#rheumatologist near me

[thedisablednaturalist]

spent 3 hours last night panic searching for doctors to help me with my fibromyalgia. They are all either scams, extremely expensive boutique options (but are actually good apparently, if you have the money), extremely expensive scams, or have never heard of fibromyalgia and kick you out after 15 minutes.

[drgauravseth01]

https://www.delhirheumatologycentre.com/

[nope-body]

.

[rheumtogrowtx]

Pediatric Rheumatologist Can Help Your Child Better Manage Rheumatic Conditions

Children can have a hard time dealing with juvenile arthritis and other rheumatic diseases in absence of proper help and care. Arthritis, as condition that causes inflammation of the joints accompanied by pain and swelling, is the most common form of rheumatic diseases. Adults as well as children require intervention and care of professional to manage rheumatic conditions. Pediatric Rheumatologist can help children better manage these conditions that can cause pain, stiffness, and swelling in the joints and bones.

Rheumatic diseases are known to affect other areas of the body, including organs. It is also a fact that certain rheumatic diseases affect connective tissues, including muscles, tendons, and ligaments. Better known as connective tissue disease these can affect children as well as adults. When disease are caused by the body's immune system attacking its own healthy cells and tissues, they are known as autoimmune disorders. Paediatric Rheumatologist Near Me can help children affected by Juvenile rheumatoid arthritis (JRA), which is a condition that more often affects children younger than age 15.

Pediatric Rheumatologist Texas can recognize symptoms of rheumatic diseases, which can occur a bit differently in each child. However, the most common symptoms in all the diseases include joint pain, swelling in 1 or more joints, joint stiffness that lasts for at least 1 hour in the early morning, chronic pain or tenderness in the joints, warmth and redness in the joint area, limited movement in the affected joints, extreme tiredness (fatigue), and fevers that don't go away or that come back. Though these symptoms might come across as other health conditions, it is important to ensure that your child is diagnosed by the best healthcare provider.

It is challenging for parents to help their child live with juvenile rheumatic illnesses and other rheumatic diseases. They can help their child manage his or her symptoms by sticking to the treatment plan. Pediatric Rheumatologist encourages exercise and physical therapy and also finds ways to make it fun.

If your child has symptoms like joint swelling and stiffness, persistent unexplained fevers, rashes, weakness, and chronic inflammation, it is best to consult pediatric rheumatologist near me. A pediatric rheumatologist is a doctor who has specialized training to diagnose and treat autoimmune conditions that affect children.

Dr. Saimun Singla is board-certified in general pediatrics and pediatric rheumatology. What distinguishes her is that she is the only pediatric sub-specialist in Houston who has extra fellowship training and board-certification in integrative medicine. In contrast to traditional medical practises, where the primary focus is often on managing sick symptoms, Dr. Singla uses an integrative approach to treat children with chronic rheumatic conditions.

[tumble-tv]

Having arthritis at 17 is funny, because I tell people and they're like, "oh, my grandma has that! she takes X, Y, Z and it helps her a lot!" Your grandma and I do not have the same arthritis. Her yoga and good vibes are not going to help me.

Then there's the whole thing of finding rheumatologists near me. There are only 2 in my general vicinity. 2 that take pediatric patients. The rheumatologist I am not currently seeing is about an hour away, so when I tell people about how awful my rheumatologist is at the moment with medications and care, they always say that i should go to another doctor when I literally cannot.

Then there's the whole thing of my doctors refusing to help me with my chronic pain because it's apparently all because of my arthritis, which has been in remission for 4 years now, so no, it's not my arthritis. Arthritis medications will not help my pain, and they refuse to acknowledge that

[ellaeved]

Here is my rheumatologist experience in 2024. I’m wondering if there’s anything I should talk to my new rheumatologist about regarding her dislike of labeling.

Symptoms: hyper mobility, all over pain, excessive pain from pressure that lingers after pressure is removed, joint locking, jaw pain from eating, tired, tummy issues, extreme occasional and brief joint pain, POTS, back pain that limits standing. (There’s so much more but we don’t have time for that)

Old guy: (only one near me at the time) Talked painfully slow and quiet, bad communicator, ignored my concerns, didn’t really explain what was going on, ignored me saying I think I have HEDS. “Diagnosis”- Some kind of arthritis, take sulfalazine and have constant blood work.

