#I hate the medical system

[r3musmoony]

bruh why is the NDIS so unnecessarily complicated what the fuck

(for those of you who don’t know the NDIS is just the ‘National Disability Insurance System’ which is like, if you have a disability that impacts your daily life and you need adaptive technology or aids the NDIS will pay for it (as long as you actually need it for your disability and the reason you need it is directly linked to your disability))

rant beneath the cut lol

I’m considering going on it to help me pay for my wheelchair (cuz 5000 AUD is impossible for me to save) but like, it’s so complicated and i need an official diagnosis and evidence supporting WHY I need financial help to afford it and WHY I need a wheelchair in the first place and it’s like ughhhhh just trust me when I say I need it like wtf. Doctors are notoriously bad at telling people when to use mobility aids because they consider it ‘giving up’ which is fucking stupid, like I’m ‘giving up’ because I want to be in less pain but still go to class and live life?? how does that make sense!?

Like srsly all I wanna do is just live life, go to my uni classes, go out with friends and eventually dates but I also know that I can’t do that without help! and at the moment. yes, crutches are helpful in that but also so was my cane and now after only 7 months of using it, it’s not helping as much as it did when I first brought it.

The pain that started in only my left hip has now moved to both hips, my thighs, my knees, hell even my fucking arms hurt sometimes and it’s not getting any better! I just don’t understand why it’s seen as ‘giving up’ when all I wanna do is just, live?? and be able to go out??? and be in minimal pain???? like jfc can someone please explain to me why that’s considered giving up? because I truly cannot understand it!!

[id: black text on a purple background reading: “this post is for cripples only”. there are two of the wheelchair disability symbol in black on each side of the image. /end id]

[ilikecarsandlike4people]

...I'm supposed to be getting ready for my 6am morning tomorrow but my body has once again betrayed me and I literally cannot straighten my back without it cramping rn

[house-of-slayterr]

Why do doctors suggest yoga as exercise for people with POTs? As if being upside down and stretching isn’t going to actively trigger the condition? Do they want us to die? Is that the plan here?!?!?

[pots-plus-pans]

god i hate figuring co-pay stuff

like i need a medicine that’s 1.5k an injection for one injection a week to make sure my throat doesn’t close

i had 1.2k to pay and despite literally not being able to leave my dorm today i had to spend abt an hour figuring out how to pay for this medicine bc i need it by saturday

ughhhh

[steampunk-raven]

advil not kicking in :) not sure what I was expecting tbf but it’s not like I can tell my ob-gyn that I need stronger meds and have her *listen* to me

[sunbathing-owl]

I’ll be here for a day or two, entertain me tumblr

[weedclown]

having to leave the house this early on 0 sleep is agonyyyyyyy

[browniecrustmuncher]

Guess who’s been complaining of muscle fatigue and pain, and fatigue in general and has been dismissed and continuously pushed by my physical therapist because “that’s just how pt is” and then who was feeling their back last night and felt a small bump on their lower spine area. You’re right it’s me!! It’s so disheartening being treated like my body is fine and I just need to work more to eliminate the pain when I’ve been through continuous and strenuous stress on body and mind throughout my cancer journey. This shit on my back better be a fucking knot in my muscle because I’m gonna be so pissed if it turns out to be some evil recurrence because my original diagnosis was held back for three months because lovely Mr. Kurapati wouldn’t listen to me. Not doing that again

Anyways

[gothiccharmschool]

Seriously, bless all of you who found information and posts on dealing with hospital bills. Dad has been in and out of the hospital a few times over the past year (but now there are answers and solutions!), and I finally got him to admit he’s worried about the bills. Thanks to you peeps, I can do the research and alleviate some of his anxiety.

FUCK THIS COUNTRY and the for-profit health industry. No one should have to worry that they can’t afford medical care.

Here, have a photo of my Dad. He’s very handsome and charming.

[dolleyeddog]

i feel like we don't need to keep coining new community terms for "different types" of DID. i think there being so many community terms used now rather than actual medical terms is kinda making things confusing.

i also feel like people forget DID is an actual medical diagnosis and term. you can't fit any and everything under the umbrella of DID because that's just not how it works. words mean things.

[crowoffmain]

when you live with undiagnosed chronic pain, you live in a world that continuously forces you away from ever getting a diagnosis.

if you seek professional help or speak up right away:

“give it a couple months, it’s probably just a fluke or hormonal”

but when you wait, then seek help:

“why did you wait so long to get help if it’s bothering you so much?”

“are you sure you aren’t just exaggerating the timeline?”

but no matter how long or little you wait, it will always be:

“but you seem fine! you aren’t in any imminent danger or pain, so you’re probably fine”

no matter what you do, you will forever be shoved further and further into this hole where you don’t feel like you can ask for help. people continue to dismiss you because you “look healthy”, and thus, convince you that you are not disabled enough to get any diagnosis or treatment

[eldritchlittleblackdragon]

It should be illegal for health insurance companies to not tell you how much you're going to owe for a medical procedure or doctor visit or whatever and whether they'll cover it or not until MONTHS after you got it done. It's fucking atrocious they're allowed to do this.

You're telling me you just now got around to telling me how much for a doctor's visit I had. EIGHT. FUCKING. MONTHS. ago after months and months of crickets. Unacceptable.

[canonkiller]

well adjusted normal human man

[poisonousquinzel]

"a dude in Texas legally changed his name to "Literally Anyone Else" and he's attempting to run for President against Biden & Trump" [source]

okay, but putting aside the comedic aspect of this, it is concerning the amount of people who are prompted to vote for candidates just because it's funny. I'm not the biggest fan of how his policy about the boarder sounds [Site], but I do implore anyone who is able to vote in the 2024 US election to please research other candidates.

The media is only going to continue pushing the idea it's inevitably going to be Trump vs Biden 2.0 and we have no other options, that we have to vote for Biden again because of Project 2025. Is that whole thing terrifying?

Yeah, fucking absolutely.

But voting for Biden will not solidify our safety from that. Biden is exactly like the rest of them. He always has been. You can't make the lesser of two evils argument when they're both just plain evil.

You cannot say that Biden is even mildly a better choice than Trump when he is currently directly involved in a genocide. That is not some little fucking thing. That in and of itself disqualifies him as a lesser evil. Biden is just as bad as him and he will not save us because he doesn't fucking care.

Cornel West [Site] is an Independent candidate running for President in the 2024 Election. [Policies]

Claudia De la Cruz and Karina Garcia [Site] are running for President and Vice-President as the candidates of the Party for Socialism and Liberation in the 2024 Election. [Policies]

There are options.

There are people trying to change the corrupt foundation our system is built on, but we have to help amplify them because the mainstream media will not.

[steampunk-raven]

Fascinating that doctors seem to think giving me OTC meds would actually help with my fucking 9-10/10 pain. Or having me increase the dosage of ineffective medicines would make it any more effective. No, that’s just going to destroy my internal organs

[anomalymon]

My take on the systempunk thing is it really feels like this

Fakeclaimers: You need medical proof to prove your existence to me! Endogenics: The field of psychology is ableist towards systems which means a lot of it is under-researched, and an experience shouldn't require medical proof to be valid. Fakeclaimers: Psychology is everything, this is an institution we support. Endogenics: *Start to get a lot more medical backing and studies coming out during the 20s* Fakeclaimers: Actually the field of psychology is ableist towards systems, we don't support that institution, #systempunk