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#she’s depressed and struggling with chronic illnesses like I am
rosicheeks · 1 month
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I get mad about Fb posts too!! I struggle with being jealous of others and it makes me hate myself. I wish I wasn't like this lol
I relate to this so much omg
#I’ve been struggling a looooot with jealousy and being envious#I think it’s just hard to see people I know thriving when I’m trying so hard to simply survive#I haven’t been able to go over to my sisters new place cause I’m just too jealous#and I HATE it cause I want to be happy for them#it’s a big thing to get a place or get married or have a baby or whatever#that’s huge and if it’s someone I know and love I want to be happy for them#but I can’t help but also look at myself and my own life#and get incredibly sad and upset that this is how my life is turning out#I wanted to do so many things with my life#but this stupid mental illness is fucking everything up#I’m just so so so sick of it#I want to live a normal life like other people I know#I went over to a new friends place and I’m still thinking about it#she’s depressed and struggling with chronic illnesses like I am#but she got married a few years ago and the husband is helping so much#they have this beautiful townhouse that I would KILL for#and they have a golden retriever#and it’s just so hard to see someone who is struggling like I am but still has all of these things#I’d fucking kill for a pet or a place of my own#I’m so SO sick of living here and not having a safe space I can go to when I need to be by myself#just having my car is such a shitty feeling#but I know I’m privileged I have a roof over my head and I have a car I can run to#I just wish I was in her position or everyone else who is in a better position/situation than I am#and I know I know it’s not all black and white I’m sure there are struggles behind the camera that I’m not seeing#but it’s still the fact that they have a place to go to or they have a dog to be with and get comfort from#it’s just so fucking hard#I can’t help compare my life to theirs every single time I see a happy post#and don’t even get me started on how much I spiral when I see they are younger than me and doing better than I am#ooooooh boy#ask
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you ever get sick and tired of thinking about how sick and tired you are of being sick and tired?
anyone have cute art of asra (the arcana), shino (naruto), or john doe (uncanny valley game) they feel like sharing?
or gush about something cool they just finished creating?
I dunno could use some. goodness.
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diegoshargrieves · 1 year
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listening to my parents talk about me is so fucking funny. "she's dealt with us for so long that at this point she's done. she's mentally checked out from having to give a shit about anyone. can you believe how corruptible she is just because she's almost an adult and she thinks that we're not her problem anymore?"
like man you are literally so close. so fucking close.
#no it's not that ive dealt with everyone for my whole life and now im selfish and dont want to give a shit about anyone anymore#its that ive dealt with everyone my entire life ive been an emotional support pillar ive been rotting in this toxic dysfunctional household#ive been a third parent ive stepped in for my dad when he spontaneously decides to be a deadbeat ive supported my mom without fail#whenever shes needed it for years. ive dealt with everyones fits of mania & psychosis & breakdowns & chronic pain & depressive episodes#ive had my mental illness trivialized and belitted and downplayed. im exhausted and traumatized and so fucking burned out#of course it looks like ive given up on everyone from the outside because im struggling !! im struggling mentally and emotionally#and its spilling out in all the wrong ways and they just see it as me letting my anger ruin my character and everyone else around me#they dont care if theres something wrong with me even though im throwing out signs and cries for help literally wherever i can#they just care that theyre affected by it and inconvenienced by my deteriorating mental condition#they think this mentally ill freak is just what i am at this point and they cant stop emotionally blackmailing me#by reminiscing about how i used to be so kind and optimistic. i wish they would just fucking see me for once#ive played the role of the good emotional support eldest daughter my entire life. why didnt they think it would blow up at some point#and when i have tried opening up in moments of severe emotional vulnerability they just throw it back in my face later on#while simultaneously telling me i just need to change my outlook on life because im still young and cant define myself by childish problems#mom you are depressed and anxious you should recognize it better than anyone. you should be able to see it for what it is#instead of telling me to go spend a week volunteering at a cancer hospital so i can go see what real problems exist for people in the world#and what other people are going through and maybe ill come out with a new appreciation for life#mom just bc people are dying of cancer doesnt mean i can't be depressed just bc other people have it worse doesnt mean i cant have it bad#im so fucking tired!#3 am vent post yippee i am going to regret oversharing on the internet so badly when i wake up tmrw
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peacephotography · 1 year
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Four Lessons for the Long Haul - What Long Covid has taught me on resilience
When the paramedics came for me in the sweltering days of May 2020 it didn’t feel real. I had just passed out in the heat and collapsed headfirst into a radiator. I’d seen paramedics attend to friends and relatives, but in my feverish state, it didn’t sink in that they would come for me. My youthful sense of invincibility quickly faded. I found myself unable to lift my limbs or produce full sentences, and interminable headaches left me in despair. The after-effects are still with me today, in the form of Long Covid.
Now that I have regained some energy, I would like to share some of the lessons that illness has taught me about enduring difficulty in the climate and ecological crisis.
Lesson One: We need courage, not hope
Let the pain be your fuel. Let your total rejection of the status quo give you the courage to transform your life, to stand out from the crowd, and demand transformative action.
Margaret Klein Salamon, Facing the Climate Emergency
For the first few months of my illness, I woke up every morning hoping that I would suddenly recover and have “my life back”. Rather than letting go of what I could no longer do, I kept trying to live as before. But this detachment from the reality of my situation only brought me more pain.
Once I had the courage to face the uncertainty of illness, I let go of anxiously awaiting a miraculous recovery, and relaxed into my situation. In facing my pain and isolation I was able to accept them. They are a state of exile and vulnerability that can be a source of strength for navigating our bittersweet world.
The same is true for facing the climate emergency. If we hope that technology will save us or that criminally negligent governments will suddenly act responsibly, we are recklessly gambling our future on very poor odds. This can only bring pain.  Once we start to tell ourselves the truth about the situation, we can find pride in our honesty and compassion in our grief.  It’s from here that the resolve to take action will emerge.
Lesson Two: Follow your bliss
Joseph Campbell’s saying, “Follow your bliss,” is not an irresponsible phrase that ignores the pain of life but a reminder to receive pleasure and contentment, even in the depths of suffering.
Toko-pa Turner, Belonging
In illness, every day feels like a struggle. When it shows no sign of improving, or worsens, I lose my morale to keep going. It's an exhausting and depressing limbo. In the darkest and weakest hours, I saw my life flash before my eyes and began to dream of people and places I hadn’t seen for a decade. I saw the highs and lows that had shaped me into the man I am today. This gave me some space and perspective to see things from a different angle. From each challenge, there was a learning on how to face hardship. From each joy, an inspiration to live to the full.
Holding on to these feelings helps bring balance to life. In activism, we follow a true passion and through it find our fullest potential. But even this has its limits. Every step along the way we need to find that balance of difficulty and joy for our own wellbeing. Our struggle for climate and ecological action brings many challenges that can lead us to despairing inertia. In my sickness, a joy was as simple as the view from my bedroom window: a falling blossom, a scudding cloud, a wandering snail.
Such joys became my music, my dance, my poetry, my comedy and my sport: ways to relax into whatever challenge chronic pain brought.
Everyday joys can give us the resilience to keep facing what we must face. So as we rebel with all our might against the existential threat posed by the climate and ecological emergency, let’s also cherish what makes our existence so precious. From that reflective space we can find the courage to keep going.
Lesson Three: Words Matter
“The merest schoolgirl, when she falls in love, has Shakespeare or Keats to speak her mind for her; but let a sufferer try to describe a pain in his head to a doctor and language at once runs dry.”
Virginia Woolfe, On Being Ill
As I slowly regained my speech, I struggled to find the words to describe what I was going through. It struck me that there is a serious lack of language on both chronic illness and climate chaos.  If you are unable to express a feeling, you are unlikely to find any solace for it.
For our society to be able to come to terms with the emergency we need a language to relate to in films, literature and TV.  Some of the best I think we have so far are Parable of the Sower by Octavia Butler, a piercing portrayal of the rise of sexism and racism in an uninhabitable America; The Road by Cormac McCarthy, for its portrayal of the gritty end-point of mass extinction; and early Studio Ghibli films such as Princess Monoke/Nausicaa, whose heroines champion coexistence with the natural world.
However, the vast majority of current work focuses too much on apocalypse scenarios, produced to scare the shit out of us, instead of relatable everyday stories. How about a  climate drama set in water scarce Somalia? Or a northern woman’s heroic adventure to save her hometown from flooding? We need more romances that argue over whether having kids is responsible and comedies that mock the insanity of our toxic system like The Yes Men or Simon Amstell’s Carnage.
Stories are key for an emotional connection to the challenges humanity faces. Our stories of rebellion can be cathartic for climate anxiety and stir a generation of heroes ready to speak out for their futures. Let’s start writing them.
Lesson Four: Belonging
“By reviving a community, built around the places in which we live, and by anchoring ourselves, our politics and parts of our economy in the life of this community, we can recover the best aspects of humanity. We can mobilise our remarkable nature for our own good and the good of our neighbours.”
George Monbiot, Out of the Wreckage
Being housebound and unable to hold conversations without paralysing headaches is extremely isolating. Yet even in the depths of my pain I was able to appreciate the love of our community. Rebels gave me cards, voice-notes, medical advice, paintings and - best of all – cakes, cookies  and biscuits fresh from the oven. The feeling of belonging to and being supported by a community of kindhearted and extraordinary people gave me strength every step of the way.
