#life with chronic pain

[crazycatsiren]

Opioid epidemic this, public health crisis that. What if everybody had access to quality healthcare and pain management so no one would have to resort to desperate and even illegal means for pain relief, imagine that.

[potsiepumpkin]

When the chronic fatigue is chronic

[disabled-bug]

I’m so proud of people living with chronic health conditions. That shit is HARD. Idk who needs to hear this, but if no one else has said it: I’m proud of you. You’re sticking it out through so much pain and grief. That’s no small feat.

Every small thing you do for yourself health adds up. The grief is heavy and it comes from a place of love. The grief knows the pain is wronging you.

I’m proud of you. I hope on the good days you can be proud of yourself.

Keep going.

[s-ccaam-era-crepe]

i think everyone who's ever had migraines should be financially compensated forever btw

[gentlyepigrams]

If you're taking other drugs that require regular blood draws to test liver function, please talk to your doctor(s) and/or a pharmacist before taking Tylenol/acetaminophen/paracetamol. It may be OK, but this is a case where knowledgeable advice from a professional is important. Your liver is important. Please take care of it and yourself!

PSA:

Acetaminophen/paracetamol has a hard stop upper dose limit, above which it becomes extremely toxic.

That limit is 4g (8 “extra strength” (500mg) tablets) in 24 hours (about 2 tablets every 6 hours).

A single dose of 22 extra strength tablets can kill you.

Taking 12 or more tablets per day for more than a week can also kill you (this is about 3 tablets every 6 hours).

Symptoms of overdose take up to 24 hours to manifest, and are fairly difficult to distinguish from other problems. They include abdominal pain (especially right upper quadrant), nausea, malaise, and confusion.

The antidote (n-acetylcystine) must be given within 8hours of ingestion in order to be useful.

After 10 hours the only thing that will work is a liver transplant.

You might think “why would I ever accidentally take so much?”

Well, acetaminophen is in almost everything in the cold/flu/pain aisle. Migraine combos like Excedrin, cold and flu combos like NyQuil, basically anything that says “non-aspirin pain relief”, and anything that’s branded as a fever reducer. It’s all probably acetaminophen/paracetamol.

So the goal of this post is to get you to read the labels on your medications. Because taking taking Tylenol and NyQuil together for a week (like you might if you had the flu) could kill you.

[tumble-tv]

"You're always so chipper and excited even though you're in pain, I could never."

Bethany, if I wasn't chipper and excited about the most mundane things like bees and dice, then I would literally be bedrotting all day every day, sobbing because my entire life is falling apart because I have no answers or relief to pain that doctors think is fake. So I will take joy in my trinkets and rollerskating while my body allows because one day I won't be able to.

[cheesy-cheddar-sadness]

text could never portray the scream i wish i could let out

[justbreathe-it-out]

i want to take his hand and start running, do all the things i dreamed of doing once i met him(<3!!!) but chronic pain means most days he’s low functioning and low energy. i am someone who body doubles to get things done and i hate leaving anyone behind or alone that doesn’t want to be (from experience), and some days he get maybe 3 spoons and a partner with 17 spoons and 14 get spilled on the ground and to pick them up i need a spoon of his in action with one of mine or that’s 14 spoons wasted for the day. i’ve cried a lot about this guilt i feel when i know he’s in a bad flare up but i need to leave his side to take care of myself.

it sucks for both of us. he remembers a time before this, when he could be everything he wants to give me now, but can’t. we both mourn the time lost in bed and we both dream of what life will be like if he gets in remission (which is still years from now) anyways it sucks and ER doctors are patronizing and they just shrug it off as a post it note that read “stomach troubles”

abled people really act like if your illness or disability isn’t terminal then you’re not allowed to complain about it or grieve the life you thought you’d have and it’s so fucked up

[crazycatsiren]

I'm truly sorry about how I behaved when I was in too much pain to think.

[squid-socks]

Why is it always up to disabled people to look after other disabled people. Why do able-bodied people feel no obligation to assist? Why do they throw the additional responsibility on disabled individuals. Why is their whole system built on isolating groups??

[justsomerandomgay]

something that isn’t talked about enough with chronic illness is knowing that going to your appointments and doing your exercises and all that will help but being in too much pain or too fatigued to go, so your just stuck in this constant cycle of knowing what you need to do to get better but not being able to do it because your sick

[eggings]

happy disability pride month to anyone who has a disability from a condition that “usually isn’t a disability”. happy disability pride month to people with disabilities that aren’t often understood by able-bodied people. happy disability pride month to people who don’t have any official diagnosis yet. happy disability to people whose “labs look completely fine”. wishing you peace this july.

[disabled-bug]

disabled people when their disability disables them

[somniphobicfox]

This month, shoutout to new mobility aid users. People who've just recently bought a cane or a wheelchair or a rollator or any other mobility aids and are just getting used to them. People who are still figuring out how to navigate in them. It's alright if the aid that you thought would help you actually turned out to be useless/more destructive. Its alright if on some days even your aid cannot give you support. You are still valid, your struggle still real, and I hope you find what's right for you really soon <3

[chronically-evie]

my mom keeps trying to get me to go to the ER when im having a flare up and i have no idea what to tell her.

because ive BEEN to the ER before. you wanna know what they did? while i was sweating, shaking, and sobbing, curled in a ball of pain?

they asked me if i was on my period. when i told them no, they asked me if i was pregnant.

when i told them no, because i wasn't sexually active, they forcibly tested me anyways, and then when it came back negative said, "well maybe you should just take a few deep breaths", gave me liquid ibuprofen, and sent me home.

disabled people, in this particular situation disabled afabs, are never fucking listened to.

the ER staff literally LAUGHED at me multiple times. they pointed at me when i was having one of the worst episodes of my life and snickered.

so no, i do not want to go to the fucking ER. my heating pad, ice packs, and nausea meds are going to help me more than anything a hospital could do.

[tumble-tv]

SAY IT WITH ME: MEDICAL GASLIGHTING IS MALPRACTICE