#actually disables me
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i wonder what it's like to not feel pain and brain fog every single day of your life
#there are so many things i wish i could do#but i can't because my dumb disability#actually disables me#its so frustrating watching people my age do things that i would love to do#|| 𝖑𝖔𝖔𝖓𝖞 𝖑𝖔𝖔��𝖞 𝖑𝖚𝖕𝖎𝖓 : ooc#sorry this is a vent im just tired bc this is going to be for the rest of my life#and jobs and society don't give accommodations as much as they should#vent tw
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Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside
#it feels like i got jumped by seven people but NO#if my body is going to make me feel like ive been stabbed five thousand times i should at least get a sword fight out of it im just saying#fibromyalgia#fibropain#fibro problems#fibro flare#fibro#chronic pain#chronic fatigue#chronic illness#hypermobility#hypermobile#hypermobility syndrome#spoonie#disabled#actually disabled#disability#c punk#cripple punk
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you’re not a disability advocate if you make fun of people with incontinence or people that drool or peoples motor functions or people with brain damage or people with low intelligence 👍
#yannick talks#hehe it’s me#disability#disabled#physical disability#physically disabled#disabilties#cpunk#chronic disability#actually disabled#invisible disability
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• Fidgeting and stuttering do NOT always indicate that someone is nervous.
• Avoiding eye contact does NOT always mean someone is lying.
• Having a hard time focusing does NOT always mean someone is lazy.
• Carrying around a stuffed animal or blanket does NOT make someone childish.
• Poor motor skills is NOT a direct indication of intelligence.
Not everyone fits into your box. Deal with it.
#neurodivergent#adhd#neurospicy#neurodivergence#actually ocd#neurodiversity#neurosparkly#neurospicyyy#asd#autism#disabilities#disorders#ableism#tw ableism#makes me mad#mad#angry rant#annoyed#I’m mad :)#stuttering#motor skills#fidgeting#stimming#eye contact#lazy#comfort object#Eye contact is not a way to tell if someone’s lying#actually adhd#actually neurodivergent#social anxiety
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I feel like there are a lot of people out there who needs to hear this:
If you dropped out of school because of diagnosed (or undiagnosed) ADHD, Autism, ADD, OCD, Dyslexia, Anxiety, Depression, Bipolar disorder, psychotic disorders, schizophrenia etc… You did not fail. The education system failed you.
#neurodiverse stuff#i cannot say this enough#neurodivergent#actually adhd#adhd problems#autism#just autistic things#actually autistic#actually bpd#actually mentally ill#actually disabled#depressing shit#this gave me more emotional damage than my dad#i am going to rant#i am going insane#dropping out#school problems#send help#you can do this#you cannot convince me otherwise#you can't change my mind#you can do it#i believe in you#i believe in their healing powers#i believe in myself#academic assignments#assignmentwriting#assignment help#in this essay i will
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I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)
It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:
How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.
Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."
How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills
How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud
Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides
Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance
Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!
There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.
Please boost!
#signal boost#please reblog#I'm so so glad this has gotten the traction that it has!#chronic pain#chronic illness#disability#fibromyalgia#cfs#chronic fаtiguе ѕуndrоmе#actually disabled#spoonie#me/cfs#cfs/me#long covid#important#invisible disability#ehlers danlos syndrome#lyme disease#chronically ill#cpunk#cripplepunk#it's a bummer that it's so US centric but if you're outside of the US you can look into similar programs#I hope that other countries have options like these#the US seems so behind when it comes to medical care and disability resources. and i mean it is#but it's good to know all of your rights as a disabled person or if you ever become disabled
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Hot take and not to be a killjoy or the shipping police but people treating Viktor or Jinx's aroace headcanons as if they were canon is not the revolutionary take people think it is.
Headcanons are always all right but we have to acknowledge that they are somehow damaging when they apply to stereotypes. It might not be the case for everyone but most of the time people unconsciously assume that disability/mental illness=asexuality. These headcanons erase the freedom of attraction from people who are already seen as unable to have sexual/romantic experiences/desires, when it's completely untrue and harmful.
You can headcanon Viktor and Jinx as aroace, but I have seen people changing their minds once Viktor is no longer disabled (s2 with all of his other forms) and Jinx is no longer as mentally ill (alternate universe Powder). And it speaks wonders of how people see these characters.
