#medically complex adult | Explore Tumblr posts and blogs

kaijutegu · 11 months ago

Text

Aug ABSOLUTELY deserves the praise, @ryukikit. St. Augustine Alligator Farm is one of my favorite animal facilities, hands down. It's a pretty zoo, doable in an afternoon if you kinda like crocodilians, or an all day affair if you REALLY like crocodilians. Here are my favorite things about it and why I think it's worth supporting.

1. They keep animals in interesting social groups.

Crocodilians are heavily involved parents, but most places that breed them don't have the enclosure space to let the babies stay with the parents. St. Augustine does. One of my favorite groups was their crèche of slender-snouted crocodiles. They had the parents and then a yearling cohort and a new hatchling cohort. This aligns with how these guys live in the wild- the babies stick around longer! They have the space for it, and they are very in tune with the social needs of their animals.

Very, very few zoos can keep their baby crocs with the adults and still perform maintenance and animal health checks safely. This doesn't mean these facilities are bad- it just means that they have different management practices. And frankly, a lot of these species aren't frequently bred elsewhere. Your average zoo doesn't need a setup where you can have a multiyear crèche for slender-snouted crocodiles. Some species have better success when the young are pulled early, and some zoos are better set up to raise out any offspring separately or behind the scenes. Every facility's practices are different, and this just happens to work well at St. Augustine and be really enjoyable to see as a zoo patron.

Crocodilians are exceptional parents and very protective. It's a sign of incredible animal management practices and animals that feel very comfortable with staff that St. Augustine can do this with nearly every species they breed.

2. They understand the social needs of their animals.

Some crocodilians are social. Some are solitary. Some can live happily with a member of the opposite sex but get territorial around members of the same sex. St. Augustine pays incredible attention to their social groupings to ensure that they aren't just meeting the animals' physical health needs but their social needs as well. They do continuous scientific research about social structures in crocodilians, taking blood samples to test stress hormones and observing stress behaviors to see how group dynamics change.

For example, St. Augustine is home to one of the world's largest known living saltwater crocodiles, Maximo. And his comparatively tiny mate, Sydney. During the educational presentations with these two, they point out that even their monster of a croc needs his social group- he won't eat if she's not around and he is calmer during medical checks if he can see her. These animal share a deep and special pair bond, and they make sure to talk about how the social aspect of these animals' lives is integral to their care. It's a unique aspect of the way they talk about these animals, because he IS a spectacle and he IS a sensation, but they don't talk about him like he's a mindless killing machine- they talk about him like he's a big, complex predator with social needs like any other animal. Aug is the only facility I've been to where the emotional and social needs of crocodilians is part of the education they provide guests- and speaking of education...

3. Their demos and presentations are extremely good.

The presentations at St. Augustine are some of the best I've ever seen, and I've seen literally hundreds of animal talks on everything from aardvarks to zebras. But as you... can probably tell from my blog content, I've spent a lot of time learning about and working with reptiles. I really enjoyed all of their presentations because they are very scientific about things and avoid sensationalism. They really want you to be fascinated by these creatures and love them- but more than anything else, they want you to respect them.

Also, they do a really good job handling their ambassadors. I really enjoyed something as simple as watching an educator tell us about snakes. Throughout the whole presentation she made sure that most of the snake's body was looped in her hand. The snake was always supported and was very calm. She gave the snake plenty of head room so that it didn't feel constricted- it was just good handling all around.

But also, the presentations made it clear how much the park cares about the animals' well-being. When they do the feeding and training presentations, they make it very clear that the animals' participation is entirely voluntary. They do things differently for their 9-foot saltie and their 16-foot saltie, because the 16-footer is so large and heavy he actually struggles walking on land sometimes. They adapt their programs and his care to ensure that he's completely comfortable- and he didn't actually participate in the whole feeding when I was watching! At no point did they try to push him into anything uncomfortable; they offered, he didn't engage, and they moved on. It was a clear expression of his boundaries, and I really appreciated how much his caretakers respected that.

4. Ethical Interactions

I've been to... a lot of tourist locations in Florida that have animals you can hold. Almost always against my will! Many of them are pretty terrible, and you don't actually learn much, if anything. But I really found that to not be the case at St. Augustine. Every single animal presentation and interaction opportunity was accompanied by education about the animal's biology, habits, and- crucially- their conservation status.

When I held a baby alligator at St. Augustine, the proctors- there were two, one to ensure I was holding the gator correctly and the other to educate- were very informative about the role alligators play in their ecosystem and their conservation history. The animals were all properly banded, and one of the two proctors was there to ensure that none of the baby alligators were uncomfortable. As soon as they started getting squirmy or tense, they were removed, unbanded, and taken to an off-exhibit area to relax. And when the babies age out of petting size, they just go in the lagoon to live with others of their species. I saw one upset alligator the entire time I was there, and he was clearly upset that his escape attempt was foiled by a keeper during my nursery tour.

