#but im a cancer and i have a lot of feelings
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one thing abt being disabled/chronically ill that some people don’t get is that sometimes body maintenance that ensures you have the absolute minimum amount of function can also be something that takes away a lot of control and autonomy. you can argue till the cows come home that making those decisions to try and help yourself (or realistically to try to make sure things aren’t worse than they already are) is something that exhibits control and autonomy and stuff, but they can be so limiting in practice because they’re things that take up so much time but have to be done to do anything else
#i have to sleep a lot. i’m at the point where functioning requires 8 hours of sleep if not more#I should probably be getting 10+ but i’m a student and i work so 8 is the minimum. but then also getting ready for bed is a whole process s#the whole thing can take 10-12 hours depending how much im sleeping. just to make sure i can do anything#that is time in my day i cannot use for anything else. it’s not ‘oh but i can push through it’ because i can’t without spending the next da#lightheaded and nauseous and vaguely dizzy and with such intense brain fog I can’t think with my fatigue so bad i genuinely don’t know how#get myself to work a lot of days. my abled peers don’t have to deal with this at all. they have unlimited study time if they want to#and yeah it is a choice i’m making that’s true i could just not do. except i would lose my job and fail out of college because i would not#be able to get to classes or do my homework or think. but being told ‘but you are making choices about your life’ when i have lost so much#of what i used to be able to do because i am spiralling down and continuing to get worse is so.#literally last year i would wake up at 6:30 and then go to school till 3 and then go to my internship until 10 and get home at 11 and be in#bed anywhere from midnight to two in the morning and then wake up the next day and do it all again. i graduated with a 3.9 gpa and made it#into my top college while dealing with my cancer symptoms and then the two surgeries about it#but now i lose half my day to just making sure i can get out of bed. i can’t go anywhere because my body is physically too exhausted#any extra time goes into doing homework or occasionally time to myself#not decimating my health by doing minimum body care responsibilities isn’t freeing. occasionally i have a good day which is freeing but tha#usually goes into just. other things outside class or work or eating. I don’t go do something for myself or go do something fun on good day#because I still can’t. good days just mean i don’t want to lie down on the pavement when i’m going somewhere#I just. I don’t magically have control over my life because i try to get enough sleep. i lose half my day to doing that and ultimately it’s#just a bodily function that would have to happen anyway#this is a vent post im just having a really hard time right now because it feels like im in exponential decline. it was nowhere near this#bad last semester. my grades are tanking and i have no free time because anything outside of sleep is either work or school#vent tw#yall can rb this just ignore my tags completely#disability#chronically ill#i keep trying to explain to people how pots works because that’s all logical but there’s no way to explain what it’s doing to my body or ho#i feel all the time. the last time i felt this bad was when i had a bad flu or immediately after surgeries because i don’t react well to#anesthesia and always come out of them feeling like shit. and now i just feel like this all the time and it’s only getting worse#I can’t even stay up late anymore because my body feels like it isn’t counting the sleep even if I get 8 hours#I can deal if I have a free day the day after but that just leaves Friday and Saturday nights and I usually still have to do homework
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#i felt so good after talking to my therapist about the issue w my dad#and i didnt even come to any new conclusions or anything i just told her whats been on my mind what im struggling with and why im so afraid#to confront him and she validated me#which honestly was so new to me? like everytime italked about it it felt like people didnt see the seriousness and why im struggling so muc#with it#like Why are you so afraid of your dad. Why do you have such a hard time. Just do it . Just deal with it. girl i would if it was so easy#but she didnt react like this at all & she didnt ask anything that implied she might be thinking this way too. im v blessed alhamdulillah#she suggested to tell him that i want to wear the hijab through the phone for my own safety (which isnt an option personally but i#really appreciated the thought behind it)#and she also told me that i shouldnt do it if i dont feel ready yet to face him and its like. the first time ever someone told me this lol#she said i shouldnt put more weight on my shoulders because the situation will be a lot worse if i m not prepared#i do feel ready now though ive been dealing with this for months im just so so so scared. im so scared iwant to cry all the time#anyway. ive been sleeping much worse than usually and im waking up completely covered in sweat which is#so disgusting. i was worried that im sick or smth (cancer lol) but realised it started w ramadan!!! which is when i made up my mind when#i will talk to him#may Allah help me may Allah protect me#im about to cry again aaa
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Actually we r at 6 months now without any major deaths in my life, which is great! That's the longest I've gone without any major deaths since last May! The second longest was 4 months between July and November last year. Wow !