New lady 1st appointment : (I explained all the symptoms again.) Arthritis that doesn’t have a definitive cause according to Old Guy, the all over pain sounds like fibromyalgia experiment with meds to see if current anti depressants help, cant order testing for HEDS because insurance won’t cover adult genetic testing, doesn’t feel that there is a need for labels because she “Is going to treat the symptoms I’m having regardless of diagnosis”

Is this bad? I really want diagnosed officially to get mobility aids and work accommodations but she doesn’t seem to like “labels” and hasn’t told me anything for sure which would be fine since we have only had 2 appointments but it doesn’t feel like she’s ever going to say anything definitively. I’ve never had a Dr say that to me so I just don’t know how to take it?

[chronicpain-itsastruggle]

I am in so much pain. I had to get two very painful and traumatic biopsies done on the back of my left leg near where my knee bends, last night. I have another surgery, a tonsillectomy, coming up soon. That was what my bad Friday was, getting that news. I seriously haven't stopped crying off and on since Friday. I'm so fucking scared of the surgery and the recovery. Last surgery for my melanoma on my arm was extremely traumatic and painful. My body HATES me and exponentially makes my pain more. My nerves are, according to my rheumatologist, "hyper-sensitive". So awesome considering I have chronic pain, cancer, EDS, can't regulate temperature, etc.

[elisabethbabarci]

I AM A SURVIVOR

Perpetrators come in many forms and use various calculated abusive methods to control and exert their power over victims therefore, abuse is cyclical in nature but does not take a linear route to heal. Healing involves community and understanding that support is needed on all levels i.e. Family , friends, professionals, volunteers, and community engagement.

Giving survivors their voice enhances their power to recover, and it enables them to reclaim their sovereignty. Victims often suffer in silence but when they awaken to their power to reclaim their life, it is a powerful moment. May my story of recovery empower those who feel dismantled, broken, or are embarking on their recovery trajectory.

“You wanted this.”

“No one will believe you.”

“It is for your own good.”

The escalation of priming can range from degradation, control, erosion of self, dismantling of support networks, paradox of carrot and stick approach, terrorism, violation, and inflicting fear in their victims. Within this article, I will delve into the complexities of sexual misconduct, abuse, and a near attempt to break my spirit.

More than a decade ago, after my fiancé had passed away, I was diagnosed with an extreme rare case of immune system malfunction, where my body rejected or perceived food as a threat, and as a result my neck would develop inflammation from the inside within seconds, resulting in my family members having to rush me to the emergency room. Seeking several medical opinions, there was an inconclusive question of why it was occurring. Finally, after 10 visits to the hospital, an emergency room doctor took a firm proactive approach, ran several tests, and concluded it was chronic inflammation and a narrowing of the esophagus. While seeking council from medical specialists from nutritionists, cardiologists, immunologists, gastroenterologists, allergists, pulmonologists, to rheumatologists, I decided to seek assistance from spiritual leaders within the community which enabled me to examine what was the root spiritual cause of these issues. Along my spiritual journey, I had a few that restored me back to health and aligned me on my path. What was the spiritual message? “What can you not swallow about life?” Suddenly, I was able to start the internal examination of where I stood with my self care, self respect, authority, safety, and autonomy over my own existence, and what I had allowed within my existence perpetrated by others. Over time, the medical condition still persisted which resulted in my Mother asking friends, neighbours, strangers, doctors, and clients if they were aware of anyone that specialized in this further? Unfortunately, within a panic of fear, she trusted a woman who was a loyal devotee of my future perpetrator who enthusiastically stated “I know a spiritual leader that would be able to restore your daughter’s health — he takes a non linear approach and works out of his apartment for comfort.” With blind trust for what this woman said, my Mother instructed me to drop my current reiki practitioner because she was not helping, and suggested that I visit this new individual.

Upon meeting this individual, there was an aura and energy of instant dislike and mistrust for him. He was abrupt, rude, abrasive, and contradictory. “You do not trust me because I represent a father figure, and I am a man, which I feel is the root of all your issues — you just do not trust, do you understand? Do not listen within — it will misguide you.” Not correct — within my life, I formed trusted, secure, and loyal friendships with paternal figures within society and my social network that demonstrated safety, honesty, trust, and compassion. However, unconsciously, I questioned my own judgment over time as he continuously made cases how men should not be trusted and how I had a trusting naive nature, “Could he be right?” …. In hindsight — no! My inner radar was setting the alarms off in my head. During our first encounter he assured me that it would take a few sessions to delve into what was causing the issues as he mentioned we need to peel the onion to get to the core root. Little did I know, this step would become my nightmare as this individual was sent into my life to erode my confidence, metaphysically peel my layers of trust and security, and teach me the fundamental lesson about not giving away my power and to learn, recognize and comprehend how important discernment is for our human existence.