Together we are building a community that can hold us through the dark days with pride, friendship and joy. We are showing not only the best aspects of humanity but also the solid foundations of a successful social movement. The climate and ecological emergency will shape the rest of our lives. So take every opportunity you can to nourish and prepare yourself for the long journey ahead. You’ll not only be more resilient, but you’ll find more joy.
-- Thanks for reading. If you enjoyed this or can think of someone who could benefit from these words please do share it. If you'd like to read more, subscribe to my blog :) Peace, Robin
Photograph: Franck Fife
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fairytypingg · 2 months
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fuck it we're doing this
RAGEON HCS!!!!!
Velvet;
19
leo(i think thats what i am, idk a lot abt astrology)
7 minutes older and takes it way too seriously
overplans for everything
screams cries crumbles if she doesn't have 100% control over any situation
plays a lot into appearances but is actually a chronic workaholic(gets it from her uncle)
she and veneer were raaised by their uncle actually!!
velvet has a love hate relationship with the music industry, before and after the events of the movie
TRUST. ISSUES.
cannot ever talk about her feelings she'll explode
bottles everything up like im so serious
"i'll keep all my emotions right here. and then one day, i'll die."
she vents frustration by talking mad shit in cs:go lobbies
she's really good at the game
scary good aim because of it, and that DOES transfer to real life
has 97 mental illnesses and is banned from most public spaces/ref
"i inhereted severe generational trauma and all i got was borderline personality disorder"
someone help her
she needs therapy
also autistic <3
Veneer;
19
also a leo
7 minutes younger but only remembers bcs velvet will not let him forget
he seems chill in comparison because velvet is so high strung but he is the most dramatic bitch ever
says really out of pocket shit without thinking
"yeah that's why your parents dont call you then haha- what why are you looking at me like that what did i say"
he's the epitome of unmedicated adhd
probably needs glasses
the only one of the twins with a drivers license
was very outgoing growing up because velvet hated talking to people, so someone had to do it
doesn't rly understand velvet being depressed and thinks shes a drama queen like him
"im tragically doomed by the narrative" "drink water dumbass"
hes morosexual
"if a man can locate mount rageous on a map that man is not my type"
dumb fucking ass
love him, hes just kinda stupid.
Kid Ritz:
20
idk any other zodiac signs use ur imagination
every personality disorder you can think of
emotional manipulation is a sport and he is bringing home the gold
whats wrong with him
the answer is mommy issues. and rampant childhood neglect. also when you're raised as rich as he was you're gonna come out weird
struggled to understand the concept of lying as a child so when be finally got it he retaliated by lying for sport and then never stopped doing that
prefers machines to people
hes one of those "there is a minimum iq requirement to talk to me" guys
not just a talk show host!!
he's well trained to take over his father's political position when the old man retires
current director of public security
he's known as a purveyor of gossip for a reason
the saying goes that nothing happens in the city without his knowledge
hyperintelligent
like genius iq, reading at a college level by age 5, etc
actual child prodigy in every conceivable way
notorious for being "perfect"
he's the face of Ritzworth Media Corp for a reason
evil genius
also lonely
his father is grossly neglectful and his mother is a deadbeat
did i mention he has mommy issues
never met his mom and has devoted a lot of his energy to forming an intelligence network dedicated to finding her
hates people
like very antisocial
struggles HEAVILY with empathy
his interviews are notoriously difficult since he entertains himself by making his interviewees squirm
casual sadist in every conceivable way
What's Wrong With Him/aff
Orchid;
18
use ur imagination again im not gonna look it up
rebelling against common characterization here stay with me
secretive about her past but obviously hiding something
a chameleon type of person, can change her behavior, mannerisms, and even accent at the drop of a hat
carries a deep grief with her
distrusting and calculating
she'll "befriend" you but it takes a lot of effort to actually gain her trust
she WILL discard you if she's even slightly suspicious
nobody is sure what her goal is, but she has an agenda
orchid might not be her real name either
very mysterious
generally presents as kind and friendly but it's noticibly fake
cannot stress how much she is hiding something
capable of murder and not afraid to resort to such to protect her secret
dont look in her closet
she has participated in her fair share of underage drinking and can hold her liquor pretty well, but if you manage to get her drunk enough you may be able to pry some answers out of her
has a distaste for celebrities she doesn't see as beneficial to know
gives like. really good advice
identity issues <3
the song Phony is perfect for her
she moves as if she's used to her hair being longer than it is
what is she hiding?
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skyfallscotland · 2 months
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Hi! I hope you’re feeling better. 💜
When I’ve heard writers talk about their process, some outline a character before they start writing and outline everything- the charcater’s history, personality, etc. While other writers say the character “talks” to them as they write and they don’t plot a lot out before hand. I’m curious- how much of Remi’s personality did you determine before you started writing? For example, did you know she was wonderfully snarky before you started writing? Did you always know she struggled with depression?
I know you’ve written other OC’s too. Has your process changed since writing Tessa and co?
Hi!
I...am incapable of lying lol. I'm not really, but I appreciate the sentiment 💗 Not looking for sympathy, just keeping it real 💀 The depression be doing some depressing. But hey, *sobs as I smash at my keyboard* it makes for great content!
I don’t hear it. I can’t hear anything but the pounding of my own heart and one memory on repeat. You can love someone and hate them a little at the same time. My mind is stuck on that. I know he loves me, but—he hates me, he hates me, he hates me—I fucked things up.
I never outline an entire character before I start writing. I have an idea in my head, but not a whole profile. I don't even name them until I'm part way through a story, they're "Name" usually until like chapter five-ish and then I hate their names until like chapter ten.
The case of Remi is a little different, honestly I've kind of done things backwards. When I created Tessa I had an idea of what her personality would be, based on what she'd been through living in Illyria and there were small parts of myself I incorporated into her, like her struggle with social settings and relationships. With Stella I was more just having fun, but keeping in mind the (broad overview) history I had planned for her. They do kind of just write themselves, if I'm honest. It's why I like to write ahead, because I only ever have a broad plan in mind.
I don't know that I ever really planned to publish BRV outside of like a little wattpad adventure. It was entirely self-indulgent. I tried very hard with Tessa and Stella to have them be...measured? I guess you'd say. To not pour too much of myself into them.
Remi was cathartic. There's so much of me in her. She was my 'whatever, it's not serious' character and story. I just threw whatever I wanted at the page without worrying about whether things were realistic or too self-indulgent and I guess that worked for a lot of people.
I knew she'd be snarky and a realist and that she wouldn't be as settled as Violet with her chronic illness. I knew she'd be depressed and quick to anger because that's me and my experience and it was a therapeutic process pouring all that out onto the page. So I guess I didn't really need to determine anything, I just wrote from the heart. She's almost self-insert. It's made it really comforting that people relate to her so well, because it feels like they relate to me, when no one else does outside of the internet.
It's funny because I'm trying (and never making time) to plot out the original novel I plan on writing and there's this voice in my head like saying I have to be measured and I have to plot out these characters first and their whole histories and personalities because it's a Serious Thing, but then I'm reminded that the character I wrote who resonated the most with people was just me throwing my unhinged feelings into the void, so???
Also, I had intended my first original fantasy novel (featuring a chronically ill fmc and dragons) to have two main characters—Remi and Caden. Then Fourth Wing came out and I screeched in fury. I used the name for BRV anyway, but... 🙃
And the MMC for my sports romance is named Liam and I wanted to give the FMC a nice tough girl name like Sloane 😭 but I guess the universe said fuck you, again, so that's a nope, so if anyone has suggestions here I am.
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bipedalembarrassment · 2 months
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Have to vent somewhere or I'll go insane:
Does anyone else have issues with people with much less debilitating illnesses/symptoms trying to act like they experience the same level of disability/pain/all round awfulness as you?
Maybe the sickness is making me petty but one of my close friends/housemate is doing my head in.
She has endo (which no invalidation to endo warriors I know its incredibly painful and has lots of awful symptoms) but she got surgery for it years ago which is meant to (and did) make it much better and from her own account and from living with her I know for a fact she very rarely has any pain or fatigue or other symptoms from it anymore.
She's also able to work a physical labour job 3+ times a week and on top of that goes out and does things (runs errands, sees friends) constantly and in her spare time will garden/mow/move furniture around/do a bunch of errands and what have you.
In comparison between the extreme levels of pain and chronic fatigue I experience I'm unable to work, am able to leave the house maybe once a month if I'm lucky (and have to recover for days afterwards) same goes for things like gardening, if I were to do what she does in a day I'd be in bed for four.
Many days I struggle to even feed myself or clean my pets litter tray.
I've had ankylosing spondylitis without knowing for 8 odd years now and then the onset of the full blown psoriatic arthritis symptoms about 3 years ago now (when I was 25) completely destroyed my life and I still struggle daily with the grief process and ofc with the regular struggles of being constantly exhausted and fatigued and sick and in pain.
I have to use a walker if I leave the house and I'm just all round having an awful time and am pretty damn disabled.
I had to quit a job I loved and the idea of me being able to work with how sick I am is laughable.
Anyway I'm just so frustrated because she'll literally spend the day out doing errands, come home and garden (as a hobby not necessity) and do a bunch of chores and things and while she's doing it will literally tell me and our other (also disabled) housemate how fatigued she is and in conversations will basically assert that her experiences of fatigue and chronic illness are the same as mine.
