#like. invisible disabilities exist
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i dont even like the dream smp and im well aware that most of the members arent good people but like. when that mask song dropped some of you guys got WAY too comfortable being openly ableist towards him lmao
#ableism mention#brightts ramblings#like#yea the dsmp is cringe or problematic or whatever idk i dont keep up w it or the drama. im not a fan of it#but like. is it rlly that hard to not mock people for being disabled#like. invisible disabilities exist#criticize dream for the actually bad things he's done. not for sharing his experiences w adhd#even though the song wasnt good (i listened as a joke) it was surprisingly like.... really relatable tbh idk#obligatory comment that im not a dsmp fan because someone will def take this whole post in bad faith if i dont say that
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You don't wish your disability was worse or more visible, you wish your disability was taken seriously. Please stop confusing the two, I guarantee you would not get the support you need JUST by being more severe or more visible. Please listen to visibly disabled people when we tell you it isn't better on our side
#m/cc#mine#I tried extremely hard to word this nicely because I KNOW people don't mean bad and often even know there are unique challenges#and believe me I know the challenges of invisible disability too!!#I have invisible disabilities!#but as someone who has also been at least visibly 'off' since they were 10 I am SO SICK of invisible disabilities being hailed as like#a unique extra oppression that us lucky visibly disabled people don't have to deal with#there are challenges to invisible disabilities that visibly disabled people DON'T have to deal with!#but you need to understand that *the reverse is also true*#there are MASSIVE benefits to being able to lie about your disability for example#or not dealing with the overt ableism that comes with your disability being obvious to everyone#*I do not have the option to pretend I'm not disabled.* that is never an option I have#I walk weirdly. I use a mobility aid now. my speech and face are 'off.' I lean to one side#for a long time I wore sunglasses 24/7 and often didn't make sense. I sometimes can't speak or won't react to others#for the most part people will always know that at the very least something is wrong with me#and more obviously I have people telling me they'll pray for me; telling me I can't do things I'm already in the process of doing;#wanting to shake my hand to tell me I'm an inspiration for not killing myself; giving me dirty looks for existing in public#and yes. I'm aware that this is very much an in-community issue. I know the average abled person doesn't know invisible disabilities exist#that's why there's so much awareness happening for it#but as a visibly disabled person I get SO TIRED of constantly hearing 'I wish my disability was visible :'('#it's just 'I wish I had your disability!' but from other disabled people
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I feel like... Perhaps... Arguing that transphobia is defined by murder and that anything other than murder doesn't even matter... May NOT be conducive to fighting for trans rights.
Like... people want the right to exist as they are. They want to have access to hrt and surgeries and prosthetics. People want access to clothes that fit them and reflect how they want to be seen. People want access to medical care (eg. Getting screened and treated for sex-based forms of cancer can be impossible if you have the "wrong" sex listed to receive those tests). People want to be respected and treated well. People want to not be sexually assaulted and beaten and abused. People want to have access to housing and jobs, and the protection to not lose those things for being trans. People want access to shelters for homeless people or survivors of domestic abuse. People want name changes.
Acting like all of those things don't matter because at least they weren't murderered by an individual (and instead die of suicide or state violence, or survive and suffer) isn't okay.
#'hey people are forcibly detransitioning you and raping and beating you and you lost your job and are going to be homeless and#probably die of infection from being stabbed for trying to go to the bathroom. but at least you arent part of a demographic that has a#higher murder victim rate! shhh just ignore that we dont actually have data on the murder rate of your group.'#do ppl like. forget state based violence exists. and that thats most violence minorities face.#idk man im just. mad about people on here acting like youre only oppressed if youre a perisex trans woman who was AMAB.#cause i exist at the intersection of multiple minorities and being told hey u experience violence but at least you wont be murdered by an#individual feels like a slap in the face.#like it doesnt matter if i have to mask my neurodivergent behaviour bc if people see they could assume im on drugs and call the police and#i could potentially be really hurt but not die but hey at least i wont die just be horrifically traumatized by police brutality!#there are millions of people with mental illnesses similar to my own around the world who are institutionalized and forcibly medicated or#living on the streets or dependant on horrifically abusive caregivers#but hey at least they arent being murdered!#like. the way the transphobia discussion on tumblr rn discusses (and doesnt discuss) race and ability and class and health makes me#feel very invisible.#like if people had to choose who to believe about my experiences between listening to me a black/mixed mentally ill maybe disabled (used to#be disabled) hella nd trans nonbinary person#or listen to a white middle class trans woman's take on my experiences that theyd choose her. its such a weird weird microcosm.#its like a monkeys paw like people are finally listening to trans fems and finally recognising the violence they experience and finally#actually caring about them but for some reason decide that in order to do that its necessary to throw every other minority under the bus#like fuck man have you seen how 'anti transandrophobia truthers' discuss race? its NOT okay#we all matter we all are so similar and are part of the same groups and same communities we need to stick together#stop using trans fems as a battering ram to hurt other minorities challenge#cause like. yes its some trans fems. but its mostly NOT?#like its non trans fems telling other non trans fems that they arent oppressed#and even when many trans fems are like what the fuck dude of course other trans ppl matter whats wrong with you#the group of like 80% non trans fems 20% trans fems are like 'hmm if you are defending other trans people you must not really be trans fem'#like. denying trans fems their identity bc they disagree with them?? dude someone doesnt stop being a trans fem cause they recognise#people other than trans fems matter and exist#its just all so WEIRD its a weird little tumblr microcosm#i wanna stress. for those of you who dont have access to other lgbtq+ communities. how much it seems to be primarily a tumblr thing. to
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It feels like every day I read attempts to debunk the social model of disability that fundamentally misunderstand what the social model of disability is and who the people who developed that model were, including what the nature of their disabilities was, and I want to scream.