#speculation nation#negative/#i mean not exactly but also. ya kno.#really i dealt with death after death in may july november and the biggest in february#actually i think my great grandma died within the span between july and november. but i wasnt close with her & dont remember when#so idk if id count that. if i did then the longest would be 3 months. between november and february.#all this is to say. wow what a Fucking year last year was huh#i still dont rly feel like i have much trust in people staying alive in my life.#but maybe im a bit less scared of even more people in my life suddenly dropping dead.#... then again now i apparently have something wrong with my liver. which i am still not happy about.#the only reason why im not dying of anxiety is bc i still feel relatively normal overall.#but i also just remembered how. well. 28 has Long been my unlucky number. and im turning 28 next year.#so ive been half convinced im just gonna die when im 28. bc thatd be just my luck wouldnt it#and like overall theres no real reason why i Would die at that age. but now theres something wrong with my liver.#and like ok i dont think it's liver failure. i dont have any real symptoms for it#and if it was an emergency my doctor wouldve told me to go to the hospital. probably.#but idk. my truest anxiety about it is that it could be something cancerous. or something.#and really i have no reason to suspect that specifically. it's just one of the potential causes for the enzyme abnormality we found#but bc it's not entirely off the table. well now my mind has latched onto it. and is like 'What If'#and ok i just now looked into possible liver diseases to try to calm my anxiety. with mixed success.#bc i found all sorts of liver diseases. including cirrhosis. which is irreversible damage.#im just clinging to the hope of the fact that my readings werent Too high... just.#every single one associated with the liver was high. which means theres Definitely something wrong with my liver.#and im kind of scared it's bc of my prior alcohol use. i wasnt an alcoholic but i did drink pretty regularly for a bit.#but also how unfair would it be for me to get a liver disease from that??? the most i ever drank at one time was 8 shots#which is a lot but there are some people doing that kind of thing Regularly. and they dont get liver disease???#regardless this has been extra persuasion to stay off the alcohol. especially until i know what's up with it.#heyyyy mr liver inside me i prommy i will take good care of u from now on. pls dont die on me 😭😭😭#see ok this is what happens whem i start to think. i get anxious. i just need to keep not thinking.#it's 10 pm i think thats a good time for sleepies
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maybe a bit tmi but. I need to Scream.
#i almost dont know whats worse#if this just random bleeding or if it IS my period#but. period doesnt make much sense because i have had my tablets every day. i shouldnt be getting it.#random bleeding... is kinda scary. given all the weird discharge ive been having lately. and the. everything else going on in my body.#the chest pain. the back pain. the weird skin on my fingers.#...did misako know i needed comfort. she just walekd up to me and headbutted me. baby.#but like.#this is either a bunch of coincidences.#or there is something Wrong.#and its freaking terrifying because#my mum was only about 3 years older than me when she got diagnosed with leukaemia.#and. there is a LOT. of cancer. in my family.#so i kind of feel like im bound to get it too at some point#and. what if this is it.#i know my doctor said if the chest pain was from cancer it would be worse by now but.#that doesnt mean NOTHING is wrong#and now#this#i hate periods but i kind of hope its just that#even if it means the next few days will be hell#...actually. getting a period is kinda odd too. because. im on the pill. which stops it.#and ive taken it every day. the pharmacy only gives me the active ones.#i think i may have had it a bit late the other day or yesterday? maybe?#please let that be it . please.#ignore me#vent#period mention#YAY now i have to try and sleep with THIS on my mind !! :)))))#save me mark bob and wade playlist. save me.
