#not semiverbal culture
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Autism doesn't need to speak
Autism Speaks claim to speak for autistic people who can't. Nonverbal people, semivetbal people, etc.
They do not speak for us because there's no need to. We no need to speak to be treated like human.
Normally I'd wrote this post later when i can type better, but i need no to. If you can understand that all matter. Trying to avoid spelling errors with spell check.
We are people. We are not less or alien or not matter. We are human.
Should we be treated as such and should be treated our age.
Shouldn't need this post. Should be obvious already. We don't need to speak.
Autism acceptance means we all need to be accept like we are. Even people who can't advocate for themself. Even people who can't speak.
We way too tired of same fight.
#autism#autistic#actually autistic#autism acceptence month#autism acceptance#autism speaks#semiverbal#nonverbal#not semiverbal culture
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Part Time AAC User Culture Is Always Second Guessing If You Use It Enough To Count As An AAC User (Hint: You do count!)
yes. All people wandering these tags. Yeah you do.
#aac#aac user#aac culture is#aac user culture is#part time aac user#Sometimes AAC user#semiverbal#verbal loss
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When you're nervous to use aac even though you need it because you don't want to "annoy " anyone or make things "harder" for them
#actually autistic#autistic problems#autistic adult#actuallyautistic#neurodivergent#autistic culture#aac user#aac help#semiverbal#semi speaking#speech loss
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this user has unreliable verbal communication
#my edits#our userboxes#userbox#userboxes#this user#verbal#semiverbal#semispeaking#autistic spectrum#autistic#autism spectrum#autism spectrum disorder#autism#actually autistic#autism problems#autism things#autistic culture#autistic life#autistic things#being autistic#edit#edits#autism edit#autistic edit
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just started persona 5 i'll see you all in hell
#i'm about 2 and a half hours in and i'm enjoying it although it's a bit of a culture shock going from my usual pg rated silliness to. this#honestly the most distressing part so far was having to navigate unfamiliar public transport. i genuinely almost cried#didn't really mind when ren ripped his eyeballs off but experiencing public transport was too much. yes i'm autistic how did you know#[ren is also autistic by the way i got into the habit of picking ... whenever he seemed confused or distressed so he has semiverbal swag]
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Thank you for your advocacy! I very much relate to this & your other posts!
want autistics who don’t need constant or near constant support to know that having higher support needs, not able to live alone take care of self, not being able to hide autism, all of it can be really really devastating and suffocating.
not all sunshine and rainbows, or magically accommodated and needs met.
cannot leave ableist & abusive family because need to rely on them. because cannot be independent. because too poor for residential living or support worker. because no other support.
cannot escape authoritarian country with harsh censorship (not talk about US) because no country want such disabled person. because not productive member of society. because liability. because likely to be “public charge.”
forced to drop out of school. very soon. because need life carer and college not obligated to give that. even though want to learn. want to have secure future.
scared of future. because depend on others. cannot not depend on others. forced to trust. forced to make self so vulnerable. quality of life not in own hands. not having control on own life is terrifying.
scared about what to do after drop out of school. scared when parents lose job. scared when parents get old and can’t support me. scared when they die.
scared about own life. every day. trauma every day. trauma whole life. unspeakable trauma.
so, get really upset when see lower support needs autistics say that people like me lucky.
or erase people like me in advocacy. take away our language.
because am not lucky. not lucky to have to wonder if will be locked away, abused, or even killed in near future. real threat. not just distant advocacy terms.
#too vulnerable may delete and can’t even publically explain why paranoid#actually autistic#actuallyautistic#high support needs#nonspeaking#medium support needs#nonverbal#semiverbal#semispeaking#level 2 autism#level 3 autism#level 3 autistic#level 2 autistic#autistic#autism#severely#severe autism#severely autistic#severely disabled#low functioning autism#low functioning#autism spectrum disorder#autism advocacy#autism spectrum condition#autism awareness#autism acceptance#asd#autistic life#late diagnosed autistic#autistic culture
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Hi, and welcome to autism-culture-is! I was informed that the other autistic culture blog was inactive, so I figured hey, why not give this a go! :]
You probably already know the drill with culture blogs, just send an ask starting with "autistic culture is" and then I'll post it.
There's only one mod, you can just call me Mod A, A not standing for autism but it works out well. He/it pronouns. I'm an adult.
