#disability flare

[chaithetics]

it's spring here and we're getting into summer and it's really killing me with my disabilities. Has anyone tried those like wearable migraine/headache cooling caps? What did you think of them? Did they work and stay cool for a decent amount of time? Any other tips would be great thanks

[stars-and-branches]

Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside

[chronically-mars]

I never truly knew the meaning of friendship until I became chronically ill and disabled. When my health declined I had people leaving left and right because I couldn’t keep up with other teenagers. I stopped having people check on me, I stopped getting invited to stuff, stopped being included, until I just got left behind. Now as an adult I found friends who check up on me, make sure whatever we do is accessible to me, always making me feel included, they are my support system.

Check up on your chronically ill and disabled friends, keep including them in stuff even if they have to end up canceling it. Being excluded for something you have no control over is horrible and no one should go through that.

[chronicbitchsyndrome]

seeing a lot of discussion of upcoming food safety deregulation that doesn't provide any options beyond "don't eat pre-prepared food and buy from local farms."

therefore, i want this thread to be for tips, advice, resources, etc, for disabled people specifically to get through the upcoming food safety deregulation in the USA. please reblog and add on advice for minimizing upcoming risk when you can only eat pre-prepared and frozen meals, rely solely on SNAP/EBT for groceries, etc.

(i'll admit this is a bit selfish; i don't have any advice to start us off because i am a disabled person who relies almost exclusively on pre-prepared meals to survive and can't buy groceries if they're not SNAP eligible, so i would really, really personally benefit from tips and advice.)

stay safe and take care of each other!

[800-dick-pics]

Help a Multi Disabled Afro indigenous get Proper Medical Care!!!

Its disability pride month and i have been unable to afford medical care and havent been able to get any of my medications. Im kinda suffering without meds and proper medical care. If youre able show some support cuz I really need it!

$230 goal!

CA: $sleepyhen

VN: wildwotko

Dm for Paypl

[4spooniesupport]

[skys-archive]

Genuinely one of the best things you can do for your chronically ill loved one in a flare is feed them. Cook for them, bring them food, heat up leftovers for them. Seriously, I think food is something that's just so deeply rooted in care and comfort. It's hard to feed ourselves when we're hurting or fatigued or weak, and especially hard when it couples with depression.

It meanwhile so much to be given food when you're struggling.

[like-i-was-an-old-cardigan]

ykw. shout out to everyone who is both too disabled and not enough.

i wonder if i am disabled enough for cripplepunk, but at the end of the day, scrolling through the cripplepunk tag makes me feel better.

i am not quite disabled enough to be who a post for people who have been deemed scary or weird is for, but i do deal with those feelings. and i bite my arm because it makes me feel less like i’m dying and then i wonder if maybe they would think i am weird and scary.

i guess what this boils down to is: i feel like i am not disabled enough for disabled community. and if anyone else sees this who feels the same way, you deserve community. you deserve not to feel alone.

[motherboardmania]

chronic sniffler.

soap and tissues thoughts under the cut

the thing abt soap n tissues is that theyve got like. Really opposite versions of the same problem. tissues' condition causes him to have problems with cleanliness, and soap's OCD (not canonically stated but. its pretty coded.) causes her to be obsessed with compulsively cleaning to the point of... putting hand sanitizer in pizza. Which is pretty bad.

shes clearly really afraid about potential contaminants which, yeah. OCD is based in fear and uncertainty. its not gonna be easy for her to manage it, even if she dumps all her cleaning supplies off a cliff. things Do need to be cleaned, and i feel like her avoiding cleaning supplies could easily result in a worse avoidance-based compulsion. (like, "oh theres sponges here. Sponges mean things need to be cleaned. things in here might be unclean, so i need to throw out the sponges." which isnt logical but OCD doesnt adhere to logic anyway.)

i think her tossing her cleaning supplies off the cliff was already a significant attempt to stop feeding into her contamination fear through compulsive cleaning! which is great. but i think it would be a great additional step for her to talk to tissues more often, especially because he was unfairly caught in the crossfire.

i think itd be cool for them to make amends. tissues could provide a healthy outlet for soap's urge to clean, and point out when she's being obsessive. n soap could help tissues out with cleanin up when hes havin trouble, and keep him company during flares bc sneezing, nausea, vertigo, + chronic pain is definitely something thats easier to cope with when youre not also lonely about it. At least for me. (coughs awkwardly.) point is i think them being friends would be good for both of them long term.

in FFF tissues noticably softens a little after bein referred to as a friend by fan, and like. emotional comfort definitely helps make the physical a little less bad. i like to think thats why he was able to fall asleep in the chair. also makes me think that maybe people dont consider him a friend nearly as much as hed like, and well that probably makes the chronic illness more frustrating.

idk. being disabled (whether that be mentally or physically) is rough. I want these two disabled girls to be nice to each other n help out where they can. i think they could make each others lives a little easier that way.

this is only like. 1/3 projection. im not going to lie n say im not projecting a little, but these two just happen to have similar problems i do. and i like them a lot for where i can relate, even if we def dont have the same personalities. its nice bein able to see myself in both of em. Also theyre underrated.

[a-totally-reasonable-username]

Being chronically ill can be so mind numbingly boring when you're stuck in bed because of an episode or a flare up and unable to do just about anything but you're still awake and lying in bed and feeling like you'll loose your mind if you continue to be this bored

What's your go to 'activity' when you're stuck in bed? Mine are (if possible ofc) reading, watching tv shows and doom scrolling

[doresworld]

Best things about being disabled:

Not necessarily being in a flare up, but it’s been two weeks of things not being right and each day you lose more hope that it’ll ever be okay again

All food and drinks are making you sick, even water churns your stomach

The weather can make your writhe in pain

Not being able to do anything, watching TV is exhausting, even scrolling on your phone requires a modicum of attention

Sitting upright is painful

Lying down is painful

Keeping your eyes open is effort

Wishing you could be the old you, the healthy you

[scissorcraft]

so. rescuing kittens, huh.

[chronically-mars]

Masking chronic pain sucks.

It doesn’t mean we’re not in pain, it doesn’t mean we can do stuff just because we did it yesterday, it means we are trying not to make you uncomfortable when we’re in the most severe pain imaginable but have to put on a straight face or else we will break down completely. Masking takes up energy we don’t have so please be nice to anyone who is struggling.

To my chronic community friends, I hope you get to rest today and I hope you get more spoons to get you through the week. You are valid.

[fidoughfaunus]

Feeling a little emotional during a bad pain flare day but just wanted to stop in and say a special I love you to my disabled Jewish fam. I know I personally struggle with guilt when I can’t do things like keep kosher or fasting or even just making it to services, and it sounds like that isn’t a super uncommon feeling among my disabled shalomies.

You’re Jewish enough. You’re Jewish and beautiful and I love you and this is your sign that it’s all gonna be okay and you are loved and valid as hell.

[hoshi-kawaii]

I'm so so so jealous of people who get to leave the house and do activities and can be in sunlight and move comfortably in their own bodies who don't have to worry about what they might feel like just 10 minutes from now.

[chronicpaingirlie]

yknow what i hate so much? when i technically Could do something that requires more spoons like reading or watching something that im not familiar with, but i know i Should give my brain a rest and read or watch the most mind-numbingly familiar and low spoons things i can find instead