But I don't, because yelling at people on the internet is basically pointless. Instead I check to see that I'm not mutuals with whoever reblogged said misunderstanding and vague about it.
#'but [x impairment] would still exist and have [y implications] even if the world were completely accessible!'#okay well yeah but equating impairment and disability is explicitly the opposite of the social model of disability#the union of the *physically impaired* against segregation who developed this model#*were* by and large privileged in ways many other disabled people are notâ yes#mike oliver who wrote the fucking book on the social model of disability#(social work with disabled peopleâ published in 1983)#was a white man with a phd who pioneered an academic fieldâ for one#and there *are* criticisms about the limitations to a purely social model of disability to be made#but like... our pal mike oliver was also a wheelchair user who broke his neck in a swimming accident as a teenager#which caused paralysis that affected his upper and lower body#not a clueless 'physically abled' autistic who didn't understand how physical limitations work#he lived the first 17 years of his life as a physically abled person#so I think he was aware of the difference between what his body could do before and after his accident#and like 'disability is socially constructed'#is not saying that differences between people and what they are able to do or do easily do not exist??#my eyesight is so bad that if I could not access corrective lenses I would be functionally blind#and even with glasses my myopia and astigmatism cause a lot of tangible effects on my body#e.g. migrainesâ eyestrainâ so many floaters that even looking through pristine glasses is like the lenses are scratched to hell#but my eyesight is not considered a disability#because the accommodations that enable me to participate in society fully in this area are so standard as to be invisible#can I magically see without corrective lenses? no#does wearing glasses not being considered a disability mean that I do not get migraines and eyestrain? no#so the arguments the thing I am vaguing are trying to debunk are not what is being argued!#well seems like I screamed about it after all#oh well
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Thoughts about fandoms and Writing
I suppose this will be a ramble of sorts. I wanted to talk about a sad thing I noticed but also a good thing I noticed about fandoms. This is a ramble, and I hope it all connects into a coherent whole by the end.
I'll start with the question I leave at the end. The question that my writing silently asks all readers:
"Here is a story of a human being that may be different from you, so will you join me at this campfire and hear their tale? To join them on this great journey of wonder, pain, joy, sorrow, and hope?"
One of the things that drew me to various fandoms, and my current one was a sense of connection. A sense of community, but I've also learned that despite this strength, there is an underlying undercurrent of who is allowed to exist in that community.
Part of writing fanfiction is because we want to see more of our beloved characters. To dig deeper into them, to fulfill this need for connection.
Because that's the crux of most things about us human beings, right? We are social beings that live best when we have connections with other human beings. None of us can live in a perfect isolation with no contact with anyone else ever (in fact studies show this is very, very, very bad for our health and can slowly kill us).
Yet, as a disabled person, I find myself stuck in this weird liminal space of seeking connection but sometimes finding instead reminders of how conditional my existence in the space truly is.
I notice that the stories willing to push the envelope a little, to explore what it'd be like if one of our beloved characters was disabled, often get far more harsh comments and far less support.
I've sat back and observed, and the more I interact with fandoms, the more I wonder if there is room for people like me.
I've seen some pushback in various fandoms -- even TLOK -- against people who want to explore our beloved characters in settings that allow for a more diverse intersection of identities. That tackle themes related to disability, gender identity, race, and so forth. To tackle more nuanced Leftist thought (that isn't displayed like a bad thing which TLOK sadly does at times).
This saddens me because that sort of pushback breaks the connection and community of fandoms in a way.
The whole reason I'm writing fanfiction is because I couldn't quite find the story I wanted to read. There's a lot of flaws in Legend of Korra, and I wanted to tackle the stories inherent in it from a different angle. To explore themes left unexplored. But also to show the shared moments Korra and Asami have. (They are legit my favorite couple of all time).
But I just don't feel very comfortable writing smut. I never have, so I'm already an outlier in the fanfiction writer community.
But I've realized of late that I also because an outlier with how I explore disability in my fanfiction.
Honestly Book 3 of TLOK sets the disability theme up, and although it does an excellent job with the PTSD arc, the way the temporary physical disability was handled during Korra's long healing left me quite frustrated because it utilized verbiage that's often used to demonize or deny disabled people support. No, it's not all in Korra's head (we find out later, that she really did still have poison in her, so Korra was right THE WHOLE TIME). No, it's not a mind over matter (this is the most unhelpful thing to say to a disabled person, seriously). No physical therapy can't cure all things. *sighs* I wanted more nuance there, and since it failed to deliver, I decided to write my own.
I also wanted to dig deep into Asami's story too because sadly enough TLOK doesn't give her the attention her and her trauma deserves.
So I have two separate series. One canon-compliant to explore the ramifications of that.
One an AU where Korra and Asami are romantically together by middle of Book 2, where they must navigate Book 3 and the trauma of that together. How do they do it? Can they do it? What sort of disability will they face and how will they deal with that?
I recognize what I write is not what most folks want from the fandom, and I feel like sometimes there is this unspoken undercurrent in the fandom to not really dig into the disability themes inherent in TLOK.
I think this is why commenters literally had a fight in the comments of my Shared Moments: Book 3. I had taken the disability theme in Book 3 (and 4) and made it highly visible. I had foreshadowed this quite thoroughly in all honesty.
I had made it clear from the start of the series that I promised to be realistic about trauma, about physical injuries, and about healing. Sure, I took some liberties in fight scenes to play up some interesting martial art moves that actually exist, but there's always ramifications and consequences.
I think in a way the fight that happened in my Book 3 (at the final confrontation with Zaheer's group) exemplifies the hidden current of ableism within the fandom.
Asami had barely escaped the lavabender and had a fourth-degree burn on the sole of her right foot. Those are when the burn destroys the nerves and can go as deep as the bone. They are quick to become infected if not treated right away, and in Asami's case, there was no way for it to be treated until after the airbenders are rescued. TLOK is set in a technological and medical period similar to 1940s, so the typical solution in that time period is amputation.