"I never thought about Jinx being able to feel romantic/sexual attraction until s2!" To believe she's actually only capable of that when she's not "damaged" is incredibly disturbing. Especially since Jinx has always had a bit of a flirty personality too.
"I've always seen Viktor as asexual, I don't know why!" That's fine. You can headcanon him as ace. But I believe there is a reason behind it, most of the time, if for some inexplicable reason the "vibes" of the disabled character are making you think he's ace.
I say all of this being aroaspec myself, by the way. Headcanon all you want but going to people's posts commenting how "it's weird for you that they have romantic/sexual plots when they're clearly aroace" is not a win at all. It's a headcanon, after all, and it should be treated as such, and that's fine. But it also is damaging to spread stereotypes like these.
Of course the disabled character is asexual. Of course the mentally ill character is aromantic. It's not as revolutionary as you might think, tbh.
Fandom is not activism and it's all right to have any headcanons you want BUT some of them are filled with damaging stuff and perhaps we should look into ourselves more before treating these assumptions as something canon.
#i hope i didn't sound rude btw i am saying this respectfully and this is directed to the ones who push these hcs as canon#if you have your own theories and know abt aroace stereotypes but are respectful abt it this is not for you keep scrolling#i actually think showing jinx (who has been dehumanized by the fandom A LOT) in a romantic relationship is good for her character#and viktor letting himself be free and loving what he considered imperfections thanks to jayce at the end c'monnn they need to make love#tired of disabled characters being treated as babies and always hc them as aroace let them fuck#this being said i am aware there are more terms inside aroace etc etc etc and there are more ways of considering them aroace etc etc etc#this is NOT about that it's about being aware of how 'mmm it's the vibes!' argument does NOT work when it's stereotypes#it's like saying 'wow this robotic character is giving me autistic vibes idk why' LIKE CMON NOW WEFNEWLFNL YOU KNOW WHY#please don't cancel me i am giving my humble opinion as someone aroaspec#at the end of the day you can do whatever the fuck you want tbh#i'm not the shipping police here#arcane#viktor arcane#jinx arcane#jayvik#timebomb
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![Tumblr media](https://64.media.tumblr.com/4352153368d516baa08ee51390a920a2/84528afa5bcd0640-9e/s500x750/c58390c4339f578fd6be8ef19d35de9a7ef9a370.jpg)
Dan Piraro, Bizarro Comics 2006
#people get so weird about me using a cane sometimes#it’s like oh my disability is visible to you so now you treat me different#actually disabled#disability#disability aids
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reminder to all my disabled lovelies that "gross" symptoms do not make you gross or lesser in any way. incontinence, vomiting, irritable bowels, or gastrointestinal issues shouldn't be as demonized as they are. you are real, valid, and loved
#this post brought to you by#herniated disk and incontinence that im going to urgent care about tomorrow#honestly im scared. those symptoms together can cause serious complications and. yeah not good#struggling with this tonight for me but i gotta put the energy out there. manifest that shit#cripple punk#actually disabled#disability#disabled#cpunk#cw emetophobia#cw bodily fluids mention
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so: masking: good, unequivocally. please mask and please educate others on why they should mask to make the world safer for immune compromised people to participate in.
however: masking is not my policy focus and it shouldn't be yours, either. masking is a very good mitigation against droplet-born illnesses and a slightly less effective (but still very good) mitigation against airborne illnesses, but its place in the pyramid of mitigation demands is pretty low, for several reasons:
it's an individual mitigation, not a systemic one. the best mitigations to make public life more accessible affect everyone without distributing the majority of the effort among individuals (who may not be able to comply, may not have access to education on how to comply, or may be actively malicious).
it's a post-hoc mitigation, or to put it another way, it's a band-aid over the underlying problem. even if it was possible to enforce, universal masking still wouldn't address the underlying problem that it is dangerous for sick people and immune compromised people to be in the same public locations to begin with. this is a solvable problem! we have created the societal conditions for this problem!
here are my policy focuses:
upgraded air filtration and ventilation systems for all public buildings. appropriate ventilation should be just as bog-standard as appropriately clean running water. an indoor venue without a ventilation system capable of performing 5 complete air changes per hour should be like encountering a public restroom without any sinks or hand sanitizer stations whatsoever.