Even though he's restrained in this shot, you can see that his full body and tail are supported, and the grip, while firm, is gentle. He's distressed, but after I took this picture, she put him in his enclosure and he calmed down immediately.

Sometimes when you have petting attractions with baby animals, those animals... don't have a happy ending. (See: cub petting.) But St. Augustine's program is fine- the gators are all aged out of wanting to have mom around, there's no declawing/defanging, and they're handled with care. And it's worth it, because people love what they understand. St. Augustine was integral in raising public awareness about alligators back in the 60s when they were endangered, and now they're thriving- largely in part to programs like St. Augustine getting people to care.

And speaking of getting people to care, let's talk about their research.

5. Shared Research Results

St. Augustine is also home to more species of crocodilian than anywhere else in North America- all of them, usually. (They didn't have a Tomistoma when I visited- that may have changed.)

Because of this species diversity, it's an incredible research resource. Having every species means that you can do a lot of work comparing their behaviors, their growth patterns, and more. They've been a major research site for crocodilian biology since the 1970s. Today, they're one of the key sites for studying crocodilian play and social behaviors. They actually maintain a blog where they post copies of papers that were written using their animals, meaning that you can actually see the results of the research your admission helps fund. You can see that right here: https://www.alligatorfarm.com/conservation-research/research-blog/

All of this adds up to a zoo that provides a unique experience, tons of actual education, and transparency about what its research and conservation steps actually are. St. Augustine's come a long way since its opening in 1893, and they really do want you to leave with a new respect for the animals they care for. Ultimately, if you're a fan of reptiles, you can feel good about visiting the St. Augustine Alligator Farm- their care and keeping are top of the line, they do a ton of innovative conservation research and support for conservation organizations, and you can see this animal there:

(Gharial from the front. Nothing is wrong with her that's just what they look like from the front.)

#long post #st. augustine alligator farm #alligator #crocodile #reptiblr

6K notes · View notes

where-does-the-heart-lie · 4 days ago

Text

One Piece Fighting Game AU

this au is inpired by the song Heart Attack by Chuu

hope you enjoy the designs i created most of them in a 2 hr long manic episode of just nonstop designing.

there is more to come with this au im super excited to show you guys :)

some lore ive cooked up for it and design explainations:

preface: sorry this is so much writing and im not going to grammar check it cuz aint no body got time for that.

The world of this au is like pokemon with different gyms you can fight through and beat, there's a big league of pro fighters, and there are schools for teaching you to be a better fighter.

The school our main cast goes to is called the Doki-Doki Battle Academy and it's principle is currently Crocodile. It's previous principle was Nefertari Cobra, but maybe something nefarious happened to give crocodile the spot who knowwsssss~

Doki-Doki Battle Academy (DDBA) hosts many tournaments in their school stadium throughout the school year. The tournies act as tests for the students who are taking that field of study. There are other fields the school offers though, such as weapon crafting, medical staffing, and managing. Though, if the students in those fields with so learn fighting on the side that is also accepted.

In the Pro Fighting world, there are typically pro-league teams such as the Red Hairs and The Beasts. These teams have different levels to it such as Little Leagues (for younger fighters), Minor leagues (for adults on a regional level), and Major leagues (for profighting at a national level). You can also go solo though, much like Mihawk does.

The power system in this AU is pretty simple, different color of auras do different things, but the complexities happen when you start using the different auras in tandem. I might explain it more in depth in a different post, but i dont really know what to explain about it. mostly because i dont know everything about it, myself, yet lol

-----design talk now yippeeee-----

Luffy: i tried to make him very simple protagonist vibes, play into the genre a bit. i incorporated hearts into his design in his hat, his shirt, his arm bands, and his pants poofies. His hat was given him as a sign of love, his shirt is from his school and he loves his school, his arm bands are on his arms and he uses his arms to show his love by fighting or by hugging, and his pants arent scuffed or anything so the heart puffs on his knees protects them from getting damaged (his love protects him)

Sabo: Tried to give him a more mysterious vibe with that peacoat and hat that shadows his face. I incorporated hearts into his design in his eyepatch, his vest buttons, and his boots. His heart eyepatch covers up that nasty scar, so he's distracting himself from his past pain by focusing on his love, the buttons on his vest/hearts on his boots are more or less hidden most of the time so he tends to hide his love but when he lets his guard down (when the boot is rolled down) you can see his love plainly.

Ace: Now, i dont know if Ace will die in this au or not, but in canon, he expresses his love through his torso area, i.e. tattoo on his arm and back and also that Certain Moment, so thats where i put a big ol' heart on him. His pants are also ripped in a shape of a heart but its kinda hard to see, but its meant to symbolize how the damage he takes is his love.

Nami: All the orange in her design is in heart shapes or the shapes of tangerines, thats where her love is. I also made nami's staff a curtain rod. She uses the rod to produce wind when she summons water and then manipulates it to heat it up or cool it down. i tried to add little details like that and the bandages on her torso to show that although she's outwardly clean, she's still scrappy. Nami is in the managerial pathway at the DDBA.

