#I have fibromyalgia

[sunnycanwrite]

What is fibromyalgia (did i spell that right?) And why do you think tim and cass have it?

im actually so happy someone asked this! Fibromyalgia (you spelled it right!), commonly just called Fibro, is a chronic pain condition. It causes pain in 18 central points across the body, chronic fatigue, and brain fog. Many doctors think it is caused by traumatic events, stress, or depression. Though the root cause is unknown. It can can be mild with pain that is manageable, but flare ups often leave people bedridden. Or like me, a wheelchair user.

Tim's canon issued with falling asleep in odd places scream chronic fatigued to me. And I can just see him hiding chronic pain for years, not wanting to mention it. Ad someone with fibro so many thingsabout him, just screams that he has it as well. It's honestly hard to explain.

It's pretty similar with Cass. I see her as growing up with it and thinking consent pain was normal. Due to the way she was treated by her biological father. So she just got used to the pain, and bonded with Tim over it, and they got diagnosed around the same time.

[willowdove]

This is what living with undiagnosed chronic illness does to a bitch

Me: You know how when you were a kid and you’d wish that you’d get sick or injured in a way that would justify why you didn’t live up to your potential?

Everybody, apparently: No?

[hellyeahsickaf]

I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)

It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:

How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.

Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."

How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills

How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud

Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides

Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance

Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!

There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.

Please boost!

[lupusbaby]

Being chronically ill is like

“It’s fine”

“It’s fine”

“It’s fine”

*complete mental breakdown because you can’t do this anymore*

“It’s fine”

[imhatsunemikurealz]

That bench makes me physically recoil as someone with fibromyalgia.

[chadepitanga]

there's something so raw and soul crushing about spending your late childhood+teen years suicidal then growing up and actually wanting to live, after an ungodly effort, only to see your health deteriorate because of chronic illness.

[decora-kai]

Ive seen posts about how disabled people should be able to have hobbies and how we should be able to do things that we like if we enjoy it and if it doesnt hurt us, and yeah I totally agree, but like unpopular opinion ig, let disabled people do things they enjoy even if it hurts them.

I, as a chronically ill person, have things I enjoy doing that arent that good for my pain levels. For example, I enjoy going on walks, just for like an hour or so around my town and in the forest. I will most likely have a flare up the day after/for a couple days after and my legs will be aching most of the way through walking but I love it, not the pain but the walking and seeing places (specifically the woods, i love the woods so much omdddd). Another example is video games, which may sound like an odd thing to flare from for some, but with fast paced video games on console or pc, my fingers get very stiff and achey from moving around so much so quickly, and it tires me to have to even use my eyes sometimes but I really like playing them.

Obviously there are way more examples that I've missed but the point still gets across. Let disabled people have hobbies, even ones that may mess up their pain levels, or make them extremely fatigued etc.

[ipanicatmorethanjustthedisco]

Are you kidding me? I got the pain guy?? The man who studied the three dimensions of pain? That guy??

What if when we were born we were each assigned a Wikipedia page like a social security number would that be fucked up or what

[thedisablednaturalist]

We need to talk about how so many queer spaces are inaccessible and even actively hostile to physically disabled people.

[sunnycanwrite]

Here's the thing that has to be true about Tim Drake, like in my mind. He is chronically ill, and I'm talking before losing his spleen. I see him having fibromyalgia which can be caused by trauma. Acting like he isn't always in pain, as if the fatigue isn't wearing him down. Even when he's sleeping in weird places like on a rollercoaster. There this way he pretend it's no big deal,doesn't leg it stop him

[boycritter]

silly little comic about chronic pain

[image id: an 8 panel comic

the first panel has a conversation between two people. the one on the right is a light gray, and facing away from the viewer. they are meant to represent a generic person. they are saying, "wow, chronic pain sounds like it sucks." sucks is written in a dark pink. the person on the right has tan skin, a pink shirt, and pink hair. he responds "haha yeah."