Within the three years I was under his care, I was sexually abused within his bedroom and massage room, administered food and drinks which resulted in me feeling numb, calmer, which resulted in trips to the hospital due to unknown pains around my appendix, ovaries, and sacred parts. Once the trust eroded, threats, priming, disassociation with life, internal emotional pain, stagnation, physical / mental / emotional / verbal / financial abuse, and even worse, a sense of powerlessness succumbed me — I was paralyzed.

My perpetrator’s distortion of reality — He constructed a lie that he was being “Stalked” by his “Older — neighbour — female — widow — friend”, who was as he claimed “Extremely obsessed with him”, and “Would not leave him in peace.” He stated that she was “Dangerous,” “A client that was not getting better,” “Always showing up at his apartment uninvited”, “Wanting to date, and eventually get married to him, with a white house,” “Texting and phoning him non stop,” “Getting into physical altercations with him in his apartment,” “Spying on him,” “Controlling his every movement,” “Getting close to his parents and now his daughter who does not like her,” and that he was “Seeking council from clients and friends as to how to escape from her,” when he “Had enough money.” I felt scared for him at the beginning, as he told me that he was in a “Dangerous situation,” and he further went on to tell me, “She wants to know everything about you, she does this with every client, if she talks to you, do not trust her, avoid her, and ignore her.” Truth revealed — He lied about his entire life. This woman was a high ranking professional, who did not live in his apartment but adjacent to it, was supporting his business in all aspects as a silent investor, she promoted his business to everyone within reach, as he was healing her, healing members of her family and close friends. The woman was funding his entire existence from lifestyle, raising his child along with her own as by his request, paying for his child’s tuition, paying for his food / clothing / vehicle / and apartment where he “treated” clients. It was later disclosed to me, that supposedly he was a man that experienced severe abuse from his previous marriages, had severe relations with his siblings, was married once where he abandoned his child and wife, ran away from his long time partner (second marriage), to become homeless, and then rescued by this woman who enabled him to have a second chance at life. My main questions that always remained in my mind about her were, “Why did she try to get close to me?,” “Was she intentionally profiting from the distress he was causing to others?,” “Did he harm her younger children or even worse his daughter?.” Near the end, she verbally threatened my Mother and myself to scare us at his request, relocated her children out of the country and remained there for a while with him, temporarily left behind my perpetrators ill child that was mysteriously getting sick under both of their care — alone. Why did they both do this? One will never know. After I was under another’s care during my recovery, her cousin — that was my Mother’s old client that recommended him in the first place, tried with her husband to reconcile with my Mother and myself, asking, “How I was?,” “What happened?,” “Did you know he extorted money from both of us?,” “We will be seeing him less,” “Not to drag their name into it,” “That I was in danger,” “That her cousin was always mentally ill, abusing her position and those around her” and that “He changed once she got closer to him and his daughter.” With mistrust, we did not accept their apology as I was skeptical … I was suffering from PTSD — No amount of words could account for the torture one had to endure under his care.

Priming begins with entrusting an individual that you feel has superior abilities or knowledge to actively help, cure, or creates an illusionary atmosphere of safety. Priming then starts with gaining the victims trust, asking several questions about their lifestyle, friends and family network, gaining any information that can be used against them. It then leads to control, “What are you wearing,” “Express yourself like this,” “Do not go near these individuals,” “Do not tell your family,” “Schedule appointments later in the day so I can drive you home,” “Lets start with one appointment a month,” “Lets begin with 2 appointments a month, “Let me schedule you every week,” “Tell your Mom to stop driving you and come on the train and subway,” “Gain independence from your family,” “Quit your current job,” “Don’t travel,” “Do not trust police,” “Wear clothing like this, not that,” “Become part of “our” family,” to “You can not escape.” My perpetrator regularly stated “You can come to me with anything,” “Give me your phone,” or abruptly taking my phone away from me to a) encourage “technological detox” or would take it without my knowledge — gaslighting me that he did not know where it was, to “Give me all of your passwords to your e-mail accounts, so I can help you tell your friends to lightly give you space.” The most severe infraction was he was creating a false illusion and construct that I was in perpetual danger and that I should fear every element of my life. It then escalates to light touching, hugging, “Let me try this …”, “Stand against the wall and allow me to walk close to you — we will see if you have any residual hesitation for intimacy”, “Oh you are sore? Let me massage that,” to escalating to “Take off your clothes” … and more.

