#she’s depressed and struggling with chronic illnesses like I am

[rosicheeks]

I get mad about Fb posts too!! I struggle with being jealous of others and it makes me hate myself. I wish I wasn't like this lol

I relate to this so much omg

[diegoshargrieves]

listening to my parents talk about me is so fucking funny. "she's dealt with us for so long that at this point she's done. she's mentally checked out from having to give a shit about anyone. can you believe how corruptible she is just because she's almost an adult and she thinks that we're not her problem anymore?"

like man you are literally so close. so fucking close.

[peacephotography]

Four Lessons for the Long Haul - What Long Covid has taught me on resilience

When the paramedics came for me in the sweltering days of May 2020 it didn’t feel real. I had just passed out in the heat and collapsed headfirst into a radiator. I’d seen paramedics attend to friends and relatives, but in my feverish state, it didn’t sink in that they would come for me. My youthful sense of invincibility quickly faded. I found myself unable to lift my limbs or produce full sentences, and interminable headaches left me in despair. The after-effects are still with me today, in the form of Long Covid.

Now that I have regained some energy, I would like to share some of the lessons that illness has taught me about enduring difficulty in the climate and ecological crisis.

Lesson One: We need courage, not hope

Let the pain be your fuel. Let your total rejection of the status quo give you the courage to transform your life, to stand out from the crowd, and demand transformative action.

Margaret Klein Salamon, Facing the Climate Emergency

For the first few months of my illness, I woke up every morning hoping that I would suddenly recover and have “my life back”. Rather than letting go of what I could no longer do, I kept trying to live as before. But this detachment from the reality of my situation only brought me more pain.

Once I had the courage to face the uncertainty of illness, I let go of anxiously awaiting a miraculous recovery, and relaxed into my situation. In facing my pain and isolation I was able to accept them. They are a state of exile and vulnerability that can be a source of strength for navigating our bittersweet world.

The same is true for facing the climate emergency. If we hope that technology will save us or that criminally negligent governments will suddenly act responsibly, we are recklessly gambling our future on very poor odds. This can only bring pain.  Once we start to tell ourselves the truth about the situation, we can find pride in our honesty and compassion in our grief.  It’s from here that the resolve to take action will emerge.

Lesson Two: Follow your bliss

Joseph Campbell’s saying, “Follow your bliss,” is not an irresponsible phrase that ignores the pain of life but a reminder to receive pleasure and contentment, even in the depths of suffering.

Toko-pa Turner, Belonging

In illness, every day feels like a struggle. When it shows no sign of improving, or worsens, I lose my morale to keep going. It's an exhausting and depressing limbo. In the darkest and weakest hours, I saw my life flash before my eyes and began to dream of people and places I hadn’t seen for a decade. I saw the highs and lows that had shaped me into the man I am today. This gave me some space and perspective to see things from a different angle. From each challenge, there was a learning on how to face hardship. From each joy, an inspiration to live to the full.

Holding on to these feelings helps bring balance to life. In activism, we follow a true passion and through it find our fullest potential. But even this has its limits. Every step along the way we need to find that balance of difficulty and joy for our own wellbeing. Our struggle for climate and ecological action brings many challenges that can lead us to despairing inertia. In my sickness, a joy was as simple as the view from my bedroom window: a falling blossom, a scudding cloud, a wandering snail.

Such joys became my music, my dance, my poetry, my comedy and my sport: ways to relax into whatever challenge chronic pain brought.

Everyday joys can give us the resilience to keep facing what we must face. So as we rebel with all our might against the existential threat posed by the climate and ecological emergency, let’s also cherish what makes our existence so precious. From that reflective space we can find the courage to keep going.

Lesson Three: Words Matter

“The merest schoolgirl, when she falls in love, has Shakespeare or Keats to speak her mind for her; but let a sufferer try to describe a pain in his head to a doctor and language at once runs dry.”

Virginia Woolfe, On Being Ill

As I slowly regained my speech, I struggled to find the words to describe what I was going through. It struck me that there is a serious lack of language on both chronic illness and climate chaos.  If you are unable to express a feeling, you are unlikely to find any solace for it.

For our society to be able to come to terms with the emergency we need a language to relate to in films, literature and TV.  Some of the best I think we have so far are Parable of the Sower by Octavia Butler, a piercing portrayal of the rise of sexism and racism in an uninhabitable America; The Road by Cormac McCarthy, for its portrayal of the gritty end-point of mass extinction; and early Studio Ghibli films such as Princess Monoke/Nausicaa, whose heroines champion coexistence with the natural world.

However, the vast majority of current work focuses too much on apocalypse scenarios, produced to scare the shit out of us, instead of relatable everyday stories. How about a  climate drama set in water scarce Somalia? Or a northern woman’s heroic adventure to save her hometown from flooding? We need more romances that argue over whether having kids is responsible and comedies that mock the insanity of our toxic system like The Yes Men��or Simon Amstell’s Carnage.

Stories are key for an emotional connection to the challenges humanity faces. Our stories of rebellion can be cathartic for climate anxiety and stir a generation of heroes ready to speak out for their futures. Let’s start writing them.

Lesson Four: Belonging

“By reviving a community, built around the places in which we live, and by anchoring ourselves, our politics and parts of our economy in the life of this community, we can recover the best aspects of humanity. We can mobilise our remarkable nature for our own good and the good of our neighbours.”

George Monbiot, Out of the Wreckage

Being housebound and unable to hold conversations without paralysing headaches is extremely isolating. Yet even in the depths of my pain I was able to appreciate the love of our community. Rebels gave me cards, voice-notes, medical advice, paintings and - best of all – cakes, cookies  and biscuits fresh from the oven. The feeling of belonging to and being supported by a community of kindhearted and extraordinary people gave me strength every step of the way.

Together we are building a community that can hold us through the dark days with pride, friendship and joy. We are showing not only the best aspects of humanity but also the solid foundations of a successful social movement. The climate and ecological emergency will shape the rest of our lives. So take every opportunity you can to nourish and prepare yourself for the long journey ahead. You’ll not only be more resilient, but you’ll find more joy.

-- Thanks for reading. If you enjoyed this or can think of someone who could benefit from these words please do share it. If you'd like to read more, subscribe to my blog :) Peace, Robin

Photograph: Franck Fife

[fairytypingg]

fuck it we're doing this

RAGEON HCS!!!!!