the second panel shows the same two people, with the first person saying "how do you tolerate it? i'd go crazy!" tolerate is written in a dark pink. the second person responsed "um..." and trails off

the third panel shifts to a drawing of the second person sitting curled into himself. it is entirely grayscale, except for his pink hair, which is a little more muted. the text around him reads "i tolerate it because not doing so isn't an option". 'isn't an option' is written in dark pink.

the fourth panel shows him sitting and leaning against the left edge of the frame, with his legs stretched out. it reads "because what else am i supposed to do?" supposed is in all caps and written in dark pink.

the fifth panel shows a torso up drawing of him in the bottom right corner. the text reads "i can't hope for a day i'll wake up and be better." better is written in dark pink and all caps on the left half of the panel.

the sixth panel shows him sleeping, with a brown dog near his head. the text above him reads "all i can do is make sure i wake up." wake up is written in dark pink.

the seventh panel is all text, reading "i tolerate it because it needs to be tolerable". tolerable is written in dark pink.

the eighth panel shifts back to the conversation between the two people. the man finishes his response to the other person's question with "i don't know".

end image id]

[s0fter-sin]

something people just don’t think about is how often chronically ill and disabled people just don’t have access to good food. not healthy food, good food; well made, tasty meals that don’t come from a jar or a freezer. how many of us are housebound or can’t drive? delivery services only offer within certain distances, if you live outside a city they aren’t an option. many people don’t have the energy or ability to cook for themselves if they have the skill to begin with. many certainly don’t have the ability to learn how. it’s something that goes completely unnoticed, just the opportunity to have a good meal and how much that wears you down

[themathomhouse]

this disability pride month, stop making jokes about people in wheelchairs standing up or walking.

can I stand and walk? sure, for a short while and with pain. the consequences for trying to be out all day without a wheelchair are that I'll be in bed for the rest of the week, too tired and in too much pain to move.

but the government won't give me my own wheelchair because they have the same attitude as these jokes - I can stand up, so I don't need one. exercise is good for you, you should walk!

it keeps me trapped in the house, unable to do anything more than short stints anywhere without borrowing or hiring a wheelchair - one that causes me pain to sit in and relies on someone to push me (usually with difficulty), because they're not going to have a high-end chair for that sort of thing.

it's not a miracle that a wheelchair user can stand or walk. it's something we should aspire to see more often.

[like-i-was-an-old-cardigan]

ykw. shout out to everyone who is both too disabled and not enough.

i wonder if i am disabled enough for cripplepunk, but at the end of the day, scrolling through the cripplepunk tag makes me feel better.

i am not quite disabled enough to be who a post for people who have been deemed scary or weird is for, but i do deal with those feelings. and i bite my arm because it makes me feel less like i’m dying and then i wonder if maybe they would think i am weird and scary.

i guess what this boils down to is: i feel like i am not disabled enough for disabled community. and if anyone else sees this who feels the same way, you deserve community. you deserve not to feel alone.

[cherrysnax]

hi so our last post died, and things have gotten kinda worse with the arrival of our other cat, my elder brothers homelessness, and the racial abuse getting hurled my way

we’re two disabled black lesbians trying to navigate employment discrimination and the American healthcare system, and tbh we’re losing. we originally had to split everything between 6 people, but due to my brothers getting evicted, everything we have (and everything we don’t) also goes to them

like last time, I’m still waiting for a doctor but recently they told me to call back in November. I’ve been calling since April. I believe the stress of everything is causing a flare up of something and I have no idea how to manage it, on top of my new seemingly random food sensitivities that keep popping up. I’m exhausted all the time and sometimes can’t even get out of bed.

on a brighter note, my girlfriend applied to five jobs, but their phone was shut off this morning so it’s urgent that they pay their bill.

we were able to get some necessities early last month due to peoples help, but we can’t make it stretch with 8 people. it’s a shitty situation all around and I wish we didn’t have to ask but until my gf can get a job and I can find out exactly what’s wrong with me, this is literally all we have.

I’m not gonna link my PayPal anymore because people are harassing me with my deadname

my cashapp is $silvertheestallion and my gfs is $Peachjammn

my Venmo is cherryadventure2

thank you so much for reading

[plague-parade]

able bodied people will decide you’re not disabled over *checks notes* the shoes you wear