#seizure disorders

[roamwithahungryheart]

Today is Purple Day for epilepsy awareness.

My fellow epileptics, take a moment today to appreciate how strong you are. And remember, through all your struggles, you are loved 💜

[er-cryptid]

Postictal State

Patreon

[disabledsysboxes]

Epilepsy / seizures - 2

[capricorn-0mnikorn]

Hey! Can you give my post a signal boost? I just made a new flag.

Sure!

The flag is posted here, along with a description of the meanings.

Speaking from the experience of my first attempt at the Disability Pride Flag (which actually triggered seizures when people were scrolling online), you may want to desaturate the colors, some -- especially the black circle in the middle.

[kyofsonder]

Adding on to this: some people, whether they have epilepsy or a different seizure disorder, will know what it feels like when a seizure is about to happen. It's commonly called an aura, and sometimes we're able to articulate that an aura is happening and a seizure is likely to follow.

If someone tells you that they're experiencing an aura (whether they use that specific term or not), the top priority is to get them sitting or laying down in a space where they won't be in danger of hitting their head on anything while falling or smacking their limbs against anything while seizing. You can also ask which emergency contact the person would like you to call -- get their number, borrow the person's own phone, etc. -- while they're still conscious. This can help avoid medical bills from ambulance rides or hospital stays in the US, when all a person really needs is for friends or family to bring them home to rest.

After doing that, you can figure out whether the seizure can be avoided (in some cases it can be treated like a panic attack and the person can be calmed enough that a full seizure doesn't happen) or if you need to follow the above guidelines to ride the seizure out.

Again, timing the seizure is incredibly important and being as calm as possible will help to avoid additional seizures. If you have trouble faking being calm, try to tag team with someone else if possible. Give yourself space to react, then come back and help when you're ready -- but don't just leave someone who's at risk of additional seizures unsupervised.

Just in case

[surinderbhalla]

Epilepsy: Causes and Symptoms Explained

Epilepsy is a neurological disorder that affects millions of people worldwide. It’s characterized by recurrent, unprovoked seizures, and understanding its causes, symptoms, diagnosis, and treatment options is crucial for both individuals living with epilepsy and their care providers. In this blog, we’ll break down the essential aspects of epilepsy, including its causes and symptoms, explained in…

[gubgam]

Y’all, tumblr is letting you report ads for having flashing lights! Tap on the 3 dots at the top and look at the bottom! Please do this for your photosensitive friends!

[a-sassy-bench]

breaking news disabled people aren't using their disabilities as an excuse because it turns out it isn't an excuse it's a state of fucking existence

and existence is everywhere all the time no matter what even if you wish it wasn't

.

[arcticduckie]

Shoutout to people with Functional Neurological Disorder

Shoutout to people with functional tics

Shoutout to people who have dystonia

Shoutout to people with Psychogenic non-epileptic seizures

Shoutout to people with paralysis and or weakness

Shoutout to people with tremors

Shoutout to people who shut down/unresponsive episodes

Shoutout to people who have walking difficulties

Shoutout to people who have numbness

Shoutout to people who have speech problems

Shoutout to people with vision problems

Shoutout to people with hearing problems

Shoutout to people with memory loss

Shoutout to everyone with FND

[suffersinfandom]

I absolutely adore 95% of my fellow pirates. I'm constantly inspired and awed by the creativity, brilliance, and kindness I see every single day, and I really do love this fandom.

BUT SOME DAYS. Some days. Some days I log on to Tumblr and Twitter after a Really Bad Time to see what my wonderful pirate friends are up to and I get

~Gentlebeardies~ are so racist that they voted for Rhys over Ruibo in a poll! They can bot but they can't bot without BEING RACIST!

They really said there's no show without Izzy AND THERE'S NOT, SUCK IT, that's what you GET!

They killed the best character, there's no point in having another season!

Ed's really living with his new boyfriend while his EX WIFE is buried in the yard like A DOG.

*thread about Ed being a bad, monstrous person who did nothing to make amends and deserved to die*

I know that the majority of the fandom is cool, but geez, that little chunk that isn't can be loud, especially on a platform like Twitter that is apparently built to feed me things that'll make me regret logging on.

[piniatafullofblood]

to expand on that point- almost 20% of people with epilepsy have anxiety, with the second highest comorbidity being depression, coming in at 17%. This is not a coincidence. It’s a symptom. If you have epilepsy, there’s a constant looming threat of having a seizure if you didn’t get enough sleep last night or some jacksss decides not to put a flash warning on their transition tiktok, In which someone may or may not have to stick a needle up your ass to save your life. That someone might be a paramedic, but it also might end up being a coworker. There’s also the constant looming threat of literal death if the people around you don’t know what they’re doing. By literally choking on your own spit. Maybe someone sticks a spoon in your mouth because they think they’re helping and breaks your freaking jaw and it’s never the same again.

Anyways, yeah. It’s a symptom, not a coincidence.

Under the cut is the more important part of the post.

Only call the doctor if the seizure lasts longer than five minutes (start a stopwatch as soon as the seizure starts, if you can.) If they have a second seizure shortly after the first one ends, if an injury happens during the seizure, if the person is in water during the seizure, if after the seizure the person has trouble walking or breathing,or if they have other health conditions. (ex: diabetes, pregnancy, heart disease.)

Loosen anything on their neck. Dont hold them down, take all items of risk out of the way. Turn the person onto their side so they don’t choke on their own spit. Call 911 if it lasts more than five minutes. Dont leave the person until they’re responding normally.

The best thing to do is to get a fast acting anticonvulsant medication. I tried my best with the medication, but you should definitely do your own research on your own as to which one is best for you. Legality for emergency anticonvulsants outside of hospital settings are different throughout every country, but in the U.S., nasal midazolam (brand name Nayzilam®), nasal diazepam (brand name Valtoco®) and rectal diazepam gel (brand name Diastat®,), are legal. Look at the individual websites for more information about when to use them. There’s a really good chance your person has one of those in their bag/purse/backpack, whatever they carry with them. But in an emergency situation, you don’t wanna be reduced to searching for something they may or may not have forgotten to put back in their bag the last time they cleaned it, especially if said bag is something big, like a backpack. It’s easier to have your own set where you know where it is, and honestly the best idea for choosing medication is to ask the person you’re supporting which one they use, because they probably have a reason.

There’s a lot of risk to benzodiazepines, which are what the vast majority of anticonvulsants are. They’re highly addictive and you can’t go cold turkey off of them, you have to ween yourself off or they’ll kill you. Also if you drink a lot of alcohol or have heart conditions it might kill you. This is why you talk to the person your supporting and get what ever medication they use for themself, because they’ve spoken to their doctor and weighed the risks and decided which one is best for them.

TLDR: get educated on what to do when someone’s having a seizure. Living with epilepsy is awful and the only way you can make it better for people is by being educated and not getting misinformation stuck in your head that will actually make it much worse, so you can save their life if you have to.

the epilepsy and anxiety combo is the worst fucking thing in the world

[disabledsysboxes]

Types of epilepsy / seizure disorders - 1

Requested anonymously

[neuroticboyfriend]

guess i learned the hard way that repressing my plurality for literal years can end up causing PNES. so here's your warning not to repress dissociative disorders. or plurality in general since I'm not saying this can't happen to non-dissociative systems.

[minaespen]

apparently i'm supposed to mask how i really feel even tho i dont express it at all

how dare i answer "how are you doing" with "not the best"

[brain-buddies]

[finnslay]

"They aren't seizures" what if I punched you? What then?