#but its not just the joint pain
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Do you have bendy ligaments or some other fresh hell?
I can't imagine how exhausting chronic pain is. Gentle hugs 💚
i sure do 😭 but ive also the "some other fresh hell" too lol, idk what exactly the cause of my chronic pain is i just know theres a lot of it :s ty for the gentle hugs tho 💚
#kcqt asks#kcqt rambles#my joints have been giving me a LOOOOT of grief lately#like. sometimes theyre worse and sometimes theyre better#rn theyre way worse#but its not just the joint pain#its also the muscle pain and the nerve pain and the GI pain and the headaches and the angina and and and#it rly is exhausting -_-#i always wonder if my cfs is its own independent thing or if it only exists bc of the pain/anxiety/depression/etc#like if i were able to get all those treated wld i STILL be tired all the time?#wld be curious to see#hopefully i get a chance to one day lol
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It is interesting how much math comes into even the most basic of like. Making things. Making almost anything. And often not numbers necessarily but proportions and geometry. I think all the time about how castles were built with geometry at the heart of it. And I use the same kind of proportional math to make socks fit. And none of my pieces are ever knit with a prime number of stitches--because you use factors to make neat colorwork and ribbing and different stitches. Idk ! I remember constantly thinking 'how the hell is THIS gonna come in useful ?' But it always does. Math is at the heart of everything, and knowing how to apply it is a tool of critical importance to Thinking Up A Shape And Making It.
#it turns out it is not covid vaccine making me highly fucked up but rather this new med which is fun#um#one of thise 'high but wow. in such a bad way' kinda experience atm#almost fell down the stairs#tripped while just standing#and its like. ok so the thing is i go to pain management to manage my pain right ? makes sense#and then all they have to offer is shit that fucks me up more. the muscle relaxant that seems to have permanently#loosened all my joints so they are WAY WORSE NOW#stupid ssris that make me fall constantly and fuck with my brain#i literally just need a painkiller that works. that is all. we know what was effective from surgery#but they of course will never prescribe opiods. oh the horror. imagine.#i could scream#anyway. uh thinking about the interconnectedness of math in all things is much more fun than screaming#knitting
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During my last therapy session, I was getting into how much being disabled has affected my mental health, and how at least soon-ish i’ll be getting a surgery that might lead to a diagnosis and treatment plan, and when I told her about the specific conditions they’re looking for, her whole face fell in empathy and sympathy for me.
She began to tell me that considering how painful those conditions were, she totally understands how stressed I’ve been.
(I then had to tell her that the surgery I’m getting won’t even address the issues at the top of my priority list, but it was nice to finally be able to get some treatment/options after about 10 years of trying to figure this out.)
It caught her so off guard, and i just kinda laughed because yeah being chronically ill and disabled is just like that!
#i love my therapist#but sometimes she doesn’t understand disabled issues and that’s ok its just a wild reminder that ablebodied people just LIVE like that#chronic pain#endometriosis#pcos#chronic illness#people forget that disabled people have a higher pain tolerance because we are in a moderate level of pain all the time#hahaha now i have an incurable autoimmune disorder due to the years of medical neglect#pcosawareness#disabled problems#autism#disabled#autoimmune disorder#ptsd#rhumetoid arthritis#joint issues#cripple punk#therapy#being disabled isn’t always hopecore actually 99% of the time its actually a miracle I haven’t keeled over yet#and it don’t stop coming#it’ll stop anyday now anyday now#chronic fatigue#chronically in pain#mobility aid#disability things#just disabled things#lgbtq+#im still being medically neglected!!!#medical neglect#disability rights
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a friendly giant tries to gently approach tiny me but they don’t know i accidentally lapsed on my antidepressants for a week and i just start biting the shit out of their hand the second its in reach like fucking shredding that thing im like a two inch bundle of knives and claws and i know a rage only held by people who realize they’re acting unmedicated but cannot restrain it. bc of the being unmedicated. get bit idiot.
#im not tagging this lmfao#im okay!! i will be okay. when i had that cvs flare a week or two ago i couldnt take my meds the whole time#and i am back on my meds!!!!!!! HOWEVER. THEY HAVENT KICKED IN YET#its so fast to detox from these bitches but it takes a month or two of taking them to feel the full effect#so like. i know ill be okay! but my brain is a bag of cats rn. idk how i used to live like this. just rawdogging life#girl the mental illness is mental illnessing#also like. my brain meds help my fibro. so ive been exhausted and my joint pains been soooo way worse#and im having weird back pain that could be the fibro or could be the kidney stones coming back!!#again i am okay and medicated and talking w my doctors. ill be fine#BUT ALSO GOTDAM. WHAT A TIME IN MY BODY RN.