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#need to rant about a few dark things#i know my condition is progressive and it’s gonna get worse and worse and i can see myself getting worse but at the same time it takes so#long sometimes i wish it would hurry up and kill me already lol why couldnt i have a normal disease like cancer or something#sometimes i feel like im in an out of body experience watchingmy body slowly die#i would never kill myself but sometimes i wish i could be run over by a bus or something because this is so annoying#and i wish i could be one of those happy disabled people with lots of friends but noooo i have to be traumatized and mentally ill on top of#that too#i am. such a nice person i dont get why i am in this situation#i really don’t wanna move back to italy if i get worse my grandma is just gonna have to die so my mom can move here#:(#one of those days where everything feels so heavy#i get why no one stays for me this is too much to handle even for me
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#i feel like something is definitely wrong with me#constant nausea and the shakes and i have no idea if im just not adjusting to the heat well here#or if theres like a bigger than im aware of hormone imbalance problem going on#germany set me up with proper insurance so i can see healthcare providers challenge#i have expat insurance rn and its the woooorst i have to pay out of pocket and then get reimbursed (still waiting to be reimbursed for#that cancer screening btw)#and they wont cover a lot of shit#and no one understands what the fuck kind of insurance i have bc its not the insurance everyone else has shdhjsjajajaaj#and trying to explain insurance in german is so fucking hard and overwhelming that i cancelled my follow up apt#been raw dogging life no medication no antidepressants no hormones for my endocrine issues no regular checkups no NOTHING for 5+ years now#SO WHATS ANOTHER COUPLE OF MONTHS REALLY
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im so fucking tired of going to the doctors. i cant keep up. every week its a new test or a new lab or a new specialist. i'm just exhausted. i have to go in for blood work AGAIN- this is the fourth time since april. its expensive, and time consuming, and honestly? im tired. im just tired. all the fucking time im tired of the lack of answers, and the phone calls in the middle of the day, and crying at work in front of my students, and opening my email to new lab results every other day. IM TIRED OF IT!!! im not even afraid of hospitals or needles i never have been, even as a kid, but i couldnt stop crying last time i got bloodwork. ive never been upset by bloodwork before what the fuck. last week i had an ultrasound of my liver and i got a call in the middle of the work day today that i need to get a BONE SCAN?? are you kidding me?? im scared. and im tired. and im angry. and i dont want to do any of this. i just want to cry and isolate myself and go to bed and not see anyone ever but i cant fucking do that because i have to go get injected with radioactive contrast material and wait four hours so they can see what is wrong with my bone enzymes.
#i think the worst of it is i can FEEL myself being a bad teacher#and i can FEEL myself being less patient with my students#and yelling more#and crying at work every day#its not fair to them and i should go back on medical leave but i need to get paid.#i dont qualify for FMLA as a teacher#i can also feel myself being a worse friend#and just being emotionally so heavy to be arround#or#isolating entirely#and not texting back or talking to people i love#because what do you even say to someone you love a lot who wants to comfort you#but who you dont want comfort from at the moment#like#im scared#and there arent any answers#and maybe something is wrong and maybe something isnt wrong and maybe its all in my head and maybe its bone cancer#its not cancer lol#like there is no evidence of that im just being dramatic and frealing out about the worst case scenario#its probably my thyroid or my vit d or malnutrition or a fracture we didnt know about or something else#but it doesnt make me feel any better to be rational#and im hurting my friends and my students and myself by being as anxious as i am all the time#but like what choice do i have i feel hysterical#but also they wouldnt be ordering blood tests and ultrasounds and bone scans and x rays and heart monitors and tilt table tests and neuro#if they thought it was all in my head... right? like my lab work SHOWS that there is a problem..but i still feel like im crazy
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me and my manager: *randomly just start trauma dumping about our parents dying horribly from cancer*
the new manager: 😳
#it was a real Moment#today was cool tho#thought i was closing w bestie manager but they switched it up so the new guy can learn our store#but also i had a lot of fun convos w my coworkers#idk sometimes chit chatting doesnt feel possible when things get too crazy so i relish when im able to have proper conversations#cancer cw#death cw
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i never remember to explain shit anymore i just vaguepost and expect people to catch up but i finally have good news, we've made a lot of progress with my parents' estate (they both ran their own businesses and you know those images of nightmare cable management? well imagine that with bank accounts) and i actually have money now - im taking a trip to Aotearoa NZ with my mate Jules next week (dark sky reserve! lotr filming locations! snow! FOOD!) and then in august i will be moving to nyc to pursue a 2 year masters degree in library science with a focus on rare materials archival studies!! shits happening in my life!! im not just sitting in my house doing nothing all day!! and like i said i have money!! if you're taking commissions lmk bc while im focused on my getaway for the next few weeks i wanna support my friends and their art and when i get back i wanna throw u cash to draw my ocs!!