She very very very rarely extends me any sympathy or checks in on me or offers to like grab me some groceries or anything when running errands (my car broke down and as I can't work I cant afford a replacement, PT is completely inaccessible to me) yet when she has any mild medical issue or needs to go get a medical test or something (something I obviously have to do regularly & never get support for) she will literally like have other friends over to take care of her, complain about it constantly, tell us how depressed she is, make multiple people come to her medical appointments with her (without giving too much away she recently had a medical issue that was potentially worrying, but turned out to be best case scenario, had a small procedure where she didn't have to go under or anything and only had to recover 1 day before going back to work. The results all turned out to be good, the procedure treated the issue and she now takes medication to prevent it coming back.
The entire time she went on and on about it constantly, made multiple people go to all her appointments with her (complained about how sick she was of all the testing/medical admin when she had to go see like 2 Drs, which y'know maybe don't say that in front of your friend who has had to do that constantly for 3 years without any support or sympathy from you and who is constantly being gatekept and gaslit by said system), she also like googled how rare the condition is (which sure interesting) and then multiple times told my other housemate and I and our friends about how rare it is in like this weird almost like bragging or like "see how sick I am" way.
She spent days telling us how depressed she was from all the medical stuff etc.
I really hate playing the suffering olympics and ofc dont want my friend to be sad or struggling so I attended appointments with her and was/still am sympathetic towards her and was like bringing her drinks and things when she asked or coming and hanging out with her in her room when she'd message and say she was depressed.
Like I really don't like playing the "I have it worse than you games" but I am factually much more disabled than she is and she knows this as she refers to herself as chronically ill and not disabled so it just does my fucking head in that she is living with me every day, having the levels of ability, mobility, energy, access and painlessness I could only dream of and she still invalidates me (and our other disabled housemate) constantly by bringing up her medical issues (for instance I just mentioned that I think I'm getting strep throat for the second time this month and instead of showing me any sympathy she brings up how she kept getting tonsilitis years ago when she recovered from glandular fever) whenever I bring up mine and acting like illnesses she's had in the past and doesn't experience any (or only a few) symptoms of nowadays (does this with lots of things, like when she was sick from iron deficiency years ago too) mean theyre like points on her illness check card and means our experiences are the same???
Like she's very much your classic "oh everyones tired" or like will say "I'm so exhausted" while actively running around using heaps of energy on hobbies/fun activities and will then pretend thats the same as chronic fatigue.
Also on top of almost never showing me any sympathy or concern or doing anything supportive for me she's multiple times joked about me being lazy or complained at me for not hanging out with her when I've been stuck in bed.
Has also made comments about like how lucky I am to sleep all day or whatever and idk just frequently doing these ableist microaggressions or just being generally insensitive as fuck and I'm getting really frustrated with it.
Anyone else had this problem of like people who are just straight up factually a lot less disabled than you are trying to act like this and being invalidating af??
Anyway big angry rant probably no one but me will read but fuck youuuu to my friend for being unsupportive and invalidating and shit while my lifes been permanently changed for the negative.
Its almost like cause I'm sick, fatigued and/or in pain every single day I'm not allowed to be upset or get sympathy or support or complain about it because its "too much" or gotten boring or something.
Guess what? I'm fucking bored too
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tiny-sassy-aggressive · 7 months
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After watching We’re All Doomed, the comedy show by Daniel Howell, I need to take moment to write out how that show made me take a step back in my own life and evaluate progress and positive growth in my life as I realized that his timelines/feelings could be foiled in a meaningful way to my life. I was particularly inspired to write this while watching the scenes on the screen of the moments of joy people were experiencing. I swear I had chills and I started to tear up. As he spoke about not only embracing the void, but finding the courage to exist, but not just exist, but to live and find those moments of joy, I was reminded about how that moment in searching for why life was worth living was how I came (back) to Catholicism. I don’t intend this post to encourage others to or away from the Church. I simply was inspired by Dan to share how I got to a place of accepting that life is worth living and how I hope to move forward.
I want to first tw cancer, death, feelings of not wanting to exist, and mentions of suicide. Nothing is explicitly discussed in great detail but only mentioned. I have never written out my story before, barely talk about it even to this day. Tried therapy a few times but it wasn’t for me, but that’s neither here nor there. This is a safe space for me to share something I just wouldn’t with family and friends. Though, I must apologize in advance, like Dan, I talk/write way too much so this will be a very long post.
Thank you to all those who take the time to read my random story and I hope to hear from others how Dan’s story and/or show have affected you so we can share in those feelings as a community.
I am chronically depressed and anxious. Always have been as it runs in the family. However, the problem was my parents, or really, I should just say my mom because my dad was never around in an emotional capacity that mattered, didn’t necessarily believe in mental health. Sure they knew depression and anxiety were real, but those were just emotions people felt and there wasn’t anything to do but continue on and try your best to keep going no matter what. It’ll be fine, just keep moving and working, right? Well when I was 12/13 I was getting bullied really badly. It got to the point where I was having panic attacks before going to school, crying at night, constantly feeling nauseous, and worst of all, I would refuse to leave my moms side, so school got to be pretty difficult. My mom was fully aware of what was going on so she went in immediately and got the bullying handled (as much as she could, middle schoolers are brutal. It never really went away but it was less of a nuisance) but she did not understand why I still felt ill and didn’t want to leave her side. She found me a therapist and I went twice. I knew we had financial struggles and I started to feel better so I stopped going. I was still sad and scared but those were normal feelings, right? I could go to school and play my flute, talk to friends, and sure I was writing songs about being trapped in a cage and having no one hear my screams but I was just an edgy teen, I wasn’t depressed. That’s just me being me. No mental illness here! I’m fine. Spoiler alert- I was not fine and it was only going to get worse.
When I was 14 I found Dan and Phil! I was a huge o2l fan so I followed Connor Franta and he posted Internet Trivia with Dan and Phil and I absolutely fell in love with them and fell down the rabbit hole of their channels and the gaming channel. I loved them both but I definitely had a bias towards Dan because he wore all black and was edgy. Watching Existential Crisis for the first time gave me a phrase to the weird feelings I had. Both affirmed and disproved the fact I was mentally ill but I still didn’t have the words for it so I just thought I was mentally different from other people. Watching that video back with all the context of 2024 and 2024 Dan, that video covered an extraordinarily heavy topic but he never mentioned the word depression or mentally ill because, at that point, why would he? Since he was the only person who voiced those feelings that I also shared, I took them to heart, but I could only take those words to heart as I had no reference to infer what else all that meant. So I kept all my feelings to myself. After all, this guy said he had all these big feelings but was fine. Call me naïve, I was 14, so I believed I could be okay and still feel existential. It was normalized, plus nothing else in my life was being affected, I was doing well in school, I had friends, I had hobbies, I was fine. How could I complain?
A few months after the start my freshmen year of high school, my older brother was diagnosed with leukemia and everything changed. He was sick and had to stay in the hospital for months, one of my parents would always be at the hospital, and me and my little brother would visit on the weekends when we could. My mom really stressed the importance of keeping a normal schedule so we did. School, extracurriculars, piano, just keep moving and everything will be alright. I didn’t cry, I couldn’t cry. I had to remain okay, fine, an unbreakable force because I couldn’t have anyone worrying about me because we all had to worry about my brother. Which we did! I never wanted to be a burden or not okay because I wanted all attention and time focused on his wellbeing. I don’t remember talking to anyone about anything emotional. Sure as hell not my parents. Not my brothers. Not even my friends. So I watched videos and removed myself and all emotions from my being so I didn’t have to think or be.
When he was first diagnosed I felt lost and confused. So I did the one thing my private, catholic school taught me to do. I found God and prayed. Except, I can say certainly looking back, it was not a meaningful relationship I created. It was one forged in fear, confusion, and a misunderstanding of how to pray. Ironically, for a catholic school, they didn’t know how to teach someone to come to God, they just expected you to understand, but that’s beside the point and a different conversation. But that’s what I did! I prayed, every morning and night, Lord, Please heal my brother. Please. Tried devotionals I didn’t get, muttered words I didnt understand, and played the part. I watched everyone else around me do it so I did it too, to the point where I believed I needed to be perfect or else my prayers would fail, which, I cannot express enough, was not the appropriate mentality, but that’s what I thought was necessary.
About 7 months later, my brother was in remission and he came home! He was okay! We got through the summer, he came back to school, we were in band and choir together again. It was fun!! We were all okay again. The dark spots in my head were still there but they were probably just left over from how scary last year was. How could I not be happy with my brother back home and alright again. At this point, my prayers were answered so I slowed down my prayers. I was okay so I felt as if I did not need my relationship with God as intensely anymore because I felt fine. Plus, when I was sad or scared those were just normal reactions that were not taking over my life so why dwell on them.
In 2017, Dan released Daniel and Depression. And I don’t exactly remember my reaction. But at that point in my life, I remember coming around to the idea that maybe I was not as mentally sound as I thought. But even listening to what he had to say, I was still convinced I was not depressed, I was just traumatized from what had happened to my brother and to my family. I had spent that time living through hell and I never stopped, I did not lay in bed wallowing, I didn’t not brush my teeth or not take care of myself. I was a high functioning nearly straight a student through and through. I was not depressed.
