#after I got my diagnosis
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Guys I literally JUST realized a thing about my autism/masking/alexithymia. I noticed there was an alexithymia tag here on tumblr and when I investigated, there was this one post listing these symptoms:
and I just--
I've had these exact, MAJOR struggles through my whole life for one.
But for two, and what's really interesting in my opinion...
Yesterday, I was having a video call with my mom. I've been off of some medications that I'm supposed to be taking because of financial issues, so my mental is NOT in a great place and I've had NO spoons for the past month. But while on call with her, she seriously, unironically, asked me if I thought I really needed the meds. Because, apparently, I "wasn't acting like I needed them" or something like that. And I'm sure I don't need to explain why that pissed me tf off.
But, like... at the time, the closest thing I could come up with for an answer was that "I have no spoons and no energy to do anything"; "I lived 17 years without meds, I kind-of know how to fake it"; and "I haven't had much socializing lately, so I have enough Social Energyā¢ to fake being okay right now."
Now that I'm not being put on the spot and after reading that post, I'm slowly figuring out that I've always done this. I mean, I've obviously always struggled to describe my own emotions and need to analyze my physical reactions to figure them out, but like. I'm just now starting to realize that I've really struggled to describe exactly how I'm "feeling bad" or, in fact, that I am feeling bad at all.
I mean, again, considering the alexithymia, that last part is a given. But it's kinda putting into perspective exactly how I've always had to understand "I don't have the energy to do anything" or "it's incredibly difficult to do anything" or "something deep inside of me feels Wrongā¢ and I can neither address nor identify it". I'd just passively have those "feelings" and struggle to continue life despite them.
It brings back thoughts of my struggles with masking, and how I was never diagnosed with autism as a child. Looking back, it should've been incredibly obvious. I had SO many of the tell-tale signs. But I guess it wasn't today, and there wasn't anywhere near as much awareness of what those signs were... but really. Textbook.
I'm sure my masking made it more difficult to recognize the signs as I got older. Hell, I even read over different "autism diagnosis checklist"s countless times, thinking to myself "oh wow it's a lot like me!... exceeeeeptttt--" and moved on from there.
I keep digressing. My point is, since discovering my autism and how it was hidden by masking, I've always wondered where my mask ends and where I begin. Most of the time, I feel like I feel nothing, even when I'm not depressed. I've been told I don't show my emotions, like when I'm happy (aka my chest is light and I feel free). That, or people can't tell when I like/dislike them (though that's partially a trauma thing). Other times, I've been told I'm smiling when I didn't even realize I was happy, much less that I was actually smiling. Some people have told me I'm incredibly easy to read, that my emotions show very clearly. But how can they when I feel like I feel nothing?
Which leads me back to what I said earlier, my conversation with my mother. How she asked if I actually need my meds because "I don't seem like I do". I guess I kind-of understand now, why she might've seen it that way. Do most people always show signs of how they actually feel? And how does the fact that I "don't feel" effect what I show?
I've wondered about that for a while. How much of how I act is because I was trained to, one way or another? How much of the emotion I show is because I learned to? Do I even show the emotions I feel? I really can't know because the people I know irl, who would better be able to tell me how I act, aren't understanding of any of these things. My older sister is lowkey ableist and thinks she sees the grand plan of the universe, my mother is too "pull yourself up by the bootstraps!!!" to accept Spoon Theory or mental health struggles, and just about everyone else in my life comes and goes as quickly as the wind.
Anyhow, this was a long rant that I've kinda had half-formed thoughts about for a while. Thanks for reading, hopefully this can help or entertain whoever stumbles upon this?
#Barlowe's thoughts#long post#btw if you were wondering#the reason I kept looking at autism diagnosis checklists is because I was writing autistic characters#and I didn't know I was autistic yet#the first one was on purpose#but the second one was a complete accident haha#after I got my diagnosis#and yknow#got an understanding of my autism and others'#I actually did an amazing job on the first character#and obviously especially on the second haha#Basil my beloved#he's actually so much like me#ANOTHER thing that really should've tipped me off tbh#I think it's because Basil doesn't mask whereas I do#tho maybe it's also slightly related to the whole āhe's a guy and I'm a womanā thing?#idk but#autism#autistic adult#autistic#autistic things#actually autistic#actually audhd#audhd#alexithymia#masking#neurodivergent#autism masking#autistic struggles
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universal healthcare is not broken and anyone trying to convince you it is is delusional and a dckrider for big health insurance. yes there are wait times but waiting for care is Not the same as being denied care.
in america your physician prescribes care and an insurer can still cuck you out of it because someone across the continent who has never met you can say: doesnāt seem medically necessary. Leaving you to handle a bill that is wildly inflated by the same insurers that just denied you.
let me drill it through your head you can pay thousands a year in premiums and still end up sick and financially burdened for years by One incident. no insurance company is Avoiding going broke by denying claims. theyre doing it to profit off your misfortune and your illness. Because healthcare fundamentally does not cost the amount that they claim it to be.
