#Gastroparesis

[chronicallydragons]

anyone else ever wish they could lie down harder? Like, I'm already horizontal, but I need more horizontal. I need to be absorbed by the floor. I think that would fix me

[genderqueerdykes]

i just think it's bullshit that alternative meats, milks, eggs, breads, and other foods are prohibitively expensive. like i don't know how to tell people that not everyone who eats vegan or vegetarian is choosing to eat that way because of their moral beliefs- a lot of people are eating these foods because they have food allergies or intolerances, or have other gastrointestinal issues

i don't have a choice. it's downright cruel to make these different options more expensive. there is no one size fits all diet- every single person needs a unique diet and some folks literally have no choice but to utilize these substitutes. some vegetarians cant digest soy. some vegetarians can't eat beans. i also don't know how to tell you that not every vegetarian or vegan can ingest raw vegetables and fruits, or even cooked ones, for that matter

there are a LOT of health conditions like irritable bowel syndrome, gastroparesis, crohns disease, and other gastrointestinal issues that can cause a person to become very sick or even die if they ingest too much raw plant matter, especially vegetables high in fiber. when these fibers cannot be broken down by a person's digestive system, they can form blockages in the intestines and kill people. not every person on this planet benefits from eating a lot of leafy greans. some people are allergic to chlorophyll. some people are allergic to citric acid. diabetic people have to be careful with certain vegetables and fruits causing spikes or dips in blood sugar, and many people with diabetes end up with gastroparesis, or similar gut issues. there are a lot of reasons why people can't just switch to a diet of salads and fruit smoothies every day.

alternative foods need to be available to everyone, regardless of how much income they make. having safer alternative foods should not be relegated to the rich. these are not just being consumed by spiritual white moms on instagram. these foods need to be accessed by disabled people all over the world.

[stellaltumi]

my chronically ill best friend just said "I feel like the side effects part of a medication commercial" SO FUCKING TRUE BABE

[800-dick-pics]

Help a chronically ill person eat!

Hey im struggling to eat any soilds due to being in a pretty bad chronic illness flare. I cant keep anything soild down so I need liquid nutritional shakes to help replace the calories im not getting from soild food. The only brand my stomach agrees with costs $30 for 6 shakes so Im really not in a place to buy 2-4 boxes at the moment.

If anyone could help me get a few boxes of shakes that would be amazing! $90 would get me 3 boxes!

CA: $sleepyhen

VN: wildwotko

Dm 4 Paypl

[gayaest]

Rawiya chibi 🪺🪷🍈🧸📚

[gleditsia-triacanthos]

some EDS reminders (i’ve been seeing a disturbing amount of misinformation):

- collagen supplements will not help (the issue is your recipe, not a lack of ingredients).

- avoid chiropractors (disturbingly, i’ve seen some advertisement toward people with EDS specifically). neck manipulations by people without real medical certification can be deadly or seriously harmful, and that risk is exacerbated by the lack of connective tissue integrity.

- the idea of the MTHFR gene as a cause of autism, hEDS, immune issues, and GI issues is not at all substantiated. MTHFR gene mutations are incredibly rare, and they come with a distinct set of symptoms.

- hEDS is not a rare condition.

- it’s incredibly dangerous to use mobility aids without medical advice. i entirely understand this isn’t a possibility for everyone, but at least consulting a physio is critical. improperly sized or used canes can cause serious upper body problems, braces without ongoing pt deconditioning, and manual wheelchairs are very simply not good for the human body. this is a complicated topic, benefits and losses need to be weighed from person to person, but be mindful and seek advice.

- hypermobility ≠ eds. symptomatic hypermobility ≠ eds. eds is systemic and not self-diagnosable. it is not “peer reviewable.”

peace and love. stay safe friends.

[vegan-nom-noms]

Anti-Inflammatory Foods:

Blue Spirulina

Strawberries

Broccoli

Turmeric

Chickpeas

Avocado

Kale

Raspberries

Matcha

Black Beans

Cabbage

Ginger

Bananas

Pumpkin Seeds

Almonds

Tofu

Blueberries

Lentils

Mushrooms

Quinoa

Bell Peppers

Pomegranate

Cherries

Pecans

Kidney Beans

Bok Choy

Pears

Tempeh

Spinach

Oats

Walnuts

Sweet Potatoes

Buckwheat

Carrots

Black Tea

Zucchini

Brussels Sprouts

[spoonful116]

Getting diagnosed with a chronic condition is easy! Just follow these steps:

Have symptoms

Schedule doctor visit

Wait indefinitely

Repeat

[thedeathwitchescats]