Zoro: I didnt make him quite as bright or vibrant as the others, i kinda just tried to make him Just A Guy. Except for his Swords. His Swords are special, so theyre bright and saturated. I roughed him up, a bit, not too much. i made his varsity jacket be ripped open so it looks like the heart on the front was broken because zoro is very broken hearted.

Sanji: I made him look like a wannabe princely character. Very cheesy, gaudy charm. I made the hearts of his design (on his boots) look like they're sewn up. So at some point his heart was broken, but he's healing them by stitching them up with love.

Robin: The hearts in her design are hard to make out because she is hiding her love. The pink of her lacey undershirt is where the heart is and its being protected by a dark over layer. The many belts in her design, however, are meant to look like shatters in that protective layer. This is meant to represent how even though she's strongly protecting herself, that strength is still weak without any outside help. Robin uses her multiplication abilities to simply multiply the shape of her arms like how she does in canon.

Chopper: His hearts are on his viles and his hat, love was given to him when he was given that hat, and he shows his love by making his healing potions. On another note though, chopper is a Transtormationalist, which is basically the zoan fruits of this world. His model is the Reindeer and his body has naturally started morphing into that form, too. Chopper is in the medical program at the DDBA

Usopp: Usopp's hearts on his pants patches signifies the new loves he’s accepted into his once lonely life. He fights with his sling shot and his ammo is seeds he's found savaging through forests or just growing himself. the white and grey auras he commands lessen the air resistance of his projectiles and makes them go a lot faster, and once they hit their target, he makes the plant grow super quickly, like how it does in canon post-ts.

Franky: Franky's hearts are everywhere and they're bright. he doesn't hide his love and he's built love for himself to wear on his person. Franky is one of the weapon masters at the school and he's a SUUUUPER cool teacher.

Brook: the hearts in his design are his Afro and his bag. I think i read somewhere that brook has kept his Afro so that Laboon can recognize him when he sees him again and that is just so loving to me so his Afro is in the shape of a heart. His bag is also in the shape of a heart, but the bag is being weighed down by whatever he's carrying inside of it, signifying the burden of the love he carries.

Jinbei: Jinbei is a Transtormationalist, Model: Whale Shark. the heart in his design is the tattoo on his chest for his old team. He's the driver of Luffy's bus and if you do enough dialogue options with him instead of skipping the bus cut-scenes, you get the option to battle Jinbei. If you do, he takes off his jacket revealing the pro-league he used to be in and then he decimates you. it is impossible to win the battle.

Koala: the colors i used for her are peachy colors, signifying what a peach she is :)))) her goggles and the buttons on her suspenders are the hearts on her design, signifying how her love is looking out for others and how love keeps herself up.

Vivi: Her hair is a big ol heart but its upsidedow, signifying how the love she feels often makes her look at things incorrectly. Also the rips in her tights are hearts, much like ace's are. the damage she takes is how she shows her love.

Crocodile: his hook is a heart, he loves fighting. i like the idea that when a student needs a text book and and asks him for one, he gives it to them by spearing a hole through one he has in his coat and handing it to the student who has to just live with a textbook with a big-ass hole through it.

Perona: the hearts in her design are on her sleeves and on her hat. The joke about the sleeves is that she wears her heart on her sleeves. but the hat, its meant to look like more or less a cage for the heart, her love is what traps her.

Mihawk: his hearts are on his weapons, he fucking loves fighting.

Shanks: The hearts in his design are only on his torso area, the locket around his neck and the deep unbuttoned shirt makes it look like there's a heart in the negative space, and the heart patch on his jacket, the loss of his arm and the lack of something there is symbolic for the love he has given.

imma be real, i didnt put that much thought in the heart positionings for yamato buggy or law. I kinda was swept up in Hot Man, Pathetic Man, and Hot Pathetic Man.

Uta: she's based off of Cupid, so she doesn't have any hearts really in her design but her whole persona is based off of a symbol of love and how it can turn malicious.

also in general, the shines on people's hair are meant to look like a heart-rate monitor's peaks and troughs. And the shading i did just by drawing all the shading then desaturating that area

WOWEE that's a lot of designing wtf was i on when i did all this.

if you got to the end, thank you so very much for reading! i hope you enjoyed my ramblings :)

again, there is more to come with this AU so Stay Tuned, Folks!!!!!!!!!!

