org/wiki/Aphrodite_Areia
Looking for the rest of my posts? Check out the Masterpost
Updated 7/24/24
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fubblers · 3 months ago
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Sharing my morning routine because I think it would help my fellow spoonies.
My morning routine has become incredibly simple and low effort and doesn’t require me to get out of bed or even roll over.
I pick up my phone and:
1. Start some deep slow breaths
2. Do my daily clicks on arab.org
3. Do a duolingo lesson
The deep breaths help calm me down and start my day off on the right foot. If I wake up dreading my day, the breaths usually help.
Doing my daily clicks helps ground me. It’s a small thing I can do to help people, and it helps me keep Palestine in my mind and heart. Since I stack this habit with my deep breaths, it ends up being easy to remember and kind of meditative.
Doing my duolingo lesson is small, simple, and only takes a few minutes. And it feels like I’m productive and I’ve just learned something, even if it’s tiny.
Habit stacking is really interesting to me recently. Self care guides will say to stack complex stuff like showering, making breakfast, and journaling. But I’ve found stacking really small, simple, short tasks to be really rewarding.
So by the time I do get out of bed, I’ve already done 3 good things and started the day off right.
So if you’re really struggling with getting out of bed, feeling burned out, or managing your depression, try some tiny habits you can do in bed.
Here’s some other ideas:
3-5 minutes of “bed yoga”
Writing down what you’re going to eat for lunch today
Putting on a meditation video
Progressive muscle relaxation (tensing your muscles and then relaxing them)
Checking your phone calendar
Answer a single email/DM/other important message
Collect your dailies for a phone game you like
Set a reminder/timer for a task you’ll do later
Do a grounding exercise
Rub lotion on your hands
Use a disposable no-water toothbrush (if you often struggle to brush your teeth)
Rub a wet wipe under your arms (if you often struggle to bathe)
Sit up and change your shirt (you’d have to put it in reach the night before)
Wiggle your fingers and toes
A lot of self care and self help ideas are unrealistic for disabled people. So instead, find small tasks to do before you’ve set a single foot out of those comfy covers.
This may not work for everyone of course. But if you have any ideas, suggestions, or find this works for you, I’d love to hear it!
(By the way I keep all these habits on a to do list app too so it’s even easier to remember)
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