#fnd tics

[mischiefmanifold]

reminder again that anxiety, ocd, autism, adhd, trauma, fnd, pandas/pans, etc., do NOT cause tics

if you have tics you have a tic disorder

if you have at least two motor tics and one vocal tic you have tourette syndrome

also remember that there's a lot of different types of involuntary movements

[its-ticsticstics]

Do you know of any good research on functional tics? Im having a hard time finding actual scientific research on them

The evidence for functional tics is quite poor.

A lot of the "studies" on it came out during the pandemic when people were convinced tiktok could magically give teenage girls neurological symptoms. Its rooted in misogyny, and are actually pretty damn anecdotal for something thats meant to be scientific.

Here are some studies; but please take them with a grain of salt.

There's a couple more but again; a lot of these studies are SEVERELY flawed and lack a fundamental understanding of how tic disorders can present in females, and just an overall misunderstanding of the wax-and-waning nature of Tourettes syndrome. Pretty disappointing from papers claiming to have "experts".

[dailydivergent]

Neurodivergent reminder: Overstimulation feels a lot like anxiety, and understimulation feels a lot like depression.

More importantly, you don't need to know which it is to practice self-care.

Self-caring anxiety and overstimulation looks the same:

Recognize you're feeling big feelings

Take as many deep breaths as your need to slow your mind

Identify what’s causing the feeling, whether sensory, environmental, or situational

Minimize that cause as much as possible immediately

Self-caring depression and understimulation looks the same:

Recognize you’re in need of stimulation

Turn on an interesting long-form video of some kind

Do some quick exercise like a walk or jumping jacks

Call a friend that'll let you infodump

If you're neurodivergent and easily get stuck on labelling things — I see you.

I'm here to remind you that you don't need to know what it is to take care of it in the meantime.

You can — will — figure it out later.

[arcticduckie]

Shoutout to people with Functional Neurological Disorder

Shoutout to people with functional tics

Shoutout to people who have dystonia

Shoutout to people with Psychogenic non-epileptic seizures

Shoutout to people with paralysis and or weakness

Shoutout to people with tremors

Shoutout to people who shut down/unresponsive episodes

Shoutout to people who have walking difficulties

Shoutout to people who have numbness

Shoutout to people who have speech problems

Shoutout to people with vision problems

Shoutout to people with hearing problems

Shoutout to people with memory loss

Shoutout to everyone with FND

[haowenyang]

normalise having tics 👍

[ghxst-system]

reminder to avoid misusing terms that u clearly do not know definitions and connotations of

i am disabled and get partial paralysis in my hands and legs

i lose near to all ability to type and will use mic input for typing when possible (i am semiverbal and situational mute), and have to get help to do many things

i have tics and tremors

i jolt and can often hurt myself or others and i can be loud with my tics and disrupt people

u do not have "adhd paralysis" or "task paralysis" that is executive dysfunction

u do not have a "nervous tic" of biting ur nails. that is a stim.

[tic-loud-tic-proud]

10 Tips for people with klazomania (screaming tics)

1, and this is one that has changed my life: if you have very frequent shouting/screaming tics, DO VOCAL WARMUPS! I used to consistently lose my voice at the end of every day before I started doing this. There are plenty of short and simple warmup tutorials online- find one that works for you!

2, if you live in an apartment building, make sure to tell your neighbors. You don't need to explicitly tell them you have TS, but make sure they know you make loud sounds frequently so they're not concerned. Putting a sign on your door also works. Remember: in the USA it is illegal for landlords to evict someone solely because of a disability.

3, if you're heading off to college and plan on living in a dormitory you might want to request not having a roommate. If you are already diagnosed with a tic disorder, it should be easy to do this through your college's disability services office. If you would like to have a roommate make sure they understand your tics.

4, if you are planning on going out (to a restaurant, theme park, museum, etc.) you might want to call the staff of the location to inform them you have tics a few days before. I usually call ahead to restaurants to let them know about my klazomania and coprolalia tics and I've found that doing so makes it easier for both parties.

5, going off of 4, if you're going to a theme park or large museum and plan to suppress at least part of the time, get a map and mark off secluded places where you can safely let your tics out.

6, if you'd like you can bring a stuffed animal out in public with you: both for emotional support and to muffle the sound of loud tics.

7, if you're a middle or high school student, email your teachers to let them know about your tics. If you have moderate/severe tics it was very important to me that I gave a presentation to each of my classes at the beginning of each semester to teach them about my TS. Another accommodation that I got in high school was being allowed to zoom into my classes instead of attending in person: So on bad tic days I would stay home, and my teachers would broadcast the class over zoom for me.

8, drink lots of water and purchase a humidifier if possible. At the end of a long day drinking fluid and being in a more humid environment will help to soothe your voice. Herbal tea with honey or mild broths can also help soothe your voice!