I don’t know why that was such a dirty word for me. Or maybe it wasn’t a dirty word, but it was something I didn’t want associated with myself. My school didn’t believe in mental health because all you had to do was pray and “you can’t be depressed and be with God” - Which by the way is completely inaccurate and harmful for young people to grow up learning. On the other hand, my parents lived in a hospital with my sick brother for months, I shouldn’t be depressed or talk about the weird sadness I was experiencing after everything they went through. It’d be selfish of me to not be alright.
Two months after Dan posted his depression video, my brother got sick again, the cancer came back. I prayed fervently once again. Knowing it worked once it could work again. Every morning and every night in the depths of my dark room where no one could see or hear because everyone else in my family was not religious or was too angry at God to believe. I put it on myself to pray and to be good so he can be healed again. But I failed. He died 4 months later on my 17th birthday. Years later, a therapist would tell me that happened because he didn’t want me to forget about him, well jokes on the therapist I was never going to forget anyway. I failed, it was my fault he died. If I prayed more, if I was a better person, if I just focused I could have saved him. But I wasn’t enough, I was not good enough to save him. This wasn’t true, of course, nor how religion/prayer works. But I didn’t know what else to do or think. So I blamed myself. I wasn’t even there when he died. My parents told my little brother and I that he wasn’t ever coming home and a few days later, on my birthday, we went to school and when my dad picked us up from school he drove us home and my mom was sitting there and that’s when I knew. My little brother was so cute, he later admitted he just thought my mom had come home to see me for my birthday but I knew immediately. I still don’t know how my dad just picked us up that day and didn’t say anything.
A part of me died that day. How could it not have? It was a strange night. We cried. I ate a pre-bought cupcake. My brother went to lacrosse practice and the next day we both went to school. Because that’s just what we did. We just kept going. Let me tell you, you’ll get the strangest looks from people when they see you at school after they just heard over the loud speaker that your brother had died the previous day. Because really, what were we doing there? We were the highest functioning traumatized students you had ever seen. I was only 2 minutes late to my first class of the day, math. I went to the chapel in the school with my really close friend to cry and listen to adoration music and just wonder why, why, why? 2 minutes wasn’t too bad, the teacher was surprised to see me and I failed the math quiz we had. She was nice, she offered to not have me take it, but I was already there and it was math quiz time so I took the quiz. She let me redo it too. She was nice, I needed it. It felt normal so I felt fine.
And that was all the rest of the 2018 school year was. Fine. Went to class, studied, did my extracurriculars, performed in all the shows, hell, I even went to prom with said super close friend from earlier. It was obvious I was traumatized and sad but how could I not be? But I was doing everything a normal student would be doing so what was the problem?
The problem was I felt alone, hell, I was alone. My family was broken, shattered into a million a pieces. My dad was distant, my mom cried, my bothers and I weren’t talking in any meaningful way. I talked to one person, the guy who held me in the chapel the day after my brother died and who took me to prom. I loved him, we loved each other. He was the only person who I felt actually saw me. I always had some barriers up but I felt free with him and I know he just wanted me to be okay even in the midst of tragedy. We were friendly for 2 years but we got close right before my brother was diagnosed again. Those months meant so much to me and I thought we would always be close. But 1 month after my brother died. He told me he did not want to continue our relationship or friendship. He said I was too much to handle or had too much going on. In all honesty, I don’t remember his exact words because I most definitely mentally blacked out. And he broke what little part of me was left.
(About 2 1/2 years later he ended up calling me and after not really speaking to him at all since that moment, I picked up, more out of curiosity then trying to rekindle anything. He told me that, unbeknownst to me back in 2018, he went to our Moral Theology teacher (yes- private catholic school) to ask for advice because he saw how much pain I was in and he did not know how to help me. Instead of this teacher, a literal adult, going to our schools counselor, my mother, or even me and addressing this 17 year old boys concerns about ME, he told him that he should just give me space because of the mental weight of the tragedy I was living through. His advice to this boy was to essentially isolate me. Looking back, I do feel bad for this boy. He tried so hard to do the right thing for me but didn’t have the right directions. And on the other hand I am so mad at the teacher because that was the worst advice he could have ever given ever. Thanks! Real talk though, I loved that boy and he always meant the world to me. We didn’t keep in touch afterward that 2020 conversation but I kept tabs on him through mutual friends and he always listened to my music on Spotify. He went through a tough time and he committed suicide in 2022. I really do miss him and wish things were different for all aspects of his story, my story, and what might have been our story. It felt wrong to exclude his memory in this post because he truly played such a crucial role and he meant so much to me even years later)
Back to 2018, after he abandoned me. I was completely and utterly alone. And now, I feared opening up at all to anyone because I didn’t want to be perceived as the burden I truly was. So I swallowed every once of trauma, depression, and anxiety so I was perceived as a functioning, fine, human being who didn’t need anyone to worry about her. I didn’t want anyone to worry or care for me because they thought I was fragile or broken because I now had proof that I would become too much to handle and that anyone would just leave me just as he had. And that was it. I smiled, I laughed, I spent the next year completing every senior year milestone and graduated high school. And I didn’t feel one emotion. I was fine.
Summer 2019 was when things started to shift a bit and here’s where I think the foiling begins. For one, Dan had just released Basically, I’m Gay and he started to live his truth being out of the closet. I truly don’t want to nor feel like I can comment anymore on this topic because that was his own personal journey and I don’t want to speculate on anything he said. He did so quite clearly and explicitly. But the point I am making was that in the middle of 2019, he began living his truth. This one thing he didn’t talk about that is so quintessential to his character was now a public part of him and he got to experience that joy of being out. There was a shift in his character, anyone who watched his video could tell, he was happy, he seemed excited. He went to pride, did promotional videos, and he just seemed like he was living in a brighter light. It was beautiful to watch and I’m grateful he let us share in those moments of joy with him.
Before I get too deep into this section, I want to preface and state that I do not remember large chunks of time between 2018-2021. All the trauma and depression have made me forget nearly everything, and it’s a very weird sensation to have little to no memories of 3/4 years of time. I can recall general feelings and most memories I can see are from a third person pov so I can see what was happening, but I see it happening to me, not me actually experiencing the memory.
For me, summer 2019 meant leaving for college. Now, in hindsight, I made a major error. I was going to the same college my brother had been at before he died. I don’t know what I was thinking or why I thought it was a good idea but the school gave me money so I would have been a fool to take on more student loans than necessary, plus, I knew I wanted to transfer the next year and move half way across the country so I had an end goal in sight, just had to get through the year.
I also started to go to church again. There was a cute little church about a half mile down from my school so it was an easy walk. I don’t consider this change/new addition a mistake, but I do often wonder what was I thinking exactly. I don’t recall my exact process but remember two dueling trains of thought. For one, I still 100% felt weird about religion/God because I blamed myself for my brother dying because I wasn’t praying enough and wasn’t good enough to save him. But on the other hand, I did not feel right to never enter a church again and a part of me wanted to return because it felt like the right thing to do. I spent my entire formative years at a private catholic school. I knew all the prayers, scripture, the saints (I was confirmed taking St. Rose Philippine Duchesne), and my senior year religion class was dedicated to teaching us how to explain/teach the faith to non-believers. And I believed in all of it! I had faith, so how could I not be going to church. Call it guilt, or whatever you want to call it, but I couldn’t turn my back on the church after everything I had learned so I went back. It was the truth I believed in and the truth I wanted to live by. I told myself that eventually I would just feel better, I’d continue to pray to heal and keep going through the motions until it stuck. At this point, I had fully embraced the void I was living in. I accepted that I was depressed, I accepted that I was depressed long before the trauma began so I was battling undiagnosed depression alongside the after effects of the trauma, and I accepted that I am an incredibly anxious person. That was alot for an 18 year old to take in but I finally accepted what my truth was. I admit it and that’s the first step right? I know I am mentally ill so I started some therapy, and I continued going to church and praying because every thing I read and was told said those were the best things I could do to help myself. So things could only get better from here, right?
Not necessarily. The end of 2019 flew by and before we knew it we were in the throes of a global pandemic. Within 3 months in 2020, my parents divorced (finally), my grandmother died from the same cancer that my brother had which was sick was twisted if you ask me, and my mom, little brother, and I moved half way across the country. Oh and I transferred colleges in all that too. Besides every single bad thing we experienced, moving was supposed to be our new start. A new place, new schools, new adventures. No longer living in the state with every bad memory we had or the house we essentially grew up in. It was new and fresh, almost the perfect situation to start a mental health journey in, besides the recent trauma I still don’t think I have processed fully and a global pandemic. I just thought I would be getting better.
I remember the part of We’re All Doomed when Dan mentioned 2019 being so important because he started to live his truth and I felt so similarly. I thought once I accepted what was going on in my head I’d feel better. But then 2019-2021 for both of us seemed to be one of our worse times mentally, which is oddly terrifying because of the emphasis that was present on wanting to feel improved.