Few things to put out there:
Ableism of any kind will not be tolerated here. Obviously no ableism against autistic people and other neurodiversity, but also no ableism against more stigmatized mental illnesses like personality disorders or psychosis, ableism against intellectual disabilities, or ableism against physical disabilities.
Other types of bigotry also get the boot, racism, sexism, homophobia, transphobia, classism, fatphobia, antisemitism. Also no exclusionist crap.
Don't send in asks about "going nonverbal" or "going semiverbal", those terms are meant to describe permanent states and people who are always nonverbal or semiverbal are against using these terms to describe temporary states. Use terms like speech loss or verbal crash instead.
Autism isn't fundamentally different based on gender or sex, so please avoid terms like "male/female autism" or "amab/afab autism".
Please don't use the word cr*ppling, as it's a slur against physically disabled people. Say debilitating instead for things like "debilitating anxiety".
If you send an ask with media, please put an image description with if you're able to. If you're not, I'll give it one, but it's easier for me if the asker gives the image description.
Please let me know if there's anything that I should be doing better regarding disability stuff. I'm level 1 autistic, verbal, and with low support needs, so I may not always be aware of certain issues.
That's all for now! Happy autisming!
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New autism criteria: having traits in common with every member of the Pie family
ahaha jk BUT they do all have autistic traits
Pinkie and Maude both take things very literal, and even though they each make figurative statements have a difficulty discerning when others do so.
Pinkie also gets along great with the yaks, whose cultural speaking patterns tend towards being pretty blunt, but she knows what they mean and doesn't take it as being rude because she takes it literally and doesn't see them as part of the social "play", so to speak. I also HC her as ADHD bc she has some Very Relatable RSD-focused episodes.
Maude is able to "understand" her pet rock and personifying it, and Pinkie acts similar with Gummy.
And there was a whole episode about the main cast thinking that Maus hated them because they couldn't understand the way she showed her emotions, and she later describes to Starlight feeling alienated from other ponies.
Limestone Pie is The Boss, she thinks very practically and says exactly what she's thinking, so it's a good thing she mostly spends time with her family members who know she isn't trying to be mean.
Igneous Rock and Cloudy Quartz are overly formal because that's how they were brought up, and as far a they know, those are the rules to politeness forever. The grammar rules and inflection they use may be a different set than other ponies are used to, but until being told otherwise, you can bet they will follow their own rules to a tee.
It is unclear to me whether Marble Pie is nonverbal or mute or semiverbal or simply doesn't want to soak that often, but it is clear that , despite liking to be around other ponies, she leaves the bulk of the work in the realm of social interaction for her sisters.
#pinkie pie#g4 pinkie pie#pie family#maude pie#marble pie#limestone pie#igneous rock pie#cloudy quartz pie#mlp maud pie
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Welcome - We're the Forest Collective
This post contains our Do Not Follow , Before You Follow and some extra info about us bellow the cut
Collective Terms + Identities:
Forest , Xi/They/Wolf/Howl , Transmasculine
Therian + Otherkin (Primarily Wolfkin + Wolf theriotype , but we also identify with ragdoll cats, bunnies, and several others)
Punk , Cripplepunk / Cpunk
Collectively we are situational mute (do NOT call us selective mute) and predominantly semiverbal
(we have several masked verbal alters who communicate for us verbally when necessary, but we are considered semiverbal)
We interchangeably use parts , headmates and alter language and mainly use We/Us when talking about us.
We are intersex.
Get blocked (DNI):
Antisemitic, homophobic / transphobic, TERFs/SWERFs, racist, ableist, fatphobic, zionists etc
Non-traumagen "systems" + supporters/neutrals (endo, willo, etc) OR culturally appropriate closed practices
Pro/neu contact paras, radqueers and transIDs fuck off
If you reduce introjects to their source / blacklist certain sourced introjects (wtf is wrong with you)
If you don't know how to actually tag and TW things you're getting blocked
If you don't follow your own DNI
Anti contradictory labels - you are literally so intersexist and transphobic.
If you cannot tell the difference between real values and FICTION
Before You Follow:
If you stigmatise cluster B PDs by promoting the myth of "narcissist abuse"
Perisex but use Intergender or think you can transition to be intersex
Do not use complexity labels on us
We are physically disabled and use mobility aids
We often lose the ability to speak or communicate coherently as well as the ability to advocate for ourselves
We will block you if you actively post / reblog about our triggers
We are bodily intersex and will not tolerate intersexism of any kind.
