#life of a spoonie
Explore tagged Tumblr posts
Text
having to go back to my parents’ home and needing to pack so many meds for over a week
and then realising that you forgot to pack the most important meds
20 notes
·
View notes
Text
im a pretty quiet person but when im in the kitchen on the line these 30 year old men are scared of me when they forgot to put that fish on 5 mins in the check
4 notes
·
View notes
Text
Not just related to Michigan, as every state must do reviews.
“In just two months, a bureaucratic review will begin that experts say could cost hundreds of thousands of low-income Michiganders their health insurance — and threaten nonprofit clinics that treat more than 400,000 Medicaid patients across the state.
Beginning April 1, more than 3 million Michigan Medicaid clients will have to prove they are eligible for benefits extended since 2020 under a federal health emergency that barred states from removing anyone from Medicaid during the COVID-19 pandemic. Michigan’s Medicaid ranks grew by more than 700,000 since the pandemic hit.
Federal estimates calculate up to 15 million U.S. Medicaid enrollees could lose coverage during the benefits review, including 6.8 million people who could be booted from the rolls despite being eligible.”
#my post#medicaid#government insurance#spoonies#michigan news#articles#disability benefits#life of a spoonie#disability rights#disability issues#social issues
13 notes
·
View notes
Text
42K notes
·
View notes
Text
When the chronic fatigue is chronic
#chronic illness#chronic pain#disability#pots syndrome#postural orthostatic tachycardia syndrome#chronic fatigue#invisible disability#fibromyalgia#spoonie#chronic life#hypermobile eds
95K notes
·
View notes
Text
I’m so proud of people living with chronic health conditions. That shit is HARD. Idk who needs to hear this, but if no one else has said it: I’m proud of you. You’re sticking it out through so much pain and grief. That’s no small feat.
Every small thing you do for yourself health adds up. The grief is heavy and it comes from a place of love. The grief knows the pain is wronging you.
I’m proud of you. I hope on the good days you can be proud of yourself.
Keep going.
#chronic illness#disability#chronic pain#spoonie#ibs#chronically ill#gerd#pots#arthritis#spoonie life#chronic illness blog#chronic health issues#chronic fatigue#chronic health problems#chronic disability#spoonie stuff#spoonies#encouragement#endometriosis#disability pride#proud of you#fibromyalgia#postural orthostatic tachycardia syndrome#irritable bowel syndrome#gastroesophageal reflux disease#gastrointestinal#uplifting words#chronic health tag#chronic migraine#autoimmune disease
5K notes
·
View notes
Text
#spoonie#chronic illness#chronically ill#chronic disease#invisible disability#disabled#disabled people#disability#mentally disabled#actually disabled#disabled artist#disabled girl#disabilties#disabled pride#disabled representation#disabled community#disabled life#disabled rights#disabledcreator#physical disability#physically disabled#disabledandcute#psychology
1K notes
·
View notes
Text
This month, shoutout to new mobility aid users. People who've just recently bought a cane or a wheelchair or a rollator or any other mobility aids and are just getting used to them. People who are still figuring out how to navigate in them. It's alright if the aid that you thought would help you actually turned out to be useless/more destructive. Its alright if on some days even your aid cannot give you support. You are still valid, your struggle still real, and I hope you find what's right for you really soon <3
#i wish someone told this to me when i first bought my rollator#disability pride month#chronic pain#chronic illness#disability#disabled#mobility aids#fibromyalgia#hypermobility syndrome#cfs#me#me/cfs#pots#arthritis#self diagnosis#spoonie#spoonie life
1K notes
·
View notes
Text
my mom keeps trying to get me to go to the ER when im having a flare up and i have no idea what to tell her.
because ive BEEN to the ER before. you wanna know what they did? while i was sweating, shaking, and sobbing, curled in a ball of pain?
they asked me if i was on my period. when i told them no, they asked me if i was pregnant.
when i told them no, because i wasn't sexually active, they forcibly tested me anyways, and then when it came back negative said, "well maybe you should just take a few deep breaths", gave me liquid ibuprofen, and sent me home.
disabled people, in this particular situation disabled afabs, are never fucking listened to.
the ER staff literally LAUGHED at me multiple times. they pointed at me when i was having one of the worst episodes of my life and snickered.
so no, i do not want to go to the fucking ER. my heating pad, ice packs, and nausea meds are going to help me more than anything a hospital could do.