Between 2019-2021, I struggled with the concept of existing. I did not understand why I was here and others weren’t, what I was meant to do, and why I was meant to do it. I didn’t want to exist. I simply didn’t have the energy. I couldn’t conjure up emotions, nothing real anyway. I just felt nothing. I never felt suicidal, never did anything to harm myself, never wanted to. I knew and continue to know that I never wanted to die. I really just wanted to feel quiet, numb, not of the earth and those are very scary feelings. I could barely put them into words for when I talked to my therapist but I tried, but all she could tell me was to find distractions for myself. Distract, distract, distract, well that’s all I’ve been doing and I don’t feel better. I listened to music, wrote music, talked to my mom, pray, do my class work, scroll through social media, but what then? When alls said and done, the music is off, the conversation is over, the work done, the phone turned off, I was left with myself and I didn’t even recognize her. My mom said she saw a light in my eyes she hasn’t seen in a while but I had no idea what she was talking about. Whatever was on the outside wasn’t being transferred to the inside because I didn’t even know who was staring back at me in the mirror. I just knew she didn’t want to be here anymore. So what now?
When Dan showed us the calendar with the little emoji emotions over the days of the month, I swear my heart stopped for a moment because it reminded me of what I started doing for myself during that same time period, that very same year he was referring to in the show. I had downloaded this app, Hallow, it’s a catholic prayer app. Scripture, guided prayers, saints stories, the whole nine yards. I liked the little guided prayers. Helped me focus I guess. And every night I’d ask for the same thing. To feel better. To be healed. It also had a little section where you could track your mood for the day so I started doing that everyday. I wasn’t thinking too hard about it I just hit the emoji I felt and moved on. Until I started noticing a pattern of hitting, sad, anxious, worried, or unsure. Soon enough I had months upon months, just days filled with those same emojis. When I actually took a step back, just like Dan did, to stare at how my months were covered in little sad emojis it broke me more than I thought it ever could. Was this all that was left for me? Days that left me feeling dejected and dark? Why wasn’t anything I was doing enough to make me feel better, to make me feel something for my life, for this world around me. Every night pleading the same questions to God, why, why, why? Just begging to be healed.
One day in 2021, I felt hopeless, I was tired, drained, and I truly did not know what to do. I just wanted to feel. So I stopped begging God to fix me and I started talking instead. And I talked and talked about everything and nothing all at once. I told Him about my day and what had happened. I told Him about the little anecdotes, my classes, the walk I went on. I told Him what I felt during the day, the big feelings and the little feelings. As I recounted my day and all the little details, I know it sounds ridiculous, but I felt lighter. For the first time in a long time, I was not focused on the big scary black hole of my mind, the void, I spent time talking about what my day had looked like and what I knew was on my schedule for tomorrow. It grounded me. And it was just that. I wasn’t focused on the void, I was focused on the living I was doing despite the void and there was something beautiful about that realization I have never been able to put into words until I watched Dan’s show. God was not not healing me because I did not deserve it or because I was so helpless, for it was only when I was at my lowest that I let myself let go and speak freely outside the confines of asking for the same thing over and over again without changing my mindset. It was only through those open ended conversations that I found and was confronted with the events of my life, no matter how big or small. The void, my depression, my traumas, whatever I want to call them, they are always going to exist, they are a part of my and I can’t change anything about that. But my life, my 24 hours a day, that time will pass regardless of if I choose to dwell on the darkness or not, so might as well spend my time enjoying the light that clearly exists as well. So that is what I started to do.
It is a choice that I have to make each day when I wake up. To decide to be an active participant in my life rather than a passive bystander. But like all things, it’s an attitude that can be learned, adapted, and over time it did not feel like a chore to make that choice, but a pleasure. For once, I started to look forward to the future and excited for what I could do. I found a church where I could attend mass so I would stop sitting in my room and watching online, I started to push myself to make plans outside my comfort zone and learned to not just like my own company, but enjoy the silence of being alone. The one project I am particularly proud of is my second Instagram account dedicated to romanticizing my life. Everyday, for now nearly 2 1/2 years, I have posted a photo on that account of the places I’ve been, clothes I’ve worn, and experiences I have been on. It’s my own personal photo diary proving that I have been living and that I will be continuing to live.
Photos and daily reflection have been the cornerstone of my improvement which was why that segment of Dan’s show impacted me so greatly. Each small clip he shared was probably only a second or so long but each moment held such great joy and emotions that could not be contained. It was and will continue to be a reminder that there will always be moments of joy and moments of happiness that will exist even in the face of adversity, we just have to work to see them, and choose to accept them as our own. Some days can certainly be harder than others, but after years of feeling nothing but the heavy weight of despair, even just the memories of joy are enough to encourage me to move forward. I’m alive for a reason and I believe and trust in God’s plan for me, so I choose and, now, feel empowered to continue on.
Dan was right when he said that we are all doomed. And there is this void in my life that I have learned to embrace and not just ignore. But this life was not meant to be survived, but to be lived. And I, now, have the courage to choose to live everyday.
Thank you to @danielhowell for sharing a part of yourself with the world. For creating a show that encourages us to acknowledge every part of our lives, the good, the bad, the ugly, and to show the importance of embracing every aspect of our lives while we continue our journey. Thank you for encouraging me to share my story and my journey through mental health. I have never shared my story like this before and it has been an unbelievably cathartic experience and I feel renewed in my promise to continue to choose to live.
Thank you🖤
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ssruis · 3 months
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Idk the treatment of saki’s disability by the writers just irritates me bc like (& full disclosure this is written by someone who’s chronically ill but able to live w/o major symptoms) there’s so little thought put into how her disability specifically intersects with her mental health & overall life beyond a general Inspirational Look At Her Go She Can Overcome Anything type of take.
I dislike fully articulating my thoughts but to sum it up my experience with my own chronic illness was manifestation at 18 -> horrifically managed for 2 years bc doctors/parents did not take it seriously -> in so much pain that I couldn’t really move until i was put on immunosuppressants during peak covid and I watched close friends treat me like a burden for wanting the group to take covid precautions/abandon me because I couldn’t Party Hard anymore (to the point where one friend brought me somewhere where her friend fucking had Covid and sat next to me & then she texted me the next day like whoops heehee) -> severe depression & life ruining ensued. My family had to deny a good insurance opportunity bc my RA was an existing condition & they wouldn’t pay for my meds for two years and I had the fun side effect of my mom implying it was my fault/it was a burden over it. Etc etc. I don’t want to get into the full story because it’s unfun and also lengthy but I want to provide context for why saki’s treatment bugs me.
Her not really caring about honami/shiho not visiting bugs me. I get that life gets in the way but them going (semi?) no contact is a little shitty. Being disabled & not being allowed to be upset about the treatment you receive from your loved ones because you know they don’t see it as a big deal is. So frustrating. She deserves to be upset with them for that and have a conversation about it. There’s so much pressure on people w disabilities to essentially go “yeah I am a burden it’s my fault so I’m grateful you’re even spending time with me” that’s reflected in saki’s story and never challenged.
I’m too tired to articulate the complexity of her dynamic w tsukasa but it also frustrates me that it’s only touched upon that saki feels like she inconveniences him by being sick/she thinks him going out of his way for her is a burden. I love tsukasa and I’m obsessed w how much he cares about his sister but I also think saki deserves to be frustrated with how neurotic he is about an illness that isn’t his own.
So much abt being disabled (especially for those who are more affected than I am - I want to make that clear) is being told by society that you are a burden for needing accommodations/costing your family money/struggling with things able bodied people can do/etc. & saki very clearly feels a lot of that but it never gets challenged. Something that’s always stuck with me was seeing a tiktok where someone was like “actually I AM a burden bc I cost my parents money for antidepressants/adhd meds” which was so…. Buddy as someone on those meds and also 4/5 other drugs to manage the chronic illness I don’t want to hear shit from you abt being a burden. Imagine having panic attacks over career choices & fucking up your schooling permanently because you’re petrified of not having stable insurance to pay for the overpriced meds that keep you from being in agony and your friends/family don’t take it seriously because you look fine even though you can barely move without extreme pain and nobody in your life understands it or attempts to do so and you feel like the doctors don’t care because they give you meds & no diagnosis and you’re still in a pain that defies description. And your disability gets in the way of your passions and you can’t just muscle through it because doing so would fuck your body up even more. & then get back to me. Whatever. Doesn’t matter. Moving on.
I don’t know if the colopale writing team has anyone w a disability but I feel like saki’s chronic illness essentially being a thing of the past & she’s just like “I’m fine now” is shitty. Ig it fits with her character but also she’s a fictional character and the writers are capable of addressing this. and they’re not. I want to see saki being told that she’s allowed to be mad and she’s allowed to feel unwell and she’s allowed to not be inspiration porn and she’s allowed to have ugly feelings and address those & that she’s not a burden and it’s ok to rely on others when you’re struggling.
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Do you think you could be autistic? No hate just wondered as I am too and I relate to a lot of what you say
Oh my anonymous friend, you don't know the can of worms you have opened haha. I am going to ramble here so just be prepared for that.