1K notes · View notes

curlyhairedintrovertsworld · 1 year ago

Text

adhd. taking too much of the wrong medication. etc. this is why mental health education is so important.

i was paranoid for a while that i had dementia but never brought it up because i didn't want to be looked at funny, or hell, be told i was right. i started studying about adhd once i realized, okay this is real, not just something my doctor came up with on a whim, (i spent my teen years in denial, and no one ever bothered to explain to me that most girls with adhd are impacted differently by it). i realized my disorder and severe anxiety and stress were reasons for my memory loss, and on top of that i was informed that taking benadryl every night (to sleep, surpass insomnia) was also a factor and that i needed for find a healthier way of falling asleep.

seriously. end the mental health and disorder stigma. research, fact check, educated yourself, and spread the word. do not start and stop on the first google search page, that will just fuel your paranoia. your brain health- your health matters, and i swear by/on life itself, you are not broken.

seeing people my age talk about how scared they are of memory loss, which they only associate with old age, is so surreal to see as a 24 year old who has actively experienced memory loss for a long time now

there are causes for memory loss besides dementia and alzheimer’s, i hope y’all know that. dissociative disorders, trauma, brain injuries, thyroid problems, even just stress and lack of sleep can fuck up your ability to store, process, and access memory. and that’s just a few of the many causes i can think of off the top of my head right now.

please stop treating disabled people like some scary “other” that you might become only in the distant, decades-away future. we are your age, too. you may become one of us sooner than you know. stop acting like memory loss marks the end of a life, when so many of us have so much living left to do!

23K notes · View notes

cryptid-cave · 6 months ago

Text

Currently thinking about a reader who, while having a full-time job and playing the part of a “real adult” pretty well for the most part, is still kind of lost and pathetic. It feels less like they’re living and more like they’re surviving, getting by on their own with just a cat for company.

Enter John Price, who’s currently on medical leave and just itching for a project. Maybe reader works at a store near his home that he shops at almost every other day, or works at the library where he goes when he needs to get out of the house. Either way, he spots this pretty little thing who clearly needs some love and guidance, preferably from a strong, gentle hand - and who better to do that than him?

Anyways, save me bossy and demanding Price with a savior complex, save me

#this is directly inspired by syoddeye’s barista drabble and ceilidho’s bear!shifter fic #first post and of course it’s about That Man #Also he ends up making reader call him daddy WHO SAID THAT #captain john price #john price #captain john price x reader #john price x reader #f!reader #m!reader #gn!reader #cod x reader #call of duty #cod #yes this is projection on my part because oh my god I just need someone to tell me what to do and take care of the hard stuff for me 🤧#fanfics + other writing

2K notes · View notes

rebirthgarments · 8 months ago

Text

TW: Chemical w-rfare, Ab-rtion

Urgent Ask to evacuate Nara, a 🍉 disabled woman with MS who also has pancreatic cancer due to chemical w-rfare.

Support by financially contributing to her @FedUp4Palestine vetted funhnd-raizer (that I personally vetted): givebutter.com/NaraMedicalAid

+ resharing/ reposting this post!

I, Sky Cubacub- a Fed up 4 Palestine team member, have been in direct contact with Nara to get to know her and her story more over the past few days. We have become fast friends due to so many overlapping symptoms of our disabilities. Nara’s story caught my eye because I have post-viral ME/CFS which many times is a precursor to MS. I really want my disability community to show up for her to get this campaign funded that is so close to my heart so that she can continue medical treatment.

We have chatted extensively! During our chats, I found out from Nara that she had not previously had health issues until she was exposed in the white phosphorus attack in 2008. The long lasting damage and effects of phosphorus continue to compound and become more and more disabling to this day, even after 16 years.

Here is her story in her own words (edited for clarity):

“Hi I'm Nara,

I'm a cancer and multiple sclerosis patient. I need treatment, examinations, and follow-up on a regular basis, but the hospitals in which I used to follow up were bombed and the other one was turned into military barracks. All I need now is to leave Gaza for treatment, preserve my life, and live with my family in peace.

We're a family of 4, including my 12 and 7 year old children.

I had been diagnosed with a tumor in the pancreas as a result of inhaling phosphorus in a previous war. A couple years after being exposed to phosphorus, I became pregnant, and the fetus was pressing on the tumor, which drew the doctor’s attention to the cancer. My fetus was emergency aborted, and the spleen, 80% of the pancreas, and part of the small intestine were removed. I complained every now and then of a lot of pain as a result of the removal of part of the pancreas. I was having follow up care in the Turkish Friendship Hospital for hematology and tumors. But since the beginning of October, I have not been able to follow up because the hospital has turned into a military barracks.

The remaining part is talking about multiple sclerosis:

In 2018, I was diagnosed with multiple sclerosis. I had many complications, such as inflammation of the seventh nerve in the eye, the inability to walk with balance, movement with difficulty, and many symptoms. I was then required to take 12 injections every month and many medications and vitamins. I was following up at the Nasser Medical Complex in Khan Yunis, but unfortunately the hospital was out of service due to the war. So for a long time I have not received any injections. MS is truly difficult and it controls my life completely, and the attacks occur in many and varied ways.”

A note about her breathing apparatus:

Because people in displacement have to wait in long queues and pay to use the bathroom, Nara had started to restrict her water intake because of a UTI she never has been able to heal from. This has created a problem with raised levels of potassium, so doctors have placed her on oxygen for fear of the potassium affecting her heart.

Goals

she needs at least $15,000 to evacuate

2 adults at $5,000 each

2 children at $2,500 each

this price is subject to increase due to the cost of registration for evacuation continuing to go up

The other money will go to the cost of treatment and living costs.