#postural orthostatic tachycardia syndrome#pots syndrome#disability#disabled#pots#potsie#spoonie#ehlers danlos zebra#chronic pain#hypermobile ehlers danlos#actually disabled#physically disabled#disabled community#disabled life#chronic disability#physical disability#disability advocacy#disability awareness#disability rights#disabilties#invisible disability
3K notes
·
View notes
Text
I've always been curious to know this about the people around me. Most people have been in severe pain, but in my experience few have had what they would say is their 10/10 experience. I guess it's just something I find fascinating, as I had my 10/10 experience quite young and I sometimes forget that not everyone has. In my opinion it changes your relationship with pain and how you engage with it afterwards. If you answered yes, feel free to elaborate on your circumstances in the tags!
(reblog for a bigger sample size etc)
#I was 13 and mine was after spinal fusion surgery for scoliosis. T6-L4 fusion and when i woke up in spinal shock it was agonising pain#they had to give me ketamine before the pain died down and even then it was only 9/10#i was on a fentanyl drip for a few days afterwards and ever 5mins and 50sec id be dosing myself#my dad would take over my button while i was sleeping and set a timer on his watch to push it at those intervals#it was the only way i could rest as without it id wake up in blinding pain#definitely the hardest experience of my life. sometimes i forget that i went through that and came out the other side.#polls#chronic pain#disability#spoonie#cripple punk#cripplepunk#the tags ive chosen kinda skew the balance in favour of the yes but idk what else to tag it with.#it would be interesting to see if other disabled people have also had a 10/10 and how common that is
5K notes
·
View notes
Text
"You're always so chipper and excited even though you're in pain, I could never."
Bethany, if I wasn't chipper and excited about the most mundane things like bees and dice, then I would literally be bedrotting all day every day, sobbing because my entire life is falling apart because I have no answers or relief to pain that doctors think is fake. So I will take joy in my trinkets and rollerskating while my body allows because one day I won't be able to.
#chronic illness#disabled#chronic disability#chronically ill#chronic disease#other chronic illness bs#chronicpain#disablity#undiagnosed chronic illness#disability#chronic pain#chronic fatigue#nerve pain#joint pain#back pain#disabilities#actually disabled#invisible disability#physically disabled#cpunk#angry cripple#cripple life#cripple problems#cripple punk#cripplepunk#crip punk#spooniestrong#spoonie#spoonie life#low spoons
507 notes
·
View notes
Text
#autoimmune#lupus#lupus warrior#spoonie#fibromyalgia#lupus advocate#lupus fighter#strong#chronically ill#pots syndrome#posturaltachycardiasyndrome#postural orthostatic tachycardia syndrome#ehlers danlos awareness#ehlers danlos life#systemic lupus erythematosus
12K notes
·
View notes
Text
Opioid epidemic this, public health crisis that. What if everybody had access to quality healthcare and pain management so no one would have to resort to desperate and even illegal means for pain relief, imagine that.
#disabled#spoonie#cripple punk#chronic pain warrior#pain management#opioid crisis#opioid epidemic#life with chronic pain
900 notes
·
View notes
Text
It is so fucked up that disabled people are terrified of going to the doctors
#dores world 🌍#disability#disabled#chronic illness#chronic pain#chronic fatigue#disabled life#actually disabled#spoonie life#spoonie problems#i have a doctors appointment in four hours and I’ve chewed the skin around my nails to shreds and I can’t stop shaking#doctors appointment#doctors suck
731 notes
·
View notes
Text
disabled people when their disability disables them
#chronic illness#disability#chronic pain#spoonie#ibs#chronically ill#gerd#pots#arthritis#disability representation#disability blog#gastroesophageal reflux disease#autoimmune disease#spoonie stuff#spoonie memes#spoonie humor#spoonie life#disabled#chronic disability#disability humor#chronic illness meme#chronic migraine#invisible illness#illne#shitpost#funny
2K notes
·
View notes
Text
Sometimes i find myself putting off taking pain killers usually with the mental reasoning that I'm not in a really really high amount of pain so I dont need it yet.
This is a reminder to myself and anyone out there that needs it that you dont have to wait to be in a really high amount of pain before you take pain relief or do things that will make you feel better.
#disabled#chronically ill#chronic fatigue#chronic pain#disability#actually disabled#chronic disability#disabled community#disablity#spoonie problems#disabled life#chronic illness#chronic illness problems
2K notes
·
View notes