When I was little my mum did actually think I might be autistic. Predominantly because I played in an unusual way. I would line my toys up on the window sill and my grandmother's display cabinet thing. I would get furious at people if they moved my toys because they all had their own spot. And the only time I touched the toys was to move them from the cabinet (their home) to the window (the school). The rest of the time I would just stand still, stare at the toys, and wiggle my fingers. They called it "zizzing" - now it's called stimming, I guess - and they knew that was a sign of autism so my mum and my grandmother did wonder about it. But I had two things going against me: I was a girl and I was born in the early 90s. This was during the peak of the idea autism was the "extreme male brain." It was seen as being predominantly a male diagnosis. You probably know that. And there wasn't much understanding so our reference point would be people like our family friend who always looked at the ground, was obsessed with trains, had limited speech and would scream if anyone tried to touch him. Whereas while my family were still thinking about the autism thing I started school and I was academically strong, I had a small group of close friends and at the time - because of the gender disparity - girls only really got diagnosed with autism if they had some kind of very obvious speech delay, they weren't doing well at school, they had no social connections with their peers at all etc. So basically everyone just forgot about it. I got called a drama queen a lot, that was it.
Fast forward to my teens and my mental health was really bad. It got worse at university because I didn't have the routine and structure of school, I didn't have my mum cooking and buying food etc. I was diagnosed initially with depression and anxiety. After a while it was clear that wasn't right so after much fighting I got a diagnosis for Borderline Personality Disorder. Now you may know this but there is an overlap in BPD and autism symptoms and women are often misdiagnosed with BPD later in life because as children their autism wasn't picked up (because diagnostic criteria is still geared towards how it presents in boys and psychologists and psychiatrists don't always delve into motivations and thought processes). I found that out in my mid 20s but thought "nah I probably don't have it, I don't have special interests and I don't struggle with x, y and z." However, my mum became really interested in BPD after I was diagnosed and did loads of research, listened to podcasts on it. And she told she was listening to one podcast where someone was diagnosed with BPD but then they discovered it was actually autism. My mum said to me that the way she described herself in childhood was exactly how I behaved, as if I'd been the one speaking. And so that got me thinking and that's where I have been stuck over the last few years. I debate with myself constantly what's going on in my brain and I truly don't know. I regularly have epiphanies where I think "oh that thing I've done all my life is incredibly autistic." But then I think maybe it's actually BPD. And I just go round and round.
I identify as neurodivergent, regardless of what diagnosis I have. Some neurodivergence paradigms do recognise severe mental illnesses like BPD anyway, but I've realised that if you put aside the BPD I still have chronic problems with ordinary tasks and situations. And I used to think it was just because I was young but I'm 31, almost 32, and it isn't normal to take 3 months to make one phone call because you just can't make yourself do it! Most people don't find it this hard to take basic care of themselves.
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beardedmrbean · 7 months
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On Jan. 27, Dutch blogger Lauren Hoeve passed away through assisted suicide. After enduring years of chronic fatigue syndrome (also known as myalgic encephalomyelitis, ME/CFS), autism, ADHD, and anxiety, she, at the young age of 28, chose euthanasia to escape a life dominated by pain.
As a Canadian, I am familiar with the Medical Assistance in Dying (MAID) program, which has allowed eligible adults to request assisted death services since the federal legislation passed in June 2016. As of this year, the MAID program was also set to allow those with mental illness to choose euthanasia.
However, a recent development on Feb. 1 proposed legislation to temporarily exclude individuals with a sole underlying medical condition of mental illness until 2027.
This legislation is currently under review by Parliament, and unless it passes, the exclusion will be lifted on March 17, 2024. This means individuals struggling solely with mental health issues may become eligible for assisted death.
A confession: Initially, I welcomed the idea of assisted dying, believing it could be a humane choice for those at the late stages of irreversible illnesses to make choices on their own behalf. However, my growing concern lies in the application of MAID by the Canadian government.
I am now skeptical about the true autonomy of individuals opting for assisted death, especially in a country with socialized health care. The risk of medical practitioners recommending MAID as a cost-cutting measure to alleviate strain on the health care system is unsettling, as suggested by a 2020 analysis estimating potential annual savings of save $66 million annually in health care costs.
Individuals considering MAID are already vulnerable due to physical or mental suffering, making them susceptible to external pressures. Reflecting on my own past struggles, I recognize the unpredictability of emotions and circumstances. What seems unbearable one day may change with time and support—yet the choice to end life is a permanent one.
Like many others, I've lived with chronic pain for much of my life. I can recall many days where I've wondered what the point was of continuing to suffer. And then, a miracle drug had come along. Will it continue to work indefinitely? I don't know, but for now, I feel like I have my life back.
And that's the thing, there's an unpredictable nature to health care. What one experiences one day, can change tomorrow.
There are exceptions. I recall reading about Canadian journalist John Scully, an 82-year-old man dealing with severe depression. He was hospitalized many times, had 19 treatments with electroconvulsive therapy (ECT), and takes up to 30 pills a day to manage his chronic pain and health issue. Shouldn't he have a choice?
And yet, I was struck by something in the statement put out by Lauren Hoeve's parents. "Millions of people are affect by ME/CFS, with no established treatment pathways and no cure," they wrote on X on Feb. 2. "Why is their suffering acknowledged enough for euthanasia but not enough to fund clinical research?"
And herein lies the rub. Why is euthanasia offered as a viable solution to a potentially non-permanent problem, when other options are possible?
Mental health services in Canada (and elsewhere) are scarce. Psychologists are expensive and out of reach for many. Psychiatric services are free of charge, but the wait lists are even longer than those for psychologists and few people can get access. The wait to get help is usually over a year. Family physicians just end up prescribing medications based on a checklist and see what sticks.
Those living with chronic pain and disability have been put at the front of the line for MAID. Readily being presented with assisted dying services—instead of treatments or alternatives—can create a sense of being undervalued or marginalized. It implies that end-of-life choices should be prioritized over efforts to provide care, support, or treatments that could improve one's quality of life or extend their lifespan.
Moreover, individuals feeling like a burden on their families may be easily swayed.
I've heard of least one case where a woman decided to end her life because she couldn't get access to opioids for pain management. And while opioids are far from ideal, when it's a choice between life and death—perhaps her doctors should have considered giving her another chance at life.
For me, the troubling part of all of this is that instead of enhancing life-staining systems—whether for people with mental health concerns, chronic pain, or disabilities—our government is opting for permanent exit plans that alleviate strain on the health care system, instead of improving it.
People deserve to have choices—and the choice to end their life should only be considered once every other possible option has been exhausted.
An estimated 836,000 to 2.5 million Americans and more than 580,000 Canadians suffer from ME/CFS. Their lives are inherently valuable.
The views expressed in this article are the writer's own.
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theshortolivia · 4 months
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Get to Know me tag :)
Was tagged for a get to know me tag game by @deerlisteners and these are fun so thought I’d do it for the like two people who will see it, even though, they are both childhood friends and know all this…
1. Are you named after anyone?
Yeah! My moms named me after the character Olivia Benson from law and order because she was a ‘strong independent woman’ like they wanted me to be and they also both had a crush on her/the actress who plays her. Bonus fact I’m p sure if I’d been born male they woulda named me Josiah
2. When was the last time you cried?
Uhhh, I got emotional and ALMOST cried at the ‘shoe scene’ (can’t be any more specific cause Huge spoilers) when rewatching Jojo Rabbit, I DID cry when I saw it in theatres and I HIGHLY recommend it as a comedy satire but also a harrowing reminder of history we should never forget (and for taika waititi of course). Um last time I actually cried I don’t remember cause recently my mental health has been depression apathy and not anxiety tears but it was Probably out of frustration at my chronic illness limiting what I can do, not a fun anecdote unfortunately but sometimes it be like that
3. Do you have kids?
I do not and I don’t plan on having any anytime soon for economic, chronic illness, and age reasons (I’m 22 lol I am Not settled in life I don’t even live alone). I would like to have kids when I’m older and more settled health and money wise, I love kids and feel I have so much love and care to give, i think I’d both enjoy and be a good mother. Also, I’d like to have them ‘traditionally’ because I’d like to experience pregnancy and I have some good genes lol. I think I’d like to have 3, partially because I do think I will love to raise and love children but also largely because I want my kids to have multiple siblings and to have a bigger (I know that’s not large in the grand scheme but for like, this day and age and economy and etc) family and for their kids to have multiple aunts/uncles. I love having a brother and wish I had more siblings, I wish I had a sibling closer in age that I could relate to, but I do still enjoy taking care of him and him being my baby brother. I also used to have 5 aunts and uncles (well 10 since they were all married ig) and many many cousins of all ages before we stopped talking to that side of my family, and I have two uncles (and my aunts their wives) and only see a few of my cousins due to where they live, and I am so glad I have family gatherings that big but I do miss the giant ones too, therefore I want for my kids what I have and love.
4. What sports do you play/have you played?
I am NOT a sports girlie. Up until I was 12 ish I was a very into ballet and modern dancing (would’ve continued but alas anxiety struck) and after that I did musical theatre which is its own style of dancing, incorporating all different types. I’d love to go back but since I stopped dancing due to a steady string of anxiety, anxiety medication side effects, foot problems, and then finally chronic fatigue syndrome, I’ve become out of shape, have really bad feet, and REALLY struggle to find time to take care of myself. I do want to start exercising again in ways that don’t require me to have functional feet like weight lifting, aerial dancing (those fabric strip things) etc. But I am Not good at sports nor do I like it, sorry. I remember basketball in elementary being the most frustrating and volleyball being,,,ok
5. Do you use sarcasm?
Hm in general i don’t think I do actually, I’m a pretty earnest and straightforward person myself and idk using sarcasm feels negative? For me? And I strive to be as positive to others as I can be. (Not that sarcasm is always mean I just feel like it don’t my Vibe ykwim) but I’m also somewhat socially and subtextually dense so I think it makes sense I don’t use something I may not be the best at understanding unless it’s obvious
6. What is the first thing you notice about people?
Hmm, I think that varies a Lot, it’s probably usually either makeup, clothing, hairstyle, or tattoos if they stand out or if they’re something I’d want myself or am attracted too or like aesthetically. I always try to get up the courage to compliment people on things I notice because I feel good when I get complimented so I want other people to feel like that too :) also actually since I’m a cashier and people hand over cash and point cards often I usually notice nails. Oh I also notice extremes in height immediately, I’m short so people shorter than me are like woah! And people super duper tall are also like Woah!