Velvet;

19

leo(i think thats what i am, idk a lot abt astrology)

7 minutes older and takes it way too seriously

overplans for everything

screams cries crumbles if she doesn't have 100% control over any situation

plays a lot into appearances but is actually a chronic workaholic(gets it from her uncle)

she and veneer were raaised by their uncle actually!!

velvet has a love hate relationship with the music industry, before and after the events of the movie

TRUST. ISSUES.

cannot ever talk about her feelings she'll explode

bottles everything up like im so serious

"i'll keep all my emotions right here. and then one day, i'll die."

she vents frustration by talking mad shit in cs:go lobbies

she's really good at the game

scary good aim because of it, and that DOES transfer to real life

has 97 mental illnesses and is banned from most public spaces/ref

"i inhereted severe generational trauma and all i got was borderline personality disorder"

someone help her

she needs therapy

also autistic <3

Veneer;

19

also a leo

7 minutes younger but only remembers bcs velvet will not let him forget

he seems chill in comparison because velvet is so high strung but he is the most dramatic bitch ever

says really out of pocket shit without thinking

"yeah that's why your parents dont call you then haha- what why are you looking at me like that what did i say"

he's the epitome of unmedicated adhd

probably needs glasses

the only one of the twins with a drivers license

was very outgoing growing up because velvet hated talking to people, so someone had to do it

doesn't rly understand velvet being depressed and thinks shes a drama queen like him

"im tragically doomed by the narrative" "drink water dumbass"

hes morosexual

"if a man can locate mount rageous on a map that man is not my type"

dumb fucking ass

love him, hes just kinda stupid.

Kid Ritz:

20

idk any other zodiac signs use ur imagination

every personality disorder you can think of

emotional manipulation is a sport and he is bringing home the gold

whats wrong with him

the answer is mommy issues. and rampant childhood neglect. also when you're raised as rich as he was you're gonna come out weird

struggled to understand the concept of lying as a child so when be finally got it he retaliated by lying for sport and then never stopped doing that

prefers machines to people

hes one of those "there is a minimum iq requirement to talk to me" guys

not just a talk show host!!

he's well trained to take over his father's political position when the old man retires

current director of public security

he's known as a purveyor of gossip for a reason

the saying goes that nothing happens in the city without his knowledge

hyperintelligent

like genius iq, reading at a college level by age 5, etc

actual child prodigy in every conceivable way

notorious for being "perfect"

he's the face of Ritzworth Media Corp for a reason

evil genius

also lonely

his father is grossly neglectful and his mother is a deadbeat

did i mention he has mommy issues

never met his mom and has devoted a lot of his energy to forming an intelligence network dedicated to finding her

hates people

like very antisocial

struggles HEAVILY with empathy

his interviews are notoriously difficult since he entertains himself by making his interviewees squirm

casual sadist in every conceivable way

What's Wrong With Him/aff

Orchid;

18

use ur imagination again im not gonna look it up

rebelling against common characterization here stay with me

secretive about her past but obviously hiding something

a chameleon type of person, can change her behavior, mannerisms, and even accent at the drop of a hat

carries a deep grief with her

distrusting and calculating

she'll "befriend" you but it takes a lot of effort to actually gain her trust

she WILL discard you if she's even slightly suspicious

nobody is sure what her goal is, but she has an agenda

orchid might not be her real name either

very mysterious

generally presents as kind and friendly but it's noticibly fake

cannot stress how much she is hiding something

capable of murder and not afraid to resort to such to protect her secret

dont look in her closet

she has participated in her fair share of underage drinking and can hold her liquor pretty well, but if you manage to get her drunk enough you may be able to pry some answers out of her

has a distaste for celebrities she doesn't see as beneficial to know

gives like. really good advice

identity issues <3

the song Phony is perfect for her

she moves as if she's used to her hair being longer than it is

what is she hiding?

[soupandspoonies]

To honour me saying I would blog more than I have been I thought I'd talk a little bit about my experience with therapy as a chronically ill person, because there may be people who relate and I think it's good to talk about :)

To start, I have been doing therapy since I was first diagnosed with my first condition (I was about 10 years old at the time) and the therapy I was put in was CBT, as recommended by my neurologist. CBT refers to cognitive behavioural therapy and follows the mindset that if you can reframe your mindset about something it can affect you less.

Beginning this therapy I had very little understanding of my condition and I was struggling a lot with losing my ability to do a lot of the things I had once loved to do. In this aspect, having someone to talk to was very helpful and my counselor reminded me that I still had things to look forward to and all was not lost. Eventually however, this therapy started to influence the mindset that if I don't talk about my pain and suffering with my illness, that it will hurt less and I began to feel my pain was no longer valid.

I believe that this type of therapy can be very helpful given the right circumstances and it did help me in some ways - but it also stifled my ability to talk about my pain seriously and I began to feel like I was weak for letting the pain affect me.

I think talking about your chronic illness and disability is a very helpful tool when you are struggling - which is why I started my blog - but I also feel it is very frustrating trying to talk about it with people who don't understand because they have never experienced it. I have tried my best to make my friends and family understand that I will always be held back by my illnesses and disability, and how it causes me mass amounts of grief at times. I am losing the person I once was, and people generally don't understand what it is like until it happens to them.

I am still in therapy, with a new therapist whom I feel I can really trust with my issues. After being ill for so long, I began struggling with anxiety and depression, and having a therapist has certainly been helpful (along with medication). I was able to highlight with my new therapist how my previous therapy experiences affected me and I am now able to be very open when I don't like the approach she is taking with my problems. She will never understand what I am going through, but she approaches with empathy and lets me talk through my feelings without making me feel as though I need to stifle them to make her or others understand me.

I think that I will always struggle to find people who understand me, I will always have that grief for the person I lost in myself, and this pain isn't going away. I have struggled a lot entering therapy again because I never felt like I could be validated by someone who doesn't understand, but I am slowly coming to realise that even through the frustration of being misunderstood - it is a really useful tool.

I hope any others who are struggling with entering therapy for one reason or another will take what I've said into consideration. There will likely be a lot of frustration because you feel misunderstood and alone, but if you find the right person it can take a big weight off your shoulders.

I hope everyone has a happy Halloween!! :D

Soup

[skyfallscotland]

Hi! I hope you’re feeling better. 💜

When I’ve heard writers talk about their process, some outline a character before they start writing and outline everything- the charcater’s history, personality, etc. While other writers say the character “talks” to them as they write and they don’t plot a lot out before hand. I’m curious- how much of Remi’s personality did you determine before you started writing? For example, did you know she was wonderfully snarky before you started writing? Did you always know she struggled with depression?

I know you’ve written other OC’s too. Has your process changed since writing Tessa and co?

Hi!

I...am incapable of lying lol. I'm not really, but I appreciate the sentiment 💗 Not looking for sympathy, just keeping it real 💀 The depression be doing some depressing. But hey, *sobs as I smash at my keyboard* it makes for great content!

I don’t hear it. I can’t hear anything but the pounding of my own heart and one memory on repeat. You can love someone and hate them a little at the same time. My mind is stuck on that. I know he loves me, but—he hates me, he hates me, he hates me—I fucked things up.