Posts / reblogs tagged with: "dir post 🧂" or "dir reblog 🧂" are directed at our syspartner
Anons and asks will be tagged with:
"🌳 forest.chats"
Random rambles unrelated to our usual posts will be tagged with:
"🌳forest rambles.exe"
We have survived RAMCOA , Programming and TBMC and post about it (tagged with appropriate warnings)
Our Disorders:
AuDHD , Dyslexia , Speech disorders (stutter, situational mute, semiverbal), Tourettes
Agoraphobia, C-PTSD, Polyfrag DID
Cluster B PDs: BPD, HPD, NPD
Cluster C PD: DPD
OCD, DPDR, Pica, ARFID, Anxiety + Depression
We are visually impaired with VSS (currently looking for more Dx that may explain our vision)
POTS, FND, Hypermobile EDS, Fibro
Our Collective Pronouns page:
(this also contains links to other headmates pronouns pages)
#endos dni#intro post#polyfrag did#actually did#did alter#did osdd#did system#osdd#cdd system#osddid#endos fuck off#plural did#plural osdd#osdd plural#did plural#did plurality#osdd plurality
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wordmojis/emojis, custom cards (printed out with phrases), sign languages, AAC programs such as cboard AAC, text to speech, physical boards.
Reblog this post with information on ANY AAC resources <3
Apps, boards, cards, etc
#aac#aac board#aac user#aac device#aac app#aac emoji#aac symbol#augmentative and alternative communication#autistic experiences#autistic things#actually autistic#nonscribal#nonverbal#semiverbal#autism#actually neurodivergent#nuerodivergent#nuerodiversity#aac user culture is
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Since it's International Day of Disabled People I'd figure I'd make a post or two about it.
First of all, yes, autism is a disability. Even in a perfect world autism would still be a disability. Just because some low support needs people feel like their only struggles are cause of society doesn't change that.
Mid to high support needs people exist. Hell, low support needs people that would still struggle in a perfect world exist.
Now that that's aside, what can you do to support autistic people today?
1, Lift up autistic voices. Especially semiverbal and nonverbal people who are usually silenced because people don't learn how to accommodate them.
2, Spread awareness about the ableism we face. In school we'd be the ones to get bullied, when we grow up it's harder to get and keep jobs, and we even get discrimination for existing in a public place while visibly autistic.
3, Especially support and lift up autistic voices who have multiple disabilities. Whether that's multiple mental disorders or physical disabilities or both. It's disabled people's day after all, not autistic people's. Make people aware of the intersectionality of having multiple disabilities.
I'm going to make a second post about this, talking about more awareness stuff.
#not semiverbal culture#autism#international day of disabled people#disability#disabled#disabled community
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AAC culture is getting annoyed when people say things like AAC & TTS. Text to speech Is AAC!! it very much is! what they mean is most likely symbol based AAC! important! But not the only thing called AAC! Please stop I'm losing my mind over here
^^
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Verbal Terminology in Autistic Tumblr Survey Results
After quite a long while (and for that I apologise) I’ve finished the results of a survey about the descriptivist uses of the terms Nonverbal/Non-Speaking and Semiverbal/Semi-Speaking in Tumblr’s Autism Community. This survey was originally intended to cover more, and just be a fun side project that unfortunately ended up with many flaws throughout the whole process. I'll go into specifics more at the end in the “Further Notes” section!
All that to say, I heavily implore you to do your own research and listen to others outside of this survey about these terms. Admittedly I think this survey is best taken as a small peek into how a very small group of people currently use these terms, in a fun non-informational survey format. (Also this was my first time doing image ids, so well i tried my best they might be really bad and for that i apologise in advance!!)