9, have a good network of friends who understand and support you. This is no easy feat and can take years but it will have a huge impact on your quality of life. Join a support group (IRL or online) to talk to other people with tics who understand what you're going through, and find people who share your hobbies and interests!

10, remember that your tics don't define who you are! It is not your fault that you have tics, and you are not doing them on purpose. Don't feel guilty for something you have no control over. You deserve to live a happy and fulfilling life just like anyone else!

[sammytics]

NOT A HATE POST; PURELY EDUCATIONAL

just saw someone use Functional Tics and Tourette’s interchangeably because their neurologist said they could

and it reminded me of how uneducated doctors are and how many studies need to be done

Right now, the main criteria for functional tics is being a young female with sudden onset of severe tics. Sometimes, these diagnoses are thrown at people without considering past hidden tics, the possibilities of PANS/PANDAS/Lyme, meds/drugs, or just plain organic based tic disorders.

While the difference between functional and organic tics is debated, and feels a bit stigmatizing to those of us with severe tourette’s, you do have to go through a year long period of having tics with Tourette’s, and many functional tic disorders are diagnosed soon after symptoms start; thus making it impossible to interchange with Tourette’s in the first place.

Functional tics are valid and a real diagnosis, but these are just some of my personal thoughts from years of being an advocate in the Tourette’s community and also being someone with FND.

I don’t believe functional tics and Tourette’s should be interchangeable because they are physiologically different and are treated in completely different ways. whereas functional tics may be treated by anti-depressants and therapy, organic tics may be treated by CBIT and non-stimulant adhd meds or meds like Abilify. They’re just really different in nature from what I’ve researched and been told. 🤷

I am not an expert, so take what I say as you want and do your own research 🫶

[crippledcryptidd]

My cane

[finnslay]

I don't wanna be broken anymore...

[seasickzig]

Summary is second to last paragraph!

Has anyone else noticed that a lot of the disorders that cooccur with FND are disorders that cause a heightened baseline or heightened dumps of cortisol and adrenaline?

With CPTSD, PTSD, and anxiety you are CONSTANTLY in a state of fight or flight and hyper vigilance. You always have cortisol and adrenaline in your brain.

With Autism and ADHD, they come with sensory issues which can cause stress and even physical pain. Having stress and pain from things every day (tags on clothing, food textures, socks, wind, lights, etc etc) is not normal. And Autistic people are at a higher risk of developing CPTSD and PTSD, too.

For chronic pain conditions, we’re always stressed because our body is under stress. Also while youre in pain your brain releases adrenaline to help you continue with your day and life and cope with the pain. Hypermobility and Fibromyalgia are the two chronic pain conditions I see alongside FND.

I believe that having too much cortisol and/or adrenaline in your system for too long “fries” your nervous system and makes it so your brain can’t talk to your body correctly. It’s not “just stress” like doctors used to believe. I believe FND is caused by basically overdosing on cortisol and/or adrenaline. That everyone has a different baseline of how much they can handle, and once they reach that point, they develop FND.

What do you guys think? Is this already the current understanding of the disorder? This is what I’ve gotten from research bc my neurologist diagnosed me over the phone with no follow up appointments to explain whats wrong with me.

[its-ticsticstics]

The majority of the textbooks on tics and movement disorders we're given now don't include whats called "Tic status" or "Status tics". A quote I've pulled from a neurology textbook before 2010 quoted

"motor and vocal tics can be quite prolonged, usually as a series of clonic tics or dystonic tics that are continual, lasting tens of minutes."

Now these are generally labeled under functional tics or PANS/PANDAS/BGE.

With how misinformative info on Tics/TS has become since 2020 its really hard for me to tell which is true or if if there's an overlap within FND and PANS/PANDAS with Tourettes.

This is something we all need to keep in mind when studying tics on a clinical level.

[manyminded]

I think we should start saying “excuse you” and “bless you” when people tic. like when we sneeze

[mimikyu-chr]

I care a lot about the treatment of disabled people who can’t help being loud because I AM one. I have tics from FND which are noisy, annoying, and involve words and noises made by my body. and I can’t help them. When you stare at me because I’m saying ‘slap the fatui’ and hitting myself in the head on the train it makes me feel so bad about something I can’t help, and I wish society could be more normal about people with complex and ‘obnoxious’ tics like mine.

[ghxst-system]

dont make people with tremors or tics or muscle spams feel uncomfortable

i shouldnt feel awkward sitting next to u on a sofa or being in the same room as u

i dont choose tics or when my tremors, etc flareup

dont look at me like im an alien.

[lemon-emon]

Question to anyone with tics/tic disorders:

Does anyone else notice an increase of tics when you get out of the shower?

Idk if it's the abrupt sensory change (warm -> cold, wet -> less wet, water sounds -> quiet, texture of towel, etc) or what, but it's definitely something we've noticed.

-🌿