#all cf me

[freshcir]

@all-cf-me - utp

She loved being able to talk to spirits, that having been how she had gotten this far in life in the first place. But there were times where she really wished she had a mute button, and right now was one of those times. "For the last time I really need you to be quiet," she snapped as she looked up, only to be greeted by someone who was not the spirit that had been annoying her. "Oh my god I am so sorry - I was -" a bright blush grew on her cheeks, "that was not directed at you, I swear"

[hellyeahsickaf]

I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)

It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:

How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.

Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."

How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills

How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud

Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides

Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance

Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!

There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.

Please boost!

[oftheunbroken]

I'm sorry. The words repeat over in her head, a cacophony of sound.

I'm sorry we're doing everything we can.

I'm sorry there is nothing more we can do but keep him comfortable.

I'm sorry for your loss.

I'm sorry. I'm sorry. I'm sorry.

The memories are rushing back. Overtaking her senses. Those two simple words unleashing the floodgates. And a scream of grief tears from her throat. Tyee can handle the loss of her people. She can mourn the loss of her partner. It is her son that she cannot let go of. Frantically her eyes search the walls for his name. For a reminder that he was once alive. But there isn't one. Only a blank space under her and her partner's name where his would have gone. She has forgotten that there is someone nearby to witness her meltdown. Crawling undignified on her hands and knee's as she spies a pile of small skins in the corner. Shaking hands hold them to her face, inhaling the scent of her people. Of their children. Of her child.

But they are just things. They do not matter. Her rage turns inward. If she had been her son would still be alive. The anger from within burns at her until suddenly the skins in her hands are too. With shock Tyee chucks them from herself and into the middle of the pit that was used to contain the community fire. She laughs bitterly as she watches them burn, tear stained eyes not looking up at Dodge as she mutters, "There's your fire."

Dodge listens to her explain the names on the walls, but instead of reading them as she speaks, he watches her face: her wistful expression describes more than her words ever could, dark eyes squinting imperceptibly with the threat of tears, the sad way her mouth twitches up into a smile like she's watching an old memory play. The next time he looks at the names carved into the wall he's silent with reverence, though he's sure he's understanding very little of the true loss she's experienced.

In the end, he can really only say one thing: "I'm sorry." And he means it, though they're far from a positive rapport after their argument. Dodge lifts a hand, considering giving Tyee a gentle touch on her shoulder in an attempt to comfort, but he decides it's a bad idea and lowers it again. He's just no good at consoling.

He's silently thankful when she leaves the wall and changes the subject: the matter of survival is one he can handle, much more so than grief and loss. Dodge crouches to pick up a can of vegetables, turning it in his hand. "Did your people leave something for a fire?" he asks her in genuine curiosity: he can start a fire, but maybe she has an answer for that too.

[chronically3mpty]

Just saw a vid of a woman saying how being chronically ill means slowly going insane but being forced to pretend you’re not and I feel that pretty hard.

Anyone that goes to war with their body and will never be the same emotionally, I see you and you’re not alone 💕

[mollywog]

Not Katniss using the word delicious to describe a feeling connected to Peeta right after comparing her need to kiss him to hunger

[mrs-snape5984]

“There is a light and it never goes out…”

“Take me out tonight. Oh, take me anywhere, I don't care, I don’t care, I don’t care…” (“There’s a light that never goes out” by The Smiths)

Overstimulation. Disorientation. Light sensitivity. Chronic pain. Fatigue. These are only a few of those symptoms, which are torturing me day in and day out for the past two years, already. Due to them, caused by a disease, that is called “Myalgic encephalomyelitis/chronic fatigue syndrome” (ME/CFS), I’m currently forced to live a life within the strict confines of my dark and silent room, mostly enduring my daily existence in solitude.

I miss being a part of this world….and fuck, I miss being a part of other people’s lives! Living like this makes me feel like an old piece of furniture, which has been stored away in a hidden chamber…not worthy enough to be used or seen by anyone, and yet still not bad enough to be discarded.

Some months ago, two wonderful people started taking me out to see their worlds by sending me pictures and videos of the places, they’re heading to. Thanks to them, I’m allowed to get a glimpse of places, I’ve always dreamed of being able to explore them on my own.

Furthermore, something else became apparent whenever one of these precious gems of human nature took me with them: I wasn’t just carried around in their phones, but they carried me in their hearts. This realisation blew my mind! It’s not only me, who’s clinging to them as if they’re my lifelines…no, this little German mess, that I am, became important to these people, too! Words can’t express how grateful I am for our connections…and that I was also lucky enough to find true love in this bond (I love you, R. 🖤).