Demographic Questions
[image id: a bar graph called “What Would You Call Yourself” with the options going top to bottom the graph says Nonverbal at 16 (3.5%), Semiverbal at 118 (25.9%), Someone Who temporarily Loses Speech or Temporarily Can’t Talk at 308 (67.7%), Verbal or At allistic Level at 171 (37.6%), and Hyperverbal at 95 (20.9%) end id]
First things first I looked at the different ways survey respondents identified personally, and at a base level we can see most people said they had varying speech levels. The next highest given types overall were Semiverbal and Speaking Autistics, with Nonverbal being the least used term among survey participants. Due to this being multiple choice I also looked at what group of responses where most common:
[image id: a bar graph of Unique Term Use Types. The highest is Temporary Only at 141 respondents. The next Highest is VT (Verbal and Temporary) at 60, followed closely by Verbal Only at 59. The rest in order of highest to lowest is Semiverbal Only at 41, ST (Semiverbal and Temporary) at 33, TH (Temporary and Hyperverbal) at 29, Other Combinations at 21, VTH (Verbal, Hyperverbal, and Temporary) at 19, Hyperverbal Only at 18, SVT and STH and VH are all tied at 8, SV (Semiverbal and Verbal) at 6, and finally Nonverbal Only at 4 respondents. end id]
This graph more clearly shows that a majority of responders would consider their verbal speech levels to change, but only a minority of that group also considers themself Semi or Non-Verbal. You can all also see how a majority of responders considered themself either as just temporarily losing speech or a combination group using the Verbal option, which highlights a potential bias in the future questions. (Also the other section is for all combinations that got under 1% of respondents individually!)
[image id: A pie chart pf praticapent’s age groups. The highest at 56% is 18-29 year olds, with 13-17 place at 38.2%. The rest have the percents cut off but in order are 30-29, Under 13, and then 40+ year olds. End id]
Most responders fell in the age ranges of 13-29. This seems to follow general Tumblr trends after a quick search, but possibly leans a few years younger then the general user base. The lack of older adults taking the survey is unfortunate as some of these terms have been around for a while, and it’s always a plus to get an all ages response on surveys like these.
[image id: A pie chart titled “Where did you find the survey”, The top choice being “Another Tumblr Blog” at 59.1%, and the 2nd “Nd Culture Is” at 37.1%. You can see the slices for “From Someone I Know” and various Other Responses in the pie chart, with the other responses blurred out in the index sheet. end id]
This graph is admittedly a bit worthless, as I made it before deciding where I was going to post the survey to, so a decent amount of people, both those who selected “Another Blog” or Other mentioned getting it straight from the og post or a reblog of it. So needless to say i wasn’t quite exact enough by what i meant in this question (which was to see how far it spread vs any bias from just my “in-group” so to say), but it does does imply that that the survey didn’t make it far from the groups I posted it in. Which is expected with how little "promoting" was done during the survey period.
NonVerbal / NonSpeaking
[image id: a multiple bar graph showcasing the correlation between how responders self identified vs how they define Nonverbal. Going from top to bottom is The Fully Always option chosen by 3 from Nonverbal Only, Masking with no chosen responses, Little to No Speech at 2 from Nonverbal and other Terms Users, Allow Temporary at 9 from Nonverbal and other Term Users plus 7 from Nonverbal and Temporary and an intentional Nonverbal Only Responder, then All Above with 1 Nonverbal and Temporary plus a Nonverbal Plus Response, Followed lastly by Other Definitions with no responses. End id]
Before going over this data I want to reiterate that the survey had very few nonverbal people taking it, so this data is not going to be all possibly not even most, nonspeaking people’s option on defining those terms. Next The N Plus section on the graph includes the N and T groups as well as other responders who marked themself with more than just the Nonverbal role. That said it seems that the greater community tends to lean towards the “Someone who has periods or is always not able to speak and/or can't speak well” option, and well quite a few nonverbal autistics agree, there’s a group especially among those who only consider themselves nonverbal who prefer defining it as those who always can’t speak fully ever. This matches with trends i’ve personally seen in the nonverbal tags of nonverbal people preferring definitions that centre on the lack of verbalness, even completely or most of the time vs speaking autistics using more broader terms, but again with such a lack of nonspeaking people involved there is no solid reliability to the data.