I'd carefully laid out details like crumbs for readers to find that heavily hints that this could be one of the possible outcomes.
Nothing about it was surprising.
And yet, two commenters were angry that one of the characters would end up permanently disabled. They utilized a harmful ableist trope, ignored the story up to that point, and demanded I alter the story because they deemed Asami's injury "unnecessary for the narration" and "too much."
Truth is, as much as I tried not to let it hurt me, it did.
Why? Because I'm disabled. I've had injuries due to circumstances where I didn't receive the healthcare I needed in time to prevent the injury and illness from worsening. I've been in Asami and Korra's shoes in a way.
Being told that a story that mirrored my own, that mirrored the lives of so many disabled people is "too much" and "unnecessary for narration" is a vivid reminder of how deep ableism has fallen into the psyche of our society.
Most folks wouldn't consider that ableist, and yet, if the same words were said about queer identities? If someone said that Korra and Asami being bisexual is "unnecessary for the narration" or "too much" there would be riots in the TLOK fandom. (In fact, I sometimes still witness some between Makorra shippers versus Korrasami shippers, where it doesn't seem to matter that Korrasami is canon to the Makorra folks, they get incensed and fall back on biphobic language. Only to be rightly called out for the harm of it.)
So why aren't we standing up for disabled people?
The Legend of Korra is a survivor story. It's a disability story. Complex-PTSD that Korra has is a disability. Acute-PTSD, which is likely what Asami has, is also a disability.
Disability is not bad. It is not evil. It's not too much.
Disability is beautiful. It should be normalized as just part of who a person is. We, disabled people, can do great things despite our disability.
And yet, those commenters couldn't see that.
All they could see was their beloved character would be permanently disabled. Their unconscious bias reared its head, and they lashed out in a way that hurt. (And also angered several other commenters who kindly called them out).
They were angry at being forced to confront the fact that their beloved character was now in the category of "disabled." It required them to relate -- to connect -- to a disabled person as a human being.
That's the moment of truth isn't it?
When someone is forced to relate to another person as a human being worthy of respect and dignity, that is when we discover the true character of a person I think.
Disabled people like myself are often treated like we are sub-human. Like we don't matter, like it'd be better if we ceased to exist. (I can give dozens of examples, but I think how the pandemic is currently being handled is a blatant look at how ableism is structured in our society and how much it harms all of us.)
Society saturates our media with messages of how disabled people are less than, sub-human, unworthy of life, unworthy of being allowd to even participate in society. Often the only way we are allowed to exist at all is if we are displayed as an "inspiration," something for which abled-bodied people to oogle and feel good about themselves for "helping" us "get over" or "cure" our disability, as if our disability is a problem to be solved rather than something that can be both painful but also beautiful. (I often try to see the beauty in my ADHD, my APD, my autoimmune illness. And yes, for LongCovid in particular, I may wish for a cure for my LongCovid, but I can also recognize the beauty within my illness - I see the world differently and that lens allows me to connect in new ways and to show more kindness and love in different ways. That too is beauty).
The harmful messages about disabled people are everywhere, and we often unconsciously absorb them.
I try to do my best to respond with kindness. To even try to educate when I can, but I also have to have a firm boundary because I'm a human being.
I don't have enough energy to tackle educating people about this AND doing what I need to survive.
And for me, writing is survival.
I think the reason it hurt to see ableism at play in the fandom was because I had been thinking maybe I might actually belong to a group for once. That maybe I would be treated as a human being, who has a talent for something.
But seeing the words "too much" and "unnecessary for narration" in the comments, brought out not only my insecurities, but a reminder of just how fucking hard it is to write diverse characters.
I've never written fanfiction before 2021.
I'm a science fiction (and sometimes fantasy) author, though at the moment it's only short stories that have been published.
Do you know how many times I've heard those harmful phrases said while I trying to get my original stories published?
Editors would tell me:
"Your character being nonbinary is unnecessary for the narration." Or "It's too much to have a nonbinary character. You should just choose a gender and we'll consider it."
OR
"Why is this character disabled? It seems unnecessary for the narration. Just eliminate them and rewrite it."
It didn't matter that the disability was crucial to the character and her understanding of the world and how she navigated it. (Or that she was literally the protagonist.)
It didn't matter that the nonbinary person's identity was crucial to their character, their understanding of the world, and how others related to them.
It didn't matter even if it was crucial to the plot.
All that mattered was that the editors were uncomfortable with characters that didn't match the ideal human they decided was the only allowed protagonist.
In a way, they were saying that people like me didn't deserve to have our stories told. To be recognized and seen as protagonists, as human beings to which readers could connect.
Is fandom any different?
Maybe there are readers who enjoy what I write, but sometimes I see so much of the content of fandom, and this intense demand for an ideal form of human, and I don't see myself.
I don't see myself and those like me being accepted as we are. Where we are worthy of connection too.
So I create that representation; I carefully weave a story so everything is set up, foreshadowed, makes sense in the characterization and narration, and I come face to face with the blatant ableism, blatant transphobia, and sometimes even blatant biphobia.
And it's a reminder that even while I try to find comfort and solace and a safe place to recover from my own illness and from the world at large...
... in the end, it's hard to feel like there will ever be acceptance. It's hard to feel like the fandom is willing to treat people like me as a human worthy of respect and dignity.
Because that's the thing, isn't it?
When people see me in my wheelchair, they don't see a person. They see a thing. A sub-human to be pitied. I get touched in ways that would never happen if I was abled-bodied. My wheelchair gets moved in ways that would never happen if I was abled-bodied (that wheelchair is an extension of my body and touching it without my consent is touching me without consent). I get sneers sometimes. I get people staring at me like I'm some carnival show.