I never outline an entire character before I start writing. I have an idea in my head, but not a whole profile. I don't even name them until I'm part way through a story, they're "Name" usually until like chapter five-ish and then I hate their names until like chapter ten.

The case of Remi is a little different, honestly I've kind of done things backwards. When I created Tessa I had an idea of what her personality would be, based on what she'd been through living in Illyria and there were small parts of myself I incorporated into her, like her struggle with social settings and relationships. With Stella I was more just having fun, but keeping in mind the (broad overview) history I had planned for her. They do kind of just write themselves, if I'm honest. It's why I like to write ahead, because I only ever have a broad plan in mind.

I don't know that I ever really planned to publish BRV outside of like a little wattpad adventure. It was entirely self-indulgent. I tried very hard with Tessa and Stella to have them be...measured? I guess you'd say. To not pour too much of myself into them.

Remi was cathartic. There's so much of me in her. She was my 'whatever, it's not serious' character and story. I just threw whatever I wanted at the page without worrying about whether things were realistic or too self-indulgent and I guess that worked for a lot of people.

I knew she'd be snarky and a realist and that she wouldn't be as settled as Violet with her chronic illness. I knew she'd be depressed and quick to anger because that's me and my experience and it was a therapeutic process pouring all that out onto the page. So I guess I didn't really need to determine anything, I just wrote from the heart. She's almost self-insert. It's made it really comforting that people relate to her so well, because it feels like they relate to me, when no one else does outside of the internet.

It's funny because I'm trying (and never making time) to plot out the original novel I plan on writing and there's this voice in my head like saying I have to be measured and I have to plot out these characters first and their whole histories and personalities because it's a Serious Thing, but then I'm reminded that the character I wrote who resonated the most with people was just me throwing my unhinged feelings into the void, so???

Also, I had intended my first original fantasy novel (featuring a chronically ill fmc and dragons) to have two main characters—Remi and Caden. Then Fourth Wing came out and I screeched in fury. I used the name for BRV anyway, but... 🙃

And the MMC for my sports romance is named Liam and I wanted to give the FMC a nice tough girl name like Sloane 😭 but I guess the universe said fuck you, again, so that's a nope, so if anyone has suggestions here I am.

[ssruis]

Idk the treatment of saki’s disability by the writers just irritates me bc like (& full disclosure this is written by someone who’s chronically ill but able to live w/o major symptoms) there’s so little thought put into how her disability specifically intersects with her mental health & overall life beyond a general Inspirational Look At Her Go She Can Overcome Anything type of take.

I dislike fully articulating my thoughts but to sum it up my experience with my own chronic illness was manifestation at 18 -> horrifically managed for 2 years bc doctors/parents did not take it seriously -> in so much pain that I couldn’t really move until i was put on immunosuppressants during peak covid and I watched close friends treat me like a burden for wanting the group to take covid precautions/abandon me because I couldn’t Party Hard anymore (to the point where one friend brought me somewhere where her friend fucking had Covid and sat next to me & then she texted me the next day like whoops heehee) -> severe depression & life ruining ensued. My family had to deny a good insurance opportunity bc my RA was an existing condition & they wouldn’t pay for my meds for two years and I had the fun side effect of my mom implying it was my fault/it was a burden over it. Etc etc. I don’t want to get into the full story because it’s unfun and also lengthy but I want to provide context for why saki’s treatment bugs me.

Her not really caring about honami/shiho not visiting bugs me. I get that life gets in the way but them going (semi?) no contact is a little shitty. Being disabled & not being allowed to be upset about the treatment you receive from your loved ones because you know they don’t see it as a big deal is. So frustrating. She deserves to be upset with them for that and have a conversation about it. There’s so much pressure on people w disabilities to essentially go “yeah I am a burden it’s my fault so I’m grateful you’re even spending time with me” that’s reflected in saki’s story and never challenged.

I’m too tired to articulate the complexity of her dynamic w tsukasa but it also frustrates me that it’s only touched upon that saki feels like she inconveniences him by being sick/she thinks him going out of his way for her is a burden. I love tsukasa and I’m obsessed w how much he cares about his sister but I also think saki deserves to be frustrated with how neurotic he is about an illness that isn’t his own.

So much abt being disabled (especially for those who are more affected than I am - I want to make that clear) is being told by society that you are a burden for needing accommodations/costing your family money/struggling with things able bodied people can do/etc. & saki very clearly feels a lot of that but it never gets challenged. Something that’s always stuck with me was seeing a tiktok where someone was like “actually I AM a burden bc I cost my parents money for antidepressants/adhd meds” which was so…. Buddy as someone on those meds and also 4/5 other drugs to manage the chronic illness I don’t want to hear shit from you abt being a burden. Imagine having panic attacks over career choices & fucking up your schooling permanently because you’re petrified of not having stable insurance to pay for the overpriced meds that keep you from being in agony and your friends/family don’t take it seriously because you look fine even though you can barely move without extreme pain and nobody in your life understands it or attempts to do so and you feel like the doctors don’t care because they give you meds & no diagnosis and you’re still in a pain that defies description. And your disability gets in the way of your passions and you can’t just muscle through it because doing so would fuck your body up even more. & then get back to me. Whatever. Doesn’t matter. Moving on.

I don’t know if the colopale writing team has anyone w a disability but I feel like saki’s chronic illness essentially being a thing of the past & she’s just like “I’m fine now” is shitty. Ig it fits with her character but also she’s a fictional character and the writers are capable of addressing this. and they’re not. I want to see saki being told that she’s allowed to be mad and she’s allowed to feel unwell and she’s allowed to not be inspiration porn and she’s allowed to have ugly feelings and address those & that she’s not a burden and it’s ok to rely on others when you’re struggling.

[duchessofostergotlands]

Do you think you could be autistic? No hate just wondered as I am too and I relate to a lot of what you say

Oh my anonymous friend, you don't know the can of worms you have opened haha. I am going to ramble here so just be prepared for that.

When I was little my mum did actually think I might be autistic. Predominantly because I played in an unusual way. I would line my toys up on the window sill and my grandmother's display cabinet thing. I would get furious at people if they moved my toys because they all had their own spot. And the only time I touched the toys was to move them from the cabinet (their home) to the window (the school). The rest of the time I would just stand still, stare at the toys, and wiggle my fingers. They called it "zizzing" - now it's called stimming, I guess - and they knew that was a sign of autism so my mum and my grandmother did wonder about it. But I had two things going against me: I was a girl and I was born in the early 90s. This was during the peak of the idea autism was the "extreme male brain." It was seen as being predominantly a male diagnosis. You probably know that. And there wasn't much understanding so our reference point would be people like our family friend who always looked at the ground, was obsessed with trains, had limited speech and would scream if anyone tried to touch him. Whereas while my family were still thinking about the autism thing I started school and I was academically strong, I had a small group of close friends and at the time - because of the gender disparity - girls only really got diagnosed with autism if they had some kind of very obvious speech delay, they weren't doing well at school, they had no social connections with their peers at all etc. So basically everyone just forgot about it. I got called a drama queen a lot, that was it.