SemiVerbal / SemiSpeaking
[image id: a multiple bar graph showcasing the correlation between how respondents self identified vs how they define Semiverbal. Going from top to bottom is Partly All with 8 from Semiverbal Only plus 7 Semiverbal and Temp and 10 from Semiverbal Plus, Next is Inbetween with 24 from Semiverbal Only and 42 from Semiverbal and Temp plus 53 from Semiverbal Plus, Lose Speech has 5 from Semiverbal Only plus 6 from Semiverbal and Temp and 8 from Semiverbal Plus,All Above with 2 from both Semiverbal and Temp plus Semiverbal Only, Context-Based with no responses, and finally Other with 1 from Semiverbal Only plus 2 from Semiverbal and Temp and 3 from Semiverbal Plus. end id]
Like The Nonverbal Section, The S Plus section on the graph includes the S and T groups as well as other responders who marked themself with more than just the Semiverbal role. Otherwise, from this graph we see an overall trend of including anybody “between nonverbal and verbal” regardless of how the respondents identified themself. There also seems to be less of a disconnect between those who are semiverbal vs the greater community when compared to the results of Nonverbal, although whether that is a bias of the survey or a general trend is hard to tell. Most respondents who chose Other seem to have given either an all of the above answer (which I might have manually included???) or mentioned a definition using the idea of always struggling with speech but at different levels.
Further Notes
One thing I really wish I had done was involve more nonverbal and semiverbal people in the whole process of making this, i think looking back there’s definitely moments were you could tell this was made by a speaking autistic and I really didn’t do nearly enough to include and uplift the voices of those who this survey was literally about. In a similar vein I forgot about pretty much every non-autistic community who uses these terms, but also didn’t make it clear enough that it was unintentional, leaving not only countless voices unheard but accidentally ostracising those whose voices are equally as important as what this survey managed to cover.
Alongside that I was very unclear in what some questions meant to the point even future-me wasn’t sure what the data was for, plus I bit off much more than I could chew, making for a messy at best survey experience. As such survey taker’s might notice not every question was given space here, and that is simply because I couldn't process the data in a timely manner.
I did however let people opt-in to sharing further notes about how they use these terms and will share some of those under the read more with no individual commentary so as to let people speak fully for themselves:
There is a gap in the language available to describe autistic difficulties with speech. Verbal should describe the ability to use language, written or spoken, but in the context of neurodivergency almost always describes speech only. Non-speaking would be a more appropriate term and would free up nonverbal as a term for autistics who struggle with written and spoken English (as in syntax or language in general, not spelling). This has been talked about in high support need circles but is not mainstream.
I think we should look to the wheelchair users for language design, specifically the differences with the language around full time wheelchair user and ambulatory/part time wheelchair user
i wish mostly speaking people would find other ways of explaining their experiences without using nonverbal/nonspeaking people's language. we already have a much harder time communicating and when our language is taken or used in different ways that makes people confused about the meaning and they assume that the experience of mostly speaking people is the same as mostly or fully nonverbal/nonspeaking people. when actually the overall experience is very different
I am not sure exactly where I fit within being verbal but losing speech and struggling to speak almost always, or if I am semiverbal. I think the lines between all of these terms can be blurry, but I think it's bad how verbal autistics who lose speech occasionally (and often talk about being able to push through this and force themselves to speak - which is how I feel almost all the time) have taken these terms which makes it very hard to find content from people whose experiences with speech are similar to mine or who are nonverbal. I think it's connected to how in general lower support needs autistics take most of the space in the autistic community and it can feel isolating for people like me who are higher support needs.
And well this survey was about English specifically, I want to share what this survey respondent said about how the terms work in their language and how that affects their usage of these terms:
third of all: the alternatives to that, such as "losing speech", "having verbal shutdown", or "going mute"... simply do not work in some languages. and as proof, let me show you my beautiful native language, that being ukrainian!
"losing speech" = our word for speech equals our word for talk. when losing speech, i CAN talk - but not by using my voice.
"verbal shutdown" = our word for shutdown is not being used in the same way as in english and there is no good alternatives.
"going mute" = our word for mute has a very long and complicated and problematic history, and is not something most people would be comfortable saying!
so, that means that i am left with absolutely no phrases to use in my language - because the only one, that being "going/becoming non-verbal" which is translatable and has the same meaning - is not an option anymore.
#survey#neurodivergent#actually neurodivergent#actually autistic#long post#cw long post#emri.exe#i'm still not certain if this is actually legible as one long ass Tumblr post#and not a reblog chain but that was much harder mechanically to make in advance :/
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GAD (generalized anxiety disorder) plural culture is a new headmate being in front and having a panic attack, and because they don't know how to handle the body's panic attacks, we split. somehow, the newbie is blind in headspace? and they're nonverbal*, too. so now whenever they front--which has happened twice already since they came into existence yesterday--they keep the body's eyes closed because they don't like the idea of being able to see when they're blind. we also can't help them choose a name because they're nonverbal. they also won't show themself in headspace yet, so we can't tell if they do or don't like the name ideas we have for them.