It's tiresome. It's hurtful. It isolates.
To have a beloved character end up in a wheelchair, or end up with a prosthetic?
People are forced to face their own ableism. They are forced to see the ugliness they display toward me and those like me. Because now their beloved character is one of my people.
And the anger that is hurled at me for doing this is honestly ridiculous. Exhausting too.
People don't like being uncomfortable, but we cannot grow if we're not uncomfortable. We cannot become better than we were unless we confront the things that break our ability to connect.
i write because I want people to connect. I want people to understand ways of being that is unlike their own, and to come to understand that we are all human beings. We all are worthy and deserving of respect and dignity. We all deserve to be seen and accepted where we are.
Those are the stories I love the most. The ones that build up and not tear down.
And perhaps that is why I will never truly fit in. Because I refuse to sit down and make myself small enough to fit in. Because I prefer to dig into the reality of our differences and how those differences are actually our similarities and our biggest strengths.
It is our diversity that is our strength. It's also how we connect, how we find our similarities, because even in our beautiful galaxy of identities, we all have similar human needs and qualities that shine through.
We are all made of stardust. We are all social beings. We all strive for some level of connection, and although the layers of that may differ for each of us, that human need to connect cannot be truly erased or ignored.
I'll end where I began, with the great question my writings always silently ask readers:
"Here is a story of a human being that may be different from you, so will you join me at this campfire and hear their tale? To join them on this great journey of wonder, pain, joy, sorrow, and hope?"
And honestly, that's why I write.
#tlok#korrasami#the legend of korra#legend of korra#fandom#fandom culture#connection#we're all just human beings who seek connection with others#Disability#disabled#disabled people can be heroes too#disabilities#invisible disability#disability representation#representation#ramblings#might delete later idk#why I write#We all wish to be acknowledged for who we are and accepted where we are really#It's okay to not like something but not okay to erase someone's identity because you're uncomfortable at our existence
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âwhat to tell a doctor to get an autism diagnosisâ âhereâs what i learned from realizing i was autistic at 40âł âi would never want a professional diagnosisâ âperson first language is so regressiveâ âautism symptoms are only a problem because of ableismâ âwe dont need treatmentâ âno autistic person wants a cureâ âfour doctors told me i couldnât be autistic so i found a fifthâ âautism is an invisible disabilityâ âdont disclose your neurodivergency to employersâ âi/dd and autism have nothing to do with each otherâ ânt parents/advocates have no place in autism communitiesâ âof course im autistic have you heard me talk about horror moviesâ babe i have nothing in common with any of you
#completely insane that i will go on autism twitter and somehow i am ''low functioning'' compared to the rest of the people on there.#what are you TALKING about. dont disclose your ''neurodivergency'' to your doctors?? autism is an invisible disability?#we live on different planets. like i think we live on different planets.#sorry but i am twenty two years old and my mother has a fippa exemption to access all my medical info bc if she did not#i would not be able to access healthcare.#the only reason i can live away from home is because i have a cell phone and internet and can keep in touch w family.#my legal government address is my father's house where i have not lived for seven years#because if an important document gets sent to my apartment i will lose it or forget about it and i know this because it's happened.#like ... yeah ! autism IS a spectrum ! and you are not doing such a good job recognizing and supporting people who are#in very different places on that spectrum than you !#it is. i mean it's kind of a form of hermeneutical injustice to argue that there is no meaningful difference between various groups#of autistic people#like yeah functioning labels suck ASS. also you DO need to be able to identify that there ARE people who need more support#because if you can't name that then you are going to forget that they exist#and i see that all the time. it's aspie supremacy by another name#by erasing people who did not have the privilege of self-diagnosing#who do not have the privilege not to disclose#who do not have the privilege of independent self-advocacy#you are going to end up achieving the same thing that actively dismissing those people achieves#like. i dunno. like i said it's completely bonkers in yonkers that EYE and the UNIVERSITY DEGREE EYE WILL BE GETTING IN TWO MONTHS#and my LEASE and my RESPECTABLE RESUME and my INCOMING SOCIAL WORK LICENSE#feel alienated by the default presumptions the ''autistic community'' seems to operate from about how autistic people function#like jfc if i feel erased and unwelcome then how are you EVER going to make your community accessible and helpful#to people who need miles more support than i do??#rhi talks#autie tag
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if I had a nickel for every time c!tommy was demonised for showing blatant signs of psychosis and delusions of persecution iâd be the richest person alive. but people donât even acknowledge that c!tommy has canonically had psychotic episodes (with delusions so frequent he genuinely couldnât tell them from reality at times) except to say the actions of the people who hurt him must all be in his head. the ableism towards c!tommy in this fandom is sickening and it goes unnoticed because people reduce it down to his ptsd (which he has canonically had since at least the lâmanberg war yet people push the date further back too) instead of including his psychotic episodes or severe self worth issues or severely disordered eating or addictive personality bc it gives them an excuse to pretend theyâre in the right.