Nara chooses to stay anonymous because she has had to mask her disabilities so much that only her family knows about her MS and Cancer, so we have not linked her instagram, but we are in direct contact with her and can verify that she is who she says she is! Because of this, she cannot promote her own fundraiser, so it is our job to collectively do it for her!

[Image Description: a digital illustration by @k8deciccio of Nara, a Pal-eh-stienian woman wearing a black hijab/outfit with purple highlights. She has a breathing apparatus that is bulbous that goes in her nose. Text Reads: Help Narawith Cancer and MS Treatment, She Must Evacuate with her family of 4. $30k goal givebutter.com/NaraMedicalAid . There is a QR code in the bottom right corner that goes to her support link. The @FedUp4Palestine logo is in the top left corner.]

#gaza genocide #gazaunderfire #stand with gaza #news on gaza #war on gaza #gaza strip #free gaza #gaza #gazaunderattack #save gaza #mutual aid #i personally vetted this fundraiser #disabled and cute #disabilityculture #disabilityarts #disabilityjustice #multiple sclerosis #cancer #pancreatic cancer

1K notes · View notes

kunaigirl · 1 year ago

Text

Happy Disability Pride and awareness month! Let's talk about Epilepsy!

Hi there! I got tired of seeing my condition (that impacts my literal every day life) being left out or forgotten about during discussions about disabilities, so I made my own post about it! Let's go!

First Off! What the heck is epilepsy? Epilepsy is the fourth most common neurological disorder in the world, and it's a chronic medical condition. Epilepsy is a brain disorder that causes recurring, frequent, triggered, and unprovoked seizures to occur.

The official Epilepsy Foundation describes seizures as follows: "Seizures are sudden surges of abnormal and excessive electrical activity in your brain, and can affect how you appear or act. Where and how the seizure presents itself can have profound effects...Seizures involve sudden, temporary, bursts of electrical activity in the brain that change or disrupt the way messages are sent between brain cells. These electrical bursts can cause involuntary changes in body movement or function, sensation, behavior or awareness." (Source link)

Sounds like a lot of fun right? This is our life. Even with medication, we can be VERY limited to what can be safe for us. Seizure medications are NOT a cure, they only exist (at least as of now) as a tool to help have your seizures less often, or be triggered less intensely. Even on medication, seizures can still happen.

If you have epilepsy as a child like I did, it impacts your entire growing and developing experience. I spent MANY times as a child in and out of hospitals, neurologist and specialist offices, an getting so many EEG tests done. The pain of scrubbing the glue out of your hair for DAYS is horrible.

At a young age my seizures were so frequent and serious, it impacted my brain's ability to retain information. I had to re-learn the names of things at age 8 and 9. I had to re-learn HOW TO READ at age 10. I had to be home schooled because the public school system of my state at the time refused to work with me. I have VERY distinct and vivid memories of crying over my little baby ABC's book that I needed as a 4th and 5th grader. I knew I should've known this by this age. I knew that at one point I already did, and it was TAKEN FROM ME.

As an adult, I'M NOT ALLOWED TO DRIVE A CAR. And I can NEVER go to see a movie in theaters or go to see concerts or live music. There are entire TV shows I don't get to see. I can't go to clubs, arcades, dances, or raves. I miss out on A LOT of fun things. I always do, and I'm WELL AWARE of the fun I'm missing out on. The social, casual, and fun life experiences I'll never get to have. That WE'LL never get to have. And oh yeah! Seizures can KILL SOME OF US. Yep.

And the list goes on, and every person with epilepsy experiences it differently. There are multiple different types of seizures you can have, they're NOT always convulsing on the floor. For example, I have complex-partial-myoclonic-seizures. Meaning my muscles DO twitch when I have seizures, but I'm not always completely unconscious and sometimes I'm even able to stay sitting up. However, I'm still very "off" and can't focus or remember much for a good while after the fact. I can't talk or communicate during one, even with my slight bit of consciousness.

My experiences are not universal, I just wanted to talk about it and bring it up. It helps to talk about it even a little bit. Here's more about different kinds of seizures. Here's more about common seizure triggers. Here's more about CORRECT seizure first aid. And here's more general information/resources.

Please stop leaving us out of disability awareness. Please stop ignoring us or saying we're "not really disabled" or anything else like that. Please. Why does it always feel like the only people who care about epilepsy, are people WITH epilepsy? We're so tired of being ignored by others who don't have our condition.

If you're an epileptic person reading this, I see you. I love you. You're so strong, we all are. I believe in you, I believe in us. We're so much stronger than we get credit for, and it's going to be ok. Your anger and frustration are valid. Your emotions and struggles are real. You're valid, and I see you. Hang in there, we got this.

#epilepsy #epilepsy awareness #actually epileptic #disability pride month #disability awareness month #disability awareness #ok to reblog #disability pride

4K notes · View notes

antimisinfo · 8 months ago

Text

Endos / endogenics and why they aren't valid :

We've made posts on this before but we decided it might be good to make one big post to link to for when / if anyone asks again. We tried to cover everything we could in this post but we'll likely be making other posts similar to this later on.