My perpetrator controlled nearly every aspect of my existence. The problem was, I enabled him to take away my voice, power, and I felt as I was on autopilot. There were times when he would tell me “No one will believe you,” “Look who I am dating, she will use every method to discredit you because I control her,” and “I only take on women because men do not understand me,” and “You wanted this, you deserve this, you deserve to be punished.” The worst comment was “If I did not return, he would harm my family or knew a network of individuals that would cause harm to those I loved.” For many years I questioned, “Why did I not leave?” … fear. When you enable your oppressor to become a force beyond yourself or authority, you place and characterize them into an omnipotent position of dominance and control. Abuse is not the natural state of our existence, it is brutal force to compel those that they perceive as weak into subordination to align with their motives, plan, or cohesive goals. Perpetrators lack empathy, accountability for their actions, and have no remorse for the damage and destruction they cause. As a society, we must examine the root of what fosters and creates these individuals rather than questioning the victim as to “Why did you stay?.” Logically, rationally, and proactively there needs to be a firm examination of what are the fundamental core roots that enable those who seek domination to feel they are above authority of the law.

Why am I writing this? After years of recovery in silence with the assistance from the legal realm and abuse and trauma recovery specialists, I learned from these professionals how to recover, awareness, education, and how to establish a safe nurturing environment— within my healing recovery I discovered that I was a victim of priming. The psychological, ethical, and moral implications of this form of violation can cause one to question their existence, their worth, their value, and recovery. Priming is a form of psychological violation and manipulation to lure the victim into subordination, till you effectively break the spirit to allow incremental abuse, violation, degradation, rejection then acceptance, sexual violence or misconduct, and to have the end goal of being a broken shell of yourself that is malleable for their pleasure or means.

Once I had become aware that my perpetrator was impersonating me by sending e-mails and text messages to my family, friends, and himself I began to feel helpless and trapped — He even refused to give me my phone back insisting that he buy me a phone that only could reach him. He then proceeded to create an illusion of a distorted reality of safety, asking for financial assistance from myself to seek a new home, and after a certain amount of time was suggesting that I “Date one of his clients,” and further added, “But you will still permit me to touch you as I please.” I decided to reveal to those closest to me my experience. Near the end, I was terrified of my perpetrator from all of his threats, I could not mitigate the impact of the abuse, and I was becoming broken— once you are in the gyre of sexual abuse — your whole perception on life shifts and you truly do not recognize yourself — you are no longer the strong, confident, courageous woman, you become paralyzed in fear.

After having several medical issues with my body as a response, feeling numb and broken, and weighing 100 pounds with my body giving out due to all the stress and abuse, I ended up in the hospital again, which was my wake up call that I needed to get assistance to recover. During my recovery, I reported my experience and was finally in an environment where I could heal my internal and physical wounds. I was not mentally or physically stable to withstand trial and was encouraged to recover and move forward as many individuals that experience rape have a high risk of suicide after they confront their perpetrator. Along my journey, I was under the care of specialists that enabled me to foster growth, evolve, and gain my strength back and examine the core roots of why I may have allowed this to infiltrate within my existence and most importantly learn inner peace, self forgiveness, and the ability to vocalize my experience to help others. No one deserves to be perpetrated, abused, silenced, degraded, violated, sacrificed, broken, demoralized, or to question their worth or existence. I learned that I am no longer a victim but a survivor. He might have broken me sexually but he does not have my power.

I understand the importance of recovery from destruction. My recovery fostered within me strength and resilience when I learned the importance of forgiveness, and that my self-worth and value was not diminished by the acts of another. It is fundamental for a survivor to learn that we are not our circumstances, and that we can overcome all challenges within our life. I believe when we work together as a community we can transcend trauma.

As a survivor, I understand the complexities of recovery, and I want to help others.

When we face our fears and challenges we become resilient. Violence at any level is significant and impactful as it causes fragmentation. It is essential that support is administered to victims who have experienced any traumatic event. Victim safety, wellbeing and recovery are essential in the rehabilitation process. To give survivors a voice in a safe environment helps rehabilitate and stabilize their equilibrium and mind. When one is dedicated to learning structured recovery and safety methods, courageous and flexible to delve into stressful situations that caused deterioration, and within time accept insight, enables one to regain their strength and balance.