#fred says a thing#personal#i havent slept (its 8am) but not for sad reasons! i was reading a good book and then i just had a lot of thoughts!#invariably i will be sad again - probably soon! i will definitely see stuff on my trip that i will want to show my parents and have to#experience the strange nature of grief-for-what-never-was several times over during otherwise great moments#- but i will also be happy in the future too!#my therapist says i definitely have ptsd! im learning more about emotional flashbacks and how to manage them!#im a human being and i will continue to be one for the rest of my life!#i hope thats a long time!#but even if that isnt something my genetics allows i was happy now! and people were happy to have me in the world!#im realising that sounds rather alarming but i just have a lot of fears about my genetics considering. you know. the cancer orphaning.#im trying to manage both my health fears and my health itself in a reasonable way! i made a chicken tomato pasta sauce last night#just from ingredients i had lying around and it was pretty good!#i have a ripe tomato i picked from the garden yesterday that today i will fry up with bacon and put on some toast i think#there are so many books i want to read#there are so many books i want to write#in a few days i will be experiencing snow (a rarity for me) and i will probably be handling the cold very poorly and i will feel excited#and uncomfortable at the same time#and for much of my life i will experience a lot of contradictory things at the same tiem#and i will experience times of great boredom and inaction! we all have to stand in queues and wait for buses and go to the dentist#and wonder what might have been#but i will experience them. i will.
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visiting my mother. idk what i expected lol
#everyone is fucking dying from cancer now#(except for the one who should be lol my grandma's cancer is benign turns out.#worst person ever award goes to me as always but if someone should die it should be her. there. i said it.#they never should have tried to save her from that stroke)#anyway it's unfair af and my mom doesn't deserve this but again. im the worst person ever but i cant fucking deal with this#i cannot be someone's emotional support. least of all hers. when im in this mental state myself.#obv i should never ever have children. but if i do. id rather fucking kms than cry in front of them. never ever ever ever.#call me a heartless bitch ig but at this point i think ive really stopped caring#i wish this wasnt happening to us i wish i were never born or at the very least i wish i had any siblings#with whom i could share the responsibility. but i dont. im fucking alone man. completely and utterly alone in this.#its all on me and im not up to the task and i hate that its asked of me in the first place.#spoiled ungrateful little brat alert but i just cant. cant bring myself to do this cant bring myself to truly care i genuinely feel nothing#i cant bring myself to stop being selfish in this. who tf knows maybe i do have npd it would explain a lot lol
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i was talking to my mum and i was like “yea i’m really struggling to connect to my peers and even some of my friends” and she was like “well you have kinda been through the wringer and had to mature super fast in a way that you can’t relate to them about” and. yeah.
#she was like ‘ur dad died and you had to get your thyroid out bc of cancer all in the last three years’#ive had ppl be like ‘yea im going home to see my parents and my grandparents are in town and we’re having a family reunion’#my immediate family is my mum and sibling bc everyone else has died lmao#my extended family is a bit bigger there are 7 people there#a lot of them are also just getting their first tastes of independence whereas ive been p independent the last few years so this isn’t too#much of a change outside of just not living at home. which i was barely there by the end of highschool bc of internships n stuff so#but yeah. turns out planning your dad’s funeral at 16 and then two years later going through surgeries to remove your cancerous thyroid does#kinda make you feel disconnected from most of your peers#i do like how my life is going i just also really struggle to make friends n such and usually#feel really disconnected from them and don’t always know how to relate#vent tw#cancer tw#death tw#just in case
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i feel sad today -_-
#i think cuz cancer fucked up a lot of aspects of my physical health#and i feel like i should be happy#but all i can think of is how often i get sick and being allergic to things that used to make me happy cuz of my immune system#and having covid ravage my body last fall#and how much discomfort i was in and how now i dont notice when im in pain because everything else pales#and how i can only exercise in fits and starts because all the complications make it virtually impossible to maintain long term#and how psychically horrible it was having to drive there every day for 6 weeks#and be so itchy and feel so disgusting and ruin a bunch of my clothes#and have to throw out every comfortable piece of clothing in my closet because i couldnt look at them anymore#after wearing them every day for the entire radiation and then MONTHS after because i didnt recover like i should have#its all making me feel raw and sensitive and angry#and so everyone and everything is making feel frustrated and hurt#its great!#kiwis cancer diaries
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the weird thing about when someone dies is that they're never truly dead in my head. when i think about my grandpa, my grandma, my uncle, i dont think of them as dead. i think of them as just... gone for a while. some longer than others. i think about my cat sammy and my cat cassy and i feel like i could still look over and see them there beside me. i can see the way sammy would always cuddle right up to me and lay his head on my shoulder. i can see the way cassy would swivel his head at me when he wanted pets.
they're all dead. they're all gone. but i feel like i could see them again, just like old times. all i need to do is give them a call.
