#seizure disorders

[roamwithahungryheart]

Today is Purple Day for epilepsy awareness.

My fellow epileptics, take a moment today to appreciate how strong you are. And remember, through all your struggles, you are loved 💜

[er-cryptid]

Postictal State

Patreon

[disabledsysboxes]

Epilepsy / seizures - 2

[surinderbhalla]

Epilepsy: Causes and Symptoms Explained

Epilepsy is a neurological disorder that affects millions of people worldwide. It’s characterized by recurrent, unprovoked seizures, and understanding its causes, symptoms, diagnosis, and treatment options is crucial for both individuals living with epilepsy and their care providers. In this blog, we’ll break down the essential aspects of epilepsy, including its causes and symptoms, explained in…

[gubgam]

Y’all, tumblr is letting you report ads for having flashing lights! Tap on the 3 dots at the top and look at the bottom! Please do this for your photosensitive friends!

[a-sassy-bench]

breaking news disabled people aren't using their disabilities as an excuse because it turns out it isn't an excuse it's a state of fucking existence

and existence is everywhere all the time no matter what even if you wish it wasn't

.

[arcticduckie]

Shoutout to people with Functional Neurological Disorder

Shoutout to people with functional tics

Shoutout to people who have dystonia

Shoutout to people with Psychogenic non-epileptic seizures

Shoutout to people with paralysis and or weakness

Shoutout to people with tremors

Shoutout to people who shut down/unresponsive episodes

Shoutout to people who have walking difficulties

Shoutout to people who have numbness

Shoutout to people who have speech problems

Shoutout to people with vision problems

Shoutout to people with hearing problems

Shoutout to people with memory loss

Shoutout to everyone with FND

[skeleticcs]

Seizure types

When someone says the word seizure we typically think of someone shaking on the floor unconscious, but there’s actually a lot more to seizures! They’re different for everyone but here are my most common types and how they look on me and (kind of) how to help during certain types of seizures

Absence seizure: An absence seizure is a lapse in consciousness that can last anywhere from 30 seconds to 5 minutes. I’m completely unaware of my surroundings and unable to respond, but I’ll just look like I’m staring off into space. There’s not much you can do to help besides stay with me and make sure nothing bad happens while I’m ‘gone’.

Atonic seizure: An atonic or drop seizure is a brief loss of muscle tone that looks exactly like it sounds, I just drop. Mostly it’s head drops but sometimes my whole body will give out. These usually only last a couple seconds so no need to help much, but be aware that atonic seizures can often be warning signs of a larger seizure.

Partial seizure: During a partial seizure I’m really out of it and unaware of my surroundings. I may still be able to respond to you or walk around but I’m not myself in these moments. The main thing you’d need to do to help is try to keep me in one place and away from anything dangerous. Do not let me wander off as I’m not really conscious and don’t know what I’m doing, which could end with me getting hurt.

Grand mal seizure: These are the types of seizures most people will think about when they hear the word. Grand mal or tonic-clonic seizures are the violent ones that involve convulsions, shaking, muscle stiffness, etc. follow basic seizure first aid for this type of seizure.

[neuroticboyfriend]

guess i learned the hard way that repressing my plurality for literal years can end up causing PNES. so here's your warning not to repress dissociative disorders. or plurality in general since I'm not saying this can't happen to non-dissociative systems.

[wheelingwithgrace]

I'm absolutely terrified and living with the fear that my seizures are going to kill me.

I was taken to the hospital yet again the other day due to one that caused me to completely stop breathing.

It's such a terrifying thing to live with, and I don't wish this on anybody. I think the scariest thing is going to sleep and wondering if I'm going to wake up in the morning.

I know I should be taking it one day at a time, but every single day is hard when you have limited independence because of what your body is making you go through.

[feburra]

You all say that I'm valid if I have a conversion disorder, but then you won't listen to me, and bring back "traumas" that I already forgot, and which is definitely not the cause of my disease. You call it hysteria, instead of FND or conversion disorder and my favorite one... "Your illness is just profitable for you!" I literally cut myself because I'm not normal??? Or "You can't be mentally ill." Like bro, I've been having intrusive thoughts for like 4 years. Hell, I can't get up from my bed. What the hell?

[minaespen]

apparently i'm supposed to mask how i really feel even tho i dont express it at all

how dare i answer "how are you doing" with "not the best"

[disabledsysboxes]

Types of epilepsy / seizure disorders - 1

Requested anonymously

[griddleharkbrainrot]

Life would be so much easier if my body didn't hate me

[finnslay]

"They aren't seizures" what if I punched you? What then?

[piniatafullofblood]

to expand on that point- almost 20% of people with epilepsy have anxiety, with the second highest comorbidity being depression, coming in at 17%. This is not a coincidence. It’s a symptom. If you have epilepsy, there’s a constant looming threat of having a seizure if you didn’t get enough sleep last night or some jacksss decides not to put a flash warning on their transition tiktok, In which someone may or may not have to stick a needle up your ass to save your life. That someone might be a paramedic, but it also might end up being a coworker. There’s also the constant looming threat of literal death if the people around you don’t know what they’re doing. By literally choking on your own spit. Maybe someone sticks a spoon in your mouth because they think they’re helping and breaks your freaking jaw and it’s never the same again.

Anyways, yeah. It’s a symptom, not a coincidence.

Under the cut is the more important part of the post.

Only call the doctor if the seizure lasts longer than five minutes (start a stopwatch as soon as the seizure starts, if you can.) If they have a second seizure shortly after the first one ends, if an injury happens during the seizure, if the person is in water during the seizure, if after the seizure the person has trouble walking or breathing,or if they have other health conditions. (ex: diabetes, pregnancy, heart disease.)

Loosen anything on their neck. Dont hold them down, take all items of risk out of the way. Turn the person onto their side so they don’t choke on their own spit. Call 911 if it lasts more than five minutes. Dont leave the person until they’re responding normally.

The best thing to do is to get a fast acting anticonvulsant medication. I tried my best with the medication, but you should definitely do your own research on your own as to which one is best for you. Legality for emergency anticonvulsants outside of hospital settings are different throughout every country, but in the U.S., nasal midazolam (brand name Nayzilam®), nasal diazepam (brand name Valtoco®) and rectal diazepam gel (brand name Diastat®,), are legal. Look at the individual websites for more information about when to use them. There’s a really good chance your person has one of those in their bag/purse/backpack, whatever they carry with them. But in an emergency situation, you don’t wanna be reduced to searching for something they may or may not have forgotten to put back in their bag the last time they cleaned it, especially if said bag is something big, like a backpack. It’s easier to have your own set where you know where it is, and honestly the best idea for choosing medication is to ask the person you’re supporting which one they use, because they probably have a reason.

There’s a lot of risk to benzodiazepines, which are what the vast majority of anticonvulsants are. They’re highly addictive and you can’t go cold turkey off of them, you have to ween yourself off or they’ll kill you. Also if you drink a lot of alcohol or have heart conditions it might kill you. This is why you talk to the person your supporting and get what ever medication they use for themself, because they’ve spoken to their doctor and weighed the risks and decided which one is best for them.

TLDR: get educated on what to do when someone’s having a seizure. Living with epilepsy is awful and the only way you can make it better for people is by being educated and not getting misinformation stuck in your head that will actually make it much worse, so you can save their life if you have to.

the epilepsy and anxiety combo is the worst fucking thing in the world