#delete later#out of pocket rant#i hate these god awful takes on universal health care#and i hate this oh he killed a father#how many fathers do you think uhc let die be real with me#oh 8 billion is only 6% profit margin#bitch it could be 2 percent it could be a negative loss#this is me saying oh i resold a shoe for $60 after buying it for $50 when i also made it for 80 cents#i have been denied things like chest xrays and lung exams#i btw have had a chronic cough for 4+ years#in canada i got this done on the same fking day and results back within a month#there are indeed horror stories and on both sides of know ppl who died due to delayed diagnosis#and ppl who died bc they didnt even want the diagnosis it would have cost them too much#but robbing someone of the choice in my opinion is the worse of the two#putting someone in an impossible position like that is evil#this country love god so much better start praying u stay healthy bc thats the most important thing#also like those horror stories of wait times in the er#im gonna be real if u have severe stomach pain are actively bleeding heart attack or stroke#you will be seen asap#yes if unfortunately everyone around u that day decided to have a stroke or heart attack ur appendicitis will be punted down the line#this is a resource issue NOT a cost issue#this is a they also cut funding to nursing school and limited the number of ppl who can pursue medical degrees issue#not a we dont have privatized health care issue#bc ultimately u need a doctor to see u#not someones sister who is taking stabs at it#and every doctor is bound by the concept of time???#u still have to wait in america ur Charged for it also#and yall it doesnāt even have to be a Big incident#ur local urgent care might just be closed after 8pm and at 9pm u need stitches#or have severe stomach pains and just want it checked
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#grandpa passed away in his sleep this morning#i got to see him with some of my family last night before he went to bed#i kissed him goodbye. he cupped my cheeks and said it would be the last time he'd see me. i think he could feel it coming#it hasn't really sunk in yet. maybe because this was the very best outcome in the situarion and i'm mostly relieved#i'm just glad i got to say goodbye in such a nice way#and he isn't in any pain after those dreadful weeks of uncertainty and then the added cancer diagnosis#he's up in the sky with grandma now. just like he wanted
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Nothing like having a difficult patient encounter or doing a shit job (or both! š) and having to just put it out of your mind so you can write the note
#had a pt with documented AUD and sx of gastritis#got very upset when I asked about alcohol consumption#said they didnāt like being treated like an addict#turns out they did not agree with the diagnosis#so that was awesome#and then I also had a bad and incomplete plan for a couple of their problems#so all around great job by me#i find it really hard to focus and actually get my note done after this#thereās no time to process or think about it#guess I have to get better at compartmentalizing#medicine#medblr#residency#my content#my text posts
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two incredible weekends in a row i can barely believe how happy i feel these days
#the past few years have been absolutely awful#and last year after i was physically assaulted by my brother i had to move out of state and didn't see my friends for a year and a half#and now i'm finally living my life again š going out seeing my friends going to parties#also after 13 years i finally got a proper diagnosis and started taking the right meds#life's not easy right now but it's better. i'm doing better#*
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I got diagnosed with autism yesterday and honestly, the worst part is that i have something in common with elon musk
#the second worst part was having the doctor pondering if I am disabled enough to to be autistic#autism#neurodivergent#neurodiversity#asd#not actually yesterday#this is a draft from the day after my diagnosis#i actually got diagnosed multiple days ago#elongated muskrat
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Does anyone else get the thing of like you're already so obsessed with something that you're like it would probably be good if I was less obsessed with this / I need to shut up about this but at the same time you constantly find yourself thinking I have Got to get more obsessed with this. I have Got to get more obsessed