7. What’s your eye colour?
Dark brown
8. Scary movies or happy endings?
TLDR happy endings, I’m a sucker for happily ever after to the point where if it didn’t end happily I’ll probably write or st least daydream a fan fiction ending where it does. ESPECIALLY romance it Always gets me. I do like scary movies though, especially psychological horror, although,,,In The Tall Grass FUCKED ME UP (the movie, I don’t read stephen king books cause his writing style makes me uncomfy but man does he have some fucked up terrifying horrible ideas for for him)
9. Any talents?
Ig that’s kinda complicated cause I’d probably call myself a jack of all trades (but master of none). I was one of those kids that was praised for being good at like everything the first time I tried it and now as an adult has to learn how to study and have a huge issue of getting frustrated and stopping anything I try that I’m not immediately good at therefore never being able to improve because I’m not practicing. But I’ve been Told by teachers, professors, and other people that I’m quite talented at singing. I starred in some musicals in elementary school and studied vocals in high school, in choirs the whole time too, so I’d say I’m like, sort of trained in musical theatre and opera and I Have worked to improve my voice. But I was also told that apparently when I was 3 ish I grabbed a mic and went on a stage (probably at play group or smth idk) and belted twinkle twinkle little star and parents laughed and said I’d be a star one day so idk maybe I just have that star quality lol. Oh I’ve also been commended for my acting skills back before I did acting? But I haven’t done much of late and wouldn’t consider myself exceptionally skilled, I want to be though! I uh also had a period in high school where I discovered I liked (and was good at) academics and excelled in science and math and focused Heavily on that, getting awards and whatnot. I’m not gifted but my mom and grandfather are (were, granddad is not alive) and I definitely did get their big brains.
Oh also I’m like a professional daydreamer at this point I write whole ass stories in my head most of which Never make it to the Google docs and I’m Amazingly talented at oversharing I’m sorry in advance tell me to stop talking I literally won’t mind I promise I ramble Too much
10. Where were you born?
Ontario, Canada
11. What are your hobbies?
Too many. I have this issue where I like too many things so I spread myself too thinly to commit to spending enough time practicing on any one thing to improve, and then on top of that have this thing where I can’t just do something for fun I have to be Good at it (which I think stems from being a Talented Kid™) BUT here’s a list here we go it’s long
Singing
Acting
Dancing
Cooking
Baking
Writing
Makeup
Learning languages (I’m shit at it tho)
Linguistics (how languages WORK is So Cool)
Driving
Drawing
Learning about cool science things namely psychology, genetic, otherwise biology, or nuclear related
I’m not good at this yet but I wanna get into mixology for fun and also as a job
Can’t sew v well yet but I think it would be So Fun and also good to know cause I have to hem every other pair of pants I get
12. Do you have any pets?
I live w my parents still n we have a dog who’s actually my brother’s service dog she’s a huge black lab named Marshmallow and she is full of so much love but not a lot of thoughts, and we recently got a tuxedo kitten i got to name Carmilla (Carmilla is the name of an 1872? gothic lesbian vampire novella that came out before dracula, see my kitten loved to hide n is super duper fast and also play bites, hence, vampire)
13. How tall are you?
5’1 or 152cm
14. Favourite subject in school?
Too many uhh in high school I rlly loved general biology, my vocal classes (which we learned solos in Italian, German, and musical theatre genres and etc it was amazing), my intro to sociology, psychology, and anthropology class, my human development throughout the lifespan class (I wrote a super cool paper on the theory of infantile synesthesia which tbh is probably the best paper I’ve ever written), and my drama classes. In uni so far I’ve enjoyed my year 1 biology class, Especially the second half cause it was like almost All genetics (soooo fascinating!!!), I Loved my Japanese class which was hard as hell but so fascinating and awesome (I love languages and how they work, and Japanese being so different from my native language of English was really interesting, I also really like Japanese food and culture and nature so learning the language was partially because I think it’s a wonderful language but partially so I can go to Japan at some point), my psych intro class was fascinating and I especially enjoyed the parts on sleep and consciousness and on sensory and perception, those parts of our brains are sooo cool I also really liked my Health Psychology (relating our body to our mind was eye opening and very interesting) class. All those classes had super interesting subject matter AND really amazing sweet and helpful professors. Oh my intro data science class was cool cause I got to do shit of coding which was fun and rewarding
15. Dream Job?
Ok so remember the ‘jack of all trades but master of none’ thing? Liking and being somewhat good at many different things is rlly not helpful for deciding on careers, the end of that phrase ‘but better than being a master of one’ I’d say isn’t true cause I do think being good at One thing has its pros and cons, a pro being it’s def easier to decide what to do. I’ve been told I could probably make it in the opera industry, and I would love to act and sing for a living, whether that’s theatre, film, or voice acting, preferably I’d love to do them all tbh. It feels narcissistic to admit but I do like the recognition for performing, I relish the applause I get during curtain calls or after a solo, I wouldn’t say I Live for the applause but I do like it, I think I’d like to be some level of famous. However I know that’s not easy to attain and I also would love to be a teaching and researching professor of psychology and genetics. I love presenting and teaching and am very good at it (my best marks are always on presentations lol) and I love researching concepts that are interesting to me, like for example if I had to write a thesis right now I’d probably write it about the possibility of finding the epigenetic patterns that cause hereditary depression, anxiety, etc, and use CRISPR gene editing technology to correct those thus ending the cycle of hereditary mental illness instead of putting the bandaid of a medication on it. Also I know that coding and computer science is lucrative right now and I did enjoy my taste of coding so I’d also love to look into that. I Do want to make a lot of money so I can afford to take care of those I love (and myself), be more sustainable, and enjoy some extra things in life like fancy and unique or uncommon to my culture food
No pressure but Also tagging @dragonheart1330 :)
I probably didn’t even say One thing @dragonheart1330 and @deerlisteners don’t already know lol as I said I am soooo talented at oversharing
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I was told the other day by my friend that whenever I talk about my disability/chronic illness it really drags her down and she feels like she feels like saying anything would make me mad or something so I should just never do it again.
All I wanted was someone to say "that sucks I'm sorry I hope you feel better". Literally all I wanted. And here I am feeling weighed down by 1000 pounds of chronic fatigue from long covid and a deteriorating body plagued with undiagnosed eds, ibs, and endometriosis, thinking about it.
I know she does care but god. Does it fucking sting to know that I can't talk about my struggles with my friends. I know friends are not therapists but I just. Dream of the day I can say "hey I'm feeling bad" and they would say "oh I'm sorry you feel bad" instead of ignoring me or telling me I make them depressed.
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eyesaremosaics · 8 months
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I’m struggling with pretty serious depression for the first time in years. I’ve had sad days, or been sad that Yury and I were in an argument, but this is something else entirely. This is like the olden days of depression from my teenage years, or like circa 2013 or something. Or worse 2016. It’s getting there.
A part of it has to do with my getting a new therapist. Retelling my life story to a new person is retraumatizing me all over again. She wants to do more somatic therapy with me… which I am open to trying. I’m open to doing whatever I can to fix my broken brain. It just feels so insurmountable. Having cPTSD is like living secretly with a terminal illness, you try opening up a crack to others and they run like it’s catching.
I feel like I struggle with regulating myself and my emotions so much. It’s almost like I am overtaken by them, and I obsessively focus on people being mad at me, or what I said or did that was so stupid. Torture myself over and over until 3am. I don’t sleep well because I am haunted by all my angry outbursts, dissociative tendencies, escapism through drinking or drugs, my inability to focus long enough on anything to absorb information. People think I’m rude… but really I’m just chronically overwhelmed.
My nervous system is shot. I have been ignoring my diagnosis for the past 4 years since it was suggested to me. Now that I’m facing it head on… a lot of things are coming up. Stress and tension at both my jobs doesn’t help either.
I just worry that I’m always going to be this chronically stressed out, grouchy, snappy annoying person who gets easily overwhelmed and pushes people away with all my “muchness”. I feel like I’m not able to control my rage and self consciousness at times.
My anger is palpable, and frightening—or so I’m told. My body is angry because it’s so conditioned to receive abuse and manipulation. It’s like the anger…is my last stand at reclaiming a little shred of myself.
The last therapist I had… did some real damage to me. She said : “how scary that must be for you. To not be able to control it.”
It was the way she said it too... Sigh. It’s just been a lot to sift through. Now that I have a new therapist, I’m having to retell my life story, and it’s almost like it’s retraumatizing my system all over again.
Do you ever feel that way when you have to talk about your traumas? Like you’re reliving them all over again, but at the same time it feels normal to you, and you talk about it nonchalantly as other people stare at you in abject horror?