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I love waking up at 2 in the morning when my muscle relaxers wear off and lying in pain while any movement causes my legs to spasm. It's really the best part of my day. /sarcastic
#its currently 4:30#i cant fall back asleep and cant get up to ask my mom for help#at least when i wasnt on this med i wouldnt wake up at 2 id just be up until 3#still fuckin annoying#chronic illness#disabled#chronic disability#chronically ill#chronic disease#chronicpain#other chronic illness bs#disablity#fibromyalgia#undiagnosed chronic illness#chronic disorder#chronic pain#chronic fatigue#nerve pain#joint pain#disabilities#disability#invisible disability#actually disabled#physically disabled#cpunk#cripple life#cripple problems#cripple punk#angry cripple
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cant stop thinking “edward little moment” whenever something bad happens to me and honestly. affirming
#only works for minor to moderate bad things but its like ‘this might as well happen’ but for insane people#just spilled absinthe all over the goddamn rug. edward little moment#ran out of my migraine meds and started having auras at work. edward little moment#walked 30 min home in subzero temps last night and having excruciating joint pain about it. edward little moment#edward little
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for @bsd-disability-week-2024
prompts: hypermobility
dazai with hEDS is something so important to me actually because before i got actual braces for my hands i literally looked like him
#hypermobility is so much more than just having bendy joints nobody ever talks about the chronic pain that comes along with it#its already past midnight here and i wanted to make it for the deadline#so ignore the fact that i colored one of his thumbs blue and the general messiness#bsd#bsd fanart#my art#ill redraw it one day
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peeled
#toontown#toontown corporate clash#toontowncorporateclash#corporateclash#corporate clash#ttcc#chip revvington#chainsaw consultant#perry draws#he's a rusty boy#someone mistakes his skelecog model for being an executive but then they go to examine and they're left perturbed#this is what skipping maintenance hour and having the maint workers only care about if you work correctly does#guy's constantly sore but the fact his skelecog is so small compared to his shell and pistons to begin with its inevitable#he used to be able to just get it fixed quickly so the pain and rusting and wearing would never get this bad#cogs inc sure is a company though. now his joints and struts are only replaced if they're falling apart
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Ok, the weirdest thing just happened, I was just sitting on the couch watching random yt vids, and I suddenly got a knock on the door. I answered it, and they said they were looking to rack up some leaves for gas money.
Now that's not necessarily weird in itself, but the weird part was they said that our neighbors across the street first and the neighbor said that a disabled woman lived here, so that's why they wanted to help here if they could. I just politely turned them away and said we had been just busy lately.
Here's the thing, the neighbors aren't entirely wrong, I am not a woman (I'm afab tho) yet I am disabled, but I only have invisible disabilities (hEDS, chronic joint pain, asthma, etc) and I don't use mobility aids (yet) and we don't really talk so I have no idea what led them to not only say there was a disabled person here but to just tell random people who showed up at their door where a disabled person lives.
I know they were probably trying to be nice and help both us and the people in need of gas, but damn that was weird as hell and kinda unsafe. Idk, maybe I'm just reading too much into it...
#weird thing just happened#just what?#disabled#invisible disabilities#heds#hypermobile ehlers danlos#hypermobile eds#hypermobile joints#joint pain#chronic joint pain#chronic pain#asthma#asthmatic#adhd#actually autistic#no#actually audhd#please don't tell random strangers where your disabled neighbors live#please#unless its an emergency don't#just don't#what just happened#huh???#why???#my brain#it huuuurts#please people#think
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In other news despite being knocked out for several hours earlier due to my pulse flipping the fuck out I've finally managed to cook and eat and shower without collapsing!!! Took me the entire day but still!!!!!
#i couldnt measure this morning given that i was complrtely immobilized#which means likely in the 130-150 range given how my head felt like my heart was crushing it from the inside#with the heartbeats being like. nightcore speed#but its gone down to about 65-75 now with only occasional minor spikes to 110#so its helped to move slowly and not do too many things with quick succession#the downside to being back to normal now is that im cold af and that makes my joint pain worse#but im managing decently atm its not extremely bad just mostly annoying#silvi talks
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does anyone want to send a few dollars to my cashapp so i can afford to get cbd or something like that for pain relief haha... 🧍
#i have been in excruciating pain this week#my leg is fucked up and has been fucked up for a long time and the pain seems to just be flaring up this week#tylenol and weed do not really help as much as i wish they would and i cant afford anything else#my doctor doesnt do anything for me about it she tells me its related to diabetes but my blood sugar has been normal for AGES#ANDDD it isnt painful like the circulation is cut off and my foot isnt even swollen#its like the ligaments and tendons and joints. all of them in my leg they just fucking hurt#and every little move i make makes like a dozen things in my leg crack and creak it hurts so bad#i can barely walk on it and i am exhausted trying to do anything physical#i am so tired lmao#sorry 4 venting
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is there a single character that Charlie slimesicle has created that doesn't have some sort of chronic pain? and/or body horror? mostly both.