So what are endos? Endos or endogenics are people who claim to have DID/OSDD without trauma or claim to have alters / be a system without having DID/OSDD.

Why is this bad? This is misinformation because as far as science knows DID/OSDD is a trauma based disorder (specifically caused by trauma in early childhood, which is speculated to be 1-9 / 1-12 years old) and your brain would not split / create alters without reason. You cannot have alters without having a disorder, this is common sense as it's not normal to have alters. To add onto this endos also take over our communities and steal our terms. (We'll make a post with further information on that in the future).

There is also a carrd that explains why endos are bad and debunks a few myths if anyone is interested in it! If not continue reading

Why can't you have DID/OSDD or alters without trauma? As far as science knows DID/OSDD is a trauma disorder and in order to have alters in the first place you require dissociation, which is also a trauma ((or stress)) response. Here are tons of medically reviewed sources that say this:

“ They suggest that DID is caused by experiencing severe trauma over a long time in childhood. By experiencing trauma in childhood, you take on different identities and behaviours to protect yourself. As you grow up these behaviours become more fully formed until it looks like you have different identities ” — rethink.org

“ Dissociative identity disorder (DID), previously known as multiple personality disorder, is a complex psychological condition caused by many things. These include severe trauma during early childhood (usually extreme, repetitive physical, sexual, or emotional abuse). It's also known as split personality disorder. ” — webMD

“ DID is usually associated with adverse experiences in someone’s past and traumatic memories. ” & “ Dissociation — a major part of DID — is a defense mechanism the body uses to reduce your awareness during overwhelming trauma ” — pysch central

“ DID is associated with long-term exposure to trauma, often chronic traumatic experiences during early childhood. ” & “ Dissociation—or disconnection from one’s sense of self or environment—can be a response to trauma. It can happen during a single-incident, traumatic event (e.g., an assault, a natural disaster, or a motor vehicle accident), or during ongoing trauma (e.g., wartime; chronic childhood abuse). ” — mcleanhospital.org

“ Dissociative disorders often develop as a way to deal with a catastrophic event or with long-term stress, abuse or trauma. This is particularly true if such events take place early in childhood. At this time of life, there are limitations to your ability to fully understand what’s happening. In addition, your coping mechanisms aren’t fully developed and getting support and resources depends on the presence of caring and knowledgeable adults. ” — my.clevelandclinic.org

“ There are many possible causes of dissociative disorders, including previous traumatic experience. ” & “ Switching off from reality is a normal defence mechanism that helps the person cope during a traumatic time. ” — nhs.uk

“ Dissociative identity disorder is the result of a natural way of coping with childhood trauma. Our page on the causes of dissociative disorders has more information. ” & “ Dissociation is a natural response to trauma while it's happening. But some of us may still experience dissociation long after the traumatic event has finished. Past experiences of dissociation during traumatic events may mean that you haven't processed these experiences fully. ” — mind.org (two links since they're two different pages)

“ Dissociative disorders usually start as a way to cope with shocking, distressing or painful events. The disorders most often form in children who go through long-term physical, sexual or emotional abuse. Less often, the disorders form in children who've lived in a home where they went through frightening times or they never knew what to expect. The stress of war or natural disasters also can bring on dissociative disorders. When you go through an event that's too much to handle emotionally, you may feel like you're stepping outside of yourself and seeing the event as if it's happening to another person. Mentally escaping in this way may help you get through a shocking, distressing or painful time. ” — mayoclinic.org

Most of these sources are pretty recent too, with the most recent one being made in September 2023 (webMD)

What about religious beliefs / tuplamacy? First people are not required to believe or participate in your religious beliefs (and religious beliefs are not exempt from criticism) and second tuplamacy is a closed Buddhist practice that has nothing to do with being a system and should not be compared to being a system nor should it be included / involved in system communities. Note that the DSM-V also says that in order to have DID; "The disturbance is not a normal part of a broadly accepted cultural or religious practice." <- this does not mean it's possible to have alters due to a religious thing, if anything it says they cannot be counted as alters / as a system.

To add on, no you cannot pray to be a system or transition into being a system. If you were to pray and one day magically become a system you are either in denial or you've convinced yourself you're something you're not. Believing you can be a system without trauma or that you can become a system by praying is like believing you can get autism from vaccines or drinking too much dairy milk, that's just not how it works.

What about mixed origin systems? Mixed origin systems are not a thing. DID/OSDD forms purely from trauma, you can't form from a mix of trauma and not trauma, that's not how it works. If you identify as mixed origin you are likely in denial and really need to come to terms with the fact that you are either traumatized or you're not a system at all.

What about other kinds of origins? Other origins like "willowgenic" and all that bullshit? Yeah no, same thing as endos, not possible. Look above for all the proof you need, DID/OSDD is only caused by trauma. Traumagenic is the only valid origin.