#like. c!tommy is way more disabled entirely canonically than people portray him as#and tbh that like near universal washing away of his more stigmatised mental illnesses by both his fans and detractors is a sign of fandom#ableism that's entirely swept under the rug#c!tommy has had psychotic episodes. they are not explicitly called that but he has shown literally all the symptoms.#yet people donât talk about it and only use it to demonise him or lessen his abuse#c!tommy has severely disordered eating and extreme self image issues to the point he wants to be invisible literally not exist#yet people just pretend that consistent character trait doesnât exist and write him as the exact opposite#it's incredibly uncomfortable and it doesnât get any better bc heâs popular or whatever or bc other characters have it worse#its still ableism shut the fuck up#fandom critical
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i've heard how isolating grief can be because everyone is afraid to talk to you but apparently having a scary diagnosis is the same way đĽ˛
#i wasnt expecting the reaction (or lack thereof) from most of my friends to my diagnosis#i've had invisible disabilities for years so im used to people not really caring about that but this is different#like nobody wants to talk to me at all about anything#most of my friends are avoiding me#i guess im too depressing to be around or they feel awkward and dont know what to say#but its super depressing and kind of hurtful like nobody cares#only one friend who's a nurse and one friend who also had a really bad health crisis not too long ago are acting like they care#im sure its not that nobody literally cares they just dont know what to say or whatever but :(#even some older people i know are doing it which surprised me#i expected more mature people to be used to news like this and better at reacting to it#anyway its only a chance i might go blind not a certainty#i would still like to be part of conversations#we dont Have to talk about the elephant in the room#though i kind of would like to a bit but i dont have to with everyone all the time#im not about to start crying if you talk to me#people i barely know seem less afraid to talk to me than my actual friends#they'll at least ask how i'm doing before ending the conversation lol#anyway đ§ââď¸#sorry to be a downer by existing#this has been a shitpost#illness tw#anyway its not certain its just a chance i might go blind#either way im not dying#even if i were it would be hurtful obviously but whatever
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ppl will be explaining how a difference is a difference & not a Deviation from a Superior state, & people who are the ones considered Default Normal (superior) will be like "okay....to be polite....i Might say i consider Some aspects of Some people's existence mere 'difference' & not being less than me...." as like hey i'm a Benevolent god. i still actually get to consider you worse & don't have to "humor" anything that challenges my superiority. if you only want everything to fit into the norm then it will all come back to upholding the norm. thinking of people's analysis of their own realities as equally legimate as being like Obscure, Irrelevant, Superficial & then using that reasoning to justify dismissing them. same as worrying that the [Different Lessers (Others(tm))] as Everywhere = a manifestation of the awareness that, yeah, respecting them as equals Does threaten your norm which is smothering everything everywhere. ppl who need to lock in the idea of Borders around personhood like um Yes they're all delineated separate Identities outside any hierarchy & so i think it's relevant to for some reason push back against "ohh so now Everyone's queer" like why not. why couldn't they be. what if they were. what if queerness was everywhere b/c it's ideological not a cordoned off Alternative Identity that is accommodated by focusing on Love(tm) as the new border around whose existence we might begrudgingly accept at arm's length (i.e. being otherwise "normal"! just imagine swapping out the binary gender (or, deep breath, presumed Private Parts) of one partner in an exclusive romantic lifelong nuclear family marriage, & that is Gay / Trans Rights. still gross but maybe we can do it, as long as they don't talk about it or shove it in our faces or even exist for more than one encounter w/us in our lives b/c what are the odds). evergreen laughing at someone suggesting ableist logic might be embedded in language of past & present b/c it's just So little to ask for that it's irrelevant but it's also So much to ask for that of course i'm not gonna do anything more than pass it along like "this is why i don't take ableism seriously" like yeah it's the disabled randos like it's the individual cringe teens(tm) ruining [the cishets would take Gender seriously otherwise!!!] & that's why you won't think about it or do anything about it & continue being comfortable with the norm & resent that actually their Difference is Less & disability is something worse that ppl "excuse" & all these ways that people are & all these things that they do are funny & weird & inexplicable & etc & one can't possibly be cruising along perpetuating a hierarchy with a sense that you're reasonable, well meaning, kind, etc etc & thus Justified, systemic oppression definitely wants to maximize how uncomfortable & arduous it feels to everyone rather than push to make it more streamlined & rewarding to embrace, or at least accept, whatever superiority over others you're afforded
#circled around to lovelessness as a lens there. so long as one was loving. so long as one wasn't consciously malicious#really just mask off about keeping the same perspective of Superiority when conflating disability & ppl ''making excuses''#same as like e.g. that ppl consider everything an autistic person does as being Bad / Wrong / Worse. (this includes ''unskilled''!!!)#(crushing the Social Skills(tm) framework in talking abt allistic difference in my fist)#such that they think sm1 saying Autistic!! is then something they might be unfairly Beholden to to Put Up With their Wrongness#at special times in special scenarios....rather than like in some contexts you are no more ''right'' than the other party#different groups & cultures whose Norms Standards & Expectations could render You presumed rude thoughtless pushy etc#obvious overlaps to consider re: the Norms of like english speaking as ''universal'' someone noticeably speaking it as nth language?#time to Presume their ideas & contributions are Less. if they had the good brain like you their fluency would render their linguistic#Wrongness in having a diff 1st language invisible thus irrelevant. like the ''ideal'' for disability! as the ''ideal'' for anyone Passing#in any way! queer ppl surely all want to be as proximate to cishet ideals (just as cishet ppl should!) nonwhite ppl to Ideal White#women's rights = Proving they're As Good As men. ladies you're using too many exclamation points!! be Confident be Pushier!!#but ofc nobody actually wants the Others(tm) to be Equal. they're just saying ''it's your innate Wrongness that means you Aren't''#the ableism logic in everything. men just Are better at xyz. oh we Can abuse autists...into being as proximate to allistic as possible!!#just actually means ''oh we Can abuse autists.'' the ''correctness'' is your Difference ''intruding'' less into allistic existence#force you to be harmed & diminished all day then save your meltdowns for when you're alone & out of the way#ppl's tweets like ''when ppl say 'omg too sensitive ofc i wasn't talking abt disabled ppl!' like yeah no shit b/c you never think of#disabled ppl'' like yeah most people idk aren't making their life's agenda to stop everyone from saying Stupid#but like believe me people organically sense the Vintage R words when you get called Idiot in exactly the same spirit & purpose#i mean that's so rworded as in that's so gay!! cmon!! & it's fine if you don't say either to gay ppl or. or. [insert the office quote]#oh i don't call um 20th c disabled ppl morons it's bad taste!! but b/c i use it Figuratively in the present it's fine it's so Different#fr i can't remember like. an article w/1 matter of fact sentence from a doctor using a [now Just a childish insult!!] as Diagnostic Label#for someone's disability & it still registered like ice water in the face. presumably no ''especial'' Malice just matter of fact!#it wasn't ''idiot'' it may have been ''moron'' fr. the vintage ''factual'' r word is There plain as day#like yeah ofc the ableism gets channeled into alternate language. & then complaints abt that is like UGH CMON!!!#like idk shouldn't you be fine using the R word then too? not really sweating this issue thee most all thee time either but like#it's not sooo funny even if someone seems pressed extensively abt it. not that hard to in fact just not use all these words all the time#ppl will be throwing out their ableism w/o Any labels talking about how Weird Offputting Etc someone acts so you can Tell they're bad....#and yeah you should think abt that. anytime. the [difference used to categorize ''other'' is Just difference] Is Everywhere All The Time#the idea it can & should be ''contained'' for especial limited specific occasions (when you're feeling Nice!) = upholding the status quo
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:angy: the fact i canât talk about [redacted], a character whoâs such a interesting culmination of how hopes peak and their system fails and neglects people, and also of how having a school like this has given people the opportunities to do great things which change lives, all because theyâre a spoiler for something THAT IS LITERALLY [redacted] fucking GETS ME sometimes.