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devilsskettle · 2 months
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okay i do think i need to start getting serious about getting tested for adhd soon <- been an active conversation since i was 8 years old + my mom only got diagnosed with adhd after i told her i thought i might have adhd in high school so she started looking into it more in an adult context but she was talking to my teachers and doctors about it since elementary school and nobody ever fucking helped me and based on her experience with the diagnosis process i don’t fucking trust any of these fucking doctors it seems like they actively want you to struggle as much as possible to even humor the tiny tiny tiny possibility that your suspicions of adhd symptoms could maybe have some basis and i honestly can’t think about having a doctors appointment without imagining chewing out some poor random doctor for everything about this process that i’m mad about that i will definitely project onto them which may or may not be fair but will not be helpful for me to do lol but it took me almost 10 years to finally go to a doctor and be like hey i think i am severely depressed and have been for a long time and i literally never went back to my pcp because of how dismissive she was of my experience when i asked her about adjusting my medication and that’s one of the “easy” mental illnesses to have hahaha and now i’m scared they’re going to use my depression as leverage that since poor concentration is a depressive symptom that might rule out adhd and like there is some possible overlap with symptoms but for a while i’ve been like well i think there is more at play here actually, i feel like i’m having some other problems that aren’t really depressive symptoms and i’ve even had suspicions that i could be bipolar because i have some stretches of time when i have more energy and can be a lot more. well. hyperactive. hmmmm. and i’m always like could this be mania? i don’t think it’s severe enough to be mania tbh but could it be hypomania? or is this normal? tbh it doesn’t seem normal either but have i been depressed so long that i don’t know what normal is? but if that IS part of my baseline and i am hyperactive sometimes because i have a disorder with “hyperactivity” in the name then that would actually make a lot more sense not to mention problems with executive function, bad grades, obsessive focus on whatever thing i’m into at any given moment, time management problems, racing thoughts, chronic boredom and understimulation. and look i know it’s trendy rn and i know that they could easily see me as a drug seeker especially because if i were to be diagnosed i would want to be medicated (i wish i was still medicated for my depression tbh but again i dropped my pcp 2 years ago and never looked back so i ran out of antidepressants ages ago. rip) but i think its unfair to use that against people who just want to be able to be on the same level of adult functioning as everybody else because i cannot keep up with basic household tasks and work full time and be in school part time (i’m not even in classes rn because it’s the summer and there’s no way i could be in this program if it weren’t offered online and even then i absolutely did fail a class last semester and i’m still waiting to see what the consequences of that are gonna be. hehehe.) but like the state of my room is appalling, mainly exacerbated by my laundry situation in that i never fully put it away AND i think there’s something wrong with our dryer, i always just get random “groceries” like quick meals and snacks from fucking cvs because it’s too expensive to get real groceries delivered especially since when am i going to actually cook???? our kitchen isn’t huge anyway but i definitely don’t have the kind of energy i need to cook AND do the dishes which i am so bad at doing that i have stopped using dishes, i will use a paper towel or i will buy stuff that is already in a container so i don’t have to dirty any more dishes. which is why i have no dishes in our sink rn or for the past couple of months JUST FOR THE RECORD but its not because i’m a paragon of cleanliness and maturity lol
obligatory paragraph change because of the character limit!! i have had to be given multiple “verbal warnings” at work for frequent enough tardiness that it was noticeable and on one hand it’s like lol a verbal warning. okay i am shaking in my boots but it’s also just another mark against me in the opinions of the people making decisions about who might get promoted or not and i don’t have a great “escape plan” from this current job especially since i don’t know where my future will lie academically with my current grades and that was like. my whole plan to have a better career trajectory lmao so another option could be 1) apply to be a supervisor in my current department if a position ever opens up? <- won’t happen because they think i’m “timid and shy” and consistently late and don’t like me or think of me in any position of authority even though i know everything there is to know about my current department other than like. ordering stuff for the store and how to close the cash drawer at the end of the day which supervisors and managers do. 2) apply for a job in a different department <- also won’t happen because a lot of positions require a drivers license for no apparent reason and they’re super weird sometimes about hiring internally and as we established they don’t like me or see me in any other role despite consistently, i believe, demonstrating my competence. we have performance reviews coming up this month and i am basically ready to jump off a bridge anticipating bad feedback for stupid reasons. but my manager said good things last time so maybe i can start saving some evidence of good feedback to whip out if i ever do apply for anything internally. even making the switch from part time to full time in the same role same department same everything was like a truly painful and humiliating experience i am not prepared to do all that again hahaha. anyway. ummmm all that is to say that i do think there are some behavioral problems i have that could be symptoms of adhd that are negatively impacting my life in a significant way. but w/e idk what doctor will ever listen to me because i’m so “timid and shy” <- said this twice in quotes because that’s a real thing the guy from hr said to me when i first applied to switch to full time and i did give him pushback on that in the interview but like that’s how people see me because i have a naturally soft speaking voice and i don’t say everything that i think all the time and don’t need to be the center of attention constantly or beg for other people’s approval and i mind my own business!! i’m in guest services i’m literally not too timid to talk to people lmao and the coworkers i like i can be very chatty with. he said this after meeting me twice for 5 minutes in a role i wasn’t usually scheduled in at the time and all of my performance feedback was based off of that. sigh. one of my coworkers who is this sweet older lady calls him “the rat” and literally hates everyone in hr so much hahaha it’s honestly so validating to me. anyway they don’t diagnose quiet girls with adhd but luckily i’m not successful like my mom was so i have a lot more “evidence” that this could be a real problem than she did and she was still definitively and emphatically diagnosed with adhd by a specialist who did NOT want to diagnose her with adhd and told her as much. so maybe they’ll see it as something real that they should really consider and give me a real solution for but i don’t trust that they will at all tbqh the process that my mom went through seems like my personal hell of paperwork and doctors appointments and talking about your feelings and your failures and having a series of people dismiss you and actively work against you to get anything productive done. AAAAAA but i do feel like i need to do it if i want to stop wasting my life and try to get on the right track again and if they really really really tell me i’m wrong and that i don’t have adhd then i will listen as long as they give me some next steps to help me figure out what the actual problem is then. tbh though like i said
another obligatory paragraph break!! i’ve considered other possibilities and part of the diagnosis process is ruling out any other possible underlying causes but before typing the word “hyperactive” about how i sometimes get a burst of energy for a couple days like that, i did not even make a connection between when i wondered if i could be manic/hypomanic vs whether that could be adhd hyperactivity unhampered by depressive gloom. like i kind of want to pull my hair out in frustration feeling kind of dumb that i considered mania before i considered the hyperactivity disorder hahahaha but anyway. i will send some emails tomorrow morning, my mom (unprompted by me) sent me an email with a bunch of resources to get tested lmao and since she has already gone through it i feel like i can at least see what happens and my process will probably be a lot easier than hers for a LOT of reasons (childhood history + testimony from people who have known me from my childhood to now, family history obviously, demonstrable evidence of adverse effects on my life and general adult functioning) so i should at least try before i really fucking lose my mind or fuck up my life any more than i already have lol
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bvtbxtch · 1 year
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About Me
Carly - she/her. 26
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Libra Sun Libra Moon Libra Rising 
Canadian 
Bisexual but am in a loving relationship with my husband! We have been married for just over a year and dating for 10! 
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I went to university for Drama and Teaching. I was teaching grade 7-9 french and drama but have taken some time off for my physical health. I really love teaching but am hoping I can find a new job in a different school or outside of a traditional classroom! 
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In my spare time, I love acting and singing. I just performed as the highschool lead Ellie in Freaky Friday the Musical and was going to Nationals for the World Karaoke Competition (I was actually going to make a battle of the bands fic and record reader’s band’s cover myself hehe). I had to back out of the karaoke competition unfortunately because I had a pretty big health scare and almost died. 
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I live with a lot of chronic illnesses. When I was young I was diagnosed with Celiac disease. In highschool I was diagnosed with psoriasis. I eventually was having issues with my joints in my early 20s (my hands were locking and I was tired all the time). Lo and behold, I got diagnosed with psoriatic arthritis as well. Last year, I struggled even more with my health and my arthritis seemed to be getting worse. I ended up having to go on special medication, which stopped working and I was then diagnosed with fibromyalgia in June. Because of a lot of medical trauma, I have also been diagnosed with GAD and chronic depression. It has been a really hard couple of years and I have been struggling a lot but I am really happy that I have a great medical team behind me.
I started this tumblr in the midst of my lowest point both mentally and physically. I fell in love with ST4 and Eddie Munson (like most of us hehe). I was so inspired by the fanfics that I had written and I wanted to give my own go at it, Hence Angry Heart. Y’all ate it up and here we are and I am so thankful for you! 
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My favourite foods are poutine, ramen noodles and cookies.
I love playing video games and my favourites right now are Dead By Daylight, Slime Rancher and Overwatch 
I also really enjoy reading. My favourite author is Stephen King and I am currently reading It. My favourite books of all time are The Shining and The Duff. 
I have a shihtzhu named Boss and he’s the love of my life! See a picture of him below. 
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I just want to thank you all one more time, I have loved being on this journey of self-discovery and reigniting passions for writing and creating. I am really thankful for all of you!! I have met such amazing friends and supportive people. If you feel like you ever want to talk, my requests or inbox is always open!! Thank you for sharing your space with me.
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