#its the thing of like i really want to spend more time on this but also i feel like i shouldnt spend all my time on it so i try to reel it#in but im not particularly good at doing that anyway so i really am like i should just say fuck it and immerse myself even more however#its hard because the more i do that the harder it is to reign it in when i do actually need to#but theres so much i want to research and learn and also do and spend time on where im like i have Got to dedicate more of my time to this#while at the same time being like this is already taking up so much of my time but also because i worry that it is i end up wasting a lot o#time that i could be spending getting more obsessed with this thing. soooo idk but i dont know if that makes sense#its like how im also really bad at working on music becsuse i know when i sit down i will lose several hours so i avoid it but then i end u#not playing music...but i would be happier if i let myself just lose myself in it but then idk. im bad at like Setting aside time for thing#its always all or nothing which is frustrating!!!!! but its like my worry is i wont be productive in other ways but im not anyways so#it doesnt actually matter... sooooo yeah i have Got to get weirder . i have got to just let myself get weirder asap#i think this is also part of the late diagnosis thing of i spent my Entire life forcibly repressing my interests and cutting myself off fro#them after being told i need to. but actually i can just be weird but its really hard to let yourself do that without shame but it is#unjustified in this instance therefore i should take the opposite action and just keep doing it sooo im gonna do that. bye!#i am gonna go listen to bootlegs for approximately 5 hours
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once got a comment on a fic that āany good neil characterization is autistic codedā and i havenāt stopped thinking about it since
#it was after i added the autistic neil tag cause it had been brought to my attention that he was MAJORLY autistic throughout the whole thing#and likeā¦. yeah.#both my friend who told me and the person who commented that were Very Correct#neil perry is autistic i was literally there when he got his diagnosis trust#dead poets society#dps#neil perry
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cant believe that after driving the car, riding the train, booking a hotel room, having a nightmare, visiting the father in law, visiting a hospital, making a friend, and escaping an assassin, the incomprehensible Horrorsā¢ are back at it again and harder to bear than ever š»
#fandom related#malevolent#i feel just like arthur that after having some Normal Time and time w friends and family the Horrors are even more horrifying than before#also How is this man driving. w zero eyes and one arm and one leg. i imagine John is like#slow down arthur! hit the gas arthur! while steering. and arthur is shifting the gear. except that john has no experience in driving#so it would be like someone during their first ever driving lesson. creeping along slowly. being way too slow or way too fast for a given#situation. cops would stop them bc arthur isn't even looking at the road. he is bumping into so many other cars or the curb.#parking like shit. does john even know what the road signs mean š and oscar got into the car w him#maybe he was too busy reading that book to notice. or too enchanted by arthu#*Arthur#if arthur had a white cane he would constantly lose it while falling down holes or trip over it running from the horrors#i think it's been mentioned only 3 times that he can't see. to those cops on the lake to daniel and the butcher has mentioned it#honestly king shit running around blind and w only one arm and leg w the voice of an ancient god in his voice. also they are fucking driving#*in his head#why can't you edit tags on mobile!!? or do i have to update tumbler for that#anyway ever since starting malevolent ive been realizing i should be more grateful for my eyesight. my eyesight is already bad and i need to#wear glasses 24/7. also i have a diagnosis that has a kinda probability of making me blind once im old or smth#i mean eyesight decreases for everyone as they get older right. but yeah. and i v likely won't have the voice of an older god in my head to#help me see. so gotta be grateful now#i should go to bed it's almost midnight but i have to listen to the next episode i need to know what's going on and what will happen š#still hoping nothing further will happen to oscar and that he and arthur will stay friends. if you're reading this and you know this won't#be the case. nnnnggh :')
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Me when I have to deal with the consequences of happening to be disabled
#I was mostly out of commission for a third of last week and am behind on schoolwork due to my chronic migraines#so Iām behind on math work which is the only class I go in person for#which of course I missed some of due to the migraines#and I got totally wiped out by the Covid shot yesterday so I couldnāt work on it#and Iāve got my neuro physche tomorrow and the day after to get my autism diagnosis#so I was already supposed to spend the weekend working ahead#holy shit man#AH#me when I realize that I am in fact disabled because other people donāt deal with this shit#disability#disabilities#chronic migraine#chronic migraines#chronic disability
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Letās play a game called was this a trauma response or a sign of neurodivergence
#throwback to when my family was certain I had ocd but then after a few years I got better so now we just treat it like it was a phase rooted#in the stress I was going through. Wich. probably isnāt true or correct but like I said now Iām doing better so if I try for a diagnosis#Iāll feel like an attention seeker. so. we just say it was trauma response#ioleās thoughts
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i have to talk to a psychiatrist friday and im so nervousā¦ā¦..