#on the one hand theyâre like. oh hopes peak will drop people at the drop of a hat#they care more about their image and having 16 shiny new students to show off. so theyâre like#âoh fuck someone got incredibly injured doing the thing we were gonna scout them for. well. guess we need to fill the spot#that we were going to give to them. not like we could just. wait for them to be out of the hospital! cuz what if they say no and the class#is left with only 15 students? :(âŚâŚ yk if we stopped being Evil and removed a Evil policy we could easily scout them next school year.#but why would we stop being evil all for one student who was only in this situation bc of how weâve impacted labor laws?â#and so itâs like thatâs horrible and fucked up hpa what the hell#and then the character gets out of the hospital and itâs like. oh by the way betas seen some incredible technological advancements#in the medical/mobility field (<- obligatory i am disabled! i should make a list of disability rep in beta just bc itâs fun but like#there are characters born disabled characters who become disabled later in life. characters with invisible disabilities characters who need#mobility aids 24 7 et cetera et cetera. and any issues they face the message being sent is always we should change the way#people talk about and handle disability and how disabled people are treated. and never âwe should âfixâ disabilityâ!#this characters mobility aid is in part me expressing my own feelings on my being disabled.#and also in part me commenting on how people talk about and treat disability! nuance) so yea. new adaptive tech#and itâs like woah if hpa didnât exist i wouldnât have this this prolly wouldnât have been invented. thanks hpa :]#but i CANT TALK ABT IT IN MORE DETAIL. AGH
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I still got it boys
I got the Top 4.47% on this English Vocabulary test
#i guessed the FUCK out of most of the last few though#the last ten? i dunno.#i was an avid reader as a kid#even now I love nothing more than to learn something new. like what a kerfuffle is.#like what kind of word is that?#anyways. what prev said.#I also feel like there's a point where you reach words that are archaic or barely exist#The point of language is to convey information clearly and concisely#Having people ask you what a word means because no one uses it anymore is not âconciseâ imo#<<<prevs tags#because yes you should say it. you should say it loud and clear actually.#a lot of people. especially Americans. are meant to feel stupid because of scored tests like this#when really it's just a contest of the nerds that still have something to prove#it's dumb. overvalued and underachieved. and that kills a lot of people's willingness to learn#i promise you.#if more people were congratulated on taking the time and effort to read when they were younger#we wouldn't be picking up scraps as adults to prove that we're good enough.#and that especially goes for kids with learning disabilities#disabilities suck in general. but having an INVISIBLE disability that so many people deem as fake and call you dumb ANYWAYS?#that's fucked up#i should know.#I've literally got a handful myself#so yeah. don't feel bad if your scores aren't high as fuck. you're still smart and good and all the good things.#you just probably didn't search the backends of the dictionary as a kid and that's OKAY.#if you're an ex gifted kid who's regressing and you don't score high as fuck that's OKAY.#you're probably a lot more focused on other shit than just learning a bunch of words. like. i don't know. bills? food? work?#obvs sorry to throw in an anti self hate program in here but like. prevs tags got me thinking and i figured i might as well reassure others#as well as myself.#because i definitely took this test thinking it'd define my entire world.#it will not.
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Disabilities that You Should Consider Representing in Your Writing More⌠part 1
[large text: Disabilities that You Should Consider Representing in Your Writing More⌠part 1]
While all disabilities are underrepresented in basically all sorts of media, itâs hard to not notice the trend in what disabilities make up the majority of representation. Itâs especially visible when having a blog like this, where we can see what disabilities writers even consider including in their writing, and which ones never come up.
One in four people are disabled. With eight billion people alive it means thereâs a lot of disabled people, and a lot of reasons why they are disabled in the first place - but this diversity is rarely represented, even on this blog, and anyone who has been following for a while has probably noticed that fact.