#speculation nation#death/#animal death ment/#negative/#i suppose. im not feeling bad exactly. just contemplating the psychological disparity.#even with my cats. i was there when they were put down. i saw them dead. i kissed their cold little heads.#i think about my uncle. how he came into my work unexpectedly a year or two ago. how delighted i was to see a familiar face.#i think of my grandma. the phone calls we would have. how supportive she was of me and my sexuality.#i think of my grandpa. his eccentricities. the way he rambled on and on about history or his own experiences#they are all alive in my mind. but years pass and theyre just Gone. absent from my life. little warning and little preparation.#i knew my grandpa was dying. my grandma was a very unpleasant surprise.#i knew my uncle was dying. but there were only six weeks between the cancer diagnosis and his death. hardly any time at all.#i knew sammy's time was running out. he was 14 years old. he was getting so skinny. and then he was gone.#cassy was a surprise. one week he was his normal attitude filled self. the next week he was dead. not even 2 years old.#for a lot of my life i hadn't known death. not really. i'd never closely known anyone who had died.#but i know now. and the odd thing is that Yes it hurts. but more often it's just strange.#someone can be in your life one day and out the next. and there's no true way to predict it.#hug your loved ones a little closer. i know i have been lately.
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im going to make art about this
#The Spinal Saga#(except the late stage cancer is no longer merely probable)#idk when - i have all moms paints and canvases#but i have to figure out what im doing i need to rough out some sketches and shit#im feeling a lot of roses brambles thorns energy rn yall might have noticed#bc this thing has been growing through me from the inside im feeling like#trails of bramble and vine and here and there a little prickling thorn#but the blooms are in my left tit and this now removed vertebra and theyre poison#big flush full blown blood dark poison rose blossom crushing my vertebra from the inside out#the brambles and the thorns can be treated with herbicide but the blossoms have to be deadheaded#so the art is either me waist up from the back with brambles poking out from under my skin#a pair of shears in my hand and two beautiful dripping bloody full blown roses having been chopped off#or the same thing but instead of a human me its a wolf partially made of brambles#looking at the viewer with one of the blossoms lying on on the ground and the other in her teeth
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Reaper Nurse Christmas Prompt Countdown | Day 4: Movies
This one is unclear on the reader's relationship to the nurses and can be interpreted however you'd like. As Christmas is a time for family, I'll be writing some with a child, girlfriend/wife/fiancée, etc. reader. It's also in dot points because this one is headcanons, not an entire fic. Also because this is a headcanon one, it's exempt from having to use periods at the ends of the headcanons because fuck social and fanfic norms
• home alone home alone home alone home alone home alone home alone home alone home alone home alone home alone home alone home alone home alone home alone home alone home alone home-
• It's just a tradition at this point
• You always cover your eyes and ask one of the nurses to cover your ears when Marv steps on the nail
• There is no Christmas at the hospital without Home Alone
• The second one is optional but recommended, the first one is a necessity
• You watch them in the Therapy Centre, projecting it on one of the walls and using speakers so Matron can watch too
• The nurses always bring 4 or 5 different flavours of popcorn (this year, plain salted, sweet and salty, buttery, caramel and cheddar)
• They just can't keep up with which flavour is your favourite
• They always have a mix of plain salted and caramel popcorn in the red-striped cardboard containers, every now and then you'll find a wrapped hard butterscotch candy in there, and there's always a candy cane at the top
• Hot chocolate hot chocolate hot chocolate-
• Caroline has 100% tried to snort the hot chocolate powder in the past to be funny, and had to leave, coughing, sputtering, and with her bleeding nose staining her bag
• It dampened your mood for a little while, but the Matron and the remaining nurses were able to cheer you up
• You'd forgotten about it the second they unpaused the movie
• It's a funny story now and sometimes you tell it to the guests (who think it's hilarious) if Caroline pranks you or if you're just feeling like being an asshole