But I gave myself DID! / But I created my own alters! No you didn't. That isn't possible, you cannot turn yourself into a DID/OSDD system and creating alters is a coping mechanism, not something you do for fun, sources on this;

“ DID Isn't Something You Can Give Yourself on Purpose. Having DID was not a conscious decision those of us with the disorder made when we were children. Dissociative identity disorder is not a selective disorder, meaning you cannot decide that you want to develop this brilliant coping mechanism and then you have it. ” — healthyplace

“ In any case, additional alters are usually the result of extreme stress. The mind does not like to be fractured even when an individual already has DID or OSDD-1. Many individuals cannot split unless a split is strictly necessary for their protection, functioning, or ability to remain hidden as a system. That said, there are exceptions. Some individuals may become so used to using splitting as a coping mechanism that they may split easily in response to seemingly minor stressors. ” — didresearch.org

Isn't being a system like the same as being trans or being LGBTQ? No, many endos compared the two but they are completely different. Being LGBTQ is an identity, it's something you are born as. Being a system is a debilitating disorder caused by severe trauma, it is counted as a disability which is;

“ 'A person has a disability if: They have a physical or mental impairment, and the impairment has a substantial and long-term adverse effect on the person's ability to carry out normal day-to-day activities.' ” — gmc.org

The reason DID would be counted as a disability is that;

“ Having a dissociative disorder can affect your ability to keep a full-time job, especially one with work stresses, which can worsen your symptoms. ” — disabilitysecrets

And the DSM-V criteria literally says;

“ The symptoms cause clinically significant distress or impairment in social, occupational, or other important areas of functioning ” — traumadissociation

But the DSM-V says that trauma isn't required! No, the DSM-V actually says CSA isn't required, there are other forms of trauma that don't involve CSA or child abuse. To act as if it saying that the trauma isn't always CSA or child abuse means that it doesn't require trauma at all is extremely invalidating to those who are traumatized in ways that don't involve child abuse or CSA.

But this source claims endos exist / DID doesn't require trauma! Most of those sources are extremely old and / or made by endos (or pro endos) themselves. (We'll make a more in-depth post on this topic some other time, but for now this is all we have to say on it)

But we don't know everything about the human brain! You're right, we don't. The brain is mysterious, but we do know enough to know that it doesn't do these kinds of things for no reason. We know the brain reacts to trauma and we know what the difference between a normal brain and a disordered brain is. Just because we don't know everything doesn't give people an excuse to jump to conclusions and spread misinformation. It is better to stick to what science currently knows which is the theory of structural dissociation, which is the current theory about how DID/OSDD forms, and so far no one has been able to disprove it. And before someone says it, no it is not only a theory, it is a scientific theory which is;

“ A theory is a well-substantiated explanation of an aspect of the natural world that can incorporate laws, hypotheses and facts. The theory of gravitation, for instance, explains why apples fall from trees and astronauts float in space. Similarly, the theory of evolution explains why so many plants and animals—some very similar and some very different—exist on Earth now and in the past, as revealed by the fossil record. ” — amnh.org

And to add on;

“ Scientists develop theories to explain the natural world and to advance scientific knowledge. A theory is the highest level of explanation in science. Some features of scientific theories are that they: have been thoroughly tested over an extended period, provide accurate explanations and, predictions for a wide range of phenomena, are widely accepted by the scientific community, demonstrate strong experimental and observational support ” — study.com

#endo misinfo #sourced #anti endo #endos dni #system #traumagenic system #did #did osdd #didosdd #osddid #system stuff #plural system #plural #did system #osdd system #this took a long time

648 notes · View notes

rederiswrites · 2 months ago

Text

I wrote this out for FB and then thought I might as well share it here as well. So if you have ADHD, are a late-diagnosed adult with ADHD, and most particular if you are a person with a uterus and/or have children, this one might be for you.

...

Last couple of days have been a little...weird. Let's start at the beginning. Buckle up and learn something.

As many of you already know, I have ADHD. It's a condition with a PR problem--a lot of people, often even medical professionals, have a very distorted idea of what it does, and a very limited one. For starters, it's not about parenting, or lead paint, or lack of discipline. It's genetic, *highly* heritable, starts in childhood and persists throughout life, and is a sufficiently severe disability that it comes with a decrease in life expectancy of up to 13 years. It is a visible difference that can be perceived in brain scans. These are all, at this point, well established and thoroughly attested in the scientific literature. ADHD affects up to 5% of the population and appears across cultures. It is very common.

It's not just about lack of attention--in fact, plenty of medical professionals think the name should be changed, as in fact the problem isn't the volume of attention but the way we struggle to direct it. We are motivated by interest, and struggle to properly weight future goals and consequences, specifically because they are in the future. If the robin outside the window is more immediately rewarding to our brain, we will watch that, and not the teacher. Our ability to properly weigh the consequences of that choice is negatively impacted by our own biochemistry.

