#after I got my diagnosis
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ominous-feychild · 4 months ago
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Guys I literally JUST realized a thing about my autism/masking/alexithymia. I noticed there was an alexithymia tag here on tumblr and when I investigated, there was this one post listing these symptoms:
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and I just--
I've had these exact, MAJOR struggles through my whole life for one.
But for two, and what's really interesting in my opinion...
Yesterday, I was having a video call with my mom. I've been off of some medications that I'm supposed to be taking because of financial issues, so my mental is NOT in a great place and I've had NO spoons for the past month. But while on call with her, she seriously, unironically, asked me if I thought I really needed the meds. Because, apparently, I "wasn't acting like I needed them" or something like that. And I'm sure I don't need to explain why that pissed me tf off.
But, like... at the time, the closest thing I could come up with for an answer was that "I have no spoons and no energy to do anything"; "I lived 17 years without meds, I kind-of know how to fake it"; and "I haven't had much socializing lately, so I have enough Social Energy™ to fake being okay right now."
Now that I'm not being put on the spot and after reading that post, I'm slowly figuring out that I've always done this. I mean, I've obviously always struggled to describe my own emotions and need to analyze my physical reactions to figure them out, but like. I'm just now starting to realize that I've really struggled to describe exactly how I'm "feeling bad" or, in fact, that I am feeling bad at all.
I mean, again, considering the alexithymia, that last part is a given. But it's kinda putting into perspective exactly how I've always had to understand "I don't have the energy to do anything" or "it's incredibly difficult to do anything" or "something deep inside of me feels Wrong™ and I can neither address nor identify it". I'd just passively have those "feelings" and struggle to continue life despite them.
It brings back thoughts of my struggles with masking, and how I was never diagnosed with autism as a child. Looking back, it should've been incredibly obvious. I had SO many of the tell-tale signs. But I guess it wasn't today, and there wasn't anywhere near as much awareness of what those signs were... but really. Textbook.
I'm sure my masking made it more difficult to recognize the signs as I got older. Hell, I even read over different "autism diagnosis checklist"s countless times, thinking to myself "oh wow it's a lot like me!... exceeeeeptttt--" and moved on from there.
I keep digressing. My point is, since discovering my autism and how it was hidden by masking, I've always wondered where my mask ends and where I begin. Most of the time, I feel like I feel nothing, even when I'm not depressed. I've been told I don't show my emotions, like when I'm happy (aka my chest is light and I feel free). That, or people can't tell when I like/dislike them (though that's partially a trauma thing). Other times, I've been told I'm smiling when I didn't even realize I was happy, much less that I was actually smiling. Some people have told me I'm incredibly easy to read, that my emotions show very clearly. But how can they when I feel like I feel nothing?
Which leads me back to what I said earlier, my conversation with my mother. How she asked if I actually need my meds because "I don't seem like I do". I guess I kind-of understand now, why she might've seen it that way. Do most people always show signs of how they actually feel? And how does the fact that I "don't feel" effect what I show?
I've wondered about that for a while. How much of how I act is because I was trained to, one way or another? How much of the emotion I show is because I learned to? Do I even show the emotions I feel? I really can't know because the people I know irl, who would better be able to tell me how I act, aren't understanding of any of these things. My older sister is lowkey ableist and thinks she sees the grand plan of the universe, my mother is too "pull yourself up by the bootstraps!!!" to accept Spoon Theory or mental health struggles, and just about everyone else in my life comes and goes as quickly as the wind.
Anyhow, this was a long rant that I've kinda had half-formed thoughts about for a while. Thanks for reading, hopefully this can help or entertain whoever stumbles upon this?
