#Excessive Daytime Sleepiness

[sleepy-ace-dragon]

What you don't think about with narcolepsy is how much time is lost. I'm going to have a shorter life than other people, even if I live to the same age.

I sleep on average 12 hours a day. Let's say the average person sleeps 8 hours a day. 4 hour difference. Over a year, I've slept through 1,460 hours that a normal person hasn't. That's about 60 days, TWO MONTHS of my life that I lose EVERY YEAR. And not just two months of normal person time, that's two months of entirely awake time. Which means it's like three months of normal person days (awake 16 hours).

I barely have time for anything, even taking care of myself like eating or showering, outside of my full-time job. So much of my life gone. And it's not like I ever wake up rested and able to use my 12 hours awake to the fullest.

I've slept through so much of my life already and I'm only 25. This is, of course, just one of the many difficulties of living with narcolepsy, but I don't see people talking about it.

[rachymarie]

Wdym bathing is not more involved?

Is showering not a feckin gargantuan unappealing task for everyone? It's so flippin daunting on the best of days

Granted i feel kinda on top of the universe once stepping out all squeaky clean

[starlight-nocte]

when i think of sleeping,

i think of dying.

i think of oblivion,

of drowning in the Nile

after baking brown in the 

desert sun…

when i think of sleeping,

i am afraid

because sleep has been 

such a part of me,

has taken too much–

more than its due.

i have lost centuries to this thing,

this disease of

shut-eyed nothingness. 

in truth,

i don’t think it’s possible to be 

safe from sleep.

because this kind of sleep

sticks to your bones,

mouths at the ridges of your throat.

this kind of sleep

eats you alive.

 - Safe From Sleep, after Iman Mersal

[arcane-clown]

Why is getting ready in the morning so difficult does anyone know anything about excessive daytime sleepiness / narcolepsy and have like tips and tricks for forcing the body to move when it literally cant but ive got stuff to do like literally just walk down the hall to go to the bathroom (and like i have more than just that to do but mornings suck so much)

[affectionatepanda]

We're finally starting to look into my sleep issues. I'm waiting for my local hospital to have an oximeter available so we can see how my oxygen levels are while I sleep. If that has any weird results the next move will be a sleep study. Woooo progress (I'm so tired of tests)

[varian-ross-horror-author]

It wasn't until I got assigned daily exercises that I learned that I do, in fact, experience PEM.

Thanks physical therapist, also fuck you (affectionate.)

I talked about fatigue/PEM with him, and he immediately flipped to "no I am not giving you any more exercises to do, you need to talk with your doctor about this."

As in, we're not meeting up again until I get an answer of if the current diagnosis "excessive daytime sleepiness" is what's actually going on, or do I have "mild" ME/CFS?

He asked how I did with things like grocery shopping, and I bitterly laughed in the poor guy's face.

I then explained that a big shopping trip is An Event, and basically wipes me out for the entire day.

Dude thought I was *oly* almost blind when he met me, now he knows just how much of A Mess I am. I'm multiple disabilities in a trench coat masquerading as a horror writer.

[eleftherian]

Idiopathic Hypersomnia word web? Idk my dudes

[d3lusi0nal-d33r]

been so so tired lately. i wake up, scroll for a few hours, nap and repeat. very exhausting. hoping to get sleep study done soon :D

[2amrainbow]

Hi everyone.

As many of you may have noticed, it's been really hard for me to post for the past couple months.

Unfortunately I'm dealing with a bunch of health issues, mainly revolving around me sleeping. I am pursuing a diagnosis for narcolepsy.

I sleep way too much, sometimes up to 15 hours a day. I have trouble focusing, staying awake, or even just standing for long periods of times. It's really frustrating and it honestly makes me so angry at myself. It feels like my body is deteriorating, like I'm on a time limit to get things I want done.

My sleep isn't restful, and then I feel like I have to cram two days worth of productivity in the few hours I'm awake and alert. It's not even part of the "your worth is your productivity" grind of capitalist society; I can't even get done things that I want to do. It's a physical effort to just get out of bed in the morning.

It's not like when I dealt with my depression. With my depression I could think my way out. With my chronic exhaustion, I can't think my way out to a different body.

My dream is to be an artist and to be able to communicate through my art. I want to tell stories and connect with others through my art. But I can't make art right now, and that's the part that makes me frustrated to tears.

[aki-bara]

Hey, thanks for the shout-out!

shout out to everyone with a sleep disorder or condition that affects the quality and quantity of sleep. i think it's incredibly unfair to be denied even the comfort of rest

[chariot-to-somewhere]

There was a slight issue with filling my wakey wakey med.

It's being delivered today, but I took my last one yesterday.

I'm so sleepy.