It is paramount that a community comes together to help survivors overcome challenges. By helping survivors extract only the lessons and wisdom it will help them transcend the pain and injury and foster forgiveness to take their power back. Most importantly, any victim of trauma needs to learn to trust themselves again. Giving back to the community and assisting those in need enhances the comprehension of the multifaceted nature of trauma recovery, and the wisdom assists in learning how to help individuals in critical emergency situations. Unity consciousness helps the victim recover faster by acknowledging that they are not alone, free to express themselves in a safe environment, and have access to support networks with resources. Having a network that is strong, discrete and that provides the victim advocacy during their transition to safety and healing is paramount because we are stronger together than we could ever be apart.

Self forgiveness and forgiveness of others liberates. It is important that survivors understand that there is more light than darkness in the world. Survivors need to comprehend that their self worth is not dependant on what happened to them in the past and that recovery is possible. You are the light.

As a survivor, I comprehend and understand the complexities of the healing process, and I hope to be a representation for others that recovery is possible for anyone that experiences the devastating impact of sexual abuse.

[steampoweredace]

I find it... kind of strange that I've seen lots of women complain that they have trouble getting doctors who are guys to take them seriously when like...

Okay, I'm not out as nb to anyone really, so in theory everyone should think I'm a woman (I'm not)

And my first psychiatrist assumed I was being lazy and lying about being constantly exhausted and in pain and, a few months before I was able to see rheumatology for the first time, she told me to find a new psychiatrist (I did, saw him for like... man, I don't think it was even a full year? before I could stop the anti-depressants)

The rheumatologist, when I first saw him, spent like... five minutes seeing how my joints move and basically went "I'd be more surprised if you didn't hurt", ordered another round of bloodwork, and tried me on lyrica (which helped, and weirdly enough, being at a 2 on the pain scale instead of an 8 did a lot to help my depression)

When I started getting horrible stabbing side pains in December 2019, after we confirmed it wasn't my appendix, I got sent to an OB/GYN and she did an ultrasound that just confirmed that yeah, I have PCOS, then sent me to go see some other specialist because surely the PCOS couldn't be causing me any troubles

Well, the next year I saw a different doc at the same practice and he came up with a way to check whether or not the horrible stabbing side pains had anything to do with my reproductive system, and then when it turned out yes, they did, he was willing to remove the right ovary instead of waffling about it 'cause "we can't be sure which one is causing the pain" (it was. it was the ovary near where the stabbing side pains were. why would it be the other one.). He also removed my tubes at the same time, which had nothing to do with the problem but was appreciated nonetheless.

Why do I have the guy docs take me more seriously than the women?

[moviesludge]

been a year since I saw my rheumatologist because I was doing so well with gout, but appt is soon so I had to go to labcorp. I went to make an appt but there were none available because I waited too long and the notes on my local location on their website said DRUG TEST APPT ONLY, which I took to mean that they are only doing drug testing there (the fact that they showed another labcorp location was being added to the building soon only made this seem more likely), so I was trying to psyche myself up to go to one of the only other labcorp locations near me which is in the big hospital where I stayed when I had a P.E. The parking is squirrely there and I always forget where to go, so I was a little nervous, but then the next day I realized DRUG TEST APPT ONLY means "if you're getting a drug test you have to make an appointment and not walk-in".

So I went down there yesterday. took the elevator to the fourth floor and checked in. Shortly after was told that labcorp lost the acct with my insurance co, so I had to go to Quest instead, which was on the first floor. Friendly women in the elevator both times. Went down and where there were like 5 ppl in spacious labcorp room, there were like 15 in cramped windowless quest room. labcorp has a counter with people you can talk to, but quest just has 2 checkin kiosks and a closed door. I check in and do not get a confirmation, so I dont want to wait and find out it didnt work. So i check in again and notice that there was a blurred confirmation screen behind the "please wait" text that had a countdown timer. So I waited about 20-30 mins and got in just under the wire.

The phlebotomist that helped me was a friendly Vietnamese lady who was typing my info in on the computer (at labcorp the front counter people do this while you're waiting). I noticed sounds that seemed like a baby monitor type of noise and I finally glanced over and noticed that she had some kind of live video on her cellphone. She noticed me look and was telling me that her husband had had two strokes and was being bathed today. I felt real bad for her because she was so nice and seemed like a very caring person, and also my uncle died recently after having a stroke a few years ago. I told her I hope her husband feels better and refreshed after his bath.