Fast forward to my teens and my mental health was really bad. It got worse at university because I didn't have the routine and structure of school, I didn't have my mum cooking and buying food etc. I was diagnosed initially with depression and anxiety. After a while it was clear that wasn't right so after much fighting I got a diagnosis for Borderline Personality Disorder. Now you may know this but there is an overlap in BPD and autism symptoms and women are often misdiagnosed with BPD later in life because as children their autism wasn't picked up (because diagnostic criteria is still geared towards how it presents in boys and psychologists and psychiatrists don't always delve into motivations and thought processes). I found that out in my mid 20s but thought "nah I probably don't have it, I don't have special interests and I don't struggle with x, y and z." However, my mum became really interested in BPD after I was diagnosed and did loads of research, listened to podcasts on it. And she told she was listening to one podcast where someone was diagnosed with BPD but then they discovered it was actually autism. My mum said to me that the way she described herself in childhood was exactly how I behaved, as if I'd been the one speaking. And so that got me thinking and that's where I have been stuck over the last few years. I debate with myself constantly what's going on in my brain and I truly don't know. I regularly have epiphanies where I think "oh that thing I've done all my life is incredibly autistic." But then I think maybe it's actually BPD. And I just go round and round.

I identify as neurodivergent, regardless of what diagnosis I have. Some neurodivergence paradigms do recognise severe mental illnesses like BPD anyway, but I've realised that if you put aside the BPD I still have chronic problems with ordinary tasks and situations. And I used to think it was just because I was young but I'm 31, almost 32, and it isn't normal to take 3 months to make one phone call because you just can't make yourself do it! Most people don't find it this hard to take basic care of themselves.

[beardedmrbean]

On Jan. 27, Dutch blogger Lauren Hoeve passed away through assisted suicide. After enduring years of chronic fatigue syndrome (also known as myalgic encephalomyelitis, ME/CFS), autism, ADHD, and anxiety, she, at the young age of 28, chose euthanasia to escape a life dominated by pain.

As a Canadian, I am familiar with the Medical Assistance in Dying (MAID) program, which has allowed eligible adults to request assisted death services since the federal legislation passed in June 2016. As of this year, the MAID program was also set to allow those with mental illness to choose euthanasia.

However, a recent development on Feb. 1 proposed legislation to temporarily exclude individuals with a sole underlying medical condition of mental illness until 2027.

This legislation is currently under review by Parliament, and unless it passes, the exclusion will be lifted on March 17, 2024. This means individuals struggling solely with mental health issues may become eligible for assisted death.

A confession: Initially, I welcomed the idea of assisted dying, believing it could be a humane choice for those at the late stages of irreversible illnesses to make choices on their own behalf. However, my growing concern lies in the application of MAID by the Canadian government.

I am now skeptical about the true autonomy of individuals opting for assisted death, especially in a country with socialized health care. The risk of medical practitioners recommending MAID as a cost-cutting measure to alleviate strain on the health care system is unsettling, as suggested by a 2020 analysis estimating potential annual savings of save $66 million annually in health care costs.

Individuals considering MAID are already vulnerable due to physical or mental suffering, making them susceptible to external pressures. Reflecting on my own past struggles, I recognize the unpredictability of emotions and circumstances. What seems unbearable one day may change with time and support—yet the choice to end life is a permanent one.

Like many others, I've lived with chronic pain for much of my life. I can recall many days where I've wondered what the point was of continuing to suffer. And then, a miracle drug had come along. Will it continue to work indefinitely? I don't know, but for now, I feel like I have my life back.

And that's the thing, there's an unpredictable nature to health care. What one experiences one day, can change tomorrow.

There are exceptions. I recall reading about Canadian journalist John Scully, an 82-year-old man dealing with severe depression. He was hospitalized many times, had 19 treatments with electroconvulsive therapy (ECT), and takes up to 30 pills a day to manage his chronic pain and health issue. Shouldn't he have a choice?

And yet, I was struck by something in the statement put out by Lauren Hoeve's parents. "Millions of people are affect by ME/CFS, with no established treatment pathways and no cure," they wrote on X on Feb. 2. "Why is their suffering acknowledged enough for euthanasia but not enough to fund clinical research?"

And herein lies the rub. Why is euthanasia offered as a viable solution to a potentially non-permanent problem, when other options are possible?

Mental health services in Canada (and elsewhere) are scarce. Psychologists are expensive and out of reach for many. Psychiatric services are free of charge, but the wait lists are even longer than those for psychologists and few people can get access. The wait to get help is usually over a year. Family physicians just end up prescribing medications based on a checklist and see what sticks.

Those living with chronic pain and disability have been put at the front of the line for MAID. Readily being presented with assisted dying services—instead of treatments or alternatives—can create a sense of being undervalued or marginalized. It implies that end-of-life choices should be prioritized over efforts to provide care, support, or treatments that could improve one's quality of life or extend their lifespan.

Moreover, individuals feeling like a burden on their families may be easily swayed.

I've heard of least one case where a woman decided to end her life because she couldn't get access to opioids for pain management. And while opioids are far from ideal, when it's a choice between life and death—perhaps her doctors should have considered giving her another chance at life.

For me, the troubling part of all of this is that instead of enhancing life-staining systems—whether for people with mental health concerns, chronic pain, or disabilities—our government is opting for permanent exit plans that alleviate strain on the health care system, instead of improving it.

People deserve to have choices—and the choice to end their life should only be considered once every other possible option has been exhausted.

An estimated 836,000 to 2.5 million Americans and more than 580,000 Canadians suffer from ME/CFS. Their lives are inherently valuable.

The views expressed in this article are the writer's own.