To be blunt: there are disabilities other than âamputeeâ and â(otherwise invisibly disabled) mobility aid userâ. Does that mean that itâs wrong to write either of those? Of course not, and we donât want to imply that it is. Does it mean that either of these have a ton of good representation? Hell no. Does it mean that when you are deciding on what to give your character, you should think beyond (or along! people can be multiply disabled!) just those two? Absolutely. Disability is a spectrum with thousands of things in it - donât limit yourself for no reason and embrace the diversity thatâs built into it instead.Â
This is, simply, a list of common disabilities. This is just a few of them, as this is part one of presumably many (or, at least three as of right now). By âcommonâ we rather arbitrarily decided on â~1% or moreâ - so at least 1 in 100 people has the disabilities below, which is a lot. Featuring!: links that you should click, sources of the % that are mostly just medical reports and might be hard to read, and quick, very non-exhaustive explanations to give you a basic idea of what these are.Â
Intellectual disability (about 1.5%) Intellectual disability is a condition we have written about at length before. Itâs a developmental disability that affects things such as conceptualization, language, problem-solving, or social and self-care skills. ID can exist on its own or be a part of another condition, like Down Syndrome, Congenital Iodine Deficiency, or Fetal Alcohol Spectrum Disorders. This post covers a lot of basic information that you might need. We have an intellectual disability tag that you can look through!
Cancer survivors (5.4% in the US, about 0.55% worldwide) A cancer survivor is a pretty self-explanatory term. There is a lot of types of cancer and some of them are very common while others are very rare, which makes this a very diverse category. Cancers also have different survival rates. While not every survivor will have disabling symptoms, they definitely happen. Most of the long-term side effects are related to chemotherapy, radiation, and other medication, especially if they happened in children. They can include all sorts of organ damage, osteoporosis, cognitive problems, sensory disabilities, infertility, and increased rate of other cancers. Other effects include removal of the affected area, such as an eye, a spleen, breasts, or the thyroid gland, each of which will have different outcomes. Cancer, and cancer treatments, can also result in PTSD.
Diabetes (about 8.5%, ~95% of that are type 2) Diabetes is a group of endocrine conditions that cause hyperglycemia (high blood sugar) for various reasons depending on the type. The vast majority of people have type 2 diabetes, which can cause fatigue, poor healing, or feeling thirsty or hungry. A diabetic person will use insulin when needed to help manage their blood sugar levels. There are many complications related to diabetes, from neuropathy, to retinopathy, and chronic kidney disease, and there's a lot of disabilities that coexist with diabetes in general! You might want to check out the #how to write type 1 diabetes tag by @type1diabetesinfandom!
Disabling vision loss (about 7.5%) Blindness and low vision are a spectrum, ranging from total blindness (around 10% of legally blind people) to mild visual impairment. Blindness can be caused by countless things, but cataracts, refractive errors, and glaucoma are the most common. While cataracts cause the person to have a clouded pupil (not the whole eye!) blind eyes usually look average, with strabismus or nystagmus being exceptions to that fairly often (but not always). Trauma isn't a common cause of blindness, and accidents are overrepresented in fiction. A blind person can use a white cane, a guide dog or horse, or both. Assistive solutions are important here, such as Braille, screenreaders, or magnifying glasses. We have a blindness tag that you can look through, and you might want to check out @blindbeta and @mimzy-writing-online.
Psoriasis (about 2-4%) Psoriasis is a chronic skin condition with multiple subtypes; it can cause intense itching, pain, and general discomfort, and often carries social stigma. Itâs an autoimmune and non-contagious disability that affects the skin cells, resulting in raised patches of flaky skin covered with scales. It often (30%) leads to a related condition, psoriatic arthritis, which causes joint pain, tenderness, and fatigue, among other things.
Stroke survivors (0.5-1%) A stroke survivor is a person who has survived any kind of stroke (ischemic, hemorrhagic, etc.). While the specific symptoms often depend on the exact location on where the stroke happened, signs such as hemiplegia, slurred speech, vision problems, and cognitive changes are common in most survivors to some degree. When someone has a stroke as a baby, or before they are born, it can result in cerebral palsy, epilepsy, and other disabilities. We have a brain injury tag that you can look through!
Noonan Syndrome (about 0.1-1% - mild is 1%, severe 0.1%) Noonan Syndrome is a disability that is almost never mentioned in any context, but certainly not around the topic of writing disabled characters. Itâs a congenital condition that can cause cardiomyopathy, chronic joint pain, hypermobility, short stature, facial differences such as ptosis, autism, and various lymphatic problems among other things. Some people with Noonan Syndrome might use mobility aids to help with their joint pain.
Hyperthyroidism (about 1.2%) Hyperthyroidism is a condition of the endocrine system caused by hormone overproduction that affects metabolism. It often results in irritability, weight loss, heat intolerance, tremors, mood swings, or insomnia. Undertreated hyperthyroidism has a rare, but extremely dangerous side effect associated with it called a thyroid storm, which can be fatal if untreated.
Hypothyroidism (>5%) Hypothyroidism is an endocrine condition just as hyperthyroidism is, and it causes somewhat opposite symptoms. Due to not producing enough thyroid hormones, it often causes fatigue, depression, hair loss, weight gain, and a frequent feeling of being cold. Itâs often comorbid with other autoimmune disabilities, e.g. vitiligo, chronic autoimmune gastritis, and rheumatoid arthritis. Extreme hypothyroidism can also be potentially fatal because of a condition known as Myxedema coma (or âcrisisâ), which is also rare.
Deafblindness (about 0.2-2%) Being DeafBlind is often considered to be an extremely rare disability, but thatâs not really the case. DeafBlindness on its own isnât a diagnosis - it can be caused by a wide range of things, with CHARGE syndrome (congenital), Usher syndrome (born deaf, becomes blind later in life), congenital rubella, and age-related deafness and blindness being some of the most common reasons. DeafBlindness is a wide spectrum, the vast majority of DeafBlind people arenât fully blind and deaf, and they can use various ways of communication. Some of these could be sign language (tactile or not), protactile, the deafblind manual, oral speech (aided by hearing aids or not), the Lorm alphabet, and more. You can learn more about assistive devices here! Despite what various media like to tell you, being DeafBlind isnât a death sentence, and the DeafBlind community and culture are alive and thriving - especially since the start of the protactile movement. We have a DeafBlindness tag that you can look through!