[secondsonaym]

(Loud inhale)

Okay just to be upfront with everyone it's very likely my hiatus will have to extend into and for the duration of july

Namely because of the state of my hand and I really want to figure out what the fuck is wrong with it before doing any more intensive art projects

Because I still have yet to see a rheumatologist and getting a new appointment after my last one got cancelled has been a hell and a half

I'll go more in depth as to what IRL stuff is happening with me below the cut for anyone who cares.

CW for dementia

Last year my Nana, maternal grandmother, started showing signs of dementia. She hadn't been doing so hot for the past decade anyway, as my papa died and left her alone given she doesn't live near my paternal grandparents and our family only visited the grandparents every other year for about three weeks at a time

She currently lives in assisted living, but her condition is pretty much a state of "the best we can do is make sure she's cared for and comfortable"

This summer, my family will be coming over, but it's very likely a lot of time spent will be on getting her assets and the like in order, because my paternal grandparents have basically had to help her with her bills and whatnot.

I'm not gonna sugarcoat it, it's going to be fucking rough. It was last year on my birthday that we got the biggest sign something was wrong (though I had noticed details before, we didn't move to take action until then), so that date is actually rather tainted for me at the moment--and I hadn't exactly been feeling great about my birthday before all this either, honestly

So basically my brain has entered a state of shutdown where I'm trying to reserve my mental and emotional energy for what is going to be a very hard time. I wouldn't be surprised if something like this makes my parents consider moving back to the states, just to be closer to Nana.

I'm sorry if I seem snippish or rude towards people pushing me about the AU, but at this point in time, I need to be there for my relatives first, and then myself second.

I'm glad you all are still sticking around, and I'm grateful for your patience, but PLEASE try to maintain a respectable distance and understand I have other obligations and priorities at the moment.

[peppergnocchi]

URGENT!!!

Please help a disabled NB artist provide for their cats and be able to survive while unemployed!!!

Hey, my name is Ari! I'm a disabled NB artist who's desperately looking for help! Currently, as I have been fighting to get disability benefits in light of recent health troubles (Awful joint issues, extreme fatigue, spinal straightening that makes me dizzy when bending, extreme vitamin deficiencies, and mental health issues including autism), I haven't been able to secure a job. Since November I've been trying every day to apply to different places, but despite any skills I may have, I either never hear back from employers, get interviewed and then ghosted, or am told that they went with another candidate. Here's one of my cervical X-rays showing the straightening in my spine, which causes coathanger pain, the aforementioned dizziness, near fainting when standing up after being bent for short periods of time, and all over body misalignment/pain:

I also have two lovely cats (and other small miscellaneous animals) who need food, supplies, and care that I can't afford. Here's some pictures!:

With this being said, I put together a GoFundMe! I wouldn't make one unless I was desperate, but I honestly am at this point in time. Alongside the other health issues I face, I also need to get to a rheumatologist to determine if I have an autoimmune disease/infection, since I tested positive for ANA.

If you can donate, I very deeply appreciate it! If not, it's alright. Please just share if you can to boost, since I'm hoping to be able to make at least $150 by the end of next week to be able to pay my phone bill!

Any donations over $5 will receive a free small commission!!

Here's the link!:

Thank you so much for your time and help!

-Ari

[wishful-seeker]

Guuuys i finally see a CRPS doctor this week!

Tw: brief mention of wishing self harm, and mention of medical abuse.

So for 4 years ive had undiagnosed chronic pain, its severe, ive been bed/house bound for 2 years and need a wheelchair when i leave the house.

I talk alot about my experience with being disabled, but i usually don't talk about my actual symptoms often.

I can't use a computer 90% of the time, on good days, which is now twice a week, but used to be never, i can play pc games in 20 minute increments, twice a day. I can't wash dishes, i cant walk without pain, i can't sit in chairs without pain. Im stuck laying in bed, all day, everyday. I usually can't make art, sometimes i can. Im just in bed, on my phone, in constant pain. Its a VERY difficult existence and i have often wished i didn't have limbs because the pain can be so intense.