(*we're autistic, the body is collectively semiverbal, and the main host has speech loss episodes. but we've never had a nonverbal alter---until now.)
being plural is so whack sometimes.
.
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u have a v distinct way of doing things and i am v aware of it so i play by ur methods. i will take this excessively diplomatically so no one can possibly misconstrue my words
i made the original post ab this whole thing. in spite of having been labeled as anti endo (and a singlet for some reason) i’m not rly. i have been involved in the plural community long before my DID dx and my last bf was a veritbonder. i have seen the endo community from the inside and don’t have issues w it.
my problem is the disingenuous nature of many syscoursers, and you are not excluded from this. i could do the same thing as you have done and explain why i think PNES should just be called regular seizures and they’re exactly the same now. there are many sources where they have been called seizures for years and years. but language changes, and i know you know this. it is one of your whole arguments as to why you are for the use of tulpa. to you, that word means something different than its origins.
to me, as a bodily semiverbal person, these terms mean something different. these words have evolved within the community that they were applied to. the system community, both endogenic and traumagenic, is dissociated (ha) from the semi/nonverbal community at large. you don’t know how we use these words because you literally do not participate in our community or culture. just like someone who commented on one of your other posts said, this is exactly like when verbal autistics who lose speech insist that saying “go nonverbal” doesn’t hurt nonverbal people.
as i said in my original post, and yet people somehow become unable to read for one sentence, if one headmate fronts for a significant amount of time that you could be considered semiverbal as one body, then you can do that. you are very disingenuous with your “bodily experiences” post, even though i am very sure you understand what people mean by that. my entire body regardless of any headmate fronting will always be semiverbal or nonverbal as my brain damage progresses. i use these words to tell people that as a body i cannot speak how you speak. if i had some headmates that couldn’t talk i would just say that. those specific ones can’t talk. my body is verbal overall.
if you go into our communities, we will hear you say “i am nonverbal” and will assume that your body does not and cannot speak. we will defer to you and seek to uplift your voice as one of the most disabled members of our society. our community is based around intersectionality and understanding that there are people more disabled than you. it is the job of verbal people to listen to me, and it is my job to listen to nonverbal people.
if you use these terms just for yourself. just between you and your therapist. between you and your friends. then no, it doesn’t matter. it was never about that. it is about the community and community implications of people who are objectively less disabled taking a word for people who are more so.
headmates can be people, they can do that, but a single body exists. you can’t just ignore that. i don’t become white when my white headmate fronts. i don’t gain the ability to walk unaided when abled headmates front. i don’t become less disabled in any way. i don’t become verbal.
and if you want to counter with abled systems can have alters that can’t walk, because i know you just want to, we don’t call it paralysis. we call it functional, somatic, or psychogenic paralysis. it works differently in the body just the same. you can’t insert yourself into semi/nonverbal spaces any more than you can insert yourself into a SCI support group.
i could do the same thing as you have done and explain why i think PNES should just be called regular seizures and they’re exactly the same now. there are many sources where they have been called seizures for years and years. but language changes, and i know you know this.
I'm already lost...
Is there some sort of discourse claiming that you can't call psychogenic non-epileptic seizures... seizures?
and if you want to counter with abled systems can have alters that can’t walk, because i know you just want to, we don’t call it paralysis. we call it functional, somatic, or psychogenic paralysis.
Or that psychogenic paralysis isn't a valid type of paralysis?
The cause may be different, but there are a ton of different causes for various conditions.
Someone blinded by an eye disease is blind. Someone blinded by their eyes being physically damaged is blind. Someone who experiences psychogenic blindness is blind.
Likewise, psychogenic paralysis IS paralysis. And a psychogenic non-epileptic seizure IS a seizure. You can add a qualifier to that... but it's not necessary.
if you go into our communities, we will hear you say “i am nonverbal” and will assume that your body does not and cannot speak.
That could be a fair assumption with no context. Although I... frankly doubt this happens often, or is a mistake that lasts long without being corrected.