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elenadoeslife · 17 days ago
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nerdgirlnarrates · 3 months ago
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Nothing like having a difficult patient encounter or doing a shit job (or both! 🙃) and having to just put it out of your mind so you can write the note
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flipflopgamer01 · 7 months ago
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I got diagnosed with autism yesterday and honestly, the worst part is that i have something in common with elon musk
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mellotronmkll · 17 days ago
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Does anyone else get the thing of like you're already so obsessed with something that you're like it would probably be good if I was less obsessed with this / I need to shut up about this but at the same time you constantly find yourself thinking I have Got to get more obsessed with this. I have Got to get more obsessed
#its the thing of like i really want to spend more time on this but also i feel like i shouldnt spend all my time on it so i try to reel it#in but im not particularly good at doing that anyway so i really am like i should just say fuck it and immerse myself even more however#its hard because the more i do that the harder it is to reign it in when i do actually need to#but theres so much i want to research and learn and also do and spend time on where im like i have Got to dedicate more of my time to this#while at the same time being like this is already taking up so much of my time but also because i worry that it is i end up wasting a lot o#time that i could be spending getting more obsessed with this thing. soooo idk but i dont know if that makes sense#its like how im also really bad at working on music becsuse i know when i sit down i will lose several hours so i avoid it but then i end u#not playing music...but i would be happier if i let myself just lose myself in it but then idk. im bad at like Setting aside time for thing#its always all or nothing which is frustrating!!!!! but its like my worry is i wont be productive in other ways but im not anyways so#it doesnt actually matter... sooooo yeah i have Got to get weirder . i have got to just let myself get weirder asap#i think this is also part of the late diagnosis thing of i spent my Entire life forcibly repressing my interests and cutting myself off fro#them after being told i need to. but actually i can just be weird but its really hard to let yourself do that without shame but it is#unjustified in this instance therefore i should take the opposite action and just keep doing it sooo im gonna do that. bye!#i am gonna go listen to bootlegs for approximately 5 hours
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toddtakefive · 1 year ago
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once got a comment on a fic that ‘any good neil characterization is autistic coded’ and i haven’t stopped thinking about it since
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starcrossedandstupid · 12 days ago
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Me when I have to deal with the consequences of happening to be disabled
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padfoot-lupin77 · 4 months ago
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Let’s play a game called was this a trauma response or a sign of neurodivergence
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petyou · 2 months ago
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i have to talk to a psychiatrist friday and im so nervous……..
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void-of-unparalled-chaos · 3 months ago
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The Healthcare horrors persist
Hhhhhhhhhhhhhh
#Updates on this whole mess:#Im insured under my dad#he has Healthcare option 1 which is government provided since he is retired millitary and option 2 due to his new job#after his retirement option 1 went funky for me and changed things around meaning i was no longer able to be seen by my pcp#Im also unable to log in to any of my accounts for 1 so im not sure whats going on there and what plan of 1 i have specifically#so i switched to a new pcp which accepted option 2 (which was super hard to find) literally last week#made an appointment with her for next month so i can finally get answers about my funky blood test results#(which is still don't know what specifically is wrong with it! for all i know i could just have high cholesterol-#or i could have markers for rheumatoid arthritis instead of my prior fibromyalgia diagnosis!)#(i also do not get refils for my anxiety medication until i have an appointment with my new doctor)#crisis averted right? WRONG!#I just got a call from my Dad saying he is switching jobs so I am no longer insured under 2#meaning...#1) i need to call option 1 and figure out how to get into my accounts and what my insurance is#2) check that this pcp acceprs said insurance#3) find yet another pcp if she doesnt and make an appointment for god knows when#and here is the kicker:#since option 1 is government and millitary based it is going to take FOREVER to get anything done#And Im not sure if they are going to want me to renew my millitary dependent ID or not#because that shit is EXPIRED and i was under the impression i can no longer renew it due to his retirement#but also in order to make any acoount with option 1 they require a benefits number which expires alongside the ID#Then on the other side of things i also have my wisdom teeth surgery to schedule (through my mom thank god)#and school starting again in a few weeks#going to defenestrate myself istg
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deathbypufferfish · 4 months ago
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I love living with death hanging over my head like a guillotine.
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phagodyke · 6 months ago
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dating an art student was so crazy I'm just thinking abt that one birthday I had where my ex got me stickers from the etsy of the person they were cheating on me with....
#they made them address the thank you note to me and everything ajskfjfkfb. i didnt know they were cheating at the time but wow...#every time i break out my sticker collection and see them im reminded of it. but i cant throw out the stickers theyre deltarune ones 😭#like they were a rly cool artist.... just unfortunate that happened 💀#the drama was insane. my ex only wanted to sleep with them but they (other person) wanted them to break up with me so they could date#but my ex dumped them rly harshly for suggesting that i guess 'romantic' cheating was a step too far even for them lmaooo#i heard abt their breakup secondhand and god could they be cruel sometimes. they made fun of the sex theyd had w them#to all their mutual friends n everything i actually felt so bad for the other person when i found out. at least our breakup wasnt that bad#i only finally got that cruel side of them directed towards me like a year after when they wanted us to stop being friends#but yeah. its also funny in a way bc my ex only suggested i had adhd bc the other person did too + struggled a lot with rsd#which i guess they found out when they broke up with them. and then looked at that and thought huh my gf is kind of similar...#and this was like. 2 years before i even considered i had adhd myself and sought diagnosis ahdkfidjcjdjfjfjfkdbfnf#this made me go look the other persons art page up on instagram + then i recognised some of their friends/flatmates art pages and i found#their (my exs that is) grad year film which is still being shown at animation festivals... good for them good for them#i dont think they have an art page themselves tho cuz they were always v shy and weird abt sharing art on social media#like everyone else except them is tagged on things... shame i wouldve liked to see what they were making now. even if we're not friends#also one of their old roommates made some REALLY similar squid game fanart to mine like a month after i posted it huh..#not mad abt it or anything i think its cool i just didnt realise they showed my art to their friends. thats cute#ah this was years ago anyway. getting my head out of the rabbit hole#im gonna go play some elden ring and then maybe do smth fun in my sketchbook we shall seeee#.diaries
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seariii · 10 months ago
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Hum...