So ive gone to countless doctors, rheumatologists, a pain specialist, an orthopedic, a neurologist. The reason im always saying stuff like "doctors are scum" is because every single doctor ive ever met has minimized this pain, lied to me and told me they'd do everything they can and didn't, and purposefully wasted my time. I even traveled to a different state to see rheumatologists, they saw me twice, i literally cried and begged these people to give me medicine for the pain, they gave me a shot that they said would help for 2 weeks, it helped for 30 minutes, when i asked them what to do they ignored me. They diagnosed me with fibro specifically so they could get me to leave them alone. I knew that diagnosis was incorrect. Last doctor i saw was a neurologist, i told her i needed to be tested for CRPS, because that was the only lead we had left. She scheduled a brain mri and nerve damage test, they came back normal. I brought up that there is no test for CRPS, she said i was right, and i could definitely have it, but she said she can't diagnose it and i need to see a pain doctor. I told her first time i saw her what i was looking for, and she mislead me into thinking she had experience with crps, and wasted my valuable time and money with tests that were irrelevant. My pain doctor wasn't an option because he doesn't treat crps because he doesn't believe it exists.

So i was lost

Every doctor i knew actively worked against me and none of them could refer me to a CRPS specialist.

But last week i simply googled "crps doctor near me", i found one close by, called them, they didn't require a referral, and the appointment was scheduled a week later. No 2 months wait time, no bullshit doctors approval. Just a phone call away. Im seeing them in 3 days. Wish me luck!

To others out there struggling to get diagnosed, im rooting for you.

[asimmingpunsquared]

life udpate

hello everybody! i am still around and i am still playing the sims, i just don't have any edited pictures to post. i am still deep in the trenches of organizing my cc, which is a lifelong battle, i guess.

i go by any pronouns now. accepting my autism has also led me to accepting that i'm pretty much agender. i'm still a huge feminist, but i don't care about how the world perceives me/i don't put a lot of effort into perceiving myself. "any pronouns, agender" is the best way i've come up with to express this.

my med change process ended up being completely moot, i'm just back on the original medication. however, there is an update regarding the fatigue that set it all off. i'm pretty sure i have lupus. i have family members that have it and two weeks ago i got a bunch of autoimmune symptoms at once (that i'm still experiencing). i also have the classic butterfly rash that i've had for years. i have a doctor's appointment on wednesday to address this. they say lupus starts appearing around age 30 and i'm 27, so the timeline is right.

what does this mean? honestly, not a lot. i already work from home as an independent contractor, so my lifestyle isn't going to be that affected. if anything, getting treatment will only improve my life. my major symptoms are general fatigue, migraine headaches, and bipolar-like psychiatric symptoms, so hopefully i'll be able to address these. i also get low-grade fevers (especially when exhausted), i'm prone to rashes and hives, and this flare-up has caused joint swelling on both my wrists which is pretty miserable.

the wrist thing is the biggest issue, since all my hobbies and work involve typing or holding a pen. luckily, if it is lupus, lupus joint pain doesn't really cause any lasting damage, unlike other forms of arthritis. i've tried a bunch of stuff and nothing has taken the swelling down, so i'm hoping to get a brace from the rheumatologist on wednesday. my ankles also bother me sometimes, but that's more manageable.

my partner is amazing throughout all this and very accepting, of course. it helps that he's a veterinarian which means he has enough medical knowledge (animals also get lupus, apparently!) to help me with my symptoms.

i used to want biological children, quite badly, but then i got with my partner, and we don't have the matching biology to make a baby naturally. we started talking about adoption (in the future, like when we're near 40) and i'm fully on board with adopting, especially in brazil where we live, as the system is much better for the children. now that i'm aware of the autoimmune disease that runs in my family, i definitely don't want to have biological children. i've considered (if we can afford it) implanting my partner's eggs into my womb to carry, but i think pregnancy would be much too rough on me, much less the baby. our ideal situation would be being financially stable, established, and adopting an older sibling pair or trio. we'll see how it goes with my autoimmune disease.

anyway, back to the sims. i'm in year 4 week 5 of stilla and everything is still hanging on. i fully plan on playing it through to the end and updating all my challenges. it gives me joy. and now that i've accepted my life might be a little more slow-paced, that's okay.

[fittoniapearcei]

Wow, I got really lucky today. I had scheduled an appointment with a rheumatologist just bc she was the only woman available near me and it turns out that not only does she specialize in fibromyalgia, but her father [who specialized in it for 40 years] is on the diagnostic criterion board for fibromyalgia. She was super nice and helpful and I've got some new meds to try :)