[privategpcentre]

Excessive daytime sleepiness

Excessive daytime sleepiness, also known as hypersomnia, is a chronic feeling of sleepiness and fatigue during waking hours. It can significantly disrupt daily life, causing difficulty concentrating, decreased productivity, and even drowsy driving. While insufficient sleep is a common cause, hypersomnia can also stem from sleep disorders like sleep apnea, narcolepsy, or even underlying medical or psychiatric conditions. If you experience persistent daytime sleepiness, consulting a doctor is crucial to determine the cause and find appropriate treatment.

[worldmeds2u]

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[persassy777]

Oh golly this explains a lot

could you share any more under-talked about symptoms of schizophrenia, like executive dysfunction?

I've actually been meaning to make a post like this but keep forgetting (lol that's a symptom). As a disclaimer, not everyone with schizophrenia has every one of these symptoms, and people can have a lot of these symptoms and not have schizophrenia (if they don't have the psychotic symptoms). Not all of these symptoms are seen as diagnostic criteria, some have just been observed to be very common in people with schizophrenia. (I'm excluding hallucinations and delusions because they are more well known)

• Paranoia: a pattern of behavior where a person feels distrustful and suspicious of other people and acts accordingly. This can go hand in hand with hallucinations and delusions.

• Disorganized thoughts: this can mean a lot of things. It can be not having a linear train of thought, having incoherent thoughts, thought blocking, general disorganized thoughts. (It can be hard to define because it is often hard to describe for the person experiencing it).

• Disorganized speech: this is often a result of the disorganized thoughts. This can include loose associations like rapidly shifting between topics with no connections between the topics. Perseveration, which is repeating the same things over and over again. Made up words that only have meaning to the speaker. Use of rhyming words without meaning. Word salad, which is when cognitive disorganization is severe, it can be nearly impossible to understand what the person is saying, but the person speaking doesn't know they aren't making sense.

• Trouble concentrating: lack of concentration, switching from topic to topic, not being able to focus on one thing. (This is pretty self explanatory).

• Movement disorders: catatonia can be repetitive non goal directed movements. It can also be complete or partial immobility, mutism, vacant staring, and rigidity. Although not a symptom, tardive dyskinesia can occur in schizophrenia as a result of antipsychotics medication.

• Anhedonia: a loss of pleasure in activities that the person once enjoyed. Or the inability to feel pleasure at all.

• Atypical or non-existent emotional expression: Flat or blunted affect is an inability to show emotions characterized by a lack of facial expression, a monotone voice, and no hand gestures. On the other hand people can also have inappropriate affect, where the emotional expression doesn't align with typical reactions or even the person's own feelings.

• Alogia: when someone speaks less, says fewer words or only speaks in response to others. This can be a result of disorganized thoughts.

• Social withdrawal: avoiding people and activities that someone once enjoyed. Not actively being present during social situations. Can progress to total isolation.

• Avolition: a severe lack of initiative to accomplish purposeful tasks. This is a big reason some people with schizophrenia can't work/go to school, can't do chores, and can't keep up with their basic hygiene. Even if the person wants to do these tasks, it may be extremely difficult or impossible for them to get themselves to start or complete the task due to the lack of motivation.

• Executive dysfunction: a behavioral symptom that disrupts a person's ability to manage their own thoughts, emotions and actions. This can include focussing too much on one thing, being easily distracted, spacing out, struggling to switch between tasks, problems with impulse control and trouble starting difficult or boring tasks. Several schizophrenia symptoms fit into the umbrella of executive dysfunction, so when researching you will either see the specific ones listed out, or just simply described as executive dysfunction.

• Alexithymia: significant challenges in recognizing, expressing, and describing one's own emotions.

• Poor memory: this can include working memory deficits like trouble planning, organizing, and carrying out daily chores such as running errands, because it requires mentally formulating a “to do” list organized by time and location. Many people with schizophrenia also report trouble with their episodic memory, which means they have trouble recollecting things in the context of their place and time. (A lot of sources say "trouble with memory" is a symptom but they don't specify).

• Trouble with decision making: people with schizophrenia have been shown to have trouble with decision making due to a decline in the understanding and reasoning aspects of it.

• Sensory processing deficits: this has been widely reported in schizophrenia, and include impairments in visual processing, auditory processing, olfactory and sensorimotor systems. This can lead to having strong positive or negative reactions to sensory information.

• Sleep troubles: though disturbed sleep isn't included in the diagnostic criteria for schizophrenia, it is still a significant problem that up to 80% of people with the condition experience. People with schizophrenia may have various sleep problems, including insomnia, excessive daytime sleepiness, and trouble with consistent sleep routines.

• Anosognosia: also called "lack of insight," is a symptom that impairs a person's ability to understand and perceive their illness. This is a big reason people with schizophrenia may refuse to get, or stay with treatment.

[sleepy-gryphon]

Narcolepsy is the dumbest chronic health condition from the outside. It's like. Aww, is baby eepy? Are you big eepy, eepy baby? Need a lil nip nap all the time?

Do meth about it, idiot.