[theshortolivia]

Get to Know me tag :)

Was tagged for a get to know me tag game by @deerlisteners and these are fun so thought I’d do it for the like two people who will see it, even though, they are both childhood friends and know all this…

1. Are you named after anyone?

Yeah! My moms named me after the character Olivia Benson from law and order because she was a ‘strong independent woman’ like they wanted me to be and they also both had a crush on her/the actress who plays her. Bonus fact I’m p sure if I’d been born male they woulda named me Josiah

2. When was the last time you cried?

Uhhh, I got emotional and ALMOST cried at the ‘shoe scene’ (can’t be any more specific cause Huge spoilers) when rewatching Jojo Rabbit, I DID cry when I saw it in theatres and I HIGHLY recommend it as a comedy satire but also a harrowing reminder of history we should never forget (and for taika waititi of course). Um last time I actually cried I don’t remember cause recently my mental health has been depression apathy and not anxiety tears but it was Probably out of frustration at my chronic illness limiting what I can do, not a fun anecdote unfortunately but sometimes it be like that

3. Do you have kids?

I do not and I don’t plan on having any anytime soon for economic, chronic illness, and age reasons (I’m 22 lol I am Not settled in life I don’t even live alone). I would like to have kids when I’m older and more settled health and money wise, I love kids and feel I have so much love and care to give, i think I’d both enjoy and be a good mother. Also, I’d like to have them ‘traditionally’ because I’d like to experience pregnancy and I have some good genes lol. I think I’d like to have 3, partially because I do think I will love to raise and love children but also largely because I want my kids to have multiple siblings and to have a bigger (I know that’s not large in the grand scheme but for like, this day and age and economy and etc) family and for their kids to have multiple aunts/uncles. I love having a brother and wish I had more siblings, I wish I had a sibling closer in age that I could relate to, but I do still enjoy taking care of him and him being my baby brother. I also used to have 5 aunts and uncles (well 10 since they were all married ig) and many many cousins of all ages before we stopped talking to that side of my family, and I have two uncles (and my aunts their wives) and only see a few of my cousins due to where they live, and I am so glad I have family gatherings that big but I do miss the giant ones too, therefore I want for my kids what I have and love.

4. What sports do you play/have you played?

I am NOT a sports girlie. Up until I was 12 ish I was a very into ballet and modern dancing (would’ve continued but alas anxiety struck) and after that I did musical theatre which is its own style of dancing, incorporating all different types. I’d love to go back but since I stopped dancing due to a steady string of anxiety, anxiety medication side effects, foot problems, and then finally chronic fatigue syndrome, I’ve become out of shape, have really bad feet, and REALLY struggle to find time to take care of myself. I do want to start exercising again in ways that don’t require me to have functional feet like weight lifting, aerial dancing (those fabric strip things) etc. But I am Not good at sports nor do I like it, sorry. I remember basketball in elementary being the most frustrating and volleyball being,,,ok

5. Do you use sarcasm?

Hm in general i don’t think I do actually, I’m a pretty earnest and straightforward person myself and idk using sarcasm feels negative? For me? And I strive to be as positive to others as I can be. (Not that sarcasm is always mean I just feel like it don’t my Vibe ykwim) but I’m also somewhat socially and subtextually dense so I think it makes sense I don’t use something I may not be the best at understanding unless it’s obvious

6. What is the first thing you notice about people?

Hmm, I think that varies a Lot, it’s probably usually either makeup, clothing, hairstyle, or tattoos if they stand out or if they’re something I’d want myself or am attracted too or like aesthetically. I always try to get up the courage to compliment people on things I notice because I feel good when I get complimented so I want other people to feel like that too :) also actually since I’m a cashier and people hand over cash and point cards often I usually notice nails. Oh I also notice extremes in height immediately, I’m short so people shorter than me are like woah! And people super duper tall are also like Woah!

7. What’s your eye colour?

Dark brown

8. Scary movies or happy endings?

TLDR happy endings, I’m a sucker for happily ever after to the point where if it didn’t end happily I’ll probably write or st least daydream a fan fiction ending where it does. ESPECIALLY romance it Always gets me. I do like scary movies though, especially psychological horror, although,,,In The Tall Grass FUCKED ME UP (the movie, I don’t read stephen king books cause his writing style makes me uncomfy but man does he have some fucked up terrifying horrible ideas for for him)

9. Any talents?

Ig that’s kinda complicated cause I’d probably call myself a jack of all trades (but master of none). I was one of those kids that was praised for being good at like everything the first time I tried it and now as an adult has to learn how to study and have a huge issue of getting frustrated and stopping anything I try that I’m not immediately good at therefore never being able to improve because I’m not practicing. But I’ve been Told by teachers, professors, and other people that I’m quite talented at singing. I starred in some musicals in elementary school and studied vocals in high school, in choirs the whole time too, so I’d say I’m like, sort of trained in musical theatre and opera and I Have worked to improve my voice. But I was also told that apparently when I was 3 ish I grabbed a mic and went on a stage (probably at play group or smth idk) and belted twinkle twinkle little star and parents laughed and said I’d be a star one day so idk maybe I just have that star quality lol. Oh I’ve also been commended for my acting skills back before I did acting? But I haven’t done much of late and wouldn’t consider myself exceptionally skilled, I want to be though! I uh also had a period in high school where I discovered I liked (and was good at) academics and excelled in science and math and focused Heavily on that, getting awards and whatnot. I’m not gifted but my mom and grandfather are (were, granddad is not alive) and I definitely did get their big brains.

Oh also I’m like a professional daydreamer at this point I write whole ass stories in my head most of which Never make it to the Google docs and I’m Amazingly talented at oversharing I’m sorry in advance tell me to stop talking I literally won’t mind I promise I ramble Too much

10. Where were you born?

Ontario, Canada

11. What are your hobbies?

Too many. I have this issue where I like too many things so I spread myself too thinly to commit to spending enough time practicing on any one thing to improve, and then on top of that have this thing where I can’t just do something for fun I have to be Good at it (which I think stems from being a Talented Kid™) BUT here’s a list here we go it’s long

Singing

Acting

Dancing

Cooking

Baking

Writing

Makeup

Learning languages (I’m shit at it tho)

Linguistics (how languages WORK is So Cool)

Driving

Drawing

Learning about cool science things namely psychology, genetic, otherwise biology, or nuclear related

I’m not good at this yet but I wanna get into mixology for fun and also as a job

Can’t sew v well yet but I think it would be So Fun and also good to know cause I have to hem every other pair of pants I get

12. Do you have any pets?

I live w my parents still n we have a dog who’s actually my brother’s service dog she’s a huge black lab named Marshmallow and she is full of so much love but not a lot of thoughts, and we recently got a tuxedo kitten i got to name Carmilla (Carmilla is the name of an 1872? gothic lesbian vampire novella that came out before dracula, see my kitten loved to hide n is super duper fast and also play bites, hence, vampire)

13. How tall are you?

5’1 or 152cm

14. Favourite subject in school?

Too many uhh in high school I rlly loved general biology, my vocal classes (which we learned solos in Italian, German, and musical theatre genres and etc it was amazing), my intro to sociology, psychology, and anthropology class, my human development throughout the lifespan class (I wrote a super cool paper on the theory of infantile synesthesia which tbh is probably the best paper I’ve ever written), and my drama classes. In uni so far I’ve enjoyed my year 1 biology class, Especially the second half cause it was like almost All genetics (soooo fascinating!!!), I Loved my Japanese class which was hard as hell but so fascinating and awesome (I love languages and how they work, and Japanese being so different from my native language of English was really interesting, I also really like Japanese food and culture and nature so learning the language was partially because I think it’s a wonderful language but partially so I can go to Japan at some point), my psych intro class was fascinating and I especially enjoyed the parts on sleep and consciousness and on sensory and perception, those parts of our brains are sooo cool I also really liked my Health Psychology (relating our body to our mind was eye opening and very interesting) class. All those classes had super interesting subject matter AND really amazing sweet and helpful professors. Oh my intro data science class was cool cause I got to do shit of coding which was fun and rewarding

