#so chronic pain

[nightlocktime]

Hey guess who is a walking chronic pain machine and just find out today!!!

[butchfalin]

[post-grammatic-stress]

If you've ever told a person who's had to be bedbound for a period of time that you wish you could "just stay in bed", DO IT.

Stay in bed. For days. But don't get up if someone needs you to, or you get bored, or you get antsy. Don't do anything other than rest. Just lie in your bed, whether you need to get stuff done around the house or socialize or anything else "productive". You'll have to cancel on people, you'll disappoint them, they won't understand.

And if you're thinking, "well, i CAN'T just be in bed. There's stuff that has to be done - I have plans", maybe ask yourself why you assumed a disabled person doesn't have plans or things to do or desires.

[colourmeastonished]

Body swap movie where one of them has invisible disabilities and when the other one lands in their body they immediately collapse catatonic on the floor from the pain and fatigue and the first one is like 'oh damn guess I don't have to worry that I'm faking it anymore'

[an--artistic--autistic]

i am unreasonably proud and excited about this

[im-traumatised]

Living with chronic pain.

[druid-for-hire]

[images ID: three images of a comic titled "one must imagine sisyphus happy" by druid-for-hire. it is a visual narrative beginning with someone with wrist pain (depicted by bright orange nerves) working at a drafting table. the reader is shown the same wrist as the person uses it for many everyday tasks such as carrying a grocery basket, pushing elevator buttons, typing, and doing dishes, until the pain dissolves all the panels into chaos. the person then performs several physical therapy exercises until the pain subsides. they sit back down at a desk with their laptop, sigh, and begin typing. a small spark of pain reappears. end id]

a fun little piece i made during the semester and submitted into our school comic anthology! (which you can buy at the Static Fish table at MoCCAFest in NYC ;] ). it's about artists and injury

[i-say-stupid-things]

psa: you actually are worth it. you are worth the trouble. you are not too much to put up with. your disability doesn’t make you unlovable. you’re not too much of a burden to “put up with”.

you are amazing and lovely and the right person will come and see just how wonderful of a person you are. your disability changes nothing about that

[ancient-reverie]

a moment of silence for all us disabled ones who had to watch each of their friends move on with their lives without you and get jobs, go to school, have partners come and go, get engaged and move house etc.

shout out to my fellow struggling people who are still sitting in the same bedroom they grew up in. the ones who can't get a job, can't make new friends, can't find a partner or partners, can't move house and can't go to school.

I hope one day we can all find someone to at least sit with us in our rooms. I see you and I understand... and I'm sorry we can't be that person for each other

[decora-kai]

Ive seen posts about how disabled people should be able to have hobbies and how we should be able to do things that we like if we enjoy it and if it doesnt hurt us, and yeah I totally agree, but like unpopular opinion ig, let disabled people do things they enjoy even if it hurts them.

I, as a chronically ill person, have things I enjoy doing that arent that good for my pain levels. For example, I enjoy going on walks, just for like an hour or so around my town and in the forest. I will most likely have a flare up the day after/for a couple days after and my legs will be aching most of the way through walking but I love it, not the pain but the walking and seeing places (specifically the woods, i love the woods so much omdddd). Another example is video games, which may sound like an odd thing to flare from for some, but with fast paced video games on console or pc, my fingers get very stiff and achey from moving around so much so quickly, and it tires me to have to even use my eyes sometimes but I really like playing them.

Obviously there are way more examples that I've missed but the point still gets across. Let disabled people have hobbies, even ones that may mess up their pain levels, or make them extremely fatigued etc.

[forystr]

NEW/NORMAL : a comic about becoming disabled in your twenties

My name is Fraizer, and I'm the artist behind forystr. I have Functional Neurological Disorder.

[lokilysolbitch]

i've said it already probably but ppl who don't use mobility aids. especially doctors. stop trying to get rid of other ppls mobility aid. stop making that a priority. stop it with the "we gotta get you off that [mobility aid]" "you shouldn't need to be using a [mobility aid]" "let's focus on getting you to where you don't need [mobility aid]" "a [mobility aid]? but have you tried [herb]/[medicine]/ [exercise]/[facebook hack]/[pseudoscience]/[meditation] instead?" "but you look old/cringe/weak/sick". shut up

i don't know why so many of y'all think my end goal is to stop using the thing that helps me. and i KNOW most of y'all wear glasses or contacts but you're not running around trying to find the solution to make you stop needing them. so quit doing it with every other aid just because it reminds you of old or sick people.

especially bc most of y'all don't want to have that reaction when it comes to chronic pain, fatigue or discomfort. i say "my joints hurt" you say "oh well :/". i say "i feel lightheaded all the time" you say "just push through it". i say "my stomach is at least a 7/10 on the pain scale every day" you say "are you sure it's actually that bad? maybe you're exaggerating".

but as soon as i pull out a cane, or a shower chair, or a spinny chair for when im cooking in the kitchen, and i say "finally, im getting really good help!" . that's when you care. and all you want to do is take that away as soon as possible.

you just don't want to fucking see disabled ppl be disabled.

you don't want to have to look at it. you don't want to have to listen to it. you don't want to have to be reminded of it.

but too fucking bad !! i don't care !! im naming and decorating my canes !! they will be the loudest part of my outfits !! the same will go for a rollator if i'll still need one in the future !! i'm going to talk about how i'm disabled regardless of if anyone else can hear me !! because i am !! why should i hide just because YOU don't like it !! close your eyes !!!!!!

[sillyfroggremlin]

people with chronic pain and chronic fatigue will be like why does it hurt and why am I so tired

[furiousgoldfish]

As a person who spends a lot of time lying down and rarely does any kind of activities, I come off as someone who's taking a lot of 'me' time, or a lot of 'resting' time. However I have to assert that any time I spend recovering from an activity is not 'me time' or 'resting time', it's the time that is stolen from me. I can't do anything with this time. I am in pain, I can't move, my activities are limited to 'hopelessly distracting myself so that I do not experience the full horror of what's going on in my body right now'. I don't even get to have 'me time' because of how much of the time is stolen from me.

[chronicpaingirlie]

it would be so cool if able bodied people could get it through their heads that i dont just get a little tired or hurt a little bit when i do things.

“we need to start doing xyz —” i cant “but it needs to get done” i still cant “but —” cant :)