Itâs probably worth mentioning that we have received little to no asks in general for almost all the disabilities above, and itâs certainly not due to what mods answer for. Our best guess is that writers donât realize how many options they have and just end up going for the same things over and over.
Only representing âcoolâ disabilities that are ânot too much while having a particular look/aura/drama associatedâ isnât what you should aim for. Disabled people just exist, and all of us deserve to be represented, including those whose disabilities arenât your typical âcool designâ or âcharacter inspoâ. Sometimes we are just regular people, with disabilities that are âboringâ or âtoo muchâ, and donât make for useful plot points.
mod Sasza (with huge thank yous to mod Sparrow, Rot, and Virus for their contributions with research and data!)
#mod sasza#disabled character ideas#writing guide#writing resources#writing help#writing advice#writeblr
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Look I get that we all want to relate to one another. I really do. But seeing people on my post about how shitty it is to exist as a visibly deformed & disabled person in public say things like "that's why i don't stim in public" or "that's why i'm scared to bring my cane in public" is just... You're missing the point.
Some of us cannot mask our disabilities. You can simply not stim if you can supress it in the first place. You can leave your cane at home if you're doing that already in the first place. A knee brace doesn't make you look like a "freak". You do appear abled otherwise.
I cannot. Many people I know cannot. I can't just "hide" my deformities and abnormal gait or convulsions to appear abled. I *need* my crutches everywhere I go. I can't supress my tics. Full-time wheelchair users exist. High support needs autistics exist. Schizospecs who cannot mask exist. People with William's Sydrome, Down's Syndrome and various obvious deformities exist. Little people. People with severe chemical burns or otherwise or scarring. People with Parkinson's, Tourette's, Huntington's, Cerebral Palsy, every disabled person who looks "abnormal".
We can't just "turn it off" like you. People WILL stare at us. Point their fingers at us. We have no power. They used to put us into freakshows. Not you. Not you who can hide your disability to "appear normal". That post was not for you to "relate to". I and many people are sick of many invisibly disabled people claiming they "want to look disabled" so they'd be "taken more seriously". It's not an invitation of you to declare you leaving your mobility aid at home or shit like that. It's not the damn same.
#ableism#vent#visibly disabled#cripplepunk#cpunk#visible disability#physical disability#invisible disability#actually disabled
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Why do we do this thing where we're like "You wouldn't do this to another marginalized community."
I just saw a video of a bi person going "people act like the only bi woman is white and middle class, but they don't do that with lesbians or gay men." I immediately thought "Yes they do, though."
I've seen people say it with "people wouldn't say it about Jews" as a talking point against racism, with examples that I've definitely seen happen to Jewish people. "People wouldn't say this to a Black person" about comments I've seen Black people receive.
"Don't tell me I can heal my invisible disabilities with enough willpower, people wouldn't say that to a wheelchair user!" - they say it.
It's rare that a bigoted mindset doesn't replicate itself across groups. There are specifics for each marginalized group, but if a shitty attitude exists towards one, it most likely exists towards others. If you haven't seen it - it's probably your positioning.
If you want to discuss an issue you experience, you don't have to use another marginalized group as an example of someone who has it better. If you're wrong and they do suffer, you just contributed to erasure.
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I feel like there's a pretty significant issue with a not insignificant portion of people on this site assuming that every physically disabled person they talk to on here is ambulatory, invisibly disabled, has low support needs or is generally at the same severity of disability as them. I think that's where we get a lot of this "nobody is more disabled than anyone else" and "physical disability and neurodivergence is ALWAYS the same because it's the same in MY experience" stuff from. It's easy to broadly apply your own experiences to people you've never met in person and haven't witnessed the real everyday life of.
But I really urge everyone to make a conscious effort to NOT do that. There are people who use this site who are bed bound, cannot breathe or eat without assistance, experience varying degrees of paralysis, rely on full time care, have high grade neurological/cognitive disabilities, have a terminal illness, have undergone very extensive surgeries just to survive, etc. and are OBJECTIVELY more disabled than you. There are tons of people on here who are OBJECTIVELY more disabled than me. Those aren't obscure hypotheticals, these are real people who you and I have interacted with in this community.
That doesn't mean your disability isn't real or that you aren't struggling, it's just a fact. If you feel invalidated by that, perhaps that's an issue you have to work on yourself rather than outright denying and ignoring other people's experiences and silencing them to feel better. Literally none of this whole validity competition stuff matters in the real world, where the REAL PEOPLE you are talking to exist.
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Honestly, the fact is that this is not only gross, but it's also just conceptually lazy. The kind of world you'd have to create to ensure that no disability exists (because magic~) would be such an incredibly boring and low stakes one that it wouldn't be worth exploring.
No permanent consequences for any kind of fighting in this world, no battlefield injuries that can't be instantly fixed. No poverty. No disease or famine. No aging, since that causes disability too. Either everyone has perfect access to incredibly advanced healthcare, or everyone is incredibly skilled with magic to the point of being able to perform the equivalent of neurosurgery with it. There are no birth defects. Everyone is, presumably, 'fixed' at birth. No disabling mental health issues, presumably there's a spell for that too.
Like, you would have to remove all stakes or risk from the equation. The only permanent thing that can happen to anyone, presumably, is death. Everything else is temporary or non-existent. Everyone is perfectly healthy and mentally well, there's no class divide, no inequality, no suffering, no need for any societal change. What story do you even tell in this world?
This really pissed me off in twitter recently. Disabled people belong in every type of setting. If we aren't there, your worldbuilding sucks.
#it's legitimately just such a lazy and gross stance to take#and it shows that this person doesn't think past their first impulse of 'disability should not exist'#because the truth is that they wouldn't want a story set in a world like this at all#they just want disability to be invisible.#they don't want stories with disabled people in them and they're lazily trying to back that up
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