15. Dream Job?

Ok so remember the ‘jack of all trades but master of none’ thing? Liking and being somewhat good at many different things is rlly not helpful for deciding on careers, the end of that phrase ‘but better than being a master of one’ I’d say isn’t true cause I do think being good at One thing has its pros and cons, a pro being it’s def easier to decide what to do. I’ve been told I could probably make it in the opera industry, and I would love to act and sing for a living, whether that’s theatre, film, or voice acting, preferably I’d love to do them all tbh. It feels narcissistic to admit but I do like the recognition for performing, I relish the applause I get during curtain calls or after a solo, I wouldn’t say I Live for the applause but I do like it, I think I’d like to be some level of famous. However I know that’s not easy to attain and I also would love to be a teaching and researching professor of psychology and genetics. I love presenting and teaching and am very good at it (my best marks are always on presentations lol) and I love researching concepts that are interesting to me, like for example if I had to write a thesis right now I’d probably write it about the possibility of finding the epigenetic patterns that cause hereditary depression, anxiety, etc, and use CRISPR gene editing technology to correct those thus ending the cycle of hereditary mental illness instead of putting the bandaid of a medication on it. Also I know that coding and computer science is lucrative right now and I did enjoy my taste of coding so I’d also love to look into that. I Do want to make a lot of money so I can afford to take care of those I love (and myself), be more sustainable, and enjoy some extra things in life like fancy and unique or uncommon to my culture food

No pressure but Also tagging @dragonheart1330 :)

I probably didn’t even say One thing @dragonheart1330 and @deerlisteners don’t already know lol as I said I am soooo talented at oversharing

[flirts-with-dragons]

I was told the other day by my friend that whenever I talk about my disability/chronic illness it really drags her down and she feels like she feels like saying anything would make me mad or something so I should just never do it again.

All I wanted was someone to say "that sucks I'm sorry I hope you feel better". Literally all I wanted. And here I am feeling weighed down by 1000 pounds of chronic fatigue from long covid and a deteriorating body plagued with undiagnosed eds, ibs, and endometriosis, thinking about it.

I know she does care but god. Does it fucking sting to know that I can't talk about my struggles with my friends. I know friends are not therapists but I just. Dream of the day I can say "hey I'm feeling bad" and they would say "oh I'm sorry you feel bad" instead of ignoring me or telling me I make them depressed.

[puttheblindsdown]

Last updated: December 25, 2024

(I deleted my first pinned post - it felt too awkward for me)

The basics: I'm Sisi. 27. She/Her. West coast based. Queer. Survivor. Chronic illness fighter. Mental illness haver. FFA/Feeder/Encourager. This blog is 18+, if you're a minor, get out of here.

Relationship status: Not single, not looking, absolutely do not disturb. He's 600+ pounds, if you want to flirt with me, do reconsider. I'm happy. Go away.

Kink/fetish related things: I'm not into starter bellies, nor am I into people new into gaining. I'm only into people who are at least 300 pounds and still gaining, preferably 350. I've only been in relationships with people who are bigger than me, and I don't entertain the thought of being with someone "athletic" or "in shape". While I'm not looking for a relationship with anyone else, I'm always happy to make new friends. I'm extremely submissive and the dominant bone in my body makes appearances exceedingly rarely.

Personal life related things: I REALLY love Jesus and religion is very important to me. I love music, sports, baking/cooking, writing (I am currently writing a book), reading, journaling, and blankets.

I have mental health issues that manifest in the forms of depression, anxiety, and suicidal ideation. I've been in a 10+ year long struggle with an eating disorder and need reminders to eat very often. I'm very susceptible to headaches and am also chronically ill; my body is constantly in pain and need medications to survive. If I'm not at home or at work, I'm probably on a dock by a lake, scribbling in my journal.

Folks can likely find me more on my side account where I scream into the void, though this one is active whenever I remember that more than two people in the world exist. If you're reading this, you're loved.

PS: did you know that the numbers 9 and 4 make 13?

[eyesaremosaics]

I’m struggling with pretty serious depression for the first time in years. I’ve had sad days, or been sad that Yury and I were in an argument, but this is something else entirely. This is like the olden days of depression from my teenage years, or like circa 2013 or something. Or worse 2016. It’s getting there.

A part of it has to do with my getting a new therapist. Retelling my life story to a new person is retraumatizing me all over again. She wants to do more somatic therapy with me… which I am open to trying. I’m open to doing whatever I can to fix my broken brain. It just feels so insurmountable. Having cPTSD is like living secretly with a terminal illness, you try opening up a crack to others and they run like it’s catching.

I feel like I struggle with regulating myself and my emotions so much. It’s almost like I am overtaken by them, and I obsessively focus on people being mad at me, or what I said or did that was so stupid. Torture myself over and over until 3am. I don’t sleep well because I am haunted by all my angry outbursts, dissociative tendencies, escapism through drinking or drugs, my inability to focus long enough on anything to absorb information. People think I’m rude… but really I’m just chronically overwhelmed.

My nervous system is shot. I have been ignoring my diagnosis for the past 4 years since it was suggested to me. Now that I’m facing it head on… a lot of things are coming up. Stress and tension at both my jobs doesn’t help either.

I just worry that I’m always going to be this chronically stressed out, grouchy, snappy annoying person who gets easily overwhelmed and pushes people away with all my “muchness”. I feel like I’m not able to control my rage and self consciousness at times.

My anger is palpable, and frightening—or so I’m told. My body is angry because it’s so conditioned to receive abuse and manipulation. It’s like the anger…is my last stand at reclaiming a little shred of myself.

The last therapist I had… did some real damage to me. She said : “how scary that must be for you. To not be able to control it.”

It was the way she said it too... Sigh. It’s just been a lot to sift through. Now that I have a new therapist, I’m having to retell my life story, and it’s almost like it’s retraumatizing my system all over again.

Do you ever feel that way when you have to talk about your traumas? Like you’re reliving them all over again, but at the same time it feels normal to you, and you talk about it nonchalantly as other people stare at you in abject horror?