One of those amazing people is my beloved sister in Christ @vulnus-sanare, who will soon come to visit me in my small world. Finally, I’ll be the one, who can show her the beauty of the tiniest things in my environment…always surrounded by the securing gloominess of the nights. Magda, my heart, I’m going to introduce you to the stars above my town, to the soothing sounds of the Moselle River right next to my house and I hope, we will manage to experience the mesmerising dance of the bats in the vineyards, if we take my wheelchair with us. I can’t wait to have you here and pull you into the tightest of all embraces, sweetie!

I’ve commissioned my dear friend @snake-queen7 to create this breathtaking piece of art of Severus and my undeniably self-inserted OC Jules on a nocturnal walk through the vineyards behind my house. Before I caught ME/CFS, I used to enjoy these nightly strolls in order to watch the bats with my children, so I sent her a photo of the exact spot, I want to share with Magda. Since it was Severus and Snapedom, which brought us together, it’s only fair to bring our beloved dungeon bat to this special place as well.

My friend, I’m more than happy with the outcome of your artwork and it’s a pleasure to share it with all those lovely people of our Snapedom. Please take my apologies for taking so long to write this post, but I wanted to honour your work the way, it deserves to be honoured. For this reason, I had to wait patiently for a moment, when my brain wouldn’t refuse me to do its job (brain fog is such a pain in the ass!). Thank you for everything, Natalia! 🥹

🖤Severus & Julia🖤

🖤Sevy & Jules🖤

[liminalweirdo]

link

[muriers]

@mcyt-femslash - Week 4: Snow/Cultivation

So I know the "cultivation" part of this prompt meant like, plant cultivation, but I'm taking any excuse to draw wuxia au gempearl

[rachymarie]

Wdym bathing is not more involved?

Is showering not a feckin gargantuan unappealing task for everyone? It's so flippin daunting on the best of days

Granted i feel kinda on top of the universe once stepping out all squeaky clean

[freshcir]

@all-cf-me - utp

"He doesn't understand," he said as he got in between the fight, recognizing one of his students as he turned to him and signed for him to apologize and leave. The student did that and slowly began to walk away, turning their head every now and then to make sure they weren't being followed. "Jesus Christ," he huffed as he looked at the other, "couldn't you tell they didn't understand what you were saying?"

[vampiresblog]

casting a spell to combat the fatigue today. I will have energy to do the things I need to do. I will have energy to make it to the kitchen to microwave a meal. I will have energy to call for help if I need it. I will have energy to pick up my cane. I will have energy to feed my cat tonight. I will have energy to take my meds .

[oftheunbroken]

She is content to continue to wallow in her self loathing. Letting the thump of the bass from whatever song the DJ played become the beat of her heart. It enabled her to close off the feelings. The pain, guilt, and longing that created a never ending tsunami deep within. It is with mild surprise that she notices the tongue out of the corner of her eye, attention turning to watch as the man is drug away. Tyee wants to chastise the barman. Her own suffering wasn't worth inflicting more onto another. And yet she stayed silent, letting the barest hints of a smile flicker across her face. In a weird way it was one of the nicest things someone had done for her recently, to attempt to get her to laugh. But laughter still rested somewhere far beneath all the other emotions, hidden away by grief.

When the new beer is placed in front of her Tyee allows her eyes to meet his. For just a moment the pain there is visible in tawny depths before she chokes it back down with a forced nod of her head. "Thanks."

With that she returns her attention to forgetting. One beer following another until she can no longer feel anything. Not even the floor beneath her as she attempted to stand when last call is shouted. It's a struggle but finally she makes it and slumps against the wall outside. Content to let the rest of the night pass just like that.

Perhaps mercifully, Seth grants Tyee a long moment of silence, simply taking his time to rinse and dry the fluted cocktail glass. Long-time frequenters of the Lady know Seth as a presence as persistent as he is inevitable and have come to appreciate his hungry charm, but sometimes he forgets that it's not all about pleasure... the Bearded Lady sees more than her fair share of pain, too.