We struggle with many of what are termed the "executive functions", the self management systems of the brain. Degree and presentation varies from person to person, but initiating tasks, completing tasks, staying ON task, restraining impulses, emotional regulation, and working memory are among the things impacted. My working memory is notoriously horrible. When they send you those activation codes on your phone? I often have to go back and read them out several times to enter a six digit number. I have to stop and remind myself what I'm doing between every step of my morning bathroom routine, or making tacos. Sometimes I take off my glasses to put on my contacts, reset, and reach for my pill bottles while I still can't see. My long-term memory is also affected, with my husband de facto serving as the memory-holder of the family.

Another common symptom I personally experience is "time blindness", which can mean both that you have no "internal clock" that has a clear idea of the passage of time, and that our ability to properly weight the importance of things in the future is impacted. So, for example, I can know intellectually what's coming, but it takes some really complex and exhausting antics to actually focus and work on those things if they're more than a week or sometimes even a couple days away.

Without externally imposed controls, many ADHD people flounder and fail to meet social markers of success. Estimates of how many ADHD people manage to complete college range from 5% to 15%. Again: 5% to 15%! I have failed twice myself. WITH externally imposed controls, ADHD people often have to work far harder to make their brains do what is required, and either fail and develop an image of themselves as failures (usually with plenty of external help), or keep fighting and suffer crippling burnout.

To that point, ADHD is HIGHLY comorbid with a whole range of knock-on conditions, some of which stem from the same brain patterns that give rise to the ADHD itself, and others from the trauma of living with a disability, but they include very high rates of depression, anxiety, fibromyalgia, social isolation, and addiction. I have dealt with depression, anxiety, and fibromyalgia my entire adult life. I have never ended up in the trap of self-medication but let's be real, that's partly about having supports and a healthy social environment. It's not some accomplishment I praise myself for, nor is addiction a sin I shame anyone for.

And anxiety has a very different texture to it when what you're really anxious about is the next time you fail in some catastrophic way. Lock your keys in the car. Completely space on a doctor's appointment. Go to pay for groceries and find that your wallet is next to your computer at home. Because the anxiety is not irrational fear of some generalized bad thing. These things do and will happen, regularly. Sometimes it feels like the only fix is getting good at recovering. Because no matter how many times you manage not to blow it, there's always another chance.

So, the struggle to be a reliable person, to be a consistent parent, to be a dependable life partner, is continuous. And it is so so so hard and it sometimes feels like you're not actually making any progress at all. I have tried therapy. I have tried three (or four??) different non-stimulant medications that sometimes help people. One of them DID help. ALL of them had catastrophic side effects. There were times as I was trialing these medications when I needed to be minded because I wasn't capable of taking care of anything, not even myself. Without Jacob, I don't know where I'd be. Not here. Probably in poverty, which is where he found me.

I have tried probably most organizational tools you know of. I have tried imposing schedules, all of which turned to dust and ash when the next fibromyalgia flareup or the next major life disruption happened. I don't think a new schedule has ever lasted a month before.

I HAVE felt like I'm made progress lately. I learned things that really helped my fibromyalgia, which gave me the space to work on other things--just like getting the borders of a puzzle finished. Enough things were spiraling upwards, and I think I might be cementing some gains. I have felt optimistic.

But in the meantime, I asked my doctor if, now that no less than three cardiologists have insisted my heart is Perfectly Healthy, I could finally try stimulant medications. After decades of use, Adderall, Ritalin, and a couple related stimulant drugs are still the gold standard for ADHD treatment and improve outcomes substantially for many people. And stimulants are in serious international shortage. Have been for many months. The only one she thought she could get me was Adderall. And she didn't dare try anything but the standard 30mg because nonstandard dosages would be even less attainable.

So now I'm taking Adderall. One week on 30mg, which I stopped when it was clear my function was being seriously impaired rather than improved. Reassessed with the doctor, now trying 60mg, because that's two of the pills I've already managed to obtain. It is....too much. And in some ways it fixes problems I wasn't working on, while so far making my executive function, my initiation or even *contemplation* of tasks, virtually nonexistant. Which was, of course, the thing I was trying to fix.

So yeah. When you have the context, I figure you can understand the substance of my frustration yourself. If you have children, I don't think you need my help to imagine what it would be like to know that you are unpredictable, or to see that your children are used to to you undergoing events that make you act strangely and erratically. I think just knowing that often, new medications introduce themselves by giving me a migraine, and I know this is possible when I take that first pill, is fairly self-explanatory. And so I expect you can imagine what it would be like, with all of this as a backdrop, to experience worsening of your symptoms, probably because of age-related hormonal changes. To in desperation try something you'd previously been denied. And to learn that it probably won't help.

In a week, I will either give up on Adderall for now or find a way to make it work. I'll put together the pieces yet again--at this point, possibly my strongest personal skill--and continue that upward climb as far as I can get. I'm incredibly fortunate in that regardless, I will be fed and dry and warm and loved. But right now, I feel justified in some serious dismay.

#ADHD

245 notes · View notes