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dragons-and-yellow-roses · 13 days ago
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#'well you cant win em all.' okay but i would like to win at least one!! (not my quote i swear ive seen it on tumblr just cant find it)#like i would kill for just one win. i would pay a crisp $10 to anyone that could provide a single win for me#today was yet another fucking loss and that was all i had lined up. like theres nothing set up to possibly be a win in the future#ive got nothing there. so weve ended on a loss and thats all i have for the foreseeable future#i counted all the wins and losses in recent memory. ive got like 13+ losses and about 1 win#i tried to count up all of my wins but truly i managed like. one.#even some things that i didnt know could become losses! like did you know you can just be refused an adhd reassessment?#like you can say 'id like to pay $160 for you to fuck up a diagnosis again' and they can actually say#'youre not even worth the trouble to misdiagnose so go fuck yourself'#but they can! i didnt know that#and then you can have the audacity to tey to hope for something and think youll get it. like hope a little too hard#truly shouldve lesrned my lesson after twelve losses in a row not to get my hopes up#but i did! i made plans! i was gonna buy a cute water bottle specifically for that job. snd take myself out to dinner if i got it#can you guess what happened? when i had the audacity to hope and plan for a job that i was so passionate about and wanted so much?#(i didnt get it. the job ive been posting about. didnt get it)#didnt get the apartment in the city i love and miss either. didnt get an adhd reassessment (which is still wild to me)#and i tried to frame them as better in my head. 'this is a chance to tey a different job youd be better at! this is a chance to save money!'#nope its just another shitty thing in a long line of shitty things and im just getting tired of it. im so fucking tired of it#i am back where i vowed id never come back to and i cant escape in any way shape or fucking form#just needed to vent because saying all this in my head wasnt helping. saying it here doesnt help either but whatever
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kitkat-of-doom · 7 months ago
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ialwaysknewyouwerepunk · 7 months ago
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#these past two weeks have been so intense that ive just.. not spoken about it once i got home from work#blocked it all out#my beloved colleague whose desk is next to mine has cancer#breast and uterus. she needs two major surgeries#they just diagnosed her two weeks ago#so we've been trying to deal with that as colleagues and friends#because we love and miss her and i am so deeply sad as well#but i feel like i couldn't process that at all bc two days after the news of her diagnosis i was asked to take on half of her work#on top of my fulltime#which i agreed to do bc i like her tasks and i want to help her and i also know i can do it#but it does feel very off bc i know i don't earn enough money for this workload to be long term and it is def like this#for the coming four months at least#so i did tell my manager that i would like a raise and. that bitch told me to BUY MORE SECOND HAND SHIT.#i seriously thought i saw my life flash before my eyes#then the day after she asked one of my colleagues who's been with the firm for over 30 years whether she was looking for another job maybe?#which caused that colleague to instantly go home in tears and be home from basically a nervous breakdown the past 1.5 week#which is her full right and i support her with all my heart but bc my management sucks it meant that we had to also carry her tasks ofc#i felt soooo spread thin and super super angry actually but i didn't even realise how angry i was until last thursday my colleague w cancer#came by the office. and talked about all of it. and i suddenly realised how sad i was but then also how angry#but i was just blocking it all out trying to stay afloat#bc we told her about what the manager had said and she said “i hope that i get the chance to really tell her how it is someday.”#“because the stress she causes with people can actually kill you. just look at me.”#and the rest of the day i felt so ready to be done with everything actually#but seeing her anger made me see my own anger#and released me of my own pent up emotions bc i had actual leg pains this week and it was purely psychosomatic#i then managed to tell some friends yesterday about what was going on and their outrage spurred me on even more#so today i emailed hr. demanding a raise#doing this amount of work while constantly feeling like the house is on fire while also struggling financially seriously makes me suicidal#and i am not joking#so.. if nothing comes of that im leaving that job and not looking back
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