He's probably the furthest thing from a therapist in the entirety of Sol City and doesn't know any good advice to offer, but Seth knows what would make him feel better at a time like this. He gives his security team the slightest nod and suddenly one of their mouths falls open, a prehensile tongue shooting from it to wrap its slimy length around the ankle of Tyee's cowardly suitor. Before the man knows what's happening he's dragged off of his stool and zipped away down a dark hallway, gone without a trace. If someone sees, no one questions: he's a regular, sure, but getting late with his payments to the Syndicate, and if it can possibly repair his rapport with the Wastelander, it's worth getting two birds stoned at once.

"I'll leave you to it, then," Seth finally confirms after the business is done, giving her a fresh beer and a wink.

[hellyeahsickaf]

Restless leg syndrome is stupid man I'm trying to sleep not boogie down fuck you

[mostofthingsmostofthetime]

Hey, so I know it's been a long time, but I suddenly felt inspired to make some Annie Cresta Picrews. So here you go & I hope you like her as much as I do.

Pre games

Parade outfit

1st Interview

Training

Games

Victory interview

District 13

Post war

[mrs-snape5984]

“There is no other love, it's only yours…”

“You're all I want, all I love…” (“You’re all I want” by Cigarettes after Sex)

Yesterday I had a really rough day. It didn’t just feel like one of my regular “PEM-Crash-Days” (PEM = post-exertional malaise = the worsening of symptoms after crossing the boundaries of my condition, due to my disease ME/CFS). The whole day was also coated in a thick layer of sadness and grief…an emotional turmoil, which I could only barely endure. Well…mixing these feelings with another wave of fever and pain, seasoned with the incapacity of tolerating screen time, adding the suffocating sensation of loneliness….et voilà! The perfect recipe for a day in hell was created! 🙄

In order to cope with my emotions, I found myself drowning in my fantasies of teenage Severus and my undeniably self-inserted OC Jules…rewriting one of their short fictional scenes. Again, Severus was tormented by his own insecurities, getting carried away in self-loathing. I don’t know, how many times I’ve already written scenes like these. Jules encourages Severus to stay resilient, praising him for all those traits, which he only identifies as his flaws and weaknesses. But for Jules, there’s so much beauty, so much strength in his imperfections. She’s making his blemishes look like the most loveable attributes of Severus’ personality with her passionate speech.

When I wrote this little scene, I recognised something: I already knew, that I’m identifying myself a lot with Severus…but Jules’ words of encouragement and consolation to her beloved friend Sevy…well, they’re are also things, I would crave to hear for myself (how pathetic, huh?!). But since I’m struggling immensely with the acceptance of my own insecurities and fears, I’m not able to reassure myself of my own worth. It’s just not on the table for me!

So…I’ll just keep on telling Severus in my stories, that he deserves nothing less than the whole world…and that Jules will always try to make him feel loved and cared for. She will never stop to compare his flaws with her own weaknesses by explaining to him, how perfectly they’re matching. Jules will never grow tired to assure Severus, that his cynicism is the perfect complement to her sense of sarcasm. For the Slytherin girl, it's a clear sign for Sevy’s extremely high intellect, which is also something, that she adores about her friend. In Jules’ eyes, his bitterness mirrors a form of hypersensitivity, a characteristic, which she knows so well from herself. That’s why she’s acting so empathetically with Severus, whenever he’s suffering with his life…and Jules is convinced, that sharing those feelings will make them less unbearable! The girl even praises Severus’ stubbornness by telling him, that she’s enjoying every good and intelligent argument with him to clear the air between them. All together, Severus’ imperfections are pure perfection to the hopelessly devoted (and obviously love-struck 😅) girl.

I’m aware of the overdramatic nature and the unnecessary fluffiness of my short stories, but that’s the reason, why I’m writing them for my eyes only. It’s my form of a coping mechanism…the only way of allowing myself some kind of self-assurance and comfort…through Severus!

Some time ago, I found an artist here on tumblr, who made me fall head over heels for her tender style of drawing my beloved dungeon bat. Especially an artwork of her interpretation of the younger Snape made my heart ache with longing for him, so of course, I just had to commission @pssherri for an illustration of Severus and my OC Jules in their teenage years.

Sonja, you did an amazing job with this project and I can’t express, how grateful I am for your kindness and the dedication to your profession! It was a pleasure to cooperate with you on this idea of mine and I hope, you’ll be open to work on more of my requests some day. Thank you for everything, my dear!

🖤Severus & Julia🖤

🖤Sevy & Jules🖤

[saturngalore]

are people assuming those that are against inzoi….are defending for ea???? girl fuck ea this is about ai 😭 like if paralives and sims 5 also came with ai, i will be shitting on them like wtf?