#idk how to like. talk#iāve been so weird after the Not cancer and idk how to be like also. 20 years of intense traumaā¦ā¦.. but like back to the main thing#iāve also never been Formally diagnosed with autism and iām scared iāll have to like defend it#and idk how to talk about the fact that i did LSD every single day for an entire year and that in fact did not cause my craziness it made#it a little better but now iām SO autistic and canāt talk to people#heās a MAN too ā¦ā¦ā¦ā¦ā¦ā¦ā¦ā¦ i hope that will make things easier but im scared heās like. dumb#thereās NO info about him online but the scheduler said she sees him and heās really good#what does THAT mean???#idk iām just rambling now#my official diagnosis as of right now is depression with psychotic featuresā¦ā¦ it makes it feel so real :/#context: i had a 20lb tumor in my ovary and they thought it was cancer for 2 months but it wasnāt and i got surgery and im fine now but im#depressed and dissociative#advice/encouragement PLZ
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The Healthcare horrors persist
Hhhhhhhhhhhhhh
#Updates on this whole mess:#Im insured under my dad#he has Healthcare option 1 which is government provided since he is retired millitary and option 2 due to his new job#after his retirement option 1 went funky for me and changed things around meaning i was no longer able to be seen by my pcp#Im also unable to log in to any of my accounts for 1 so im not sure whats going on there and what plan of 1 i have specifically#so i switched to a new pcp which accepted option 2 (which was super hard to find) literally last week#made an appointment with her for next month so i can finally get answers about my funky blood test results#(which is still don't know what specifically is wrong with it! for all i know i could just have high cholesterol-#or i could have markers for rheumatoid arthritis instead of my prior fibromyalgia diagnosis!)#(i also do not get refils for my anxiety medication until i have an appointment with my new doctor)#crisis averted right? WRONG!#I just got a call from my Dad saying he is switching jobs so I am no longer insured under 2#meaning...#1) i need to call option 1 and figure out how to get into my accounts and what my insurance is#2) check that this pcp acceprs said insurance#3) find yet another pcp if she doesnt and make an appointment for god knows when#and here is the kicker:#since option 1 is government and millitary based it is going to take FOREVER to get anything done#And Im not sure if they are going to want me to renew my millitary dependent ID or not#because that shit is EXPIRED and i was under the impression i can no longer renew it due to his retirement#but also in order to make any acoount with option 1 they require a benefits number which expires alongside the ID#Then on the other side of things i also have my wisdom teeth surgery to schedule (through my mom thank god)#and school starting again in a few weeks#going to defenestrate myself istg
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#last night we got devastating news from the hospital#friday we took my grandpa to the er for a delirium and leg pain due to clotted veins to get some testing done and help him#turns out he has end stage lung cancer that spread through to his bones. doctors give him 4-8 weeks - tops#i felt guilty all weekend for setting all of rhis in motion while he preferred to stay at home (which he couldn't)#and then we got this diagnosis on top of it all. i've been an absolute wreck. i was wirh him at the er and visited him sunday and today#he's doing okay but he's depressed -has been for years- and it's been really tough fighting for someone who has given up years ago#i'm going home tomorrow. i need some time to rest and process to prepare for al that's to come#anyway. just wanted to update y'all after friday's post. i'm okay - all things considered. i just won't be as active out here as usual
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I love living with death hanging over my head like a guillotine.
#puffer talks#eko is having a hard time getting around#and his eye is red and irritated which i think is from a skin tag he has on his eyelid#but it's not oh my dog's eye needs to get checked#its oh my dog with terminal cancer needs his eye checked#i don't want to do this again#we got almost 4 months with him? past hid diagnosis#the prognosis is 6 months after the amputation#so i just want more time#going to get his eye checked and stuff#maybe check his lungs while we're there#i feel so helpless and stressed out 24/7
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dating an art student was so crazy I'm just thinking abt that one birthday I had where my ex got me stickers from the etsy of the person they were cheating on me with....
#they made them address the thank you note to me and everything ajskfjfkfb. i didnt know they were cheating at the time but wow...#every time i break out my sticker collection and see them im reminded of it. but i cant throw out the stickers theyre deltarune ones š#like they were a rly cool artist.... just unfortunate that happened š#the drama was insane. my ex only wanted to sleep with them but they (other person) wanted them to break up with me so they could date#but my ex dumped them rly harshly for suggesting that i guess 'romantic' cheating was a step too far even for them lmaooo#i heard abt their breakup secondhand and god could they be cruel sometimes. they made fun of the sex theyd had w them#to all their mutual friends n everything i actually felt so bad for the other person when i found out. at least our breakup wasnt that bad#i only finally got that cruel side of them directed towards me like a year after when they wanted us to stop being friends#but yeah. its also funny in a way bc my ex only suggested i had adhd bc the other person did too + struggled a lot with rsd#which i guess they found out when they broke up with them. and then looked at that and thought huh my gf is kind of similar...#and this was like. 2 years before i even considered i had adhd myself and sought diagnosis ahdkfidjcjdjfjfjfkdbfnf#this made me go look the other persons art page up on instagram + then i recognised some of their friends/flatmates art pages and i found#their (my exs that is) grad year film which is still being shown at animation festivals... good for them good for them#i dont think they have an art page themselves tho cuz they were always v shy and weird abt sharing art on social media#like everyone else except them is tagged on things... shame i wouldve liked to see what they were making now. even if we're not friends#also one of their old roommates made some REALLY similar squid game fanart to mine like a month after i posted it huh..#not mad abt it or anything i think its cool i just didnt realise they showed my art to their friends. thats cute#ah this was years ago anyway. getting my head out of the rabbit hole#im gonna go play some elden ring and then maybe do smth fun in my sketchbook we shall seeee#.diaries
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