• Warm fuzzy blankets. They smell fresh and clean, slightly floral, even, as if just out of the wash. It's a very comforting smell. They also feel like they've just been taken out of the dryer, warm and fuzzy as a Pomeranian and as soft as butterfly silk
• The whole place smells like salted butter and hot chocolate
• Matron has a bowl on her desk, every now and then you stand up, pick things from the designated "snack table", gesture for her to hold the bowl down to your level and put them in the bowl. You have to make 2-3 more trips back and forth from the table to give her a decent amount of snacks because of the size difference
• She got the bowl because you kept doing this every time you guys watched movies. She used to have her own bag of snacks but you kept forgetting about it, also you wanted to involve her in the food and fun bc she loves you too, not just the nurses
• Want to make her really happy? Bring her chocolate-covered pretzels
• If you do she'll pick you up (carefully) and hug you to her chest for a few moments, before popping you back down so you can go back to your bean bag
• I didn't already mention the bean bags? Fuck you yes I di-
• Some of you sit on bean bags. Yours is white faux fur and very cosy. It's also very big so you can have a proper nap in it, not just sit on it
• Caroline (excepting the time of The Hot Chocolate Incident™️, in which she just wasn't present) sits on a rocking stool because she's too hyper to sit still.
• Most of the nurses sit on two couches, however. One is a navy-but-not-too-navy blue that's starting to fade after all the years of the Home Alone tradition. The other is a college plastic beer pong cup red.
Imagine it like this:
stfu drawing on microsoft word with a trackpad is hard
• You'll watch movies from 7pm until 5am, when everyone is too tired to get up to change the disc or pick up the remote
• The only non-Christmas Matron will allow on Christmas Movie Night are the Austin Powers movies. They're too funny to not watch
• You and Caroline quote them all the time, even in front of Malak
• i can see this going two ways:
1, Malak doesn't understand them and just ignores the references, or gets pissed off that you're interrupting him if you're in a meeting.
2, Someone's showed it to him
and it can only be you, Caroline, Lucky or Mama Bear (everyone else is too pussy) (also Mama Bear definitely watches Austin Powers after her babies go to sleep)
in which, he'll either finish the quote, chuckle at it, or get pissed off, if you're in a meeting or if Agatha is nearby. (Obviously, if the quote is inappropriate regardless of whether or not you get it, he'll get angry if you say it near Agatha, but if it's not, he'll just brush it off as a reference he doesn't get)
• Everyone sleeps in the next day
• It fucks up your sleep schedule so badly it's only back to normal by the next movie night.
#dont do what caroline did folks#it increases your chances for lung cancer by like#a lot#dark deception#reaper nurses#reaper nurse#torment therapy#headcanon#x reader#christmas#xmas#daily prompt#i have pomeranians and they really do feel like fuzzy blankets#they certainly dont smell clean though#their paws smell like popcorn sometimes though#which is ok#its a normal smell because of normal bacteria in their feet#just kissed her#she does indeed smell like popcorn right now#reading over this im dumb#should've included another warning#obviously snorting powder can cause choking and suffocation#not just lung cancer#dont do it
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#I don't talk about it much except around the holidays when im complaining about Christmas sldjsk#but im religious :)) and ive just been. lowkey Dealing With Something#some people. have been kinda. questioning.... my level of.... dedication?? ig#bc my mental health problems hold me back from Doing As Much as other people#and... ive heard a lot in the last few months.... to pray about it :) and god will give me strength :)#and... idk... i do pray about it!! and god does give me strength!! but my strength looks different from other people's#and i just think... idk... we don't tell people with cancer to pray about it :) and god will give you the strength to get rid of the cancer#we dont tell paralyzed people to pray about it :) and god will give you the strength to walk again :)#ya know??? like we dont expect god to FIX illnesses to make our lives easier#so why am i being told to pray about MY illnesses and then they wont be as bad#.......ya know#and i do!!!!! pray about it!!!!!!!! so sorry that im so debilitatingly depressed that doing my best looks lazy to yall#idk probably gonna delete this skdnskd#i dont talk about it much on here for reasons :) im not hiding it by any means#its just not smth i feel needs to be shared all the time on this particular platform#where i exist to be a fangirl skdhksbdjs
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