enforced paid sick leave for all employees until 3-5 days without symptoms. the vast majority of respiratory and food-borne illnesses circulate through industry sectors where employees come into work while experiencing symptoms. a taco bell worker should never be making food while experiencing strep throat symptoms, even without a strep diagnosis.
enforced virtual schooling options for sick students. the other vast majority of respiratory and food-borne illnesses circulate through schools. the proximity of so many kids and teenagers together indoors (with little to no proper ventilation and high levels of physical activity) means that if even one person comes to school sick, hundreds will be infected in the following few days. those students will most likely infect their parents as well. allowing students to complete all readings and coursework through sites like blackboard or compass while sick will cut down massively on disease transmission.
accessible testing for everyone. not just for COVID; if there's a test for any contagious illness capable of being performed outside of lab conditions, there should be a regulated option for performing that test at home (similar to COVID rapid tests). if a test can only be performed under lab conditions, there should be a government-subsidized program to provide free of charge testing to anyone who needs it, through urgent cares and pharmacies.
the last thing to note is that these things stack; upgraded ventilation systems in all public buildings mean that students and employees get sick less often to begin with, making it less burdensome for students and employees to be absent due to sickness, and making it more likely that sick individuals will choose to stay home themselves (since it's not so costly for them).
masking is great! keep masking! please use masking as a rhetorical "this is what we can do as individuals to make public life safer while we're pushing for drastic policy changes," and don't get complacent in either direction--don't assume that masking is all you need to do or an acceptable forever-solution, and equally, don't fall prey to thinking that pushing for policy change "makes up" for not masking in public. it's not a game with scores and sides; masking is a material thing you can do to help the individual people you interact with one by one, and policy changes are what's going to make the entirety of public life safer for all immune compromised people.
#dyspunktional#cripple punk#actually disabled#cripplepunk#a lot of these are major concessions for me personally as i'm an anarchist and loathe to support further concentrations of state power#but if you're gonna be operating within the structure of the system. here you go. handing you a cheat sheet for what you should demand.
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You know what, fuck it. Let’s show some love for the “unpleasant” autistics.
For the autistics who are always accused of being angry or moody when all they’re doing is sitting there.
For the autistics who take everything literally and respond sincerely.
For the autistics who come across as “blunt” or “rude” for being honest.
For the autistics who are called “control freaks” for needing a sense of order and routine.
For the autistics who get told to shut up for infodumping about uncomfortable topics.
For the autistics who find it too exhausting to mask and pretend to be sunny and friendly.
“Unpleasant” autistics, I love you.
#It becomes more and more apparent to me that everyone’s an ally until an autistic person displays these symptoms#And I’ve fucking had enough#I also need a bit of self love here too tbh lol#autism#autistic#actually autistic#autism positivity#ableism#neurodivergence#neurodiversity#neurodivergent#neurodiverse#disabled#disability
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i hate to say it because i'm neurodivergent and a chronic-pain-haver but like... sometimes stuff is going to be hard and that's okay.
it's okay if you don't understand something the first few times it's explained to you. it's okay if you have to google every word in a sentence. it's okay if you need to spend a few hours learning the context behind a complicated situation. it's okay if you need to read something, think about it, and then come back to re-read it.
i get it. giving up is easier, and we are all broken down and also broke as hell. nobody has the time, nobody has the fucking energy. that is how they win, though. that is why you feel this way. it is so much easier, and that is why you must resist the impetus to shut down. fight through the desire you've been taught to "tl;dr".
embrace when a book is confusing for you. accept not all media will be transparent and glittery and in the genre you love. question why you need everything to be lily-white and soft. i get it. i also sometimes choose the escapism, the fantasy-romance. there's no shame in that. but every day i still try to make myself think about something, to actually process and challenge myself. it is hard, often, because of my neurodivergence. but i fight that urge, because i think it's fucking important.
especially right now. the more they convince you not to think, the easier it will be to feed you misinformation. the more we accept a message without criticism, the more power they will have over that message. the more you choose convenience, the more they will make propaganda convenient to you.