#like mixed with the h#body horror#its just like there#whether its throught extensive scars#an angle constantly riping through you#having to walk around in ur decayig corpse#(or my hc tht post coming back to life again tht joint pain from rigamortis)#even little chase creep being a little bone monster#and i could go on about his minecraft#characters#and their involved of body horror and pain#charlie slimecicle#jrwi#scu#dsmp#qsmp#slimecicle#jrwi riptide#jrwi prime defenders#jrwi apotheosis
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fucked up my knee in the summer somehow and now its RAINING and my KNEE HURTS
#joint pain#honestly its not awful i just need to get used to joint pain now i GUESS#turn 17 and immediately get joint pain#im not that old man!#saymbles
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Had to leave school early again because the pain was making me nauseous, and I couldn't focus, and I was struggling to stand for more than like 30 seconds. I hate this. I missed a cool assembly because of this. I missed my favorite class because of this. I'm so tired.
#and no doctors believe me#or they just blame it on my arthritis#which has been in remission for OVER 4 YEARS#like jesus fuck its not that hard to evaluate me and figure it out#my rheumatologist wont even put fibromyalgia on my chart but keeps increased BMI on there#chronic illness#chronic disability#chronicpain#chronic disease#chronically ill#disabled#other chronic illness bs#disablity#fibromyalgia#undiagnosed chronic illness#chronic disorder#chronic fatigue#chronic pain#undiagnosed chronic pain#joint pain#physical disability#invisible disability#disability#physically disabled#cpunk#cripple life#cripple problems#crip punk#cripple punk#angry cripple
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it's 1 AM and I have a very specific bone to pick with a very specific thing I consume, enjoy and endorse wholeheartedly
here's the thing about vampire bites. they are depicted as this little unhinged and nasty but mostly sexy thing right. our guy (gender neutral) gets bitten and it's like ah! it hurts but also it hurts good ( ͡° ͜ʖ ͡°). and here im talking about like. proper vampire teeth, non of that twilight bullshit just two to four proper fangs nothing more nothing less
well clearly the person writing the sexy biting smut scene has never been bitten by a cat. I dont mean like 'ah no Scruffy bit me a little' i don't even mean 'oh no Sceuffy bit me a lot' i mean like a fully grown ass feral cat that has never been touched by human in its life and craves the taste of flesh biting thru skin muscle cartilage -even sometimes bone- whatever the fuck you got in your meat sack that tiny needle thin tooth is piercing right through it
and here's the thing. it doesn't hurt at first oh no. okay well it hurts but if doesn't hurt too much ya know what i mean. and it leaves a cute little mark nothing serious at all
but in a day that wound is gonna swell. and it's gunna. hurt like all fuck because it just directly injected about five gazillion bacteria directly into a neat little incubation pouch and then closed it right up. its gona swell its gonna ooze and throb and hurt and if that shits in your neck ur pretty much done for i mean an infection right next to the jugular is just easy mode for the bacteria
so unless your vampire boyfriend gargles with antiseptic beforehand you aint gotta worry about turning or bleeding out or developing a biting kink cus youre gonna be delirious from meningitis with a football sized phlegmone in your neck beggjng for the sweet sweet release of death thank you for coming to my ted talk please ensure your vampire boyfriend employs proper dental hygiene
#i also find the image of the morning after hilarious#no walk of shame but ambulance ride of shame to get the wound disinfected#and yea ive been bitten by a caf recently and reevaluated my stance on this issue#its been more than a week and my finger just stopped hurting#it legitimately looks like ive put it into a saw trap#i mean the cat had a right to bite me but man dod you have tk bite THROUGH the joint#i legitimately cried from pain four nights in a row there was no medication strong enough to stop the the trobbing#my finger was FULL of puss I mean f u l l#and I must add I got it properly cleaned right away antibiotics anti inflammatory drugs tbe whole package#i know what im doing alright but man i never want to experience thag again#one of the worst pains in my life and I've broken five bones and dislocated multiple joints#ive had thick ass meedles inserted directly into my knee no anaesthetic whatsoever and it don even come CLOSE#I HOPE THAT LITTLE SHIT IS HAPPY#roachrambles#vampires#tw biting
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My constant physical state lately has been like what I assume a healthy person feels doing intense exercise
Like 24/7 just so fucking tired, out of breath, heart is racing, muscles are all sore. Then some other stuff like dizziness, blacking out, and loss of balance/coordination that maybe normal people don't experience from working out unless they really over do it
Add to all of that my other symptoms like joint pain in all my fucking joints and migraines and I'm really not sure how I'm alive some days
#sorry just needed to complain about this because omg#im not exaggerating when i say its constant either#the only time the racing heart and dizziness lets up is when im laying down#but laying down makes my joint pain and often muscle pain worse ;-;#ive been sleeping so much and im still always this exhausted#its like a deep physical exhaustion that i just cant shake#and its even worse if i do any amount of physical activity#literally one of my worst triggers is just... fucking reaching above my head in any way#that shit makes my heart rate sky rocket and ill immediately feel dizzy/lightheaded#if i do it more than a few seconds ill just faint#god i miss being able to stretch normally... like just stretching my arms above my head... i miss that
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