#chronic illness flare up

[a-totally-reasonable-username]

Being chronically ill can be so mind numbingly boring when you're stuck in bed because of an episode or a flare up and unable to do just about anything but you're still awake and lying in bed and feeling like you'll loose your mind if you continue to be this bored

What's your go to 'activity' when you're stuck in bed? Mine are (if possible ofc) reading, watching tv shows and doom scrolling

[sebs-out-of-spoons]

guess who did way too much and pushed himself way too much last night for halloween/trick-or-treating and is now in a flare up and has to go to work today and be even more flared up? :D (this guy right here, ME)

[matchakuracat]

when the flare up lasts so long that you start to realize that it's not a flare up anymore, this is just your new normal

[alxor-of-hellsite]

really really want to clean my room but i’m super exhausted & don’t know how i could do it without making everything worse.

[that-dam-heartstopper-fan]

Today, every time I stand I get so dizzy and light headed please read tags before commenting

Good thing I didn’t go to the “barbecue” thing with my friend (we call it a barbecue but it has rides there and such- more like a festival or smth)

[chronically-mars]

I never truly knew the meaning of friendship until I became chronically ill and disabled. When my health declined I had people leaving left and right because I couldn’t keep up with other teenagers. I stopped having people check on me, I stopped getting invited to stuff, stopped being included, until I just got left behind. Now as an adult I found friends who check up on me, make sure whatever we do is accessible to me, always making me feel included, they are my support system.

Check up on your chronically ill and disabled friends, keep including them in stuff even if they have to end up canceling it. Being excluded for something you have no control over is horrible and no one should go through that.

[calmmyfears]

when rest and "lazy days" stop being optional, you eventually stop enjoying it. i don't even know how to relax anymore. there's barely any relaxation in rest for me, it's all forced by a sick body.

[brandyschillace]

Today I will list the things that cause a sudden flare up of my condition:

1. Nothing.

Like for real, it’s the butterfly effect, it’s ocean currents, it’s nothing or everything—but I can tell you what it’s not. It’s not my ‘fault’ or due to some laxity of routine. Chronic conditions gonna chronic.

Have one? You don’t have to play 20 questions with yours either. Stuff happens. ❤️

[like-i-was-an-old-cardigan]

ykw. shout out to everyone who is both too disabled and not enough.

i wonder if i am disabled enough for cripplepunk, but at the end of the day, scrolling through the cripplepunk tag makes me feel better.

i am not quite disabled enough to be who a post for people who have been deemed scary or weird is for, but i do deal with those feelings. and i bite my arm because it makes me feel less like i’m dying and then i wonder if maybe they would think i am weird and scary.

i guess what this boils down to is: i feel like i am not disabled enough for disabled community. and if anyone else sees this who feels the same way, you deserve community. you deserve not to feel alone.

[ravencantwrite]

Imagine Logan with a chronically ill or the reader with some sort of a physical disability where they can't walk or has difficulty walking sometimes and he just picks you up (with your consent of course) and takes you wherever you want to at that time. Like, your knees are hurting? No worries, he'll just pick you up however you want him to- bridal style, piggyback, on his shoulders, over his shoulders, anything. And he wouldn't even hesitate. "But I'm too heavy". No stfu he will pick you up if you want to go somewhere and he just replies, "Do you think these muscles are just for show bub. I'll carry you if that's what you want".

And if you want to stay in that is fine by him too. He is just your personal human heat pad. His hands are already massaging your sore muscles before you even consider getting an actual heating pad. You need your medication but aren't sure if you have it? He already has your prescriptions memorized and stocked up. If you ever have doubts about burdening him he will ALWAYS remind you that he will always have your back, in sickness and in health. He is not one to leave you because you are sick, instead, he is going to be even more attentive towards you.

[a-totally-reasonable-username]

Just realized how crazy my flare-ups are by healthy people standards...

I'm in a flare up right now so i feel kinda crappy and I don't have a lot of energy and i've got brainfog and it's not great but it's not that bad either. While not a lot, i'm even able to walk enough to not need my wheelchair!

But after nine hours of sleep i was awake for only five hours yesterday and then fell back asleep for eight hours. When i woke up i went to the bathroom and when i got back in bed, i thought maybe i should check my pulse because it feels a little fast and i'm a bit woozy. Yeah a heart rate above 140 bpm would do that.

By my flare up standards, i am feeling amazing. Chronic illness life can be so fucking ridiculous.

[sebs-out-of-spoons]

going in for work while still recovering from my flare up, wish me luck 🫡

[matchakuracat]

listening to music and mentally preparing for the hell that is an everything shower during a flare up

[doresworld]

Best things about being disabled:

Not necessarily being in a flare up, but it’s been two weeks of things not being right and each day you lose more hope that it’ll ever be okay again

All food and drinks are making you sick, even water churns your stomach

The weather can make your writhe in pain

Not being able to do anything, watching TV is exhausting, even scrolling on your phone requires a modicum of attention

Sitting upright is painful

Lying down is painful

Keeping your eyes open is effort

Wishing you could be the old you, the healthy you

[crooked-hourglass]

Sleep Token // II

I haven't done any art this week, but I did this months ago for a @midnight-moth 's birthday, and ST are back touring again! And I still miss the old masks 🖤

{More Artwork | Socials and Prints}

[chronically-mars]

Masking chronic pain sucks.

It doesn’t mean we’re not in pain, it doesn’t mean we can do stuff just because we did it yesterday, it means we are trying not to make you uncomfortable when we’re in the most severe pain imaginable but have to put on a straight face or else we will break down completely. Masking takes up energy we don’t have so please be nice to anyone who is struggling.

To my chronic community friends, I hope you get to rest today and I hope you get more spoons to get you through the week. You are valid.