#personal#this also applies to ai art and stuff. like#artists and crafters and non-ai users took the time space and energy to learn things#bc we are actually LEARNING them. and it takes actual SKILL.#i know the skill is long to learn and often annoying. i still get frustrated about my art bc it's not good#but i do it myself. bc i respect that it IS a skill.#ai writing a book for you is not YOU learning how to write a book. and it took me a lifetime to write a book. i get it.#ai drones running a marathon don't run the marathon for u#there are things i cannot due to my disability. lol marathons being 1. there are things u can't do either#this is about stretching yourself in the ways that are healthy and good for you.#ai learning for u in ur classes is NOT healthy. u are not learning.#''but otherwise i won't pass''#first of all that's a self-defeating prophecy. and many of us who thought we wouldn't pass DID pass#and secondly. CHALLENGE urself. ur paying for college anyway. don't pay just to let AI learn for u.
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I’m not sure who needs to hear this but it’s normal and okay to be DISABLED by your DISABILITY.
Sometimes it is going to stop you from doing things, and that’s okay. Sometimes it’s going to get in your way or make you struggle or cause problems in your life. But that’s okay, that’s why it’s called a disability.
You don’t need to fight yourself or “not let it hold you back” because a lot of times it will, but that’s the point.
#marshal talks#disability#also talking to myself#had my disability actually disable me recently#shocking isn’t it#/s#disabled#mentally disabled#physically disabled#invisible disability
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do able-bodied people not understand that if disabled people call out of work every time they don't feel good that we would call out of work every fucking day?
like honestly. what do you think being disabled means?
#if one more person tells me to take a sick day i'm going to throw something at them#i just honestly cannot anymore#disabilties#disabled#actually disabled#epilepsy#ehlers danlos syndrome#physical disability#neurological disability#actually epileptic#zebra#chronically ill#chronic illness#spoonie#chronic fatigue#chronic pain#c punk#crip punk#cripple punk#fuck capitalism#anti work#disability culture#1k#5k#10k
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chronic fatigue weaves its way into everything. people love to tell disabled people they'd love to rest as much as we do, but they fail to understand how tired we are while we rest. we are not relaxed, we are generally pretty miserable, either from pain, irritability, or fatigue- which bleeds into every aspect of your life. being too fatigued to get up off of the couch means that you're too fatigued to get to the cupboard to pull out pans to attempt to start cooking.
the steps hidden within steps that are required to do a lot of tasks related to being a "functioning adult" are daunting, there are often way too many steps necessary to make "Simple" foods or do "simple" chores for disabled people to accomplish these tasks. chronic fatigue often means that even waking up from a nap or night's rest requires time to adjust to and power through
waking up is a process for me. im often no more alert and awake hours after i've woken than I am right after doing so. caffeine does not help fatigue- at least not at safe doses, for me, anyways. many days the act of moving from my bedroom to my living room is too much. taking dishes to the sink can be too exhausting. i have began falling asleep in front of the kitchen counter while standing because i realize the amount of steps required to clean the counters, or do the dishes, or prepare a meal that all of my energy instantly bleeds away
it's okay if you feel this way too. i have been dealing with chronic fatigue my entire life and it cost me my best paying job. i lost my ability to work because of it. it's not just you being "sleepy", you are genuinely too exhausted to function. you do NOT have the energy levels other people do, and that's okay. it's okay to let yourself be tired sometimes and address that instead of trying to pretend you're not tired.
i wish you good luck. you are loved
#chronic fatigue#fatigue#cfs#cfsme#cfs/me#myalgic encephalomyelitis#chronic fatigue syndrome#actually disabled#chronic pain#disability culture#cripple punk#fibromyalgia#crip punk#cripplepunk#cpunk#disability rights#disability advocacy#chronic illness#chronically ill#depession#adhd#autism#neurodivergence#neurodiverse#neurodivergent#schizophrenia#arthritis#cancer#diabetes#diabetic
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disability is natural. disability is normal. a person born with a face difference is more natural than perfectly straight, white teeth. we don't have an instinctive fear of disabled people, especially visibly disabled persons. we have been trained year in year out to view disability and visible difference as scary. and to be honest the way to fix that is to just practice. look up people with face differences. there are people out there willingly promoting the visibility of people like them to help change the stigma around face differences. go to changingfaces (dot) org (dot) uk and click on the real stories page. people are reaching out, doing the work, willing to put themselves out there, sharing their stories, for better representation. for other people to start treating them like the human beings that they are, and less like a spectacle. do the bare minimum, and go look.
#bebsi posting#disability#actually disabled#physically disabled#cripple punk#face difference#<- not me I'm tagging the subject of the post#not trying to mislead anyone sorry
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