If you feel the need to gift your chronically ill friends things for whatever reason, here is my "starter pack/gift guide"

A pack of their favorite gateorade flavor, great for hydration, tastes good, easy and quick. Body armor, prime, etc are also good options if they dont like gateorade

Some of their favorite powder electrolytes. Liquid IV and drip drop are some good options. There are also the generic brand electrolyte packets at Walmart, I think they taste good. There is also bouy if they like the squeezy ones, i dont but if they do bouy has an unflavored one as well as like 30 different options

Kt tape. Regular, extreme strength, cooling, heating, literally any type of kt tape. They can probably find a use for it. Most ((not all but most)) chronically ill people, at least the ones I know, suffer from some type of joint issues and kt tape is a life saver. On this vein, I would stray away from braces unless you know what joints/muscles specifically give them the most trouble, kt tape is a bit more versatile

Compression socks, there are cute ones on Amazon, Walmart, many small business sell some nice ones. I would go for a higher compression, or at least upwards of 15 mmhg, for the best chance of them being worth it

Temperature devices, im putting these in the same bullet point bc it felt unnecessary to put ice packs and heating pads in different points. Ice packs are really nice for swelling and heating pads are really good for pain. Both are a good option ALWAYS. I will say, the reusable ice packs give you a better bang for your buck than the single use crack and use ones.

Their comfort foods. A bit of an ed tw for this bullet point, but i have noticed quite a few of my fellow chronic illness sufferers deal with an ed, and while it isnt all of us, those who do probably find it a bit extra hard to eat on rough days. So comfort foods/snacks

If they have to take their blood sugar for things, lancets. They usually come in like 100 packs for really cheap, like under 5 bucks cheap. Just check to see the brand of their lancing pen before you buy them tho

Batteries, it sounds weird but stay with me. Do you know how many medical devices I have that require batteries?? MANY. My hr monitor, my glucose monitor, my blood pressure monitor- like bro, a pack of triple a batteries will mean more than you think trust

A weighted blanket/stuffie. Stuffies are cute and easy to carry around, blankets are nice when you need some extra weight

If they have a service animal, an accessory for their vest/leash/collar could be nice

One of those reacher things that grab things for you. I want one of those. When your stuck in bed, cant move, ill, in pain and suddenly drop your mother fucking phone cord off the side of your bed and now you have to MOVE and grab it- 10/10 worst experience. One of those grabby things would be amazing

A migraine cap. I got mine from target but I have seen them at Walmart, on Amazon, weirdly one on depop, some on shein, some at places like tj maxx, etc. Migraine caps are especially wonderful for those days where your shut in your room, blinds drawn, fans off, three ice packs on you in constant rotation, barely mobile and for some gods forsaken reason your blinds wont close all the way so the light keeps catching your eyes and making you want to lose your ever loving shit bc you cant move to fuck with them. And more normal experiences Im sure lmao

If your short on funds, just being there with them, listening to them, watching a movie, body doubling so they can get some help with chores, running errands with them, literally anything so they remember their a human person with human feelings that you love and care abt. Who knows, it might help you feel better too

More than anything, listening to what they want and need is a bigger gift than most think

[chronicallydragons]

Anyone else with chronic pain ever get really absorbed in a project and dissociate from your body while you're working but then you finish and you come back to your body and you're just like AAAAAAAHHH! WHAT'S WRONG?? oh yeah. The horrors. Never mind

[feelingthemode]

disability pride month userboxes part 3/5

posted these on insta throughout the month :3

[stellaltumi]

ah yes, the age old question:

am I getting over being sick, or did my baseline get worse

[madeofbees]

i would like a little less pain and suffering this year

not more

whatever deity misheard me, please double check your paperwork

less pain

less

thank u

[800-dick-pics]

Help Disabled Lesbians of Color Eat!!!

My partner and I have food allergies and digestive/immune issues, and due to my partner only finding this out recently we havent been able to buy all the food we both need to eat! My partner is basically loosing a lot of weight and starving at work because we dont have any food shes not allergic to for her to eat. I just need $200 to get us some foods that dont make us sick, it has been really hard for my partner so if you can pls show us some support.

$200 Goal

CA: $sleepyhen

VN: wildwotko

DM for Paypl

[wearingmystripes]

no offense to able bodied people, but when i say i’m tired and you say you’re tired we are NOT talking about the same thing

[rosesandthorns44]

That chronic illness feeling where you don't want to die soon, but the idea of spending another 60 or so years in this body makes you want to scream.