[nym-wibbly]

Not the colour blue

I'm spending today photographing and uploading documentation from my childhood for my upcoming adult ASD assessment. My heart is breaking for this kid on the pages of school and special educational needs reports from 1988. She's reporting stomach and knee pain, chronic fatigue, textbook childhood chronic migraine worsening at menarche, shitty PMS and painful periods, and she's falling into severe depression and anxiety because she's being disbelieved and punished for all of that. She's become terrified in school, of school, despite academic excellence, but every source of 'help' is trying to shoehorn her back into mainstream education as if the issue is behavioural, not medical.

"Claims to be ill to justify absence". "Investigated but no medical cause found." "Is receiving medical support with these issues." 'Psychosomatic' is the new 'hysteria'.

Much of this paperwork is from 40 years ago, give or take. I remember the context and much of the detail. I remember complaining that professional adults were putting words in my mouth and pressuring my mum to agree with them. I did not, sadly, have the vocabulary back then to respond with the words I wanted on record about the reasons I was struggling or the possible solutions - words like "overwhelmed" and "meltdown" and "pacing" and "rest". So I was diagnosed with severe anxiety - a fairly typical presentation for an autistic girl masking the crap out of her real self all day, every day, in the desperate hope of fitting in. Educational psychologists demonised my dad. A defensive secondary school demonised me (but, helpfully for current purposes, did so in terms that, today, read like textbook autism-masking in girls rather than a misbehaving little brat with hypochondria. Vindication?)

This all sounds really negative and whiny, I know. It's not, I promise. I am angry on behalf of that little girl, and all the other kids like her who spend their lives trying to argue with medical authorities that the colour black is, in fact, not the colour blue, whatever they say.

Every bit of paper here, bar the defensive school's statement, says I was doing my best. Always doing my best, always willing, polite, articulate, academically capable and self-motivated. Socially isolated, but causing no trouble for anyone if left alone to be so. I knew one colour from another better than many functioning adults, even if I couldn't find the words to say so when I was 14.

Maybe I'll be diagnosed with ASD at the age of 50, maybe not - the absence of an adult who can remember this period and fill in the observational evidence side of the assessment is a real barrier to an accurate diagnosis, but this 1988 SEN paperwork at least provides a snapshot of one neurodiverse and overwhelmed 14 year old who held out with rational arguments and consistent statements against the idea that her parents were to blame for any of this. Held out against the idea that illness was faked as an excuse to avoid school. Who proposed practical solutions and gave them an honest try, even when they were a disaster. Who began to thrive when a short-term placement in a small special needs group became possible, only to flouder again when it ended.

I'm mostly writing this because I know that, still, children and teens are struggling to be believed when they say, "something's really wrong, I'm really struggling with 'normal' expectations here, please help me figure it out and cope". Or whatever words to that effect they can muster at their developmental age. "A headache in my tummy" is the classic one for littles with migraine. Adults in general have got better at listening - at knowing there are things like ASD and AD/H/D and chronic illness to watch out for, but I know that young people are still too often overwhelmed by and underprepared for independent adulting in the same way that I was (and, when pressured from the outside, still am) having been punished by the education system. My 18 year old nephew just paid for these struggles with his life.

I'm here to say that you're not alone if you're struggling. It's never too late, and the world does move on from old ignorance. Slowly, slowly, but it does. Vindication will probably be yours before too long, but with or without it, you'll grow up to be you. That's all anyone can reasonably ask. That's what I did - the only thing I could control. Being myself. I didn't think I'd survive being this girl I'm so angry for, but I did survive. I found my own path when nobody would help me, and when the internet came along, I found so many people with similar stories and knew that I wasn't alone. Slowly, at 50, I'm finally unlocking the puzzle box and finding my answers - and I'm believed.

You're not alone if you're struggling. Struggling now doesn't mean that you will always struggle. Lack of answers now doesn't mean that answers will never come. You're always you, and it's enough. Take it from that girl who lived it. It's enough to build a life on, so please don't let go.

[jimmythecannon]

Riddle Me This: Who Am I?

Answer: Alright, so, a bit about me since I haven't really used this account much.

(tl:dr - chronically ill gamer nerd with a cat)

I'm a fucking nerd-ass nerd. I love comics and videos games and reading (fantasy, sci-fi, and horror primarily). My single most favorite franchise is almost certainly Star Wars.

I love TTRPGs but never get to play them these days. I played AOL chat room RPGs for years and still do one on one roleplay.

I used to stream but it's a little depressing when you have no audience showing up.

I cosplay, frequently as the Riddler or something steampunk (or Agent Coulson!). I used to work as a pirate part-time with a crew at local Ren fests and similar things.

One of my fondest cosplay memories is meeting Kevin Conroy (RIP, forever the voice of Batman when I read comics), Loren Lester, Tara Strong, and Robin Lord-Taylor at a con in my Riddler costume, telling them a riddle, and stumping all four of them. Here's the result.

I have been chronically ill since I was 12. I have Crohn's disease, migraines, fibromyalgia, arthritis in my spine (apparently!), sleep apnea, high blood pressure, depression... I feel like I'm forgetting something. Which is unsurprising with my memory. Speaking of, I suspect ADHD or possibly even being somewhere on the autism spectrum, but haven't been tested for either yet.

I am fiercely on the left of the political spectrum. I believe the whole point of society is for us to take care of each other. Otherwise we may as well be living alone in the wilderness. People deserve health, safety, freedom, and comfort.

I'm a recovering... maybe not addict exactly, but substance-dependent? I was on a lot of pain meds for 15 years due to my health, including the majority of my teenage years, and to this day I struggle with taking too many pills.

I have a cat named Imoen (named after a character in the old Baldur's Gate games). She is my love and my life.

I'm super chatty about my interests, and I am a completely open book. I gave up shame years ago when I was a teenager and kids kept making fun of me due to my illness.

Kids can be dicks.

My mind permanently resides in the gutter, so MDNI - this is not the place for kids, there will be NSFW text if nothing else.

There will be horny here. I like what I like. I have a monster fucker permit and I am not afraid to use it (except for that good scarousal). Give me succubi, vampires, sorceresses, mind control, all of those fun fantasies.

Jimmy is not my real name but it's good enough for the internet.

I... can't think of anything else to add here. Like I said, I'm an open book, ask me anything.

I guess I'll wrap this up with a picture of Imoen when she was a kitty.

EDIT: Oh and this is a 420 friendly blog. Medical marijuana gets me through the day, I am incapacitated with pain otherwise.