If someone hears me say "I'm a cis woman" without context, I'm sure they would wrongfully assume I mean that the body is AFAB.
Obviously, it's important to try to mitigate miscommunications like these. But I assume that if you're dealing with a system with nonverbal headmates, you'll realize shortly the error. Unless that nonverbal headmate is the host or is otherwise fronting all or most of the time, in which case... maybe the miscommunication isn't as important as you think it is. 🤷♀️
our community is based around intersectionality and understanding that there are people more disabled than you. it is the job of verbal people to listen to me, and it is my job to listen to nonverbal people.
And this, I think is a mistake. At least when taken to the extremes I see here.
First... I'm really not comfortable with the idea of "more disabled" here. Sure, you can kind of apply this in specific contexts to try to say recurrent symptoms aren't as bad because they don't happen as often... but having your legs randomly give out while crossing the street might be more harmful than being a fulltime wheelchair user who wouldn't have been in that situation.
I'm also not comfortable with this thought in this specific case as it suggests that the nonverbal singlet is "more disabled" than the traumagenic DID system with severe memory loss and c-PTSD who has nonverbal headmates, and therefore gets a right to police their terms.
But let's say for the sake of argument this has merit and DID systems with nonverbal headmates are "less disabled" than nonverbal singlets:
Yes, you should absolutely listen to people with disabilities. Especially severe ones. But...
Dysphoric transgender people are technically more disabled (in that specific context) than non-dysphoric ones.
The same logic you're using could just as easily be used to support transmedicalists over non-dysphoric transgender people. Actually, the same logic HAS been used this way. Repeatedly. It's one of the main talking points employed by transmeds to garner sympathy.
There HAS to be more critical thought put into these issues than just "listen to the most disabled people in the room," which in this context really feels more like "accept what the most vocal members of a group say on a given platform without question."
This is also the logic sysmeds use against endogenic and non-disordered systems.
"We're disabled trauma survivors, so therefore you're supposed to listen to us when we claim this other marginalized group of people aren't real and their experiences aren't valid, and they aren't allowed to use terms we claim are ours regardless of whether those terms originally were or not. If you disagree with us then you're ableist."
We cannot afford to normalize this sort of exclusionism and gatekeeping.
#syscourse#neurodivergent#neurodiversity#actually neurodivergent#multiplicity#systems#system#plurality#plural#endogenic system#disability#mental health#nonverbal#sysblr#actually neurodiverse#asd#autism#pnes#psychogenic seizures#actually a system
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About Blog
Welcome to pda-culture-is!
Inspired from other culture blogs such as @autism-culture-is @ndcultureis @cluster-b-culture-is @narcissisticpdcultureis and more!
This blog is for autistics with Pathological Demmand Avoidance to share their experiences.
Examples of starting off an ask:
PDA culture is
Autistic PDA culture is
PDA + (other disorders) culture is
Questioning PDA culture is
Informed self diagnosis is accepted here, even if you don't plan on getting a professional diagnosis
DNI
basic dni (racism, sexism, ableism, queerphobia, fatphobia, ect.)
transmeds, TERFs, exlusionists, transID
anyone who demonizes stigmatized disorders, believes in "narcissistic abuse", participates in "cringe culture", misuse terms such as intrusive thoughts, narcissist, sociopath, delusional ect.
pro-contact/anti-consent harmful paras
NSFW blogs, ED or SH blogs unless they are based on recovery
anti-self-dx
Other things to add:
don't say "going nonverbal/semiverbal" as they are pernament states, what you can use instead is verbal shutdown or speech loss
you can swear in asks but don't use slurs
in the case your ask mentions abuse, ableism, ed, s/h, suicide or anything of the like, its appreciated if you put a warning on top. we tag with both "(x) tw" and "tw (x)" just in case
in case you send an image with text, it is appreaciated if you add an image description if able
you can also add signatures (emojis, names), we'll keep track of them
we're open to questions but it is unsure wether we can answer
hate messages will be ignored and deleted
About Admin
Collective Info: Dave, he/they/it, Transmasc Non-Binary AroAce
We're a DID system with NPD, BPD, and of course Autism hence this blog. We won't be sharing much about us.
Our stance on syscourse doesn't matter on this blog so anyone can send in questions and interact
#asd#autism#pda autism#pda profile#actually autistic#culture is#autistic culture#pathological demand avoidance#neurodivergent
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