EDIT 2: Since writing this I have moved in with my lovely girlfriend and we now have TEN cats, two dogs, four adult children, and a grandbaby in the house. I love my life ❤️

[devilsskettle]

okay i do think i need to start getting serious about getting tested for adhd soon <- been an active conversation since i was 8 years old + my mom only got diagnosed with adhd after i told her i thought i might have adhd in high school so she started looking into it more in an adult context but she was talking to my teachers and doctors about it since elementary school and nobody ever fucking helped me and based on her experience with the diagnosis process i don’t fucking trust any of these fucking doctors it seems like they actively want you to struggle as much as possible to even humor the tiny tiny tiny possibility that your suspicions of adhd symptoms could maybe have some basis and i honestly can’t think about having a doctors appointment without imagining chewing out some poor random doctor for everything about this process that i’m mad about that i will definitely project onto them which may or may not be fair but will not be helpful for me to do lol but it took me almost 10 years to finally go to a doctor and be like hey i think i am severely depressed and have been for a long time and i literally never went back to my pcp because of how dismissive she was of my experience when i asked her about adjusting my medication and that’s one of the “easy” mental illnesses to have hahaha and now i’m scared they’re going to use my depression as leverage that since poor concentration is a depressive symptom that might rule out adhd and like there is some possible overlap with symptoms but for a while i’ve been like well i think there is more at play here actually, i feel like i’m having some other problems that aren’t really depressive symptoms and i’ve even had suspicions that i could be bipolar because i have some stretches of time when i have more energy and can be a lot more. well. hyperactive. hmmmm. and i’m always like could this be mania? i don’t think it’s severe enough to be mania tbh but could it be hypomania? or is this normal? tbh it doesn’t seem normal either but have i been depressed so long that i don’t know what normal is? but if that IS part of my baseline and i am hyperactive sometimes because i have a disorder with “hyperactivity” in the name then that would actually make a lot more sense not to mention problems with executive function, bad grades, obsessive focus on whatever thing i’m into at any given moment, time management problems, racing thoughts, chronic boredom and understimulation. and look i know it’s trendy rn and i know that they could easily see me as a drug seeker especially because if i were to be diagnosed i would want to be medicated (i wish i was still medicated for my depression tbh but again i dropped my pcp 2 years ago and never looked back so i ran out of antidepressants ages ago. rip) but i think its unfair to use that against people who just want to be able to be on the same level of adult functioning as everybody else because i cannot keep up with basic household tasks and work full time and be in school part time (i’m not even in classes rn because it’s the summer and there’s no way i could be in this program if it weren’t offered online and even then i absolutely did fail a class last semester and i’m still waiting to see what the consequences of that are gonna be. hehehe.) but like the state of my room is appalling, mainly exacerbated by my laundry situation in that i never fully put it away AND i think there’s something wrong with our dryer, i always just get random “groceries” like quick meals and snacks from fucking cvs because it’s too expensive to get real groceries delivered especially since when am i going to actually cook???? our kitchen isn’t huge anyway but i definitely don’t have the kind of energy i need to cook AND do the dishes which i am so bad at doing that i have stopped using dishes, i will use a paper towel or i will buy stuff that is already in a container so i don’t have to dirty any more dishes. which is why i have no dishes in our sink rn or for the past couple of months JUST FOR THE RECORD but its not because i’m a paragon of cleanliness and maturity lol

obligatory paragraph change because of the character limit!! i have had to be given multiple “verbal warnings” at work for frequent enough tardiness that it was noticeable and on one hand it’s like lol a verbal warning. okay i am shaking in my boots but it’s also just another mark against me in the opinions of the people making decisions about who might get promoted or not and i don’t have a great “escape plan” from this current job especially since i don’t know where my future will lie academically with my current grades and that was like. my whole plan to have a better career trajectory lmao so another option could be 1) apply to be a supervisor in my current department if a position ever opens up? <- won’t happen because they think i’m “timid and shy” and consistently late and don’t like me or think of me in any position of authority even though i know everything there is to know about my current department other than like. ordering stuff for the store and how to close the cash drawer at the end of the day which supervisors and managers do. 2) apply for a job in a different department <- also won’t happen because a lot of positions require a drivers license for no apparent reason and they’re super weird sometimes about hiring internally and as we established they don’t like me or see me in any other role despite consistently, i believe, demonstrating my competence. we have performance reviews coming up this month and i am basically ready to jump off a bridge anticipating bad feedback for stupid reasons. but my manager said good things last time so maybe i can start saving some evidence of good feedback to whip out if i ever do apply for anything internally. even making the switch from part time to full time in the same role same department same everything was like a truly painful and humiliating experience i am not prepared to do all that again hahaha. anyway. ummmm all that is to say that i do think there are some behavioral problems i have that could be symptoms of adhd that are negatively impacting my life in a significant way. but w/e idk what doctor will ever listen to me because i’m so “timid and shy” <- said this twice in quotes because that’s a real thing the guy from hr said to me when i first applied to switch to full time and i did give him pushback on that in the interview but like that’s how people see me because i have a naturally soft speaking voice and i don’t say everything that i think all the time and don’t need to be the center of attention constantly or beg for other people’s approval and i mind my own business!! i’m in guest services i’m literally not too timid to talk to people lmao and the coworkers i like i can be very chatty with. he said this after meeting me twice for 5 minutes in a role i wasn’t usually scheduled in at the time and all of my performance feedback was based off of that. sigh. one of my coworkers who is this sweet older lady calls him “the rat” and literally hates everyone in hr so much hahaha it’s honestly so validating to me. anyway they don’t diagnose quiet girls with adhd but luckily i’m not successful like my mom was so i have a lot more “evidence” that this could be a real problem than she did and she was still definitively and emphatically diagnosed with adhd by a specialist who did NOT want to diagnose her with adhd and told her as much. so maybe they’ll see it as something real that they should really consider and give me a real solution for but i don’t trust that they will at all tbqh the process that my mom went through seems like my personal hell of paperwork and doctors appointments and talking about your feelings and your failures and having a series of people dismiss you and actively work against you to get anything productive done. AAAAAA but i do feel like i need to do it if i want to stop wasting my life and try to get on the right track again and if they really really really tell me i’m wrong and that i don’t have adhd then i will listen as long as they give me some next steps to help me figure out what the actual problem is then. tbh though like i said

another obligatory paragraph break!! i’ve considered other possibilities and part of the diagnosis process is ruling out any other possible underlying causes but before typing the word “hyperactive” about how i sometimes get a burst of energy for a couple days like that, i did not even make a connection between when i wondered if i could be manic/hypomanic vs whether that could be adhd hyperactivity unhampered by depressive gloom. like i kind of want to pull my hair out in frustration feeling kind of dumb that i considered mania before i considered the hyperactivity disorder hahahaha but anyway. i will send some emails tomorrow morning, my mom (unprompted by me) sent me an email with a bunch of resources to get tested lmao and since she has already gone through it i feel like i can at least see what happens and my process will probably be a lot easier than hers for a LOT of reasons (childhood history + testimony from people who have known me from my childhood to now, family history obviously, demonstrable evidence of adverse effects on my life and general adult functioning) so i should at least try before i really fucking lose my mind or fuck up my life any more than i already have lol